RE: RE: Procedure for my son

[Guest guest]

How old is your son?

Are they looking for Hirshsprungs?

Subject: RE: Procedure for my sonTo: miralax Date: Tuesday, September 28, 2010, 5:16 PM

Hi all, So I scheduled an anarectal manometry and a colonoscopy for my son for next week. I am totally freaking out as he needs to be put under for the procedure. Basically, he has been holding his poop and on laxative for about a year and at my insistence we are doing further testing to see if any damage has been done or if something more serious is wrong. Im of course having all sorts of second thoughts about the testing and am terrified. Has anyone been through this? If so would you share your results with me. Im having dr. Glassman do it. Any insight or info. is very much appreciated. Thanks,

[Guest guest]

My daughter had a colonoscopy and rectal biopsy at the beginning of the year. Thankfully they did rule out HD and everything was normal. The night before is rough for the clean out and she bled some from the biopsy but overall it wasn't too bad. FaithTo: miralax Sent: Wed, September 29, 2010 7:02:11

AMSubject: Re: RE: Procedure for my son

How old is your son?

Are they looking for Hirshsprungs?

Subject: RE: Procedure for my sonTo: miralax Date: Tuesday, September 28, 2010, 5:16 PM

Hi all, So I scheduled an anarectal manometry and a colonoscopy for my son for next week. I am totally freaking out as he needs to be put under for the procedure. Basically, he has been holding his poop and on laxative for about a year and at my insistence we are doing further testing to see if any damage has been done or if something more serious is wrong. Im of course having all sorts of second thoughts about the testing and am terrified. Has anyone been through this? If so would you share your results with me. Im having dr. Glassman do it. Any insight or info. is very much appreciated. Thanks,

[Guest guest]

I really dont know what he is looking for at first when I asked him he said a general answer like well every kid is so different there are so many things I couldnt possibly tell them all to you.. and then he said possible nerve damage, the anal muscles not constricting like it should.. never mentioned hurshsprings.. I dont even know what that is.. My child is 22 months..

To: miralax Sent: Wed, September 29, 2010 7:02:11 AMSubject: Re: RE: Procedure for my son

How old is your son?

Are they looking for Hirshsprungs?

Subject: RE: Procedure for my sonTo: miralax Date: Tuesday, September 28, 2010, 5:16 PM

Hi all, So I scheduled an anarectal manometry and a colonoscopy for my son for next week. I am totally freaking out as he needs to be put under for the procedure. Basically, he has been holding his poop and on laxative for about a year and at my insistence we are doing further testing to see if any damage has been done or if something more serious is wrong. Im of course having all sorts of second thoughts about the testing and am terrified. Has anyone been through this? If so would you share your results with me. Im having dr. Glassman do it. Any insight or info. is very much appreciated. Thanks,

[Guest guest]

Hi Jennie, Thanks for your response and concern. The gi doctor did mention he was concerned for nerve damage (r u born with hirshsprungs or dies it develop??). I think the manometer is to measure the contraction of the anal muscles ( my child was 2 mo preemie and has some weak muscles because of it).. But it's funny u mention uppers and reflux because my Child has a ton of reflux but it doesn't bother him so we have never taken medicine or anything for it.. What is the upper scope about? To answer your questions my child never had bowel movements until 6 months when he stated eating solid food and also when I startedFormula feeding him... Ever since hen hard painful poops and at this point he hasn't pushed out a poop in 1 year ... Just the laxatives .. When I have tried to wean him from the mineral oil it's been a nightmare .. I thought I would hear from lots of moms whose

children have had this... I just want to know what i can expect to come out of it.Thanks,Sent from my iPhone

Hi ! I hope you get answers soon. I wanted to mention about hirschsprungs. My son has this. It is in the colon typically and it is the intestines missing nerve cells. We need nerve cells to push out/contractions the stool. It usually is from the rectum up. I wanted to also mention many that think there child is holding, isnt. It is very hard especially for a child to go against nature and hold back stool very long. In nature contractions take over and push the stool out weither we want or not. Now some may hold long enough to harden and then it cant come out but typically does. Hirschsrpungs, motility issues are misdiagnoses many times as holding. Now even with saying that, many do report holding. I just think it is something to think about when it is thought a child is holding. Can you give us an idea of how your sons stool/gi was befor the year

ago

issues started?As far as the colonscopy, he well be ok mom. I understand your feelings/fear as my son has had many. It isnt as scary as it seems and they handle it quite well. Probably better than the parent handles it. Manometry? Is that an upper scope for reflux? Does he have reflux? My son also has had upper scope. Please keep us updated on test results. Jennie<><

Subject: RE: Procedure for my sonTo: miralax Date: Tuesday, September 28, 2010, 5:16 PM

Hi all, So I scheduled an anarectal manometry and a colonoscopy for my son for next week. I am totally freaking out as he needs to be put under for the procedure. Basically, he has been holding his poop and on laxative for about a year and at my insistence we are doing further testing to see if any damage has been done or if something more serious is wrong. Im of course having all sorts of second thoughts about the testing and am terrified. Has anyone been through this? If so would you share your results with me. Im having dr. Glassman do it. Any insight or info. is very much appreciated. Thanks,

[Guest guest]

The scopes are actually fairly easy for them. They have no clue and the recovery is mainly fatigue. The hardest would be the pre treatment of cleanout but that is easier than we thought would be. Clears, etc! The earlier the test in the morning the better. Once our sons scopes was done, you wouldnt know he even had them. The upper scope is basically the same as lower. My son had reflux and the scope showed the affects on his esophogus. It is coencidence that you mentioned 6mth started with constipation. That is when my sons started and I directly linked it to the DTaP. Each round the constipation got worse. They say you are born with HD but the diagnoses is usually within the 1st couple of months due to they cannot pass stool at all. My son's wasnt diagnosed until 9yrs(very rare). Even doctors stated that was odd. But this is because i truely believe it was

caused from his 5yrs vaccine round. He reacted within 5 mins and his intestines started shutting down and then the hd diagnoses. Although they say it is a fetal condition I researched it to death and discovered that reactions to anything can target the intestines, damage nerve cells, and then these nerve cells disapear into the body as if never been there. HD and many motility issues appears the same way, cells not there. So this is why I believe my son developed the appearance of hd. Infact in a personal hearing situation, we had "experts" show this happens. Damage of this affect can come from allergic reactions, allergies(mini allergic reactions), someone who produces to many mast cells, etc etc. Vaccines being at the top of the list. Miralax I suspect also affects the nerve cells in the intestinal tract. There was studies that showed PEG binds nerve endings in animals. You need those nerve endings to function. Mineral oil, sorry to add this to

your worries, but I have to add out of concern. Our son was on this when younger also. Ped scripted it. Anyways while at my sons nuero visit he advised us to take him off the mineral oil. He stated that it coats the intestinal walls and then medications, nutrition etc etc cant be properally absorbed. Once we took him off and it finally clear his system(difficult but well clear eventually) we seen huge improvements with our sons medications working. This includes antibiotics, seizure meds etc. Back then my son would required 2 and 3 rounds of antibiotics and still nothing would work. I realize now he recovered on own, not because of meds. A good thing as a replace ment is olive oil. Not only well it loosen the stools but it is a natural viral and bacterial killer as well. Many intestinal issues are just viral, bacterial and fungal/yeast issues and olive oil well kill that off. Olive oil doesnt coat the intestines.Here I go again, to much coffee:) But

as far as the scope, he well do good. The biggest issue is fatigue and maybe a lil grumpy(may have mild nausea and or hungry). The results are fairly quick. Always request copies of any test reports and keep. Your lil guy is going to be ok. Jennie<><

Subject: RE: Procedure for my sonTo: miralax Date: Tuesday, September 28, 2010, 5:16 PM

Hi all, So I scheduled an anarectal manometry and a colonoscopy for my son for next week. I am totally freaking out as he needs to be put under for the procedure. Basically, he has been holding his poop and on laxative for about a year and at my insistence we are doing further testing to see if any damage has been done or if something more serious is wrong. Im of course having all sorts of second thoughts about the testing and am terrified. Has anyone been through this? If so would you share your results with me. Im having dr. Glassman do it. Any insight or info. is very much appreciated. Thanks,

[Guest guest]

, have you ever tried kid calm?

To: "miralax " <miralax >Sent: Thu, September 30, 2010 11:10:43 AMSubject: Re: RE: Procedure for my son

Hi Jennie,

Thanks for your response and concern. The gi doctor did mention he was concerned for nerve damage (r u born with hirshsprungs or dies it develop??). I think the manometer is to measure the contraction of the anal muscles ( my child was 2 mo preemie and has some weak muscles because of it).. But it's funny u mention uppers and reflux because my Child has a ton of reflux but it doesn't bother him so we have never taken medicine or anything for it.. What is the upper scope about? To answer your questions my child never had bowel movements until 6 months when he stated eating solid food and also when I started

Formula feeding him... Ever since hen hard painful poops and at this point he hasn't pushed out a poop in 1 year ... Just the laxatives .. When I have tried to wean him from the mineral oil it's been a nightmare .. I thought I would hear from lots of moms whose children have had this... I just want to know what i can expect to come out of it.

Thanks,

Sent from my iPhone

Hi ! I hope you get answers soon. I wanted to mention about hirschsprungs. My son has this. It is in the colon typically and it is the intestines missing nerve cells. We need nerve cells to push out/contractions the stool. It usually is from the rectum up. I wanted to also mention many that think there child is holding, isnt. It is very hard especially for a child to go against nature and hold back stool very long. In nature contractions take over and push the stool out weither we want or not. Now some may hold long enough to harden and then it cant come out but typically does. Hirschsrpungs, motility issues are misdiagnoses many times as holding. Now even with saying that, many do report holding. I just think it is something to think about when it is thought a child is holding. Can you give us an idea of how your sons stool/gi was befor the year ago issues started?As far as the colonscopy, he well be ok mom. I understand your

feelings/fear as my son has had many. It isnt as scary as it seems and they handle it quite well. Probably better than the parent handles it. Manometry? Is that an upper scope for reflux? Does he have reflux? My son also has had upper scope. Please keep us updated on test results. Jennie<><

Subject: RE: Procedure for my sonTo: miralax Date: Tuesday, September 28, 2010, 5:16 PM

Hi all, So I scheduled an anarectal manometry and a colonoscopy for my son for next week. I am totally freaking out as he needs to be put under for the procedure. Basically, he has been holding his poop and on laxative for about a year and at my insistence we are doing further testing to see if any damage has been done or if something more serious is wrong. Im of course having all sorts of second thoughts about the testing and am terrified. Has anyone been through this? If so would you share your results with me. Im having dr. Glassman do it. Any insight or info. is very much appreciated. Thanks,

[Guest guest]

Jeanie,

sorry it took so long to reply ... my brother got married this w/e and we r extremely busy... we have recently tried kid calm... i was just giving him regular magnesium for awhile... I can never wean this kid off of anything... I feel like we will be on it forever,

thanks for all your emails.

To: miralax Sent: Thu, September 30, 2010 8:53:59 PMSubject: Re: RE: Procedure for my son

, have you ever tried kid calm?

To: "miralax " <miralax >Sent: Thu, September 30, 2010 11:10:43 AMSubject: Re: RE: Procedure for my son

Hi Jennie,

Thanks for your response and concern. The gi doctor did mention he was concerned for nerve damage (r u born with hirshsprungs or dies it develop??). I think the manometer is to measure the contraction of the anal muscles ( my child was 2 mo preemie and has some weak muscles because of it).. But it's funny u mention uppers and reflux because my Child has a ton of reflux but it doesn't bother him so we have never taken medicine or anything for it.. What is the upper scope about? To answer your questions my child never had bowel movements until 6 months when he stated eating solid food and also when I started

Formula feeding him... Ever since hen hard painful poops and at this point he hasn't pushed out a poop in 1 year ... Just the laxatives .. When I have tried to wean him from the mineral oil it's been a nightmare .. I thought I would hear from lots of moms whose children have had this... I just want to know what i can expect to come out of it.

Thanks,

Sent from my iPhone

Hi ! I hope you get answers soon. I wanted to mention about hirschsprungs. My son has this. It is in the colon typically and it is the intestines missing nerve cells. We need nerve cells to push out/contractions the stool. It usually is from the rectum up. I wanted to also mention many that think there child is holding, isnt. It is very hard especially for a child to go against nature and hold back stool very long. In nature contractions take over and push the stool out weither we want or not. Now some may hold long enough to harden and then it cant come out but typically does. Hirschsrpungs, motility issues are misdiagnoses many times as holding. Now even with saying that, many do report holding. I just think it is something to think about when it is thought a child is holding. Can you give us an idea of how your sons stool/gi was befor the year ago issues started?As far as the colonscopy, he well be ok mom. I understand your

feelings/fear as my son has had many. It isnt as scary as it seems and they handle it quite well. Probably better than the parent handles it. Manometry? Is that an upper scope for reflux? Does he have reflux? My son also has had upper scope. Please keep us updated on test results. Jennie<><

Subject: RE: Procedure for my sonTo: miralax Date: Tuesday, September 28, 2010, 5:16 PM

Hi all, So I scheduled an anarectal manometry and a colonoscopy for my son for next week. I am totally freaking out as he needs to be put under for the procedure. Basically, he has been holding his poop and on laxative for about a year and at my insistence we are doing further testing to see if any damage has been done or if something more serious is wrong. Im of course having all sorts of second thoughts about the testing and am terrified. Has anyone been through this? If so would you share your results with me. Im having dr. Glassman do it. Any insight or info. is very much appreciated. Thanks,

[Guest guest]

-How did the procedure go for your son?The scopes are actually fairly easy for them. They have no clue and the recovery is mainly fatigue. The hardest would be the pre treatment of cleanout but that is easier than we thought would be. Clears, etc! The earlier the test in the morning the better. Once our sons scopes was done, you wouldnt know he even had them. The upper scope is basically the same as lower. My son had reflux and the scope showed the affects on his esophogus. It is coencidence that you mentioned 6mth started with constipation. That is when my sons started and I directly linked it to the DTaP. Each round the constipation got worse. They say you are born with HD but the diagnoses is usually within the 1st couple of months due to they cannot pass stool at all. My son's wasnt diagnosed until 9yrs(very rare). Even doctors stated that was odd. But this is because i truely believe it was caused from his 5yrs vaccine round. He reacted within 5 mins and his intestines started shutting down and then the hd diagnoses. Although they say it is a fetal condition I researched it to death and discovered that reactions to anything can target the intestines, damage nerve cells, and then these nerve cells disapear into the body as if never been there. HD and many motility issues appears the same way, cells not there. So this is why I believe my son developed the appearance of hd. Infact in a personal hearing situation, we had "experts" show this happens. Damage of this affect can come from allergic reactions, allergies(mini allergic reactions), someone who produces to many mast cells, etc etc. Vaccines being at the top of the list. Miralax I suspect also affects the nerve cells in the intestinal tract. There was studies that showed PEG binds nerve endings in animals. You need those nerve endings to function. Mineral oil, sorry to add this to your worries, but I have to add out of concern. Our son was on this when younger also. Ped scripted it. Anyways while at my sons nuero visit he advised us to take him off the mineral oil. He stated that it coats the intestinal walls and then medications, nutrition etc etc cant be properally absorbed. Once we took him off and it finally clear his system(difficult but well clear eventually) we seen huge improvements with our sons medications working. This includes antibiotics, seizure meds etc. Back then my son would required 2 and 3 rounds of antibiotics and still nothing would work. I realize now he recovered on own, not because of meds. A good thing as a replace ment is olive oil. Not only well it loosen the stools but it is a natural viral and bacterial killer as well. Many intestinal issues are just viral, bacterial and fungal/yeast issues and olive oil well kill that off. Olive oil doesnt coat the intestines.Here I go again, to much coffee:) But as far as the scope, he well do good. The biggest issue is fatigue and maybe a lil grumpy(may have mild nausea and or hungry). The results are fairly quick. Always request copies of any test reports and keep. Your lil guy is going to be ok. Jennie<><Subject: RE: Procedure for my sonTo: miralax Date: Tuesday, September 28, 2010, 5:16 PM Hi all, So I scheduled an anarectal manometry and a colonoscopy for my son for next week. I am totally freaking out as he needs to be put under for the procedure. Basically, he has been holding his poop and on laxative for about a year and at my insistence we are doing further testing to see if any damage has been done or if something more serious is wrong. Im of course having all sorts of second thoughts about the testing and am terrified. Has anyone been through this? If so would you share your results with me. Im having dr. Glassman do it. Any insight or info. is very much appreciated. Thanks,

[Guest guest]

I actually cancled it and I'm foinc for a 2nd opinion on the 19th... Thanks for askingSent from my iPhone

-How did the procedure go for your son?The scopes are actually fairly easy for them. They have no clue and the recovery is mainly fatigue. The hardest would be the pre treatment of cleanout but that is easier than we thought would be. Clears, etc! The earlier the test in the morning the better. Once our sons scopes was done, you wouldnt know he even had them. The upper scope is basically the same as lower. My son had reflux and the scope showed the affects on his esophogus. It is coencidence that you mentioned 6mth started with

constipation. That is when my sons started and I directly linked it to the DTaP. Each round the constipation got worse. They say you are born with HD but the diagnoses is usually within the 1st couple of months due to they cannot pass stool at all. My son's wasnt diagnosed until 9yrs(very rare). Even doctors stated that was odd. But this is because i truely believe it was caused from his 5yrs vaccine round. He reacted within 5 mins and his intestines started shutting down and then the hd diagnoses. Although they say it is a fetal condition I researched it to death and discovered that reactions to anything can target the intestines, damage nerve cells, and then these nerve cells disapear into the body as if never been there. HD and many motility issues appears the same way, cells not there. So this is why I believe my son developed the appearance of hd. Infact in a personal hearing situation, we had "experts" show this happens. Damage of this affect can

come from allergic reactions, allergies(mini allergic reactions), someone who produces to many mast cells, etc etc. Vaccines being at the top of the list. Miralax I suspect also affects the nerve cells in the intestinal tract. There was studies that showed PEG binds nerve endings in animals. You need those nerve endings to function. Mineral oil, sorry to add this to your worries, but I have to add out of concern. Our son was on this when younger also. Ped scripted it. Anyways while at my sons nuero visit he advised us to take him off the mineral oil. He stated that it coats the intestinal walls and then medications, nutrition etc etc cant be properally absorbed. Once we took him off and it finally clear his system(difficult but well clear eventually) we seen huge improvements with our sons medications working. This includes antibiotics, seizure meds etc. Back then my son

would required 2 and 3 rounds of antibiotics and still nothing would work. I realize now he recovered on own, not because of meds. A good thing as a replace ment is olive oil. Not only well it loosen the stools but it is a natural viral and bacterial killer as well. Many intestinal issues are just viral, bacterial and fungal/yeast issues and olive oil well kill that off. Olive oil doesnt coat the intestines.Here I go again, to much coffee:) But as far as the scope, he well do good. The biggest issue is fatigue and maybe a lil grumpy(may have mild nausea and or hungry). The results are fairly quick. Always request copies of any test reports and keep. Your lil guy is going to be ok. Jennie<><Subject: RE: Procedure for my sonTo: miralax Date: Tuesday, September 28, 2010, 5:16 PM Hi all, So I scheduled an anarectal manometry and a colonoscopy for my son for next week. I am totally freaking out as he needs to be put under for the procedure. Basically, he has been holding his poop and on laxative for about a year and at my insistence we are doing further testing to see if any damage has been done

or if something more serious is wrong. Im of course having all sorts of second thoughts about the testing and am terrified. Has anyone been through this? If so would you share your results with me. Im having dr. Glassman do it. Any insight or info. is very much appreciated. Thanks,

[Guest guest]

I've been following your thread, and I gotta ask: "WHY?!?"

Those tests might have helped diagnose what is happening. There isn't any high risks associated with those tests.

Despite the large amounts of experience and individual research that the members of this group can contribute, scientific data from real tests might actually provide your child with a resolution.

I have been keeping my mouth shut on this forum of late, but "PLEASE, GET YOUR CHILD THE TESTS!"

From: miralax [mailto:miralax ] On Behalf Of EbbertSent: Tuesday, October 05, 2010 11:29 PMTo: miralax Subject: Re: RE: Procedure for my son

I actually cancled it and I'm foinc for a 2nd opinion on the 19th... Thanks for askingSent from my iPhone

-

How did the procedure go for your son?

The scopes are actually fairly easy for them. They have no clue and the recovery is mainly fatigue. The hardest would be the pre treatment of cleanout but that is easier than we thought would be. Clears, etc! The earlier the test in the morning the better. Once our sons scopes was done, you wouldnt know he even had them. The upper scope is basically the same as lower. My son had reflux and the scope showed the affects on his esophogus. It is coencidence that you mentioned 6mth started with constipation. That is when my sons started and I directly linked it to the DTaP. Each round the constipation got worse. They say you are born with HD but the diagnoses is usually within the 1st couple of months due to they cannot pass stool at all. My son's wasnt diagnosed until 9yrs(very rare). Even doctors stated that was odd. But this is because i truely believe it was caused from his 5yrs vaccine round. He reacted within 5 mins and his intestines started shutting down and then the hd diagnoses. Although they say it is a fetal condition I researched it to death and discovered that reactions to anything can target the intestines, damage nerve cells, and then these nerve cells disapear into the body as if never been there. HD and many motility issues appears the same way, cells not there. So this is why I believe my son developed the appearance of hd. Infact in a personal hearing situation, we had "experts" show this happens. Damage of this affect can come from allergic reactions, allergies(mini allergic reactions), someone who produces to many mast cells, etc etc. Vaccines being at the top of the list. Miralax I suspect also affects the nerve cells in the intestinal tract. There was studies that showed PEG binds nerve endings in animals. You need those nerve endings to function. Mineral oil, sorry to add this to your worries, but I have to add out of concern. Our son was on this when younger also. Ped scripted it. Anyways while at my sons nuero visit he advised us to take him off the mineral oil. He stated that it coats the intestinal walls and then medications, nutrition etc etc cant be properally absorbed. Once we took him off and it finally clear his system(difficult but well clear eventually) we seen huge improvements with our sons medications working. This includes antibiotics, seizure meds etc. Back then my son would required 2 and 3 rounds of antibiotics and still nothing would work. I realize now he recovered on own, not because of meds. A good thing as a replace ment is olive oil. Not only well it loosen the stools but it is a natural viral and bacterial killer as well. Many intestinal issues are just viral, bacterial and fungal/yeast issues and olive oil well kill that off. Olive oil doesnt coat the intestines.Here I go again, to much coffee:) But as far as the scope, he well do good. The biggest issue is fatigue and maybe a lil grumpy(may have mild nausea and or hungry). The results are fairly quick. Always request copies of any test reports and keep. Your lil guy is going to be ok. Jennie<><

Subject: RE: Procedure for my sonTo: miralax Date: Tuesday, September 28, 2010, 5:16 PM

Hi all, So I scheduled an anarectal manometry and a colonoscopy for my son for next week. I am totally freaking out as he needs to be put under for the procedure. Basically, he has been holding his poop and on laxative for about a year and at my insistence we are doing further testing to see if any damage has been done or if something more serious is wrong. Im of course having all sorts of second thoughts about the testing and am terrified. Has anyone been through this? If so would you share your results with me. Im having dr. Glassman do it. Any insight or info. is very much appreciated. Thanks,

No virus found in this incoming message.Checked by AVG - www.avg.comVersion: 9.0.862 / Virus Database: 271.1.1/3178 - Release Date: 10/05/10 02:34:00

[Guest guest]

Jack,Do u have any information as to what some possible outcomes may be ...I just don't feel informed enough ... For example they r looking for nerve damage .. Well if they find it what's the next step .. I'm hoping this new doctor informs me more and makes me more comfortable ..I hate how drs just act like u should do what they say period .. No dr has helped me I. The last year and a half all they do is push laxatives temporary fix and not fixingthe real problem.. Sent from my iPhone

I've been following your thread, and I gotta ask: "WHY?!?"

Those tests might have helped diagnose what is happening. There isn't any high risks associated with those tests.

Despite the large amounts of experience and individual research that the members of this group can contribute, scientific data from real tests might actually provide your child with a resolution.

I have been keeping my mouth shut on this forum of late, but "PLEASE, GET YOUR CHILD THE TESTS!"

From: miralax [mailto:miralax ] On Behalf Of EbbertSent: Tuesday, October 05, 2010 11:29 PMTo: miralax Subject: Re: RE: Procedure for my son

I actually cancled it and I'm foinc for a 2nd opinion on the 19th... Thanks for askingSent from my iPhone

-

How did the procedure go for your son?

The scopes are actually fairly easy for them. They have no clue and the recovery is mainly fatigue. The hardest would be the pre treatment of cleanout but that is easier than we thought would be. Clears, etc! The earlier the test in the morning the better. Once our sons scopes was done, you wouldnt know he even had them. The upper scope is basically the same as lower. My son had reflux and the scope showed the affects on his esophogus. It is coencidence that you mentioned 6mth started with constipation. That is when my sons started and I directly linked it to the DTaP. Each round the constipation got worse. They say you are born with HD but the diagnoses is usually within the 1st couple of months due to they cannot pass stool at all. My son's wasnt diagnosed until 9yrs(very rare). Even doctors stated that was odd. But this is because i truely believe it was caused from his 5yrs vaccine round. He reacted within 5 mins and his intestines started shutting down and then the hd diagnoses. Although they say it is a fetal condition I researched it to death and discovered that reactions to anything can target the intestines, damage nerve cells, and then these nerve cells disapear into the body as if never been there. HD and many motility issues appears the same way, cells not there. So this is why I believe my son developed the appearance of hd. Infact in a personal hearing situation, we had "experts" show this happens. Damage of this affect can come from allergic reactions, allergies(mini allergic reactions), someone who produces to many mast cells, etc etc. Vaccines being at the top of the list. Miralax I suspect also affects the nerve cells in the intestinal tract. There was studies that showed PEG binds nerve endings in animals. You need those nerve endings to function. Mineral oil, sorry to add this to your worries, but I have to add out of concern. Our son was on this when younger also. Ped scripted it. Anyways while at my sons nuero visit he advised us to take him off the mineral oil. He stated that it coats the intestinal walls and then medications, nutrition etc etc cant be properally absorbed. Once we took him off and it finally clear his system(difficult but well clear eventually) we seen huge improvements with our sons medications working. This includes antibiotics, seizure meds etc. Back then my son would required 2 and 3 rounds of antibiotics and still nothing would work. I realize now he recovered on own, not because of meds. A good thing as a replace ment is olive oil. Not only well it loosen the stools but it is a natural viral and bacterial killer as well. Many intestinal issues are just viral, bacterial and fungal/yeast issues and olive oil well kill that off. Olive oil doesnt coat the intestines.Here I go again, to much coffee:) But as far as the scope, he well do good. The biggest issue is fatigue and maybe a lil grumpy(may have mild nausea and or hungry). The results are fairly quick. Always request copies of any test reports and keep. Your lil guy is going to be ok. Jennie<><

Subject: RE: Procedure for my sonTo: miralax Date: Tuesday, September 28, 2010, 5:16 PM

Hi all, So I scheduled an anarectal manometry and a colonoscopy for my son for next week. I am totally freaking out as he needs to be put under for the procedure. Basically, he has been holding his poop and on laxative for about a year and at my insistence we are doing further testing to see if any damage has been done or if something more serious is wrong. Im of course having all sorts of second thoughts about the testing and am terrified. Has anyone been through this? If so would you share your results with me. Im having dr. Glassman do it. Any insight or info. is very much appreciated. Thanks,

No virus found in this incoming message.Checked by AVG - www.avg.comVersion: 9.0.862 / Virus Database: 271.1.1/3178 - Release Date: 10/05/10 02:34:00

[Guest guest]

-We had this procedure done on our son when he was 18 mos old and again when he was 8 (he also had other tests done during this time). At first, the ins. co. wasn't going to let us put him out for it - their policy was no anesethsia (however it's spelled). Of course I fought it and won eventually. It WAS scary to have my baby put out, at least he was in my arms when they administered the medication. He wasn't as scared and I felt better seeing him sleep. The procedure itself didn't take too long and everything came out negative. At first I was upset that I put him through all of that - we were in for 5 days. Then I realized we could move forward because we knew what he DIDN'T have. When tests are negative, that too gives information. Submitting your child to anything - GI procedures, immunizations, fluoride, school...it's all a personal, family decision. Decisions are best made when you have all the information and then feel comfortable with it. If you're not ready yet for it, then don't do it. When you get more info and feel fully informed, then do what you feel is right. Also, consider moving from doctors to naturopaths or a holistic nutritionist. They tend to understand how a body works holistically better than allopathic doctors; that's my experience anyway. Consider this part of getting information. Yes, it takes a long time. Yes, it can be expensive. BUT you have this board to get quality information, you have the internet to search quality documents and to find other information that helps you make decisions. That's just part of my story and all of my opinion. Do what feels right at the time. If you're on the fence, then it's not right. TracieJack,Do u have any information as to what some possible outcomes may be ...I just don't feel informed enough ... For example they r looking for nerve damage .. Well if they find it what's the next step .. I'm hoping this new doctor informs me more and makes me more comfortable ..I hate how drs just act like u should do what they say period .. No dr has helped me I. The last year and a half all they do is push laxatives temporary fix and not fixingthe real problem.. Sent from my iPhoneI've been following your thread, and I gotta ask: "WHY?!?" Those tests might have helped diagnose what is happening. There isn't any high risks associated with those tests. Despite the large amounts of experience and individual research that the members of this group can contribute, scientific data from real tests might actually provide your child with a resolution. I have been keeping my mouth shut on this forum of late, but "PLEASE, GET YOUR CHILD THE TESTS!" From: miralax [mailto:miralax ] On Behalf Of EbbertSent: Tuesday, October 05, 2010 11:29 PMTo: miralax Subject: Re: RE: Procedure for my son I actually cancled it and I'm foinc for a 2nd opinion on the 19th... Thanks for askingSent from my iPhone -How did the procedure go for your son?The scopes are actually fairly easy for them. They have no clue and the recovery is mainly fatigue. The hardest would be the pre treatment of cleanout but that is easier than we thought would be. Clears, etc! The earlier the test in the morning the better. Once our sons scopes was done, you wouldnt know he even had them. The upper scope is basically the same as lower. My son had reflux and the scope showed the affects on his esophogus. It is coencidence that you mentioned 6mth started with constipation. That is when my sons started and I directly linked it to the DTaP. Each round the constipation got worse. They say you are born with HD but the diagnoses is usually within the 1st couple of months due to they cannot pass stool at all. My son's wasnt diagnosed until 9yrs(very rare). Even doctors stated that was odd. But this is because i truely believe it was caused from his 5yrs vaccine round. He reacted within 5 mins and his intestines started shutting down and then the hd diagnoses. Although they say it is a fetal condition I researched it to death and discovered that reactions to anything can target the intestines, damage nerve cells, and then these nerve cells disapear into the body as if never been there. HD and many motility issues appears the same way, cells not there. So this is why I believe my son developed the appearance of hd. Infact in a personal hearing situation, we had "experts" show this happens. Damage of this affect can come from allergic reactions, allergies(mini allergic reactions), someone who produces to many mast cells, etc etc. Vaccines being at the top of the list. Miralax I suspect also affects the nerve cells in the intestinal tract. There was studies that showed PEG binds nerve endings in animals. You need those nerve endings to function. Mineral oil, sorry to add this to your worries, but I have to add out of concern. Our son was on this when younger also. Ped scripted it. Anyways while at my sons nuero visit he advised us to take him off the mineral oil. He stated that it coats the intestinal walls and then medications, nutrition etc etc cant be properally absorbed. Once we took him off and it finally clear his system(difficult but well clear eventually) we seen huge improvements with our sons medications working. This includes antibiotics, seizure meds etc. Back then my son would required 2 and 3 rounds of antibiotics and still nothing would work. I realize now he recovered on own, not because of meds. A good thing as a replace ment is olive oil. Not only well it loosen the stools but it is a natural viral and bacterial killer as well. Many intestinal issues are just viral, bacterial and fungal/yeast issues and olive oil well kill that off. Olive oil doesnt coat the intestines.Here I go again, to much coffee:) But as far as the scope, he well do good. The biggest issue is fatigue and maybe a lil grumpy(may have mild nausea and or hungry). The results are fairly quick. Always request copies of any test reports and keep. Your lil guy is going to be ok. Jennie<><Subject: RE: Procedure for my sonTo: miralax Date: Tuesday, September 28, 2010, 5:16 PM Hi all, So I scheduled an anarectal manometry and a colonoscopy for my son for next week. I am totally freaking out as he needs to be put under for the procedure. Basically, he has been holding his poop and on laxative for about a year and at my insistence we are doing further testing to see if any damage has been done or if something more serious is wrong. Im of course having all sorts of second thoughts about the testing and am terrified. Has anyone been through this? If so would you share your results with me. Im having dr. Glassman do it. Any insight or info. is very much appreciated. Thanks,No virus found in this incoming message.Checked by AVG - www.avg.comVersion: 9.0.862 / Virus Database: 271.1.1/3178 - Release Date: 10/05/10 02:34:00

[Guest guest]

I understand what you're saying. I have spent the past 3 years learning to treat doctors as consultants. You need to demand (nicely) that they explain themselves and educate you. You're paying them, and they work for you. Before moving on to the next doctor (2nd opinions are ALWAYS a good idea), leverage the doctor who has already seen your child and talk through everything with him/her.

Take a list of questions. Some questions might not even be appropriate, but that is how we learn. I have found that after you crack the doctor's shell and get them talking, they enjoy the sound of their own voice.

I like to stand in front of the exam room door if I have to. Don't be afraid to say "I don't understand' Most of us haven't had 12+ years of school, and years of medical experience. Tell the doctor, "I know you have explained it 3 times, but I still don't get it."

They might find nerve damage, they might find something else. None of it is the end of the world. My son has a fair amount of nerve damage, he was born with Spina Bifida. He is 2 1/2 and can't yet stand without holding onto something. He is happy, healthy (in relative terms) and is all there cognitively.

Have your pediatrician help coordinate. If you are meeting with a specialist, see if the pediatrican will sit in. See if there are any social workers or patient advocates at the hospital that can help you.

It is amazing what resources are out there that we simplay aren't aware of.

From: miralax [mailto:miralax ] On Behalf Of EbbertSent: Wednesday, October 06, 2010 10:34 PMTo: miralax Subject: Re: RE: Procedure for my son

Jack,

Do u have any information as to what some possible outcomes may be ...I just don't feel informed enough ... For example they r looking for nerve damage .. Well if they find it what's the next step .. I'm hoping this new doctor informs me more and makes me more comfortable ..I hate how drs just act like u should do what they say period .. No dr has helped me I. The last year and a half all they do is push laxatives temporary fix and not fixingthe real problem..

Sent from my iPhone

I've been following your thread, and I gotta ask: "WHY?!?"

Those tests might have helped diagnose what is happening. There isn't any high risks associated with those tests.

Despite the large amounts of experience and individual research that the members of this group can contribute, scientific data from real tests might actually provide your child with a resolution.

I have been keeping my mouth shut on this forum of late, but "PLEASE, GET YOUR CHILD THE TESTS!"

From: miralax [mailto:miralax ] On Behalf Of EbbertSent: Tuesday, October 05, 2010 11:29 PMTo: miralax Subject: Re: RE: Procedure for my son

I actually cancled it and I'm foinc for a 2nd opinion on the 19th... Thanks for askingSent from my iPhone

-

How did the procedure go for your son?

The scopes are actually fairly easy for them. They have no clue and the recovery is mainly fatigue. The hardest would be the pre treatment of cleanout but that is easier than we thought would be. Clears, etc! The earlier the test in the morning the better. Once our sons scopes was done, you wouldnt know he even had them. The upper scope is basically the same as lower. My son had reflux and the scope showed the affects on his esophogus. It is coencidence that you mentioned 6mth started with constipation. That is when my sons started and I directly linked it to the DTaP. Each round the constipation got worse. They say you are born with HD but the diagnoses is usually within the 1st couple of months due to they cannot pass stool at all. My son's wasnt diagnosed until 9yrs(very rare). Even doctors stated that was odd. But this is because i truely believe it was caused from his 5yrs vaccine round. He reacted within 5 mins and his intestines started shutting down and then the hd diagnoses. Although they say it is a fetal condition I researched it to death and discovered that reactions to anything can target the intestines, damage nerve cells, and then these nerve cells disapear into the body as if never been there. HD and many motility issues appears the same way, cells not there. So this is why I believe my son developed the appearance of hd. Infact in a personal hearing situation, we had "experts" show this happens. Damage of this affect can come from allergic reactions, allergies(mini allergic reactions), someone who produces to many mast cells, etc etc. Vaccines being at the top of the list. Miralax I suspect also affects the nerve cells in the intestinal tract. There was studies that showed PEG binds nerve endings in animals. You need those nerve endings to function. Mineral oil, sorry to add this to your worries, but I have to add out of concern. Our son was on this when younger also. Ped scripted it. Anyways while at my sons nuero visit he advised us to take him off the mineral oil. He stated that it coats the intestinal walls and then medications, nutrition etc etc cant be properally absorbed. Once we took him off and it finally clear his system(difficult but well clear eventually) we seen huge improvements with our sons medications working. This includes antibiotics, seizure meds etc. Back then my son would required 2 and 3 rounds of antibiotics and still nothing would work. I realize now he recovered on own, not because of meds. A good thing as a replace ment is olive oil. Not only well it loosen the stools but it is a natural viral and bacterial killer as well. Many intestinal issues are just viral, bacterial and fungal/yeast issues and olive oil well kill that off. Olive oil doesnt coat the intestines.Here I go again, to much coffee:) But as far as the scope, he well do good. The biggest issue is fatigue and maybe a lil grumpy(may have mild nausea and or hungry). The results are fairly quick. Always request copies of any test reports and keep. Your lil guy is going to be ok. Jennie<><

Subject: RE: Procedure for my sonTo: miralax Date: Tuesday, September 28, 2010, 5:16 PM

Hi all, So I scheduled an anarectal manometry and a colonoscopy for my son for next week. I am totally freaking out as he needs to be put under for the procedure. Basically, he has been holding his poop and on laxative for about a year and at my insistence we are doing further testing to see if any damage has been done or if something more serious is wrong. Im of course having all sorts of second thoughts about the testing and am terrified. Has anyone been through this? If so would you share your results with me. Im having dr. Glassman do it. Any insight or info. is very much appreciated. Thanks,

No virus found in this incoming message.Checked by AVG - www.avg.comVersion: 9.0.862 / Virus Database: 271.1.1/3178 - Release Date: 10/05/10 02:34:00

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You are sooo right.. thank you so much for that . I needed a bit more confidence and you just gave it to me

To: miralax Sent: Thu, October 7, 2010 8:28:04 PMSubject: RE: RE: Procedure for my son

I understand what you're saying. I have spent the past 3 years learning to treat doctors as consultants. You need to demand (nicely) that they explain themselves and educate you. You're paying them, and they work for you. Before moving on to the next doctor (2nd opinions are ALWAYS a good idea), leverage the doctor who has already seen your child and talk through everything with him/her.

Take a list of questions. Some questions might not even be appropriate, but that is how we learn. I have found that after you crack the doctor's shell and get them talking, they enjoy the sound of their own voice.

I like to stand in front of the exam room door if I have to. Don't be afraid to say "I don't understand' Most of us haven't had 12+ years of school, and years of medical experience. Tell the doctor, "I know you have explained it 3 times, but I still don't get it."

They might find nerve damage, they might find something else. None of it is the end of the world. My son has a fair amount of nerve damage, he was born with Spina Bifida. He is 2 1/2 and can't yet stand without holding onto something. He is happy, healthy (in relative terms) and is all there cognitively.

Have your pediatrician help coordinate. If you are meeting with a specialist, see if the pediatrican will sit in. See if there are any social workers or patient advocates at the hospital that can help you.

It is amazing what resources are out there that we simplay aren't aware of.

From: miralax [mailto:miralax ] On Behalf Of EbbertSent: Wednesday, October 06, 2010 10:34 PMTo: miralax Subject: Re: RE: Procedure for my son

Jack,

Do u have any information as to what some possible outcomes may be ...I just don't feel informed enough ... For example they r looking for nerve damage .. Well if they find it what's the next step .. I'm hoping this new doctor informs me more and makes me more comfortable ..I hate how drs just act like u should do what they say period .. No dr has helped me I. The last year and a half all they do is push laxatives temporary fix and not fixingthe real problem..

Sent from my iPhone

I've been following your thread, and I gotta ask: "WHY?!?"

Those tests might have helped diagnose what is happening. There isn't any high risks associated with those tests.

Despite the large amounts of experience and individual research that the members of this group can contribute, scientific data from real tests might actually provide your child with a resolution.

I have been keeping my mouth shut on this forum of late, but "PLEASE, GET YOUR CHILD THE TESTS!"

From: miralax [mailto:miralax ] On Behalf Of EbbertSent: Tuesday, October 05, 2010 11:29 PMTo: miralax Subject: Re: RE: Procedure for my son

I actually cancled it and I'm foinc for a 2nd opinion on the 19th... Thanks for askingSent from my iPhone

-

How did the procedure go for your son?

The scopes are actually fairly easy for them. They have no clue and the recovery is mainly fatigue. The hardest would be the pre treatment of cleanout but that is easier than we thought would be. Clears, etc! The earlier the test in the morning the better. Once our sons scopes was done, you wouldnt know he even had them. The upper scope is basically the same as lower. My son had reflux and the scope showed the affects on his esophogus. It is coencidence that you mentioned 6mth started with constipation. That is when my sons started and I directly linked it to the DTaP. Each round the constipation got worse. They say you are born with HD but the diagnoses is usually within the 1st couple of months due to they cannot pass stool at all. My son's wasnt diagnosed until 9yrs(very rare). Even doctors stated that was odd. But this is because i truely believe it was caused from his 5yrs vaccine round. He reacted within 5 mins and his intestines

started shutting down and then the hd diagnoses. Although they say it is a fetal condition I researched it to death and discovered that reactions to anything can target the intestines, damage nerve cells, and then these nerve cells disapear into the body as if never been there. HD and many motility issues appears the same way, cells not there. So this is why I believe my son developed the appearance of hd. Infact in a personal hearing situation, we had "experts" show this happens. Damage of this affect can come from allergic reactions, allergies(mini allergic reactions), someone who produces to many mast cells, etc etc. Vaccines being at the top of the list. Miralax I suspect also affects the nerve cells in the intestinal tract. There was studies that showed PEG binds nerve endings in animals. You need those nerve endings to function. Mineral oil, sorry to add this to your worries, but I have to add out

of concern. Our son was on this when younger also. Ped scripted it. Anyways while at my sons nuero visit he advised us to take him off the mineral oil. He stated that it coats the intestinal walls and then medications, nutrition etc etc cant be properally absorbed. Once we took him off and it finally clear his system(difficult but well clear eventually) we seen huge improvements with our sons medications working. This includes antibiotics, seizure meds etc. Back then my son would required 2 and 3 rounds of antibiotics and still nothing would work. I realize now he recovered on own, not because of meds. A good thing as a replace ment is olive oil. Not only well it loosen the stools but it is a natural viral and bacterial killer as well. Many intestinal issues are just viral, bacterial and fungal/yeast issues and olive oil well kill that off. Olive oil doesnt coat the intestines.Here I go again, to much coffee:) But as far as the scope, he well do

good. The biggest issue is fatigue and maybe a lil grumpy(may have mild nausea and or hungry). The results are fairly quick. Always request copies of any test reports and keep. Your lil guy is going to be ok. Jennie<><

Subject: RE: Procedure for my sonTo: miralax Date: Tuesday, September 28, 2010, 5:16 PM

Hi all, So I scheduled an anarectal manometry and a colonoscopy for my son for next week. I am totally freaking out as he needs to be put under for the procedure. Basically, he has been holding his poop and on laxative for about a year and at my insistence we are doing further testing to see if any damage has been done or if something more serious is wrong. Im of course having all sorts of second thoughts about the testing and am terrified. Has anyone been through this? If so would you share your results with me. Im having dr. Glassman do it. Any insight or

info. is very much appreciated. Thanks,

No virus found in this incoming message.Checked by AVG - www.avg.comVersion: 9.0.862 / Virus Database: 271.1.1/3178 - Release Date: 10/05/10 02:34:00

No virus found in this incoming message.Checked by AVG - www.avg.comVersion: 9.0.862 / Virus Database: 271.1.1/3181 - Release Date: 10/06/10 14:34:00