Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 That is kind of scarey. I always had the impression that they look totally different, and would be distingishable. There is another good reason why everybody, especially those with Complications, after this Surgery, should have an MRI. I wish there was something we could do to get that done. So, they can't fix you, but did they offer you anything? Or just told you to live with it? If so, get even another Opinion, atleast that's my Opinion. Atleast they did identify that you do not have CMT, and you infact have another Tether. As a side note: Mayo was not recommended to me, due to their lack of experience in my Conditions. Even though Kelli did send the List, and Mayo was at the Top for Neurological conditions, but that can comprise of alot. However, they have some experience, since they are treating , and she seems pleased with her care, and I am sure there are others as well. And they did identify that you have another Tether. Me Nebraska, USA mymocha@... The place where my doctors here thought I > had a syrinx at T9 is really another tether and where I also had a > stroke in my spinal cord, probably due to the trauma of that TC surgery > (and it bears watching to make sure it's not anything else) Hence the > new problems and pain there. My bladder is still totally flaccid > (darn), and I do have damage to one kidney from all the infections I > had as a child. So it's back to full time cathing. If the pain gets out > of control, I'm not a candidate for the pump or stimulator. The pain > doc suggested adding tegretol to my mix. So, they can't fix me, but I Quote Link to comment Share on other sites More sharing options...
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