Re: Re: Miralax- delayed puberty

[Guest guest]

Naomi, Lots of questions here..................

Is your dd tiny?

Has the pituitary gland situation been diagnosed or something they susupect?

Are they sure this is something that didn't form right or could it have been affected by medication?

Was there underlying issues before the miralax or otherwise normal?

How did they find out about the adrenal insuffieciency?

What tests did they perform to find our about the adrenal?

.................the cortizol?

.................the hormones?

Sorry so many questions but I'm curious about the adrenal / cortizol / hormonal situation in these children. We've been told our dd's was affected too.

To: miralax Sent: Mon, July 26, 2010 1:48:52 AMSubject: Re: Miralax- delayed puberty

Hello again, is seeing an endocrinologist and they are going to do a full workup in September when she turns 15years.

She has adrenal insufficiency and is her levels of other hormones are regularly check.

Thanks for the suggestions

Naomi- mom to almost 15- having mostly great days now that we are off the miralax

[Guest guest]

Our DD, who was on Miralax for about 9 months, from the age of almost 17 months to 26 months, is also quite short for her age. Her hair, although growing in length, is still sparse. We know she is growing by several CMs every month as we measure her ourselves, so maybe she's playing catch-up after the long episode with Miralax. She is also displaying some disturbing signs of OCD, although difficult to discern if this is her just being a toddler or something else (she has to bang on the laundry closet doors as she walks down the hallway; if she doesn't, she will go back and do it; She has to trace the electric cable for the lamp with her finger every time she turns it out before bed time; she is EXTREMELY particular about things being done the same way

EVERY time, etc) I must admit that this does worry me, but I'm also praying that it is just our DD being a toddler.

Anyone else whose toddler is displaying OCD type behavior after being on Miralax?

To: miralax Sent: Mon, July 26, 2010 8:54:46 AMSubject: Re: Re: Miralax- delayed puberty

Naomi, Lots of questions here........ ......... .

Is your dd tiny?

Has the pituitary gland situation been diagnosed or something they susupect?

Are they sure this is something that didn't form right or could it have been affected by medication?

Was there underlying issues before the miralax or otherwise normal?

How did they find out about the adrenal insuffieciency?

What tests did they perform to find our about the adrenal?

............. ....the cortizol?

............. ....the hormones?

Sorry so many questions but I'm curious about the adrenal / cortizol / hormonal situation in these children. We've been told our dd's was affected too.

From: Carl and Naomi <cnvanveenshaw (DOT) ca>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 1:48:52 AMSubject: Re: Miralax- delayed puberty

Hello again, is seeing an endocrinologist and they are going to do a full workup in September when she turns 15years.

She has adrenal insufficiency and is her levels of other hormones are regularly check.

Thanks for the suggestions

Naomi- mom to almost 15- having mostly great days now that we are off the miralax

[Guest guest]

My son displays very little OCD now - it's gotten better as the years have passed. He's also short for his age - was growing fine til Miralax, then has grown slowly. He's starting to spurt up now (3 years post-Miralax and 12 years old), but still a lot littler than other boys his age. And he starts football next week! I hope he doesn't break! Our DD, who was on Miralax for about 9 months, from the age of almost 17 months to 26 months, is also quite short for her age. Her hair, although growing in length, is still sparse. We know she is growing by several CMs every month as we measure her ourselves, so maybe she's playing catch-up after the long episode with Miralax. She is also displaying some disturbing signs of OCD, although difficult to discern if this is her just being a toddler or something else (she has to bang on the laundry closet doors as she walks down the hallway; if she doesn't, she will go back and do it; She has to trace the electric cable for the lamp with her finger every time she turns it out before bed time; she is EXTREMELY particular about things being done the same way EVERY time, etc) I must admit that this does worry me, but I'm also praying that it is just our DD being a toddler. Anyone else whose toddler is displaying OCD type behavior after being on Miralax?From: jeanie ward <dreamjeanieatt (DOT) net>To: miralax Sent: Mon, July 26, 2010 8:54:46 AMSubject: Re: Re: Miralax- delayed puberty Naomi, Lots of questions here........ ......... . Is your dd tiny? Has the pituitary gland situation been diagnosed or something they susupect? Are they sure this is something that didn't form right or could it have been affected by medication? Was there underlying issues before the miralax or otherwise normal? How did they find out about the adrenal insuffieciency? What tests did they perform to find our about the adrenal? ............ ....the cortizol?............ ....the hormones? Sorry so many questions but I'm curious about the adrenal / cortizol / hormonal situation in these children. We've been told our dd's was affected too. From: Carl and Naomi <cnvanveenshaw (DOT) ca>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 1:48:52 AMSubject: Re: Miralax- delayed puberty Hello again, is seeing an endocrinologist and they are going to do a full workup in September when she turns 15years. She has adrenal insufficiency and is her levels of other hormones are regularly check. Thanks for the suggestionsNaomi- mom to almost 15- having mostly great days now that we are off the miralax

[Guest guest]

ABSOLUTELY! Can't stand at a desk without touching everything and figiting with something every minute of her day. This is very disturbing. Always chewing on pens or twisting and turning something always!

To: miralax Sent: Mon, July 26, 2010 11:39:07 AMSubject: Re: Re: Miralax- delayed puberty

Our DD, who was on Miralax for about 9 months, from the age of almost 17 months to 26 months, is also quite short for her age. Her hair, although growing in length, is still sparse. We know she is growing by several CMs every month as we measure her ourselves, so maybe she's playing catch-up after the long episode with Miralax. She is also displaying some disturbing signs of OCD, although difficult to discern if this is her just being a toddler or something else (she has to bang on the laundry closet doors as she walks down the hallway; if she doesn't, she will go back and do it; She has to trace the electric cable for the lamp with her finger every time she turns it out before bed time; she is EXTREMELY particular about things being done the same way EVERY time, etc) I must admit that this does worry me, but I'm also praying that it is just our DD being a toddler.

Anyone else whose toddler is displaying OCD type behavior after being on Miralax?

From: jeanie ward <dreamjeanie@ att.net>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 8:54:46 AMSubject: Re: Re: Miralax- delayed puberty

Naomi, Lots of questions here........ ......... .

Is your dd tiny?

Has the pituitary gland situation been diagnosed or something they susupect?

Are they sure this is something that didn't form right or could it have been affected by medication?

Was there underlying issues before the miralax or otherwise normal?

How did they find out about the adrenal insuffieciency?

What tests did they perform to find our about the adrenal?

............. ....the cortizol?

............. ....the hormones?

Sorry so many questions but I'm curious about the adrenal / cortizol / hormonal situation in these children. We've been told our dd's was affected too.

From: Carl and Naomi <cnvanveenshaw (DOT) ca>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 1:48:52 AMSubject: Re: Miralax- delayed puberty

Hello again, is seeing an endocrinologist and they are going to do a full workup in September when she turns 15years.

She has adrenal insufficiency and is her levels of other hormones are regularly check.

Thanks for the suggestions

Naomi- mom to almost 15- having mostly great days now that we are off the miralax

[Guest guest]

Our dd is short also, I've read many testimonies over the years here of many parents complaing of the same thing. The doc has documented that they aren't growing

To: miralax Sent: Mon, July 26, 2010 11:39:07 AMSubject: Re: Re: Miralax- delayed puberty

Our DD, who was on Miralax for about 9 months, from the age of almost 17 months to 26 months, is also quite short for her age. Her hair, although growing in length, is still sparse. We know she is growing by several CMs every month as we measure her ourselves, so maybe she's playing catch-up after the long episode with Miralax. She is also displaying some disturbing signs of OCD, although difficult to discern if this is her just being a toddler or something else (she has to bang on the laundry closet doors as she walks down the hallway; if she doesn't, she will go back and do it; She has to trace the electric cable for the lamp with her finger every time she turns it out before bed time; she is EXTREMELY particular about things being done the same way EVERY time, etc) I must admit that this does worry me, but I'm also praying that it is just our DD being a toddler.

Anyone else whose toddler is displaying OCD type behavior after being on Miralax?

From: jeanie ward <dreamjeanie@ att.net>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 8:54:46 AMSubject: Re: Re: Miralax- delayed puberty

Naomi, Lots of questions here........ ......... .

Is your dd tiny?

Has the pituitary gland situation been diagnosed or something they susupect?

Are they sure this is something that didn't form right or could it have been affected by medication?

Was there underlying issues before the miralax or otherwise normal?

How did they find out about the adrenal insuffieciency?

What tests did they perform to find our about the adrenal?

............. ....the cortizol?

............. ....the hormones?

Sorry so many questions but I'm curious about the adrenal / cortizol / hormonal situation in these children. We've been told our dd's was affected too.

From: Carl and Naomi <cnvanveenshaw (DOT) ca>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 1:48:52 AMSubject: Re: Miralax- delayed puberty

Hello again, is seeing an endocrinologist and they are going to do a full workup in September when she turns 15years.

She has adrenal insufficiency and is her levels of other hormones are regularly check.

Thanks for the suggestions

Naomi- mom to almost 15- having mostly great days now that we are off the miralax

[Guest guest]

It isn't that our DD isn't growing - she is, but she's still quite short for her age. I should go back and look at her well-visit records to see her growth rate before Miralax. It also worries me that she is not gaining weight. Again, she is at the high end of the chart for weight when compared to her height, but then, again, she's shorter than average!

Every time I remember just how very casual her pediatrician was about prescribing Miralax and then keeping her on it, telling me that it is perfectly safe, etc, I wanna spit nails!! I blame myself for not doing any research, especially after reading on the bottle itself how it was not intended for use with children or for longer than 10 days. I did bring it up with her pediatrician, but I trusted her word over my own eyes.

She still also has nightmares now and again. Not sure what a toddler can have nightmares about, but she wakes up screaming.

Again, it's very difficult to lay everything at the feet of Miralax, but then....

Do you think that the short stature also means that there has been damage done to the pituitary?

To: miralax Sent: Mon, July 26, 2010 2:23:26 PMSubject: Re: Re: Miralax- delayed puberty

Our dd is short also, I've read many testimonies over the years here of many parents complaing of the same thing. The doc has documented that they aren't growing

From: Lillu <lillu0314yahoo (DOT) com>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 11:39:07 AMSubject: Re: Re: Miralax- delayed puberty

Our DD, who was on Miralax for about 9 months, from the age of almost 17 months to 26 months, is also quite short for her age. Her hair, although growing in length, is still sparse. We know she is growing by several CMs every month as we measure her ourselves, so maybe she's playing catch-up after the long episode with Miralax. She is also displaying some disturbing signs of OCD, although difficult to discern if this is her just being a toddler or something else (she has to bang on the laundry closet doors as she walks down the hallway; if she doesn't, she will go back and do it; She has to trace the electric cable for the lamp with her finger every time she turns it out before bed time; she is EXTREMELY particular about things being done the same way EVERY time, etc) I must admit that this does worry me, but I'm also praying that it is just our DD being a toddler.

Anyone else whose toddler is displaying OCD type behavior after being on Miralax?

From: jeanie ward <dreamjeanie@ att.net>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 8:54:46 AMSubject: Re: Re: Miralax- delayed puberty

Naomi, Lots of questions here........ ......... .

Is your dd tiny?

Has the pituitary gland situation been diagnosed or something they susupect?

Are they sure this is something that didn't form right or could it have been affected by medication?

Was there underlying issues before the miralax or otherwise normal?

How did they find out about the adrenal insuffieciency?

What tests did they perform to find our about the adrenal?

............. ....the cortizol?

............. ....the hormones?

Sorry so many questions but I'm curious about the adrenal / cortizol / hormonal situation in these children. We've been told our dd's was affected too.

From: Carl and Naomi <cnvanveenshaw (DOT) ca>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 1:48:52 AMSubject: Re: Miralax- delayed puberty

Hello again, is seeing an endocrinologist and they are going to do a full workup in September when she turns 15years.

She has adrenal insufficiency and is her levels of other hormones are regularly check.

Thanks for the suggestions

Naomi- mom to almost 15- having mostly great days now that we are off the miralax

[Guest guest]

Tracie,

How long was he on Miralax, and was he at all on the autism spectrum prior to Miralax? My DD was not.

To: miralax Sent: Mon, July 26, 2010 1:36:25 PMSubject: Re: Re: Miralax- delayed puberty

My son displays very little OCD now - it's gotten better as the years have passed. He's also short for his age - was growing fine til Miralax, then has grown slowly. He's starting to spurt up now (3 years post-Miralax and 12 years old), but still a lot littler than other boys his age. And he starts football next week! I hope he doesn't break!

Our DD, who was on Miralax for about 9 months, from the age of almost 17 months to 26 months, is also quite short for her age. Her hair, although growing in length, is still sparse. We know she is growing by several CMs every month as we measure her ourselves, so maybe she's playing catch-up after the long episode with Miralax. She is also displaying some disturbing signs of OCD, although difficult to discern if this is her just being a toddler or something else (she has to bang on the laundry closet doors as she walks down the hallway; if she doesn't, she will go back and do it; She has to trace the electric cable for the lamp with her finger every time she turns it out before bed time; she is EXTREMELY particular about things being done the same way EVERY time, etc) I must admit that this does worry me, but I'm also praying that it is just our DD being a toddler.

Anyone else whose toddler is displaying OCD type behavior after being on Miralax?

From: jeanie ward <dreamjeanie@ att.net>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 8:54:46 AMSubject: Re: Re: Miralax- delayed puberty

Naomi, Lots of questions here........ ......... .

Is your dd tiny?

Has the pituitary gland situation been diagnosed or something they susupect?

Are they sure this is something that didn't form right or could it have been affected by medication?

Was there underlying issues before the miralax or otherwise normal?

How did they find out about the adrenal insuffieciency?

What tests did they perform to find our about the adrenal?

............. ....the cortizol?

............. ....the hormones?

Sorry so many questions but I'm curious about the adrenal / cortizol / hormonal situation in these children. We've been told our dd's was affected too.

From: Carl and Naomi <cnvanveenshaw (DOT) ca>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 1:48:52 AMSubject: Re: Miralax- delayed puberty

Hello again, is seeing an endocrinologist and they are going to do a full workup in September when she turns 15years.

She has adrenal insufficiency and is her levels of other hormones are regularly check.

Thanks for the suggestions

Naomi- mom to almost 15- having mostly great days now that we are off the miralax

[Guest guest]

He was on Miralax for 5 years (?) and was put on the autism spectrum about a year after starting. We are now dealing with a very current dx of ADD. Is this something others have seen? I always thought his inattention was due to high-functioning Aspergers. Comments? Suggestions? Clarifcations? Thanks. Tracie, How long was he on Miralax, and was he at all on the autism spectrum prior to Miralax? My DD was not.From: Tracie Happel <ctaj10centurylink (DOT) net>To: miralax Sent: Mon, July 26, 2010 1:36:25 PMSubject: Re: Re: Miralax- delayed puberty My son displays very little OCD now - it's gotten better as the years have passed. He's also short for his age - was growing fine til Miralax, then has grown slowly. He's starting to spurt up now (3 years post-Miralax and 12 years old), but still a lot littler than other boys his age. And he starts football next week! I hope he doesn't break! Our DD, who was on Miralax for about 9 months, from the age of almost 17 months to 26 months, is also quite short for her age. Her hair, although growing in length, is still sparse. We know she is growing by several CMs every month as we measure her ourselves, so maybe she's playing catch-up after the long episode with Miralax. She is also displaying some disturbing signs of OCD, although difficult to discern if this is her just being a toddler or something else (she has to bang on the laundry closet doors as she walks down the hallway; if she doesn't, she will go back and do it; She has to trace the electric cable for the lamp with her finger every time she turns it out before bed time; she is EXTREMELY particular about things being done the same way EVERY time, etc) I must admit that this does worry me, but I'm also praying that it is just our DD being a toddler. Anyone else whose toddler is displaying OCD type behavior after being on Miralax?From: jeanie ward <dreamjeanie@ att.net>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 8:54:46 AMSubject: Re: Re: Miralax- delayed puberty Naomi, Lots of questions here........ ......... . Is your dd tiny? Has the pituitary gland situation been diagnosed or something they susupect? Are they sure this is something that didn't form right or could it have been affected by medication? Was there underlying issues before the miralax or otherwise normal? How did they find out about the adrenal insuffieciency? What tests did they perform to find our about the adrenal? ............ ....the cortizol?............ ....the hormones? Sorry so many questions but I'm curious about the adrenal / cortizol / hormonal situation in these children. We've been told our dd's was affected too. From: Carl and Naomi <cnvanveenshaw (DOT) ca>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 1:48:52 AMSubject: Re: Miralax- delayed puberty Hello again, is seeing an endocrinologist and they are going to do a full workup in September when she turns 15years. She has adrenal insufficiency and is her levels of other hormones are regularly check. Thanks for the suggestionsNaomi- mom to almost 15- having mostly great days now that we are off the miralax

[Guest guest]

Lillu, one needs to look at the picture as a whole, evaluate what the other 1275 members have reported, look at what the FDA adverse reactions say, then group together the common symptoms, yes, nightmares is one of the common complaints. Not sure about anything this stuff did, the damage is all internal. I would imagine these children would need to be evaluated IF they ever get on the ball investigating them?? Could be decades before it's looked at? If you think any symptom is strange or out of the norm, simply type in the symptom, hit search mail, and many posts will come up. Soooooo many people never corrolate the behaviors with the medication because they've been told differently. The truth is in the parents testimonies, 10 years of them.

To: miralax Sent: Mon, July 26, 2010 6:12:42 PMSubject: Re: Re: Miralax- delayed puberty

It isn't that our DD isn't growing - she is, but she's still quite short for her age. I should go back and look at her well-visit records to see her growth rate before Miralax. It also worries me that she is not gaining weight. Again, she is at the high end of the chart for weight when compared to her height, but then, again, she's shorter than average!

Every time I remember just how very casual her pediatrician was about prescribing Miralax and then keeping her on it, telling me that it is perfectly safe, etc, I wanna spit nails!! I blame myself for not doing any research, especially after reading on the bottle itself how it was not intended for use with children or for longer than 10 days. I did bring it up with her pediatrician, but I trusted her word over my own eyes.

She still also has nightmares now and again. Not sure what a toddler can have nightmares about, but she wakes up screaming.

Again, it's very difficult to lay everything at the feet of Miralax, but then....

Do you think that the short stature also means that there has been damage done to the pituitary?

From: jeanie ward <dreamjeanie@ att.net>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 2:23:26 PMSubject: Re: Re: Miralax- delayed puberty

Our dd is short also, I've read many testimonies over the years here of many parents complaing of the same thing. The doc has documented that they aren't growing

From: Lillu <lillu0314yahoo (DOT) com>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 11:39:07 AMSubject: Re: Re: Miralax- delayed puberty

Our DD, who was on Miralax for about 9 months, from the age of almost 17 months to 26 months, is also quite short for her age. Her hair, although growing in length, is still sparse. We know she is growing by several CMs every month as we measure her ourselves, so maybe she's playing catch-up after the long episode with Miralax. She is also displaying some disturbing signs of OCD, although difficult to discern if this is her just being a toddler or something else (she has to bang on the laundry closet doors as she walks down the hallway; if she doesn't, she will go back and do it; She has to trace the electric cable for the lamp with her finger every time she turns it out before bed time; she is EXTREMELY particular about things being done the same way EVERY time, etc) I must admit that this does worry me, but I'm also praying that it is just our DD being a toddler.

Anyone else whose toddler is displaying OCD type behavior after being on Miralax?

From: jeanie ward <dreamjeanie@ att.net>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 8:54:46 AMSubject: Re: Re: Miralax- delayed puberty

Naomi, Lots of questions here........ ......... .

Is your dd tiny?

Has the pituitary gland situation been diagnosed or something they susupect?

Are they sure this is something that didn't form right or could it have been affected by medication?

Was there underlying issues before the miralax or otherwise normal?

How did they find out about the adrenal insuffieciency?

What tests did they perform to find our about the adrenal?

............. ....the cortizol?

............. ....the hormones?

Sorry so many questions but I'm curious about the adrenal / cortizol / hormonal situation in these children. We've been told our dd's was affected too.

From: Carl and Naomi <cnvanveenshaw (DOT) ca>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 1:48:52 AMSubject: Re: Miralax- delayed puberty

Hello again, is seeing an endocrinologist and they are going to do a full workup in September when she turns 15years.

She has adrenal insufficiency and is her levels of other hormones are regularly check.

Thanks for the suggestions

Naomi- mom to almost 15- having mostly great days now that we are off the miralax

[Guest guest]

Lillu, my dd was on 10 days and did enough damage I don't care to even think of

To: miralax Sent: Mon, July 26, 2010 6:14:35 PMSubject: Re: Re: Miralax- delayed puberty

Tracie,

How long was he on Miralax, and was he at all on the autism spectrum prior to Miralax? My DD was not.

From: Tracie Happel <ctaj10centurylink (DOT) net>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 1:36:25 PMSubject: Re: Re: Miralax- delayed puberty

My son displays very little OCD now - it's gotten better as the years have passed. He's also short for his age - was growing fine til Miralax, then has grown slowly. He's starting to spurt up now (3 years post-Miralax and 12 years old), but still a lot littler than other boys his age. And he starts football next week! I hope he doesn't break!

Our DD, who was on Miralax for about 9 months, from the age of almost 17 months to 26 months, is also quite short for her age. Her hair, although growing in length, is still sparse. We know she is growing by several CMs every month as we measure her ourselves, so maybe she's playing catch-up after the long episode with Miralax. She is also displaying some disturbing signs of OCD, although difficult to discern if this is her just being a toddler or something else (she has to bang on the laundry closet doors as she walks down the hallway; if she doesn't, she will go back and do it; She has to trace the electric cable for the lamp with her finger every time she turns it out before bed time; she is EXTREMELY particular about things being done the same way EVERY time, etc) I must admit that this does worry me, but I'm also praying that it is just our DD being a toddler.

Anyone else whose toddler is displaying OCD type behavior after being on Miralax?

From: jeanie ward <dreamjeanie@ att.net>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 8:54:46 AMSubject: Re: Re: Miralax- delayed puberty

Naomi, Lots of questions here........ ......... .

Is your dd tiny?

Has the pituitary gland situation been diagnosed or something they susupect?

Are they sure this is something that didn't form right or could it have been affected by medication?

Was there underlying issues before the miralax or otherwise normal?

How did they find out about the adrenal insuffieciency?

What tests did they perform to find our about the adrenal?

............. ....the cortizol?

............. ....the hormones?

Sorry so many questions but I'm curious about the adrenal / cortizol / hormonal situation in these children. We've been told our dd's was affected too.

From: Carl and Naomi <cnvanveenshaw (DOT) ca>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 1:48:52 AMSubject: Re: Miralax- delayed puberty

Hello again, is seeing an endocrinologist and they are going to do a full workup in September when she turns 15years.

She has adrenal insufficiency and is her levels of other hormones are regularly check.

Thanks for the suggestions

Naomi- mom to almost 15- having mostly great days now that we are off the miralax

[Guest guest]

check for high blood pressure and high cholesterol..............

many Chiros have said they think her gallbladder, pancreas, and stomach aren't working properly, I wouldn't be suprised if the pituitary, spleen, adrenal, and everything elese wasn't working right either, it seems to have affected the brain as well. Documented by physician that it crossed the blood barrier. How are these children going to live well?

To: miralax Sent: Mon, July 26, 2010 6:12:42 PMSubject: Re: Re: Miralax- delayed puberty

It isn't that our DD isn't growing - she is, but she's still quite short for her age. I should go back and look at her well-visit records to see her growth rate before Miralax. It also worries me that she is not gaining weight. Again, she is at the high end of the chart for weight when compared to her height, but then, again, she's shorter than average!

Every time I remember just how very casual her pediatrician was about prescribing Miralax and then keeping her on it, telling me that it is perfectly safe, etc, I wanna spit nails!! I blame myself for not doing any research, especially after reading on the bottle itself how it was not intended for use with children or for longer than 10 days. I did bring it up with her pediatrician, but I trusted her word over my own eyes.

She still also has nightmares now and again. Not sure what a toddler can have nightmares about, but she wakes up screaming.

Again, it's very difficult to lay everything at the feet of Miralax, but then....

Do you think that the short stature also means that there has been damage done to the pituitary?

From: jeanie ward <dreamjeanie@ att.net>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 2:23:26 PMSubject: Re: Re: Miralax- delayed puberty

Our dd is short also, I've read many testimonies over the years here of many parents complaing of the same thing. The doc has documented that they aren't growing

From: Lillu <lillu0314yahoo (DOT) com>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 11:39:07 AMSubject: Re: Re: Miralax- delayed puberty

Our DD, who was on Miralax for about 9 months, from the age of almost 17 months to 26 months, is also quite short for her age. Her hair, although growing in length, is still sparse. We know she is growing by several CMs every month as we measure her ourselves, so maybe she's playing catch-up after the long episode with Miralax. She is also displaying some disturbing signs of OCD, although difficult to discern if this is her just being a toddler or something else (she has to bang on the laundry closet doors as she walks down the hallway; if she doesn't, she will go back and do it; She has to trace the electric cable for the lamp with her finger every time she turns it out before bed time; she is EXTREMELY particular about things being done the same way EVERY time, etc) I must admit that this does worry me, but I'm also praying that it is just our DD being a toddler.

Anyone else whose toddler is displaying OCD type behavior after being on Miralax?

From: jeanie ward <dreamjeanie@ att.net>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 8:54:46 AMSubject: Re: Re: Miralax- delayed puberty

Naomi, Lots of questions here........ ......... .

Is your dd tiny?

Has the pituitary gland situation been diagnosed or something they susupect?

Are they sure this is something that didn't form right or could it have been affected by medication?

Was there underlying issues before the miralax or otherwise normal?

How did they find out about the adrenal insuffieciency?

What tests did they perform to find our about the adrenal?

............. ....the cortizol?

............. ....the hormones?

Sorry so many questions but I'm curious about the adrenal / cortizol / hormonal situation in these children. We've been told our dd's was affected too.

From: Carl and Naomi <cnvanveenshaw (DOT) ca>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 1:48:52 AMSubject: Re: Miralax- delayed puberty

Hello again, is seeing an endocrinologist and they are going to do a full workup in September when she turns 15years.

She has adrenal insufficiency and is her levels of other hormones are regularly check.

Thanks for the suggestions

Naomi- mom to almost 15- having mostly great days now that we are off the miralax

[Guest guest]

Hi all, This is all so scary. My daughter was on Miralax for 6 months daily and on and off for 1 year or so. We have noticed and improvement in her behavior after we stopped the Miralax, however ha has some of the symptoms that are being described by the group. Does anyone have a list of test that children should get done after being on Miralax (e.g. blood cell, count, calcium levels, ultrasounds, etc)? I want to ask her doctor to order them. Thanks.AnaDe: jeanie ward Para: miralax Enviado: lunes, 26 de julio, 2010 19:14:26Asunto: Re: Re: Miralax- delayed puberty

check for high blood pressure and high cholesterol. ......... ....

many Chiros have said they think her gallbladder, pancreas, and stomach aren't working properly, I wouldn't be suprised if the pituitary, spleen, adrenal, and everything elese wasn't working right either, it seems to have affected the brain as well. Documented by physician that it crossed the blood barrier. How are these children going to live well?

From: Lillu <lillu0314yahoo (DOT) com>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 6:12:42 PMSubject: Re: Re: Miralax- delayed puberty

It isn't that our DD isn't growing - she is, but she's still quite short for her age. I should go back and look at her well-visit records to see her growth rate before Miralax. It also worries me that she is not gaining weight. Again, she is at the high end of the chart for weight when compared to her height, but then, again, she's shorter than average!

Every time I remember just how very casual her pediatrician was about prescribing Miralax and then keeping her on it, telling me that it is perfectly safe, etc, I wanna spit nails!! I blame myself for not doing any research, especially after reading on the bottle itself how it was not intended for use with children or for longer than 10 days. I did bring it up with her pediatrician, but I trusted her word over my own eyes.

She still also has nightmares now and again. Not sure what a toddler can have nightmares about, but she wakes up screaming.

Again, it's very difficult to lay everything at the feet of Miralax, but then....

Do you think that the short stature also means that there has been damage done to the pituitary?

From: jeanie ward <dreamjeanie@ att.net>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 2:23:26 PMSubject: Re: Re: Miralax- delayed puberty

Our dd is short also, I've read many testimonies over the years here of many parents complaing of the same thing. The doc has documented that they aren't growing

From: Lillu <lillu0314yahoo (DOT) com>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 11:39:07 AMSubject: Re: Re: Miralax- delayed puberty

Our DD, who was on Miralax for about 9 months, from the age of almost 17 months to 26 months, is also quite short for her age. Her hair, although growing in length, is still sparse. We know she is growing by several CMs every month as we measure her ourselves, so maybe she's playing catch-up after the long episode with Miralax. She is also displaying some disturbing signs of OCD, although difficult to discern if this is her just being a toddler or something else (she has to bang on the laundry closet doors as she walks down the hallway; if she doesn't, she will go back and do it; She has to trace the electric cable for the lamp with her finger every time she turns it out before bed time; she is EXTREMELY particular about things being done the same way EVERY time, etc) I must admit that this does worry me, but I'm also praying that it is just our DD being a toddler.

Anyone else whose toddler is displaying OCD type behavior after being on Miralax?

From: jeanie ward <dreamjeanie@ att.net>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 8:54:46 AMSubject: Re: Re: Miralax- delayed puberty

Naomi, Lots of questions here........ ......... .

Is your dd tiny?

Has the pituitary gland situation been diagnosed or something they susupect?

Are they sure this is something that didn't form right or could it have been affected by medication?

Was there underlying issues before the miralax or otherwise normal?

How did they find out about the adrenal insuffieciency?

What tests did they perform to find our about the adrenal?

............. ....the cortizol?

............. ....the hormones?

Sorry so many questions but I'm curious about the adrenal / cortizol / hormonal situation in these children. We've been told our dd's was affected too.

From: Carl and Naomi <cnvanveenshaw (DOT) ca>To: miralax@yahoogroups .comSent: Mon, July 26, 2010 1:48:52 AMSubject: Re: Miralax- delayed puberty

Hello again, is seeing an endocrinologist and they are going to do a full workup in September when she turns 15years.

She has adrenal insufficiency and is her levels of other hormones are regularly check.

Thanks for the suggestions

Naomi- mom to almost 15- having mostly great days now that we are off the miralax

[Guest guest]

Naomi, give these to your doc. Ileus is on there, many times. Sorry to hear about your dd. I would stronly suggest reading the FDA adverse reactions and the article fatal disnatremia and everything that's in the files section of the group.

To: miralax Sent: Wed, July 28, 2010 1:42:35 AMSubject: Re: Miralax- delayed puberty

Hello Jeanie

Our story is quite complicated. was born with an undiagnosed syndrome. She is severely affected in every way.

She is very small for her size and always has been, however, she did stop growing a few years ago when she was on the Miralax.

She has a condition called optic nerve hypolasia, it is a visual impairment, this condition usually goes with a pituitary dysfunction.

They actually missed the adrenal insufficiency for a long time, but she was getting sicker and sicker and was close to death, and finally they found it.

She had a very specific hormonal test done in hospital, with IV and steroids. Her levels were terrible. The doctors were shocked she did not have all the characteristics that goes with this problem.

She is know on steroids daily and is getting stronger, we wished so badly they could have helped her earlier in life, when she was chronically sick every week.

With the Miralax, I believe it was causing severe bowel obstructions, chronic illeus, bile backing up in her tummy.

When they took an X-ray of her bowel, they said she had pseudo- obstruction looking bowel. Which has no cure.

She was in chronic pain and cried all the time. It was horrible, the doctors started looking in other directions, seizures, pressure in head, mood disorders,

The drugs they tried on her almost did her in. It was unbelievable.

After reading more and more on this group, and then finally going with my instinct, I took her off the miralax, against the doctor’s orders.

Her GI was furious with me and personally called me at work to give me hell. I said NO, she is not going back on the Miralax,

Slowly she is getting better, her crying spells have gotten way better, she still has bad days, but no where’s near what was happening before.

I have told the doctors it was the Miralax, they seemed reluctant to believe me. However, after she had an X-ray a few months ago, the GI doctor noted it was one of the best bowel X-rays in a long time. I told her it was the Miralax, she agreed, but I assume she is still recommending it. I have told my pediatrician, if he has children like with crying spells, he should look at the Miralax as the culprit. I don’t really think he gets it.

I am 100% positive that Miralax was hurting my girl and causing her extreme pain and her quality of life was horrible, she was sedated and drugged up on narcotics.

This laxative is not supposed to be used daily. They are really hurting our children, I fear for all the kids on this crap.

Best of luck to everyone

Naomi

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