Re: Can you push yourself?

[Guest guest]

Hi Sue,

I know for me I can't push myself, like other people when I do I pay for it

physically. Driving especially does me in so I try not to do it very often.

I am a single mom with 2 kids so I often push myself but I am learning my

limits and try to stay within them. I listen to my body, when it says rest

that's what I do.

Love and Hugs

Kim

[Guest guest]

Sue,

I don't know about the rest but I for one pay dearly if I push myself.

I can just figure on 3 bad days if I go and do too much on one day. This

makes it impossible to gain any stamina for me anyhow. Therefore I ain't

done much for quite a long time :-)

Hillbilly

----------

> From: rhbailey@...

> To: chiariegroups

> Subject: Can you push yourself?

> Date: Friday, September 10, 1999 6:39 AM

>

> Hi all,

>

> With Chiari, can you push yourself? Does it make you better or worse? For

> example, what happens when you attempt a program of gradually increasing

> exercise.

>

> With chronic fatigue syndrome, when people push themselves it makes them

> worse--sometimes even seems to cause some kind of permanent damge. (This

> does not take into account people like soccer star Akers, who

> perhaps has brain problems related to hitting the ball with her head, but

> says she has chronic fatigue sydrome.)

>

> When people with CFS stay " in the envelope " they can usually improve.

When

> they go out of the " envelope " they get worse. Is it the same for Chiari?

>

> Sue B.

>

>

>

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[Guest guest]

<< I am one that will push to the limit i.e. kayaking about 6 miles last

weekend.

Kayaking gave me mental health, it may have set me back a few days, but it was

worth the benefit.

After being in traction for 4 months, I want some of my normal life back. I

have

been pushing it since the collar came off, but I try and rest at least once a

day, and get a good nights sleep.

I don't believe that I am doing permanent damage by pushing my limits a bit!

Kathleen

Sub occipital decompression, C1 C2 lamenectomy, duraplasty 5-1990 VA shunt

for

hydrocephalus

6-1990 Supra sinus decompression 6-1998 Cervical cranial fusion and

titanium

mesh plate 5-1999

i agree with kathleen here , push your limmits to your limmits ......and pay

attention to where they are ! its possible to gain back strenght and

endurance , but go slow , its possible to gain flexability and greater range

too .....but again go slow !

good guidance and assistance from someone who knows rehab exercising , and

careful selection of just what works for you , is esential to all this

......were all so different , its easy to mislead each other with whats ok

.........seek a pt or exercise pysiolgist with real experience , and let your

own sensations help guide your actions .

at one year post op .....i still strugle with ms exercise induced weekness

for instance , and do find like kathleen , that going out of my normal

routine does bring greater pain for a couple days , but also brings me back

to the full world i love , and raises my spirits .

i think the key is , pay attention to how you feel , and dont do things that

truly feel horrible at all .........remember that current theory is pain may

be magnified by acm /sm in a neurochemical sense , and so may seem a more

intense warning than it really is too .

go gentle and easy , but aim high , you will gain !

sarah in paradise

[Guest guest]

shron6-@... wrote:

Hi Sue, , all --

Pushing myself is a biggggg no-no! Like , I can count on a good

three days in bed, writhing in agony if I try it! Yesterday I just sat

up in my fiance's office chair and cleaned up his hard drive (took

almost all day!), and today I feel like I've been hit by a Mack truck! My neck is especially bad.

I knew I might be sore afterwards, but this is worse than I had

anticipated. Not sure if this helps you any -- just my experience!

Blessings,

Sharon in Nashville aka "Beep"

Recently dx'd with ACM / possible SM

original article:/group/chiari/?start=23429

> Hi all,

> With Chiari, can you push yourself? Does it make you better or worse?

For example, what happens when you attempt a program of gradually

increasing

> exercise.

> When people with CFS stay "in the envelope" they can usually improve.

When

> they go out of the "envelope" they get worse. Is it the same for

Chiari?

> > Sue B. > >

[Guest guest]

At 06:15 AM 9/10/1999 -0700, you wrote:

>shron6-@... wrote: Hi Sue, , all -- Pushing myself is

>a biggggg no-no! Like , I can count on a good three days in bed,

>writhing in agony if I try it!

This is a tricky area. Sharon and certainly aren't unique in their

experiences, but there's something to be said for " pushing " as well. It's

an individual thing where you need to test your limitations. I feel pretty

good if I push myself somewhat, but I pay dearly if I go too far. You're

gonna have to hurt yourself a bit at least once to realise how far you can

go (hopefully avoiding any long term consequences!). For me, I know that if

I drive for too long in one day, I'll be wiped out for a week, so I keep

the trips as short as possible.

When it comes to over-exertion, I never have the energy to do too much

anyway, so I don't really know how much I could do without paying for it. I

suspect my body keeps my stamina level quite low just for that reason.

ronny

World ACM Association http://www.pressenter.com/~wacma

[Guest guest]

Hi Sue,

From my personal experience I'd say pushing causes problems... it's a fine,

miserable line between keeping what we have, and losing it from over-doing!

Everytime I started to exercise I got worse, even when I was extremely

careful, going slow and easy... but no exercise leads to loss too.

As for just doing more, that for me is exhausting, but not generally

harmful... Just try not to have it happen too frequently!

Luella

[Guest guest]

Hey all,

I've run out of time, but trying to read the list I have to ask a question.

Certainly, I have these same problems--pain and fatigue are two of my

biggest complaints (out of a long list) and I try not to be a complainer.

I'm not living in the past ... but I would like to know something if any of

yall can identify with this. Watching my dad worsen over the years, he

began to have a reputation as " lazy. " Yes, he worked ... always a desk job

and was a very intelligent man ... except that alcohol got control of his

life.

I'm wondering if any of you, especially if you feel this is " hereditary "

watched a parent go down hill ... without treatment. Certainly (excuse me,

men) I know in my cases, especially in the past, it was difficult for a man

to admit there was something wrong. Part of the ego, I guess.

Dad's legs were hurting him in his 20's when he was in WWII. He was very

tall ... didn't get his MVP dx until late sixties (only at my

urging--because regular doctors aren't informed about this either! ... maybe

more so now ... I don't know.) I guess I'm going around the world to get my

point ... but I want to give sufficient info ...

Over the years his slow decline would seem to me within the limits of what I

have read on this list about Chiari. I don't know, but haven't noticed any

" elderly " patients on here. Is it because we are the younger

generation--baby boomers--seeking medical treatment?

Even so, have any of you witnessed the long-term effects of ACM I in your

loved ones as they aged? Dad could never get a dx once he couldn't walk,

etc. " Rare, hereditary, nerve disease, " they said. Well ... is this the

route that Chiari takes over the years?

I don't want to be pessimistic here ... but just wondering about ACM in

later years and a possible continuing down-hill progression of symptoms like

I saw in my dad.

Any comments will be appreciated ...

Blessings to all,

JC

[Guest guest]

Sue,

I try to stay in the " envelope " with CFS ... is it really Chiari that keeps

me in the " envelope? "

Blessings,

JC

> Can you push yourself?

>

>

> Hi all,

>

> With Chiari, can you push yourself? Does it make you better or worse? For

> example, what happens when you attempt a program of gradually increasing

> exercise.

>

> With chronic fatigue syndrome, when people push themselves it makes them

> worse--sometimes even seems to cause some kind of permanent damge. (This

> does not take into account people like soccer star Akers, who

> perhaps has brain problems related to hitting the ball with her head, but

> says she has chronic fatigue sydrome.)

>

> When people with CFS stay " in the envelope " they can usually improve. When

> they go out of the " envelope " they get worse. Is it the same for Chiari?

>

> Sue B.

>

>

>

> ------------------------------------------------------------------------

> WACMA Site: http://www.pressenter.com/~wacma

> Your Personal support group member page:

> http://www.eGroups.com/group/chiari/

> **Avoid List Congestion:

>

> Unsubscribe from this list: mailto:chiari-unsubscribeegroups

> Contact list mgmt: mailto:chiari-owneregroups

>

>