Re: My life with RA,......

[Guest guest]

Hi Beth,....I try to keep a positive outlook, and be here for

everyone, but I crack once in awhile:) I really thought that getting

on these meds, I would get some benefit from them, but I go each day

with nothing, but a little worse, know what I mean?

When I was diagnosed, the pain wasn't as bad. Now, I'm taking the

meds, and I can't hardly get around, and I just don't

understand, " why? " Is it suppose to go like this?

What happened to getting back my life. I watch some of the

commercials that show how people get their life back on these meds,

and I'm thinking did I lose out,.....

Maybe soon it will be our turn, and we can dance around like the ones

on TV, you think? Take care Beth, and know I'm here, Tawny

> > That's so sad, Tawny. Please don't give up.

> >

> > Have you told your rheumatologist this? If he is aware of your

suffering

> > and isn't do anything about it, then it's time to find someone

else.

> >

> > Which DMARDs have you tried so far? What would you think of

trying a

> > clinical trial?

> >

> >

> >

> >

> >

> > I'll tell you where to go!

> >

> > Mayo Clinic in Rochester

> > http://www.mayoclinic.org/rochester

> >

> > s Hopkins Medicine

> > http://www.hopkinsmedicine.org

> >

> >

> > [ ] My life with RA,......

> >

> >

> > >

> > >

> > > I would like to get my RA in control. I have been in constant

pain

> > > for almost 3 years now, with little relief. I have taken a lot

of

> > > different meds, but none really seem to help the constant

nagging

> > > pain. I am taking the med to prevent the progression of the

> > > disease. But, I still see my hands deforming, so then what?

> > > I can't exercise for the pain. I can't hardly walk, using my

hands

> > > is tough. It's not what I won't, I have gave a good fight over

the

> > > last couple of years, but all I see is the disease taking over

my

> > > body each day. It's effecting my life so much, and it's hard.

> > > I don't sleep, and I cry until I make myself sick. But, what

can I

> > > do? How can I take the RA positive? I pray for remission,

just a

> > > little relief, but it hasn't happened yet.

[Guest guest]

Hi , I am not on Prednisone. I have tried it before, and it

just didn't work very well. I had headachs all the time, and was

just sick. I know it does help some,.......T

> > > That's so sad, Tawny. Please don't give up.

> > >

> > > Have you told your rheumatologist this? If he is aware of your

suffering

> > > and isn't do anything about it, then it's time to find someone

else.

> > >

> > > Which DMARDs have you tried so far? What would you think of

trying a

> > > clinical trial?

> > >

> > >

> > >

> > >

> > >

> > > I'll tell you where to go!

> > >

> > > Mayo Clinic in Rochester

> > > http://www.mayoclinic.org/rochester

> > >

> > > s Hopkins Medicine

> > > http://www.hopkinsmedicine.org

> > >

> > >

> > > [ ] My life with RA,......

> > >

> > >

> > > >

> > > >

> > > > I would like to get my RA in control. I have been in constant

pain

> > > > for almost 3 years now, with little relief. I have taken a

lot of

> > > > different meds, but none really seem to help the constant

nagging

> > > > pain. I am taking the med to prevent the progression of the

> > > > disease. But, I still see my hands deforming, so then what?

> > > > I can't exercise for the pain. I can't hardly walk, using my

hands

> > > > is tough. It's not what I won't, I have gave a good fight

over the

> > > > last couple of years, but all I see is the disease taking

over my

> > > > body each day. It's effecting my life so much, and it's hard.

> > > > I don't sleep, and I cry until I make myself sick. But, what

can I

> > > > do? How can I take the RA positive? I pray for remission,

just a

> > > > little relief, but it hasn't happened yet.

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi , I am not on Prednisone. I have tried it before, and it

just didn't work very well. I had headachs all the time, and was

just sick. I know it does help some,.......T

> > > That's so sad, Tawny. Please don't give up.

> > >

> > > Have you told your rheumatologist this? If he is aware of your

suffering

> > > and isn't do anything about it, then it's time to find someone

else.

> > >

> > > Which DMARDs have you tried so far? What would you think of

trying a

> > > clinical trial?

> > >

> > >

> > >

> > >

> > >

> > > I'll tell you where to go!

> > >

> > > Mayo Clinic in Rochester

> > > http://www.mayoclinic.org/rochester

> > >

> > > s Hopkins Medicine

> > > http://www.hopkinsmedicine.org

> > >

> > >

> > > [ ] My life with RA,......

> > >

> > >

> > > >

> > > >

> > > > I would like to get my RA in control. I have been in constant

pain

> > > > for almost 3 years now, with little relief. I have taken a

lot of

> > > > different meds, but none really seem to help the constant

nagging

> > > > pain. I am taking the med to prevent the progression of the

> > > > disease. But, I still see my hands deforming, so then what?

> > > > I can't exercise for the pain. I can't hardly walk, using my

hands

> > > > is tough. It's not what I won't, I have gave a good fight

over the

> > > > last couple of years, but all I see is the disease taking

over my

> > > > body each day. It's effecting my life so much, and it's hard.

> > > > I don't sleep, and I cry until I make myself sick. But, what

can I

> > > > do? How can I take the RA positive? I pray for remission,

just a

> > > > little relief, but it hasn't happened yet.

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Cristen, thanks for your kind words. I think after living with

pain every day, it puts a lot of doubt in your head. I know it has

changed my attitude and my outlook on life.

I do try to think of positive things, it's just so tough, hugs T

--- In , " Cristen s " <cdharriss@n...>

wrote:

>

> Tawny,

>

> I am so sorry to hear that you are in so much pain and have so much

doubt. I was diagnosed in July, and haven't had a pain free day

since March. Three years of pain .... I can't imagine. I find

myself worrying about my future with RA, and I find myself thinking

of all of the things I " should " be doing. And,all I end up

accomplishing is worrying and beating myself up for not doing more.

>

> But, then the strong Cristen speaks up, and compels me to find some

good in every day. I make myself sit outside and watch my dogs

play ... several months earlier I was right there with them running

around and playing tug. I try to be thankful that I can walk down my

deck steps, breathe fresh air, and watch my silly furry friends tear

around. I pray for remission, but I am not banking on it. I don't

know if this helps, but it seems to help me with my battle against

this disease, as well as the demons in my head. I am praying for

your remission as well as some peace of mind.

>

> Cristen in NC

> [ ] My life with RA,......

>

>

>

> I would like to get my RA in control. I have been in constant

pain

> for almost 3 years now, with little relief. I have taken a lot

of

> different meds, but none really seem to help the constant nagging

> pain. I am taking the med to prevent the progression of the

> disease. But, I still see my hands deforming, so then what?

> I can't exercise for the pain. I can't hardly walk, using my

hands

> is tough. It's not what I won't, I have gave a good fight over

the

> last couple of years, but all I see is the disease taking over my

> body each day. It's effecting my life so much, and it's hard.

> I don't sleep, and I cry until I make myself sick. But, what can

I

> do? How can I take the RA positive? I pray for remission, just

a

> little relief, but it hasn't happened yet.

>

>

>

>

>

>

>

[Guest guest]

Hi Cristen, thanks for your kind words. I think after living with

pain every day, it puts a lot of doubt in your head. I know it has

changed my attitude and my outlook on life.

I do try to think of positive things, it's just so tough, hugs T

>

> Tawny,

>

> I am so sorry to hear that you are in so much pain and have so much

doubt. I was diagnosed in July, and haven't had a pain free day

since March. Three years of pain .... I can't imagine. I find

myself worrying about my future with RA, and I find myself thinking

of all of the things I " should " be doing. And,all I end up

accomplishing is worrying and beating myself up for not doing more.

>

> But, then the strong Cristen speaks up, and compels me to find some

good in every day. I make myself sit outside and watch my dogs

play ... several months earlier I was right there with them running

around and playing tug. I try to be thankful that I can walk down my

deck steps, breathe fresh air, and watch my silly furry friends tear

around. I pray for remission, but I am not banking on it. I don't

know if this helps, but it seems to help me with my battle against

this disease, as well as the demons in my head. I am praying for

your remission as well as some peace of mind.

>

> Cristen in NC

> [ ] My life with RA,......

>

>

>

> I would like to get my RA in control. I have been in constant

pain

> for almost 3 years now, with little relief. I have taken a lot

of

> different meds, but none really seem to help the constant nagging

> pain. I am taking the med to prevent the progression of the

> disease. But, I still see my hands deforming, so then what?

> I can't exercise for the pain. I can't hardly walk, using my

hands

> is tough. It's not what I won't, I have gave a good fight over

the

> last couple of years, but all I see is the disease taking over my

> body each day. It's effecting my life so much, and it's hard.

> I don't sleep, and I cry until I make myself sick. But, what can

I

> do? How can I take the RA positive? I pray for remission, just

a

> little relief, but it hasn't happened yet.

>

>

>

>

>

>

>

[Guest guest]

Tawny-

I sure wish there was something I could do to help you feel better-clean your

house, take you to lunch, plop you in a hottub or something. I guess all I can

say is that I'm thinking of you and I sure hope you feel better soon.

Seems like you've been having a real tough run of it lately. I'm not on as much

as I had been, but I read almost every post. I'm sending good wishes your way.

Love ya Cary

[Guest guest]

Tawny-

I sure wish there was something I could do to help you feel better-clean your

house, take you to lunch, plop you in a hottub or something. I guess all I can

say is that I'm thinking of you and I sure hope you feel better soon.

Seems like you've been having a real tough run of it lately. I'm not on as much

as I had been, but I read almost every post. I'm sending good wishes your way.

Love ya Cary

[Guest guest]

a,....I'm not sure about all the drugs that can help me fight

this monster. My rheumy has tried to help me, but with the problems

with insurance, and all, he's doing the best that he can, I truly

believe. I will talk to him next time, to see if there is something

else. He really does think the Humira is in my best interest, and he

wants to keep me on that. How long should you stay on these BRM's

before you decide their not working? Thanks a, for your support,

and for a great place to come, T

> Tawny,

> I'm so sorry you haven't been able to find something to help. I

know it is

> hard to watch yourself being affected by such a rotten disease. I

pray for

> your doctors to find the right meds to give you relief. Have you

tried

> everything available? Is your doctor trying hard enough to help

you?

> I feel so bad for you. I want so much for you to find your magic

bullet so

> that you can enjoy life.

> a

>

> >

> >

> > I would like to get my RA in control. I have been in constant pain

> > for almost 3 years now, with little relief. I have taken a lot of

> > different meds, but none really seem to help the constant nagging

> > pain. I am taking the med to prevent the progression of the

> > disease. But, I still see my hands deforming, so then what?

> > I can't exercise for the pain. I can't hardly walk, using my

hands

> > is tough. It's not what I won't, I have gave a good fight over

the

> > last couple of years, but all I see is the disease taking over my

> > body each day. It's effecting my life so much, and it's hard.

> > I don't sleep, and I cry until I make myself sick. But, what can

I

> > do? How can I take the RA positive? I pray for remission, just a

> > little relief, but it hasn't happened yet.

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

a,....I'm not sure about all the drugs that can help me fight

this monster. My rheumy has tried to help me, but with the problems

with insurance, and all, he's doing the best that he can, I truly

believe. I will talk to him next time, to see if there is something

else. He really does think the Humira is in my best interest, and he

wants to keep me on that. How long should you stay on these BRM's

before you decide their not working? Thanks a, for your support,

and for a great place to come, T

> Tawny,

> I'm so sorry you haven't been able to find something to help. I

know it is

> hard to watch yourself being affected by such a rotten disease. I

pray for

> your doctors to find the right meds to give you relief. Have you

tried

> everything available? Is your doctor trying hard enough to help

you?

> I feel so bad for you. I want so much for you to find your magic

bullet so

> that you can enjoy life.

> a

>

> >

> >

> > I would like to get my RA in control. I have been in constant pain

> > for almost 3 years now, with little relief. I have taken a lot of

> > different meds, but none really seem to help the constant nagging

> > pain. I am taking the med to prevent the progression of the

> > disease. But, I still see my hands deforming, so then what?

> > I can't exercise for the pain. I can't hardly walk, using my

hands

> > is tough. It's not what I won't, I have gave a good fight over

the

> > last couple of years, but all I see is the disease taking over my

> > body each day. It's effecting my life so much, and it's hard.

> > I don't sleep, and I cry until I make myself sick. But, what can

I

> > do? How can I take the RA positive? I pray for remission, just a

> > little relief, but it hasn't happened yet.

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thanks Marina, I pray that we all have better days soon, T

> >

> > I would like to get my RA in control. I have been in constant

pain

> > for almost 3 years now, with little relief. I have taken a lot

of

> > different meds, but none really seem to help the constant nagging

> > pain. I am taking the med to prevent the progression of the

> > disease. But, I still see my hands deforming, so then what?

> > I can't exercise for the pain. I can't hardly walk, using my

> hands

> > is tough. It's not what I won't, I have gave a good fight over

> the

> > last couple of years, but all I see is the disease taking over my

> > body each day. It's effecting my life so much, and it's hard.

> > I don't sleep, and I cry until I make myself sick. But, what can

> I

> > do? How can I take the RA positive? I pray for remission, just

a

> > little relief, but it hasn't happened yet.

[Guest guest]

Thanks Marina, I pray that we all have better days soon, T

> >

> > I would like to get my RA in control. I have been in constant

pain

> > for almost 3 years now, with little relief. I have taken a lot

of

> > different meds, but none really seem to help the constant nagging

> > pain. I am taking the med to prevent the progression of the

> > disease. But, I still see my hands deforming, so then what?

> > I can't exercise for the pain. I can't hardly walk, using my

> hands

> > is tough. It's not what I won't, I have gave a good fight over

> the

> > last couple of years, but all I see is the disease taking over my

> > body each day. It's effecting my life so much, and it's hard.

> > I don't sleep, and I cry until I make myself sick. But, what can

> I

> > do? How can I take the RA positive? I pray for remission, just

a

> > little relief, but it hasn't happened yet.

[Guest guest]

Cary, Your such a wonderful lady, you always know how to make a

person feel better. Oh, a hot tub sounds so wonderful! I have

missed your posts, I'm glad your still here though, been thinking of

you. My prayers are with you my friend, T

> Tawny-

>

> I sure wish there was something I could do to help you feel better-

clean your house, take you to lunch, plop you in a hottub or

something. I guess all I can say is that I'm thinking of you and I

sure hope you feel better soon.

> Seems like you've been having a real tough run of it lately. I'm

not on as much as I had been, but I read almost every post. I'm

sending good wishes your way. Love ya Cary

[Guest guest]

Cary, Your such a wonderful lady, you always know how to make a

person feel better. Oh, a hot tub sounds so wonderful! I have

missed your posts, I'm glad your still here though, been thinking of

you. My prayers are with you my friend, T

> Tawny-

>

> I sure wish there was something I could do to help you feel better-

clean your house, take you to lunch, plop you in a hottub or

something. I guess all I can say is that I'm thinking of you and I

sure hope you feel better soon.

> Seems like you've been having a real tough run of it lately. I'm

not on as much as I had been, but I read almost every post. I'm

sending good wishes your way. Love ya Cary

[Guest guest]

Thanks, Tawny!

I think of you often. Hang in there, girl! Cary

[Guest guest]

Thanks, Tawny!

I think of you often. Hang in there, girl! Cary

[Guest guest]

Tawny, I lump the biologics in with the traditional DMARDs. By DMARD I

mean a disease-modifying antirheumatic drug - something that will change

the course of your disease.

MTX is a DMARD. Humira is a DMARD. Enbrel, Remicade, Kineret,

sulfasalazine, and Plaquenil are DMARDs.

Which of those have you tried (besides Humira and MTX)? What exactly

happened to your liver? I'm assuming the enzymes were elevated. Do you

know how much? Were you on oral MTX or injectable? Did you also take

folic acid?

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: My life with RA,......

>

>

> ,....my rheumy does as much as he can with my resources. I'm on

> the Humira assistance program right now, but I just don't see much.

> On my next visit I will talk to him about other meds. It just gets

> so frustrating to be the same everyday, but maybe a little worse.

> I have thought about a trial, I have actually contacted one here in

> the city, just waiting to see if I qualify.

> I don't think I have actually tried DMARDS, I will ask him on my next

> visit. Do you take them along with the Humira? I have taken MTX,

> and that didn't go very well with my liver. So, maybe that is why

> he's keeping me off those, not sure. I am suppose to be on the anti-

> inflammatory med right now, but it's just making me sick. It is

> Lodine 300mg, three times a day. Which I have been on Motrin, Mobic,

> and just can't tolerate them.

> Thanks so much for having us all here, so we can let our tears flow

> when we need to, and someone will listen, Tawny

>

>

>

>

>

>

>

> > That's so sad, Tawny. Please don't give up.

> >

> > Have you told your rheumatologist this? If he is aware of your

> suffering

> > and isn't do anything about it, then it's time to find someone else.

> >

> > Which DMARDs have you tried so far? What would you think of trying a

> > clinical trial?

> >

> >

> >

> >

[Guest guest]

Tawny, I lump the biologics in with the traditional DMARDs. By DMARD I

mean a disease-modifying antirheumatic drug - something that will change

the course of your disease.

MTX is a DMARD. Humira is a DMARD. Enbrel, Remicade, Kineret,

sulfasalazine, and Plaquenil are DMARDs.

Which of those have you tried (besides Humira and MTX)? What exactly

happened to your liver? I'm assuming the enzymes were elevated. Do you

know how much? Were you on oral MTX or injectable? Did you also take

folic acid?

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: My life with RA,......

>

>

> ,....my rheumy does as much as he can with my resources. I'm on

> the Humira assistance program right now, but I just don't see much.

> On my next visit I will talk to him about other meds. It just gets

> so frustrating to be the same everyday, but maybe a little worse.

> I have thought about a trial, I have actually contacted one here in

> the city, just waiting to see if I qualify.

> I don't think I have actually tried DMARDS, I will ask him on my next

> visit. Do you take them along with the Humira? I have taken MTX,

> and that didn't go very well with my liver. So, maybe that is why

> he's keeping me off those, not sure. I am suppose to be on the anti-

> inflammatory med right now, but it's just making me sick. It is

> Lodine 300mg, three times a day. Which I have been on Motrin, Mobic,

> and just can't tolerate them.

> Thanks so much for having us all here, so we can let our tears flow

> when we need to, and someone will listen, Tawny

>

>

>

>

>

>

>

> > That's so sad, Tawny. Please don't give up.

> >

> > Have you told your rheumatologist this? If he is aware of your

> suffering

> > and isn't do anything about it, then it's time to find someone else.

> >

> > Which DMARDs have you tried so far? What would you think of trying a

> > clinical trial?

> >

> >

> >

> >

[Guest guest]

Your so welcome,Cary!!!!

> Thanks, Tawny!

>

> I think of you often. Hang in there, girl! Cary

[Guest guest]

Your so welcome,Cary!!!!

> Thanks, Tawny!

>

> I think of you often. Hang in there, girl! Cary

[Guest guest]

, I have only tried the Humira and oral MTX. Yes, the enzymes

would go up, I'm not sure how much, enough to keep me off the med. I

believe that I took 6 MTX pills weekly, not sure how many mgs. I did

take Folic acid, while on the MTX.

Is this normal , to get worse? I feel like I'm losing strength

in my legs, they are very weak. My knees swell, and can't bend my

legs much. My hands are doing the same thing. I am scared, I'm not

shamed to admit that. I have problems with my neck, with limited

movement.

Also, having other problems with my stomach. I am going to talk to

the doctor about that. I was diagnosed years ago with IBS. But, now

I'm having much more problem. After I eat, about 30 minutes later I

have to go to the bathroom. I have diarrea constantly. If I go

somewhere I don't eat until I get home, because I am in the

bathroom. If I don't eat, and I drink something, I sometimes still

have it, it's just a mess:) I am looking into Crohns disease.

It's just hard to go each day not knowing what is next. This group

helps me so much emotionally, and I have met so many wonderful

people, I'm thankful in so many ways, if I stop, and think about it.

> > > That's so sad, Tawny. Please don't give up.

> > >

> > > Have you told your rheumatologist this? If he is aware of your

> > suffering

> > > and isn't do anything about it, then it's time to find someone

else.

> > >

> > > Which DMARDs have you tried so far? What would you think of

trying a

> > > clinical trial?

> > >

> > >

> > >

> > >

[Guest guest]

, I have only tried the Humira and oral MTX. Yes, the enzymes

would go up, I'm not sure how much, enough to keep me off the med. I

believe that I took 6 MTX pills weekly, not sure how many mgs. I did

take Folic acid, while on the MTX.

Is this normal , to get worse? I feel like I'm losing strength

in my legs, they are very weak. My knees swell, and can't bend my

legs much. My hands are doing the same thing. I am scared, I'm not

shamed to admit that. I have problems with my neck, with limited

movement.

Also, having other problems with my stomach. I am going to talk to

the doctor about that. I was diagnosed years ago with IBS. But, now

I'm having much more problem. After I eat, about 30 minutes later I

have to go to the bathroom. I have diarrea constantly. If I go

somewhere I don't eat until I get home, because I am in the

bathroom. If I don't eat, and I drink something, I sometimes still

have it, it's just a mess:) I am looking into Crohns disease.

It's just hard to go each day not knowing what is next. This group

helps me so much emotionally, and I have met so many wonderful

people, I'm thankful in so many ways, if I stop, and think about it.

> > > That's so sad, Tawny. Please don't give up.

> > >

> > > Have you told your rheumatologist this? If he is aware of your

> > suffering

> > > and isn't do anything about it, then it's time to find someone

else.

> > >

> > > Which DMARDs have you tried so far? What would you think of

trying a

> > > clinical trial?

> > >

> > >

> > >

> > >

[Guest guest]

It is hard to go through, and until someone has been down the path of

chronic disease, one just doesn't know. I'm sorry that you are

having so much pain, and your meds aren't working very well.

Are you thinking about trying something else? I think it's time for

a change with me, there is just no relief at all. You are very

right, we not only deal with this disease, but the depression too.

Take care of yourself, and we'll all hang in here together, Tawny

> >> Tawny,

> >> I'm so sorry you haven't been able to find something to help. I

> > know it is

> >> hard to watch yourself being affected by such a rotten disease.

I

> > pray for

> >> your doctors to find the right meds to give you relief. Have you

> > tried

> >> everything available? Is your doctor trying hard enough to help

> > you?

> >> I feel so bad for you. I want so much for you to find your magic

> > bullet so

> >> that you can enjoy life.

> >> a

> >>

> >> >

> >> >

> >> > I would like to get my RA in control. I have been in constant

pain

> >> > for almost 3 years now, with little relief. I have taken a

lot of

> >> > different meds, but none really seem to help the constant

nagging

> >> > pain. I am taking the med to prevent the progression of the

> >> > disease. But, I still see my hands deforming, so then what?

> >> > I can't exercise for the pain. I can't hardly walk, using my

> > hands

> >> > is tough. It's not what I won't, I have gave a good fight over

> > the

> >> > last couple of years, but all I see is the disease taking over

my

> >> > body each day. It's effecting my life so much, and it's hard.

> >> > I don't sleep, and I cry until I make myself sick. But, what

can

> > I

> >> > do? How can I take the RA positive? I pray for remission,

just a

> >> > little relief, but it hasn't happened yet.

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >

[Guest guest]

It is hard to go through, and until someone has been down the path of

chronic disease, one just doesn't know. I'm sorry that you are

having so much pain, and your meds aren't working very well.

Are you thinking about trying something else? I think it's time for

a change with me, there is just no relief at all. You are very

right, we not only deal with this disease, but the depression too.

Take care of yourself, and we'll all hang in here together, Tawny

> >> Tawny,

> >> I'm so sorry you haven't been able to find something to help. I

> > know it is

> >> hard to watch yourself being affected by such a rotten disease.

I

> > pray for

> >> your doctors to find the right meds to give you relief. Have you

> > tried

> >> everything available? Is your doctor trying hard enough to help

> > you?

> >> I feel so bad for you. I want so much for you to find your magic

> > bullet so

> >> that you can enjoy life.

> >> a

> >>

> >> >

> >> >

> >> > I would like to get my RA in control. I have been in constant

pain

> >> > for almost 3 years now, with little relief. I have taken a

lot of

> >> > different meds, but none really seem to help the constant

nagging

> >> > pain. I am taking the med to prevent the progression of the

> >> > disease. But, I still see my hands deforming, so then what?

> >> > I can't exercise for the pain. I can't hardly walk, using my

> > hands

> >> > is tough. It's not what I won't, I have gave a good fight over

> > the

> >> > last couple of years, but all I see is the disease taking over

my

> >> > body each day. It's effecting my life so much, and it's hard.

> >> > I don't sleep, and I cry until I make myself sick. But, what

can

> > I

> >> > do? How can I take the RA positive? I pray for remission,

just a

> >> > little relief, but it hasn't happened yet.

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >

[Guest guest]

You are right Dennis. All we have to do is take a look around, and

there is someone else worse.

> I don't know about the rest of you, but when I'm down hurting so

much my

> eyes water and thinking it can't get worse, I always seem to find

someone

> that's having more problems than me. It usually makes my suffering

> inconsequential. No matter how bad it gets, someone is having a

worse time.

> This doesn't exactly offer encouragement, but with every lemon,

there's

> always lemonade.

>

> Dennis- the lemon today- ;}

>

> [ ] Re: My life with RA,......

>

>

> >

> >

> > Jennie, thanks for the kind words, I appreciate them so much.

I'm so

> > glad to have this group to help me though rough times, not just

good.

> > I have tried many different meds, and none has worked so far

really.

> > I'm having a harder time getting around, just tired of pain. With

all

> > the meds out there, you would think there would be something.

> > I'm sure it's been terrible to watch your Mom going through such a

> > terrible time. She is a fighter that is for sure, she's a strong

> > woman. I look at my 10 year old, and wonder if she will think

back

> > one day, and that is what she will see. She helps me a lot, and

I'm

> > grateful. I have always taken care of myself and others, so it's

not

> > easy for me at all. Some times I think that this is a bad dream,

and

> > I want to wake up, but of course it's my new life.

> > I hope that you continue to have good days, and you are able to

keep

> > your RA in control, thanks T

> >

[Guest guest]

You are right Dennis. All we have to do is take a look around, and

there is someone else worse.

> I don't know about the rest of you, but when I'm down hurting so

much my

> eyes water and thinking it can't get worse, I always seem to find

someone

> that's having more problems than me. It usually makes my suffering

> inconsequential. No matter how bad it gets, someone is having a

worse time.

> This doesn't exactly offer encouragement, but with every lemon,

there's

> always lemonade.

>

> Dennis- the lemon today- ;}

>

> [ ] Re: My life with RA,......

>

>

> >

> >

> > Jennie, thanks for the kind words, I appreciate them so much.

I'm so

> > glad to have this group to help me though rough times, not just

good.

> > I have tried many different meds, and none has worked so far

really.

> > I'm having a harder time getting around, just tired of pain. With

all

> > the meds out there, you would think there would be something.

> > I'm sure it's been terrible to watch your Mom going through such a

> > terrible time. She is a fighter that is for sure, she's a strong

> > woman. I look at my 10 year old, and wonder if she will think

back

> > one day, and that is what she will see. She helps me a lot, and

I'm

> > grateful. I have always taken care of myself and others, so it's

not

> > easy for me at all. Some times I think that this is a bad dream,

and

> > I want to wake up, but of course it's my new life.

> > I hope that you continue to have good days, and you are able to

keep

> > your RA in control, thanks T

> >