Guest guest Posted June 22, 2000 Report Share Posted June 22, 2000 Barb, That is a great idea. Would one of you gifted members be willing to do this? Maybe we should also make sure everyone gets signed up on the database. Last time I looked there weren't as many on there as there are our list. Just a suggestion...... Barby married 20 years, mom of 5 sons- KS UC - dx in 1965 (11yo), ostomy 1972, BCIR (continent ostomy)1994 PSC- dx in 1999 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2000 Report Share Posted June 22, 2000 In a message dated 6/22/00 7:21:38 PM Mountain Daylight Time, thegeorges@... writes: << I've been thinking about this for a while too. It would be good to have a FAQ (Frequently Asked Questions) for the group. We could have it on a website, and perhaps post it periodically here. If people would like to submit questions they'd like to see in a FAQ, I could keep track of them. I probably couldn't answer them all myself, but among all of us, I'm sure we could! >> I think this is a really good idea because many times I have a question and I know I read the answer some time ago and don't want to bore people with asking the same thing someone else did. This would also cut down on the volume of emails, I think since if we just had a question we could check the FAQ first and see if the answer is there! Go for it! Peggy McG PSC & UC - 1990 (I think I previously had put 1989 but just looked back at some records and saw it was a year later.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2000 Report Share Posted June 22, 2000 did a home page when she led the PSC'ers spin-off from the bigger autoimmune liver disease group. http://fly.to/pscs When the list grew bigger and moved to e-groups, another home page was built there. I can't offer the URL -- e-groups has decided I don't exist. Someone?? Pam (mom to Quantell, 10, dx 1996, on beeper for transplant) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2000 Report Share Posted June 22, 2000 I've been thinking about this for a while too. It would be good to have a FAQ (Frequently Asked Questions) for the group. We could have it on a website, and perhaps post it periodically here. If people would like to submit questions they'd like to see in a FAQ, I could keep track of them. I probably couldn't answer them all myself, but among all of us, I'm sure we could! Let me know what you think! athan Barbara Henshaw wrote: > > I was wondering if some one ( like Tim -- hint - hint ) could write > a message to all new comers. A sort of home page - telling them about > info web sites, child-pugh scores, what drugs most members are on, > (actigal/urso etc.) herbs we are trying (SAMe,milk thistle,etc.) I > know we have the database and members list.But seems an over view of > sorts would really help. What do you think? Barb > > ------------------------------------------------------------------------ > SALESFORCE.COM MAKES SOFTWARE OBSOLETE > Secure, online sales force automation with 5 users FREE for 1 year! > http://click./1/2658/11/_/24674/_/961686938/ > ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2000 Report Share Posted June 22, 2000 Barbara This is a great idea,as latest ongoings could be added too.And a links section to sites of interest could be added.Photos of gatherings and a write up on these events,would make the group more inviting Regards Alison Cheltenham England Home Page > I was wondering if some one ( like Tim -- hint - hint ) could write > a message to all new comers. A sort of home page - telling them about > info web sites, child-pugh scores, what drugs most members are on, > (actigal/urso etc.) herbs we are trying (SAMe,milk thistle,etc.) I > know we have the database and members list.But seems an over view of > sorts would really help. What do you think? Barb > > > ------------------------------------------------------------------------ > SALESFORCE.COM MAKES SOFTWARE OBSOLETE > Secure, online sales force automation with 5 users FREE for 1 year! > http://click./1/2658/11/_/24674/_/961686938/ > ------------------------------------------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2000 Report Share Posted June 22, 2000 There are many gifted members on this list. My talents don't lie in outlining and organizing what should be included on a web page or FAQ. I'll let someone else lead that effort. I thank you for the complement Barb, but I certainly don't have any exclusive knowledge. I've been happy to see others sharing their knowledge too. Tim --- Nordgren1@... wrote: > Barb, > That is a great idea. Would one of you gifted members be > willing to do this? __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2000 Report Share Posted June 23, 2000 Who should we submit questions to? Barby married 20 years, mom of 5 sons- KS UC - dx in 1965 (11yo), ostomy 1972, BCIR (continent ostomy)1994 PSC- dx in 1999 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2000 Report Share Posted June 23, 2000 athan, I wasn't talking about a new web site. There are so many out there now. I was just thinking about a page people could read as they ponder if they want to join this group. Just info about members, health habits, drugs, etc. and I really liked Alison's ideas about posting gatherings, pictures of members, their gardens, pets etc. As far as Q & A goes thats a great place to put Tim's article about Child - Pugh scores etc. Tim seems to have a knack for explaining. Aubrey can answer anything ! Some one here must have computor knowledge to set this up. If pictures are too much to down load than just 1 page would do. The data base just doesn't get it, too cut and dry. Barb Quote Link to comment Share on other sites More sharing options...
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