Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 Hi Bob, I'm interested in what you said about seeing a neurologist. I have spinal stenosis in 4 places in my spine, 3 of which are in my neck. In the last three years, I've had increasing numbness in my extremities associated with the narrowing of my spinal canal. It was only after this started that I began to have afib attacks. Now that you mention it, I wonder if there is a relationship. Willa Atrial Fibrillation > My name is Bob Boehnke, a long time but inactive member. I am a 73 > year old male in good general health with lone atrial fibrillation > for12 years. These AF currently last 20-40 hrs. and occur cyclically, > without fail, every 3 days. The AF are better than 95% vagally > mediated via the known triggger(ie.when resting, when asleep at > night, after a meal, compressing the abdominal region.)The AF can > only be triggered when my body's autonomic tone is at a peak level of > the 3-day cycle. For many hours before the next cycle peak is > reached, a gradually increasing need to urinate occurs as well as an > increase in blood pressure. When the AF erupts into being, need to > urinate increases dramatically to every 1/2-2 hrs. During the time > interval from the end of an AF until the next cycle peak (about 2 > days) I cannot experience an AF. EP cardiologists cannot explain this > or offer any solution other than trying to smother the symtoms via > drugs or EP lab. Is it not time to turn this common problem over to > the neurologists? Any comments? Anyone with similar AF symtoms? > > > > Web Page /group/AFIBsupport > Afibbers Database- http://www.dialsolutions.com/af > To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups > Daily digest mode: Send a blank message to AFIBsupport-digestegroups > Individual emails: Send a blank message to AFIBsupport-normalegroups > Read on web only: Send a blank message to AFIBsupport-nomailegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 > My name is Bob Boehnke, a long time but inactive member. I am a 73 > year old male in good general health with lone atrial fibrillation > for12 years. These AF currently last 20-40 hrs. and occur cyclically, > without fail, every 3 days. The AF are better than 95% vagally > mediated via the known triggger(ie.when resting, when asleep at > night, after a meal, compressing the abdominal region.)The AF can > only be triggered when my body's autonomic tone is at a peak level of > the 3-day cycle. For many hours before the next cycle peak is > reached, a gradually increasing need to urinate occurs as well as an > increase in blood pressure. When the AF erupts into being, need to > urinate increases dramatically to every 1/2-2 hrs. During the time > interval from the end of an AF until the next cycle peak (about 2 > days) I cannot experience an AF. EP cardiologists cannot explain this > or offer any solution other than trying to smother the symtoms via > drugs or EP lab. Is it not time to turn this common problem over to > the neurologists? Any comments? Anyone with similar AF symtoms? " Is it not time to turn this common problem over to the neurologists? " I wonder if truer words have ever been spoken. Or, alternatively, turn it over to ANYONE who will consider the body as a whole, not just isolated organs. Bob, your case is the PERFECT EXAMPLE to illustrate the great probability that something builds up in the system every 3 days that is for some reason then RELEASED so that, as you say, an AF episode CANNOT BE TRIGGERED until the next cycle. I could chew nails in frustration when I think that here is an example of a golden opportunity for LEARNING something about AF being WASTED. Instead of just trying to " smother " the information that is crying to be revealed, why are Bob's " effluents " not MEASURED AND ANALYZED as the cycle develops? WHY ARE NOT DIFFERENCES IN CONCENTRATIONS NOTED? The man is as regular as Old Faithful, for heaven's sake. An answer to WHY Bob's vagal AF can be so cyclical and so regular would more than likely yield scads of information about other forms of AF as well. Any ideas, people, about how we can SCREAM loudly enough to be heard past the rattle of money-gobbling, misery-causing, and info-hiding pills? What is happening to us is INSANE! What say we all, when next the Big P is due, measure it, bottle it, identify it, and deliver it to where it will do the most good? (I nearly said - " in the shoes of those who most frustrate us " , but I won't )ARGHHH! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 I couldn't agree more Bob - I see my cardiologist in January and I'm going to ask him to either perform some daily tests or to put me on to someone he thinks could the do tests. Finding what peeks or troughs in our cycle I'm sure is the key to curing the source of the problem rather than seeking relief of a symptom. It may well be that many disciplines have to collaborate to sort the problem out. All the best -- D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 You said it good! Re: Atrial Fibrillation > > > My name is Bob Boehnke, a long time but inactive member. I am a 73 > > year old male in good general health with lone atrial fibrillation > > for12 years. These AF currently last 20-40 hrs. and occur > cyclically, > > without fail, every 3 days. The AF are better than 95% vagally > > mediated via the known triggger(ie.when resting, when asleep at > > night, after a meal, compressing the abdominal region.)The AF can > > only be triggered when my body's autonomic tone is at a peak level > of > > the 3-day cycle. For many hours before the next cycle peak is > > reached, a gradually increasing need to urinate occurs as well as an > > > increase in blood pressure. When the AF erupts into being, need to > > urinate increases dramatically to every 1/2-2 hrs. During the time > > interval from the end of an AF until the next cycle peak (about 2 > > days) I cannot experience an AF. EP cardiologists cannot explain > this > > or offer any solution other than trying to smother the symtoms via > > drugs or EP lab. Is it not time to turn this common problem over to > > the neurologists? Any comments? Anyone with similar AF symtoms? > > > " Is it not time to turn this common problem over to the neurologists? " > I wonder if truer words have ever been spoken. Or, alternatively, turn > it over to ANYONE who will consider the body as a whole, not just > isolated organs. Bob, your case is the PERFECT EXAMPLE to illustrate > the great probability that something builds up in the system every 3 > days that is for some reason then RELEASED so that, as you say, an AF > episode CANNOT BE TRIGGERED until the next cycle. I could chew nails > in frustration when I think that here is an example of a golden > opportunity for LEARNING something about AF being WASTED. Instead of > just trying to " smother " the information that is crying to be > revealed, why are Bob's " effluents " not MEASURED AND ANALYZED as the > cycle develops? WHY ARE NOT DIFFERENCES IN CONCENTRATIONS NOTED? The > man is as regular as Old Faithful, for heaven's sake. An answer to WHY > Bob's vagal AF can be so cyclical and so regular would more than > likely yield scads of information about other forms of AF as well. > Any ideas, people, about how we can SCREAM loudly enough to be > heard past the rattle of money-gobbling, misery-causing, and > info-hiding pills? What is happening to us is INSANE! > What say we all, when next the Big P is due, measure it, bottle > it, identify it, and deliver it to where it will do the most good? (I > nearly said - " in the shoes of those who most frustrate us " , but I > won't )ARGHHH! > > > > > Web Page /group/AFIBsupport > Afibbers Database- http://www.dialsolutions.com/af > To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups > Daily digest mode: Send a blank message to AFIBsupport-digestegroups > Individual emails: Send a blank message to AFIBsupport-normalegroups > Read on web only: Send a blank message to AFIBsupport-nomailegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 Bob , My history is very similar to your own . I have been challenged as you have with AF for twelve years . I have similar three to five day cycles ; length of episodes fifteen to thirty five hours . I am always thinking about newer and better theories to explain this debilitating problem . Currently I am curious about the impact of digestive triggers that may or may not be very evident . Could some digestive 'thing ' lead to a 'build up' of something eg gas ? Some attention in this Group has been given to the efficacy of tums . I presume that tums is some sort of degassing agent ? Then again I wonder about a hiatus hernia as the culprit . I wonder if one can have a hiatus hernia and show few if any symptoms .? I would like to know why you think a neurologist might have some useful input . I'm not suggesting that a neurologist would have nothing useful to add . I am simply interested in your thinking that has led you to thinking about consulting a neurologist . Finally do you have any tricks for accellerating reversion ? Tom In AFIBsupportegroups, " bob(rocky) boehnke " <tricrock@n...> wrote: > My name is Bob Boehnke, a long time but inactive member. I am a 73 > year old male in good general health with lone atrial fibrillation > for12 years. These AF currently last 20-40 hrs. and occur cyclically, > without fail, every 3 days. The AF are better than 95% vagally > mediated via the known triggger(ie.when resting, when asleep at > night, after a meal, compressing the abdominal region.)The AF can > only be triggered when my body's autonomic tone is at a peak level of > the 3-day cycle. For many hours before the next cycle peak is > reached, a gradually increasing need to urinate occurs as well as an > increase in blood pressure. When the AF erupts into being, need to > urinate increases dramatically to every 1/2-2 hrs. During the time > interval from the end of an AF until the next cycle peak (about 2 > days) I cannot experience an AF. EP cardiologists cannot explain this > or offer any solution other than trying to smother the symtoms via > drugs or EP lab. Is it not time to turn this common problem over to > the neurologists? Any comments? Anyone with similar AF symtoms? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 > Any ideas, people, about how we can SCREAM loudly enough to be >heard past the rattle of money-gobbling, misery-causing, and >info-hiding pills? What is happening to us is INSANE! How about we organize a protest march at the Mayo Clinic? > What say we all, when next the Big P is due, measure it, bottle >it, identify it, and deliver it to where it will do the most good? (I >nearly said - " in the shoes of those who most frustrate us " , but I >won't )ARGHHH! You articulate clearly the frustration we all feel. Your idea to measure our effluents is a good one. If one were to do this, what exactly would one look for? Would one ask one's doctor for a routine urine panel? Or something more elaborate? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 > > Any ideas, people, about how we can SCREAM loudly enough to be > >heard past the rattle of money-gobbling, misery-causing, and > >info-hiding pills? What is happening to us is INSANE! > > How about we organize a protest march at the Mayo Clinic? > > > What say we all, when next the Big P is due, measure it, bottle > >it, identify it, and deliver it to where it will do the most good? (I > >nearly said - " in the shoes of those who most frustrate us " , but I > >won't )ARGHHH! > > You articulate clearly the frustration we all feel. Your idea to measure > our effluents is a good one. If one were to do this, what exactly would one > look for? Would one ask one's doctor for a routine urine panel? Or > something more elaborate? : I have no idea. It has been suggested to me (by nurse when I got a Holter Monitor attached today), on a blustery day when no one else showed up, allowing some " talk time " , that some of the big research labs might be interested in hearing our stories; i.e. Medtronics. I know they push " gadgets " instead of pills, but anything to get our story told. Once again I was amazed. Should I have said un-Mazed? My references to the Maze approach came as a complete surprise. It was unknown. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.