Guest guest Posted July 5, 2004 Report Share Posted July 5, 2004 Hi everyone, I was diagnosed with RA on March 31 of this year and I'm still having trouble accepting it as childish as that sounds. I just turned 38, I've never been one to take any meds and generally I take care of myself. The doctor has put me on plaquenil and again I'm embarassed to say I haven't started them yet-I'm so scared of side effects and then what if they don't work and I have to take something scarier. My rheumy doc said this is a normal reaction but I still feel like an idiot-only I can take care of myself. Anyhow, I just wanted to introduce myself and I hope I will learn some much needed info from this group and get and lend support to others. Dar. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2004 Report Share Posted July 5, 2004 Welcome Dar. Your reaction isn¹t childish. It is a very normal response. When you learn more about RA, you may come to fear the result of untreated RA rather than the side effects of the meds. That is what makes us pop those pills and inject ourselves with meds. We¹re all afraid of the side effects but just remember that just because a side effect is listed, it doesn¹t mean you will get it. The manufacturer is required to list the side effect even if it is very rare. In most cases, if you do have a side effect, it goes away when you discontinue the meds. Plaquenil has been used to treat RA for many years and the doctors know what to expect. It may take a few months for plaquenil to become effective, so the sooner you start, the sooner you¹ll know if it¹s working or it¹s time to try something else. How did your doctor diagnose you? a > Hi everyone, I was diagnosed with RA on March 31 of this year and I'm > still having trouble accepting it as childish as that sounds. I just > turned 38, I've never been one to take any meds and generally I take > care of myself. The doctor has put me on plaquenil and again I'm > embarassed to say I haven't started them yet-I'm so scared of side > effects and then what if they don't work and I have to take something > scarier. My rheumy doc said this is a normal reaction but I still > feel like an idiot-only I can take care of myself. Anyhow, I just > wanted to introduce myself and I hope I will learn some much needed > info from this group and get and lend support to others. Dar. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Hi , Welcome to the group. Have you posted any pics yet. I'm sure Amy told you we love to see pics : ) As for sleeping is he teething too? It seems our poor little guys cut a tooth or two right after they get the helmets - comes with being that age. Other thoughts would be heat. Has his body adjusted to the change (stopped sweating)? The helmet definitely keeps them warmer and means less clothes and more A/C. Do you have A/C? I see you are from MN so maybe not. Fans work well too. Have you decorated it yet? Maybe get some Nemo stickers to liven it up so it doesn't look so medicinal. That really helped me. mom to na (front page star!) DOC Grad > Hello, > > Just wanted to introduce myself, I am new to the board. > Amy from MN had told me this is a very supportive environment. > My 5 month old son just got a CranioCap last week (Plagio), should > have it on for about 3 months they said. > So far he is adapting better than we are (not sleeping so well > though). > Our OT is very nice, but the main Dr. we had consult w/ was very rude > and insensitive, which I found odd since his entire livelihood is > based on working w/ children. > Anyhow, any tips or support I find here will be a great help! > I have already looked around and found some good pointers. > Also hope to join in a Monday chat sometime soon! > Hopefully we won't need to battle our insurance on this one, we > are > yet to have a final answer yet. > > > Mom of Milan 5 months > Twin Cities, MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Hello I had just answered your other post. This one answered my ? as to what band Milan is in. Sorry, I " m still trying to catch up on some posts. Your son is at a great age for treatment, and you should see some very nice correction. Let us know how he does with it. He should be sleeping better in it as well, as he gets more used to it. Sandy Willow's Mom Torticollis resolved Cranio Germany Grad > Hello, > > Just wanted to introduce myself, I am new to the board. > Amy from MN had told me this is a very supportive environment. > My 5 month old son just got a CranioCap last week (Plagio), should > have it on for about 3 months they said. > So far he is adapting better than we are (not sleeping so well > though). > Our OT is very nice, but the main Dr. we had consult w/ was very rude > and insensitive, which I found odd since his entire livelihood is > based on working w/ children. > Anyhow, any tips or support I find here will be a great help! > I have already looked around and found some good pointers. > Also hope to join in a Monday chat sometime soon! > Hopefully we won't need to battle our insurance on this one, we > are > yet to have a final answer yet. > > > Mom of Milan 5 months > Twin Cities, MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 , Thanks! I was planning on taking some pics after I decorate his helmet up this weekend. He does look cute in the band, it looks a lot better than I had thought it would! It has been cooler here this summer in MN, we do have a/c but have only needed it once. He does not seem to sweat too much, and we do keep a small fan in room, I check on him a lot during the night since he just started to sleep in it (I feel like I am up every 2 hours again!). na is so cute, I showed her pic to everyone at work to try and explain what Mino's band would look like, and they were trying to help me decide how to decorate it. (I can only use stickers on mine I guess). Thanks for your help! Milan 5mos (CranioCap for Plagio) > > Hello, > > > > Just wanted to introduce myself, I am new to the board. > > Amy from MN had told me this is a very supportive environment. > > My 5 month old son just got a CranioCap last week (Plagio), should > > have it on for about 3 months they said. > > So far he is adapting better than we are (not sleeping so well > > though). > > Our OT is very nice, but the main Dr. we had consult w/ was very > rude > > and insensitive, which I found odd since his entire livelihood is > > based on working w/ children. > > Anyhow, any tips or support I find here will be a great help! > > I have already looked around and found some good pointers. > > Also hope to join in a Monday chat sometime soon! > > Hopefully we won't need to battle our insurance on this one, we > > are > > yet to have a final answer yet. > > > > > > Mom of Milan 5 months > > Twin Cities, MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Hi and welcome to the group. Sorry the main dr. is so rude. Please keep us posted. Angie and Jenna New to board > > Hello, > > Just wanted to introduce myself, I am new to the board. > Amy from MN had told me this is a very supportive environment. > My 5 month old son just got a CranioCap last week (Plagio), should > have it on for about 3 months they said. > So far he is adapting better than we are (not sleeping so well > though). > Our OT is very nice, but the main Dr. we had consult w/ was very rude > and insensitive, which I found odd since his entire livelihood is > based on working w/ children. > Anyhow, any tips or support I find here will be a great help! > I have already looked around and found some good pointers. > Also hope to join in a Monday chat sometime soon! > Hopefully we won't need to battle our insurance on this one, we > are > yet to have a final answer yet. > > > Mom of Milan 5 months > Twin Cities, MN > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 , Glad to see you made it over here! Just holler if you need advice or help about the CranioCap. Also, if you ever had a problem, Cheryl, Dr's Wood's nurse, is excellent. She knows her stuff and I always felt great after speaking w/ her. My Jaden was in his CranioCap for 4 months to the day, and I wouldn't be suprised if Milan is also (depending on growth spurts). Jaden also started his at 5 & 1/2 mo's. My advice is get as much mileage out of it as you can, and WAIT to make that final appt w/ Dr. Wood till after your orthotist feels he/she has done all the adjustments that can be made to it. That is what I did, because Jaden had lots more rounding out to do, and I knew once we saw Dr. Wood he'd say " leave it off, and let nature do the rest " . All the CranioCap mom's that I have spoken w/ have all been upset w/ this statement they each received from this guy and all share the same view: " if we wanted nature to take it's course, we would have never banded our baby in the first place! " . He is very frustrating to deal w/, and I understand why you are taken aback by him. Glad you found the 1st helmet helpful tips in the Files section, and again, let me know if you need any help. ~Amy, Mommy to Jaden 9 mo's MN CranioCap Grad! 8/6/04 Tort Resolved! 8/13/04 Started Chiro 6/29/04 mild scoliosis > Hello, > > Just wanted to introduce myself, I am new to the board. > Amy from MN had told me this is a very supportive environment. > My 5 month old son just got a CranioCap last week (Plagio), should > have it on for about 3 months they said. > So far he is adapting better than we are (not sleeping so well > though). > Our OT is very nice, but the main Dr. we had consult w/ was very rude > and insensitive, which I found odd since his entire livelihood is > based on working w/ children. > Anyhow, any tips or support I find here will be a great help! > I have already looked around and found some good pointers. > Also hope to join in a Monday chat sometime soon! > Hopefully we won't need to battle our insurance on this one, we > are > yet to have a final answer yet. > > > Mom of Milan 5 months > Twin Cities, MN Quote Link to comment Share on other sites More sharing options...
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