Re: New here

[Guest guest]

---Quyrah, what kind of drug is Klonipin? I have never taken it.

Does it help your fibro? carolyn b

In Fibromyalgia_Support_Group , quyrah@y... wrote:

> Hi All

>

> I've been lurking for a bit. I was first diagnosed with Fibro back

> in 96, although I've probably had it since 75 everyone, (dr's) said

> the pain was all imaginary or in my head. I've been through

> psychotherapy and all, so I do know that it's real. I was on a med

> in Canada that is similar to Klonopin here in the states. (I'm

> Canadian, but now live in the States). I moved to the States in

> 2000, saw a family physician and she gave me a perscription for

> Klonopin. When I stay on it, I feel ok and almost get to the point

> where I feel like I don't need the med's and came off of it. Well,

> after about a year, my symptoms have come back. In the fall I

> decided to go see a rheumy here in the states and he told me " no

you

> don't have fibro, you have psoriatic arthritis (PA). PA resembles

> almost exactly like fibro. He put me on an antibiotic, antifungal,

> antiinflammatory, zinc, multi vitamin. After I noticed no

> improvement, I told him and he told me the pain will go away like

it

> came. I was furious. Found a new rheumy that I saw last week and

he

> confirmed the diagnosis of 96. I DO have fibro. But he gave me

only

> a muscle relaxant (flexeril) and told me to continue with the anti-

> inflammatory. That doesn't help the pain and I'm still not

sleeping.

> Anyway, I'm feel at times like I'm dying in pain, (NO, I'm not

> looking for a pity party as some may think) but I'm sick and tired

of

> being sick and tired.

> I see my family doctor in a couple of weeks and going to ask for a

> new perscription of Klonopin. I was hoping there have been new

med's

> that have come out to help those with fibro but am getting no

results.

> And to tell you the truth, the dr's in this part of TN stink! They

> know diddly squot about fibro. My health care doesn't cover many

> rheumy's and around here there aren't any really good dr's that I

can

> find.

> Anyway, this is just kind of a intro to me.

> I am female, in my mid-late 40's, have 2 children who for now don't

> show any signs of fibro. They are both in their 20's, so I hope it

> skips them.

> Glad to be here, and maybe I'll learn something new. I think I've

> read quite a bit and even have a few books on fibro, but was hoping

> more research had been done. Guess not. ;-( Oh, well, See you

around.

>

>

> Quyrah

[Guest guest]

Something about Klonipin.

http://tinyurl.com/yr24g

> ---Quyrah, what kind of drug is Klonipin? I have never taken it.

> Does it help your fibro? carolyn b

[Guest guest]

Hiya Keri

Welcome to the group

Nikki

*****************************

I live in my own little world. But it's OK. They

know me here.

*******************

One nice thing about egotists: they don't talk about other people.

[Guest guest]

you said Has anyone noticed food effecting their condition?

When I do lowcarb (acidic) my weight comes off but I do not feel well.

Last month I followed the rice diet (alkaline) and though my weight

loss was minimal my legs, muscles and allergies were better.

I am working on my stuff, via food. Am eating low carb yes, but also cutting

out anything that makes me swell up. I found that I am allergic to sulfa and

sulfites (preservative in almost everything) and I am 61 years old and feeling

better than I have in years. I am constantly tweeking my diet....and have also

lost 35 pounds since september 03 and need to lose another maybe 35 ...Maybe you

need to start from veggies and meat and add foods in as you can tolerate

them....... I did htat and I eat a potato every once in awhile and oatmeal and

wheat but no bread, noodles, white flour at all and no sugar. It is certainly

worth a try.. dash

New here

Hello All

I am from Michigan and wanted to introduce myself as I have

been lurking for a while now. Everytime I read a post I shake my head

in acknowledgment about something. Yesterday I smiled when someone

wrote they use shopping carts as a walker...and I thought that

was 'my' secret. LOL

I am 52, long time married and the mother of 3 delightfull grown

children. My health is not so easy to write about but briefly...I

have had scoliosis since age 12 which now is believed to have come

from connective tissue disorder. My muscles have always twitched and

my thighs (mainly inner) and upper arms have had sore spots since I

was a teenager. Sports hurt and they told me to quit being a

princess. Anyway, this past January I believe I had my first full

episode of fibro. Painful, tired legs with the inner thights full of

sore spots. Fatigue yet inability to sleep or relax...it lasted 2

months. It has not returned with that intensity but I have not

returned to my before state either. Yesterday I worked outside and

felt pretty good but today my legs feel so heavy and my total being

tired and this seems to be my current pattern. Life is do-able yet

very slow to accomplish much.

When does one decide to seek medical help?

So much pain I hear and feel such compassion for all of you.

I am studying everything and trying various self-help techniques to

see if they make a difference.

I am very very overweight and dread to go to the doctor at this point

becuase they will just blame it on my weight and not listen to

anything else. My life has been laden with allergies since birth and

osteo-arthritis since my 30's just as many of you.

Has anyone noticed food effecting their condition?

When I do lowcarb (acidic) my weight comes off but I do not feel well.

Last month I followed the rice diet (alkaline) and though my weight

loss was minimal my legs, muscles and allergies were better.

So, I am doing this diet again, stretches, self-massages, taking

magnesium and calcium and motrin daily.

Clearly one should not self-diagnose as I have but all signs point to

fibromyalgia since I was a young woman though in a mild form.

Actually I cried when I read the symptom list to finally know that

all the things I have complained about are connected.

I am going to continue on in this way ..educating myself and trying

different things...watching and weighing the positive and negative in

how my body is reacting.

Thanks for being here and thank you for listening...

Blessings

[Guest guest]

Hi , I'm sorry for the loss of your Grandfather. How wonderful of you

to help your Grandmother. 90 for a steady number isn't that good. Can you

turn her oxygen up? If I get up to do a little work around the house I turn

mine up so my numbers stay up. It will not hurt her to increase the O2.

But the low numbers when she gets up is harmful to her organs. I do hope she

doesn't have to be alone to much. This is a horrible thing to live with. God

Bless You for your love and care of your Grandma. Let us know if there is

any support we can give.

Much Love and Prayers, Peggy 9/04 ipf

> Hi, my name is and my grandmother was diagnosed with pulmonary

> fibrosis a couple of years ago. I am very close to her and visit

> quite regularly. My grandfather passed away 2 weeks ago so now my

> grandmother is alone. I am going to start helping her in 2 weeks. I

> will go over at 7 am and stay until early afternoon. She is on full

> oxygen and her pulse ox stays aroung 90 as long as she sits and does

> not talk much. She has always been so active and strong so to see her

> like this is hard. I am scared with my grandfather gone she will

> become even less active. She got a scooter to use in the house

> (against her doctors wishes) because she was tired of getting winded.

> If she gets up to go to the bathroom her levels drop to the 70's. I

> am sure I will learn more about this disease through her and her

> doctors appointments. I was hoping that a support group would help me

> to help her better. I look forward to meeting you all.

>

>

>

>