RE: New Member

Posted December 17, 2005 · December 17, 2005

(uggiebugs1@...) wrote:

i have no family and will be spending christmas alone. if anyone would

like to send a christmas greeting, that would be great.

----------------------

Hi

I hope you have a good Holiday. With as little pain as possible.

W

Posted December 20, 2005 · December 20, 2005

,

Welcome to the group! I have Fibro too and know how hard/painful it can be.

Christmas Greeting to you and a big hug too!

Much love,

Caitlin

uggiebugs1 wrote:i have fibromyalgia. it is severe and i am in bed a lot

despite pain meds.i have no family and will be spending christmas alone. if

anyone would like to send a christmas greeting, that would be great.

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Posted December 21, 2005 · December 21, 2005

:

Happy holidays big big hugs. You are never alone we are always here.

Betty

ugiebugs1 wrote:

hi,

i have fibromyalgia. it is severe and i am in bed a lot despite pain

meds.

i have no family and will be spending Christmas alone. if anyone would like to

send a Christmas greeting, that would be great.

thanks,

Know someone who could benefit from our list? Send our direct sign-up URL:

http://www.yahoogroups.com/subscribe.cgi/chronic_pain or write us at:

chronic_pain-listowner

Manage your subscription with the following email addresses:

chronic_pain-owner - Sends email to the list owners

chronic_pain-subscribe - Subscribe to the list through email

chronic_pain-unsubscribe - Unsubscribe from the list

chronic_pain-normal - Switch your subscription to normal

chronic_pain-digest - Switch your subscription to digest

Posted January 21, 2006 · January 21, 2006

Hi Adina,

Welcome to the group! I really think you will fit right in!! With all

of your knowledge, I'm sure there will be a lot of questions for you.

Again, I wanted to welcome you.

Huggs,

Sandy

Moderator

Posted January 21, 2006 · January 21, 2006

Welcome to our group. We are so glad to have you. I am sorry you are suffering

but maybe on this group you will be able to help someone else new to this game

of suffering. I look forward to getting to know you. Gwen in Kansas

Posted February 9, 2006 · February 9, 2006

Hello, and welcome Kathy,

Wow! just Wow! You are awesome. What a great attitude you have, it

is so refreshing.

I'm always just a little amazed at how many women wind up 'alone'

with this chronic pain thing, compared to how many men manage to be

mated to someone who is actively 'moving mountains' for them. I

have belonged to several pain groups (down to 2 now, this and

another, both qualify as The Best), and every one of them had women

there looking for help for their husband/sig. other. I have only

come across ONE man seeking help for his sig. other!

Now, now! Don't jump on me too fast! I'm just telling about what I

have noticed. I hope there are an excessive amount of exceptions!

OK, Kathy, I just read an article in CNN about managing pain- it had

little to do with drugs, and everything to do with planning a life.

I wonder whether you were the 'ghost writer'!

Just a simple, short 'WELCOME'!

GBY

>

> Hello gang,

>

> I wanted to introduce myself. My name is Kathy and I'm 54 with

no insurance.

>

> I have fibromyalgia, osteoarthritis, Raynaud's, chronic fatigue,

allergies (mold, mildew & poison oak), sciatica, chronic neck and

Posted February 27, 2006 · February 27, 2006

Hi LaMar,

I too am new to the group and deal with spinal pain and pain in my leg. I have

also been told I have RSD and FM.

I was told at first they thought I had bursitis in my rt hip, now they believe

it is RSD. I know spinal pain is no fun and I am glad you found this group too.

I hope you will get a lot of help from the nice people on here.

God Bless

kristin

texaslamar wrote: The doc says I have fibromyalgia,

but I'm not sure I buy that - maily b/c I don't have the pain triggers that

fibro. patients have.

Posted February 27, 2006 · February 27, 2006

Welcome to the group, Lamar!! I'm sure you will find a lot of

information and support here with all of our members!!

And congratulations on the " miracle " pregnancy, I'm sure the

excitement will outway they troubles. Just keep in good contact with

your doctor and make sure you ask questions.

I look forward to getting to know you thru your posts.

Again, welcome to the group.

Huggs,

Sandy

Moderator

Posted February 27, 2006 · February 27, 2006

Hello, and welcome LaMar!

How wonderful for you! I've NEVER been pregnant, but the joy of a

new baby on the way is just awesome. I have observed that pregnancy

is a strange and mysterious thing, often it lets a body with pain,

or other 'debility', to improve or seem to heal. I hope this

happens for you. There are so many changes that take place in your

body when you are prgnant I doubt anybody has it figured out yet.

I'm one of 9 siblings, have 7 children, and 3 grandchildren, like I

said- I have observed pregnancy, often! I'm still in awe of it (and

very glad a man can't get pregnant).

God bless you and your baby!

Posted February 27, 2006 · February 27, 2006

I am much older than you. I am 52 so I am actually old enough to be your mom!

I also suffer from much pain and manyother health problems as well. You are

right a person does loose friends when you are going through all of this. I

also know you ahve probably heard the saying that your true friends will stick

by you. That of course is true, but it still hurts!

My parent's divorced after 28 years of marriage so I understand more than you

can ever imagine how you feel about that. It really hurts doesn't it? The

people that you always thought could keep your world on an even level just have

thrown a hurricane right in the middle and then expect you to cope with it!

Kind of hard.

Is there any where you could volunteer? Somewhere you could do something for

someone else for a few hours? I know transportation is a problem. We have a

service in our city that actually will bring you things to do if you cannot get

to them. One man in my neighborhood actually sorts sacks. Why? Well, there

are ladies that make rugs out of plastic sacks and they need them to be sorted

into colors so he does that. Then these ladies sell them at a little store

inside one of the senior senters and this is how they buy cards and stuff for

the residents to send to family members and stuff like that.

Of course if you could get out there are tons of things to do. Don't ask me

how I got onto all of that. My brain is just working overtime I guess.

I really just wanted you to know that I do understand both the pain of hurting

physically and the pain of hurting emotionally. I can help you if you need me

to any time. I have big shoulders! The only problem is you would probably feel

like you were talking to your mom. That would be okay though because when I

talk to my kids we always make cookies. We find that we talk so much better

with chocolate chip cookies and some pop or tea or milk to drink. In fact I

have some dough mixed up and ready to go at all times in my fridge. Just tell

me when and I will bake and then we can sit down and talk. I will look forward

to it. Of course I wil have to eat your share of the cookies. Buy, hey! I can

do that! It is all in the name of friendship! Gwen

Posted February 28, 2006 · February 28, 2006

Hi Meghan,

How awful for you! (((((((Meghan)))))))))) gentle hugs.

I sent some info privately that may be helpful. I'm sorry for all

the painful things you are going through, and now the added

emotional pain of your parents separating.

There a lot of caring and knowledgeable folks here, I'm sure you

will find a few friends to help you through all that you are facing.

You sound like a very strong person and I'm hopeful you will get

through all this and continue you life with great success. I know

it may not seem so 'rosy' now, but time and persistance make a great

difference. You're bad, you're tough! You can do this! Go girl!!

GBY

>

> Fast forward to very recently. I have not been able to find any

> friends up in NY. My friends from school dont stay in touch, and

> the hardest for me of all, my mom just left my dad. >

Posted February 28, 2006 · February 28, 2006

Hello Meghan -

I'm sorry you're in so much pain that you're " qualified " to join us

here, but I'm glad you've found us! It's a good group of friends

here, and you'll definitely find people who understand what it means

to be in pain, and to feel all alone in that pain sometimes.

There are also other young people your age here too - I hope they've

noticed your post and will respond. But there are a lot of messages

here, as you've probably noticed! So if they don't respond right

away, it might be worth posting again with a subject line that says

you're looking for other younger members to talk to, if you're

interested in finding them specifically.

I know it might mean a lot to you to have other people your age to

chat with about the struggles of finding friends and having a social

life when you have chronic pain, and all the things that go along

with life in your 20s. They're always looking for other friends here

their own age too, so don't be afraid to shout a bit to find them

among the conversations on the list! <smile>

I'm 42 myself, with chronic back pain and leg/foot neuropathy from a

spinal cord injury. I've only been in pain for about three years, so

I've probably got a lot to learn from you! But I do know what it's

like to have to fight doctors for a proper diagnosis, and fight for

proper pain management, and struggle when friends drop you because

you're " too much effort " anymore, and when even your family members

don't understand what it's like to hurt 24/7. I'm always happy to be

a sympathetic ear when you need to vent!

So welcome, Meghan. We're glad you're here!

Cheryl in AZ

Posted February 28, 2006 · February 28, 2006

Congratulations of being a mom! I beleive you will find that being pregnant

will help with your pain. It should help your body to release many of the

chemicals that will help you deal with the pain. In fact you may find that you

want to be continually pregnant! Gwen

Posted February 28, 2006 · February 28, 2006

HI Meghan I am sorry to hear you are in so much pain. I am not

really young (41) though I act it sometimes. Welcome to the group. I

have a very special cat too. If you have any questions ask away and

people will answer sometimes it takes a while. I have to use Word a

lot as I cannot type well due to a injury a that also did

neurological damage.

Rick

--- In chronic_pain , " meg0nvacati0n "

> Hi my name is Meghan I am 23. I have two medical problems that are

> related to chronic pain. I have a fused hip, which has a longish

> history to it, and I have Complex Regional Pain Syndrome.

Posted April 4, 2006 · April 4, 2006

Hi ,

Welcome to the group. Just wanted to let you know that I really

related to you on the work thing. I keep my job to pay the bills

and for insurance purposes. And like you, if it wasn't for work, I

probably wouldn't get out of bed either....it takes too much energy

and effort!

What kind of chronic pain do you have? Right now, I've been

diagnosed with Fibro, widespread chronic tendonotis, sacroiliitis,

peripheral neuropathy....please forgive me if I'm forgetting

anything. I also have bipolar II disorder and PLMD or periodic limb

movement disorder, which is kind of a sleep seizure. If I don't

take Klonopin every night at bedtime, I twitch and jerk in my

sleep. It's similar to RLS, but my movements are involuntary...I

don't feel the need to keep moving...my body does it all on it's

own! I'm also getting geared up to see some specialists to see if

there might be something else wrong with me...oh yay! Fibromyalgia

isn't a progressive illness, yet I keep getting progressively worse!

By the way, I'm Jen, I'm 35, and I live in Ohio! Looking forward to

getting to know you better!

All my best,

Jen

Posted April 19, 2006 · April 19, 2006

--- Ray wrote:

> Hi,

>

> My name is Rach. I was diagnosed with Chronic

> Fatigue Syndrome. I have

> chronic pain in many of my joints, which until

> recently I thought was

> a case of early onset arthritis.

Hi

Welcome to the group. Is your name Rach, or Ray? One

of our moderator's is Ray, so if it's Ray, may we call

you Ray from from whatever place you live?

You're right, friends and relatives don't, and can't

understand something that is not within their personal

experience.

What are you doing to help manage your pain? Once

again, welcome to the group.

Kaylene

Moderator

__________________________________________________

Posted April 19, 2006 · April 19, 2006

Welcome to the group - there are A LOT of people here who completely understand

your pain and frustration with family and friends. Here you can relax and let

it all out - this is a very safe place to talk about pain, doctors, procedures,

family, friends, and how YOU really feel!

I'm only 41 but have a herniated disc in my neck with nerve compression and

muscle spasms. I take 2400mg neurontin, Tylenol #3 as needed, flexeril as

needed but it gives me a dry mouth so I'm gonna switch to valium soon.

I'm also getting a home traction unit for my neck. Right now I go to pt for

neck traction 2x a week but when I get the home traction kit I'll be doing it 3x

a day for 10 minutes. Makes me realize how little 2x a week for 15 minutes

really is and I hope I'll feel a lot better once I can do it at home a lot more.

I have this unbelievable hip pain in the right side, dr says it's bursitis, pt

says to stretch it - that HURTS so forget it. I'll work on the hip after the

neck gets better.

much love

barb k.

Posted May 27, 2010 · May 27, 2010

My son is 4 with constipation issues. After using Miralax for a couple weeks

and enemas to clean out, we researched for other natural ways. We use the Kids

Natural Calm magnesium (check you health food store). He also does regular

potty sits and some aloe vera juice mixed in his prune juice. I also have to

keep up with lots for fruits otherwise he gets constipated real quick. Check

the encopresis group as well for more ideas. Good luck. You'll find something

that will work too for your son.

Sherry

>

> Hello I am a father of a 5yr old son who has had issues with bowel movements

since the age of 2. At that time his GI Dr. put him on miralax daily. I wasn't

happy with it but the alternative was watch him suffer and keep the toxins in.

After changing his diet and introducing fiber, broccoli etc.,he still continues

to struggle. Over the past year he began to bleed from his rectum and that is

when we had to schedule him for a colonoscopy. We really struggled with putting

him under anesthesia but were afraid of what was going on. They only found

fissures from the straining and all results from the areas were negative and we

couldn't be happier. As a result I have begun researching natural alternatives

to miralax because my wife and I both agree 3 years is waaayy too long to be

taking it. At the moment we have him on a probiotic, miralax, we have used

senna in the past, he takes a fish oil supplement which we found cheapest at

vitacost site

http://reviews.vitacost.com/4595/20645/coromega-omega-3-fish-oil-supplement-oran\

ge-90-packets-reviews/reviews.htm, and are constantly trying to include things

into his diet that could help. So we were fortunate enough to find this message

board and would be extremely apprecaitive of any suggestions you may have????

Thank you.

>

Posted May 27, 2010 · May 27, 2010

Benefiber has a tasteless powder you can mix into drinks and

food. It works great for my daughter (age 2). I give her 1- 1 ½ teaspoons per

day, your son would likely need more.

I also use pedia-lax Fiber gummies, 1-2 per day. Yummy and work quick

most of the time.

We also juice plus chewables (have to be purchased thru a

distributer).

I would recommend keeping up the fish oil and probiotic, but not

the mirlax.

From: miralax

[mailto:miralax ] On Behalf Of elliot5555522

Sent: Thursday, May 27, 2010 9:42 AM

To: miralax

Subject: New Member

Hello I am a father of a 5yr old son who has

had issues with bowel movements since the age of 2. At that time his GI Dr. put

him on miralax daily. I wasn't happy with it but the alternative was watch him

suffer and keep the toxins in. After changing his diet and introducing fiber,

broccoli etc.,he still continues to struggle. Over the past year he began to

bleed from his rectum and that is when we had to schedule him for a

colonoscopy. We really struggled with putting him under anesthesia but were

afraid of what was going on. They only found fissures from the straining and

all results from the areas were negative and we couldn't be happier. As a

result I have begun researching natural alternatives to miralax because my wife

and I both agree 3 years is waaayy too long to be taking it. At the moment we

have him on a probiotic, miralax, we have used senna in the past, he takes a

fish oil supplement which we found cheapest at vitacost site http://reviews.vitacost.com/4595/20645/coromega-omega-3-fish-oil-supplement-orange-90-packets-reviews/reviews.htm,

and are constantly trying to include things into his diet that could help. So

we were fortunate enough to find this message board and would be extremely

apprecaitive of any suggestions you may have???? Thank you.

Posted May 27, 2010 · May 27, 2010

Another suggestion is to try to actually find out what is/are the cause(s) of his constipation. If dietary, then you may resolve this issue by either adding or eliminating certain foods.

With my 2.5 y/o daughter, we do probiotics (usually in her oatmeal cereal and Actevia yogurt), vitamin C gummy vites, prune puree, pear sauce, and plenty of water.

We've eliminated the foods that cause her constipation - milk and wheat products.

Good luck to you.

To: miralax Sent: Thu, May 27, 2010 12:45:16 PMSubject: Re: New Member

My son is 4 with constipation issues. After using Miralax for a couple weeks and enemas to clean out, we researched for other natural ways. We use the Kids Natural Calm magnesium (check you health food store). He also does regular potty sits and some aloe vera juice mixed in his prune juice. I also have to keep up with lots for fruits otherwise he gets constipated real quick. Check the encopresis group as well for more ideas. Good luck. You'll find something that will work too for your son. Sherry>> Hello I am a father of a 5yr old son who has had issues with bowel movements since the age of 2. At that time his GI Dr. put him on miralax daily. I wasn't happy with it but the alternative was watch him suffer and keep the toxins in. After

changing his diet and introducing fiber, broccoli etc.,he still continues to struggle. Over the past year he began to bleed from his rectum and that is when we had to schedule him for a colonoscopy. We really struggled with putting him under anesthesia but were afraid of what was going on. They only found fissures from the straining and all results from the areas were negative and we couldn't be happier. As a result I have begun researching natural alternatives to miralax because my wife and I both agree 3 years is waaayy too long to be taking it. At the moment we have him on a probiotic, miralax, we have used senna in the past, he takes a fish oil supplement which we found cheapest at vitacost site http://reviews.vitacost.com/4595/20645/coromega-omega-3-fish-oil-supplement-orange-90-packets-reviews/reviews.htm, and are constantly trying to include things into his diet that could help. So we were fortunate enough to find this message board and would be

extremely apprecaitive of any suggestions you may have???? Thank you.>

Posted May 27, 2010 · May 27, 2010

ye swe have started to monitor his milk intake to see if that has something to

do with it.

> >

> > Hello I am a father of a 5yr old son who has had issues with bowel movements