Need some wisdom - symptoms after coiling (kind of long)

[Guest guest]

Hi group, I need some wisdom. I've gotten up to 16 minutes and 30 seconds for

lyme (432). When I began to add time to my head, I experienced the same

symptoms that I had with lyme (even before diagnosed). I see from my notes that

it happens a few times a month, but always lasted a day and then went away.

[my head symptoms include:

pressure in various parts of the right side of my head - moves.

right eye focus problems - eye feels " full "

pressure in right ear - if I can pop my ear, it helps momentarily.

headaches off and on in various places in the head - moves.

tight jaw muscles.

feeling disconnected from the right side of my head.

feel like the right side of my head is in a shrink wrapped state.

feel like I have to " think " from the left side of my head.

horrible ringing in both ears (used to be just one)

horrible " flat " sound distortion and sound intolerance

a sometimes " whirly " head feeling only on the right - like back to front.

A " 2 second delay " in processing.

Sometimes at work (I'm a manager) I need to make a decision and I just stand

there with a blank brain.

Sometimes it causes dizziness - like I'm tippy or off balance or bouncing -

hasn't gotten to that point yet.

sometimes a pulsing feeling is felt in the head, other times the whirly feeling

is random but just on the one side.]

I've gotten really bad insomnia lately - where even my " bed meds " (prescription)

don't do anything - like my " awake switch " is turned on. So fatigue during the

day and insomnia at night.

Kind of a buzzing feeling in my feet and legs. Sometimes, when I step into the

shower, my feet " burn " from the water. Some weakness in my hands and muscle

twitichies.

My symptoms - when the lyme hits are these above. They come on with a bang and

then last and sometimes cycle through again and again and again. Prior to

coiling, I had a relapse after an 8 month " remission " and these symptoms kept

cycling. Before the remission, the symptoms would come, cycle through and then

fade away until they'd randomly hit in a few months again. I've been on a year

of oral antibiotics, a year of IV antibiotics, an herbal Cowden protocol then

back on oral and IV for a few months before starting to coil the end of January.

I have a positive IgeneX Lyme and a titer for bart and babs. I have an old

LabCorp Mycoplasma positive, but the doctor said it wasn't a current infection,

it was on the IgM (I think, which ever one is the long term instead of the

active).

I'm coiling for lyme - at 16 minutes and 30 seconds. I've just added in bart

and am up to 6 minutes.

My questions (after all of that, sorry) are this:

1. I'm coiling for lyme. It took getting up to 10 minutes before I had a herx.

When I started coiling my head after 12 minutes, I got the " head symptoms " for a

day then they went away. Now that I'm up to 16 min and 30 seconds - is this

" head stuff " and the other symptoms a herx or does it mean that whatever I have

isn't lyme and is just acting up? When I herxed for lyme in the past, I would

just get achy muscles, fatigue, joint pain. This head stuff is as bad as it was

before treatment.

2. Do I continue to coil for bart? I found this last time, I did bart one day,

lyme (remained stable on time since adding in bart) the next day, and bart again

(increased). The head symptoms and buzzing have been unrelenting since then.

I've continued to do bart every other day, but am I making a mistake?

3. Can anyone else relate to the head stuff and what is it? How do I know if

it is a herx from killing too much stuff vs. active whatever it might be?

I use welchol for detox, but that only gets the GI tract. I have used all sorts

of the recommended supplements (pinella, K-Mg-Kg, etc.) I feel supplemented out.

I seem not to react to natural supplements and have a whole shelf in the

basement of supplements that I've heard about and tried.

I guess I don't know what to do and feel fine except for the insomnia and the

neuro/head symptoms. I don't really have anyone to talk to, as my doctor is

supportive, but doesn't understand the coil. I'm her " guinea pig " patient as

nothing else has worked. My friends and family tell me I should stop. My

friend with lyme locally (doesn't use the coil) says take a break (but then

would the junk just start growing again?) I coil for lyme about every 10 days

or so and have been doing the bart every other day.

I feel icky and I feel like I'm drifting with no guidance and I feel alone. It

is hard to pretend I am " normal " at work when I feel like half of my head isn't

" Processing " correctly.

Thanks for listening group. Please understand, I have spent a lot of money on

supplements and they don't work. I want to keep going, but am just " lost " in

how this all works. The symptoms change from time to time. Is it working or

not? Do I coil for bart tonight or not? Will this head stuff ever go away?

Just having a bad last few days, I guess.