Guest guest Posted July 9, 2000 Report Share Posted July 9, 2000 Please remove me from your mailing list. I think your list is WONDERFUL, but unfortunately, I simply can't keep up with all the emails and messages. If I can get to them in the future, I would like to rejoin. Thank you for providing such a valuable source of information. Alice -- Join the most exciting community of women on the web! iVillage.com's FREE membership gets you private email, your own home page, special discounts and sweepstakes, and dozens of problem-solving tools. http://www.ivillage.com/frame/join_email.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 > Mr. Humphrey from Kirkman (the TMG which didnt seem to help > our son, yet) and other listmates who participated in this subject > in making me more open minded about what folks are saying here. Jawah, I don't know how long he has been taking the TMG but if it is not working switch to the DMG! I know TMG is supose to be better, but for some kids like my own it seems to have no effect. Also, alot of parents don't see the effect until it is stopped. Then they see regression. That's what happened to us when we switched and since I had started alot of new things it took me about 9 months to figure it out. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 What is TBM? Thanks , Mom to , 7 yrs. old. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 Please tell me what TBM stands for! Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2001 Report Share Posted March 15, 2001 This is for getz66@.... My name is Marina Eddy and I am a social worker activist currently involved with both a toxic tort and workman's compensation claim in Baltimore land after becoming ill with asthma, allergies, fatigue, cognitive memory problems and multiple chemical sensitivities while working in a building in Towson, MD. I began a campaign at work and was harassed on the job (of course). Finally, when my health continued to decline I was forced to choose between my health and my job. To make a long story short after much campaigning, publicity and political lobbying we were able to have all the employees relocated out of the building. While I have no expertise in identifying the molds or what is displayed on the pictures, I can tell you from my own experience that what is in the photos is more than likely a health hazard. The first step is finding a good physician to treat your illnesses, because it is a one way street....once afflicted, you are sensitized and with each exposure, you become triggered, aggravated and can get to the point of permanent disability. I suggest you find a good toxic tort lawyer and consider asking your employer to relocate you off site. What worked for our group were letters from our physicians documenting the necessity of a mold free workplace and requesting relocation due to all the physical illnesses provoked by the toxic workplace. If it was me, under no circumstances would I jeopardize my health and well-being given the conditions displayed in your photos. Cheers Marina Eddy, LMSW Compuangel@... -----Original Message----- From: [mailto: ] Sent: Thursday, March 15, 2001 4:44 AM Subject: [] Digest Number 805 There are 14 messages in this issue. Topics in this digest: 1. Re: NEED HELP IN BUFFALO NY From: getz66@... 2. Release of Report: POISONED SCHOOLS: Invisible Threats, Visible Actions From: Irene Wilkenfeld <irw@...> 3. Fw: Release of Report: POISONED SCHOOLS: Invisible Threats, Visible Actions From: " bherk " <bherk@...> 4. Bush is Predictable From: " bherk " <bherk@...> 5. WOOOOOO [symphonicHealth] Fw: Quackbuster " expert witness " may be charged with PERJURY in Florida Case... (fwd) From: Angel MCS <jap2bemc@...> 6. 2.5 Billion Years Ago From: " bherk " <bherk@...> 7. Everything you always wanted to know about Bioterrorism From: " bherk " <bherk@...> 8. BBC News - New homes harbour 'toxic chemicals' and More From: " bherk " <bherk@...> 9. A new gene test can identify a dangerous bacterium endemic in US hospitals From: " bherk " <bherk@...> 10. Progress on technology to cut greenhouse-gas emissions is " faster than anticipated " From: " bherk " <bherk@...> 11. Analysis: Biblical plagues hit Britain From: " bherk " <bherk@...> 12. Mutant space fungus is bogus, experts say From: " bherk " <bherk@...> 13. Sen. Bob , R-N.H. Chairs Senate Environment and Public Works Committee From: " bherk " <bherk@...> 14. From the " Allergy " Forum From: " bherk " <bherk@...> ________________________________________________________________________ ________________________________________________________________________ Message: 1 Date: Wed, 14 Mar 2001 11:10:45 -0000 From: getz66@... Subject: Re: NEED HELP IN BUFFALO NY > Are you for real? Don't insult our intelligence by your make believe world. > > Rodney Allman > Envirosafe > Indoor Environmental Testing > rallman@c... > Rodney, I don't understand what you mean " are you for real " . Does it mean you do not believe the conditions ? If thats the case I invite you to come and see and or test for yourself. buffalo ny ----- Original Message ----- > From: getz66@y... > @y... > Sent: Tuesday, March 13, 2001 8:51 PM > Subject: [] need help in buffalo NY > > > I've been exposed to these conditions for about three years now. I am > very ill all the time and I believe I finally know why. Do the pics on > the link look dangerous to anyone ? I need to work for a pay check but > my health is getting worse every day I go to work. the pics are of my > workplace. Is this a workers comp. case or a toxic tort case? I did > tell my employer about the conditions a year ago and they did nothing > to fix it. > http://photos./bc/getz66?d & .flabel=fld1 & .src=ph > I hope link works > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2001 Report Share Posted March 15, 2001 thanks so much for responding Marina. In my case I am already sick and have been for over a year. Now other employee's are also getting ill. I have changed doctor's 5 times trying to find 1 that knows something about toxic mold. I have my first appt. with my 5th dr. on next tue. I'm wondering if you were compensated in any way for your problems ? (worker's comp., or class action lawsuit?) The reason I ask is because the more I read about Toxic mold the worse the health consequences are. Some I have heard are even permenant. I have also heard that the only recourse I may have is workers comp. Are you awrare of any of these laws ?? I really do appreciate you taking your time to respond. getz66@... > > Are you for real? Don't insult our intelligence by your make > believe world. > > > > Rodney Allman > > Envirosafe > > Indoor Environmental Testing > > rallman@c... > > > > Rodney, I don't understand what you mean " are you for real " . Does > it mean you do not believe the conditions ? If thats the case I > invite you to come and see and or test for yourself. buffalo ny > > > > > > > ----- Original Message ----- > > From: getz66@y... > > @y... > > Sent: Tuesday, March 13, 2001 8:51 PM > > Subject: [] need help in buffalo NY > > > > > > I've been exposed to these conditions for about three years now. > I am > > very ill all the time and I believe I finally know why. Do the > pics on > > the link look dangerous to anyone ? I need to work for a pay > check but > > my health is getting worse every day I go to work. the pics are > of my > > workplace. Is this a workers comp. case or a toxic tort case? I > did > > tell my employer about the conditions a year ago and they did > nothing > > to fix it. > > http://photos./bc/getz66?d & .flabel=fld1 & .src=ph > > I hope link works > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 Permenant ? You bet! On November 21,st I lost a 29 year old realative to one of the molds. You are in for a long fight butI think but it is well worth it for those to come and yourself. --- getz66@... wrote: > thanks so much for responding Marina. In my case I > am already sick > and have been for over a year. Now other employee's > are also getting > ill. I have changed doctor's 5 times trying to find > 1 that knows > something about toxic mold. I have my first appt. > with my 5th dr. on > next tue. > I'm wondering if you were compensated in any way for > your problems ? > (worker's comp., or class action lawsuit?) The > reason I ask is > because the more I read about Toxic mold the worse > the health > consequences are. Some I have heard are even > permenant. > I have also heard that the only recourse I may have > is workers comp. > Are you awrare of any of these laws ?? I really do > appreciate you > taking your time to respond. getz66@... > > > > > > > > > > > > > Are you for real? Don't insult our intelligence > by your make > > believe world. > > > > > > Rodney Allman > > > Envirosafe > > > Indoor Environmental Testing > > > rallman@c... > > > > > > > Rodney, I don't understand what you mean " are > you for real " . Does > > it mean you do not believe the conditions ? If > thats the case I > > invite you to come and see and or test for > yourself. buffalo ny > > > > > > > > > > > > > > ----- Original Message ----- > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2001 Report Share Posted March 31, 2001 In a message dated 3/31/01 2:00:26 AM Pacific Standard Time, writes: > Don't know which site gave her the idea she's going through menopause! > LOL > Gail > > . LMAO, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 'dwarfism ' wrote: ==== - - Looking to unsubscribe? Don't e-mail the list! Just send a blank e-mail to d ....' > Take a look to the attachment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 In a message dated 7/3/2002 9:20:24 AM Central Daylight Time, writes: > >From: Ara Leigh <chibizlady@...> > >Date: Sun, 30 Jun 2002 18:57:45 -0700 (PDT) > > > >My name is Ara. I have had partial epilepsy all my life, with never a > >medication which would make them go away, never a nutirtional handling > that > >would work all the time. I heard about a new drug called Keppra two years > > >ago. I waited and I learned new things. I got advice from yogis and > >others about my brain problem. There was still a problem in this one area > > >of my brain that would not go away. When I read the description of how > >Keppra works I knew it was the one for me. It does exactly what I need. > >So, the neurologist gave it to me, and it works for me. I am 45 years old > > >and the cognitive problems the partial sensory seizures caused me made my > >life a continuous disaster. Now I have a new life. So, any of you with > >partial seizures who have not had any luck with meds, check out Keppra, > >made by UCB Pharma of Belgium. Best, Ara > > Ara, What are the symptoms of your seizures? Is your sz disorder idiopathic? How often did/do you have them? Has your seizure focus been identified on the EEG? Is your baseline EEG normal? How long have you been on the Keppra? The reason I'm so curious is b/c my daughter too has a complex partial sz disorder that affects her rt. side and occurs usually during sleep when she is arousing. Keppra worked for her for 10months (she was totally sz free). She recently has started having her sz during sleep again even after we tried to max her out on Keppra. I've been a disaster the past 3wks. dealing with this. We've added Lamictal and she had her first sz free night in the past 3wks last night. Anyone have experience, good or bad with Lamictal? My family insists their must be some connection with the summer/heat since it's been almost exactly a year ago that she was initially diagnosed with epilepsy. I disagree, although I guess it's possible it could be an exacerbating trigger. I appreciate any thoughts.... (Jordan's Mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 Thank you. I have a different problem. Apparently my plastic is wearing and 1 doctor says the plastic particles are forming next to my stem. He doesn't see any loosening of the stem or cup but feels I should replace the liner within the next 1-2 years and clean the area of the plastic particles to prevent bone damage. My second opinion doesn't see anything out of the usual wear of the cup and some minor shifting of the stem within the cup. He doesn't recommend surgery at this time. I have a third opinion next week at The Hospital for Special Surgery. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2005 Report Share Posted March 20, 2005 I feel for you. I had one Surgeon saying I urgently needed to replace my hip, but that I needed to transfer to another hospital that specialised in Joint replacement to have it done. I transfered and the new Surgeon said it wasn't urgent and put me on the " some time in the future " category. I finally had the hip done 2.5 years later, by Surgeon 2's replacement, while the surgeon was on sickleave. He was horrified that I had been left so long. The capsule where the foreign matter was collecting had burst, and the cup had completely come away from the bone. Added to that I had burred the cup and head because of the liner being completely worn through. When they opened me up I was full of black fluid which took a lot to get rid of. That said, my new hip is not much chop. I am 6 months post op, and worse than I was before I had my hip revised. Whether I have extra problems from waiting too long I don't know. Sometimes I think I should have just left it. My clients often comment that I was walking better before I had the hip revised than since. I had much more intense acute pain then, but not the constant night ache I have now. Cursory acute pain is easier than chronic pain to live with. I saw the surgeon last week and he says that the pain is because of the muscles being damaged and suggested that I use a stick and continue to take painkillers. I was in a lot of pain that day and rather bad tempered and gave him a piece of my mind. I came out with a referal to the physio *smile*. I always told my husband that I would not live with worse quality of life. I tend to agree with my clients who tell me there are worse things than dying. Aussie Margaret Re: Digest Number 805 > Thank you. I have a different problem. Apparently my plastic is wearing > and 1 doctor says the plastic particles are forming next to my stem. He > doesn't see any loosening of the stem or cup but feels I should replace the liner > within the next 1-2 years and clean the area of the plastic particles to > prevent bone damage. My second opinion doesn't see anything out of the usual > wear of the cup and some minor shifting of the stem within the cup. He doesn't > recommend surgery at this time. I have a third opinion next week at The > Hospital for Special Surgery. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2005 Report Share Posted March 20, 2005 Dear Margaret, You have talked about your night pain before. I don't know if you have read the postings Leigh and I have had about low level infection? One of the symptoms of low level infection is night pain. Have they checked your hip fluid to see if there is a low level infection? Low level infection will not show up in a blood test, other than in raised inflammation levels. Anyway, I am not a doctor and this may be a red herring, but having heard the horrendous story of your burst and the black fluid, one does wonder if some infection might have got in. It might be worth while exploring? You should not have to be in such pain one would think. Eleanor Ps Just curious--what is your job? (You don't have to answer this.) Re: Digest Number 805 I feel for you. I had one Surgeon saying I urgently needed to replace my hip, but that I needed to transfer to another hospital that specialised in Joint replacement to have it done. I transfered and the new Surgeon said it wasn't urgent and put me on the " some time in the future " category. I finally had the hip done 2.5 years later, by Surgeon 2's replacement, while the surgeon was on sickleave. He was horrified that I had been left so long. The capsule where the foreign matter was collecting had burst, and the cup had completely come away from the bone. Added to that I had burred the cup and head because of the liner being completely worn through. When they opened me up I was full of black fluid which took a lot to get rid of. That said, my new hip is not much chop. I am 6 months post op, and worse than I was before I had my hip revised. Whether I have extra problems from waiting too long I don't know. Sometimes I think I should have just left it. My clients often comment that I was walking better before I had the hip revised than since. I had much more intense acute pain then, but not the constant night ache I have now. Cursory acute pain is easier than chronic pain to live with. I saw the surgeon last week and he says that the pain is because of the muscles being damaged and suggested that I use a stick and continue to take painkillers. I was in a lot of pain that day and rather bad tempered and gave him a piece of my mind. I came out with a referal to the physio *smile*. I always told my husband that I would not live with worse quality of life. I tend to agree with my clients who tell me there are worse things than dying. Aussie Margaret Re: Digest Number 805 > Thank you. I have a different problem. Apparently my plastic is wearing > and 1 doctor says the plastic particles are forming next to my stem. He > doesn't see any loosening of the stem or cup but feels I should replace the liner > within the next 1-2 years and clean the area of the plastic particles to > prevent bone damage. My second opinion doesn't see anything out of the usual > wear of the cup and some minor shifting of the stem within the cup. He doesn't > recommend surgery at this time. I have a third opinion next week at The > Hospital for Special Surgery. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2005 Report Share Posted March 21, 2005 Hi Eleanor, I run a healthy ageing program. We have a website at http://users.bigpond.net.au/skylark/ I will talk further with my muscloskeletal doctor when I see him next. I just feel pretty fed up with it all at the moment. Aussie Margaret Re: Digest Number 805 > > > > Thank you. I have a different problem. Apparently my > plastic is wearing > > and 1 doctor says the plastic particles are forming next > to my stem. He > > doesn't see any loosening of the stem or cup but feels I > should replace the liner > > within the next 1-2 years and clean the area of the > plastic particles to > > prevent bone damage. My second opinion doesn't see > anything out of the usual > > wear of the cup and some minor shifting of the stem > within the cup. He doesn't > > recommend surgery at this time. I have a third opinion > next week at The > > Hospital for Special Surgery. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2005 Report Share Posted March 21, 2005 Margaret I clicked the 60 and Better website you gave us the drooled over the offerings of your group. You must have a very interesting and challenging job. I wish there was a program like that in my neightborhood. AND and saw your picture with you co-workers! I wished I could have walked up to where you were sitting and say, " Hello " . Here is wishing you well and clarity on your physical troubles at the moment. LOVE RUTH --- Margaret <zztinau@...> wrote: > Hi Eleanor, > > I run a healthy ageing program. We have a website > at > http://users.bigpond.net.au/skylark/ > > I will talk further with my muscloskeletal doctor > when I > see him next. > > I just feel pretty fed up with it all at the moment. > > Aussie Margaret > > Re: Digest > Number 805 > > > > > > > Thank you. I have a different problem. > Apparently my > > plastic is wearing > > > and 1 doctor says the plastic particles are > forming > next > > to my stem. He > > > doesn't see any loosening of the stem or cup but > feels > I > > should replace the liner > > > within the next 1-2 years and clean the area of > the > > plastic particles to > > > prevent bone damage. My second opinion doesn't > see > > anything out of the usual > > > wear of the cup and some minor shifting of the > stem > > within the cup. He doesn't > > > recommend surgery at this time. I have a third > opinion > > next week at The > > > Hospital for Special Surgery. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 Hi Margaret, I just wanted to agree with what Elenor said below. I had chronic bone infections (pelvis result of a plevic osteotomy) on and off for 10 years as I discused with Eleanor prior to the THR. The pain (achey in the bone at night) was often put down to arthritis as my white cell count was never raised, until the infection worked its way to the surface eventally froming an abscess each time a process that too about a year each time in between me having the wound surgically cleaned out. There is a man at hip Universe who had for 2 years felt his first hip replacement was problematic who has recently had it diagnosed as infection by joint aspiration which aways makes me worry when people say they are in pain and the docs just say live with it. Anyway, its probably us just being cautious but it is a thought especially if you feel any bone pain. I'm with you on not walking better before the surgery-although it may be just that we had a lot to repair in the surgery and are taking time to heal. I was joyously called hop-along in a 'jokey'manner by a work collegue today ( and I work in a hospital) who I may never be civil to again! But at least I'm pain free and able to exercise which is the thought that keeps me rehabing intensely at 6 months post op, Leigh > Dear Margaret, > > You have talked about your night pain before. I don't know if you have > read the postings Leigh and I have had about low level infection? One > of the symptoms of low level infection is night pain. Have they checked > your hip fluid to see if there is a low level infection? Low level > infection will not show up in a blood test, other than in raised > inflammation levels. > > Anyway, I am not a doctor and this may be a red herring, but having > heard the horrendous story of your burst and the black fluid, one does > wonder if some infection might have got in. It might be worth while > exploring? You should not have to be in such pain one would think. > Eleanor > > Ps Just curious--what is your job? (You don't have to answer this.) > > Re: Digest Number 805 > > > I feel for you. > > I had one Surgeon saying I urgently needed to replace my > hip, but that I needed to transfer to another hospital that > specialised in Joint replacement to have it done. > > I transfered and the new Surgeon said it wasn't urgent and > put me on the " some time in the future " category. > > I finally had the hip done 2.5 years later, by Surgeon 2's > replacement, while the surgeon was on sickleave. He was > horrified that I had been left so long. The capsule where > the foreign matter was collecting had burst, and the cup > had completely come away from the bone. Added to that I > had burred the cup and head because of the liner being > completely worn through. When they opened me up I was full > of black fluid which took a lot to get rid of. > > That said, my new hip is not much chop. I am 6 months post > op, and worse than I was before I had my hip revised. > Whether I have extra problems from waiting too long I don't > know. Sometimes I think I should have just left it. > > My clients often comment that I was walking better before I > had the hip revised than since. I had much more intense > acute pain then, but not the constant night ache I have > now. Cursory acute pain is easier than chronic pain to > live with. > > I saw the surgeon last week and he says that the pain is > because of the muscles being damaged and suggested that I > use a stick and continue to take painkillers. I was in a > lot of pain that day and rather bad tempered and gave him a > piece of my mind. I came out with a referal to the physio > *smile*. > > I always told my husband that I would not live with worse > quality of life. I tend to agree with my clients who tell > me there are worse things than dying. > > Aussie Margaret > > Re: Digest Number 805 > > > > Thank you. I have a different problem. Apparently my > plastic is wearing > > and 1 doctor says the plastic particles are forming next > to my stem. He > > doesn't see any loosening of the stem or cup but feels I > should replace the liner > > within the next 1-2 years and clean the area of the > plastic particles to > > prevent bone damage. My second opinion doesn't see > anything out of the usual > > wear of the cup and some minor shifting of the stem > within the cup. He doesn't > > recommend surgery at this time. I have a third opinion > next week at The > > Hospital for Special Surgery. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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