calcium / magnesium / Miralax

[Guest guest]

? LeeAnn? What do you think about this? Does anyone have the info on the PEG binding to the calcium, creating calcium oxalate crystals?

I just wanted to give everyone a heads up on the epsom salt baths or mag suppl. We have been giving my dd milk of mag and now her mag levels are too high, long periods of a mag suppl or epsom salt baths and/or milk of mag can cause this, If the levels get too high it can be dangerous, they just checked my dd levels again on Fri,

Faith

Faith, there's two ways to look at this................yes, this may be true, BUT our dd who took Miralax is depleting calcium which could make the Mag levels rise. (She is not on Milk of Magnesia) Calcium and magnesium balance each other. It has been reported that many of these children are depleting high levels calcium in their urine. (See FDA Miralax adverse reactions) (It's called hypocalcemia) The PEG supposively attaches itself to calcium creating calcium oxalate crystals, in which the body excretes them via the urine. She's been off for 10 years and it's still happening. This is alarming to me. Then again, it's been reported that PEG is depleting magnesium while on the medication? Not sure if it's still pulling magnesium?

If this is the case and their body will constantly be eliminating calcium, one would have to give supplements constantly and it would seem to me that the body cannot store and will be a vicious cycle. This is why I suspect the holes in the teeth and reoccuring cavaties, (after they've been fixed) and many reports of broken bones, but worse, down the road what will happen to their bones? Ostioperosis? My doc's who went over the FDA adverse reactions, says, these Miralax'd children will be prone to stones (kidney and gallbladder)

Along with checking for calcium oxalate crystals in the urine, I'd check for calcium in the urine of these children. I'll bet it's on your urine analysis..........go back and check.......... they don't seem to know this is happening, or should I say, they haven't made the connection.

You may want to give a calcium / magnesium supplement. This way they are distributed in balance. Shaklee makes a chewable.

Did they check her calcium levels along with the magnesium Faith?

This is why some of us believe it's breaking down into it's original state, (ethylene glycol), PEG seems to be mimicing the same symptoms EG causes.

EG binds to calcium creating calcium oxalate crystals, and seems to be depleting their calcium. The similarities of EG are astounding.

Long story short.............yes, giving magnesium epsom salt baths can add magnesium but the fact that the PEG seems to depleting calcium surely needs to taken into account, and could be one of the reasons the magnesium is at such a high level. They may not be having such a high level mag increase if it were not depleting the calcium. I think it was high to begin with because of the calcium deficiency.

I've heard thousands of testimonies and many complain of a stinging pee pee. (this is a result of A) PEG burns the skin, and it seems to be creating calcium oxalate crystals which are excreted via urine) Urine tests UNLESS SPECIFIED will not show the crystals unless they are extremely high. The Doc needs to order, "check for crystals", I guarantee, if there's calcium on your urine analysis, there will be crystals. My dd had many urine specimins, they were missed for YEARS, until my OBGYN, the man who delivered her checked under a microscope. So many doc's never checked and chalked it up as a uti that wasn't a true uti and never did a thing. She's seeing Nephrologist right now who doesn't seem to think it's a big deal. He says calcium oxalate crystals can be in the urine for many reasons, i,e. diet. (He prescribes Miralax)

For some reason; Girls seem to have this problem with a stinging pee pee more than the males?

magnesium article along with drug interactions:

http://www.umm.edu/altmed/articles/magnesium-000313.htm

Here's something really scarey..............all these conditions listed below are listed on the FDA adverse reactions for Miralax. This is what this medcation seems to be doing....................

CRF Diagnosis

Chronic renal failure (CRF) is diagnosed by the observation of a combination of symptoms and elevated blood urea nitrogen (BUN) and creatinine (Cr) levels. The following abnormalities found in the blood may signal CRF:

Anemia (low red blood cell count)

High level of parathyroid hormone

Hypocalcemia (low blood level of calcium)

Hyperphosphatemia (high blood level of phosphate)

Hyperkalemia (high blood level of potassium)

Hyponatremia (low blood level of sodium)

Low blood level of bicarbonate

Low plasma pH (blood acidity)

Whether renal failure is acute or chronic usually can be distinguished by comparing prior test results (e.g., from the past several months or years). It is difficult to make the distinction without previous test results.

Ultrasound may show that the kidneys are small in size and echogenic (a sign of renal scarring), signs that supports a diagnosis of CRF. For unclear reasons patients with diabetic nephropathy often have preservation of kidney size despite CRF. They do however, typically have increased echogenicity.

« CRF Signs and Symptoms

http://www.nephrologychannel.com/crf/diagnosis.shtml

To: miralax Sent: Sat, April 24, 2010 10:05:47 PMSubject: Re: Epson salt baths - h elp stop the insanity....why?

I just wanted to give everyone a heads up on the epsom salt baths or mag suppl. We have been giving my dd milk of mag and now her mag levels are too high, long periods of a mag suppl or epsom salt baths and/or milk of mag can cause this, If the levels get too high it can be dangerous, they just checked my dd levels again on Fri,

Faith

To: miralax@yahoogroups .comSent: Sat, April 24, 2010 7:36:47 PMSubject: Epson salt baths - h elp stop the insanity.... why?

Hi,so, i am one of the ones with an aggressive, unhappy, moody kid.Today ALL DAY she has been screaming, crying, hitting, etc....... Not too out of the normal actually for the weekend although it seemed a bit worse.So, after giving her tylenol, etc....working on her sensory issues...etc. ..feeding, sticker charts, drawing...nothing worked.... I put her in the magnesium salt or epson salt bath....like 3 cups in the bath and she stopped screaming and freaking out.What does this mean??Concerned Parent wrote:

Could be ...the clostridia could be eating well, I bought an enzyme that has lactase and phyate(digest from enzymerica) , my thought was to destroy the food source with lactase enzymes but also my son lives on peanutbutter so the phytic acid from the nuts causes zinc not to be absorbed which adhd'r tend to be defiencent in zinc. Phytic acid is a know inhibitor of zinc and other minerails. Also, I have read that clostridia thrive in a phytic acid enviornment. So, I was hoping this digestive enzymes would work two fold for me(lactase and phyates). Also, this product(digest) has protease which is good for breaking down the protein shell of the yeast...it might be a good all around digestive enzyme for you(SID/Hyper) ....but if she is a huge dairy fan then you may need something with more lactase enzyme in it. Something to think about.

PWC

To: miralax@yahoogroups .comSent: Fri, April 23, 2010 12:17:56 PMSubject: Re: Fw: Is there a connection with behavior, seizures and Miralax? My 12 year old!

wow, thank you so much for your help. I will definitely set her up with some bifidum. She lives on yogurt which I realize does not really have enough proB to make a difference but I wonder if she is getting too much lactose.Thanks SO MUCH!AngiConcerned Parent wrote:

I have been doing a bit of research on clostridia(ODD behavior) bacteria, if your child has that you may want to add a bifidum strain with the cultrelle. The theory is that the clostridia feeds on lactose and so do the bifidum strains, so the bifidum strains compete against the clostridia for food helping to crowd out the clostridia from the large intestines. The lactobicullus( Cultrelle) colonize in the small intestines were this overgrowth has occured so the cultrelle will do its job there but you may want to target the large intestines(source of clostridia). .. bifidum strains colonize in the large intestines.. ..double sided attack. I use the attune candy(2 lactobicullus and 1 bifidum strains) bars with the cultrelle and sometimes I add other bifidum probiotics.

PWC

To: miralax@yahoogroups .comSent: Fri, April 23, 2010 12:07:07 AMSubject: Re: Fw: Is there a connection with behavior, seizures and Miralax? My 12 year old!

Jeanie,thanks for your input. what can i do to make my aggressive and unhappy 6 year old girl better?i just changed the probiotics to culturelle instead of some acidophilis that was probably not great.she ate better today after ONE day of culturelle than she has in a while. Not sure if it is related or not but she usually has NO appetite. Still no poop...day 3 of adult doses of laxatives. a rgh.jeanie ward wrote:

Giving antibiotics wipes out the bacteria balance leaving a great place for bad to take over. Giving antibiotics at an early age can be a cause for constipation until the bacteria replenishes itself. (Sometimes it will replenish itself in time) Sometimes it contains pathogens which can lead to health problems. It's kind of like a field of dandelions.. ......the bad bacteria tries to take over) Antibiotics are known to cause yeast infections in women, the same happens inside the body long before you show signs of a yeast infection.

Other's are convinced that the Dtap shot caused their child's constipation which they usually receive around 4 months old. We don't know what to do about it and it's very sad that nobody ever contacted the FDA over it because nobody encourages them to do so and they were suspicious but doctors don't inform you to do so nor do I think they've made this connection yet. With that said, it's possible that they had bad bacteria present, or an imbalance, which causes constipation. We've been trying to find out why some people have adverse reactions, while others do not. It was the article titled Fatal Disnatremia caused by Elective Colonoscopy that I found the vital infomation we were looking for. ..........It stated that "the deaths and morbitity couldn't have happened, UNLESS they had escheria coli, or C-diff, or certain types of bacteria present in the colon" They know this. When we were wondering if this medication could have broke down

into it's original state of ethylene glycol, we found studies that showed that PEG exposed to sewer systems broke the PEG down into it's original state, EG. Therefore, why would it be any different in the body. The article is in the archives, you need to click on rapid response to find it. You can also hit search mail to find the article and many posts I've posted. It's in the files section also. I am certain about this and would very much like to bring this to anyones attention. I just needed enough proof before I moved forward. There are almost 1300 people on this group and about 1400 FDA adverse reactions now. I started with and I, and 6 people from the FDA......... ......... I am most certain now, and knew I'd be writing to all of you 10 years ago......... ......... .I said it then and I'll say it again....... ......... ..If this didn't happen, I wouldn't have ONE person who submitted to the FDA, and if this didn't happen, I wouldn't have ONE

person who reported an adverse reaction to this group.

This saddens me to think that probiotics were never introduced before this volitile chemical is put into their systems and something as inocent as a constipation issue, now becomes a life changing dose of medication. I feel for every parent, family and especially the child as I have seen first hand what it's done to the brain of my dd.

Thanks

From: Concerned Parent <parentwithconcerns@ yahoo.com>To: miralax@yahoogroups .comSent: Thu, April 22, 2010 7:57:52 AMSubject: Re: Fw: Is there a connection with behavior, seizures and Miralax? My 12 year old!

Jeanie

Is it because the bad bacteria that existed prior to miralax is causing leaky gut and then miralax is then absorbed via the leaks? Or is there a chemical reaction between miralax and bacteria/bacteria by products?

PWC

From: jeanie ward <dreamjeanie@ att.net>To: miralax@yahoogroups .comSent: Wed, April 21, 2010 8:10:55 PMSubject: Re: Fw: Is there a connection with behavior, seizures and Miralax? My 12 year old!

Angi, over the years we've read hundreds of posts with the same behavoir that usually start like this:

my young mild manner dd took Miralax and now she attacks us.... tried kicking the window out of the mini van......... .....tried to scratch out my other dd's eyes, etc. We hear this over and over and over again....... ......... ......... .I'm convinced, I've seen this with my own dd. We put the group together and BINGO....... ......... .they all came by the thousands

To: miralax@yahoogroups .comSent: Wed, April 21, 2010 6:56:44 PMSubject: Re: Fw: Is there a connection with behavior, seizures and Miralax? My 12 year old!

thanks for the heads up on the culturelle.i just printed off a $3 coupon from their website and bought some and will start tonight with my daughter.she has been on probiotics forever but i am thinking that maybe they are the wrong ones. she is a mess...her adhd and oppositional behavior as well as sensory issues are a nightmare. she attacks us even!she rages and is miserable and i do think it seemed to start when she was on antibiotics for a year daily.angijeanie ward wrote:

I would love to talk to your doctors, We've been studying this for 10 years and they need to know what we've foundPlease feel free to e-mail me off group or call

dreamjeanie@ att.net

----- Forwarded Message ----From: jeanie ward <dreamjeanie@ att.net>To: miralax@yahoogroups .comSent: Wed, April 21, 2010 5:55:44 PMSubject: Re: Is there a connection with behavior, seizures and Miralax? My 12 year old!

All I can say is, OMG......... ........Yes, it's in the literature that this has happened.... ......... ...please read the files section especailly the article called Fatal Disnatremia caused by elective colonoscopy. Please comb over the FDA adverse reactions, you'll find all your answers you 've been wondering about. I'd get him off ASAP!!!!!!!! !!

http://health/ . groups.yahoo. com/group/ miralax/files/

From: helpneeded2222 <helpneeded2222@ yahoo.ca>To: miralax@yahoogroups .comSent: Wed, April 21, 2010 11:20:14 AMSubject: Is there a connection with behavior, seizures and Miralax? My 12 year old!

Hello,My son has severe behavior problems (new this year) and has recently had seizures.He has had within the year: encopresis, weight gain, behavior issues and sleep disturbances.Background:-Last April he had encopresis (constipation/ soiling) but we thought he was just not wiping properly. His behavior was starting to change: lying to friends etc. He would sort of wake just after falling asleep and would talk a bit then settle. Most nights he would wake again to go to the bathroom.. Weighed 99 lbs.-September encopresis was diagnosed and he took 2 liters of Peg-lyte to cleanse and was to take 1 cup a day to maintain. -mid October he went to a school overnight camp and soiled himself, the first accident since treatment. This caused great psychological problems for him, he became paranoid that everyone was laughing at him. He made up serious lies to cover for this, like his father had been killed etc. Of course when

his friends found out the truth, everything was worse. He started to have more difficulty with one teacher at the school and was frequently in the principal's office (was never there before this year at all).-In December, he continued having accidents regularly, so a new Dr changed the Peg-lyte to Miralax. His sleep wake ups became more rhythmic than awake, though not a seizure per se, but now I'm not sure. There was no longer a feeling though that he could hear our instructions in this state. During the Holidays we shared a hotel room, where I discovered that these wake ups were 3 times a night. . An appointment with a psychiatrist was scheduled for January.-In January we saw a gastro specialist, who said that we had not been consistent with the Miralax, and as long is he is soiling himself, even if occasionally, then he is not having enough. She suggested once a month to do 10 tablespoons over a day to cleanse. We did this Jan 26 and

Feb 26.-end of January: The Psychiatrist put him on Risperdone. We tried this for 4 weeks and saw no improvement.-In March, again on holiday as we shared the same room, and after 5 days of beach activity, our son had a grand mal seizure followed by smaller seizures. 2 days later, another seizure and smaller ones, followed by the next day 2 grand mal and 24 small seizures. We went to the hospital, stayed for 2 days. They did MRI, CT scans, blood all normal. X-ray of colon and upped the Miralax to twice a day for a week. EEG's showed anomalies, and they now say he has nocturnal epilepsy. They put him on Trileptal and Clonazapam for the seizures. The clonazapam made him fall asleep, so they took him off this. A new neurologist upped the trileptal and our son became manic.-April : He had to be hospitalized after 3 days of the manic behaviour, and he remained in the psychiatric ward for 12 days as they switched his medicine and tried

to cope with his belligerent behavior. I just discovered your site and wonder if the Miralax contributed to the seizures and behavior deterioration. There is no question that his behavior was getting worse, but the really bad episodes began in January and continue to today. Could the Miralax have aggravated what he may have been pre-disposed too? He now weighs 125 lbs, is so belligerent that we are considering mental health residence, is now sleeping through the night due to the new meds (epival and seroquel), and the encopresis is being dealt with Flax Oil as of 6 days ago (when I discovered this site).This time last year, everything was fine…..Would love some insight from the forum on what you think might have happened to him.With

thanksHelpneeded2222

1 of 1 File(s)

1403 adverse reactions Miralax.docx

[Guest guest]

----- Forwarded Message ----To: miralax Cc: susan owens Sent: Sun, April 25, 2010 7:52:29 AMSubject: calcium / magnesium / Miralax

? LeeAnn? What do you think about this? Does anyone have the info on the PEG binding to the calcium, creating calcium oxalate crystals?

I just wanted to give everyone a heads up on the epsom salt baths or mag suppl. We have been giving my dd milk of mag and now her mag levels are too high, long periods of a mag suppl or epsom salt baths and/or milk of mag can cause this, If the levels get too high it can be dangerous, they just checked my dd levels again on Fri,

Faith

Faith, there's two ways to look at this................yes, this may be true, BUT our dd who took Miralax is depleting calcium which could make the Mag levels rise. (She is not on Milk of Magnesia) Calcium and magnesium balance each other. It has been reported that many of these children are depleting high levels calcium in their urine. (See FDA Miralax adverse reactions) (It's called hypocalcemia) The PEG supposively attaches itself to calcium creating calcium oxalate crystals, in which the body excretes them via the urine. She's been off for 10 years and it's still happening. This is alarming to me. Then again, it's been reported that PEG is depleting magnesium while on the medication? Not sure if it's still pulling magnesium?

If this is the case and their body will constantly be eliminating calcium, one would have to give supplements constantly and it would seem to me that the body cannot store and will be a vicious cycle. This is why I suspect the holes in the teeth and reoccuring cavaties, (after they've been fixed) and many reports of broken bones, but worse, down the road what will happen to their bones? Ostioperosis? My doc's who went over the FDA adverse reactions, says, these Miralax'd children will be prone to stones (kidney and gallbladder)

Along with checking for calcium oxalate crystals in the urine, I'd check for calcium in the urine of these children. I'll bet it's on your urine analysis..........go back and check.......... they don't seem to know this is happening, or should I say, they haven't made the connection.

You may want to give a calcium / magnesium supplement. This way they are distributed in balance. Shaklee makes a chewable.

Did they check her calcium levels along with the magnesium Faith?

This is why some of us believe it's breaking down into it's original state, (ethylene glycol), PEG seems to be mimicing the same symptoms EG causes.

EG binds to calcium creating calcium oxalate crystals, and seems to be depleting their calcium. The similarities of EG are astounding.

Long story short.............yes, giving magnesium epsom salt baths can add magnesium but the fact that the PEG seems to depleting calcium surely needs to taken into account, and could be one of the reasons the magnesium is at such a high level. They may not be having such a high level mag increase if it were not depleting the calcium. I think it was high to begin with because of the calcium deficiency.

I've heard thousands of testimonies and many complain of a stinging pee pee. (this is a result of A) PEG burns the skin, and it seems to be creating calcium oxalate crystals which are excreted via urine) Urine tests UNLESS SPECIFIED will not show the crystals unless they are extremely high. The Doc needs to order, "check for crystals", I guarantee, if there's calcium on your urine analysis, there will be crystals. My dd had many urine specimins, they were missed for YEARS, until my OBGYN, the man who delivered her checked under a microscope. So many doc's never checked and chalked it up as a uti that wasn't a true uti and never did a thing. She's seeing Nephrologist right now who doesn't seem to think it's a big deal. He says calcium oxalate crystals can be in the urine for many reasons, i,e. diet. (He prescribes Miralax)

For some reason; Girls seem to have this problem with a stinging pee pee more than the males?

magnesium article along with drug interactions:

http://www.umm.edu/altmed/articles/magnesium-000313.htm

Here's something really scarey..............all these conditions listed below are listed on the FDA adverse reactions for Miralax. This is what this medcation seems to be doing....................

CRF Diagnosis

Chronic renal failure (CRF) is diagnosed by the observation of a combination of symptoms and elevated blood urea nitrogen (BUN) and creatinine (Cr) levels. The following abnormalities found in the blood may signal CRF:

Anemia (low red blood cell count)

High level of parathyroid hormone

Hypocalcemia (low blood level of calcium)

Hyperphosphatemia (high blood level of phosphate)

Hyperkalemia (high blood level of potassium)

Hyponatremia (low blood level of sodium)

Low blood level of bicarbonate

Low plasma pH (blood acidity)

Whether renal failure is acute or chronic usually can be distinguished by comparing prior test results (e.g., from the past several months or years). It is difficult to make the distinction without previous test results.

Ultrasound may show that the kidneys are small in size and echogenic (a sign of renal scarring), signs that supports a diagnosis of CRF. For unclear reasons patients with diabetic nephropathy often have preservation of kidney size despite CRF. They do however, typically have increased echogenicity.

« CRF Signs and Symptoms

http://www.nephrologychannel.com/crf/diagnosis.shtml

To: miralax Sent: Sat, April 24, 2010 10:05:47 PMSubject: Re: Epson salt baths - h elp stop the insanity....why?

I just wanted to give everyone a heads up on the epsom salt baths or mag suppl. We have been giving my dd milk of mag and now her mag levels are too high, long periods of a mag suppl or epsom salt baths and/or milk of mag can cause this, If the levels get too high it can be dangerous, they just checked my dd levels again on Fri,

Faith

To: miralax@yahoogroups .comSent: Sat, April 24, 2010 7:36:47 PMSubject: Epson salt baths - h elp stop the insanity.... why?

Hi,so, i am one of the ones with an aggressive, unhappy, moody kid.Today ALL DAY she has been screaming, crying, hitting, etc....... Not too out of the normal actually for the weekend although it seemed a bit worse.So, after giving her tylenol, etc....working on her sensory issues...etc. ..feeding, sticker charts, drawing...nothing worked.... I put her in the magnesium salt or epson salt bath....like 3 cups in the bath and she stopped screaming and freaking out.What does this mean??Concerned Parent wrote:

Could be ...the clostridia could be eating well, I bought an enzyme that has lactase and phyate(digest from enzymerica) , my thought was to destroy the food source with lactase enzymes but also my son lives on peanutbutter so the phytic acid from the nuts causes zinc not to be absorbed which adhd'r tend to be defiencent in zinc. Phytic acid is a know inhibitor of zinc and other minerails. Also, I have read that clostridia thrive in a phytic acid enviornment. So, I was hoping this digestive enzymes would work two fold for me(lactase and phyates). Also, this product(digest) has protease which is good for breaking down the protein shell of the yeast...it might be a good all around digestive enzyme for you(SID/Hyper) ....but if she is a huge dairy fan then you may need something with more lactase enzyme in it. Something to think about.

PWC

To: miralax@yahoogroups .comSent: Fri, April 23, 2010 12:17:56 PMSubject: Re: Fw: Is there a connection with behavior, seizures and Miralax? My 12 year old!

wow, thank you so much for your help. I will definitely set her up with some bifidum. She lives on yogurt which I realize does not really have enough proB to make a difference but I wonder if she is getting too much lactose.Thanks SO MUCH!AngiConcerned Parent wrote:

I have been doing a bit of research on clostridia(ODD behavior) bacteria, if your child has that you may want to add a bifidum strain with the cultrelle. The theory is that the clostridia feeds on lactose and so do the bifidum strains, so the bifidum strains compete against the clostridia for food helping to crowd out the clostridia from the large intestines. The lactobicullus( Cultrelle) colonize in the small intestines were this overgrowth has occured so the cultrelle will do its job there but you may want to target the large intestines(source of clostridia). .. bifidum strains colonize in the large intestines.. ..double sided attack. I use the attune candy(2 lactobicullus and 1 bifidum strains) bars with the cultrelle and sometimes I add other bifidum probiotics.

PWC

To: miralax@yahoogroups .comSent: Fri, April 23, 2010 12:07:07 AMSubject: Re: Fw: Is there a connection with behavior, seizures and Miralax? My 12 year old!

Jeanie,thanks for your input. what can i do to make my aggressive and unhappy 6 year old girl better?i just changed the probiotics to culturelle instead of some acidophilis that was probably not great.she ate better today after ONE day of culturelle than she has in a while. Not sure if it is related or not but she usually has NO appetite. Still no poop...day 3 of adult doses of laxatives. a rgh.jeanie ward wrote:

Giving antibiotics wipes out the bacteria balance leaving a great place for bad to take over. Giving antibiotics at an early age can be a cause for constipation until the bacteria replenishes itself. (Sometimes it will replenish itself in time) Sometimes it contains pathogens which can lead to health problems. It's kind of like a field of dandelions.. ......the bad bacteria tries to take over) Antibiotics are known to cause yeast infections in women, the same happens inside the body long before you show signs of a yeast infection.

Other's are convinced that the Dtap shot caused their child's constipation which they usually receive around 4 months old. We don't know what to do about it and it's very sad that nobody ever contacted the FDA over it because nobody encourages them to do so and they were suspicious but doctors don't inform you to do so nor do I think they've made this connection yet. With that said, it's possible that they had bad bacteria present, or an imbalance, which causes constipation. We've been trying to find out why some people have adverse reactions, while others do not. It was the article titled Fatal Disnatremia caused by Elective Colonoscopy that I found the vital infomation we were looking for. ..........It stated that "the deaths and morbitity couldn't have happened, UNLESS they had escheria coli, or C-diff, or certain types of bacteria present in the colon" They know this. When we were wondering if this medication could have broke down

into it's original state of ethylene glycol, we found studies that showed that PEG exposed to sewer systems broke the PEG down into it's original state, EG. Therefore, why would it be any different in the body. The article is in the archives, you need to click on rapid response to find it. You can also hit search mail to find the article and many posts I've posted. It's in the files section also. I am certain about this and would very much like to bring this to anyones attention. I just needed enough proof before I moved forward. There are almost 1300 people on this group and about 1400 FDA adverse reactions now. I started with and I, and 6 people from the FDA......... ......... I am most certain now, and knew I'd be writing to all of you 10 years ago......... ......... .I said it then and I'll say it again....... ......... ..If this didn't happen, I wouldn't have ONE person who submitted to the FDA, and if this didn't happen, I wouldn't have ONE

person who reported an adverse reaction to this group.

This saddens me to think that probiotics were never introduced before this volitile chemical is put into their systems and something as inocent as a constipation issue, now becomes a life changing dose of medication. I feel for every parent, family and especially the child as I have seen first hand what it's done to the brain of my dd.

Thanks

From: Concerned Parent <parentwithconcerns@ yahoo.com>To: miralax@yahoogroups .comSent: Thu, April 22, 2010 7:57:52 AMSubject: Re: Fw: Is there a connection with behavior, seizures and Miralax? My 12 year old!

Jeanie

Is it because the bad bacteria that existed prior to miralax is causing leaky gut and then miralax is then absorbed via the leaks? Or is there a chemical reaction between miralax and bacteria/bacteria by products?

PWC

From: jeanie ward <dreamjeanie@ att.net>To: miralax@yahoogroups .comSent: Wed, April 21, 2010 8:10:55 PMSubject: Re: Fw: Is there a connection with behavior, seizures and Miralax? My 12 year old!

Angi, over the years we've read hundreds of posts with the same behavoir that usually start like this:

my young mild manner dd took Miralax and now she attacks us.... tried kicking the window out of the mini van......... .....tried to scratch out my other dd's eyes, etc. We hear this over and over and over again....... ......... ......... .I'm convinced, I've seen this with my own dd. We put the group together and BINGO....... ......... .they all came by the thousands

To: miralax@yahoogroups .comSent: Wed, April 21, 2010 6:56:44 PMSubject: Re: Fw: Is there a connection with behavior, seizures and Miralax? My 12 year old!

thanks for the heads up on the culturelle.i just printed off a $3 coupon from their website and bought some and will start tonight with my daughter.she has been on probiotics forever but i am thinking that maybe they are the wrong ones. she is a mess...her adhd and oppositional behavior as well as sensory issues are a nightmare. she attacks us even!she rages and is miserable and i do think it seemed to start when she was on antibiotics for a year daily.angijeanie ward wrote:

I would love to talk to your doctors, We've been studying this for 10 years and they need to know what we've foundPlease feel free to e-mail me off group or call

dreamjeanie@ att.net

----- Forwarded Message ----From: jeanie ward <dreamjeanie@ att.net>To: miralax@yahoogroups .comSent: Wed, April 21, 2010 5:55:44 PMSubject: Re: Is there a connection with behavior, seizures and Miralax? My 12 year old!

All I can say is, OMG......... ........Yes, it's in the literature that this has happened.... ......... ...please read the files section especailly the article called Fatal Disnatremia caused by elective colonoscopy. Please comb over the FDA adverse reactions, you'll find all your answers you 've been wondering about. I'd get him off ASAP!!!!!!!! !!

http://health/ . groups.yahoo. com/group/ miralax/files/

From: helpneeded2222 <helpneeded2222@ yahoo.ca>To: miralax@yahoogroups .comSent: Wed, April 21, 2010 11:20:14 AMSubject: Is there a connection with behavior, seizures and Miralax? My 12 year old!

Hello,My son has severe behavior problems (new this year) and has recently had seizures.He has had within the year: encopresis, weight gain, behavior issues and sleep disturbances.Background:-Last April he had encopresis (constipation/ soiling) but we thought he was just not wiping properly. His behavior was starting to change: lying to friends etc. He would sort of wake just after falling asleep and would talk a bit then settle. Most nights he would wake again to go to the bathroom.. Weighed 99 lbs.-September encopresis was diagnosed and he took 2 liters of Peg-lyte to cleanse and was to take 1 cup a day to maintain. -mid October he went to a school overnight camp and soiled himself, the first accident since treatment. This caused great psychological problems for him, he became paranoid that everyone was laughing at him. He made up serious lies to cover for this, like his father had been killed etc. Of course when

his friends found out the truth, everything was worse. He started to have more difficulty with one teacher at the school and was frequently in the principal's office (was never there before this year at all).-In December, he continued having accidents regularly, so a new Dr changed the Peg-lyte to Miralax. His sleep wake ups became more rhythmic than awake, though not a seizure per se, but now I'm not sure. There was no longer a feeling though that he could hear our instructions in this state. During the Holidays we shared a hotel room, where I discovered that these wake ups were 3 times a night. . An appointment with a psychiatrist was scheduled for January.-In January we saw a gastro specialist, who said that we had not been consistent with the Miralax, and as long is he is soiling himself, even if occasionally, then he is not having enough. She suggested once a month to do 10 tablespoons over a day to cleanse. We did this Jan 26 and

Feb 26.-end of January: The Psychiatrist put him on Risperdone. We tried this for 4 weeks and saw no improvement.-In March, again on holiday as we shared the same room, and after 5 days of beach activity, our son had a grand mal seizure followed by smaller seizures. 2 days later, another seizure and smaller ones, followed by the next day 2 grand mal and 24 small seizures. We went to the hospital, stayed for 2 days. They did MRI, CT scans, blood all normal. X-ray of colon and upped the Miralax to twice a day for a week. EEG's showed anomalies, and they now say he has nocturnal epilepsy. They put him on Trileptal and Clonazapam for the seizures. The clonazapam made him fall asleep, so they took him off this. A new neurologist upped the trileptal and our son became manic.-April : He had to be hospitalized after 3 days of the manic behaviour, and he remained in the psychiatric ward for 12 days as they switched his medicine and tried

to cope with his belligerent behavior. I just discovered your site and wonder if the Miralax contributed to the seizures and behavior deterioration. There is no question that his behavior was getting worse, but the really bad episodes began in January and continue to today. Could the Miralax have aggravated what he may have been pre-disposed too? He now weighs 125 lbs, is so belligerent that we are considering mental health residence, is now sleeping through the night due to the new meds (epival and seroquel), and the encopresis is being dealt with Flax Oil as of 6 days ago (when I discovered this site).This time last year, everything was fine…..Would love some insight from the forum on what you think might have happened to him.With

thanksHelpneeded2222

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