To Jana

[Guest guest]

Jana,

I'm going to answer several of your posts with this one, to save you

some reading :-).

I'm sorry that your emails haven't been answered at times. I'm sure

it feels like you're being ignored. I try to answer the posts, but

sometimes find that after having a flare and being off the puter for

a little while, there are so many emails that it is difficult to read

them all. I have been trying to tho and actually have gotten to where

I keep a notepad by my desk and list the numbers of the emails I need

to answer, tho I'm sure I still miss some. Sometimes, I feel so sad

for what the person is going through and that I cannot help, that I

don't know what to say. I suppose most people would prefer an answer,

even one that just says we're thinking of you, instead of silence.

I'm so sorry that you are in so much pain and you seem so sad. I

think that you must be a very strong person to be doing this without

the benefit of pain meds. It is great that you haven't given up hope

and that you know God is out there. All I can say is hang in there

and I'll pray for you.

I hope in the near future, more doctors take notice of this disease

and that there is much more research done. Right now, with so little

known about fm and the effects being system wide, there are sooo many

people out there trying to make money by selling this or that

to " help " . I think that the parts of the body affected will also

affect the response to the different " treatments " . All we can do is

pray that some concrete answers are found and out of that comes some

concrete help for all.

God Bless,

a

janahome2@a... wrote:

> I find it hard to get people to respond to my emails too. I cannot

say that I fully am going through what you are. I do have

fibromyalgia, but I could never handle a Job and kids and all the

other things you are responsible for. I should be asking you how you

do it. Many would disagree with me, but I find that excersise does

me no good, in fact I hurt worse when I try. It feels like the end

the world, and you wonder what your purpose in life is, if you can

only do so much. I wish I had the magic answer for you but I do

not. I myself am on disability, cannot clean my own house, I don't

have any children, and I barely move throughout the day. I want to

walk so badly in the shoes of others that seem to find some sort of

comfort, but the route they have taken is not working for me thus

far. I find much despair, but I also find hope the hardest thing to

kill. I hope there will be an answer to all this, I hope for the

days that are rare in which I feel no pain. That is what I hold

onto, along with God, I wonder what will become of me and I wonder

what to become of you.