Guest guest Posted April 5, 2000 Report Share Posted April 5, 2000 Hi everyone, Just an update.......As of today, is officially on the list. He's listed as a status 3 and only has three kids ahead of him (with his blood type). They tell us to expect a minimum wait of one year. A wish was granted to him from the Starlight Foundation and we went to Orlando (Disney World) a couple of weeks ago. We had a GREAT time!! It was exhausting for all of us but especially for . Most days, we rented a wheelchair so he wouldn't have so much walking and standing around to do. The weather was wonderful! Jodi, 's Mom , age 10, symptoms since 96, dx 6-99, listed 4-00 ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
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