Re: The Burning the tingling and the numbness, adult retether?

[Guest guest]

I was told before my last Detethering never let anybody doe Exploratory

Surgery on my Back. Other Tests you might want to look into are a CINE MRI,

and/or a Myelogram, but I would save that for a last Resort.

I think I see what they mean, but have they Ruled Out other things it may be

caused by? It's probably Neurological in nature, which can be caused by

Tethered Cord, but there are other Neurological Conditions that can cause

the same thing, and other Symptoms as well.

Yes, it is possible you developed that, but you've probably had it longer

then what you thought, if that is what you have, and it is just now flaring

up.

Good luck.

Me

Nebraska, USA

mymocha@...

I was told by several neurosurgeon's that

> I might have retethered but they would not know unless they did

> exploratory surgery.

>

> What is more discouraging is that they told me that burning,

> tingling, and numbness are not clear symptoms of retethering. My

> MRIs show no symptoms of syrinx or herniated disk and I don't see

> how I would develop arachnoitodis 2 years after an operation.

>

[Guest guest]

Pain wasn't a problem for me before my last Detethering. I have more of it

now then I did before Surgery. I didn't have any Nerve Pain before Surgery,

just your moreorless, normal Day to Day stuff.

They're definately still learning, and there's much to be learned. There is

no real strict Standard of Care when it comes to this.......each Dr. seems

to do things a bit differently. Not everybody has complete Followup Care,

stays with the same Dr.(for one reason or another, alot of times, the Switch

is for the better and needed to be done), or has Post Operative

MRI's..........those are all things, in my Opinion, that makes it harder to

figure this all out.

I think it's not uncommon to have a second Detethering........they do help

many people. I just think they are not rushing into it as early as they used

to. But it's still a common thing to be done.

Well, not really. A Retether happens just because of the natural nature of

Surgery.........Scar Tissue will form. Scar Tissue forms in any kind of

Surgery.

It can be a Crapshoot for some.........but remember, it's helped alot of

people. I know, that's hard to believe when it's not you. I know, I've been

there........it took me a long time, and in some ways I'm still working on

it, to realize this.

Me

Nebraska, USA

mymocha@...

> The thing is the detethering operation ameliorated most of my

> symptoms for 1.5 years, Now I have more extreme symptoms than I ever

> had before. My left leg never experienced any nerve pains up until

> 3 months ago. Its funny when I think about the whole situation, I

> wonder if the neurosurgeons are as familiar with these post-

> operative outcomes as the patients who detail them in this forum

> are.

>

> Now I am finding out that second untetethering are hardly performed

> because they seem like a total crapshoot. Funny thing I am

> realizing now is that retethering is a phenomenon that occurs

> because of the damage that the surgeon causes to the dura to begin

> with. That damage is irrepairable and second surgeries may untether

> but cause more scarring. Seems like a total crapshoot to me.

>

[Guest guest]

What is arachnoitodis?

>

>Reply-To: tetheredspinalcord

>To: <tetheredspinalcord >

>Subject: Re: The Burning the tingling and the numbness, adult

>retether?

>Date: Mon, 19 Jul 2004 11:59:37 -0500

>

>I was told before my last Detethering never let anybody doe Exploratory

>Surgery on my Back. Other Tests you might want to look into are a CINE MRI,

>and/or a Myelogram, but I would save that for a last Resort.

>

>I think I see what they mean, but have they Ruled Out other things it may

>be

>caused by? It's probably Neurological in nature, which can be caused by

>Tethered Cord, but there are other Neurological Conditions that can cause

>the same thing, and other Symptoms as well.

>

>Yes, it is possible you developed that, but you've probably had it longer

>then what you thought, if that is what you have, and it is just now flaring

>up.

>

>Good luck.

>

>Me

>Nebraska, USA

>mymocha@...

>

> I was told by several neurosurgeon's that

> > I might have retethered but they would not know unless they did

> > exploratory surgery.

> >

> > What is more discouraging is that they told me that burning,

> > tingling, and numbness are not clear symptoms of retethering. My

> > MRIs show no symptoms of syrinx or herniated disk and I don't see

> > how I would develop arachnoitodis 2 years after an operation.

> >

>

>

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[Guest guest]

I don't have a complete understanding of it, so here are some Sites that

will do a better job of explaning it.

http://www.ninds.nih.gov/health_and_medical/disorders/arachnoi_doc.htm

http://www.arachnoiditis.net/

Me

Nebraska, USA

mymocha@...

> What is arachnoitodis?

>

>