new member

[Guest guest]

Hi Sandy,

Welcome to the group. Tell us about yourself. What happened to you for you

to have to have surgery on Sept. 8??

Again welcome.

Martha P

mott@...

icq # 11138464

" Everyone has opinions, like everyone has a butt. "

[Guest guest]

fyi....

In a previous message, Sandy noted that her Uiv of Mo NSG is Dr. Oro

kim

kim-@... wrote:

original article:/group/chiari/?start=22613

> At 1:48 PM -0700 8/24/99, C.J. Lawrence wrote:

> >Sandy wrote, in part:

> >>I went to a wonderful Dr. at Univ. of Mo. for the disk

> >>problem. He also has done major research in the field of ACM. So I

go

> >>back to him Sept.7 for a good talk about this problem with the ACM

and

> >>I go in Sept8 for surgery on my disk. So anything you all can tell

me

> >>would be very appreciated.

> >

> >You say he has done " major research in the field of ACM. " On your

next

> >visit I would suggest querying him a bit more about this, i.e. what

is his

> >definition of " major. "

> >

> >

> >Phoenix, AZ

> >

>

> Sure hope it is Dr. Oro :-}

> JM

>

>

[Guest guest]

hello, thank you, it's so good to know there someone that we can talk to that has the same problem. thank you, sandy

[Guest guest]

Thanks Peg,

I appreciate your response. I did a search for Barby and could not find any

messages from her. Do you know her email address or can you give me a

message number from something she posted?

ny

[Guest guest]

ny look at Tim's post on September 11th. It gave you a link.

Peg

[Guest guest]

Welcome! Hey, its ok to rant. Is there anything inparticular that you would

like to visit about? We are all here for you ....for information that you

may need, emotional needs and sometimes a good laugh. You will like our TGIF

days:)

If you have a spouse or family member that needs help in understanding where

" you " are coming from, we are a great group for that as well. There are alot

of spouses and caregivers of psc patients in this group. Although we, the

caregivers, dont have this disease, boy do we feel it in many aspects of the

word. If you are married your spouse will find alot of help from us as well!

So, what is your name? I noticed that your email address ended in ford.com.

Are you a ford employee? Just curious, Im in the automotive business.

Hey, glad you found us!!! Were here to help! Sincerely, wife of

dx 97

[Guest guest]

Rant all you want. That's why we are here. The feelings you have are normal;

all of us here have them. They are nothing to be ashamed of. These feelings

will come and go. Some of us here have UC; some of us have PSC; some of us have

both, so, believe me, we understand. But always know that you are cared about

here. We really do understand the highs and lows of this disease. Some have

been dealing with it longer than others, but we all understand. That's why we

are called a " Support Group " as one of the members reminded me a few weeks ago

when I was having a particularly bad day. I am grateful for each and every one

of the members of this group; they are so caring and concerned. It always shows

in their postings. So feel free to express whatever you feel. We understand.

You will also find that on Fridays we have TGIF postings of funny stories,

jokes, etc to help us take our minds off of some of the stuff we face. It is

sooo good to laugh. Stick around, you'll be glad you did.

Also, tell us a little more about yourself, if you don't mind.

:=))

Janet from New Jersey

****************************************************************

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intended recipient, you are hereby notified that any disclosure, copying,

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e-mail or telephone () immediately, delete the e-mail and all

attachments and destroy all hard copies of same.

>>> 09/24/01 04:32PM >>>

Hello All,

I am 32 years old and was diagnosed with PSC 10/00. I also have had

UC

since 1994. If the the UC wasn't bad enough, I discovered I had high

enzyme levels through a routine blood test at the Red Cross. After an

ERCP, I was diagnosed as having PSC. It didn't help that the doctors

told me I could need a transplant anywhere from 2-15 years. From what

I've read on this disease, it doesn't seem that anyone knows anything

about this. I'm frustrated and angry that I even have this disease.

Since the day I was diagnosed with UC, I've busted my butt exercising

and eating healthy. The UC was firmly under control and then

this.Every single day, I think about this disease and wonder how long

is it going to take? What if I get cancer? It is affecting my work

and

my life. Where once I felt robust and strong, now I feel old and

damaged. I'm usually a very positive person, and for almost a year

now, nobody really would even know I have PSC. I'm mentally tired of

running scenarios in my head. I found this site today. Who knows,

maybe some of you feel the same way. I'm a results based person and

nobody seems to be able to tell me squat. " It varies from person to

person " . I've heard this a billion times. This doesn't help me or my

family. Insurance companies won't touch me with a ten foot pole. I

feel guilty because other people have it much worse than me. Am I

feeling sorry for myself? Probably. I am interested how everyone

keeps

their head up. Thanks for letting me rant.

[Guest guest]

First, welcome to the group - finally I get to welcome someone. I am

fairly new as well, about 3 weeks and have come to rely on and enjoy this

group. I was reluctant at first because I am a very stubborn and strong

willed person, but would recommend it to anyone who has to live with this

disease.

Second, what's your name?

As for me, I was diagnosed with severe UC in '88 (largely due to stress and

poor eating habits - soph in college) and dx with PSC in 99. I am also 32,

married with no kids. When I first found out, I was not devastated or

angry. I actually felt guilty because for most, PSC usually follows UC. I

didn't take care of myself after my UC cleared up and would go into

sporadic bouts - bleeding, SEVERE abdominal pain and diarrhea. But boy

could I clear a room and fast. I was probably the perfect clinical

definition of a Type A personality. I think that had something to do with

my initial UC. Since then, my outlook as been seen through rose colored

glasses. What will happen will happen and I will do my best to accept

things that come my way and not stress over things I cannot control. The

three things I worry about is losing my job because I cannot perform my

duties, which to date I can, maintaining my insurance, and possibly

developing cholangiocarcinoma (cancer).

Not knowing what will happen with the disease is not comforting. You sound

like your in the same boat as me, few symptoms. I itch pretty bad but not

comparatively to those here and am constantly fatigued. It appears you

haven't had to really deal with these symptoms yet.

This group will keep your head up and aid you in maintaining a optimistic

outlook. There are those who have lived with this disease for 10 years or

longer and still going. One just joined in (sorry for forgetting names

here) has had PSC for 30 years. That just goes to show you that it affect

everyone differently, which is one of your worries - not knowing.

Don't be afraid to ask questions or offer comments. Just one word of

advice, try to keep it in context as much as possible. No one gets mad at

each other, but there are differing opinions on politics, terrorism, and

most recently philosophy.

Again welcome and stay positive.

Darin

Houston, UC-88, PSC-99

Hello All,

I am 32 years old and was diagnosed with PSC 10/00. I also have had

UC

since 1994. If the the UC wasn't bad enough, I discovered I had high

enzyme levels through a routine blood test at the Red Cross. After an

ERCP, I was diagnosed as having PSC. It didn't help that the doctors

told me I could need a transplant anywhere from 2-15 years. From what

I've read on this disease, it doesn't seem that anyone knows anything

about this. I'm frustrated and angry that I even have this disease.

Since the day I was diagnosed with UC, I've busted my butt exercising

and eating healthy. The UC was firmly under control and then

this.Every single day, I think about this disease and wonder how long

is it going to take? What if I get cancer? It is affecting my work

and

my life. Where once I felt robust and strong, now I feel old and

damaged. I'm usually a very positive person, and for almost a year

now, nobody really would even know I have PSC. I'm mentally tired of

running scenarios in my head. I found this site today. Who knows,

maybe some of you feel the same way. I'm a results based person and

nobody seems to be able to tell me squat. " It varies from person to

person " . I've heard this a billion times. This doesn't help me or my

family. Insurance companies won't touch me with a ten foot pole. I

feel guilty because other people have it much worse than me. Am I

feeling sorry for myself? Probably. I am interested how everyone

keeps

their head up. Thanks for letting me rant.

[Guest guest]

Hi New Member, I couldn't tell from the post whether

you are male or female. Not that it matters.

What does matter is that you found the rest of us. I

think we all come to this site in a state of anger or

dispair because we feel isolated that nobody else has

this disease or because it is so rare not even the

doctors can get a grip on it.

I came to this site in June of 2000. I was dx in 97

but because I didn't have any symptoms (found via

blood tests) after a good cry, I shrugged the disease

off to 'what a wonderful disease to have because I

don't have symptoms'. Then BOOM! Anyway, I read up

seriously and found nothing, natta, zip, NO shred of

medical evidence or logic that I would live more than

2-5 years.

I am a very analytical and anal for that matter,

person, that needs to have my t's cross and i's

dotted. I make lists of lists and I always look for

the concrete evidence that something will go this way

or that way. In the absence of all that medical

evidence, I stumbled upon this site and this site gave

me the first ray of HOPE that life goes on.

This group is in all stages of the disease, and it

progresses at varying speeds and it affects each one

differently. Kind of just how life treats everybody

else too!

The best advice I can give you is to throw out that

notion that you NEED to CONTROL PSC, because, dear, it

isn't going to happen. You might think you are

controlling it, but you can't. You need to control

other things, like medication schedules, making sure

you get mental exercise, physical exercise, eat right,

and do what each and every one of us here is doing

now....LIVING our lives one day at a time.

Afterall, this disease lingers for 20 sometimes 30

years. You can't hole up and let 20-30 years slip by

while you figure out how to control it.

You will find that we are a big happy family. We agree

to argue, we support and we encourage one another.

When we are down, someone lifts are spirits. We help

each other be able to ask informed questions of our

health care providers, and we learn, at whatever pace

our minds will allow, what lies ahead for us.

You are free to share information about yourself so we

can get to know you. Actually, I'm nosey and I gotta

know.

I'm a female, and I hunt, and I live in Michigan,

where the sun doesn't shine alot and I complain about

it because I feel that sunlight or UV rays help curb

the itching...but that is a whole other story about

me.

I also suffered for UC for 16 years before having my

colon removed and a jpouch constructed. This part of

my life is running smoothly (NO PUN INTENDED), the

words just flowed out that way.

Glad to have had you find us, and hope you will stay

and share. United we grow stronger!

=====

in Michigan (Dx UC 1984, Dx MISSING COLON 1999, Dx PSC 1997, PSC symptoms

2000)

[Guest guest]

Hi new member,

Welcome to the group. I usually don't post much...only read, but I

have found a lot of comfort in reading how everyone else copes. You

sound a lot like I did when I was first diagnosed. I was turning 21

and all the books I found on PSC basically made me feel like I was a

gonner. When I was in school, I learned about the phases of the

grieving process for parents who gave birth to children with

disabilities (I'm a speech therapist), and I think it applies to any

disease. There is anger, denial, sadness, and then finally

acceptance. I always have those " why me " days, especially when I see

my friends, and they are all a buzz about having babies (my doc told

me I shouldn't have children because it will exacerbate my condition)

but then I look around and I think, it could be so much worse. My

best advice, take your medicine, get your check-ups, keep working

out, and don't get locked up inside yourself. Find comfort in your

family and friends.

in Baltimore (PSC dx 1993, IBD dx 1999)

[Guest guest]

Thank you to all the members for welcoming me into your group. (Janet,

Eileen, Darin, , ) It was an amazing feeling to actually

hear from others with this disease. I owe you some info on myself. My

name is Steve. I live in Michigan. I am married and have two

daughters, ages 8,4. The only real symptom that I have experienced

so far is itching, although, I seem to tire more easily. I used to

be a morning person who would jump out of bed. Now I hit the snooze

many times before I can get up. Not sure if that is just work, kids,

etc.. or if it comes from the disease. Also, my cholesterol is approx.

200, which is extremely frustrating, since I eat really good and

exercise frequently. I just remembered one other thing; my shoe size

has increased by 1 whole size in a year, so I think my feet may be

swelling. Is this common? I have many questions and look forward to

talking with you more in the near future.

Steve

UC 94 PSC 00

> Rant all you want. That's why we are here. The feelings you have

are normal; all of us here have them. They are nothing to be ashamed

of. These feelings will come and go. Some of us here have UC; some

of us have PSC; some of us have both, so, believe me, we understand.

But always know that you are cared about here. We really do

understand the highs and lows of this disease. Some have been dealing

with it longer than others, but we all understand. That's why we are

called a " Support Group " as one of the members reminded me a few weeks

ago when I was having a particularly bad day. I am grateful for each

and every one of the members of this group; they are so caring and

concerned. It always shows in their postings. So feel free to

express whatever you feel. We understand.

> You will also find that on Fridays we have TGIF postings of funny

stories, jokes, etc to help us take our minds off of some of the stuff

we face. It is sooo good to laugh. Stick around, you'll be glad you

did.

> Also, tell us a little more about yourself, if you don't mind.

>

>

> :=))

>

> Janet from New Jersey

>

>

> ****************************************************************

> This e-mail and any documents accompanying this e-mail contain

information which is confidential and/or legally privileged. The

information is intended only for the use of the individual or entity

named on this e-mail. If you are not the intended recipient, you are

hereby notified that any disclosure, copying, distribution, or the

taking of any action in reliance on the contents of this e-mail

information, is strictly prohibited and that the documents should be

returned to Saiber Schlesinger Satz & Goldstein, LLC immediately. In

this regard, if you have received this e-mail in error, please notify

us by return e-mail or telephone () immediately, delete

the e-mail and all attachments and destroy all hard copies of same.

>

> >>> <showard1@f...> 09/24/01 04:32PM >>>

> Hello All,

> I am 32 years old and was diagnosed with PSC 10/00. I also have had

> UC

> since 1994. If the the UC wasn't bad enough, I discovered I had high

> enzyme levels through a routine blood test at the Red Cross. After

an

> ERCP, I was diagnosed as having PSC. It didn't help that the doctors

> told me I could need a transplant anywhere from 2-15 years. From

what

> I've read on this disease, it doesn't seem that anyone knows

anything

> about this. I'm frustrated and angry that I even have this disease.

> Since the day I was diagnosed with UC, I've busted my butt

exercising

> and eating healthy. The UC was firmly under control and then

> this.Every single day, I think about this disease and wonder how

long

> is it going to take? What if I get cancer? It is affecting my work

> and

> my life. Where once I felt robust and strong, now I feel old and

> damaged. I'm usually a very positive person, and for almost a year

> now, nobody really would even know I have PSC. I'm mentally tired of

> running scenarios in my head. I found this site today. Who knows,

> maybe some of you feel the same way. I'm a results based person and

> nobody seems to be able to tell me squat. " It varies from person to

> person " . I've heard this a billion times. This doesn't help me or my

> family. Insurance companies won't touch me with a ten foot pole. I

> feel guilty because other people have it much worse than me. Am I

> feeling sorry for myself? Probably. I am interested how everyone

> keeps

> their head up. Thanks for letting me rant.

>

>

>

>

>

>

>

[Guest guest]

Welcome Steve,

As others have commented, your feelings have been experienced by all

of us here. This is a very frustrating disease. My husband Phil was

dx 12/98 and have several infections in the first year after and then

one each year for the next 2 years. This spring he had two

infections within 3 months so they decided to do another ERCP (his

first one landed him in the hospital for 10 days, a very sick man) so

they had been afraid to do it again. This time they put him all the

way out and were able to remove a stone and some sludge and expand

the very constricted main bile duct. He has been doing incredibly

well since.

His worse problem is fatigue and luckily he has very little itching.

It hasn't affected his liver much if any so he isn't experiencing the

other problems of advanced PSC. He has very aggresive doctors and

when he had so many infections at first they pushed him to get listed

and he was listed 2/00 at UCLA. The other thing he did was go on

disability, at first state because it takes 5 months before you can

get on fed ss disability. He had just been laid off his job at the

age of 56 and being a plant-manager/owner type he knew he would have

a very hard time getting a job so we opted for the disability route.

The good part of that is that he was able to go on Cobra and then

when that ran out I was able to put him on my insurance until he

qualified for Medicare (that takes 2 years from getting on fed ss

disability, which I think is rediculous - who needs it more than

someone who is disabled). He has subscribed to the Kaiser supplement

that only costs us $20 and $50 that they deduct from his disablity

payment.

He is involved in several volunteer activities to keep his feeling of

self worth.

Peg, wife of Phil (58), UC over 30 yrs, dx PSC 2/98, Listed UCLA

status 3, living in suburbs of LA, CA

[Guest guest]

Beverly,

Interesting about having the UC during your pregnancy. My Mom had Colitis

(not UC) before she had me, then some how it just went away. I keep

telling her its her fought I got UC because she passed it on to me. Of

course, now with PSC, I don't use the joke quite anymore.

Darin

Houston, UC-88, PSC-99

[Guest guest]

Welcome Peggy! I figure from 1985-2001, I gained......hmm....120-256, that's

how many pounds a year? Oh forget it! I'm sure you'll meet your goal. You're

doing all the right things! Glad you're here!

Lyn

new member

I don't know if I introduced myself yet or not, so here goes. I

joined ww on the 2nd of October, first time. The last 5 years

probably, started gaining 5 or so lbs a year, but then so did most of

my friends around me. So I still looked normal, so I thought. I am

41, sahm. I am loving the program, because it is so proper, I can

eat everything, well, maybe can't drink my regular beer on the

weekends but other than that everything, lol. I workout 5 or 6 days

a week. Interval training on the treadmill and full body-free weight

workouts twice a week. I started at 151.8 and have lost 4.2 lbs, and

think my goal wait will be between 120-125. Thanks everyone for the

support you receive here and advice.

Peggy:)

[Guest guest]

welcome to the group christina,

i know how you feel about working less hours. i used to work less

hours. now i can't work at all. but its not so much from fibro right

now as from lupus and other things.

nancy in reno

> Hi, I wanted to introduce myself. My name is and I was

> diagnosed with fibromyalgia last year but suffered for years

> before. Recently it has gotten a lot worse. I work full time and

> even though I have a sit down job lately I have considered working

> less hours. I am finding it very hard to concentrate.

>

> The worse part for me is the headaches. But lately just moving

> hurts. I joined this group to see how other people deal with it.

>

> Thanks for listening.

>

>

[Guest guest]

Marget...if you ever go off Oxy do it with a doctor's help. DO NOT EVER

QUIT COLD TURKEY!!!!!!!!!! I did, because I didn't know any better and

ended up in the psych ward. Love, Cam

New Member

>

>

> > Hi, I wanted to introduce myself. My name is and I was

> > diagnosed with fibromyalgia last year but suffered for years

> > before. Recently it has gotten a lot worse. I work full time and

> > even though I have a sit down job lately I have considered working

> > less hours. I am finding it very hard to concentrate.

> >

> > The worse part for me is the headaches. But lately just moving

> > hurts. I joined this group to see how other people deal with it.

> >

> > Thanks for listening.

> >

> >

> >

> >

> >

> >

> > 1. While it is wonderful to share our experiences with everyone on the

> list as to what treatments do and don't work for us, pls always check with

> your dr. Some treatments are dangerous when given along with other meds

as

> well as to certain health conditions or just dangerous in general.

> >

> > 2. If you are in a difficult situation (doesn't matter what it is) pls

> don't be afraid to ask for help. It is the first step to trying to make

> that situation better.

> >

> >

> > Have a nice day everyone.

> >

> >

[Guest guest]

Welcome Tiombe!

Congratulations on your new marriage and on finding Tae Bo! You and I are around the same size and I know what it is like to feel disappointed with my weight and how I look. I began tae bo about 3 months ago and have had to also make SIGNIFICANT changes in my diet. But in the past exercise and eating very healthy is the only way that I have been able to lose weight. Also, I, too, gained weight when I first married. What I say to you is that you have got to BELIEVE that you will lose the weight. If you do not believe that you will then you will most likely not do things to support your weightloss efforts.

I am one who does not believe in diets. My goal is always to eat healthy with no starvation or constantly feeling hungry. I subscribe to Bob Greene (Oprah's trainer) and Dr. Phil (Ulitimate Weightloss Solution). They teach people that weightloss is about creating a lifestyle to support it. So my recommendation is to most certainly change the way you eat if it is not conducive to weightloss. I have found since eating healthy that I feel SO good and proud. I do not know when you joined but the entire time that I have been a member of this group I have stated that losing weight has been so hard this time around for me. However, it was not until I got serious about exercising everyday AND eating a low-fat, decreased carb diet that I have finally been able to see a decrease in the scale.

The other key in using tae bo for me has been taking my focus off of losing weight. encouraged a woman to not focus on losing weight but to focus on perfecting her tae bo techniques. She did so and ended up losing 90 lbs! I found that when I did tae bo to lose weight, I was frustrated that I had not lost weight when I thought that I should have and my workouts were kind of lazy. I would try to workout just enough to lose weight. Because it took so long for me to see a weight decrease, I finally HAD to subscribe to the perfect the tae bo philosophy to stay motivated. With my mind on getting better at tae bo, I worked harder and BAM! I lost some weight!

Be encouraged!!!!!!!!!!!! YOU can do this!

Tae Bo Love

Tyra

[Guest guest]

hi!

welcome to the group and to taebo!

im sorry that you are feeling down today

but it does help to focus on the positive -- tell yourself that you CAN do

it!! that you WILL do it! you have to be your own cheerleader. fill

yourself with positive thoughts and weight loss will be easier.

your goal is definitely achievable. keep doing your workouts and also

know that what you eat is very important. i tried and tried for 2 YEARS

to lose weight without changing my diet -- well, i gave up things like

full-calorie pop and chips/dip and stuff like that -- but i still couldnt

lose weight even though i worked out alot. finally i decided to try weight

watchers and it taught me, very quickly, about proper portion sizes. that

has helped me immensely and i have gone down from a size 12 to a 9 in 3

months!! i had obviously been eating way too much food. weight watchers

has also opened my eyes to how fattening alot of foods really are --

helping me to realize that eating high fibre cereal, fruits and vegetables,

lean meats like turkey/chicken, low fat dairy and a minimum of sugar is the

way to go! i hope that this helps.... if i can be of any other

assistance then please just ask. and please do tell us all about your

taebo workouts... we would love to hear all about them!

*carolyn.

At 07:02 PM 1/12/2005, tiombe_mitchell wrote:

>hello all, I am new to all of this I just did my first workout about

>30 mins ago and I feel energized. I started with the

>foundation/energy dvd. I am really inspired by how much support you

>all give eachother. Today I'm feeling really down about the way I

>look, I recently got married and lost about 25 pounds but since the

>wedding I have gained about 15 of that back, I am currently a tight

>size 14 and a loose 16. My goal is to be a 10 (not too small). I

>don't know if I'll ever get there, but hopefully now with taebo it

>will happen. Have any of you changed your diet as well. I did

>atkins for a while but it always comes back faster.

--

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.300 / Virus Database: 265.6.10 - Release Date: 1/10/2005

[Guest guest]

Welcome, and it's great to hear a young-in say tae bo is hard! Delana.

________________________________

From: tae-bo_on on behalf of weekes khafi

Sent: Sat 8/20/2005 9:47 AM

To: tae-bo_on

Subject: new member

hello..Im new to this group. My Name is Andreya and I am 21 yrs old..I recently

started tae bo and its sooo HAAARRDDD!!! need support...I look forward to

chatting and getting to know u guys...bye

__________________________________________________

[Guest guest]

Welcome!

Yes it is hard at the beginning, but keep at it. It never really gets easy but it does get easier

hello..Im new to this group. My Name is Andreya and I am 21 yrs old..I recently started tae bo and its sooo HAAARRDDD!!! need support...I look forward to chatting and getting to know u guys...bye

-- Be a F.R.O.G . °Ü°GLYSDI,Gymmie in TexasCompliments of Tae Bo2 Hours A Day5 Days A Week " You can exercise til the cows come home, but if you don't eat right, you'll just be a cow coming home. "

Anonymous

[Guest guest]

Hi All:

Im .. I love...love Taebo.

I work a night time job and have had the hardest time getting back

into the groove of things.

About 2 weeks ago. I got myself back in the regime. And I have to

admit.. the best tape to start back with .. I love " Fat Blasting " for

one week I started by doing 1 hour of cardio @ my local gym to get my

endurance up..then for the past week.. I've done 3 days of " Fat

Blasting the 2 days of Ab Boot Camp and ended the week with Ultimate

Boot Camp. I was so proud of myself. I lost 6 pounds in 2 weeks.

Totally flatten my abs and I have more energy then ever.

I totally swear by Taebo for working out and reshaping your body.

I use to see my sides and see rolls from being out of shape by now. I

see a waist line and I can tell the six pack muscles on the side of

my tummy almost coming thru..

I wanted to say hi to all and say..don't give up. I try to get in 4

days or 5 if I want a great week and taking the weekend free to rest.

If anyone has brought any new TAEBO tapes/Dvd they recommend. Let me

know. I have Fat Blasting,(my fave) all the BootCamp , The new Cardo

FatBlasting, and the originals..

Thanks and keep rocking with ...he's the best....

[Guest guest]

Hi , gosh....you're good! I have the "Capture the power"-set which I like a lot. It's two DVD's- one has a 1 hr introduction work out. It's good, but has no replay value for me. The other work outs last each 45 minutes, and "focus" on "energy", "endurance" and "strenghts". Along with the DVD's you get 2 1/2-pound balls, which are used only during 2 of the work outs. I also have the BootCamp set, but haven't started yet. I think it's better for me to first use the tapes I already know to get back into it. It takes me a while to understand the steps- coordination is not my thing, especially not my feet, and at a fast paste on top of it! Well, I better hurry. I have a meeting tonight, and am leaving work now (it's only 4 pm) so that I can work out before it. Otherwise today would be another day without working out! :-) Geraldine

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[Guest guest]

Thank you for your nice response. The stimulator help in its own way. Along with

medication, stimulation, and excerise I am able to lower my pain level to a

five/six and it is manageable. It's been recomended that I get the pump but I

have reservations about it. I am only 33 and to me that is a huge step to long

term narcotic dependency. I have been on narcotic therapy for six years but

something about the pump just makes it more final. I guess it is a mental thing

with me.

C.

Sandy wrote:

Welcome to the group!! Boy it sure sounds like you belong here with

the rest of us!! Sorry, just a little fun, I have had two failed back

surgeries with a spinal fusion, and decompression{well it was supposed

to decompress the disc!}.

[Guest guest]

Thank you Cheryl. I wish I had the option of not having any others.

Unfortunately I had quaniequina syndrome. My bladder had shut down and I could

not void on my own with out a cath. I hope to here more from you and the rest of

the group.

C.

Cheryl in AZ wrote:

Welcome, although I'm sorry for the pain that's brought you here.

You'll find lots of folks here who can empathize with back pain and the

neuropathy that often results from it. I'm one myself, although I drew

the line at one back surgery after it resulted in adhesive

arachnoiditis. I can't imagine going through six of the things.

[Guest guest]

> I live alone and wonder what will happen to me.

Boy, you said a mouthful ; )

I enjoy being in the country and on my own most days,

but when you are having a flare and feel like crud, it

would be nice to have someone let the dog out, heat

the soup once in a while, etc.

Budgeting is also scary. Will the money work this

month? What if they decrease or worse do away with

Medicare benefits?

Thank you to everyone who has been so welcoming. I

hate that everyone is suffering, but I feel like I've

stepped out of the house into Oz and the people here

speak my language.

; )

Willow