Guest guest Posted July 6, 2006 Report Share Posted July 6, 2006 Ginger, I hope you have a clue as to how important YOU are to all of us. I am in awe of your courage and your faith. Losing your life mate is devastating....but for someone who is chronically and seriously ill to have to face being alone in the fight for her life....I am amazed that you didn't just curl up in a corner and give up. Instead, you fight this beast and you give us all encouragement to do the same, even when we are so weak. Thank you, from me! I grieve with you today and will keep you in my heart. Love and hugs, Joyce PF 1997 >> Today was a rough day for me, as it marks one year since my husband Denny's > death. I never would have believed I would survive such a tragedy. But I > have...and only by the love, support, and encouragement from this group and > others. I thank God everyday for each one of you. Because of all of you, I do not > walk this journey alone.> kiss kiss,> ~Ginger~> IPF 9/04> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2006 Report Share Posted July 6, 2006 , Every holiday will bring new memories and new tears. The pain gets less sharp as time goes on, but I will forever more mourn and grieve my own mother. Your sadness is yet so new. I will remember you in my prayers. Hugs, Joyce PF 1997 Today was a rough day for me, as it marks one year since my husband Denny's death. I never would have believed I would survive such a tragedy. But I have...and only by the love, support, and encouragement from this group and others. I thank God everyday for each one of you. Because of all of you, I do not walk this journey alone.> kiss kiss,> ~Ginger~> IPF 9/04> > > > > > > ---------------------------------> Want to be your own boss? Learn how on Yahoo! Small Business.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2006 Report Share Posted July 7, 2006 .... with ref to the former husband's passing, I would dance on the grave of my ex-wife if I learned she had died (preferably horribly). That woman cost me my active duty career, gave me psychological and financial problems that still exist today after 21 years and, impact on my family's life today ... albeit in a greatly reduced form. Her own brother has broken off contact with her, following the death of their mother. She is/was a parasite who also hurt my own parents with her actions. It may not be nice but, it is the truth. As the years go by the hurt recedes but, is never forgotten. Phred ---- Original Message ---- From: joycedalton29@... To: Breathe-Support Subject: RE: Re: Today Date: Fri, 07 Jul 2006 00:10:59 -0000 > >Ginger, > >I hope you have a clue as to how important YOU are to all of us. I >am >in awe of your courage and your faith. Losing your life mate is >devastating....but for someone who is chronically and seriously ill >to >have to face being alone in the fight for her life....I am amazed >that >you didn't just curl up in a corner and give up. Instead, you fight >this >beast and you give us all encouragement to do the same, even when we >are >so weak. > >Thank you, from me! I grieve with you today and will keep you in my >heart. > >Love and hugs, > >Joyce PF 1997 > >> >> Today was a rough day for me, as it marks one year since my husband >Denny's >> death. I never would have believed I would survive such a tragedy. >But >I >> have...and only by the love, support, and encouragement from this >group and >> others. I thank God everyday for each one of you. Because of all of >you, I do not >> walk this journey alone. >> kiss kiss, >> ~Ginger~ >> IPF 9/04 >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2006 Report Share Posted July 7, 2006 .... sorry, Peggy, this I CAN'T let go. The impact on my family has been financially and, it has taken most of 20 years to overcome it. As far as SHE is concerned, you have NO idea of the insults, to me AND my family, from her and, the way it affected my duty. I STILL have a remnent of the $250,000.00 to pay off that she cost me (yes, the amount is correct!). One doesn't forget things like that easily. Phred ---- Original Message ---- From: pac1773@... To: Breathe-Support Subject: Re: Re: Today Date: Fri, 07 Jul 2006 13:17:56 -0400 >WOW FRED, You have a lot of anger your carrying around about your >first >wife. I do think it's time to " LET IT GO " Stress is a killer. It does >not >matter what has happened in the past you are NOT being fair to your >wife and >daughter. One moment spent thinking about the past with that much >anger is >taking hours from your future, your health will suffer from it. Think >about >it. Is it really worth the time and energy?? !! >I do now know why when I pray I have such a burden for you. I am >going to >continue to pray for you. God Bless you...Peggy 09/04 ipf > >... with ref to the former husband's passing, I would dance on the >grave of my ex-wife if I learned she had died (preferably horribly). >That woman cost me my active duty career, gave me psychological and >financial problems that still exist today after 21 years and, impact >on my family's life today ... albeit in a greatly reduced form. Her >own brother has broken off contact with her, following the death of >their mother. She is/was a parasite who also hurt my own parents with >her actions. > >It may not be nice but, it is the truth. As the years go by the hurt >recedes but, is never forgotten. > >Phred > >---- Original Message ---- >From: joycedalton29@... <mailto:joycedalton29%40aol.com> >To: Breathe-Support ><mailto:Breathe-Support%40yahoogroups.com> >Subject: RE: Re: Today >Date: Fri, 07 Jul 2006 00:10:59 -0000 > >> >>Ginger, >> >>I hope you have a clue as to how important YOU are to all of us. I >>am >>in awe of your courage and your faith. Losing your life mate is >>devastating....but for someone who is chronically and seriously ill >>to >>have to face being alone in the fight for her life....I am amazed >>that >>you didn't just curl up in a corner and give up. Instead, you fight >>this >>beast and you give us all encouragement to do the same, even when we >>are >>so weak. >> >>Thank you, from me! I grieve with you today and will keep you in my >>heart. >> >>Love and hugs, >> >>Joyce PF 1997 >> >>> >>> Today was a rough day for me, as it marks one year since my >husband >>Denny's >>> death. I never would have believed I would survive such a tragedy. >>But >>I >>> have...and only by the love, support, and encouragement from this >>group and >>> others. I thank God everyday for each one of you. Because of all >of >>you, I do not >>> walk this journey alone. >>> kiss kiss, >>> ~Ginger~ >>> IPF 9/04 >>> >> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 I'm sure you won't forget. But I do know things and money are not important when it comes to life changes. Money it a great thing but not to bring happiness. When it becomes the most important thing to you. your headed for heartache. Things are just things. Money is just money. I can't imagine having that much money to worry about.. no thanks. God has always supplied everything we need and a bunch wants. But nothing I have ever owned is worth the happiness of my family. and peace of mind. I can tell you have really been hurt but Fred with this monster on our backs, I still think it's enough to deal with.. " Let it go " just give it some fresh thought. What would change if I no longer let this problem invade my life for THIS day.. If you can get it out of your head I honestly think your last yearSSS will be so much better.... As for HER well I like to think what goes around comes around. She will get hers.. Just hide and watch. That's what I do.....on a much smaller scale... I'm praying for you. Join the chat next time and we'll all gang up on you. LOL LOL HAHAHHAH God Bless...Peggy 09/04 ipf .... sorry, Peggy, this I CAN'T let go. The impact on my family has been financially and, it has taken most of 20 years to overcome it. As far as SHE is concerned, you have NO idea of the insults, to me AND my family, from her and, the way it affected my duty. I STILL have a remnent of the $250,000.00 to pay off that she cost me (yes, the amount is correct!). One doesn't forget things like that easily. Phred ---- Original Message ---- From: pac1773@... <mailto:pac1773%40cfl.rr.com> To: Breathe-Support <mailto:Breathe-Support%40yahoogroups.com> Subject: Re: Re: Today Date: Fri, 07 Jul 2006 13:17:56 -0400 >WOW FRED, You have a lot of anger your carrying around about your >first >wife. I do think it's time to " LET IT GO " Stress is a killer. It does >not >matter what has happened in the past you are NOT being fair to your >wife and >daughter. One moment spent thinking about the past with that much >anger is >taking hours from your future, your health will suffer from it. Think >about >it. Is it really worth the time and energy?? !! >I do now know why when I pray I have such a burden for you. I am >going to >continue to pray for you. God Bless you...Peggy 09/04 ipf > >... with ref to the former husband's passing, I would dance on the >grave of my ex-wife if I learned she had died (preferably horribly). >That woman cost me my active duty career, gave me psychological and >financial problems that still exist today after 21 years and, impact >on my family's life today ... albeit in a greatly reduced form. Her >own brother has broken off contact with her, following the death of >their mother. She is/was a parasite who also hurt my own parents with >her actions. > >It may not be nice but, it is the truth. As the years go by the hurt >recedes but, is never forgotten. > >Phred > >---- Original Message ---- >From: joycedalton29@... <mailto:joycedalton29%40aol.com> <mailto:joycedalton29%40aol.com> >To: Breathe-Support <mailto:Breathe-Support%40yahoogroups.com> ><mailto:Breathe-Support%40yahoogroups.com> >Subject: RE: Re: Today >Date: Fri, 07 Jul 2006 00:10:59 -0000 > >> >>Ginger, >> >>I hope you have a clue as to how important YOU are to all of us. I >>am >>in awe of your courage and your faith. Losing your life mate is >>devastating....but for someone who is chronically and seriously ill >>to >>have to face being alone in the fight for her life....I am amazed >>that >>you didn't just curl up in a corner and give up. Instead, you fight >>this >>beast and you give us all encouragement to do the same, even when we >>are >>so weak. >> >>Thank you, from me! I grieve with you today and will keep you in my >>heart. >> >>Love and hugs, >> >>Joyce PF 1997 >> >>> >>> Today was a rough day for me, as it marks one year since my >husband >>Denny's >>> death. I never would have believed I would survive such a tragedy. >>But >>I >>> have...and only by the love, support, and encouragement from this >>group and >>> others. I thank God everyday for each one of you. Because of all >of >>you, I do not >>> walk this journey alone. >>> kiss kiss, >>> ~Ginger~ >>> IPF 9/04 >>> >> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 What works for me is: How can I expect forgiveness, 'IF' I don't show forgiveness. It's on the same basis as, "You reap what you sow." If I plant tomatoes, then I harvest tomatoes. If I plant "unforgiveness" and cling to "grudges," then my harvest will be unforgiveness and grudges held against me. To me, its a spiritual law. Whatever you plant....good or bad, you will reap that harvest. kiss kiss, -Ginger- IPF 9/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 Phred, The Bible tell us to 'be angry, but do not sin'.....even Jesus was angry when he went into the temple and the people were using it as a place to make money. But, I believe the sin comes when you plot to take revenge. I don't believe you have done that. It is also very stressful and destructive to your good health. Saying all this, I will tell you that I have a person in my life that I feel anger for and yes, sometimes hatred. I have really had to struggle against it. I can feel my physical reaction to the sound of his name. I pray about it and try so hard to leave it alone. Like you, the hurt that this person has caused our family is much harder to forgive than anything he could have done to me personally. That is the way it is when your children and grandchildren are involved. Thanks for sharing with us. Sometimes we forget that others have to deal with many of the same problems that we do. Good health to you, Joyce PF 1997> >>>> >>> Today was a rough day for me, as it marks one year since my> >husband> >>Denny's> >>> death. I never would have believed I would survive such a tragedy.> >>But> >>I> >>> have...and only by the love, support, and encouragement from this> >>group and> >>> others. I thank God everyday for each one of you. Because of all> >of> >>you, I do not> >>> walk this journey alone.> >>> kiss kiss,> >>> ~Ginger~> >>> IPF 9/04> >>>> >>> >>> >> > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 I am the care giver for my husband who has IPF.He was diagnosed in Sept. of last 2005. He had a lung biopsy...I have done a lot of research on line but can't seem to find information regarding what to expect during the end stages. His PFT is down to 27 and sats drop to 73-80 just walking a few feet. He is on 4-5 liters of oxygen 24/7, has coughing most of the time (non productive) Quite often he does get hypoxia....Feet hands and around his mouth are white most of the time...There do not seem to be any support groups on the Sarasota , Florida area....do you know where I can talk to people on line or get information as to what to expect over the long haul. Thanks you geri johnson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 .... let me put it this way, Joyce. Kathleen Abigail Lake is so NASTY, the Pope'ud kick her in the butt! Phred ---- Original Message ---- From: joycedalton29@... To: Breathe-Support Subject: RE: Re: Today Date: Sat, 08 Jul 2006 17:26:13 -0000 > >Phred, > >The Bible tell us to 'be angry, but do not sin'.....even Jesus was >angry >when he went into the temple and the people were using it as a place >to >make money. But, I believe the sin comes when you plot to take >revenge. >I don't believe you have done that. It is also very stressful and >destructive to your good health. Saying all this, I will tell you >that >I have a person in my life that I feel anger for and yes, sometimes >hatred. I have really had to struggle against it. I can feel my >physical reaction to the sound of his name. I pray about it and try >so >hard to leave it alone. Like you, the hurt that this person has >caused >our family is much harder to forgive than anything he could have done >to >me personally. That is the way it is when your children and >grandchildren are involved. > >Thanks for sharing with us. Sometimes we forget that others have to >deal with many of the same problems that we do. > >Good health to you, > >Joyce PF 1997 > >> >>> >> >>> Today was a rough day for me, as it marks one year since my >> >husband >> >>Denny's >> >>> death. I never would have believed I would survive such a >tragedy. >> >>But >> >>I >> >>> have...and only by the love, support, and encouragement from >this >> >>group and >> >>> others. I thank God everyday for each one of you. Because of >all >> >of >> >>you, I do not >> >>> walk this journey alone. >> >>> kiss kiss, >> >>> ~Ginger~ >> >>> IPF 9/04 >> >>> >> >> >> >> >> > >> > >> > >> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 Peggy, because of HER I was effectively homeless, jobless and, many of my problems began with that woman. It affected our lives financially to an extent you just CANNOT believe. Sorry, this one I don't let go .... The ONLY way I can is to finally repay the $2,000.00 settlement from the divorce, in the presence of my wonderful family and, in a new car on the way to CA to visit my wife's relatives. Revenge, sure but, served cold and pointing out that we are not only living but, living WELL! Then and only then will I be able to let go easier. Phred ---- Original Message ---- From: pac1773@... To: Breathe-Support Subject: Re: Re: Today Date: Sat, 08 Jul 2006 11:07:10 -0400 >I'm sure you won't forget. But I do know things and money are not >important >when it comes to life changes. Money it a great thing but not to >bring >happiness. When it becomes the most important thing to you. your >headed for >heartache. Things are just things. Money is just money. I can't >imagine >having that much money to worry about.. no thanks. God has always >supplied >everything we need and a bunch wants. But nothing I have ever owned >is worth >the happiness of my family. and peace of mind. >I can tell you have really been hurt but Fred with this monster on >our >backs, I still think it's enough to deal with.. " Let it go " just give >it >some fresh thought. What would change if I no longer let this problem >invade >my life for THIS day.. If you can get it out of your head I honestly >think >your last yearSSS will be so much better.... As for HER well I like >to >think what goes around comes around. She will get hers.. Just hide >and >watch. That's what I do.....on a much smaller scale... I'm praying >for you. >Join the chat next time and we'll all gang up on you. LOL LOL >HAHAHHAH God >Bless...Peggy 09/04 ipf > >... sorry, Peggy, this I CAN'T let go. The impact on my family has >been financially and, it has taken most of 20 years to overcome it. >As far as SHE is concerned, you have NO idea of the insults, to me >AND my family, from her and, the way it affected my duty. I STILL >have a remnent of the $250,000.00 to pay off that she cost me (yes, >the amount is correct!). One doesn't forget things like that easily. > >Phred > >---- Original Message ---- >From: pac1773@... <mailto:pac1773%40cfl.rr.com> >To: Breathe-Support ><mailto:Breathe-Support%40yahoogroups.com> >Subject: Re: Re: Today >Date: Fri, 07 Jul 2006 13:17:56 -0400 > >>WOW FRED, You have a lot of anger your carrying around about your >>first >>wife. I do think it's time to " LET IT GO " Stress is a killer. It >does >>not >>matter what has happened in the past you are NOT being fair to your >>wife and >>daughter. One moment spent thinking about the past with that much >>anger is >>taking hours from your future, your health will suffer from it. >Think >>about >>it. Is it really worth the time and energy?? !! >>I do now know why when I pray I have such a burden for you. I am >>going to >>continue to pray for you. God Bless you...Peggy 09/04 ipf >> >>... with ref to the former husband's passing, I would dance on the >>grave of my ex-wife if I learned she had died (preferably horribly). >>That woman cost me my active duty career, gave me psychological and >>financial problems that still exist today after 21 years and, impact >>on my family's life today ... albeit in a greatly reduced form. Her >>own brother has broken off contact with her, following the death of >>their mother. She is/was a parasite who also hurt my own parents >with >>her actions. >> >>It may not be nice but, it is the truth. As the years go by the hurt >>recedes but, is never forgotten. >> >>Phred >> >>---- Original Message ---- >>From: joycedalton29@... <mailto:joycedalton29%40aol.com> ><mailto:joycedalton29%40aol.com> >>To: Breathe-Support ><mailto:Breathe-Support%40yahoogroups.com> >><mailto:Breathe-Support%40yahoogroups.com> >>Subject: RE: Re: Today >>Date: Fri, 07 Jul 2006 00:10:59 -0000 >> >>> >>>Ginger, >>> >>>I hope you have a clue as to how important YOU are to all of us. I >>>am >>>in awe of your courage and your faith. Losing your life mate is >>>devastating....but for someone who is chronically and seriously ill >>>to >>>have to face being alone in the fight for her life....I am amazed >>>that >>>you didn't just curl up in a corner and give up. Instead, you fight >>>this >>>beast and you give us all encouragement to do the same, even when >we >>>are >>>so weak. >>> >>>Thank you, from me! I grieve with you today and will keep you in >my >>>heart. >>> >>>Love and hugs, >>> >>>Joyce PF 1997 >>> >>>> >>>> Today was a rough day for me, as it marks one year since my >>husband >>>Denny's >>>> death. I never would have believed I would survive such a >tragedy. >>>But >>>I >>>> have...and only by the love, support, and encouragement from this >>>group and >>>> others. I thank God everyday for each one of you. Because of all >>of >>>you, I do not >>>> walk this journey alone. >>>> kiss kiss, >>>> ~Ginger~ >>>> IPF 9/04 >>>> >>> >>> >> >> >> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 .... what'd work for me, Ginger, is to show THAT WOMAN that I and my family are living well ... that is important. Phred ---- Original Message ---- From: TongueDancer2U@... To: Breathe-Support Subject: Re: Re: Today Date: Sat, 8 Jul 2006 16:09:57 EDT >What works for me is: How can I expect forgiveness, 'IF' I don't >show >forgiveness. It's on the same basis as, " You reap what you sow. " If >I plant >tomatoes, then I harvest tomatoes. If I plant " unforgiveness " and >cling to > " grudges, " then my harvest will be unforgiveness and grudges held >against me. To me, >its a spiritual law. Whatever you plant....good or bad, you will >reap that >harvest. >kiss kiss, >-Ginger- >IPF 9/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 Then and only then will I be able to let go easier. That's a shame. To allow something to eat away at you, when it appears you have overcame so much and are a better person, because of Who lives within you. She will have to stand before God some day and account for her actions, I hope and pray you will not have to join her. kiss kiss, ~Ginger~ IPF 9/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2006 Report Share Posted July 8, 2006 .... what'd work for me, Ginger, is to show THAT WOMAN that I and myfamily are living well ... that is important.Phred ....or maybe show from WHOM ALL blessings flow. That in spite of all the hardships, God still continued to lift you and yours up and the blessings continued to flow. I know from WHOM all blessings flow. His mercies endureth forever. Be careful Phred, resentment can eat away like a canchere sore. kiss kiss, -Ginger- IPF 9/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2006 Report Share Posted July 9, 2006 No, no, no, no.....we couldn't do without our Phred. We have all come to count on him for our laugh for the day. Fred is a great guy and we love him. On this board we are honest and we allow ranting and venting and crying and praying.... most of all sharing. It is o.k. We are here to support each other......> > > >>>> > > >>> Today was a rough day for me, as it marks one year since my> > > >husband> > > >>Denny's> > > >>> death. I never would have believed I would survive such a > tragedy.> > > >>But> > > >>I> > > >>> have...and only by the love, support, and encouragement from > this> > > >>group and> > > >>> others. I thank God everyday for each one of you. Because of > all> > > >of> > > >>you, I do not> > > >>> walk this journey alone.> > > >>> kiss kiss,> > > >>> ~Ginger~> > > >>> IPF 9/04> > > >>>> > > >>> > > >>> > > >> > > >> > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2006 Report Share Posted July 9, 2006 thank you ever so much. LouiseJoyce wrote: Louise, Try this link: http://www2.nau.edu/~daa/lecture/pft.htm There is a lot of information available about PFT testing. I think I have read it all. I am still somewhat confused. At the bottom of the page on this link there is a little chart which may help a little. Hugs, Joyce PF 1997> I am the care giver for my husband who has IPF.He was diagnosed in Sept. of last 2005. He had a lung biopsy...I have done a lot of research on line but can't seem to find information regarding what to expect during the end stages. His PFT is down to 27 and sats drop to 73-80 just walking a few feet. He is on 4-5 liters of oxygen 24/7, has coughing most of the time (non productive) Quite often he does get hypoxia....Feet hands and around his mouth are white most of the time...There do not seem to be any support groups on the Sarasota , Florida area....do you know where I can talk to people on line or get information as to what to expect over the long haul. Thanks you > > geri johnson> > > > > > > > ---------------------------------> Yahoo! Music Unlimited - Access over 1 million songs. Try it free. > > > > > ---------------------------------> Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.> Sneak preview the all-new Yahoo.com. It's not radically different. Just radically better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2006 Report Share Posted July 9, 2006 Thanks Joyce, Joyce wrote: , Every holiday will bring new memories and new tears. The pain gets less sharp as time goes on, but I will forever more mourn and grieve my own mother. Your sadness is yet so new. I will remember you in my prayers. Hugs, Joyce PF 1997 Today was a rough day for me, as it marks one year since my husband Denny's death. I never would have believed I would survive such a tragedy. But I have...and only by the love, support, and encouragement from this group and others. I thank God everyday for each one of you. Because of all of you, I do not walk this journey alone.> kiss kiss,> ~Ginger~> IPF 9/04> > > > > > > ---------------------------------> Want to be your own boss? Learn how on Yahoo! Small Business.> Sneak preview the all-new Yahoo.com. It's not radically different. Just radically better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2006 Report Share Posted July 9, 2006 Hi Geri, I have been trying to think of what to say to you, it is so very hard on our loved ones. My husband is my care giver. He will never know how much I love him for his caring. I wish I knew what the end will be. I have not seen that discussed on the posts yet. Maybe we will get into that. I don't think any of us really want to think of that part. We lost a lady about a month or so ago and her daughter-in-law said she passed peacefully. Are you keeping in constant contact with his Dr.? It sounds like his O2 isn't exactly right. I live in Silver Springs, Fl. It's in North Central by Ocala. You can call if you want to talk. This is a wonderful group of people, a few care givers. So feel free to ask anything you like, I'm sure someone will know the answers. God Bless You and Keep You...Peggy 09/04 ipf I am the care giver for my husband who has IPF.He was diagnosed in Sept. of last 2005. He had a lung biopsy...I have done a lot of research on line but can't seem to find information regarding what to expect during the end stages. His PFT is down to 27 and sats drop to 73-80 just walking a few feet. He is on 4-5 liters of oxygen 24/7, has coughing most of the time (non productive) Quite often he does get hypoxia....Feet hands and around his mouth are white most of the time...There do not seem to be any support groups on the Sarasota , Florida area....do you know where I can talk to people on line or get information as to what to expect over the long haul. Thanks you geri johnson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2006 Report Share Posted July 9, 2006 .. . .seconding the sentiment! He keeps us on our toes, adds much needed humor AND actually takes our minds off of the disease once in awhile by stirring the pot and making us debate! My mind thanks him and so does my morale. ( though occaionally I still think he needs the smack on the head) Joyce wrote: No, no, no, no.....we couldn't do without our Phred. We have all come to count on him for our laugh for the day. Fred is a great guy and we love him. On this board we are honest and we allow ranting and venting and crying and praying.... most of all sharing. It is o.k. We are here to support each other......> > > >>>> > > >>> Today was a rough day for me, as it marks one year since my> > > >husband> > > >>Denny's> > > >>> death. I never would have believed I would survive such a > tragedy.> > > >>But> > > >>I> > > >>> have...and only by the love, support, and encouragement from > this> > > >>group and> > > >>> others. I thank God everyday for each one of you. Because of > all> > > >of> > > >>you, I do not> > > >>> walk this journey alone.> > > >>> kiss kiss,> > > >>> ~Ginger~> > > >>> IPF 9/04> > > >>>> > > >>> > > >>> > > >> > > >> > > >> > > >> > >> >> Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2006 Report Share Posted July 9, 2006 Katy, I think you just don't understand Fred... NO ONE DOES... LOL sorry Fred He is such a mess.. We love him. This group supports everything and anything the other needs to vent. I am sure Ginger would tell you the same thing. I certainly hope she isn't upset. She IS THE PRINCESS here.. I know Fred wouldn't have wanted that.. Right Fred???!!!!! Anyhow I'm glad to see you have a protectiveness for us.. We just need to pray for Fred.. AGAIN. God Bless you.. We'll be looking for your posts... Peggy 09/04 ipf No, no, no, no.....we couldn't do without our Phred. We have all come to count on him for our laugh for the day. Fred is a great guy and we love him. On this board we are honest and we allow ranting and venting and crying and praying.... most of all sharing. It is o.k. We are here to support each other...... > > > > > > Phred, > > > > The Bible tell us to 'be angry, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 Peggy, I think he probably knows. You are pretty transparent! He seems like such a nice guy. I have one too. Hugs, Joyce PF 1997>> Hi Geri, I have been trying to think of what to say to you, it is so very> hard on our loved ones. My husband is my care giver. He will never know how> much I love him for his caring. I wish I knew what the end will be. I have> not seen that discussed on the posts yet. Maybe we will get into that. I> don't think any of us really want to think of that part. We lost a lady> about a month or so ago and her daughter-in-law said she passed peacefully.> Are you keeping in constant contact with his Dr.? It sounds like his O2> isn't exactly right.> I live in Silver Springs, Fl. It's in North Central by Ocala. You can call> if you want to talk.> This is a wonderful group of people, a few care givers. So feel> free to ask anything you like, I'm sure someone will know the answers. God> Bless You and Keep You...Peggy 09/04 ipf> > I am the care giver for my husband who has IPF.He was diagnosed in Sept. of> last 2005. He had a lung biopsy...I have done a lot of research on line but> can't seem to find information regarding what to expect during the end> stages. His PFT is down to 27 and sats drop to 73-80 just walking a few> feet. He is on 4-5 liters of oxygen 24/7, has coughing most of the time> (non productive) Quite often he does get hypoxia....Feet hands and around> his mouth are white most of the time...There do not seem to be any support> groups on the Sarasota , Florida area....do you know where I can talk to> people on line or get information as to what to expect over the long haul.> Thanks you > > geri johnson> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 .... OK, , you smack first ... lightest wins (heheheheheheh!) Phred ---- Original Message ---- From: dnsrndl@... To: Breathe-Support Subject: Re: Re: Today Date: Sun, 9 Jul 2006 20:14:37 -0700 (PDT) >. . .seconding the sentiment! He keeps us on our toes, adds much >needed humor AND actually takes our minds off of the disease once in >awhile by stirring the pot and making us debate! My mind thanks him >and so does my morale. ( though occaionally I still think he needs >the smack on the head) > >Joyce wrote: > No, no, no, no.....we couldn't do without our Phred. > We have all come to count on him for our laugh for the day. Fred >is a great guy and we love him. On this board we are honest and we >allow ranting and venting and crying and praying.... most of all >sharing. It is o.k. We are here to support each other...... > >> > > >>> >> > > >>> Today was a rough day for me, as it marks one year since my >> > > >husband >> > > >>Denny's >> > > >>> death. I never would have believed I would survive such a >> tragedy. >> > > >>But >> > > >>I >> > > >>> have...and only by the love, support, and encouragement >from >> this >> > > >>group and >> > > >>> others. I thank God everyday for each one of you. Because >of >> all >> > > >of >> > > >>you, I do not >> > > >>> walk this journey alone. >> > > >>> kiss kiss, >> > > >>> ~Ginger~ >> > > >>> IPF 9/04 >> > > >>> >> > > >> >> > > >> >> > > > >> > > > >> > > > >> > > > >> > > >> > >> > > > > > >--------------------------------- >Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great >rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Its raining here in South Texas, and there's a dark cloud over me, too. I have been fighting for my actimmune all day. The case manager, says there is a clause that says that the insurance will not pay for anything that is not FDA approved. Yet, on July 14th the insurance told me they were paying 100% since it was considered major medical. They also told Caring Voices Coalition the same thing. Now the case manager says this clause is there.Yet in Texas there is a law that states unapproved FDA medications can not withheld from patients when the medications may help sustain their life. Now two weeks ago they were willing to pay 80% for the actimmune and my co~pay was the 20%, which amounted to $1065.39 a month for as long as I took the actimmune. That was impossible for me. I called the Coalition on Leanne's suggestion. As they help pay for medications in many instances. They were the ones who first discovered the insurance would pay 100%. Then I found out. But it is the case managements job to save money for the insurance company as they work for them. I can undestand insurance companies hiring case management companies to handle their over load of clients. But these people are usually R.N. nurses, not Pulmonary Specialists, Pharmaceutical Specialists or Specialists in anything. There sole purpose is to work for the insurance company and save them $$$ at any cost. I can not imagine denying someone any thing that would prolong their life or enhance the quality of their life. I am seriously considering retaining an attorney because of that Texas law. Funny to me, when it was 80% they did not care about the clause. But when it became 100%, OOPS, theres that clause where we don't have to pay due to not FDA approved. The coalition is looking up the exact law and its location for me. Like all of us here, I want to live. To deny me this drug is wrong. I have cried all day, not understanding this. Have they no conscience? All of us have so much to live for. I will continue to fight for this. Please keep me in your prayers. I want God to move on the hearts of all involved in this situation. Thank you all for listening...I love each of you and continue to bring you before our Lord in prayers. kiss kiss, ~Ginger~(without actimmune) 9/04 IPF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Hi Sweetie, I am racking my brain to say something encouraging to you. You know me all I know is my own experience and the Lord. I don't know what these people are thinking. God is the Master Physician knows exactly what you need. Trust me I am heart broken for you but DON'T give up the fight. I'll be here in your corner with the prayers that I know He can give you peace. Try to turn all these things over to our Father. He is " The lifter or your head " . God Bless you this day and soften these peoples hearts is my prayer today. I did read about that law that terminal people can not be denied ANY medication approved or not.. I think P will be coming up with it. I am going to try to find it. Peggy 09/04 ipf > Its raining here in South Texas, and there's a dark cloud over me, too. I > have been fighting for my actimmune all day. The case manager, says there is > a > clause that says that the insurance will not pay for anything that is not FDA > approved. > Yet, on July 14th the insurance told me they were paying 100% since it was > considered major medical. They also told Caring Voices Coalition the same > thing. Now the case manager says this clause is there.Yet in Texas there is a > law > that states unapproved FDA medications can not withheld from patients when > the medications may help sustain their life. Now two weeks ago they were > willing to pay 80% for the actimmune and my co~pay was the 20%, which > amounted to > $1065.39 a month for as long as I took the actimmune. That was impossible for > me. I called the Coalition on Leanne's suggestion. As they help pay for > medications in many instances. They were the ones who first discovered the > insurance would pay 100%. Then I found out. But it is the case managements > job to > save money for the insurance company as they work for them. I can undestand > insurance companies hiring case management companies to handle their over > load > of clients. But these people are usually R.N. nurses, not Pulmonary > Specialists, Pharmaceutical Specialists or Specialists in anything. There > sole > purpose is to work for the insurance company and save them $$$ at any cost. I > can > not imagine denying someone any thing that would prolong their life or > enhance > the quality of their life. I am seriously considering retaining an attorney > because of that Texas law. Funny to me, when it was 80% they did not care > about the clause. But when it became 100%, OOPS, theres that clause where we > don't have to pay due to not FDA approved. The coalition is looking up the > exact > law and its location for me. Like all of us here, I want to live. To deny me > this drug is wrong. I have cried all day, not understanding this. Have they > no conscience? All of us have so much to live for. I will continue to fight > for this. Please keep me in your prayers. I want God to move on the hearts of > all involved in this situation. Thank you all for listening...I love each of > you and continue to bring you before our Lord in prayers. > kiss kiss, > ~Ginger~(without actimmune) > 9/04 IPF > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Ginger my (our hearts} cry out for your suffering and our suffering for people who are hurting so. I saw a movie last night about the history of the earth and it started me to thinking about how much I block out trying to beleive about god and his kingdom in heaven. That's all we have to look forward to. I try to have peace of mind and pray that god will let us leave without a lot of pain. We have a new little dog and she is so sweet. We have taught her to stay with me in computer room and stay out of living room and off the carpet. Hope things work good for you. You have our blessings. Grey 10/05 IPF Re: Re: Today Hi Sweetie, I am racking my brain to say something encouraging to you. You know me all Iknow is my own experience and the Lord. I don't know what these people arethinking. God is the Master Physician knows exactly what you need. Trust meI am heart broken for you but DON'T give up the fight. I'll be here in yourcorner with the prayers that I know He can give you peace. Try to turn allthese things over to our Father. He is "The lifter or your head". God Blessyou this day and soften these peoples hearts is my prayer today.I did read about that law that terminal people can not be denied ANYmedication approved or not.. I think P will be coming up with it.I am going to try to find it.Peggy 09/04 ipf> Its raining here in South Texas, and there's a dark cloud over me, too. I> have been fighting for my actimmune all day. The case manager, says there is> a > clause that says that the insurance will not pay for anything that is not FDA> approved.> Yet, on July 14th the insurance told me they were paying 100% since it was> considered major medical. They also told Caring Voices Coalition the same> thing. Now the case manager says this clause is there.Yet in Texas there is a> law > that states unapproved FDA medications can not withheld from patients when> the medications may help sustain their life. Now two weeks ago they were> willing to pay 80% for the actimmune and my co~pay was the 20%, which> amounted to > $1065.39 a month for as long as I took the actimmune. That was impossible for> me. I called the Coalition on Leanne's suggestion. As they help pay for> medications in many instances. They were the ones who first discovered the> insurance would pay 100%. Then I found out. But it is the case managements> job to > save money for the insurance company as they work for them. I can undestand> insurance companies hiring case management companies to handle their over> load > of clients. But these people are usually R.N. nurses, not Pulmonary> Specialists, Pharmaceutical Specialists or Specialists in anything. There> sole > purpose is to work for the insurance company and save them $$$ at any cost. I> can > not imagine denying someone any thing that would prolong their life or> enhance > the quality of their life. I am seriously considering retaining an attorney> because of that Texas law. Funny to me, when it was 80% they did not care> about the clause. But when it became 100%, OOPS, theres that clause where we> don't have to pay due to not FDA approved. The coalition is looking up the> exact > law and its location for me. Like all of us here, I want to live. To deny me> this drug is wrong. I have cried all day, not understanding this. Have they> no conscience? All of us have so much to live for. I will continue to fight> for this. Please keep me in your prayers. I want God to move on the hearts of> all involved in this situation. Thank you all for listening...I love each of> you and continue to bring you before our Lord in prayers.> kiss kiss,> ~Ginger~(without actimmune)> 9/04 IPF> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Ginger, I'm simply speechless at what you describe. It's inhumane what some of us deal with. Like the others, I add my prayers and pleas to our Father in heaven. Sher ipf 5=06 Re: Re: Today Hi Sweetie, I am racking my brain to say something encouraging to you. You know me all Iknow is my own experience and the Lord. I don't know what these people arethinking. God is the Master Physician knows exactly what you need. Trust meI am heart broken for you but DON'T give up the fight. I'll be here in yourcorner with the prayers that I know He can give you peace. Try to turn allthese things over to our Father. He is "The lifter or your head". God Blessyou this day and soften these peoples hearts is my prayer today.I did read about that law that terminal people can not be denied ANYmedication approved or not.. I think P will be coming up with it.I am going to try to find it.Peggy 09/04 ipf> Its raining here in South Texas, and there's a dark cloud over me, too. I> have been fighting for my actimmune all day. The case manager, says there is> a > clause that says that the insurance will not pay for anything that is not FDA> approved.> Yet, on July 14th the insurance told me they were paying 100% since it was> considered major medical. They also told Caring Voices Coalition the same> thing. Now the case manager says this clause is there.Yet in Texas there is a> law > that states unapproved FDA medications can not withheld from patients when> the medications may help sustain their life. Now two weeks ago they were> willing to pay 80% for the actimmune and my co~pay was the 20%, which> amounted to > $1065.39 a month for as long as I took the actimmune. That was impossible for> me. I called the Coalition on Leanne's suggestion. As they help pay for> medications in many instances. They were the ones who first discovered the> insurance would pay 100%. Then I found out. But it is the case managements> job to > save money for the insurance company as they work for them. I can undestand> insurance companies hiring case management companies to handle their over> load > of clients. But these people are usually R.N. nurses, not Pulmonary> Specialists, Pharmaceutical Specialists or Specialists in anything. There> sole > purpose is to work for the insurance company and save them $$$ at any cost. I> can > not imagine denying someone any thing that would prolong their life or> enhance > the quality of their life. I am seriously considering retaining an attorney> because of that Texas law. Funny to me, when it was 80% they did not care> about the clause. But when it became 100%, OOPS, theres that clause where we> don't have to pay due to not FDA approved. The coalition is looking up the> exact > law and its location for me. Like all of us here, I want to live. To deny me> this drug is wrong. I have cried all day, not understanding this. Have they> no conscience? All of us have so much to live for. I will continue to fight> for this. Please keep me in your prayers. I want God to move on the hearts of> all involved in this situation. Thank you all for listening...I love each of> you and continue to bring you before our Lord in prayers.> kiss kiss,> ~Ginger~(without actimmune)> 9/04 IPF> Quote Link to comment Share on other sites More sharing options...
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