Guest guest Posted April 24, 2010 Report Share Posted April 24, 2010 We have found that the transition from Miralax to other stool softeners has been an ongoing process. For my son, when he starts to get hard dry pieces (similar to the appearance of sand, etc) it can mean the beginning of a backup. My son is not on Miralax currently, but we have not been able to find anything that works as well (strong) as a stool softener unfortunately. But due to his side effects (which did include major rashing among other things) we do not give him Miralax. We did find that lactulose worked pretty well when used in conjunction with mineral oil. My son is not potty trained and has very sensitive skin--the lactulose made his stool more acidic, so we had to switch from that as well. Perhaps your doctor or others in this group can recommend for you a better alternative to the MOM if it's not working that great for you. Off ML, now hard grains in stool About 4 weeks ago we switched our 3 yo son from Miralax to Milk of Magnesia. He was on ML for about 9 months and ever since the switch his stools have contained a fair amount of an unknown very hard, small, irregularly shaped, grainy substance. Almost like small sharp sand or micro sized kitty litter. They are very hard and often he often complains about hurting when gently wiping them from his anus. His stools vary from very loose to watery and we keep reducing the amount of MOM, but his output is still so inconsistent that it's been difficult to find a " stable " dose. It was the same way with the Miralax, but now his stools are very light in color and have these hard granules in it that we can't attribute to his diet. Urinary output is unaffected. The only adverse issue we thought accountable to the ML was an occasional rash on the corner of his mouth or cheek shortly after taking the ML. It would always go away as quickly as it came, but the frequency and duration of the rashes increased to the point that we wanted to switch. These rash symptoms are decreasing, but have not abated. Has anyone ever experience this or something similar? I'm suspecting his body is purging some type of accumulation vs. something new being produced since switching to the MOM. Naturally, I want to blame the use of ML, but it this from an accumulation of ML the docs promised never occurs? Or, is it some other metabolic process? Ted Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2010 Report Share Posted April 25, 2010 My son had the same thing as he came off of Miralax. The thought in the DAN (Defeat Autism Now) group was that they may have been signs of calcium oxalate crystals. That was 3 years ago - so there may have been advances since then. For my son, the introduction of magnesium citrate and high dose priobiotics (VSL #3) seemed to be the best solution. I posted in the files section " What Worked for Us " > > We have found that the transition from Miralax to other stool softeners has been an ongoing process. For my son, when he starts to get hard dry pieces (similar to the appearance of sand, etc) it can mean the beginning of a backup. > > My son is not on Miralax currently, but we have not been able to find anything that works as well (strong) as a stool softener unfortunately. But due to his side effects (which did include major rashing among other things) we do not give him Miralax. > > We did find that lactulose worked pretty well when used in conjunction with mineral oil. My son is not potty trained and has very sensitive skin--the lactulose made his stool more acidic, so we had to switch from that as well. Perhaps your doctor or others in this group can recommend for you a better alternative to the MOM if it's not working that great for you. > Off ML, now hard grains in stool > > About 4 weeks ago we switched our 3 yo son from Miralax to Milk of Magnesia. He was on ML for about 9 months and ever since the switch his stools have contained a fair amount of an unknown very hard, small, irregularly shaped, grainy substance. Almost like small sharp sand or micro sized kitty litter. They are very hard and often he often complains about hurting when gently wiping them from his anus. His stools vary from very loose to watery and we keep reducing the amount of MOM, but his output is still so inconsistent that it's been difficult to find a " stable " dose. It was the same way with the Miralax, but now his stools are very light in color and have these hard granules in it that we can't attribute to his diet. Urinary output is unaffected. > > The only adverse issue we thought accountable to the ML was an occasional rash on the corner of his mouth or cheek shortly after taking the ML. It would always go away as quickly as it came, but the frequency and duration of the rashes increased to the point that we wanted to switch. These rash symptoms are decreasing, but have not abated. > > Has anyone ever experience this or something similar? I'm suspecting his body is purging some type of accumulation vs. something new being produced since switching to the MOM. Naturally, I want to blame the use of ML, but it this from an accumulation of ML the docs promised never occurs? Or, is it some other metabolic process? > > Ted > Quote Link to comment Share on other sites More sharing options...
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