Chiari/Decompression Question

[Guest guest]

Hey guys-

For those of you who have children with chiari problems and who've had

(or need) a decompression, what is the level of the SB lesion? We've

been told that it is kind of unusual to have Chiari problems when the

level is L2-L3. Any comments?

Also, has anyone see Dr. Mapstone (I think) at Emory/Eggleston (not sure

which it is) in Atlanta?? Your experience positive or negative?

I would appreciate any input as we believe that a Chiari decompression

may be the key to 's hand/neck problems. Thanks....

, wife to Jeff 9 yrs, mom to , 4 yrs, SB (L2), VP shunt (no more

as of 10-7-03), dysgenesis of corpus callosum, tethered cord, syrinx,

neurogenic bladder, kidney reflux-cath 5+X/day, and now, apparently

seizures, too....wheels, RGO's

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