Re: new here and looking for anyone who experienced my same situation

July 21, 2011

This sounds fairly similar to what we saw with my son, and is one reason why I

started the board--so that parents whose kids were reacting this way to it could

find each other.

For my son, once I put two and two together and realized that it was the

miralax, I had to give him a couple of days of enemas to clear the PEG out of

his intestines as much as I could. It seemed as though once I cleared that much

out, then the strange behavior and tics stopped.

Someone correct me if I'm wrong, but the doc is saying that if he had any extra

in him he would urinate it out. But then the doc is also saying that there is

no way for it to get into the bloodstream. If I'm not mistaken, doesn't

something have to enter the bloodstream for the kidneys to filter it/and then

the body to urinate it out? I could be wrong.

If you look in the Files section on this board, there are a couple of brief

summaries of studies that have been done using PEG 3350 and it does state that

small amounts are absorbed by the body. The concern that I have for our kids

who were the bad reactors to it-- were they absorbing more than the average

person?? Is that why they reacted? Did the miralax cause some type of oxalate

build up in their system?? There are a lot of questions still but one thing is

for certain-- your child's reaction is not unlike what other families have

reported. And it's happening far too often for it to be coincidental timing.

W

>

> My 5 year old son has been on 1 capful of miralax for 28 days per doctor for

constipation. Week 1 frequent urination and bedwetting (doctor said it was from

being very backed up). Week 2 extreme fatique (eyes 1/2 shut), eye blinking tic,

spaciness, change of personality to very mellow. Week 3 started all the

different motor tics which he still has presently daily and he is still vert

tired at times. During this time took him to the doctors 3 times and never once

did they think it was miralax and neither did I. Last night I entered miralax

and tics and found all this information and have been just blown away by it all.

> My son has an eeg on monday. I told my doctor today about miralax and she said

there is no scientific evidence and doubts his symptoms are from it. She said if

he had any extra in him he would urinate it out and it wouldnt go into the blood

stream or effect brain. I would love to hear from anyone that has had a similiar

situation. Does anyone know how long it takes for miralax to be out of the

system. Tonight will be 2 full days for him and he still has the tics. Thanks so

much!!!

>

July 21, 2011

Thats great his tics stopped. I will try the enema. That is my fear that his tics will not stop. Where is the files section? Did he have an eeg?

To: miralax Sent: Thursday, July 21, 2011 9:08 PMSubject: Re: new here and looking for anyone who experienced my same situation

This sounds fairly similar to what we saw with my son, and is one reason why I started the board--so that parents whose kids were reacting this way to it could find each other. For my son, once I put two and two together and realized that it was the miralax, I had to give him a couple of days of enemas to clear the PEG out of his intestines as much as I could. It seemed as though once I cleared that much out, then the strange behavior and tics stopped. Someone correct me if I'm wrong, but the doc is saying that if he had any extra in him he would urinate it out. But then the doc is also saying that there is no way for it to get into the bloodstream. If I'm not mistaken, doesn't something have to enter the bloodstream for the kidneys to filter it/and then the body to urinate it out? I could be wrong. If you look in the Files section on this board, there are a couple of brief summaries of studies that have been done using PEG

3350 and it does state that small amounts are absorbed by the body. The concern that I have for our kids who were the bad reactors to it-- were they absorbing more than the average person?? Is that why they reacted? Did the miralax cause some type of oxalate build up in their system?? There are a lot of questions still but one thing is for certain-- your child's reaction is not unlike what other families have reported. And it's happening far too often for it to be coincidental timing. W>> My 5 year old son has been on 1 capful of miralax for 28 days per doctor for constipation. Week 1 frequent urination and bedwetting (doctor said it was from being very backed up). Week 2 extreme fatique (eyes 1/2 shut), eye blinking tic, spaciness, change

of personality to very mellow. Week 3 started all the different motor tics which he still has presently daily and he is still vert tired at times. During this time took him to the doctors 3 times and never once did they think it was miralax and neither did I. Last night I entered miralax and tics and found all this information and have been just blown away by it all. > My son has an eeg on monday. I told my doctor today about miralax and she said there is no scientific evidence and doubts his symptoms are from it. She said if he had any extra in him he would urinate it out and it wouldnt go into the blood stream or effect brain. I would love to hear from anyone that has had a similiar situation. Does anyone know how long it takes for miralax to be out of the system. Tonight will be 2 full days for him and he still has the tics. Thanks so much!!!>

July 22, 2011

Hi Lynn: From my own experience, I can tell you that it took much longer than a couple of days for the chemical to clear out of my DD's system. I think it was week 2 of being off Miralax that she had a BM that looked like it burned her bum skin. She was also failing to thrive and it took about a year before she started gaining weight. She hadn't grown a millimeter in the 8.5 months she was taking the crap, but about a month after stopping it, she started growing at a rapid rate, having the growth spurt she should have had sooner. Her other symptoms (OCD tendencies, night terrors, paranoia, irrational rages/violence) all also dissipated over a period of 3-6 months. I wish I had kept a diary and I hope you do.I think a clean out of some sort, using

non-toxic, natural stuff, is a good idea, although I never thought to do this myself. I've also seen immense benefits in myself lately with the daily use of lemon juice and encourage you to give him lemonade. I plan to do so also with my DD.As for the constipation issue, you'll find a TON of information on other more natural, non-harmful methods for keeping your son regular. You'll find that most everyone here swears by one or another pro- and pre- biotics. Someone recommended Nature's Way's "Primadophilus Kids" in this group just the other day. I am planning on trying it, provided it has not milk sugars/products in it.Good luck to you both!To: "miralax " <miralax >Sent: Thu, July 21, 2011 9:36:00 PMSubject: Re: Re: new here and looking for anyone who experienced my same situation

Thats great his tics stopped. I will try the enema. That is my fear that his tics will not stop. Where is the files section? Did he have an eeg?

To: miralax Sent: Thursday, July 21, 2011 9:08 PMSubject: Re: new here and looking for anyone who experienced my same situation

This sounds fairly similar to what we saw with my son, and is one reason why I started the board--so that parents whose kids were reacting this way to it could find each other. For my son, once I put two and two together and realized that it was the miralax, I had to give him a couple of days of enemas to clear the PEG out of his intestines as much as I could. It seemed as though once I cleared that much out, then the strange behavior and tics stopped. Someone correct me if I'm wrong, but the doc is saying that if he had any extra in him he would urinate it out. But then the doc is also saying that there is no way for it to get into the bloodstream. If I'm not mistaken, doesn't something have to enter the bloodstream for the kidneys to filter it/and then the body to urinate it out? I could be wrong. If you look in the Files section on this board, there are a couple of brief summaries of studies that have been done using PEG

3350 and it does state that small amounts are absorbed by the body. The concern that I have for our kids who were the bad reactors to it-- were they absorbing more than the average person?? Is that why they reacted? Did the miralax cause some type of oxalate build up in their system?? There are a lot of questions still but one thing is for certain-- your child's reaction is not unlike what other families have reported. And it's happening far too often for it to be coincidental timing. W>> My 5 year old son has been on 1 capful of miralax for 28 days per doctor for constipation. Week 1 frequent urination and bedwetting (doctor said it was from being very backed up). Week 2 extreme fatique (eyes 1/2 shut), eye blinking tic, spaciness,

change

of personality to very mellow. Week 3 started all the different motor tics which he still has presently daily and he is still vert tired at times. During this time took him to the doctors 3 times and never once did they think it was miralax and neither did I. Last night I entered miralax and tics and found all this information and have been just blown away by it all. > My son has an eeg on monday. I told my doctor today about miralax and she said there is no scientific evidence and doubts his symptoms are from it. She said if he had any extra in him he would urinate it out and it wouldnt go into the blood stream or effect brain. I would love to hear from anyone that has had a similiar situation. Does anyone know how long it takes for miralax to be out of the system. Tonight will be 2 full days for him and he still has the tics. Thanks so much!!!>

July 22, 2011

Welcome, there's a lot of information you need to know about this...................Give him these on Monday, be prepared upon printing, there are 500 pages. I'd love to be a fly on the wall when you give him these. Type in side effects and hit search mail, see all the side affects in a nutshell, then read the FDA adverse reactions. You're inclination was correct! We have found that fresh lemonade helps with the urine, I'll explain later, push water to flush the system, gatorade to replenish electrolytesJeanie..........see attachedTo: miralax Sent: Thu, July 21, 2011 7:36:01 PMSubject: new here and looking for anyone who experienced my same situation

My 5 year old son has been on 1 capful of miralax for 28 days per doctor for constipation. Week 1 frequent urination and bedwetting (doctor said it was from being very backed up). Week 2 extreme fatique (eyes 1/2 shut), eye blinking tic, spaciness, change of personality to very mellow. Week 3 started all the different motor tics which he still has presently daily and he is still vert tired at times. During this time took him to the doctors 3 times and never once did they think it was miralax and neither did I. Last night I entered miralax and tics and found all this information and have been just blown away by it all.

My son has an eeg on monday. I told my doctor today about miralax and she said there is no scientific evidence and doubts his symptoms are from it. She said if he had any extra in him he would urinate it out and it wouldnt go into the blood stream or effect brain. I would love to hear from anyone that has had a similiar situation. Does anyone know how long it takes for miralax to be out of the system. Tonight will be 2 full days for him and he still has the tics. Thanks so much!!!

2 of 2 File(s)

ucm171059[5]._htm

1,966 Adverse reactions.LIS

July 22, 2011

Hope this works, doesn't want to attach anymore? Read first paragraph about the oxalate crystals present in urine after ingestingwww.ntuh.gov.tw-PMR-Lists-List14-Attachments-164-10253009-200903-37-1-45-50-a.pdfTo: miralax Sent: Thu, July 21, 2011 7:36:01 PMSubject: new here and looking for anyone who experienced my same situation

My 5 year old son has been on 1 capful of miralax for 28 days per doctor for constipation. Week 1 frequent urination and bedwetting (doctor said it was from being very backed up). Week 2 extreme fatique (eyes 1/2 shut), eye blinking tic, spaciness, change of personality to very mellow. Week 3 started all the different motor tics which he still has presently daily and he is still vert tired at times. During this time took him to the doctors 3 times and never once did they think it was miralax and neither did I. Last night I entered miralax and tics and found all this information and have been just blown away by it all.

My son has an eeg on monday. I told my doctor today about miralax and she said there is no scientific evidence and doubts his symptoms are from it. She said if he had any extra in him he would urinate it out and it wouldnt go into the blood stream or effect brain. I would love to hear from anyone that has had a similiar situation. Does anyone know how long it takes for miralax to be out of the system. Tonight will be 2 full days for him and he still has the tics. Thanks so much!!!

July 23, 2011

Thanks for writing back. How old was your DD when it happened? I'll have to see if there is a non toxic enema out there, I dont want to put anything else in his body now. Did u have an eeg done?

To: miralax Sent: Friday, July 22, 2011 10:58 AMSubject: Re: Re: new here and looking for anyone who experienced my same situation

Hi Lynn: From my own experience, I can tell you that it took much longer than a couple of days for the chemical to clear out of my DD's system. I think it was week 2 of being off Miralax that she had a BM that looked like it burned her bum skin. She was also failing to thrive and it took about a year before she started gaining weight. She hadn't grown a millimeter in the 8.5 months she was taking the crap, but about a month after stopping it, she started growing at a rapid rate, having the growth spurt she should have had sooner. Her other symptoms (OCD tendencies, night terrors, paranoia, irrational rages/violence) all also dissipated over a period of 3-6 months. I wish I had kept a diary and I hope you do.I think a clean out of some sort, using non-toxic, natural stuff, is a good idea, although I never thought to do this myself. I've also seen immense benefits in myself lately with the daily use of

lemon juice and encourage you to give him lemonade. I plan to do so also with my DD.As for the constipation issue, you'll find a TON of information on other more natural, non-harmful methods for keeping your son regular. You'll find that most everyone here swears by one or another pro- and pre- biotics. Someone recommended Nature's Way's "Primadophilus Kids" in this group just the other day. I am planning on trying it, provided it has not milk sugars/products in it.Good luck to you both!

To: "miralax " <miralax >Sent: Thu, July 21, 2011 9:36:00 PMSubject: Re: Re: new here and looking for anyone who experienced my same situation

Thats great his tics stopped. I will try the enema. That is my fear that his tics will not stop. Where is the files section? Did he have an eeg?

To: miralax Sent: Thursday, July 21, 2011 9:08 PMSubject: Re: new here and looking for anyone who experienced my same situation

This sounds fairly similar to what we saw with my son, and is one reason why I started the board--so that parents whose kids were reacting this way to it could find each other. For my son, once I put two and two together and realized that it was the miralax, I had to give him a couple of days of enemas to clear the PEG out of his intestines as much as I could. It seemed as though once I cleared that much out, then the strange behavior and tics stopped. Someone correct me if I'm wrong, but the doc is saying that if he had any extra in him he would urinate it out. But then the doc is also saying that there is no way for it to get into the bloodstream. If I'm not mistaken, doesn't something have to enter the bloodstream for the kidneys to filter it/and then the body to urinate it out? I could be wrong. If you look in the Files section on this board, there are a couple of brief summaries of studies that have been done using PEG

3350 and it does state that small amounts are absorbed by the body. The concern that I have for our kids who were the bad reactors to it-- were they absorbing more than the average person?? Is that why they reacted? Did the miralax cause some type of oxalate build up in their system?? There are a lot of questions still but one thing is for certain-- your child's reaction is not unlike what other families have reported. And it's happening far too often for it to be coincidental timing. W>> My 5 year old son has been on 1 capful of miralax for 28 days per doctor for constipation. Week 1 frequent urination and bedwetting (doctor said it was from being very backed up). Week 2 extreme fatique (eyes 1/2 shut), eye blinking tic, spaciness, change

of personality to very mellow. Week 3 started all the different motor tics which he still has presently daily and he is still vert tired at times. During this time took him to the doctors 3 times and never once did they think it was miralax and neither did I. Last night I entered miralax and tics and found all this information and have been just blown away by it all. > My son has an eeg on monday. I told my doctor today about miralax and she said there is no scientific evidence and doubts his symptoms are from it. She said if he had any extra in him he would urinate it out and it wouldnt go into the blood stream or effect brain. I would love to hear from anyone that has had a similiar situation. Does anyone know how long it takes for miralax to be out of the system. Tonight will be 2 full days for him and he still has the tics. Thanks so

much!!!>

July 23, 2011

Thanx for writing back. How old was your son when it happened? Did he have an eeg? I think your right about going through the kidneys first.

To: miralax Sent: Thursday, July 21, 2011 9:08 PMSubject: Re: new here and looking for anyone who experienced my same situation

This sounds fairly similar to what we saw with my son, and is one reason why I started the board--so that parents whose kids were reacting this way to it could find each other. For my son, once I put two and two together and realized that it was the miralax, I had to give him a couple of days of enemas to clear the PEG out of his intestines as much as I could. It seemed as though once I cleared that much out, then the strange behavior and tics stopped. Someone correct me if I'm wrong, but the doc is saying that if he had any extra in him he would urinate it out. But then the doc is also saying that there is no way for it to get into the bloodstream. If I'm not mistaken, doesn't something have to enter the bloodstream for the kidneys to filter it/and then the body to urinate it out? I could be wrong. If you look in the Files section on this board, there are a couple of brief summaries of studies that have been done using PEG

3350 and it does state that small amounts are absorbed by the body. The concern that I have for our kids who were the bad reactors to it-- were they absorbing more than the average person?? Is that why they reacted? Did the miralax cause some type of oxalate build up in their system?? There are a lot of questions still but one thing is for certain-- your child's reaction is not unlike what other families have reported. And it's happening far too often for it to be coincidental timing. W>> My 5 year old son has been on 1 capful of miralax for 28 days per doctor for constipation. Week 1 frequent urination and bedwetting (doctor said it was from being very backed up). Week 2 extreme fatique (eyes 1/2 shut), eye blinking tic, spaciness, change

of personality to very mellow. Week 3 started all the different motor tics which he still has presently daily and he is still vert tired at times. During this time took him to the doctors 3 times and never once did they think it was miralax and neither did I. Last night I entered miralax and tics and found all this information and have been just blown away by it all. > My son has an eeg on monday. I told my doctor today about miralax and she said there is no scientific evidence and doubts his symptoms are from it. She said if he had any extra in him he would urinate it out and it wouldnt go into the blood stream or effect brain. I would love to hear from anyone that has had a similiar situation. Does anyone know how long it takes for miralax to be out of the system. Tonight will be 2 full days for him and he still has the tics. Thanks so much!!!>

July 23, 2011

HI Lynn

I have 3 children 8, 6, and 4 yrs. old. My two oldest are my boys who took Peg 3350 for 5 and 7 years. I finally figured out that it was the miralax causing so many problems. One thing different with my boys are my oldest is ADHD and my other son HAD nothing until miralax! My oldest as a baby had colic and fussy baby but my other one was very good baby. But all three children had dairy allergy from birth. So as I nursed them each for a year, I stayed off of dairy. But stupid me, listening to the pediatrician telling me they were fine and could have dairy after 1 yrs. old caused all our problems. They should have never had dairy and the constipation would have never started and miralax would have never been given. So that is what happen there. My daughter never took miralax. She ended up getting a ton of ear infections, probably from all the dairy, and then was put on a ton of antibiotics. So now she has leaky gut and has a big yeast overgrowth, candida in her gut and a mild case of h pylori.

As for my boys, my oldest also has candida overgrowth in his gut, leaky gut, tics, and anxiety. My other son has leaky gut, tics, and a mild cause of anxiety. We are seeing a homeopath doctor to help us and our NEW pediatrician is more homeopath than usual doctors. Both are trying to help my children. We are gluten and dairy free due to intolerances by all three of my children and myself. My oldest is getting better slowly as we heal his gut and treating the candida. His tics have reduced tremendously to almost gone. But my other son, his tics have gotten worst at this point and we are not sure why. The doctor is working on this. I give my children organic food only, no artificial colors and preservatives. We eat lots of healthy food and snacks, fruits and vegetables. We stay away from high oxalate foods. The boys testing from Great plains laboratories and blood work show their kidney and liver working well and no metabolic acidosis right now. But we are testing these periodically. On monday we are going for all new blood work to see levels again. The boys have been off of miralax since February. They are on a ton of supplements and my oldest takes milk of magnesia because he is still laxative dependent. We also drink aloe vera juice every morning in lemonade which helps with healing the gut and stomach and killing the h pylori (possible). My oldest has a very bad case of leaky gut. We take calcium magnesium citrate, magnesium citrate, vitamin d, vitamin b's, biotin, zinc, fish oil, alpha liporic acid (oldest), NAC (second son), apple pectin fiber, perma vital intestinal (oldest for healing gut), probiotic, and i think that's it. Oh my oldest has bad nausea so he is taking a homeopath by boiron called nux vomica which has helped tremendously. And now we are getting ready to start back up with a physical therapy called Bowen. It's a light touch massage therapy that detoxes the body. It gets the yucky stuff out of the body and has done miracles for people. My oldest use to do it until I figured out what was really happening. Then we stopped to try all these other things and know what was working. But when he was doing it, it helped his focus tremendously. So we start this back up in August.

Sorry, I just gave u a ton of information. I hope this helps! Oh we never have done a eeg. In my opinion, with my boys, I feel miralx did more damage than anything else. And I believe it contributed to them getting leaky gut. Feel free to ask me any questions:).

To: miralax From: jljnkv@...Date: Sat, 23 Jul 2011 05:31:12 -0700Subject: Re: Re: new here and looking for anyone who experienced my same situation

Thanx for writing back. How old was your son when it happened? Did he have an eeg? I think your right about going through the kidneys first.

To: miralax Sent: Thursday, July 21, 2011 9:08 PMSubject: Re: new here and looking for anyone who experienced my same situation

This sounds fairly similar to what we saw with my son, and is one reason why I started the board--so that parents whose kids were reacting this way to it could find each other. For my son, once I put two and two together and realized that it was the miralax, I had to give him a couple of days of enemas to clear the PEG out of his intestines as much as I could. It seemed as though once I cleared that much out, then the strange behavior and tics stopped. Someone correct me if I'm wrong, but the doc is saying that if he had any extra in him he would urinate it out. But then the doc is also saying that there is no way for it to get into the bloodstream. If I'm not mistaken, doesn't something have to enter the bloodstream for the kidneys to filter it/and then the body to urinate it out? I could be wrong. If you look in the Files section on this board, there are a couple of brief summaries of studies that have been done using PEG 3350 and it does state that small amounts are absorbed by the body. The concern that I have for our kids who were the bad reactors to it-- were they absorbing more than the average person?? Is that why they reacted? Did the miralax cause some type of oxalate build up in their system?? There are a lot of questions still but one thing is for certain-- your child's reaction is not unlike what other families have reported. And it's happening far too often for it to be coincidental timing. W>> My 5 year old son has been on 1 capful of miralax for 28 days per doctor for constipation. Week 1 frequent urination and bedwetting (doctor said it was from being very backed up). Week 2 extreme fatique (eyes 1/2 shut), eye blinking tic, spaciness, change of personality to very mellow. Week 3 started all the different motor tics which he still has presently daily and he is still vert tired at times. During this time took him to the doctors 3 times and never once did they think it was miralax and neither did I. Last night I entered miralax and tics and found all this information and have been just blown away by it all. > My son has an eeg on monday. I told my doctor today about miralax and she said there is no scientific evidence and doubts his symptoms are from it. She said if he had any extra in him he would urinate it out and it wouldnt go into the blood stream or effect brain. I would love to hear from anyone that has had a similiar situation. Does anyone know how long it takes for miralax to be out of the system. Tonight will be 2 full days for him and he still has the tics. Thanks so much!!!>

July 23, 2011

It has been our experience that Miralax never fully leaves the system but integrates and transforms the body. It has been my expereince as well that some doctors have blinders on and do not to listen to, and then it is time to find doctors that have a different point of view. I have changed my docts four times now and have quite a reputation at not putting upi with the phrase, "the FDA does not agree with you"... My daughter's new doctors are researchers and like my being part of the team.

Holly

Subject: new here and looking for anyone who experienced my same situationTo: miralax Date: Friday, July 22, 2011, 12:36 AM

My 5 year old son has been on 1 capful of miralax for 28 days per doctor for constipation. Week 1 frequent urination and bedwetting (doctor said it was from being very backed up). Week 2 extreme fatique (eyes 1/2 shut), eye blinking tic, spaciness, change of personality to very mellow. Week 3 started all the different motor tics which he still has presently daily and he is still vert tired at times. During this time took him to the doctors 3 times and never once did they think it was miralax and neither did I. Last night I entered miralax and tics and found all this information and have been just blown away by it all. My son has an eeg on monday. I told my doctor today about miralax and she said there is no scientific evidence and doubts his symptoms are from it. She said if he had any extra in him he would urinate it out and it wouldnt go into the blood stream or effect brain. I would love to hear from anyone that has had a similiar situation.

Does anyone know how long it takes for miralax to be out of the system. Tonight will be 2 full days for him and he still has the tics. Thanks so much!!!

July 23, 2011

Anything we eat enters the blood steeam either immediately or within 40 minutes. Our blood is what nuriouses our body...or did they forget that, lol

Holly

Subject: Re: new here and looking for anyone who experienced my same situationTo: miralax Date: Friday, July 22, 2011, 1:08 AM

This sounds fairly similar to what we saw with my son, and is one reason why I started the board--so that parents whose kids were reacting this way to it could find each other. For my son, once I put two and two together and realized that it was the miralax, I had to give him a couple of days of enemas to clear the PEG out of his intestines as much as I could. It seemed as though once I cleared that much out, then the strange behavior and tics stopped. Someone correct me if I'm wrong, but the doc is saying that if he had any extra in him he would urinate it out. But then the doc is also saying that there is no way for it to get into the bloodstream. If I'm not mistaken, doesn't something have to enter the bloodstream for the kidneys to filter it/and then the body to urinate it out? I could be wrong. If you look in the Files section on this board, there are a couple of brief summaries of studies that have been done using PEG

3350 and it does state that small amounts are absorbed by the body. The concern that I have for our kids who were the bad reactors to it-- were they absorbing more than the average person?? Is that why they reacted? Did the miralax cause some type of oxalate build up in their system?? There are a lot of questions still but one thing is for certain-- your child's reaction is not unlike what other families have reported. And it's happening far too often for it to be coincidental timing. W>> My 5 year old son has been on 1 capful of miralax for 28 days per doctor for constipation. Week 1 frequent urination and bedwetting (doctor said it was from being very backed up). Week 2 extreme fatique (eyes 1/2

shut), eye blinking tic, spaciness, change of personality to very mellow. Week 3 started all the different motor tics which he still has presently daily and he is still vert tired at times. During this time took him to the doctors 3 times and never once did they think it was miralax and neither did I. Last night I entered miralax and tics and found all this information and have been just blown away by it all. > My son has an eeg on monday. I told my doctor today about miralax and she said there is no scientific evidence and doubts his symptoms are from it. She said if he had any extra in him he would urinate it out and it wouldnt go into the blood stream or effect brain. I would love to hear from anyone that has had a similiar situation. Does anyone know how long it takes for miralax to be out of the system. Tonight will be 2 full days for him and he still has the tics. Thanks so

much!!!>

July 23, 2011

Not info from here but from my own experience before I met your group. Your group was the validation I recieved after the fight was over and my daughter was released from the hospital when they wanted to remove her colon.

XOXOXOXO

Holly

Subject: new here and looking for anyone who experienced my same situationTo: miralax Date: Friday, July 22, 2011, 12:36 AM

My 5 year old son has been on 1 capful of miralax for 28 days per doctor for constipation. Week 1 frequent urination and bedwetting (doctor said it was from being very backed up). Week 2 extreme fatique (eyes 1/2 shut), eye blinking tic, spaciness, change of personality to very mellow. Week 3 started all the different motor tics which he still has presently daily and he is still vert tired at times. During this time took him to the doctors 3 times and never once did they think it was miralax and neither did I. Last night I entered miralax and tics and found all this information and have been just blown away by it all. My son has an eeg on monday. I told my doctor today about miralax and she said there is no scientific evidence and doubts his symptoms are from it. She said if he had any extra in him he would urinate it out and it wouldnt go into the blood stream or effect brain. I would love to hear from anyone that has had a similiar situation.

Does anyone know how long it takes for miralax to be out of the system. Tonight will be 2 full days for him and he still has the tics. Thanks so much!!!

July 23, 2011

what about the FDA comment? Who said this? To: miralax Sent: Sat, July 23, 2011 6:08:10 PMSubject: Re: new here and looking for anyone who experienced my same situation

Not info from here but from my own experience before I met your group. Your group was the validation I recieved after the fight was over and my daughter was released from the hospital when they wanted to remove her colon.

XOXOXOXO

Holly

Subject: new here and looking for anyone who experienced my same situationTo: miralax Date: Friday, July 22, 2011, 12:36 AM

My 5 year old son has been on 1 capful of miralax for 28 days per doctor for constipation. Week 1 frequent urination and bedwetting (doctor said it was from being very backed up). Week 2 extreme fatique (eyes 1/2 shut), eye blinking tic, spaciness, change of personality to very mellow. Week 3 started all the different motor tics which he still has presently daily and he is still vert tired at times. During this time took him to the doctors 3 times and never once did they think it was miralax and neither did I. Last night I entered miralax and tics and found all this information and have been just blown away by it all. My son has an eeg on monday. I told my doctor today about miralax and she said there is no scientific evidence and doubts his symptoms are from it. She said if he had any extra in him he would urinate it out and it wouldnt go into the blood stream or effect brain. I would love to hear from anyone that has had a similiar situation.

Does anyone know how long it takes for miralax to be out of the system. Tonight will be 2 full days for him and he still has the tics. Thanks so much!!!

July 23, 2011

----- Forwarded Message ----To: miralax Sent: Sat, July 23, 2011 6:11:01 PMSubject: Re: Re: new here and looking for anyone who experienced my same situation

Holly, they think it's not absorbed b/c of the size of the molecule. They only hear from colleagues, that this is THE medication to prescribe for constipation. Every Medical Professional I know, knows practically nothing about it, including Nephrologists, Urologists, Pharmacists, and many Family Practice docs. My doc needed to look up the safety and effectiveness for adult and pediatric patients and we found the report about 85%- 96% is recovered in the urine, leaving 4-15% still in the body. Reference in the files section, titled, urinary excretion of PEGJeanie.............better educating our medical professionals on the dangers of PEG â˜ºTo: miralax Sent: Sat, July 23, 2011 5:41:30 PMSubject: Re: Re: new here and looking for anyone who experienced my same situation

Anything we eat enters the blood steeam either immediately or within 40 minutes. Our blood is what nuriouses our body...or did they forget that, lol

Holly

Subject: Re: new here and looking for anyone who experienced my same situationTo: miralax Date: Friday, July 22, 2011, 1:08 AM

This sounds fairly similar to what we saw with my son, and is one reason why I started the board--so that parents whose kids were reacting this way to it could find each other. For my son, once I put two and two together and realized that it was the miralax, I had to give him a couple of days of enemas to clear the PEG out of his intestines as much as I could. It seemed as though once I cleared that much out, then the strange behavior and tics stopped. Someone correct me if I'm wrong, but the doc is saying that if he had any extra in him he would urinate it out. But then the doc is also saying that there is no way for it to get into the bloodstream. If I'm not mistaken, doesn't something have to enter the bloodstream for the kidneys to filter it/and then the body to urinate it out? I could be wrong. If you look in the Files section on this board, there are a couple of brief summaries of studies that have been done using PEG

3350 and it does state that small amounts are absorbed by the body. The concern that I have for our kids who were the bad reactors to it-- were they absorbing more than the average person?? Is that why they reacted? Did the miralax cause some type of oxalate build up in their system?? There are a lot of questions still but one thing is for certain-- your child's reaction is not unlike what other families have reported. And it's happening far too often for it to be coincidental timing. W>> My 5 year old son has been on 1 capful of miralax for 28 days per doctor for constipation. Week 1 frequent urination and bedwetting (doctor said it was from being very backed up). Week 2 extreme fatique (eyes 1/2

shut), eye blinking tic, spaciness, change of personality to very mellow. Week 3 started all the different motor tics which he still has presently daily and he is still vert tired at times. During this time took him to the doctors 3 times and never once did they think it was miralax and neither did I. Last night I entered miralax and tics and found all this information and have been just blown away by it all. > My son has an eeg on monday. I told my doctor today about miralax and she said there is no scientific evidence and doubts his symptoms are from it. She said if he had any extra in him he would urinate it out and it wouldnt go into the blood stream or effect brain. I would love to hear from anyone that has had a similiar situation. Does anyone know how long it takes for miralax to be out of the system. Tonight will be 2 full days for him and he still has the tics. Thanks so

much!!!>

July 23, 2011

You are simply awesome my friend! Keep up the good work. Some day our world will be safer and land our kids less damaged.

Holly

Subject: Re: new here and looking for anyone who experienced my same situationTo: miralax Date: Friday, July 22, 2011, 1:08 AM

This sounds fairly similar to what we saw with my son, and is one reason why I started the board--so that parents whose kids were reacting this way to it could find each other. For my son, once I put two and two together and realized that it was the miralax, I had to give him a couple of days of enemas to clear the PEG out of his intestines as much as I could. It seemed as though once I cleared that much out, then the strange behavior and tics stopped. Someone correct me if I'm wrong, but the doc is saying that if he had any extra in him he would urinate it out. But then the doc is also saying that there is no way for it to get into the bloodstream. If I'm not mistaken, doesn't something have to enter the bloodstream for the kidneys to filter it/and then the body to urinate it out? I could be wrong. If you look in the Files section on this board, there are a couple of brief summaries of studies that have been done using PEG

3350 and it does state that small amounts are absorbed by the body. The concern that I have for our kids who were the bad reactors to it-- were they absorbing more than the average person?? Is that why they reacted? Did the miralax cause some type of oxalate build up in their system?? There are a lot of questions still but one thing is for certain-- your child's reaction is not unlike what other families have reported. And it's happening far too often for it to be coincidental timing. W>> My 5 year old son has been on 1 capful of miralax for 28 days per doctor for constipation. Week 1 frequent urination and bedwetting (doctor said it was from being very backed up). Week 2 extreme fatique (eyes 1/2 shut), eye blinking tic, spaciness, change of

personality to very mellow. Week 3 started all the different motor tics which he still has presently daily and he is still vert tired at times. During this time took him to the doctors 3 times and never once did they think it was miralax and neither did I. Last night I entered miralax and tics and found all this information and have been just blown away by it all. > My son has an eeg on monday. I told my doctor today about miralax and she said there is no scientific evidence and doubts his symptoms are from it. She said if he had any extra in him he would urinate it out and it wouldnt go into the blood stream or effect brain. I would love to hear from anyone that has had a similiar situation. Does anyone know how long it takes for miralax to be out of the system. Tonight will be 2 full days for him and he still has the tics. Thanks so much!!!>

July 23, 2011

Make sure you make a copy of the Drug Oversight Board Meeting showing the FDA, IS INDEED investigating, and hand deliver to them. Make sure you let them know there are millions of children affected now, b/c no one did a thing about it, turned their heads, and many suffered. Make sure you give them a copy of the FDA adverse reactions and let them know there's a woman like a pit bull on a bone investigating this situation and the numbers went from 6 to 1,966 in a decade. Let them know there's a yahoo group with 1500 members. Let them know there's

research with PEG and spinal cord patients they need to read showing it affects the anion gap, creatinine, kidneys, and causes metabolic acidosis. They're all here for your convenience and hopefully will be aired across the Nation some day! Also let them know how your child leaped from the time you found our information and quit listening to their ill informed protocol on PEG. To: miralax Sent: Sat, July 23, 2011 6:15:02 PMSubject: Re: new here and looking for anyone who experienced my same situation

One of her docs

Subject: new here and looking for anyone who experienced my same situationTo: miralax Date: Friday, July 22, 2011, 12:36 AM

My 5 year old son has been on 1 capful of miralax for 28 days per doctor for constipation. Week 1 frequent urination and bedwetting (doctor said it was from being very backed up). Week 2 extreme fatique (eyes 1/2 shut), eye blinking tic, spaciness, change of personality to very mellow. Week 3 started all the different motor tics which he still has presently daily and he is still vert tired at times. During this time took him to the doctors 3 times and never once did they think it was miralax and neither did I. Last night I entered miralax and tics and found all this information and have been just blown away by it all. My son has an eeg on monday. I told my doctor today about miralax and she said there is no scientific evidence and doubts his symptoms are from it. She said if he had any extra in him he would urinate it out and it wouldnt go into the blood stream or effect brain. I would love to hear from anyone that has had a similiar situation.

Does anyone know how long it takes for miralax to be out of the system. Tonight will be 2 full days for him and he still has the tics. Thanks so much!!!

July 24, 2011

Hi Holly, How long was your daughter on the medication? Where did u learn that miralax never fully leaves the system?

To: miralax Sent: Saturday, July 23, 2011 6:38 PMSubject: Re: new here and looking for anyone who experienced my same situation

It has been our experience that Miralax never fully leaves the system but integrates and transforms the body. It has been my expereince as well that some doctors have blinders on and do not to listen to, and then it is time to find doctors that have a different point of view. I have changed my docts four times now and have quite a reputation at not putting upi with the phrase, "the FDA does not agree with you"... My daughter's new doctors are researchers and like my being part of the team.

Holly

Subject: new here and looking for anyone who experienced my same situationTo: miralax Date: Friday, July 22, 2011, 12:36 AM

My 5 year old son has been on 1 capful of miralax for 28 days per doctor for constipation. Week 1 frequent urination and bedwetting (doctor said it was from being very backed up). Week 2 extreme fatique (eyes 1/2 shut), eye blinking tic, spaciness, change of personality to very mellow. Week 3 started all the different motor tics which he still has presently daily and he is still vert tired at times. During this time took him to the doctors 3 times and never once did they think it was miralax and neither did I. Last night I entered miralax and tics and found all this information and have been just blown away by it all. My son has an eeg on monday. I told my doctor today about miralax and she said there is no scientific evidence and doubts his symptoms are from it. She said if he had any extra in him he would urinate it out and it wouldnt go into the blood stream or effect brain. I would love to hear from anyone that has had a similiar situation.

Does anyone know how long it takes for miralax to be out of the system. Tonight will be 2 full days for him and he still has the tics. Thanks so much!!!

July 25, 2011

My DD was about 18 months old when she was started on Miralax. I always gave her 1/2 cap full w/ her milk every day. Never had EEG done. Why do you ask? Currently concerned that she may have some urinary issues so I'll have to look into that.To: "miralax " <miralax >Sent: Sat, July 23, 2011 8:27:13 AMSubject: Re: Re: new here and looking for anyone who experienced my same situation