Re: My life with RA,......

[Guest guest]

Hi Tawny,I know what you are talking about.In a few days i have my gallbladder

taken out,had to give more blood today because my kineys and liver are going

fast,and it feels like a losing battle. I guesse all we can do is keep hanging

in there day by day and minute by minute. We were put here for a reason to go

through these tough times to see just how tough we are.I figure one day we will

know what that reason is. You just keep hanging tough and so will i ,we can

make it through this day to get to another!!!!

Lupie Hugs,Cheryl

Tawny <tawnyokc@...> wrote:

I would like to get my RA in control. I have been in constant pain

for almost 3 years now, with little relief. I have taken a lot of

different meds, but none really seem to help the constant nagging

pain. I am taking the med to prevent the progression of the

disease. But, I still see my hands deforming, so then what?

I can't exercise for the pain. I can't hardly walk, using my hands

is tough. It's not what I won't, I have gave a good fight over the

last couple of years, but all I see is the disease taking over my

body each day. It's effecting my life so much, and it's hard.

I don't sleep, and I cry until I make myself sick. But, what can I

do? How can I take the RA positive? I pray for remission, just a

little relief, but it hasn't happened yet.

[Guest guest]

Hi Tawny,I know what you are talking about.In a few days i have my gallbladder

taken out,had to give more blood today because my kineys and liver are going

fast,and it feels like a losing battle. I guesse all we can do is keep hanging

in there day by day and minute by minute. We were put here for a reason to go

through these tough times to see just how tough we are.I figure one day we will

know what that reason is. You just keep hanging tough and so will i ,we can

make it through this day to get to another!!!!

Lupie Hugs,Cheryl

Tawny <tawnyokc@...> wrote:

I would like to get my RA in control. I have been in constant pain

for almost 3 years now, with little relief. I have taken a lot of

different meds, but none really seem to help the constant nagging

pain. I am taking the med to prevent the progression of the

disease. But, I still see my hands deforming, so then what?

I can't exercise for the pain. I can't hardly walk, using my hands

is tough. It's not what I won't, I have gave a good fight over the

last couple of years, but all I see is the disease taking over my

body each day. It's effecting my life so much, and it's hard.

I don't sleep, and I cry until I make myself sick. But, what can I

do? How can I take the RA positive? I pray for remission, just a

little relief, but it hasn't happened yet.

[Guest guest]

Tawny,

I am so sorry that you have not found relief. You have to keep

trying, and hoping that something will work. I watched my mom suffer

for so many years without medication. I have no idea how she managed

to keep working those years before mtx when all they had to give her

was aspirin. I remember it taking her hours each morning just to get

moving so she could get up and dressed for work. It was so scary and

I was sure she was going to die. I remember her trying many

different treatments that did not help. I remember medications that

had worked, only to begin to fail after she had been on them for a

while. Her RA has never been well controlled the way mine has been.

Even when she started Enbrel and called it a miracle drug, it soon

became evident that the bone on bone pain in her hands and feet would

not be going away. I look at her now, her hands, wrists, feet and

ankles disfigured, her body failing her in so many ways, and I shake

my head wondering where she gets her strength from and how she

manages to smile. I wish I could tell you that a miracle was around

the corner, that it was all okay, that someone would show up soon to

take your pain away, or where to look to find the bright side. All I

can really say for sure is that I know we are all here for you, to

listen and to understand, and maybe sometimes, to offer hope.

Jennie

>

> I would like to get my RA in control. I have been in constant pain

> for almost 3 years now, with little relief. I have taken a lot of

> different meds, but none really seem to help the constant nagging

> pain. I am taking the med to prevent the progression of the

> disease. But, I still see my hands deforming, so then what?

> I can't exercise for the pain. I can't hardly walk, using my hands

> is tough. It's not what I won't, I have gave a good fight over the

> last couple of years, but all I see is the disease taking over my

> body each day. It's effecting my life so much, and it's hard.

> I don't sleep, and I cry until I make myself sick. But, what can I

> do? How can I take the RA positive? I pray for remission, just a

> little relief, but it hasn't happened yet.

[Guest guest]

Tawny,

I am so sorry that you have not found relief. You have to keep

trying, and hoping that something will work. I watched my mom suffer

for so many years without medication. I have no idea how she managed

to keep working those years before mtx when all they had to give her

was aspirin. I remember it taking her hours each morning just to get

moving so she could get up and dressed for work. It was so scary and

I was sure she was going to die. I remember her trying many

different treatments that did not help. I remember medications that

had worked, only to begin to fail after she had been on them for a

while. Her RA has never been well controlled the way mine has been.

Even when she started Enbrel and called it a miracle drug, it soon

became evident that the bone on bone pain in her hands and feet would

not be going away. I look at her now, her hands, wrists, feet and

ankles disfigured, her body failing her in so many ways, and I shake

my head wondering where she gets her strength from and how she

manages to smile. I wish I could tell you that a miracle was around

the corner, that it was all okay, that someone would show up soon to

take your pain away, or where to look to find the bright side. All I

can really say for sure is that I know we are all here for you, to

listen and to understand, and maybe sometimes, to offer hope.

Jennie

>

> I would like to get my RA in control. I have been in constant pain

> for almost 3 years now, with little relief. I have taken a lot of

> different meds, but none really seem to help the constant nagging

> pain. I am taking the med to prevent the progression of the

> disease. But, I still see my hands deforming, so then what?

> I can't exercise for the pain. I can't hardly walk, using my hands

> is tough. It's not what I won't, I have gave a good fight over the

> last couple of years, but all I see is the disease taking over my

> body each day. It's effecting my life so much, and it's hard.

> I don't sleep, and I cry until I make myself sick. But, what can I

> do? How can I take the RA positive? I pray for remission, just a

> little relief, but it hasn't happened yet.

[Guest guest]

The best of luck with your gallbladder operation, Cheryl. Sorry things

are so hard for you.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] My life with RA,......

>

>

> Hi Tawny,I know what you are talking about.In a few days i have my

gallbladder taken out,had to give more blood today because my kineys and

liver are going fast,and it feels like a losing battle. I guesse all we

can do is keep hanging in there day by day and minute by minute. We

were put here for a reason to go through these tough times to see just

how tough we are.I figure one day we will know what that reason is. You

just keep hanging tough and so will i ,we can make it through this day

to get to another!!!!

> Lupie Hugs,Cheryl

[Guest guest]

The best of luck with your gallbladder operation, Cheryl. Sorry things

are so hard for you.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] My life with RA,......

>

>

> Hi Tawny,I know what you are talking about.In a few days i have my

gallbladder taken out,had to give more blood today because my kineys and

liver are going fast,and it feels like a losing battle. I guesse all we

can do is keep hanging in there day by day and minute by minute. We

were put here for a reason to go through these tough times to see just

how tough we are.I figure one day we will know what that reason is. You

just keep hanging tough and so will i ,we can make it through this day

to get to another!!!!

> Lupie Hugs,Cheryl

[Guest guest]

That's so sad, Tawny. Please don't give up.

Have you told your rheumatologist this? If he is aware of your suffering

and isn't do anything about it, then it's time to find someone else.

Which DMARDs have you tried so far? What would you think of trying a

clinical trial?

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] My life with RA,......

>

>

> I would like to get my RA in control. I have been in constant pain

> for almost 3 years now, with little relief. I have taken a lot of

> different meds, but none really seem to help the constant nagging

> pain. I am taking the med to prevent the progression of the

> disease. But, I still see my hands deforming, so then what?

> I can't exercise for the pain. I can't hardly walk, using my hands

> is tough. It's not what I won't, I have gave a good fight over the

> last couple of years, but all I see is the disease taking over my

> body each day. It's effecting my life so much, and it's hard.

> I don't sleep, and I cry until I make myself sick. But, what can I

> do? How can I take the RA positive? I pray for remission, just a

> little relief, but it hasn't happened yet.

[Guest guest]

That's so sad, Tawny. Please don't give up.

Have you told your rheumatologist this? If he is aware of your suffering

and isn't do anything about it, then it's time to find someone else.

Which DMARDs have you tried so far? What would you think of trying a

clinical trial?

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] My life with RA,......

>

>

> I would like to get my RA in control. I have been in constant pain

> for almost 3 years now, with little relief. I have taken a lot of

> different meds, but none really seem to help the constant nagging

> pain. I am taking the med to prevent the progression of the

> disease. But, I still see my hands deforming, so then what?

> I can't exercise for the pain. I can't hardly walk, using my hands

> is tough. It's not what I won't, I have gave a good fight over the

> last couple of years, but all I see is the disease taking over my

> body each day. It's effecting my life so much, and it's hard.

> I don't sleep, and I cry until I make myself sick. But, what can I

> do? How can I take the RA positive? I pray for remission, just a

> little relief, but it hasn't happened yet.

[Guest guest]

Tawny,

Don't give up, that is what keeps us going. Even if we are in pain all

the time. Mine has also been worse since we have started to get the

wet cooler weather. You do so much for everyone here. You help keep

our spirits up. Hopefully we can do the same for you.

Beth

--- In , " " <Matsumura_Clan@m...>

wrote:

> That's so sad, Tawny. Please don't give up.

>

> Have you told your rheumatologist this? If he is aware of your suffering

> and isn't do anything about it, then it's time to find someone else.

>

> Which DMARDs have you tried so far? What would you think of trying a

> clinical trial?

>

>

>

>

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

> [ ] My life with RA,......

>

>

> >

> >

> > I would like to get my RA in control. I have been in constant pain

> > for almost 3 years now, with little relief. I have taken a lot of

> > different meds, but none really seem to help the constant nagging

> > pain. I am taking the med to prevent the progression of the

> > disease. But, I still see my hands deforming, so then what?

> > I can't exercise for the pain. I can't hardly walk, using my hands

> > is tough. It's not what I won't, I have gave a good fight over the

> > last couple of years, but all I see is the disease taking over my

> > body each day. It's effecting my life so much, and it's hard.

> > I don't sleep, and I cry until I make myself sick. But, what can I

> > do? How can I take the RA positive? I pray for remission, just a

> > little relief, but it hasn't happened yet.

[Guest guest]

Tawny,

Don't give up, that is what keeps us going. Even if we are in pain all

the time. Mine has also been worse since we have started to get the

wet cooler weather. You do so much for everyone here. You help keep

our spirits up. Hopefully we can do the same for you.

Beth

> That's so sad, Tawny. Please don't give up.

>

> Have you told your rheumatologist this? If he is aware of your suffering

> and isn't do anything about it, then it's time to find someone else.

>

> Which DMARDs have you tried so far? What would you think of trying a

> clinical trial?

>

>

>

>

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

> [ ] My life with RA,......

>

>

> >

> >

> > I would like to get my RA in control. I have been in constant pain

> > for almost 3 years now, with little relief. I have taken a lot of

> > different meds, but none really seem to help the constant nagging

> > pain. I am taking the med to prevent the progression of the

> > disease. But, I still see my hands deforming, so then what?

> > I can't exercise for the pain. I can't hardly walk, using my hands

> > is tough. It's not what I won't, I have gave a good fight over the

> > last couple of years, but all I see is the disease taking over my

> > body each day. It's effecting my life so much, and it's hard.

> > I don't sleep, and I cry until I make myself sick. But, what can I

> > do? How can I take the RA positive? I pray for remission, just a

> > little relief, but it hasn't happened yet.

[Guest guest]

Tawny - I can't believe I am asking or suggesting this - are you on prednisone?

It actually made my life liveable --and me mobile- until they found other drugs.

HUGS, karen

>

>

> Tawny,

> Don't give up, that is what keeps us going. Even if we are in pain all

> the time. Mine has also been worse since we have started to get the

> wet cooler weather. You do so much for everyone here. You help keep

> our spirits up. Hopefully we can do the same for you.

>

> Beth

>

>

>

> > That's so sad, Tawny. Please don't give up.

> >

> > Have you told your rheumatologist this? If he is aware of your suffering

> > and isn't do anything about it, then it's time to find someone else.

> >

> > Which DMARDs have you tried so far? What would you think of trying a

> > clinical trial?

> >

> >

> >

> >

> >

> > I'll tell you where to go!

> >

> > Mayo Clinic in Rochester

> > http://www.mayoclinic.org/rochester

> >

> > s Hopkins Medicine

> > http://www.hopkinsmedicine.org

> >

> >

> > [ ] My life with RA,......

> >

> >

> > >

> > >

> > > I would like to get my RA in control. I have been in constant pain

> > > for almost 3 years now, with little relief. I have taken a lot of

> > > different meds, but none really seem to help the constant nagging

> > > pain. I am taking the med to prevent the progression of the

> > > disease. But, I still see my hands deforming, so then what?

> > > I can't exercise for the pain. I can't hardly walk, using my hands

> > > is tough. It's not what I won't, I have gave a good fight over the

> > > last couple of years, but all I see is the disease taking over my

> > > body each day. It's effecting my life so much, and it's hard.

> > > I don't sleep, and I cry until I make myself sick. But, what can I

> > > do? How can I take the RA positive? I pray for remission, just a

> > > little relief, but it hasn't happened yet.

>

>

>

>

>

>

>

[Guest guest]

Tawny - I can't believe I am asking or suggesting this - are you on prednisone?

It actually made my life liveable --and me mobile- until they found other drugs.

HUGS, karen

>

>

> Tawny,

> Don't give up, that is what keeps us going. Even if we are in pain all

> the time. Mine has also been worse since we have started to get the

> wet cooler weather. You do so much for everyone here. You help keep

> our spirits up. Hopefully we can do the same for you.

>

> Beth

>

>

>

> > That's so sad, Tawny. Please don't give up.

> >

> > Have you told your rheumatologist this? If he is aware of your suffering

> > and isn't do anything about it, then it's time to find someone else.

> >

> > Which DMARDs have you tried so far? What would you think of trying a

> > clinical trial?

> >

> >

> >

> >

> >

> > I'll tell you where to go!

> >

> > Mayo Clinic in Rochester

> > http://www.mayoclinic.org/rochester

> >

> > s Hopkins Medicine

> > http://www.hopkinsmedicine.org

> >

> >

> > [ ] My life with RA,......

> >

> >

> > >

> > >

> > > I would like to get my RA in control. I have been in constant pain

> > > for almost 3 years now, with little relief. I have taken a lot of

> > > different meds, but none really seem to help the constant nagging

> > > pain. I am taking the med to prevent the progression of the

> > > disease. But, I still see my hands deforming, so then what?

> > > I can't exercise for the pain. I can't hardly walk, using my hands

> > > is tough. It's not what I won't, I have gave a good fight over the

> > > last couple of years, but all I see is the disease taking over my

> > > body each day. It's effecting my life so much, and it's hard.

> > > I don't sleep, and I cry until I make myself sick. But, what can I

> > > do? How can I take the RA positive? I pray for remission, just a

> > > little relief, but it hasn't happened yet.

>

>

>

>

>

>

>

[Guest guest]

Tawny,

I am so sorry to hear that you are in so much pain and have so much doubt. I

was diagnosed in July, and haven't had a pain free day since March. Three years

of pain .... I can't imagine. I find myself worrying about my future with RA,

and I find myself thinking of all of the things I " should " be doing. And,all I

end up accomplishing is worrying and beating myself up for not doing more.

But, then the strong Cristen speaks up, and compels me to find some good in

every day. I make myself sit outside and watch my dogs play ... several months

earlier I was right there with them running around and playing tug. I try to be

thankful that I can walk down my deck steps, breathe fresh air, and watch my

silly furry friends tear around. I pray for remission, but I am not banking on

it. I don't know if this helps, but it seems to help me with my battle against

this disease, as well as the demons in my head. I am praying for your remission

as well as some peace of mind.

Cristen in NC

[ ] My life with RA,......

I would like to get my RA in control. I have been in constant pain

for almost 3 years now, with little relief. I have taken a lot of

different meds, but none really seem to help the constant nagging

pain. I am taking the med to prevent the progression of the

disease. But, I still see my hands deforming, so then what?

I can't exercise for the pain. I can't hardly walk, using my hands

is tough. It's not what I won't, I have gave a good fight over the

last couple of years, but all I see is the disease taking over my

body each day. It's effecting my life so much, and it's hard.

I don't sleep, and I cry until I make myself sick. But, what can I

do? How can I take the RA positive? I pray for remission, just a

little relief, but it hasn't happened yet.

[Guest guest]

Tawny,

I am so sorry to hear that you are in so much pain and have so much doubt. I

was diagnosed in July, and haven't had a pain free day since March. Three years

of pain .... I can't imagine. I find myself worrying about my future with RA,

and I find myself thinking of all of the things I " should " be doing. And,all I

end up accomplishing is worrying and beating myself up for not doing more.

But, then the strong Cristen speaks up, and compels me to find some good in

every day. I make myself sit outside and watch my dogs play ... several months

earlier I was right there with them running around and playing tug. I try to be

thankful that I can walk down my deck steps, breathe fresh air, and watch my

silly furry friends tear around. I pray for remission, but I am not banking on

it. I don't know if this helps, but it seems to help me with my battle against

this disease, as well as the demons in my head. I am praying for your remission

as well as some peace of mind.

Cristen in NC

[ ] My life with RA,......

I would like to get my RA in control. I have been in constant pain

for almost 3 years now, with little relief. I have taken a lot of

different meds, but none really seem to help the constant nagging

pain. I am taking the med to prevent the progression of the

disease. But, I still see my hands deforming, so then what?

I can't exercise for the pain. I can't hardly walk, using my hands

is tough. It's not what I won't, I have gave a good fight over the

last couple of years, but all I see is the disease taking over my

body each day. It's effecting my life so much, and it's hard.

I don't sleep, and I cry until I make myself sick. But, what can I

do? How can I take the RA positive? I pray for remission, just a

little relief, but it hasn't happened yet.

[Guest guest]

Tawny,

I'm so sorry you haven't been able to find something to help. I know it is

hard to watch yourself being affected by such a rotten disease. I pray for

your doctors to find the right meds to give you relief. Have you tried

everything available? Is your doctor trying hard enough to help you?

I feel so bad for you. I want so much for you to find your magic bullet so

that you can enjoy life.

a

>

>

> I would like to get my RA in control. I have been in constant pain

> for almost 3 years now, with little relief. I have taken a lot of

> different meds, but none really seem to help the constant nagging

> pain. I am taking the med to prevent the progression of the

> disease. But, I still see my hands deforming, so then what?

> I can't exercise for the pain. I can't hardly walk, using my hands

> is tough. It's not what I won't, I have gave a good fight over the

> last couple of years, but all I see is the disease taking over my

> body each day. It's effecting my life so much, and it's hard.

> I don't sleep, and I cry until I make myself sick. But, what can I

> do? How can I take the RA positive? I pray for remission, just a

> little relief, but it hasn't happened yet.

>

>

>

>

>

>

>

>

[Guest guest]

Tawny,

I'm so sorry you haven't been able to find something to help. I know it is

hard to watch yourself being affected by such a rotten disease. I pray for

your doctors to find the right meds to give you relief. Have you tried

everything available? Is your doctor trying hard enough to help you?

I feel so bad for you. I want so much for you to find your magic bullet so

that you can enjoy life.

a

>

>

> I would like to get my RA in control. I have been in constant pain

> for almost 3 years now, with little relief. I have taken a lot of

> different meds, but none really seem to help the constant nagging

> pain. I am taking the med to prevent the progression of the

> disease. But, I still see my hands deforming, so then what?

> I can't exercise for the pain. I can't hardly walk, using my hands

> is tough. It's not what I won't, I have gave a good fight over the

> last couple of years, but all I see is the disease taking over my

> body each day. It's effecting my life so much, and it's hard.

> I don't sleep, and I cry until I make myself sick. But, what can I

> do? How can I take the RA positive? I pray for remission, just a

> little relief, but it hasn't happened yet.

>

>

>

>

>

>

>

>

[Guest guest]

Tawny, I feel for you. It breaks my heart to hear people go

through this. I have little self pitty parties for me when it

becomes so over whelming that I can't take it any more. I will keep

you in my prayers that you may find some control and relief. Take

care....Marina in Ohio

>

> I would like to get my RA in control. I have been in constant pain

> for almost 3 years now, with little relief. I have taken a lot of

> different meds, but none really seem to help the constant nagging

> pain. I am taking the med to prevent the progression of the

> disease. But, I still see my hands deforming, so then what?

> I can't exercise for the pain. I can't hardly walk, using my

hands

> is tough. It's not what I won't, I have gave a good fight over

the

> last couple of years, but all I see is the disease taking over my

> body each day. It's effecting my life so much, and it's hard.

> I don't sleep, and I cry until I make myself sick. But, what can

I

> do? How can I take the RA positive? I pray for remission, just a

> little relief, but it hasn't happened yet.

[Guest guest]

Tawny, I feel for you. It breaks my heart to hear people go

through this. I have little self pitty parties for me when it

becomes so over whelming that I can't take it any more. I will keep

you in my prayers that you may find some control and relief. Take

care....Marina in Ohio

>

> I would like to get my RA in control. I have been in constant pain

> for almost 3 years now, with little relief. I have taken a lot of

> different meds, but none really seem to help the constant nagging

> pain. I am taking the med to prevent the progression of the

> disease. But, I still see my hands deforming, so then what?

> I can't exercise for the pain. I can't hardly walk, using my

hands

> is tough. It's not what I won't, I have gave a good fight over

the

> last couple of years, but all I see is the disease taking over my

> body each day. It's effecting my life so much, and it's hard.

> I don't sleep, and I cry until I make myself sick. But, what can

I

> do? How can I take the RA positive? I pray for remission, just a

> little relief, but it hasn't happened yet.

[Guest guest]

Jennie, thanks for the kind words, I appreciate them so much. I'm so

glad to have this group to help me though rough times, not just good.

I have tried many different meds, and none has worked so far really.

I'm having a harder time getting around, just tired of pain. With all

the meds out there, you would think there would be something.

I'm sure it's been terrible to watch your Mom going through such a

terrible time. She is a fighter that is for sure, she's a strong

woman. I look at my 10 year old, and wonder if she will think back

one day, and that is what she will see. She helps me a lot, and I'm

grateful. I have always taken care of myself and others, so it's not

easy for me at all. Some times I think that this is a bad dream, and

I want to wake up, but of course it's my new life.

I hope that you continue to have good days, and you are able to keep

your RA in control, thanks T

> >

> > I would like to get my RA in control. I have been in constant

pain

> > for almost 3 years now, with little relief. I have taken a lot

of

> > different meds, but none really seem to help the constant nagging

> > pain. I am taking the med to prevent the progression of the

> > disease. But, I still see my hands deforming, so then what?

> > I can't exercise for the pain. I can't hardly walk, using my

hands

> > is tough. It's not what I won't, I have gave a good fight over

the

> > last couple of years, but all I see is the disease taking over my

> > body each day. It's effecting my life so much, and it's hard.

> > I don't sleep, and I cry until I make myself sick. But, what can

I

> > do? How can I take the RA positive? I pray for remission, just

a

> > little relief, but it hasn't happened yet.

[Guest guest]

Jennie, thanks for the kind words, I appreciate them so much. I'm so

glad to have this group to help me though rough times, not just good.

I have tried many different meds, and none has worked so far really.

I'm having a harder time getting around, just tired of pain. With all

the meds out there, you would think there would be something.

I'm sure it's been terrible to watch your Mom going through such a

terrible time. She is a fighter that is for sure, she's a strong

woman. I look at my 10 year old, and wonder if she will think back

one day, and that is what she will see. She helps me a lot, and I'm

grateful. I have always taken care of myself and others, so it's not

easy for me at all. Some times I think that this is a bad dream, and

I want to wake up, but of course it's my new life.

I hope that you continue to have good days, and you are able to keep

your RA in control, thanks T

> >

> > I would like to get my RA in control. I have been in constant

pain

> > for almost 3 years now, with little relief. I have taken a lot

of

> > different meds, but none really seem to help the constant nagging

> > pain. I am taking the med to prevent the progression of the

> > disease. But, I still see my hands deforming, so then what?

> > I can't exercise for the pain. I can't hardly walk, using my

hands

> > is tough. It's not what I won't, I have gave a good fight over

the

> > last couple of years, but all I see is the disease taking over my

> > body each day. It's effecting my life so much, and it's hard.

> > I don't sleep, and I cry until I make myself sick. But, what can

I

> > do? How can I take the RA positive? I pray for remission, just

a

> > little relief, but it hasn't happened yet.

[Guest guest]

Cheryl,....I will keep you closely in my prayers. I hope that your

recovery is a speedy one, and all will go well. What is going on

with your kidneys and liver?

You are right we are here for a purpose, although I do question that

at times, but I know we just keep going. Big hug your way, T

> I would like to get my RA in control. I have been in constant pain

> for almost 3 years now, with little relief. I have taken a lot of

> different meds, but none really seem to help the constant nagging

> pain. I am taking the med to prevent the progression of the

> disease. But, I still see my hands deforming, so then what?

> I can't exercise for the pain. I can't hardly walk, using my hands

> is tough. It's not what I won't, I have gave a good fight over the

> last couple of years, but all I see is the disease taking over my

> body each day. It's effecting my life so much, and it's hard.

> I don't sleep, and I cry until I make myself sick. But, what can I

> do? How can I take the RA positive? I pray for remission, just a

> little relief, but it hasn't happened yet.

>

>

>

>

>

>

>

[Guest guest]

Cheryl,....I will keep you closely in my prayers. I hope that your

recovery is a speedy one, and all will go well. What is going on

with your kidneys and liver?

You are right we are here for a purpose, although I do question that

at times, but I know we just keep going. Big hug your way, T

> I would like to get my RA in control. I have been in constant pain

> for almost 3 years now, with little relief. I have taken a lot of

> different meds, but none really seem to help the constant nagging

> pain. I am taking the med to prevent the progression of the

> disease. But, I still see my hands deforming, so then what?

> I can't exercise for the pain. I can't hardly walk, using my hands

> is tough. It's not what I won't, I have gave a good fight over the

> last couple of years, but all I see is the disease taking over my

> body each day. It's effecting my life so much, and it's hard.

> I don't sleep, and I cry until I make myself sick. But, what can I

> do? How can I take the RA positive? I pray for remission, just a

> little relief, but it hasn't happened yet.

>

>

>

>

>

>

>

[Guest guest]

,....my rheumy does as much as he can with my resources. I'm on

the Humira assistance program right now, but I just don't see much.

On my next visit I will talk to him about other meds. It just gets

so frustrating to be the same everyday, but maybe a little worse.

I have thought about a trial, I have actually contacted one here in

the city, just waiting to see if I qualify.

I don't think I have actually tried DMARDS, I will ask him on my next

visit. Do you take them along with the Humira? I have taken MTX,

and that didn't go very well with my liver. So, maybe that is why

he's keeping me off those, not sure. I am suppose to be on the anti-

inflammatory med right now, but it's just making me sick. It is

Lodine 300mg, three times a day. Which I have been on Motrin, Mobic,

and just can't tolerate them.

Thanks so much for having us all here, so we can let our tears flow

when we need to, and someone will listen, Tawny

> That's so sad, Tawny. Please don't give up.

>

> Have you told your rheumatologist this? If he is aware of your

suffering

> and isn't do anything about it, then it's time to find someone else.

>

> Which DMARDs have you tried so far? What would you think of trying a

> clinical trial?

>

>

>

>

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

> [ ] My life with RA,......

>

>

> >

> >

> > I would like to get my RA in control. I have been in constant pain

> > for almost 3 years now, with little relief. I have taken a lot of

> > different meds, but none really seem to help the constant nagging

> > pain. I am taking the med to prevent the progression of the

> > disease. But, I still see my hands deforming, so then what?

> > I can't exercise for the pain. I can't hardly walk, using my

hands

> > is tough. It's not what I won't, I have gave a good fight over

the

> > last couple of years, but all I see is the disease taking over my

> > body each day. It's effecting my life so much, and it's hard.

> > I don't sleep, and I cry until I make myself sick. But, what can

I

> > do? How can I take the RA positive? I pray for remission, just a

> > little relief, but it hasn't happened yet.

[Guest guest]

,....my rheumy does as much as he can with my resources. I'm on

the Humira assistance program right now, but I just don't see much.

On my next visit I will talk to him about other meds. It just gets

so frustrating to be the same everyday, but maybe a little worse.

I have thought about a trial, I have actually contacted one here in

the city, just waiting to see if I qualify.

I don't think I have actually tried DMARDS, I will ask him on my next

visit. Do you take them along with the Humira? I have taken MTX,

and that didn't go very well with my liver. So, maybe that is why

he's keeping me off those, not sure. I am suppose to be on the anti-

inflammatory med right now, but it's just making me sick. It is

Lodine 300mg, three times a day. Which I have been on Motrin, Mobic,

and just can't tolerate them.

Thanks so much for having us all here, so we can let our tears flow

when we need to, and someone will listen, Tawny

> That's so sad, Tawny. Please don't give up.

>

> Have you told your rheumatologist this? If he is aware of your

suffering

> and isn't do anything about it, then it's time to find someone else.

>

> Which DMARDs have you tried so far? What would you think of trying a

> clinical trial?

>

>

>

>

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

> [ ] My life with RA,......

>

>

> >

> >

> > I would like to get my RA in control. I have been in constant pain

> > for almost 3 years now, with little relief. I have taken a lot of

> > different meds, but none really seem to help the constant nagging

> > pain. I am taking the med to prevent the progression of the

> > disease. But, I still see my hands deforming, so then what?

> > I can't exercise for the pain. I can't hardly walk, using my

hands

> > is tough. It's not what I won't, I have gave a good fight over

the

> > last couple of years, but all I see is the disease taking over my

> > body each day. It's effecting my life so much, and it's hard.

> > I don't sleep, and I cry until I make myself sick. But, what can

I

> > do? How can I take the RA positive? I pray for remission, just a

> > little relief, but it hasn't happened yet.

[Guest guest]

Hi Beth,....I try to keep a positive outlook, and be here for

everyone, but I crack once in awhile:) I really thought that getting

on these meds, I would get some benefit from them, but I go each day

with nothing, but a little worse, know what I mean?

When I was diagnosed, the pain wasn't as bad. Now, I'm taking the

meds, and I can't hardly get around, and I just don't

understand, " why? " Is it suppose to go like this?

What happened to getting back my life. I watch some of the

commercials that show how people get their life back on these meds,

and I'm thinking did I lose out,.....

Maybe soon it will be our turn, and we can dance around like the ones

on TV, you think? Take care Beth, and know I'm here, Tawny

> > That's so sad, Tawny. Please don't give up.

> >

> > Have you told your rheumatologist this? If he is aware of your

suffering

> > and isn't do anything about it, then it's time to find someone

else.

> >

> > Which DMARDs have you tried so far? What would you think of

trying a

> > clinical trial?

> >

> >

> >

> >

> >

> > I'll tell you where to go!

> >

> > Mayo Clinic in Rochester

> > http://www.mayoclinic.org/rochester

> >

> > s Hopkins Medicine

> > http://www.hopkinsmedicine.org

> >

> >

> > [ ] My life with RA,......

> >

> >

> > >

> > >

> > > I would like to get my RA in control. I have been in constant

pain

> > > for almost 3 years now, with little relief. I have taken a lot

of

> > > different meds, but none really seem to help the constant

nagging

> > > pain. I am taking the med to prevent the progression of the

> > > disease. But, I still see my hands deforming, so then what?

> > > I can't exercise for the pain. I can't hardly walk, using my

hands

> > > is tough. It's not what I won't, I have gave a good fight over

the

> > > last couple of years, but all I see is the disease taking over

my

> > > body each day. It's effecting my life so much, and it's hard.

> > > I don't sleep, and I cry until I make myself sick. But, what

can I

> > > do? How can I take the RA positive? I pray for remission,

just a

> > > little relief, but it hasn't happened yet.