New, saying hello

[Guest guest]

Hello. My name is . I have been reading the posts and I am really

impressed with the support given here. Pain is my least favorite subject.

I have RSD from a left foot crush injury I sustained in 2000. It has

since spread from my left leg to my right leg. (the nerve of those nerves!).

I currently get lumbar sympathetic blocks on the left. I was wondering if

anyone with RSD has experienced dime to quarter size soft lumps all up and down

an affected extremity. They are painful to push on or bump. Varicose veins

were ruled out by a vascular surgeon. Any input would be appreciated.

I take several meds, all by trial and error. I get lumbar

sympathetic blocks, only two a year now. I have felt like a guinea pig at

times.

I am a trying to go to school for computers but I am doing not so

well. My memory is not good. Funny thing is, I went through college for my

RN and was working in critical care for years before my accident. Sometimes I

can't even remember if I took my meds or not. Thank goodness for pill boxes. If

I can be of help to anyone feel free. Thank you for listening.

[Guest guest]

Hi

Welcome to the group. I was an RN too. Your pain reminds me of Fibromyalgia,

although I don't have any actual lumps.

It's certainly easier to be the nurse than the patient, isn't it? I have

arthritis in all my joints, and neuropathy pain in my upper legs from the

tourniquets used during bilateral knee replacment in 2001. I have anxiety

and bipolar disorder too.

What do you take for your pain? I take Neuronton, Lamictal, Tegretol,

Seroquel, Ibuprophen, Lortabs, and Klonopin. Gentle exercise in the local

hot springs helps too. We weren't able to afford to join again this fall,

but hope to rejoin in a few months.

Kaylene

Moderator

>

>Hello. My name is . I have been reading the posts and I am really

>impressed with the support given here. Pain is my least favorite subject.

[Guest guest]

Dear :

I have just recently been diagnosed (I consider a few months recent) with

lumber degenerative disc disease and RSD. Right now I am receiving Caudal

Sympathetic steroid injections, third one tomorrow afternoon. The first one gave

me 4 great days, the second one, did very little at all and I had NO good days,

and the next one, well, we'll see what happens.

I take Nortyptiline, Lyrica, and tramadol currently and we just upped the

dose on all of them as they were no longer working as well. The shakes in my

hands is the worse - the more I try to control it, the worse it gets so I cope

(kinda).

I am having a difficult time with sounds, crowds, and congested areas

where there is noise. I call it " Static Pain " because it shoots through me like

static. It's hard for me to grasp the idea that sounds create such an

excruciating pain that starts in my lower back and spreads through my whole

body. Remove the noise, the pain dissipates. (How can my back Hear that? LOL?)

They are considering Neurontin, but are hoping that the upped dosages

will help - I hope so. I totally understand the memory stuff too. I have such a

hard time even completing a story sometimes. I lose things, I can't recall

things, and I have to write everything down and hope I remember where I put it

when the time is right! Before this condition took over my life I was organized,

productive and an overachiever in matters of memory, now I can't remember my

phone number on a bad day.

I was the person everyone came to when they needed something, I ran my

home, it was always clean and neat. There were always clean clothes in the

drawers and my husband always had dinner about ready when he got home. None of

those things happen anymore. It sucks I know.

BUT, I am alive, I can still get around (with the use of crutches) and

everyone else will just have to understand that there are alot of things I just

can't do anymore. If they don't want to understand, they can stay away (and

since I have become " incapacitated, they have). I will be thankful for the good

and average days and I will find a way to endure the bad days, because there

will be another good or average day again soon.

I am curious though, how long was it before your RSD spread to the other

leg? What symptoms do you have? There are so many variations it seems,I hope you

don't mind my asking!

Keep your chin up and look towards the good days and continue reading

here, there are a ton of really nice and concerned (and educated/experienced)

people willing to listen and help. I hope you find an answer to your " bumps " , I

wish I had more information on that for you.

" Ever searching for that pain free day......Together "

Sincerely,

~Tammy