Guest guest Posted December 20, 2000 Report Share Posted December 20, 2000 keithf.ritchie@... wrote: > Hi, > > My name is . I am 52 years old and have afib. I have been very > active physically for the last 15 years or so. Originally my afib > showed up only after heavy alcohol consumption. Then about 3 years > ago I went into a state of atrial flutter ( I think) when doing some > extremely energetic cycling. I do not drink alcohol now (or almost > zero consumption.) The situation however, seems to have gotten > worse. My latest afib session was today at 5:40 am. It lasted about > 4 hours. One pattern I have detected is that after a strenuous > activity such as a workout on a global gym, I will get afib some time > later. Afib could occur 4 hrs after I finish my workout or even the > next day. Has anybody else experienced this situation? > > I am currently taking metoprolol but do not like the side affects > plus it does not prevent afib. Your syndrome is almost exactly like mine. I began to run and bicycle seriously in my early 40's. I've done about 20 marathons and 50-mile races, usually finishing in the tope 3 in my age category. In my early 50's I began to experience A-fib. It was intermittent and unpredictable at first, but soon became more and more frequent. The first serious episode of AF I had happened after a very hard 6-mile run. Over the years I've had to progressively cut down on my workouts, until I can now no longer run steadily for more than a mile or two, and that at a very slow jog. Often I find that intense exercise will bring on an episode of fibrillation or flutter, but usually not until later in the day--after dinner or later, when I've eaten or am relaxed. Sometimes the episode comes on the next day. I've taken just about all the drugs that are out there, including defetilide (Tikosyn), and I've had a recent catheter ablation. The drugs are not effective, and they all interfere with my level of physical activity. The ablation has helped somewhat, but I still have episodes of AF or flutter after strenuous workouts. There is a definite correlation between what people on this site call " the big P " and the onset of fibrillation. I can predict the onset of an episode of AF when I find myself having a hard time staying out of the bathroom. Then, when the episode of AF is past and the frequent urination subsides to normal levels I can again do anything I want to do without bringing on another episode. My doctors have no explanation for this cycle except to tell me the the heart produces an enzyme which stimulates the kidneys to produce more urine than usual. Perhaps dehydration brings on AF. Maybe there is leeching of essential nutrients (magnesium, calcium, potassium, sodium). I'm taking magnesium/potassium/calcium supplements to see if that has any long-term benefits. I'm keeping a journal to record patterns which may help show me the relationship between my episodes of AF and other factors. So far the only connections between what I do and episodes of AF or flutter are strenuous exercise (which I LOVE), excessive alcohol consumption (more than 2 glasses of wine a day), strong emotional upset, lack of sleep, and frequent urination. Keep in touch. > > > > Web Page /group/AFIBsupport > Afibbers Database- http://www.dialsolutions.com/af > To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups > Daily digest mode: Send a blank message to AFIBsupport-digestegroups > Individual emails: Send a blank message to AFIBsupport-normalegroups > Read on web only: Send a blank message to AFIBsupport-nomailegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2000 Report Share Posted December 20, 2000 > Hi, > > My name is . I am 52 years old and have afib. I have been very > active physically for the last 15 years or so. Originally my afib > showed up only after heavy alcohol consumption. Then about 3 years > ago I went into a state of atrial flutter ( I think) when doing some > extremely energetic cycling. I do not drink alcohol now (or almost > zero consumption.) The situation however, seems to have gotten > worse. My latest afib session was today at 5:40 am. It lasted about > 4 hours. One pattern I have detected is that after a strenuous > activity such as a workout on a global gym, I will get afib some time > later. Afib could occur 4 hrs after I finish my workout or even the > next day. Has anybody else experienced this situation? > > I am currently taking metoprolol but do not like the side affects > plus it does not prevent afib. Hi, . I also experience delayed afib, but after stress not after exercise. I am back in a high stress situation, and my heart felt " funny " yesterday, and this morning I woke up in tachycardia for some minutes. This delayed pattern has happened before. Metoprolol is the regular name for toprol and one or two other brands, I think. I am on toprol and the side effects suck (pain in hands, depression, apathy, shortness of breath). I am hoping to go off it entirely. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2000 Report Share Posted December 20, 2000 > > > Hi, > > > > My name is . I am 52 years old and have afib. I have been very > > active physically for the last 15 years or so. Originally my afib > > showed up only after heavy alcohol consumption. Then about 3 years > > ago I went into a state of atrial flutter ( I think) when doing some > > extremely energetic cycling. I do not drink alcohol now (or almost > > zero consumption.) The situation however, seems to have gotten > > worse. My latest afib session was today at 5:40 am. It lasted about > > 4 hours. One pattern I have detected is that after a strenuous > > activity such as a workout on a global gym, I will get afib some time > > later. Afib could occur 4 hrs after I finish my workout or even the > > next day. Has anybody else experienced this situation? > > > > I am currently taking metoprolol but do not like the side affects > > plus it does not prevent afib. > > Your syndrome is almost exactly like mine. I began to run and bicycle > seriously in my early 40's. I've done about 20 marathons and 50-mile races, > usually finishing in the tope 3 in my age category. In my early 50's I began > to experience A-fib. It was intermittent and unpredictable at first, but soon > became more and more frequent. The first serious episode of AF I had happened > after a very hard 6-mile run. Over the years I've had to progressively cut > down on my workouts, until I can now no longer run steadily for more than a > mile or two, and that at a very slow jog. Often I find that intense exercise > will bring on an episode of fibrillation or flutter, but usually not until > later in the day--after dinner or later, when I've eaten or am relaxed. > Sometimes the episode comes on the next day. > > I've taken just about all the drugs that are out there, including defetilide > (Tikosyn), and I've had a recent catheter ablation. The drugs are not > effective, and they all interfere with my level of physical activity. The > ablation has helped somewhat, but I still have episodes of AF or flutter > after strenuous workouts. There is a definite correlation between what people > on this site call " the big P " and the onset of fibrillation. I can predict > the onset of an episode of AF when I find myself having a hard time staying > out of the bathroom. Then, when the episode of AF is past and the frequent > urination subsides to normal levels I can again do anything I want to do > without bringing on another episode. My doctors have no explanation for this > cycle except to tell me the the heart produces an enzyme which stimulates the > kidneys to produce more urine than usual. Perhaps dehydration brings on AF. > Maybe there is leeching of essential nutrients (magnesium, calcium, > potassium, sodium). I'm taking magnesium/potassium/calcium supplements to see > if that has any long-term benefits. I'm keeping a journal to record patterns > which may help show me the relationship between my episodes of AF and other > factors. So far the only connections between what I do and episodes of AF or > flutter are strenuous exercise (which I LOVE), excessive alcohol consumption > (more than 2 glasses of wine a day), strong emotional upset, lack of sleep, > and frequent urination. > > Keep in touch. - about the Big Pee. Your doctor's reaction to the Big P question is typical. The fact that " the heart produces an enzyme that stimulates the kidneys to produce more urine than usual... " is a no-brainer. The intelligent approach would be to GO AFTER AN UNDERSTANDING AS TO WHY, AS SO MANY PEOPLE MUST HAVE TOLD THEIR DOCTORS, AFTER A BIG P SESSION, THEY CAN LAUGH AT AFIB UNTIL THEIR " CYCLICAL " TIME APPROACHES. WHAT HAS CHANGED? WHAT HAS BEEN DUMPED IN ALL THIS PEE? WHY IS AF FOR THE MOMENT NOT IN THE EQUATION, EVEN AFTER, LIKE MY LAST, LONGEST-EVER 36-HOUR EPISODE, IT APPEARED THAT THE FAULTY RHYTHM WAS THE FAVOURED ONE? AND MY NEXT DAY WAS THE BEST ONE FOR WEEKS! WHAT NEW ELECTROLYTIC BALANCE HAS BEEN ACHIEVED? WHY IN GOD'S NAME ISN'T SUCH AN OBVIOUS CLUE FOLLOWED UP AVIDLY WITH INTENSIVE, PROGRESSIVE TESTING THROUGHOUT THE EPISODE? TESTING OF BLOOD MAKE-UP, URINE CONSTITUENTS, CHANGES IN ELECTROLYTIC BALANCE. i AM CONVINCED THE ANSWER TO AF LIES RIGHT UNDER THE DOCTORS' NOSES, BUT THEY ARE TOO BLINDED BY THEIR OWN APPROACHES TO SEE IT! HOW CAN WE GET THEM TO DO THIS? CAN SOMEONE PULL SOME STRINGS? I'm frustrated, angry. Has this ever been done? Checking the changes that are happening, I mean. It's so obviously a connection. Lawrence > > > > > > > > > Web Page /group/AFIBsupport > > Afibbers Database- http://www.dialsolutions.com/af > > To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups > > Daily digest mode: Send a blank message to AFIBsupport-digestegroups > > Individual emails: Send a blank message to AFIBsupport-normalegroups > > Read on web only: Send a blank message to AFIBsupport-nomailegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 Yep, I can pop into AF anywhere from a few minutes to 24 hours after exercise. (can also pop into AF during strenuous exercise). I'm even convinced that it can have an affect of 48 hours. (I have a 14-18 day cycle - if I exercise on day 12 I'm more likely to go into AF on day 14 rather than day 18) -- D AFibbers Database http://www.dialsolutions.com/af AFib Suport Group /group/AFIBsupport Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 Hi Lawrence - I had to turn the volume down when reading your email . I can fully understand your strong feelings and I'm hoping to get something done about it. I see my cardiologist in January and am going to bring the subject of daily sampling up with him. A friend of mine, who is a medical researcher ( not cardiology ), thinks I would have a better chance if I approach an academic establishment but I'm going to try the easy route first. I'm having a bit of a bad time at the moment and I think it's time to try a new drug - If anyone has any suggestions I'd like to hear them. I've tried... sotalol made me VERY ill flecainide - propafanone - either flecainide or propafanone gave me A'Flutter the other had no affect amiodarone -not bad but gave me thyrotoxicosis bisoprolol - been ok for a while but doesn't keep my heart rate slow enough and the last few attacks have been a bit to painful for my liking. non of the above have ever stopped me going into AF only amiodarone and bisoprolol kept my heart rate down when I went in. I might ask about dofetilide but I'm not sure I'm the ideal candidate - maybe azimilide is one to try, anyone had any experience with it? I also intent to tell him about the database site to get his opinion on how the science can be improved. (I'll do so number crunching before I see him) I have a lot to talk about with him so I'm hoping I'm not in AF on that day. If I'm in AF I'm not sure I'll have the strength to fight my corner. P.S. wishing everyone a peaceful and AF Free Christmas and New Year. I wanted to send you all a card but the best I could come up with was this.... http://www.dialsolutions4.demon.co.uk/xmas.htm -- D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 Very sorry to hear you are having a bad time, . I hope it passes soon. Have you taken diltiazem or a beta blocker, or aren't you a candidate for that kind of treatment? Sandy Re: Re: Exercise induced Afib > I'm having a bit of a bad time at the moment and I think it's time to try a new > drug - If anyone has any suggestions I'd like to hear them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 >Very sorry to hear you are having a bad time, . I hope it passes soon. >Have you taken diltiazem or a beta blocker, or aren't you a candidate for >that kind of treatment? Sandy I'm willing to give anything a try really. I think a lot of beta blockers are not to good for vagal type AF, something I think I have but haven't formerly being diagnosed with. Bisoprolol, my current drug, is a beta blocker and worked quite well early on. Sotalol, another beta blocker made me very ill. I think diltiazem is similar to verapamil (calcium channel blocker) - I've not tried either - I'll see what the cardiologist suggests but I'm game for anything at the moment! cheers -- D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 , verapamil did nothing for me, but for some reason, diltiazem (Cardizem) works great. I take 240mg a day plus 60mg at the onset of AF. I didn't remember that you have vagal AF or I wouldn't have suggested beta blockers. I had actually figured out I have vagal AF from all the information from our egroup friends, so it felt good to have it formally diagnosed by the cardiologist yesterday. Sandy Re: Re: Exercise induced Afib > > > > >Very sorry to hear you are having a bad time, . I hope it passes soon. > >Have you taken diltiazem or a beta blocker, or aren't you a candidate for > >that kind of treatment? Sandy > > I'm willing to give anything a try really. I think a lot of beta blockers are > not to good for vagal type AF, something I think I have but haven't formerly > being diagnosed with. Bisoprolol, my current drug, is a beta blocker and worked > quite well early on. Sotalol, another beta blocker made me very ill. I think > diltiazem is similar to verapamil (calcium channel blocker) - I've not tried > either - I'll see what the cardiologist suggests but I'm game for anything at > the moment! > > cheers > > -- > D > > > > > > Web Page /group/AFIBsupport > Afibbers Database- http://www.dialsolutions.com/af > To Unsubscribe send an email to: AFIBsupport-unsubscribeegroups > Daily digest mode: Send a blank message to AFIBsupport-digestegroups > Individual emails: Send a blank message to AFIBsupport-normalegroups > Read on web only: Send a blank message to AFIBsupport-nomailegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 > Hi Your situation sounds like me and I'm sure many others. Recently I had a stress test becuz I most usually went into AF during or slightly after exercise. No problems shown on test...and reducing my alcohol intake to zero did no good...still on the 14-21 day cycle of AFib! The other day I went into it shaving( hardly exertion) in the morning...so I am perplexed as to what the trigger is if any. I am starting to believe that triggers are internal and not due to exercise, stress or food but rather to some chemical change brought on by the aforementioned events. Best to you and enjoy an occasional beer...waht the heck! Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2000 Report Share Posted December 22, 2000 In regard to your questions about the ablation procedure I had in June: 1. It took a total of three and one-half hours. Of course I had to go the day before hand for some blood tests and I had to arrive at the outpatient facility at 6 a.m. in order to be prepared. Then I was not released until about 3:30 p.m. after I had overcome the effects of the " twilight sleep " anesthetic. I did have some nausea for a couple of hours after the procedure but that passed. I took off the dressings the next day in the shower (they were located in the groin) as directed and that was about it. I took it easy the next day but I really didn't feel any special weakness or discomfort. 2. I don't think I would call the procedure painful. As I mentioned before I had what they call " twilight sleep. " There was one point during the procedure when I began to feel that I couldn't lie still any longer but that feeling passed after the communicated with the anestheologist (sp?).Also as I ended the procedure I had a charlie horse in one of my calves. 3. I don't know how I would react if I had to do it again. As I mentioned to Trudy in one of my e-mails, I think it would be like having the second baby after you had a difficult delivery with the first baby. You would be reluctant to do it again but in the end you wouldn't have much choice. 4. My ablation was to end the AFlutter which had been constant for a period of three months. It did not end the AFib which I still have periodically. My AFib is usually without any symptoms. 5. It was done in El Paso Texas. There is only one cardiologist (in this city of over 700,000) who does the procedure. My regular cardiologist (whom I trust) decided with me that after trying to treat the AFlutter without success for over three months that this would help. I should mention I have a daughter who is an emergency room physician in El Paso and she had full faith in the procedure and the medical personnel involved. I've had every test know to man (and woman) includng the holter monitor. I don't have heart disease and I'm trying to learn to live with this condition and still live my life with optimism and energy. Here's to some type of " final cure " breakthrough in 2001. Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2000 Report Share Posted December 22, 2000 > > Your syndrome is almost exactly like mine. I began to run and > bicycle > > seriously in my early 40's. I've done about 20 marathons and 50- > mile races, > > usually finishing in the tope 3 in my age category. In my early > 50's I began > > to experience A-fib. It was intermittent and unpredictable at > first, but soon > > became more and more frequent. The first serious episode of AF I > had happened > > after a very hard 6-mile run. Over the years I've had to > progressively cut > > down on my workouts, until I can now no longer run steadily for > more than a > > mile or two, and that at a very slow jog. Often I find that intense > exercise > > will bring on an episode of fibrillation or flutter, but usually > not until > > later in the day--after dinner or later, when I've eaten or am > relaxed. > > Sometimes the episode comes on the next day. > > > > I've taken just about all the drugs that are out there, including > defetilide > > (Tikosyn), and I've had a recent catheter ablation. The drugs are > not > > effective, and they all interfere with my level of physical > activity. The > > ablation has helped somewhat, but I still have episodes of AF or > flutter > > after strenuous workouts. There is a definite correlation between > what people > > on this site call " the big P " and the onset of fibrillation. I can > predict > > the onset of an episode of AF when I find myself having a hard time > staying > > out of the bathroom. Then, when the episode of AF is past and the > frequent > > urination subsides to normal levels I can again do anything I want > to do > > without bringing on another episode. My doctors have no explanation > for this > > cycle except to tell me the the heart produces an enzyme which > stimulates the > > kidneys to produce more urine than usual. Perhaps dehydration > brings on AF. > > Maybe there is leeching of essential nutrients (magnesium, calcium, > > potassium, sodium). I'm taking magnesium/potassium/calcium > supplements to see > > if that has any long-term benefits. I'm keeping a journal to record > patterns > > which may help show me the relationship between my episodes of AF > and other > > factors. So far the only connections between what I do and episodes > of AF or > > flutter are strenuous exercise (which I LOVE), excessive alcohol > consumption > > (more than 2 glasses of wine a day), strong emotional upset, lack > of sleep, > > and frequent urination. > > > > Keep in touch. > > > > I am currently on an event monitor. I have captured one afib session > including startup. This info is for my cardio dr. in preparation > for an ablation procedure coming up for me in the next month or so. > You mentioned that you had an ablation. Can you give me some info on > the procedure: > > 1/ how long did it take > 2/ was it painful > 3/ would you try another ablation > 4/ were they able to recreate the afib during the procedure > 5/ where was it done > > -any other info you have would be appreciated. > > thanks > > kfr , The ablation took about 5 hours, but I was unconscious the whole time. I entered the hospital at 6:00 AM (Mercy General in Sacramento, CA), had the ablation, came out of the anaesthetic at 2:00 PM, was up walking around by 7:00 PM that same evening, went home the next day at about noon (I drove the whole way, but wasn't supposed to). The procedure was not painful in any way, and the locations of the insertion of the catheter were only minimally sore for a few days. I was in A fib when they put me under, so that wasn't a problem, but I was told that they would have induced fib with drugs if I weren't. I would definitely have another procedure if it would improve my condition. The surgeon was very conservative and only ablated one " center " or source of the erratic electrical waves. There are others that he could have zapped, but chose not to this time. I have been better, but by no means am I cured. I've had 4 episodes in the three weeks I've been out, but I've been able to bring them under control within a few hours by taking between 80 and 160 mg. of solatol (Betapace), but I am otherwise not on any medication. Even though I have been having several episodes of AF, I feel better even when in A fib! Sounds contradictory, but it's true. I suspect that what I'm having now is atrial flutter, but not having had an EKG when in these episodes I can't be sure. Just my subjective evaluation. In the meantime, go ahead and have the procedure by all means. The odds are about 50-50 that you'll be 90-100% cured. Les Quote Link to comment Share on other sites More sharing options...
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