Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 Marita wrote: |few, off the top of my head I know that he's allergic to Oxycontin and |Hydrocodone. Vicodin (sp?) kinda works, but gives him a headache, which he |seems to be getting quite a few of those lately. None of the narcotics seem |to do the trick, so all he takes is Advil and Naproxen (not at the same |time). Hi Marita, My name is or Tink(nickname) whatever you prefer ;-) My nationality is Dutch and we also moved to the US, we live in Oregon. Vicodin or Hydrocodone also gives me headaches, for me it's a sign I need to switch meds for a day or 2. It's a well known side effect and they call it rebounce headaches. When I switch meds for a day or 2 it goes away and I will than alter between Vicodin and/or another med. I start again by taking half of a vicodin. Did you husband tried Duragesic patches? I found they give less side effects and no headaches. -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2005 Report Share Posted December 26, 2005 Hi Tink, >> My name is or Tink(nickname) whatever you prefer ;-) My > nationality is Dutch and we also moved to the US, we live in Oregon.<< We moved to Oregon for one year because hubby's family lives there, but it was a disaster, so we came back to Montana. We love it here and will stay for the rest of our lives. We lived in Coquille, in-laws live in Coos Bay. Where do you live? >> Vicodin or Hydrocodone also gives me headaches, for me it's a sign I > need to switch meds for a day or 2. It's a well known side effect and > they call it rebounce headaches. << Unfortunately he gets the headaches after taking the first dose...:-( >> Did you husband tried Duragesic patches? I found they give > less side effects and no headaches. << No, he hasn't tried any patches, yet, but he hasn't talked to a doctor about pain management since he's been *kind of* diagnosed. I think our first step will have to be to get a referral to a rheumatologist so he can get a firm diagnosis, if there IS such a thing. Isn't there anybody on here who got a disability rating for fibro from the VA? Marita & Mark Superior, MT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 Hi ,If the bladder issues are being caused by nerve problems that feed the bladder, then it could be a host of reasons why the nerves are affected. Lyme is certainly one of them, but not the only possibility. You haven't mentioned that has any other symptoms that are associated with Lyme, so I encourage you to keep an open mind as to all possibilities. Has seen a chiropractor or a similar practitioner? I have seen it too many times when a good chiropractor (and yes, there are good ones and bad ones) has been able to pick up spinal and nerve issues that X-rays, CT scans and MRIs and umpteen specialists have not been able to show. When I was 18, I was active playing a few different sports, working and at college. I sustained an injury on my spine that stopped all sport activity overnight and severely hampered my quality of life. For two years I suffered, with virtually no improvement. It was then suggested to me to see a practitioner who was a sports chiropractor. He examined me and straight away told me what my problem was, explained to me what all my symptoms would had been (he was spot on) and proceeded to adjust my spine. Two more visits over the next fortnight and I was 80% better and starting to become active again. It took a few months before I was 100%, but I knew the problem had been found and fixed.Now, 28 years later, I have Lyme and I am certain it is causing inflammation in my neck. Now I see a chiro who practices a real gentle method of adjustment (called NIP protocol). She adjusts my neck where the Lyme is and gives me great relief. The lyme bacteria will cause inflammation and pain. The muscles will then respond to that pain (spasm, stress, etc.) and pull the vertebrae out of alignment. I get great relief with this treatment.I hope that you get to the bottom of the problem soon.-n Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 n, Thanks for your reply. Over the past year has seen 11 doctors, 2 acupuncturists, 1 live blood analysis, 4 chiropractors. My brother and sil are chiropractors. My brother is an Atlas Orthogonal Chiropractor, but he is in NYC, so too far. We have been traveling to Springfield, VA to a wonderful Atlas Ortho Chiro. He was the one that wanted the bone scan because he felt they were missing something. He also found to have a severely contracted iliopsoas muscle. The reason I considered Lyme when I heard that is because it is one of the deepest muscles in the abdomen. has been to PT three separate times and does not seem to progress concerning the back pain. does have anxiety, but it is comes when the back/bladder pressure is greater. I know anxiety is associated with urinary issues themselves. Doc is getting him into adjustment, but goes right back to the *normal* for him after about 1/2 an hour...same with PT. The PT explained it as *his body lacking memory* as to holding his PT exercises. I agree that a good chiro is so important, and I love (besides my brother) this other chiro in Springfield. He genuinely cares for too, which makes a difference. Lyme is always at the back of my mind with because I know how many different masks it can wear. It is very puzzling, but thank you so much for your input, and I am decided that if this bone scan comes back negative that I will start the salt/C at the end of the week after his follow up visit. > > Hi , > > If the bladder issues are being caused by nerve problems that feed the bladder, then it could be a host of reasons why the nerves are affected. Lyme is certainly one of them, but not the only possibility. You haven't mentioned that has any other symptoms that are associated with Lyme, so I encourage you to keep an open mind as to all possibilities. > > Has seen a chiropractor or a similar practitioner? I have seen it too many times when a good chiropractor (and yes, there are good ones and bad ones) has been able to pick up spinal and nerve issues that X-rays, CT scans and MRIs and umpteen specialists have not been able to show. > > When I was 18, I was active playing a few different sports, working and at college. I sustained an injury on my spine that stopped all sport activity overnight and severely hampered my quality of life. For two years I suffered, with virtually no improvement. It was then suggested to me to see a practitioner who was a sports chiropractor. He examined me and straight away told me what my problem was, explained to me what all my symptoms would had been (he was spot on) and proceeded to adjust my spine. Two more visits over the next fortnight and I was 80% better and starting to become active again. It took a few months before I was 100%, but I knew the problem had been found and fixed. > > Now, 28 years later, I have Lyme and I am certain it is causing inflammation in my neck. Now I see a chiro who practices a real gentle method of adjustment (called NIP protocol). She adjusts my neck where the Lyme is and gives me great relief. The lyme bacteria will cause inflammation and pain. The muscles will then respond to that pain (spasm, stress, etc.) and pull the vertebrae out of alignment. I get great relief with this treatment. > > I hope that you get to the bottom of the problem soon. > > -n > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 Lena, Thank you for the kind and encouraging words! Y'all have been so helpful on the list already! I am trying to find a way to afford a rife (is that the same as coil?) machine, but will start the salt/c after follow up on Friday. I did start on MMS, but he did not like the taste and didn't want to take it anymore. Wow! You have had Lyme for so long, you poor thing. I am happy for you that you are finally starting to recover. I will surely refer to the link you gave me for s & c, thank you! I will keep you posted on the results > > > > > > Hello, > > > My son has had Lyme since summer of 1999. We did not choose the > antibiotic route, but instead went with homeopathy first and proceeded > from there to other alternative treatments. He did not have any > initial symptoms, other than the bullseye. He was symptom free for 10 > years, having his blood checked every year and a half. He was hit in > the back in 2009 during a soccer game, and since then he has not > recovered from the back injury and suffers from urinary pressure. We > saw 9 doctors last year to rule out the obvious and serious. Each test > comes back negative and I go back and forth that it could be the Lyme > settling in his back. The only strange issue is that the vertebra in > question is the L3 which corresponds to the bladder. He does have a > bone scan on Monday to rule out an occult fracture. His pain is very > localized to the L3. > > > I did take him for a live blood analysis and his bacterial load > was light. But, I am wondering how accurate it is in diagnosing the > bacterial load. > > > I have also done a month on HP 35% and do have a HC Zapper, but > have not used it faithfully. Does anyone have any success with that? > If so, what protocol did you follow? > > > I just have watched my son turn from this healthy *normal* > teenager into an old man. The urinary pressure is what bothers him > most...he has been such a brave child over the course of this all. > > > When the neurosurgeon called and said the MRI was clean, my son > just sat and cried...he wanted it to be something they could just fix. > > > I was briefly reading about some of your posts about back surgery. > > > What issues have some of you faced regarding back pain? > > > Is it all connected to the Lyme? After the bone scan I am going > to start the salt/C, but am not well versed on it. > > > Thanks for having me in the group. > > > mary > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 That's good . I think you are doing well. Don't give up, you'll get there. Just something to put in the back of your mind for now. The NIP protocol I mentioned, is a adjustment method that was developed specifically to adjust infants and young children. But it has shown to be very effective on adults as well. For years I had "standard" type chiro adjustments, but was forced to this NIP method when I became too ill. Now that I have experienced the benefit of NIP, if I ever manage to get well again from Lyme, I will still stick with NIP and not go back to normal chiro methods. When a person has a spinal misalignment, a standard chiro adjustment will force it back in to place. However, the muscles that are supposed to hold it in that place have been stressed prior and possibly as well as with the adjustment process. So it is common that after a person is adjusted, that after a while, the stressed muscle will once again cause the misalignment.The NIP method is different in that instead of the chiro forcing the alignment and hoping the muscles will follow, the chiro actually adjusts (triggers) the muscle itself. In doing so, the stress that is on that muscle that is causing it to remain in a contracted state, is released, allowing the spine to return to it's normal position of it's own accord. But as the muscle has been "released" or "reset", it is in a far better position to remain as such.As an example, I had some painful bladder issues back in Jan this year. Did all the normal doctors things and scans, but they could find noting wrong. Went to my chiro and she picked up that a tendon coming from the bladder down into the pubic area was stressed to the max. She released that muscle and shortly after, all the pain was gone. I don't know if this is something that could be applicable to the iliopsoas muscle or not, but as I said, it might be worth putting that in than back of your mind. I don't know where you live specifically, but here are two NIP practitioners that may be in reach of you if you decide it's worth pursuing; Dr Bradley Ennis Ennis Chirorpactic Centre 444 East College Ave, Suite 140 State College Pennsylvania, 16801 Dr Russel Sher Asheville Center for Health Excellence 188 Charlotte Street, Suite One Asheville, NC 28803 (828) 253-1727Regards,-nSubject: Re: introductionTo: Lyme_and_Rife Received: Monday, 11 April, 2011, 10:41 AM n, Thanks for your reply. Over the past year has seen 11 doctors, 2 acupuncturists, 1 live blood analysis, 4 chiropractors. My brother and sil are chiropractors. My brother is an Atlas Orthogonal Chiropractor, but he is in NYC, so too far. We have been traveling to Springfield, VA to a wonderful Atlas Ortho Chiro. He was the one that wanted the bone scan because he felt they were missing something. He also found to have a severely contracted iliopsoas muscle. The reason I considered Lyme when I heard that is because it is one of the deepest muscles in the abdomen. has been to PT three separate times and does not seem to progress concerning the back pain. does have anxiety, but it is comes when the back/bladder pressure is greater. I know anxiety is associated with urinary issues themselves. Doc is getting him into adjustment, but goes right back to the *normal* for him after about 1/2 an hour...same with PT. The PT explained it as *his body lacking memory* as to holding his PT exercises. I agree that a good chiro is so important, and I love (besides my brother) this other chiro in Springfield. He genuinely cares for too, which makes a difference. Lyme is always at the back of my mind with because I know how many different masks it can wear. It is very puzzling, but thank you so much for your input, and I am decided that if this bone scan comes back negative that I will start the salt/C at the end of the week after his follow up visit. > > Hi , > > If the bladder issues are being caused by nerve problems that feed the bladder, then it could be a host of reasons why the nerves are affected. Lyme is certainly one of them, but not the only possibility. You haven't mentioned that has any other symptoms that are associated with Lyme, so I encourage you to keep an open mind as to all possibilities. > > Has seen a chiropractor or a similar practitioner? I have seen it too many times when a good chiropractor (and yes, there are good ones and bad ones) has been able to pick up spinal and nerve issues that X-rays, CT scans and MRIs and umpteen specialists have not been able to show. > > When I was 18, I was active playing a few different sports, working and at college. I sustained an injury on my spine that stopped all sport activity overnight and severely hampered my quality of life. For two years I suffered, with virtually no improvement. It was then suggested to me to see a practitioner who was a sports chiropractor. He examined me and straight away told me what my problem was, explained to me what all my symptoms would had been (he was spot on) and proceeded to adjust my spine. Two more visits over the next fortnight and I was 80% better and starting to become active again. It took a few months before I was 100%, but I knew the problem had been found and fixed. > > Now, 28 years later, I have Lyme and I am certain it is causing inflammation in my neck. Now I see a chiro who practices a real gentle method of adjustment (called NIP protocol). She adjusts my neck where the Lyme is and gives me great relief. The lyme bacteria will cause inflammation and pain. The muscles will then respond to that pain (spasm, stress, etc.) and pull the vertebrae out of alignment. I get great relief with this treatment. > > I hope that you get to the bottom of the problem soon. > > -n > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 , You may want to ask him to consider S/C again. Start with a less amount so there isn't much taste. If he likes lemon, add some lemon juice to the water. You could even add a few drops of Stevia to sweeten. Gatoraide is salty, but the young men drink it. (It also has lots of sugar and coloring). You can slowly ramp up and he'll get used to the taste. As far as bladder goes, I'm not sure with men. I just know that when Lyme (or one of the co-infections) hit the area of my body that effects hormones (pituitary gland, adrenal glands, ovaries, etc), my hormones tanked. All of them. Amongst other things, I went from complete control, to almost wetting my pants overnight. Not fun. At the time I chose to go on bio-identical hormones and the problem went away quickly. I am off the hormones now, and my own hormones are just towing the line. However, I do have a lot of bladder pain, pressure and discomfort - at a low level. If it gets any worse I will go back on the hormones, but for now it is one less med I'm on and saving some $$$ for other stuff. Oh, that makes me think. There are treatments that really bother my bladder. You will read about GSE (grapefruit seed extract). Great protocol. I cannot tolerate one drop or my bladder burns. Also, s/c IF I use the wrong C. The only C my bladder will tolerate is buffered sodium ascorbate. (I use a very clean product by Nutribiotic. No fillers, no GMO's, powdered.) I really recommend learning from our group and the other group that someone mentioned above. (The other group does not rife/coil, but they are brilliant, might be a little overwhelming medically for some people.) Set up your email files now with good folders. Things such as " S/C, Detox, Magnesium, Frequencies, Lyme, Bartonella " and then just add as necessary. Best, Lena, Thank you for the kind and encouraging words! Y'all have been so helpful on the list already! I am trying to find a way to afford a rife (is that the same as coil?) machine, but will start the salt/c after follow up on Friday. I did start on MMS, but he did not like the taste and didn't want to take it anymore. Wow! You have had Lyme for so long, you poor thing. I am happy for you that you are finally starting to recover. I will surely refer to the link you gave me for s & c, thank you! I will keep you posted on the results > > > > > > Hello, > > > My son has had Lyme since summer of 1999. We did not choose the > antibiotic route, but instead went with homeopathy first and proceeded > from there to other alternative treatments. He did not have any > initial symptoms, other than the bullseye. He was symptom free for 10 > years, having his blood checked every year and a half. He was hit in > the back in 2009 during a soccer game, and since then he has not > recovered from the back injury and suffers from urinary pressure. We > saw 9 doctors last year to rule out the obvious and serious. Each test > comes back negative and I go back and forth that it could be the Lyme > settling in his back. The only strange issue is that the vertebra in > question is the L3 which corresponds to the bladder. He does have a > bone scan on Monday to rule out an occult fracture. His pain is very > localized to the L3. > > > I did take him for a live blood analysis and his bacterial load > was light. But, I am wondering how accurate it is in diagnosing the > bacterial load. > > > I have also done a month on HP 35% and do have a HC Zapper, but > have not used it faithfully. Does anyone have any success with that? > If so, what protocol did you follow? > > > I just have watched my son turn from this healthy *normal* > teenager into an old man. The urinary pressure is what bothers him > most...he has been such a brave child over the course of this all. > > > When the neurosurgeon called and said the MRI was clean, my son > just sat and cried...he wanted it to be something they could just fix. > > > I was briefly reading about some of your posts about back surgery. > > > What issues have some of you faced regarding back pain? > > > Is it all connected to the Lyme? After the bone scan I am going > to start the salt/C, but am not well versed on it. > > > Thanks for having me in the group. > > > mary > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 Hi , I am so sorry for your son's suffering. I have been in the Lyme and Rife group for about 6 years and have used many different instruments including a zapper. The zapper was fine for parasites while combined with herbs, but not effective against Lyme. Lyme needs very specific frequemncies and a machine that has a much higher watt output then a zapper. I also noticed after using the Hulda Zapper, that I had a big Candida overgrowth problem. I think the zapper uses a range of frequencies that does not screen out the frequencies that would kill the good flora. After having problems with a Zapper, I got a small unit called a LifeForce 2000. This unit screened out the frequencies that would kill the good flora and was much better, but not strong enough to eradicate Lyme. If you are interested in Rife technology, I would recommend the coil machine. Lyme was totally eradicated in me with the Coil in about a year and a half. > > Hello, > My son has had Lyme since summer of 1999. We did not choose the antibiotic route, but instead went with homeopathy first and proceeded from there to other alternative treatments. He did not have any initial symptoms, other than the bullseye. He was symptom free for 10 years, having his blood checked every year and a half. He was hit in the back in 2009 during a soccer game, and since then he has not recovered from the back injury and suffers from urinary pressure. We saw 9 doctors last year to rule out the obvious and serious. Each test comes back negative and I go back and forth that it could be the Lyme settling in his back. The only strange issue is that the vertebra in question is the L3 which corresponds to the bladder. He does have a bone scan on Monday to rule out an occult fracture. His pain is very localized to the L3. > I did take him for a live blood analysis and his bacterial load was light. But, I am wondering how accurate it is in diagnosing the bacterial load. > I have also done a month on HP 35% and do have a HC Zapper, but have not used it faithfully. Does anyone have any success with that? If so, what protocol did you follow? > I just have watched my son turn from this healthy *normal* teenager into an old man. The urinary pressure is what bothers him most...he has been such a brave child over the course of this all. > When the neurosurgeon called and said the MRI was clean, my son just sat and cried...he wanted it to be something they could just fix. > I was briefly reading about some of your posts about back surgery. > What issues have some of you faced regarding back pain? > Is it all connected to the Lyme? After the bone scan I am going to start the salt/C, but am not well versed on it. > Thanks for having me in the group. > mary > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 , How I wished I had joined this group sooner, I would not have bought the zapper! Thank you for your sympathies, and from what I am reading, many of you are getting much relief/cures from the coil machine. I am very excited at the thought of it helping Chris. Thank you, > > > > Hello, > > My son has had Lyme since summer of 1999. We did not choose the antibiotic route, but instead went with homeopathy first and proceeded from there to other alternative treatments. He did not have any initial symptoms, other than the bullseye. He was symptom free for 10 years, having his blood checked every year and a half. He was hit in the back in 2009 during a soccer game, and since then he has not recovered from the back injury and suffers from urinary pressure. We saw 9 doctors last year to rule out the obvious and serious. Each test comes back negative and I go back and forth that it could be the Lyme settling in his back. The only strange issue is that the vertebra in question is the L3 which corresponds to the bladder. He does have a bone scan on Monday to rule out an occult fracture. His pain is very localized to the L3. > > I did take him for a live blood analysis and his bacterial load was light. But, I am wondering how accurate it is in diagnosing the bacterial load. > > I have also done a month on HP 35% and do have a HC Zapper, but have not used it faithfully. Does anyone have any success with that? If so, what protocol did you follow? > > I just have watched my son turn from this healthy *normal* teenager into an old man. The urinary pressure is what bothers him most...he has been such a brave child over the course of this all. > > When the neurosurgeon called and said the MRI was clean, my son just sat and cried...he wanted it to be something they could just fix. > > I was briefly reading about some of your posts about back surgery. > > What issues have some of you faced regarding back pain? > > Is it all connected to the Lyme? After the bone scan I am going to start the salt/C, but am not well versed on it. > > Thanks for having me in the group. > > mary > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 Susie, Thank you. does not have autism, do you think it would still be appropriate for me to join? mary > > > > > > > > Hello, > > > > My son has had Lyme since summer of 1999. We did not choose the > > antibiotic route, but instead went with homeopathy first and > > proceeded from there to other alternative treatments. He did not > > have any initial symptoms, other than the bullseye. He was symptom > > free for 10 years, having his blood checked every year and a half. > > He was hit in the back in 2009 during a soccer game, and since then > > he has not recovered from the back injury and suffers from urinary > > pressure. We saw 9 doctors last year to rule out the obvious and > > serious. Each test comes back negative and I go back and forth that > > it could be the Lyme settling in his back. The only strange issue > > is that the vertebra in question is the L3 which corresponds to the > > bladder. He does have a bone scan on Monday to rule out an occult > > fracture. His pain is very localized to the L3. > > > > I did take him for a live blood analysis and his bacterial load > > was light. But, I am wondering how accurate it is in diagnosing the > > bacterial load. > > > > I have also done a month on HP 35% and do have a HC Zapper, but > > have not used it faithfully. Does anyone have any success with > > that? If so, what protocol did you follow? > > > > I just have watched my son turn from this healthy *normal* > > teenager into an old man. The urinary pressure is what bothers him > > most...he has been such a brave child over the course of this all. > > > > When the neurosurgeon called and said the MRI was clean, my son > > just sat and cried...he wanted it to be something they could just fix. > > > > I was briefly reading about some of your posts about back surgery. > > > > What issues have some of you faced regarding back pain? > > > > Is it all connected to the Lyme? After the bone scan I am going > > to start the salt/C, but am not well versed on it. > > > > Thanks for having me in the group. > > > > mary > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 n, Thank you for the encouragement. It has been a road filled with " am I choosing the right path for Chris? " I keep wondering if I had given him the antibiotics in the beginning, would this incident have happened? I think as a parent we doubt our choices. This method sounds great! I will ask his chiro about it. I wish they were closer, we are about 5 or 7 hours from each chiro. I thought we had a solution when we found his iliopsoas so contracted. Today he had his Bone scan and it was so painful for him to lie on the table for 2 hours, poor kid! But, he is so brave it amazes me! > > > > > > Hi , > > > > > > If the bladder issues are being caused by nerve problems that feed the bladder, then it could be a host of reasons why the nerves are affected. Lyme is certainly one of them, but not the only possibility.  You haven't mentioned that has any other symptoms that are associated with Lyme, so I encourage you to keep an open mind as to all possibilities. > > > > > > Has seen a chiropractor or a similar practitioner? I have seen it too many times when a good chiropractor (and yes, there are good ones and bad ones) has been able to pick up spinal and nerve issues that X-rays, CT scans and MRIs and umpteen specialists have not been able to show. > > > > > > When I was 18, I was active playing a few different sports, working and at college. I sustained an injury on my spine that stopped all sport activity overnight and severely hampered my quality of life. For two years I suffered, with virtually no improvement. It was then suggested to me to see a practitioner who was a sports chiropractor. He examined me and straight away told me what my problem was, explained to me what all my symptoms would had been (he was spot on) and proceeded to adjust my spine. Two more visits over the next fortnight and I was 80% better and starting to become active again. It took a few months before I was 100%, but I knew the problem had been found and fixed. > > > > > > Now, 28 years later, I have Lyme and I am certain it is causing inflammation in my neck. Now I see a chiro who practices a real gentle method of adjustment (called NIP protocol). She adjusts my neck where the Lyme is and gives me great relief. The lyme bacteria will cause inflammation and pain. The muscles will then respond to that pain (spasm, stress, etc.) and pull the vertebrae out of alignment. I get great relief with this treatment. > > > > > > I hope that you get to the bottom of the problem soon. > > > > > > -n > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 , When had a live blood analysis done, he did not show any Bart or babesia. did not like the taste of the MMS. I have not tried the salt/c yet. Can I make my own capsules filled with the sea salt? How do you all take the salt? What age do you all feel is safe to do salt/c? I use ester c powder. Can I also put that in capsules? I will check into the sodium ascorbate! Thanks, > > > > > > > > > > Hello, > > > > > My son has had Lyme since summer of 1999. We did not choose the > > > antibiotic route, but instead went with homeopathy first and proceeded > > > from there to other alternative treatments. He did not have any > > > initial symptoms, other than the bullseye. He was symptom free for 10 > > > years, having his blood checked every year and a half. He was hit in > > > the back in 2009 during a soccer game, and since then he has not > > > recovered from the back injury and suffers from urinary pressure. We > > > saw 9 doctors last year to rule out the obvious and serious. Each test > > > comes back negative and I go back and forth that it could be the Lyme > > > settling in his back. The only strange issue is that the vertebra in > > > question is the L3 which corresponds to the bladder. He does have a > > > bone scan on Monday to rule out an occult fracture. His pain is very > > > localized to the L3. > > > > > I did take him for a live blood analysis and his bacterial load > > > was light. But, I am wondering how accurate it is in diagnosing the > > > bacterial load. > > > > > I have also done a month on HP 35% and do have a HC Zapper, but > > > have not used it faithfully. Does anyone have any success with that? > > > If so, what protocol did you follow? > > > > > I just have watched my son turn from this healthy *normal* > > > teenager into an old man. The urinary pressure is what bothers him > > > most...he has been such a brave child over the course of this all. > > > > > When the neurosurgeon called and said the MRI was clean, my son > > > just sat and cried...he wanted it to be something they could just fix. > > > > > I was briefly reading about some of your posts about back surgery. > > > > > What issues have some of you faced regarding back pain? > > > > > Is it all connected to the Lyme? After the bone scan I am going > > > to start the salt/C, but am not well versed on it. > > > > > Thanks for having me in the group. > > > > > mary > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2011 Report Share Posted April 12, 2011 hi mary, yes! because their kids are so sensitive and have so many different needs they have scoped the territory out incredibly. some are using yasko's approach to getting methylation pathways open, some see dr k in seattle, lots of different approaches. they are very savvy about gut bacteria, chronic strep, all kinds of things. there are people who don't have a child with autism who post there. and of course stay with us as well!xosusie Susie, Thank you. does not have autism, do you think it would still be appropriate for me to join? mary > > mary, welcome. there is another group, it is moms of children with > lyme induced autism and they are very compassionate and generous and > smart. they are talking about the vagus nerve right now and urinary > problems....perhpas you could jump over there and ask. > > BorreliaMultipleInfectionsAndAutism . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2011 Report Share Posted April 12, 2011 Hi ,I make all my own Himalayan salt capsules, and though I use C tablets, I make lots of other bulk powders into capsules and save a lot of money that way. I started with a Cap 'm' Quik capsule maker and though it made 50 at a time, it was awkward and tedious compared to the one I have now: The Capsule Machine. www.CapsuleConnection.com. It only makes 24 caps at a time, but is SO well designed and easy to use that it actually makes caps faster! Twice now, I've made 1000 salt caps at a sitting, watching an old movie (or rather mostly listening). I find that getting two-color caps makes things go even faster, but they're a bit more expensive and the whole dye thing troubles me a bit.Hope this helps.Be well,Léna ,When had a live blood analysis done, he did not show any Bart or babesia. did not like the taste of the MMS. I have not tried the salt/c yet. Can I make my own capsules filled with the sea salt? How do you all take the salt? What age do you all feel is safe to do salt/c?I use ester c powder. Can I also put that in capsules?I will check into the sodium ascorbate! Thanks,> > > > >> > > > > Hello,> > > > > My son has had Lyme since summer of 1999. We did not choose the> > > antibiotic route, but instead went with homeopathy first and proceeded> > > from there to other alternative treatments. He did not have any> > > initial symptoms, other than the bullseye. He was symptom free for 10> > > years, having his blood checked every year and a half. He was hit in> > > the back in 2009 during a soccer game, and since then he has not> > > recovered from the back injury and suffers from urinary pressure. We> > > saw 9 doctors last year to rule out the obvious and serious. Each test> > > comes back negative and I go back and forth that it could be the Lyme> > > settling in his back. The only strange issue is that the vertebra in> > > question is the L3 which corresponds to the bladder. He does have a> > > bone scan on Monday to rule out an occult fracture. His pain is very> > > localized to the L3.> > > > > I did take him for a live blood analysis and his bacterial load> > > was light. But, I am wondering how accurate it is in diagnosing the> > > bacterial load.> > > > > I have also done a month on HP 35% and do have a HC Zapper, but> > > have not used it faithfully. Does anyone have any success with that?> > > If so, what protocol did you follow?> > > > > I just have watched my son turn from this healthy *normal*> > > teenager into an old man. The urinary pressure is what bothers him> > > most...he has been such a brave child over the course of this all.> > > > > When the neurosurgeon called and said the MRI was clean, my son> > > just sat and cried...he wanted it to be something they could just fix.> > > > > I was briefly reading about some of your posts about back surgery.> > > > > What issues have some of you faced regarding back pain?> > > > > Is it all connected to the Lyme? After the bone scan I am going> > > to start the salt/C, but am not well versed on it.> > > > > Thanks for having me in the group.> > > > > mary> > > > >> > > >> > >> >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2011 Report Share Posted April 12, 2011 Lena, Thanks for the link! > > > > > > > > > > > > Hello, > > > > > > My son has had Lyme since summer of 1999. We did not choose > the > > > > antibiotic route, but instead went with homeopathy first and > proceeded > > > > from there to other alternative treatments. He did not have any > > > > initial symptoms, other than the bullseye. He was symptom free > for 10 > > > > years, having his blood checked every year and a half. He was > hit in > > > > the back in 2009 during a soccer game, and since then he has not > > > > recovered from the back injury and suffers from urinary > pressure. We > > > > saw 9 doctors last year to rule out the obvious and serious. > Each test > > > > comes back negative and I go back and forth that it could be > the Lyme > > > > settling in his back. The only strange issue is that the > vertebra in > > > > question is the L3 which corresponds to the bladder. He does > have a > > > > bone scan on Monday to rule out an occult fracture. His pain is > very > > > > localized to the L3. > > > > > > I did take him for a live blood analysis and his bacterial > load > > > > was light. But, I am wondering how accurate it is in diagnosing > the > > > > bacterial load. > > > > > > I have also done a month on HP 35% and do have a HC Zapper, > but > > > > have not used it faithfully. Does anyone have any success with > that? > > > > If so, what protocol did you follow? > > > > > > I just have watched my son turn from this healthy *normal* > > > > teenager into an old man. The urinary pressure is what bothers > him > > > > most...he has been such a brave child over the course of this > all. > > > > > > When the neurosurgeon called and said the MRI was clean, my > son > > > > just sat and cried...he wanted it to be something they could > just fix. > > > > > > I was briefly reading about some of your posts about back > surgery. > > > > > > What issues have some of you faced regarding back pain? > > > > > > Is it all connected to the Lyme? After the bone scan I am > going > > > > to start the salt/C, but am not well versed on it. > > > > > > Thanks for having me in the group. > > > > > > mary > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2011 Report Share Posted April 14, 2011 Hello , Just read your post. Dct K has a method for pain that consit in injecting minut amount of procain in the skin very superficially before th efat really the first layer of the skin like 1/10 of a cc called neuraltherapy. May be a dct would know this technic in your area. the idea being that the nerves doe snot transmit very well info in an dpart of the body that have been traumatised and this reestablish a ggod communication throught the nerves to send the info to repaer properly and fully nuttur this area again. I di dit for my sweety at an ara he has been operated 5 time . each time there is an improvement of the scare and the flesh undeneith he doe snto have pain anymore after 3 tiem the pain was gone . I saw how to do as i had a consutation with dct K. Also I have been doing to a girl friend of mine the coil 727 ,787, 880 , 800 and the osteoporose just in case 2720. She had a car accident and was due to surgery because of a disk . we do also ozone cupping dct S told me that in 2 month it can heal a disk . She made much progress until the fift time where she gave up feeling better and having a busy life. It needs 2 month she will do it agian when she will have finished her school. I do not know if it would work for your son . Ozone helps well for lyme . Dct Clarck say that back pain is due to kidneys problems like small cristalls or silent infection and gives a natural kidney clenase for that . Di dnot try it . I had very bad pain in the past impossible to deal with . I went in Switzerland to get legally grown hemp oil and hamp leavesas i read the medical benefit on it and that it use to be a extraordianry medecine. othe rname is cannabis. I was in Fracne at this time so it was easy just take th etrain . no need for a prescription as it is the normal plant . In one week my pain desappeared close to completly then the rehab in th eseeming pool did the remaining( I had not move my arm for 3 month due to pain). Hoping you will find the solutions Marie To: Lyme_and_Rife Sent: Wed, April 13, 2011 4:13:48 PMSubject: Re: introduction Hi ,doesn't like the taste of MMS? :-) Neither do 99% of those using it!Instead of using MMS with water, any fruit juice that has NO Vit C or ascorbic acid ADDDED to it (excluding orange juice-Dont use) can be used with MMS... I found the best juice to use to mask the taste is prune juice... today I am used to the MMS taste and use distilled water with it...Do you have a copy of the scale up method of using MMS? If not, post and I will post it for you.. This is much better than the 2 - 3 dose daily we used to use.. Take care,Jim> > > >> > > > Hello,> > > > My son has had Lyme since summer of 1999. We did not choose the > > antibiotic route, but instead went with homeopathy first and proceeded > > from there to other alternative treatments. He did not have any > > initial symptoms, other than the bullseye. He was symptom free for 10 > > years, having his blood checked every year and a half. He was hit in > > the back in 2009 during a soccer game, and since then he has not > > recovered from the back injury and suffers from urinary pressure. We > > saw 9 doctors last year to rule out the obvious and serious. Each test > > comes back negative and I go back and forth that it could be the Lyme > > settling in his back. The only strange issue is that the vertebra in > > question is the L3 which corresponds to the bladder. He does have a > > bone scan on Monday to rule out an occult fracture. His pain is very > > localized to the L3.> > > > I did take him for a live blood analysis and his bacterial load > > was light. But, I am wondering how accurate it is in diagnosing the > > bacterial load.> > > > I have also done a month on HP 35% and do have a HC Zapper, but > > have not used it faithfully. Does anyone have any success with that? > > If so, what protocol did you follow?> > > > I just have watched my son turn from this healthy *normal* > > teenager into an old man. The urinary pressure is what bothers him > > most...he has been such a brave child over the course of this all.> > > > When the neurosurgeon called and said the MRI was clean, my son > > just sat and cried...he wanted it to be something they could just fix.> > > > I was briefly reading about some of your posts about back surgery.> > > > What issues have some of you faced regarding back pain?> > > > Is it all connected to the Lyme? After the bone scan I am going > > to start the salt/C, but am not well versed on it.> > > > Thanks for having me in the group.> > > > mary> > > >> > >> >> Hello Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2011 Report Share Posted April 15, 2011 Hi Marie, Please keep in mind, that legal hemp oil you got in Switzerland can also be made here! Uh, illegally I believe... And how would you do that, where would you learn to make your own? Why ole Jim of course just may know the answer!! I was very serious about making my own hemp oil four years ago, I talked to those who would help me make this possible. But when I found out hemp oil would show up on a drug test, I had to stop and not follow through.. I was greatly saddened as I believed this was very good at curing diesease... Since I take opiate pain meds, I am drug tested twice yearly... AND even though hemp oil provides absolutely no drug high, it unfortunately shows up on a drug test as maraijuana on a drug test... If I recall correctly, one big plant yields just a few ounces of pure hemp oil... NOTE for everyone else, this is NOT the hemp oil you can buy as a supplement. Homemade hemp oil is very powerful as a health healer, the supplement you buy is a very weak version... I don't know of anyone who's tried it for Lyme, but it appears to help many other diseases and should be beneficial for Lyme... So you don't have to go to Switzerland any more for this.. :-) Take care, Jim > > > > > > > > > > Hello, > > > > > My son has had Lyme since summer of 1999. We did not choose the > > > antibiotic route, but instead went with homeopathy first and proceeded > > > from there to other alternative treatments. He did not have any > > > initial symptoms, other than the bullseye. He was symptom free for 10 > > > years, having his blood checked every year and a half. He was hit in > > > the back in 2009 during a soccer game, and since then he has not > > > recovered from the back injury and suffers from urinary pressure. We > > > saw 9 doctors last year to rule out the obvious and serious. Each test > > > comes back negative and I go back and forth that it could be the Lyme > > > settling in his back. The only strange issue is that the vertebra in > > > question is the L3 which corresponds to the bladder. He does have a > > > bone scan on Monday to rule out an occult fracture. His pain is very > > > localized to the L3. > > > > > I did take him for a live blood analysis and his bacterial load > > > was light. But, I am wondering how accurate it is in diagnosing the > > > bacterial load. > > > > > I have also done a month on HP 35% and do have a HC Zapper, but > > > have not used it faithfully. Does anyone have any success with that? > > > If so, what protocol did you follow? > > > > > I just have watched my son turn from this healthy *normal* > > > teenager into an old man. The urinary pressure is what bothers him > > > most...he has been such a brave child over the course of this all. > > > > > When the neurosurgeon called and said the MRI was clean, my son > > > just sat and cried...he wanted it to be something they could just fix. > > > > > I was briefly reading about some of your posts about back surgery. > > > > > What issues have some of you faced regarding back pain? > > > > > Is it all connected to the Lyme? After the bone scan I am going > > > to start the salt/C, but am not well versed on it. > > > > > Thanks for having me in the group. > > > > > mary > > > > > > > > > > > > > > > > > Hello > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2011 Report Share Posted April 16, 2011 You are right Jim, Someone saved himself from cancer in Canada and made a video about it on the web onhow to make the oil ,as he refused to do it secretly to defend this as a medecine and was freed by the judges. It is a powerfull medecine. I happened to be in France at this time :2hrs form Switzerland by train so not a big deal. Marie To: Lyme_and_Rife Sent: Thu, April 14, 2011 8:31:24 PMSubject: Re: introduction Hi Marie,Please keep in mind, that legal hemp oil you got in Switzerland can also be made here! Uh, illegallyI believe... And how would you do that, where would you learn to make your own? Why ole Jimof course just may know the answer!! I was very serious about making my own hempoil four years ago, I talked to those who would help me make this possible. But when I found out hemp oil would show up on a drug test, I had to stop and not follow through..I was greatly saddened as I believed this was very good at curing diesease...Since I take opiate pain meds, I am drug tested twice yearly... AND even though hempoil provides absolutely no drug high, it unfortunately shows up on a drug test as maraijuanaon a drug test... If I recall correctly, one big plant yields just a few ounces of pure hemp oil... NOTE for everyone else,this is NOT the hemp oil you can buy as a supplement. Homemade hemp oil is very powerfulas a health healer, the supplement you buy is a very weak version... I don't know of anyone who's tried it for Lyme, but it appears to help many other diseases and should be beneficial for Lyme...So you don't have to go to Switzerland any more for this.. :-)Take care,Jim> > > > >> > > > > Hello,> > > > > My son has had Lyme since summer of 1999. We did not choose the > > > antibiotic route, but instead went with homeopathy first and proceeded > > > from there to other alternative treatments. He did not have any > > > initial symptoms, other than the bullseye. He was symptom free for 10 > > > years, having his blood checked every year and a half. He was hit in > > > the back in 2009 during a soccer game, and since then he has not > > > recovered from the back injury and suffers from urinary pressure. We > > > saw 9 doctors last year to rule out the obvious and serious. Each test > > > comes back negative and I go back and forth that it could be the Lyme > > > settling in his back. The only strange issue is that the vertebra in > > > question is the L3 which corresponds to the bladder. He does have a > > > bone scan on Monday to rule out an occult fracture. His pain is very > > > localized to the L3.> > > > > I did take him for a live blood analysis and his bacterial load > > > was light. But, I am wondering how accurate it is in diagnosing the > > > bacterial load.> > > > > I have also done a month on HP 35% and do have a HC Zapper, but > > > have not used it faithfully. Does anyone have any success with that? > > > If so, what protocol did you follow?> > > > > I just have watched my son turn from this healthy *normal* > > > teenager into an old man. The urinary pressure is what bothers him > > > most...he has been such a brave child over the course of this all.> > > > > When the neurosurgeon called and said the MRI was clean, my son > > > just sat and cried...he wanted it to be something they could just fix.> > > > > I was briefly reading about some of your posts about back surgery.> > > > > What issues have some of you faced regarding back pain?> > > > > Is it all connected to the Lyme? After the bone scan I am going > > > to start the salt/C, but am not well versed on it.> > > > > Thanks for having me in the group.> > > > > mary> > > > >> > > >> > >> >> > > Hello > Quote Link to comment Share on other sites More sharing options...
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