Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 HI KIMBERLY, THE FIRST BOOK I READ WAS THE ONE BY ANNETTE . I AM SORRY MY MIND JUST WENT BLANK AND I DO NOT REMEM BER WHAT I WAS GOING TO TELL YOU AT LEAST YOU NOW HAVE A REASON FOR WHAT IS HAPPENING TO YOU JUST BE CAREFUL NOT TO BLAME EVERY THING TO MS BECAUSE THE OTHER THINGS STILL HAPPEN AND CAN BE HELPED BY TREATMENT LEARN TO PRIORITIZE AND DON'T FORGET TO BREATHE THATS MY TIP FOR THE DAY LYNN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2003 Report Share Posted December 16, 2003 , Nice to meet you, and welcome aboard. My name is Donna, I'm 45 and have been diagnosed for 3 years now, though I'd been dealing with the MonSter for at least 10 years before the diagnosis. I have two sons, ages 21 and 29. I consider myself fortunate in that area, because they were grown before the MonSter started to take a real toll on me. I don't think I'd want to have to deal with MonSter and monsters at the same time..LOL.. My boys were both little monsters.. the youngest more so than the oldest. For example, I came out to the kitchen one morning to find my youngest, in his Dr. Denton's, his matchbox cars , and a 5 pound bag of flour spread out ALL OVER the kitchen floor!.. I asked him what he thought he was doing, and he told me.. BUILDING ROADS!.. Guess he told me! LOL.. He sat in front of the television one day, with a box of Raisins... One for him.. One for the carpet.. One for him... One for the carpet! Caught him going out the backdoor one morning around 6:30 a.m... Asked him again, what he thought he was doing, and he replied... "Going to Margie's".. His cousin who lived next door.. (though next door was about 150 yards away).. We put a hook type lock on the door after that.. way high up! Now that I've rambled, I've completely forgotten what words of encouragement for you prompted my reply to your message.. Ahh.. the workings of the MonSter.. or old age, I'm not sure which right now... LOL.. Thing is you need to keep a stiff upper chin (is that the correct cliche?), take it one day at a time, do what works for you, and definitely above all else.. Keep a sense of humor about you.. A sense of humor is very important part of coping. At least for me it is.. I find that if I can find something about this MonSter to laugh about, then it's NOT getting the best of me! |)onna P.S. We are here for you, anytime you need to rant, anytime you need to cry, and anytime you just need a friend.. We DO understand, even more so than the loved ones around you, but only because we are going through much the same things as you. That's not to detract from the loved ones who support you and feel for you.. Because they do feel for you, and they do try to understand what you're going through.. and that's a hard thing for them to do as well. If I were completely healthy, and not experiencing the things I personally experience (for instance the fatigue).. I personally would think that I was just being lazy too.. I still sometimes think that.. and so I make myself get up and try to accomplish something.. and then KNOW exactly why I wasn't doing these things to begin with. Re: scared Hi , My name is Kim, I'm 33. Back in 2001 I awoke one morning and noticed immediately that 1/2 of my body was numb and from there on more "things" have been happening. I was dx with MS pretty easily. I am married and my kids were 4 and 2 when I became ill, they are now 6 (daughter that is in Kindergarten) and 4 (my son just had his 4th bday last Wed.). I know exactly how you are feeling gal. When I read your post and the sentence you typed, "I just feel like the whole world has just crashed and landed on top of me"...you described perfectly how I felt when I was told too. It will take time for this to not feel so overwhelming, but it will be something that you will live with forever unfortunately. It's now a matter of how you choose to live with it. You can ask anyone who has MS and they will tell you that is stinks! But, yes that dreaded word "but"....please hang in there! This group is fabulous I don't know what I would have done without the group I was with initially. I live out in the middle of nowhere, drove 4 1/2 hours one way to my neuro and had no one to talk with who had MS, so I got on line and met some pretty wonderful people here. The internet can also provide you with a bunch of wonderful and meaningful information. Please be sure that you read the info from credible places (ie: MS foundation, MS society etc. ). If you need to chat just do it, we are all here for ya gal! Where do you live? How old are your boys? Take care, God Bless, Kim in Nebraska ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2003 Report Share Posted December 17, 2003 Hi (and anyone else I have not welcomed!), I can't remember if I've welcomed you yet (I know no one on this list can relate to that! ). I was dx. with RRMS on March 4, 2000 (a day that will live in enfamy for me!). My kids were 12, 16, and 20 at the time. I was 39. You may feel that your world is coming to an end right now, but take heart. I knew very little about MS when my neuro first suggested it in 1999 (we had to wait for another attack and more tests for a definite dx). All I could think of was Annette Funnicello (sp?). I had no idea of the broad scope of the ways MS could affect people. I was scared of ending up bedridden, in a wheelchair, unable to care for myself - I thought my life was ending. But, then I calmed down and started doing research. I have a little medical background (I've worked for a couple of ambulance services and dh has been a paramedic for many years), so when I started reading about MS, I was able to look at it with an open mind and a smigdeon of understanding. :>) The MonSter visits us in all kinds of ways. Some of us are wheelchair bound, some of us have internal (invisible) problems (cognitive, vision, fatigue, etc.). Some of us are unbalanced (not far from imbalanced sometimes! ). Some of us have caregivers and some of us *are caregivers. Some of us still work (full or part time, outside or in the home) and some of us are on disability. Some of us are alone and some of us have loved ones near. The one thing we all have in common, at least the people I've met on this list, is that no matter how much life is treading on you or no matter how low you feel, you can find someone who has been through something similar and can offer words of encouragement. I don't post much anymore, but I read as often as I can. It never fails to amaze me the amount of support and information the people on this list are willing to share. If you are discouraged about the way the world is going or have lost faith in humankind, this is the place to go to be uplifted. Type Multiple Sclerosis into your search engine and a lot of sites will pop up. The ones I found most helpful at the beginning are the Nat'l MS Society and the Merck Manual (good clinical definitions). There are several good sites that can give you definitions of MS, its symptoms and treatments. Now that I've rambled on and have probably strayed far from the original purpose of the message, `please hang in there. Yes, MS will change your life, but not necessarily for the worse. Take a deep breath, try to look at it logically, have a good cry if it makes you feel better, look to the future and come on back here whenever you need a friend. I do. Take Care, North Carolina Well I just got off the phone with my Dr, my tests have all been done and he says I have M.S. I am 34 and have three boys. I am at a loss as what to even think. IF anyone has any sujestions on web sites or books to read please let me know. I am the kinda person who hates to even take an asprin, boy are things gonna change. I just feel like the whole world has just crashed and landed on top of me... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 I am sorry to hear of the bad news. You may prevent further kidney damage by running normal sugars, as far as I know. Running normal sugar levels may reverse the damage, but I am not sure of that. Often times it takes some tragic event to wake us up, and I hope it will motivate you to run normal glucose levels for the rest of your life. I live in fear of kidney problems, too, and it is a real concern for all of us diabetics. I lost my friend Lynn last year. She was a diabetic who had kidney damage, and she would not follow a strict diet, since she constantly abused carbohydrates. The worse part was watching her almost weekly after kidney failure, and hear her stories about her diet and kidney dialysis. Definitely not a pretty picture, and it scared the hell out of me, and that is why I am being so strict on my diet and exercise program today. I thank you for giving me another jolt! I need to stop doing stupid things and pay more attention to that old proverb: " An ounce of prevention is worth more than a pound of cure. " , you can run normal blood sugars, if you want to do so. You are in my thoughts, and I hope you choose well. scared > Dear , Harry,... Hello, I just received news that my kidney's are failing. I am at presently Anemic. I told you my last A1C. Can I reverse it?signed Scared > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 Dear Harry, Thanks, I think this is my wake up call. I have a lot to live for. A great husband and a greater god. I am looking forward to seeing god some day. Though I must admit I'm not in a hurry. My uncle went this way. I hope I will be able to curve those carbs. signed Scared Quote Link to comment Share on other sites More sharing options...
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