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Barby,

I had a pain in the same place and the doctors thought it was a stomach

ulcer. They had me on Zantac for 2 months but it didn't help. It turned

out to be Plurisy (is that the right spelling?)

Steve Lawson.

------------

Nordgren1@... wrote:

>

> Liz,

> I have a question about pain. My pain has never been RAP but has been in

> the center right below the sternum.

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Guest guest

I've had chest pains that I was told was pleurisy (I don't know if

that's the right spelling!). Interestingly, after they did the EGD to

fix my varices I had the same kind of pain, but more severe. Since

that's healed up I haven't had any more problems.

athan

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Guest guest

That's pretty interesting.

used to get pleurasy (I can't spell it either) pretty regularly before

her transplant. Her doctors acted like they didn't really know what was

causing it but it sounds like it might be PSC related.

The standard treatment was a few days of prednisone which usually worked.

The pain was pretty debilitating when it happened.

Thankfully no recurrances since transplant!

Roy T.

Re: question

> Barby,

>

> I had a pain in the same place and the doctors thought it was a stomach

> ulcer. They had me on Zantac for 2 months but it didn't help. It turned

> out to be Plurisy (is that the right spelling?)

>

> Steve Lawson.

> ------------

>

> Nordgren1@... wrote:

> >

> > Liz,

> > I have a question about pain. My pain has never been RAP but has been

in

> > the center right below the sternum.

>

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  • 2 weeks later...
Guest guest

Hi Everyone!!!

Do we have a Lawyer in our group? (Please don't worry, no one is being

sued <grin>) Our research group has a few minor questions, that we could

use a lawyers help with. I don't mean to impose on anyone, but would

appreciate the help!

Thanks in advance!

Love,

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  • 2 months later...
Guest guest

Jackie:

Sounds similar to me. The only real abnormal result on bloodwork

since my gallbladder surgery was my ANA pattern was speckled and my

antinuclear antibodies which were elevated slightly at 1:80. The

doctor didn't check them on the blood tests he ordered the past two

times. So that was from about a month after my GB surgery (5 months

ago).

It seems like my liver doctor (who I go see again on Monday) isn't

concerned about me right now. I think he just wants to monitor and

wait and see if I ever get any symptoms. Although he indicated the

last time I was there that he thinks I do have " something " and it is

probably cholangitis. I think he doesn't want to put me through an

ERCP until I have symptoms. I guess that is probably the best way to

go, but it can be frustrating not knowing if I have PSC. I think

since he is the director of the liver transplant unit at a large

hospital, he sees many people much sicker than me and my minor

symptoms don't concern him. I do feel lucky to have him monitor me

though since I don't like my other options in the town I live in.

Thanks,

Judy

> Hi Judy:

>

> My husband has had normal liver profiles. His ALT and AST were

elevated one

> time during a trip to the ER (which started this whole roller

coaster ride).

> They kept him for observation overnight and see what happened with

the

> levels. They decreased on their own, but they decided to do a ERCP

(they had

> a cancellation). After the ERCP, they determined he did not have

PSC. They

> thought he might have Autoimmune Hepatitis, so they did the liver

biopsy and

> drew blood like every week or every other week. Anyway, the only

thing out

> of the ordinary was he had a high ANA titer.

>

> They decided to do another ERCP. When they did they used a

different machine

> and something with a balloon to look further into the ducts. After

this,

> they compared the findings to the first ERCP and decided he had

PSC. They

> started him on Actigall 900mg and I convinced the doctor to

increase to 1200

> about 2 months ago and hopefully will increase to 1500 soon. His

LFT's were

> normal before starting the Actigall, even his Alk phos was in the

normal

> range.

>

> Since being diagnosed, Ken says that occasionally he feels

something in the

> liver area. He says it's not pain and not discomfort, but as if

someone had

> softly touched him. Since increasing his dosage he has not had

this

> " symptom " .

>

> Jackie

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Judy,,

we wouldn't take Aspirin or Paracetamol if we read the bottle! <g>.

Paracetamol is bad for the Liver!!!

Steve.

------------------

Judy Nieman wrote:

>

> Hi:

> I guess I shouldn't have read the bottle first! lol

> Judy

>

> > >

> > > Hi:

> > > Last visit to my liver doctor he put me on 1000 mg a day of URSO.

> I

> > > had never been on any meds before for my PSC. He originally gave

> it

> > > to me for the itching I was having and the itching has let up

> quite a

> > > bit. Do you all think I should go ahead and take it anyhow? I

> see

> > > that there are quite a few side effects. My only other symptom

> right

> > > now is fatigue and some back discomfort in the kidney area off

> and on

> > > and I don't know if the back discomfort has anything to do with

> PSC.

> > > Judy

> > >

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