Guest guest Posted April 11, 2000 Report Share Posted April 11, 2000 Laurie, I think we all can relate to the good days and bad days. Hang in there and have faith. Jodi From: Oceandrmer@... Reply-To: egroups To: egroups Subject: Re: Beeper Status Also Date: Tue, 11 Apr 2000 07:59:41 EDT Peg-- Yes, there is a fine line there. Being listed means being transplanted sooner or later and it is a nerve-wracking experience at times to be listed, on the pager and not know when. Some days I can breeze right through it, no problem. Others, no. This is one of the " other " days. Steve wants me to stay home from work today, but I'll go in and see. Maybe I'll take the day off tomorrow - our 25th anniv. I think there are times maybe a person needs a little time for themselves and an emotional " time out " to get things back in perspective. You two take care. You're in my thoughts & prayers. Laurie ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 Hi Laurie, Haven't heard from you for awhile, is everything okay? Hope to hear that you are okay before I go away on our trip. Peg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2000 Report Share Posted June 23, 2000 Thanks, Aubrey. Makes sense to me. I sure didn't want chemo anyway. Laurie Laurie > Without a site to aim at or confirmation that the cancer has indeed > spread somewhere, your doctors would be poisoning you without cause. A > very bad thing to do. Anticancer drugs are some of the strongest poisons > known to man. We won't use them if we can aim at something. It really > doesn't make sense to treat someone and make them very sick if we are > not sure there is cancer there to treat. > Hang in there. Hopefully it's gone for good. > Aubrey > > ------------------------------------------------------------------------ > Looking for SUPPORT on lowering Long Distance bills? Join beMANY! > Our huge buying group gives you Long Distance rates which fall > monthly, plus an extra $60 in FREE calls! > http://click./1/4830/8/_/24674/_/960770895/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2000 Report Share Posted July 25, 2000 Aubrey-- Thanks for the response and info. I can't imagine going on like this for 6 mos w/o getting a new prescrip - but then again, if it changes, it would be all for naught. I'm trying to work 3 hrs a day (computer and close work), which doesn't help. It's pretty frustrating. I have a feeling they may be changing my anti-rej med. I have to go back to Omaha again tomorrow(was just there last Tues.) to follow-up on " fluid overload " as they put it. They found fluid in my right lung - the same one that collapsed after surgery. He put me on Lasix, which they were wondering if it was causing some of my eye problems. He took me off the Dilantin (I had seizures when in hosp. due to the high dose of Solumedrol (sp?) they give everyone on the 5th day of tx. Never had seizures before in my life - what an experience! Also took me off Acyclovir and Bactrim. He said I may have to stay in Omaha for a few days when I go tomorrow. Will have to wait & see I guess. I think he may change my Neoral to FK506 because I'm still have med reaction problems even though he took me off those other meds. They increased Neoral to 600 from 500 Sun night and Monday a.m. 2 hrs after my Neoral my neck, chest got all red, my inner arms rashy. It didn't last real long, but was uncomfortable. Same thing happened yesterday a.m. The cyclo level just can't seem to be adjusted--always changing my Neoral dosage. Sorry for the long reply. Thanks for all your help, Aubrey. I am praying for you nightly. Hope you are doing well. Laurie Laurie > For the first six months, when you dosage of prednisone is relatively > greater than later on, your vision can be a problem. My tx centre > suggested I not get my eyes assessed prior to this six month period. In > addition, prednisone and some of the other immunosuppressants can cause > elevated blood sugars and frank diabetes, which can also adversely > affect your vision. > If your numbers (blood sugars, weight) are reasonable and your dosages > of steroids and other immununosuppressants are reduced (and the blood > levels are good) I would suggest you see your eye specialist. Steroids > can also cause cataracts over the long term. > If you have UC/Crohn's you're also at risk for iritis and uveitis which > can affect your vision. A red eye may be a sign of these conditions. > Hope you get this straightened up. > > Aubrey > > ------------------------------------------------------------------------ > Free, Unlimited Calls Anywhere! > Conference in the whole family on the same call. > Let the fights begin! Visit Firetalk.com - Click below. > http://click./1/5476/11/_/24674/_/964547787/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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