Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 Hi a... No matter what anyone tells you,if you have had one or fifty surgeries and are in pain, then you are in pain. I see people who I believe are much worse off than me and feel bad for them and am told the same thing. I have come to believe that most people who suffer from Chronic pain are hero's for living through the day to day agony of this worlds suffering. I also will never say I am worse off than someone else because everyone's pain is different. Thanks for the nice welcome and I too am sorry for your suffering. I hope to remain in the group and make friends and maybe help a few people out who may need someone out here in cyber space to get them through a painful night or week or month. Also, just a warning, I may mispell a lot of words and sometimes not make a whole bunch of sense and I blame this on the medication and the lack of sleep. I sometimes go through days in a daze and never realize the time that has gone by. I met my Finacee on the web in a chatroom before I was operated on by the neorosurgeon and we have been together for ten years now. He is my best friend in the world and I sometimes worry that I am too much of a burden on him. Along with the pain I also suffer from depression and have been on medication for this but it just does not take away the sadness or the anger and those are the things that make me lie awake at night thinking things like, " Is this fair? " Why doesn;t it happen to mean people or people who just don't care about anyone? " I can see that everyone here has it hard, and it is sad but I hope that by coming together in a community such as this we can reach out for the support we need from others we would never have met otherwise. Just one more thing, I too make sure I always have extra pain meds with me. I am so tired of fighting with nurses and doctors in certain hospitals about my high doseage of pain meds. It's just so wrong. I sometimes find myself wondering why they can't feel the pain for just a minute and then see what they would say. Nice to meet you! Christi a wrote: > Your story brought tears to my eyes. You've been through so much; I feel like I have no right to complain about pain or my 15 surgeries after reading what's befallen you over the years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Christi wrote: I met my Finacee on the web in a chatroom before I was operated on by the neorosurgeon and we have been together for ten years now. He is my best friend in the world and I sometimes worry that I am too much of a burden on him. Christi, I met my husband online, too! We both played video poker at pogo.com (a free site where you play for worthless tokens, not money). Dave and I got to talking, one thing led to another, and before I knew it, he'd moved from Colorado to land to be with me! I didn't want to get married again, and it was a running joke with us that he'd propose every couple of months and I'd turn him down. Glad I finally gave in, though (although I maintain it's because I was on meds! LOL), because he's been terrific throughout this ordeal and I don't know how I could handle life without him now. Like you, I worry about being a burden, but then I remind myself that he sure knew what he was getting himself into when he said " I do. " Along with the pain I also suffer from depression and have been on medication for this but it just does not take away the sadness or the anger Oh, yes! The zoloft takes away the really bad thoughts (suicidal ideation) but it doesn't really affect the underlying depression. Kind of like the meds take the edge off of the pain, but my body still hurts most of the time. My body has been falling apart since I was in my early 30s, so almost 20 years now. Through it all, I somehow managed to bounce back. Broken knee, broken wrist, trapped ulnar and radial nerves, broken hip ,I recovered. (Okay, not so much from the hip, but still, I was back to doing almost what I'd been able to do beforehand.) But of all things, the facial pain is what's done me in. Even though I'm facing more arm and foot surgery, at least I know that those can be fixed, albeit for just a few years, as my nerves keep getting trapped over and over again. But with the face, there's no fix. Just treat the pain. So my choice is horrific pain all the time, or " just " pain and the brain fog of the meds. The computer has become my lifeline, my window into the outside world. I sometimes go out to the store or to dinner with Dave or a friend, but nowhere near as often as I used to, because there are days when I just can't manage to put clothes on. And I don't drive anymore because I'm so spacy that I feel it would be irresponsible to do so. The loss of independence is perhaps the worst side-effect of the meds for me. Well, I'm off to the pain doc today for my monthly check-in. Don't know if he's going to adjust my meds again or keep the status quo. At least he works with me and is trying. Guess I can't ask for much more than that. Hugs, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 " Christi " wrote: > > Hi, My name is Christi, I am 42 years old and live in New York State. > I was injured at work in 1987 Good morning and hello to all new members, I haven't been on line for a few days, and have missed many opportunities greeting all new people to Chronic_pain, I am sorry you need to be here, but ,In my opinion, you wont find a better group of supportive people on the planet. Again, welcome, I am very happy to have found this group myself recently too! Take care and feel better. /NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Christi, Welcome to the group. I like what you said about taking it one day at a time. I totally agree because otherwise it can all just be too overwhelming. I hope you find some comfort in this group. Take care, Caitlin Christi wrote:Mainly I am looking for people who, like me, suffer daily, and try to get through each day as it comes Recent Activity 23 New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 > Christi, > > I met my husband online, too! We both played video poker at pogo.com (a free site where you play for worthless tokens, not money). a. Sounds like you two really hit it off. I remember pogo. We used to play spades there till all hours of the night. LOL I am glad you also found someone who will love you for being you. My Finacee say it was my strength that made him first attracted to me and that sounds like what happened with you two. I have been down to land for my last 6 surgeries and absolutley love s Hopkins Hospital as they treated me so well there and then flew me back to NY to finish recovering so I could be closer to my family. I too know that a lot of pain I am feeling comes from depression and I am on 60mgs of Prozac but don't see that big of a difference. I have been on a few others but they always seem to have the weight gain as a side affect and I just cannot place anymore pressure on my spine by gaining any weight. I was 5'8 and weighed a good 150 pounds but was not heavy but look as if I am because even though I have lost inches in height, I have not lost weight and remain the same so I don't want to gain anymore. It really sucks. There is a great medication out that will help with my restless legs too but this also had a bad side effect of a extreme weight gain and I was on it for 2 weeks and gained 10 pounds before getting off of it. I guess we have to take the bad effects if we want to be able to breath without any pain. Thanks for sharing. I am sorry for your pain and hope one day we all will be pain free. Christi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 >caitlin wrote: I like what you said about taking it one day at a time. I totally agree because otherwise it can all just be too overwhelming. Hi Caitlin Thank you. I agree with the above as sometimes just going minute by minute is the only way to get through a pain crisis. I hope one day that nobody needs to suffer anymore and that there are ways for them to measure our physical pain so they stop jugding and just " prescribe to get by " Too many docs are afraid of pain meds and it is us who ends up suffering, not them or the FDA or the states insurance co. Second by second, minute by minute and thank god for the internet as none of us would have known where or when we could get this much support. Christi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 " Christi " wrote: > > Hi, My name is Christi, I am 42 years old and live in New York State. > I was injured at work in 1987 Christi welcome to the group from another New Yorker ( from Buffalo) and also started my road to chronic pain thru work injuries good luck Hope your having a pain free and interresting day Jim check out my site for personal info and photography http://www.gargoylesdomain.com There is only one difference between a madman and me. The madman thinks he is sane. I know I am mad. Salvador Dali __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Christi wrote:Too many docs are afraid of pain meds and it is us who ends up suffering, not them or the FDA or the states insurance co. I hear you Christi! I get prescribed a VERY limited amount of pain meds and can't even get ones with lower doses of Tylenol in them. I'm scared for my liver! They WILL give me meds that make me mentally unstable, obese, lethargic and manic though(but still in pain!). Go figure! Caitlin Recent Activity 19 New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
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