Update

[Guest guest]

Wow, I'm impressed! It took that long for my recovery from colon removal.

I guess I figured transplants were going to be even worse than that. I guess

I better stop figuring....

Tomorrow will be 8 weeks from tx for me. I just thought I'd let the

group know I am doing just fine.

[Guest guest]

-That's great . Do you have any midwestern food cravings now

that you have a liver from out there?

Gracie

[Guest guest]

No, but I do want to drink a lot of milk....and Handi loves milk!

Gracie and Ed Reynolds wrote:

> -That's great . Do you have any midwestern food cravings now

> that you have a liver from out there?

>

> Gracie

>

>

[Guest guest]

,

Congratulations on the 8 weeks. It must have been a crazy roller coaster ride

the last couple of weeks. I am so happy for you.

I hope the nerve things clears up soon. After going thru the transplant the

last thing you need is a pinched nerve.

I hope Handi is feeling ok as well. You have a very special friend there. God

has blessed you.

Take care, Larry

[Guest guest]

Well after a weird episode that I experienced this past weekend.

Finally, figured out what caused me to black out and have an anxiety

attack.

I'd forgotten that I began taking a new cholesterol medication

called Vytorin recently. Because of the fatigue and lack of appetite

I had a reaction to it.

My mind hasn't been too sharp and my sleep schedule is messed up due

to my fatigue syndrome after long bouts of pain. I've got to set an

alarm to get me up, no matter how little sleep I've had, and eat a

proper breakfast then take my medications. The rest of the day I can

play by ear.

Plus, I didn't realize I also have a viral infection which may be

the cause of the lack of appetite. I seem to get this unaccounted

viral infection approx. every three to four months. It may have

something to do with my Lupus which is an autoimmune disease.

Unfortunately, I am allergic to most anti-biotics and immune to

pennicilin so it's hard to find the right anti-biotic to treat this

with. But, the best thing my doctors have found to treat this virus

is to let it run it's course. I'm usually fine after a few weeks of

rest and eating lightly.

I want to thank those who posted concerned emails. It helps to know

there are people who care and that is the best medicine in the world!

J.

[Guest guest]

I will NEVER put Zane on Miralax again. He has been off it a week after being on it for 5 years. A friend's post about the Cleveland Clinic and their recommendation to use MOM gave me the confidence to switch. Zane has been a DREAM since we have taken him off the MIralax. I can't even believe the difference. I don't know if it is because he is having a BM everyday or if the Miralax is leaving his body. Zane also hasn't had any pee or poop accidents. We saw Zane's GI at Hopkins this week and I gave her all this stuff on the FDA website where GIs from NIH say that they DO NOT recommend Miralax for pediatric patients especially those who suffer from chronic constipation. Zane's doctor didn't say anything, she just asked what I was using instead. Isn't that strange? She didn't defend it or anything. I am sick to my stomach that they (Phoenixs Children) put him on it when he was 1 1/2. It is almost criminal that a lot of our kids are on this, when many GIs are against it. Thank goodness my friend posted about MOM in another Yahoo group or I would have never thought there was an alternative. I am so glad I have found this group as well!!! I have been giving Zane fresh lemonade as well which he loves! Joanna

[Guest guest]

Joanna, smart Physicians will offer other alternatives before they loose a patient to another GI specialist ☺................glad to hear your child is doing better!There's a good reason they don't recommend for constipation and here's the answer why...................It's because if this medication isn't defecated immediately, it keeps pulling water / salt from the body including the brain which is called hyponatremia, double check with them to see if I'm right! It will also penetrate the gut mucosa and becomes absorbed into the blood stream. It clearly states, "for occasional constipation" Never should be given with a bowel obstruction. Would anyone be willing to ask their Physician's why the instructions state not to give if a bowel obstruction just to see what they say? Ask why the instructions state this? I'm curious why they don't recommend for pediatric patients...............they know something?????!!!!! Ask them next time and get back to us................thanksTo: miralax Sent: Sat, June 25, 2011 9:18:20 PMSubject: Update

I will NEVER put Zane on Miralax again. He has been off it a week after being on it for 5 years. A friend's post about the Cleveland Clinic and their recommendation to use MOM gave me the confidence to switch. Zane has been a DREAM since we have taken him off the MIralax. I can't even believe the difference. I don't know if it is because he is having a BM everyday or if the Miralax is leaving his body. Zane also hasn't had any pee or poop accidents. We saw Zane's GI at Hopkins this week and I gave her all this stuff on the FDA website where GIs from NIH say that they DO NOT recommend Miralax for pediatric patients especially those who

suffer from chronic constipation. Zane's doctor didn't say anything, she just asked what I was using instead. Isn't that strange? She didn't defend it or anything. I am sick to my stomach that they (Phoenixs Children) put him on it when he was 1 1/2. It is almost criminal that a lot of our kids are on this, when many GIs are against it. Thank goodness my friend posted about MOM in another Yahoo group or I would have never thought there was an alternative. I am so glad I have found this group as well!!! I have been giving Zane fresh lemonade as well which he loves! Joanna