Re: pyroluria and LLMD search

[Guest guest]

Hi Anne,

I did the Core supplement for awhile as I was tested at Vitamin Diagnostics for

KPU and I was a borderline case. I quit taking the supplement because my most

recent minerals test showed me to be high in copper. It is really important

that you do not take too much zinc unless you need it. Too much zinc can create

a Copper deficiency. My LLMD was very nervous about me starting the protocol.

I know that some people have become zinc toxic from doing this protocol because

they put themselves on the Core without having been tested. It is really

important that you get the Kryptopyroluria test through Vitamin Diagnostics

before you embark on the Core supplement. Maybe your Doctor can order the test

for you if you suspect KPU. He can also order a test for Pyroluria.

>

> Aandraya,

>

> did you get tested for pyroluria or did you just start taking Klinghardt's

Core supplement? I've been considering that supplement for a while. I don't

have an LLMD. Does anyone know of an LLMD in the Boulder area who also deals

with metals, molds, etc.?

>

> Anne

>

[Guest guest]

Anne and -I did not get the HPU test. That protocol has been vital in my treatment. After it kicked in everything else became so much more effective. Aandraya

Hi Anne,

I did the Core supplement for awhile as I was tested at Vitamin Diagnostics for KPU and I was a borderline case. I quit taking the supplement because my most recent minerals test showed me to be high in copper. It is really important that you do not take too much zinc unless you need it. Too much zinc can create a Copper deficiency. My LLMD was very nervous about me starting the protocol. I know that some people have become zinc toxic from doing this protocol because they put themselves on the Core without having been tested. It is really important that you get the Kryptopyroluria test through Vitamin Diagnostics before you embark on the Core supplement. Maybe your Doctor can order the test for you if you suspect KPU. He can also order a test for Pyroluria.

>

> Aandraya,

>

> did you get tested for pyroluria or did you just start taking Klinghardt's Core supplement? I've been considering that supplement for a while. I don't have an LLMD. Does anyone know of an LLMD in the Boulder area who also deals with metals, molds, etc.?

>

> Anne

>

[Guest guest]

Thanks Aandraya,

I'm low in zinc but often test high in copper. I have all the symptoms of KPU

(but I have all the symptoms of a lot of things). Good idea. I'll ask my doc

if he can test me.

Anne

[Guest guest]

,

I see now that you did the test but Aandraya didn't. Well, I think I'd better

do it. And I meant for Pyroluria; or do I mean HPU? I'll straighten it out.

Thanks to both of you.

Anne

[Guest guest]

HI Anne-When you start taking high dose zinc it knocks out copper and can actually become copper deficient. Here's a link to Dr. Klinghardt's lecture on HPU. The notes and protocol from the lecture can be downloaded from his website- Klinghardt Academy. In his lecture he gives specific instructions on urine collection for the test and only U.S. lab that does it.Best,Aandraya Thanks Aandraya, I'm low in zinc but often test high in copper. I have all the symptoms of KPU (but I have all the symptoms of a lot of things). Good idea. I'll ask my doc if he can test me. Anne

[Guest guest]

Anne-The correct test is for hemopyrolactamuria- not the kryptopyrols. It's a very specific test at Vitamin Diagnostics.The HPU protocol I'm following is: zinc, B6 and P5P, omega-6, manganese, and taurine. (I also take molybdenum, iodine, and lithium orotate which are recommended/ and copper if you become deficient).The detox part of this protocol is crucial because a month or so into the treatment your body starts excreting heavy metals in huge amounts and you go through a short crisis. The detox part of the protocol is detailed in Klinghardt's lecture on HPU.Aandraya , I see now that you did the test but Aandraya didn't. Well, I think I'd better do it. And I meant for Pyroluria; or do I mean HPU? I'll straighten it out. Thanks to both of you. Anne

[Guest guest]

Thanks very much Aandraya.

Anne

[Guest guest]

Hi Anne,

HPU and KPU are too different protocols. Aandraya said she is doing the HPU

protocol. I have been tested for both KPU and Pyroluria. I think you are wise

to wait until you can find someone that can order the test through Vitamin

diagnostics. I have a friend that became very zinc toxic from doing the Core

supplement without adequately testing to see if she needed that much zinc. If

you need the zinc, it will really help you to start dumping metals and will

increase your stomach acid levels and since many Lymies have low stomach acid,

that is a good thing. If you are positive KPU, it will make a huge difference

in how you feel, if you are not positive KPU, it will make your condition worse.

>

> ,

>

> I see now that you did the test but Aandraya didn't. Well, I think I'd better

do it. And I meant for Pyroluria; or do I mean HPU? I'll straighten it out.

Thanks to both of you.

>

> Anne

>

[Guest guest]

hi susan, i'm a bit confused, if your copper was high didn't that mean your zinc wasn't making it deficient? which test did you do for minerals? i am going to do the vitamin dagnostics test sometime soon (need to find a doctor willing to order one for me) and did the other lab test for it by myself a year or so ago, the one catch and not preserved so i'd like to do it again, results in questionable level. xosusie Hi Anne, I did the Core supplement for awhile as I was tested at Vitamin Diagnostics for KPU and I was a borderline case. I quit taking the supplement because my most recent minerals test showed me to be high in copper. It is really important that you do not take too much zinc unless you need it. Too much zinc can create a Copper deficiency. My LLMD was very nervous about me starting the protocol. I know that some people have become zinc toxic from doing this protocol because they put themselves on the Core without having been tested. It is really important that you get the Kryptopyroluria test through Vitamin Diagnostics before you embark on the Core supplement. Maybe your Doctor can order the test for you if you suspect KPU. He can also order a test for Pyroluria. > > Aandraya, > > did you get tested for pyroluria or did you just start taking Klinghardt's Core supplement? I've been considering that supplement for a while. I don't have an LLMD. Does anyone know of an LLMD in the Boulder area who also deals with metals, molds, etc.? > > Anne >

[Guest guest]

woops, meant to say that i'm low in both cu and zn, per urine tests, for quite some time.susie Hi Anne, I did the Core supplement for awhile as I was tested at Vitamin Diagnostics for KPU and I was a borderline case. I quit taking the supplement because my most recent minerals test showed me to be high in copper. It is really important that you do not take too much zinc unless you need it. Too much zinc can create a Copper deficiency. My LLMD was very nervous about me starting the protocol. I know that some people have become zinc toxic from doing this protocol because they put themselves on the Core without having been tested. It is really important that you get the Kryptopyroluria test through Vitamin Diagnostics before you embark on the Core supplement. Maybe your Doctor can order the test for you if you suspect KPU. He can also order a test for Pyroluria.

[Guest guest]

Hi ,

I can't remember my score. I think I was a 14 or 15 on the KPU test which was

one point below what is considered positive KPU. Dr. Dahlgren in Dr.

Klinghardts office told me to do the KPU protocol anyway. My LLMD in Alaska did

a minerals test on me and said that my zinc and copper were both high which is

rather unusual. She did not think that it would be a good idea to do extra

zinc. I can't remember the name of the minerals test, but it is the one

recommended by Amy Yasko. It was a blood test. I did not stay on the Core long

enough for the zinc to cause a copper deficiency.

I also was suspicious of my test results, because I did not freeze the urine

before sending it. The written instructions Dr. Klinghardt gave, were kind of

vague and did not mention freezing the Urine. I found out later that it was

supposed to be frozen. He said to put Vitamin C in the container to preserve

the urine. I used Sodium Ascorbate instead of Ascorbic Acid and it was supposed

to be Ascorbic Acid. I think that my results may have been a little off as a

result of not getting clear directions. I know that he has revamped the

directions since I did the test. The main thing is you need to follow Dr.

Klinghardt's instructions rather then those the lab sends. His instructions

basically read collect urine for 24 hours. Add ascorbic acid, I can't remember

the amount to the first collection to preserve all of the 24 hours of urine

collected. Once all the urine is collected, you pour some of it into the lab

container included in the kit and then freeze it for 24 hours and then send off.

Here is a site that tells more about the two tests.

http://planetthrive.com/2010/04/hpukpu-protocol-for-lyme-and-autism/

> > >

> > > Aandraya,

> > >

> > > did you get tested for pyroluria or did you just start taking

> > Klinghardt's Core supplement? I've been considering that supplement

> > for a while. I don't have an LLMD. Does anyone know of an LLMD in

> > the Boulder area who also deals with metals, molds, etc.?

> > >

> > > Anne

> > >

> >

> >

>

[Guest guest]

-Zinc blood tests tend not to be reliable, the body maintains a constant level of it in the blood while it can be nonexistent in the tissues. When it starts to be depleted in the blood you are almost ready to die. Also, it is unlikely you would be high in zinc if you have Lyme.Aandraya Hi , I can't remember my score. I think I was a 14 or 15 on the KPU test which was one point below what is considered positive KPU. Dr. Dahlgren in Dr. Klinghardts office told me to do the KPU protocol anyway. My LLMD in Alaska did a minerals test on me and said that my zinc and copper were both high which is rather unusual. She did not think that it would be a good idea to do extra zinc. I can't remember the name of the minerals test, but it is the one recommended by Amy Yasko. It was a blood test. I did not stay on the Core long enough for the zinc to cause a copper deficiency. I also was suspicious of my test results, because I did not freeze the urine before sending it. The written instructions Dr. Klinghardt gave, were kind of vague and did not mention freezing the Urine. I found out later that it was supposed to be frozen. He said to put Vitamin C in the container to preserve the urine. I used Sodium Ascorbate instead of Ascorbic Acid and it was supposed to be Ascorbic Acid. I think that my results may have been a little off as a result of not getting clear directions. I know that he has revamped the directions since I did the test. The main thing is you need to follow Dr. Klinghardt's instructions rather then those the lab sends. His instructions basically read collect urine for 24 hours. Add ascorbic acid, I can't remember the amount to the first collection to preserve all of the 24 hours of urine collected. Once all the urine is collected, you pour some of it into the lab container included in the kit and then freeze it for 24 hours and then send off. Here is a site that tells more about the two tests. http://planetthrive.com/2010/04/hpukpu-protocol-for-lyme-and-autism/ > > > > > > Aandraya, > > > > > > did you get tested for pyroluria or did you just start taking > > Klinghardt's Core supplement? I've been considering that supplement > > for a while. I don't have an LLMD. Does anyone know of an LLMD in > > the Boulder area who also deals with metals, molds, etc.? > > > > > > Anne > > > > > > > >