Guest guest Posted January 29, 2011 Report Share Posted January 29, 2011 All, our friends and us started a big thing within the military, well, let's say we turned up the heat a bit. So, now I love to get your input on some things. My hubby has had steroids which he got worse after literally and visibleand of course very physically. So did my friends hubby, too. My hubby was told MS her hubby was told Parkinson's and then idiopathic calcification of the basel ganglia....lala. Both tested positive for Lyme in western blot and . Anyhow, they treat both of our hubbies BUT what we want more input about MRI findings. See the military is all about things they see. My hubby has Dawson fingers and yet he is getting better with abx , supplements, and of course rifing. My friends man is now allowed officially to be treated according to Dr. J treatment which my man is on , too. Anyone have any idea where to find good stuff on MRI findings, such as Dawson fingers and calcification? Because the military is like this, get better quick or we label you otherwise....I will go all the way because my man has a year into treatment and has made improvement beyond what you see in so called "typical" MS... i.e. I will go congressional but we have so many others responding to our news paper article now with Lyme especially in N.C. Fort Bragg, we may have some opportunity here to make an important change for many! Please help if you can with info to shut some of these airheads, god complex docs up. Sorry I'm sounding angry but for us it has been a 3.5 year fight against "them" and I'm sick and tired of the ignorance! Thanks! Blessings, BiancaBy the way I know my hubby would be dead by now if it was up to "them" my friends husband without her fight " he would likely not see this year until the end... So sad and we want your input on good resources if you have any. Maybe just maybe this could be big, it's worth a try. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2011 Report Share Posted January 30, 2011 If you have some moneu Dct Klinghart know so much in seattle . Marie To: Lyme_and_Rife Sent: Fri, January 28, 2011 11:48:11 PMSubject: Help! All, our friends and us started a big thing within the military, well, let's say we turned up the heat a bit. So, now I love to get your input on some things. My hubby has had steroids which he got worse after literally and visibleand of course very physically. So did my friends hubby, too. My hubby was told MS her hubby was told Parkinson's and then idiopathic calcification of the basel ganglia....lala. Both tested positive for Lyme in western blot and . Anyhow, they treat both of our hubbies BUT what we want more input about MRI findings. See the military is all about things they see. My hubby has Dawson fingers and yet he is getting better with abx , supplements, and of course rifing. My friends man is now allowed officially to be treated according to Dr. J treatment which my man is on , too. Anyone have any idea where to find good stuff on MRI findings, such as Dawson fingers and calcification? Because the military is like this, get better quick or we label you otherwise....I will go all the way because my man has a year into treatment and has made improvement beyond what you see in so called "typical" MS... i.e. I will go congressional but we have so many others responding to our news paper article now with Lyme especially in N.C. Fort Bragg, we may have some opportunity here to make an important change for many! Please help if you can with info to shut some of these airheads, god complex docs up. Sorry I'm sounding angry but for us it has been a 3.5 year fight against "them" and I'm sick and tired of the ignorance! Thanks! Blessings, BiancaBy the way I know my hubby would be dead by now if it was up to "them" my friends husband without her fight " he would likely not see this year until the end... So sad and we want your input on good resources if you have any. Maybe just maybe this could be big, it's worth a try. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2011 Report Share Posted January 30, 2011 Hi Bianca,I have no experience with Dawson fingers or calcification... Have you Googled this? There seems to be a lot of info in links, but I don't know what is good and what is not so good info... http://www.google.com/search?client=safari & rls=en & q=mri+findings+dawsons+fingers & ie=UTF-8 & oe=UTF-8 http://www.google.com/search?client=safari & rls=en & q=mri+findings+calcification & ie=UTF-8 & oe=UTF-8 There is no doubt if you know my story that steroids and Lyme are very bad, they throw Lyme into overdrive and one worsens quickly... If I am not mistaken, steroids are a valid treatment for MS and one should see improvement if they are used. Your hubby worsened with steroids and this is what happens to people with Lyme. And if studies are incorrectly interprited, the wrong dx and thus wrong treatments are sadly the results... It is hard to believe with all of our modern medical technology, misinterprited results still do happen... Stick up for what you feel is right.. I only wish I could offer you more, hopefully others here will... Jim Help! Message List Reply | Delete Message #20351 of 20385 < Prev | Next > All, our friends and us started a big thing within the military, well, let's say we turned up the heat a bit. So, now I love to get your input on some things. My hubby has had steroids which he got worse after literally and visible and of course very physically. So did my friends hubby, too. My hubby was told MS her hubby was told Parkinson's and then idiopathic calcification of the basel ganglia....lala. Both tested positive for Lyme in western blot and . Anyhow, they treat both of our hubbies BUT what we want more input about MRI findings. See the military is all about things they see. My hubby has Dawson fingers and yet he is getting better with abx , supplements, and of course rifing. My friends man is now allowed officially to be treated according to Dr. J treatment which my man is on , too. Anyone have any idea where to find good stuff on MRI findings, such as Dawson fingers and calcification? Because the military is like this, get better quick or we label you otherwise.... I will go all the way because my man has a year into treatment and has made improvement beyond what you see in so called " typical " MS... i.e. I will go congressional but we have so many others responding to our news paper article now with Lyme especially in N.C. Fort Bragg, we may have some opportunity here to make an important change for many! Please help if you can with info to shut some of these airheads, god complex docs up. Sorry I'm sounding angry but for us it has been a 3.5 year fight against " them " and I'm sick and tired of the ignorance! Thanks! Blessings, Bianca By the way I know my hubby would be dead by now if it was up to " them " my friends husband without her fight " he would likely not see this year until the end... So sad and we want your input on good resources if you have any. Maybe just maybe this could be big, it's worth a try. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 Yes , I agree with Jim, They do not know what they do neurologists. One prayed me to take steroid I refused . i tis a dispearate speciality where they can do close to nothing in most of the case, so they give a very dangerous immun edepressant to relive very temporalty a person and send them to the grave quicly welldone. I got steroid just once: in my frozen shoulder. one month an dahlf later I had my first paralysy. The neurologist refused to accept it was a lyme including at eh hospital including in front of 2 positive test they are in rails they know ms then it is ms . Now I am not paralysed anymore with the coil machine, Cs , ldn flle from steroid lik eit would be a plague as it is Marie To: Lyme and Rife Group Jim! <Lyme_and_Rife >Sent: Sun, January 30, 2011 5:26:00 PMSubject: Re: Help! Hi Bianca, I have no experience with Dawson fingers or calcification... Have you Googled this? There seems to be a lot of info in links, but I don't know what is good and what is not so good info... http://www.google.com/search?client=safari & rls=en & q=mri+findings+dawsons+fingers & ie=UTF-8 & oe=UTF-8 http://www.google.com/search?client=safari & rls=en & q=mri+findings+calcification & ie=UTF-8 & oe=UTF-8 There is no doubt if you know my story that steroids and Lyme are very bad, they throw Lyme into overdrive and one worsens quickly... If I am not mistaken, steroids are a valid treatment for MS and one should see improvement if they are used. Your hubby worsened with steroids and this is what happens to people with Lyme. And if studies are incorrectly interprited, the wrong dx and thus wrong treatments are sadly the results... It is hard to believe with all of our modern medical technology, misinterprited results still do happen... Stick up for what you feel is right.. I only wish I could offer you more, hopefully others here will...Jim Help! Message List Reply | Delete Message #20351 of 20385 < Prev | Next > All, our friends and us started a big thing within the military, well, let's say we turned up the heat a bit. So, now I love to get your input on some things. My hubby has had steroids which he got worse after literally and visibleand of course very physically. So did my friends hubby, too. My hubby was told MS her hubby was told Parkinson's and then idiopathic calcification of the basel ganglia....lala. Both tested positive for Lyme in western blot and . Anyhow, they treat both of our hubbies BUT what we want more input about MRI findings. See the military is all about things they see. My hubby has Dawson fingers and yet he is getting better with abx , supplements, and of course rifing. My friends man is now allowed officially to be treated according to Dr. J treatment which my man is on , too. Anyone have any idea where to find good stuff on MRI findings, such as Dawson fingers and calcification? Because the military is like this, get better quick or we label you otherwise....I will go all the way because my man has a year into treatment and has made improvement beyond what you see in so called "typical" MS... i.e. I will go congressional but we have so many others responding to our news paper article now with Lyme especially in N.C. Fort Bragg, we may have some opportunity here to make an important change for many! Please help if you can with info to shut some of these airheads, god complex docs up. Sorry I'm sounding angry but for us it has been a 3.5 year fight against "them" and I'm sick and tired of the ignorance! Thanks! Blessings, BiancaBy the way I know my hubby would be dead by now if it was up to "them" my friends husband without her fight " he would likely not see this year until the end... So sad and we want your input on good resources if you have any. Maybe just maybe this could be big, it's worth a try. hI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2011 Report Share Posted April 24, 2011 Dear Dana, You are at the right place to heal, do not fear. My husband dyed from ALS in 1 year. h edid no tlisten to most of th ealternative treatment I told hime about . A few years later I was dignosed with lyme a few years later I had the first paralysis. i tbegan in the feet I tryed everything you could think of gettin gotu og paralysis for a while then relapsing worse until i was on a wheel chair when I got to this forum I began to get out of my hell slowly. Now I am ou tof th ewheel chair. i prayed a lot and was helped very closely by God. I was diagnosed as a progressive MS then as ALS then a MS again and so on My new husband began to have paralysis also recently in his throat diffculty of swallowing. I applyed to him my treatment and it worked as long as he does it . here is the protocol that works for me and for him: Aenema of ozonated water 5 days a week( following the coil machine that we do every 2 weeks 6 seconds) WElchol 3 pills during each important meals genrally twice a day to absorb the neurotoxines ozone slow intramuscular we do it at home with our own push seringe and ozone generator. gerovital 5 cc every other day intramuscular in the morning we do everything ourselve we began with a Doctor then did not need him anymore . I take LDN in the morning 3mg, he does not I do 2 colonic a week due to colon partial paralysis th elast paralysis i still have for detox also. if I do not do it it is a catastrophy paralysi comes right back, if you can afford it do the colonic 2 to 3 time a week until theparalysis receid, the coil machin 6 seconds every 2 weeks as i have severe herx each time . If you need any info email me privatly I will be more than happy to answer . Just know that hte EMEM i snot enought to cross the bon eto get to the medullar chord only the coil can do this to my knowledge Silver 2 bottle a day . each of theses treatment if I try to stop it paralysi fight back so it is all togoether that works I agree 100% with brendan the detox is an absolute necessary things needs to be vigourus and tedious it is vital . God bless you Heal good and hang on there you will make it as everyone there Marie To: Lyme_and_Rife Sent: Sat, April 23, 2011 11:28:14 PMSubject: Re: HELP! Hi Dana,Like yourself, I was diagnosed with lyme late last year. But I was also diagnosed with ALS in March 2009. My condition is far far more advanced than yours, in that I have already lived past the my "use by date" as given to me at the time of my ALS diagnosis.I cannot emphasize enough what a blessing it is for you to have found out now that you have LD, as Lena has also mentioned. What is important for you now is to firmly establish what your fundamental Lyme treatment will be, eg. Rife, Salt/C, Herbals, abxs (eek), etc., and set out a strategy and follow it religiously. When treating Lyme, there will be times when you think it is not working or that you are going backward, but if you are following that treatment protocol correctly (and not trying to cut corners), stick to it and you will come through.Once you have your treatment program in action, then depending on your herx levels, etc., you can then choose to add some additional treatments to support your fundamental program. Eg. If you are Rifing, then you might later add Salt/c or MMS, etc. As you go along, keep in touch with the board and you will get all the support you need.Regardless of what treatment modality you choose, make sure that you have a good detox program running at the same time. Many fall for the trap that the detox is not real important, but it is. Detox is just as important as the treatment itself, if not more. If you have questions about detoxing, post them on the board. There are many here who are a wealth of information on this topic and are only too happy to help.But aside from these specific Lyme treatments, there are some things that you can do to help your body fight against the onset of the ALS symptoms - if that is what they are. It appears that the main factor that causes a lyme patients to present with ALS symptoms, is their inability to handle excess glutamate - possibly something genetic. It is this excess glutamate that over fires the motor neurons that causes their death. Muscle twitches (fasciculations) that are common with AL:S patients are evidence of this over firing. In lyme patients, an excess of glutamate is created through the borrelia's production of ammonia. So taking supplements to reduce that ammonia will help. But also your diet is important. You need to avoid foods containing high glutamate levels (and there are plenty - google it) and also foods containing excitotoxins such as aspartate, MSG, flavorings, "diet" sweeteners, etc. It's impossible to remove all glutamate from your diet and its impossible to remove all the ammonia, but the more you can, the more you will slow the glutamate damage until you are able to reduce the lyme bacterial burden down enough. Finally, I can highly recommend that you also take good doses of antioxidants. Vit C, Vit E, etc. Taking super high doses is good, but you will get more benefit by taking good doses of a selection of antioxidants. You also may consider looking at Low Dose Naltrexone (LDN). I know of ALS patients who have started taking it and have seen their ALS symptoms disappear altogether - the earlier on in the progression you are, the better it seems to work, although there is benefit to be had at any stage. Many find it stops the progression altogether. LDN also has the advantage that it boosts your immune sysntem, which can only help when fight Lyme. Oh, I nearly forgot, make sure you magnesium intake is sufficient as well. As far as your current symptoms, if you do the things I've suggested, you may see them disappear or reduce somewhat. With the swallowing and breathing (but particularly the swallowing) just try going without wearing any deodorant for 4 or 5 days. I mean NO DEODORANT at all, not even natural stuff. I had read some info from others, but I have also proven beyond doubt that it has an enormous affect on my swallowing, so I don't wear it at all now. Maybe that's why people do visit me anymore? ; )Feel free to contact me if I can help any further.-Take care,-n Subject: HELP!To: Lyme_and_Rife Received: Sunday, 24 April, 2011, 2:40 AM I was dx in december with neuro lyme....overcame and cognition is now 100%, but the last few weeks I have now had swallowing, breathing and muscle weakness...the breathing is really scaring me, I don't have a LLMD, as I am an herbalist I have treated myself up to this point. I am mildly anemic and have started adding iron to my supps. I notice some days the breathing is better others not as swallowing comes and goes, the weakness in left arm comes and goes but they are always apparent...any thoughts of what to do. I finally found a supposed LLMD in FT Worth Texas that I am going to see next thursday, maybe he can help. My fear is that these are ALS symptoms and my uncle died two years ago of ALS I think he had lyme he was a hunter/fisher for 40 years. My mom was just dx with chronic lyme, so i am confused. dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2011 Report Share Posted April 25, 2011 Was your husbands ALS caused from Lyme? Also, I am able to eat, but I have to really be mindful, and focused 100 %. Is the coiling helping to improve your new husbands swallowing issue? If so, what is the frequency? Neurologist said they think I have ALS. > > > > > >Subject: HELP! > >To: Lyme_and_Rife > >Received: Sunday, 24 April, 2011, 2:40 AM > > > > > >Â > >I was dx in december with neuro lyme....overcame and cognition is now 100%, but > >the last few weeks I have now had swallowing, breathing and muscle > >weakness...the breathing is really scaring me, I don't have a LLMD, as I am an > >herbalist I have treated myself up to this point. I am mildly anemic and have > >started adding iron to my supps. I notice some days the breathing is better > >others not as swallowing comes and goes, the weakness in left arm comes and goes > >but they are always apparent...any thoughts of what to do. I finally found a > >supposed LLMD in FT Worth Texas that I am going to see next thursday, maybe he > >can help. My fear is that these are ALS symptoms and my uncle died two years ago > >of ALS I think he had lyme he was a hunter/fisher for 40 years. My mom was just > >dx with chronic lyme, so i am confused. dana > > > > > > > Quote Link to comment Share on other sites More sharing options...
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