Can someone describe a Chiari Headache

[Guest guest]

From what I gather, Kelli, there may be a few variations. But there seems to

be a common one, which is the one that I have..........it is like a

pulsating/pressure feeling in the back of my Neck and base of my Skull.

Kathy M. on this List is one who experiences a different type of Chiari

Headache...........I'll let her explain hers when she feels up to it.

I hope this helps.

Me

Nebraska, USA

mymocha@...

> Can someone describe a Chiari headache....what part of the head it effects

> and what it feels like.

[Guest guest]

Hi

I have to sort of disagree with Brande....everyone I've talked to that has

Chiari pains describes them the same way, it's the intensity, length of time

experiencing it, and other symptoms that come along with it that is

different (in my experience.)

Anyway, it's an intense pain in the back of my head (think it's called the

nape) and also the top of my neck. It pulsates and throbs and feels like my

head is going to blow off my body (no exaggeration.) It sometimes spreads

to other areas of my head. The biggest part is that you feel like you can't

move. Light doesn't bother me, nor does noise, although I do get sick to my

stomach with them. Mine are brought on by positional changes (very common),

straining (again, common), and also by doing too much.

I hope this helps. If you go to the WACMA site, they do a great job of

explaining them. Just do a google search for Arnold Chiari and their site

should come up.

Are you experiencing any of these?

Kathy

Can someone describe a Chiari Headache

> Can someone describe a Chiari headache....what part of the head it effects

> and what it feels like. I was just wondering since I have had a headache

for a

> week now and I never get headaches and I have been investigating things

about

> Chiari and whether or not I may have it. I know headaches are a symptom

and

> was wondering if it was connected.

>

> Thanks.

> Kelli

>

>

>

[Guest guest]

I thought you had previously described your type of Headache as kind of like

a Spinal Headache. I may be mistaken.

For me, I wouldn't consider them intense or throbbing..........pulsating(but

not to the point of throbbing)/pressure..........for me. But we all

experience/feel/and probably describe things different then the next person

would. But I would have to say in all truth.........I don't experience them

to the degree you do.

Me

Nebraska, USA

mymocha@...

>

> I have to sort of disagree with Brande....everyone I've talked to that has

> Chiari pains describes them the same way, it's the intensity, length of

time

> experiencing it, and other symptoms that come along with it that is

> different (in my experience.)

>

> Anyway, it's an intense pain in the back of my head (think it's called the

> nape) and also the top of my neck. It pulsates and throbs and feels like

my

> head is going to blow off my body (no exaggeration.) It sometimes spreads

> to other areas of my head. The biggest part is that you feel like you

can't

> move. Light doesn't bother me, nor does noise, although I do get sick to

my

> stomach with them. Mine are brought on by positional changes (very

common),

> straining (again, common), and also by doing too much.

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[Guest guest]

I have to agree with Kathy.My head just feels like it's going to blow off.

This was a good question I have woke up the last two mornings with one and I

was going to come ask a few questions my self. Like how is every one who

gets these treating them? The only thing I can do is lay flat. My pain med

does nothing for these things.Maybe I need something different for them.

What are the rest of you taking for them? My other symptoms are instantly

sick to my stomach.Tingling between my shoulder blades is another one. My

arms also feel like some one is trying to pull them off at the shoulder. If

I sleep wrong I am waking up with my arm numb from my shoulder to my elbow

not just asleep I mean totally numb.Any way any help would be greatly

appreciated. I don't know if I am going to wait till November on this . If

the symptoms don't start letting up instead of getting worse I'm calling the

NSG a whole lot sooner. Chris

Can someone describe a Chiari Headache

>

>

> > Can someone describe a Chiari headache....what part of the head it

> > effects

> > and what it feels like. I was just wondering since I have had a

> > headache

> for a

> > week now and I never get headaches and I have been investigating things

> about

> > Chiari and whether or not I may have it. I know headaches are a symptom

> and

> > was wondering if it was connected.

> >

> > Thanks.

> > Kelli

> >

> >

> >

[Guest guest]

Kathy,

If that worked that would be great for some but not for me. They gave me a

diuretic once when I had a renal scan on my kidneys. By the time I was done

I wanted to shoot the guy. For some reason my kidneys can't take them. It

makes them work over time and they go right into spasms. Hurt like heck

thought I was going to have to leave the test and go get a pain killer from

the ER. LOL I'd say in your case push what does it hurt to try it.The every

ten minute thing is basically how I have been dealing with it.I have been

sneezing like crazy lately allergies or something and I think that is what

maybe is irritating it. Maybe? Anyway I got up this morning took two

benedryl and two tylenol and laid back down when I got up an hour later it

was the best I have felt in 4 days. I also haven't sneezed any more today

though. Mine started a year before my most recent surgery and they were fine

up until a month ago and bamm they started again along with the other

worsening symptoms from the Chiari.I talked to the PA at the NSG office and

she told me that right after that surgery everything is just numb and things

were starting to come back to life. She said I was pushing my self to hard

and to take at least three laying down flat breaks a day for about a half

hour. This does help when I have time to do it. What bothers me most is the

things I love to do irritate it the most like sewing,reading,and doing

puzzles I also can't run the vacumn what's up with that? I also can't sit

for more than 20 minutes to a time and haven't been able to sit in my

favorite chair since surgery it's reclining on the couch or nothing.I am

teaching my self new ways of doing these things though.I can now read laying

flat with the book above me and I sit at the sewing machine for ten minutes

at a time and then get up and move around. If this is going to keep up I

hope to find a relief other than more surgery. Thanks for the support. Chris

Can someone describe a Chiari Headache

> > >

> > >

> > > > Can someone describe a Chiari headache....what part of the head it

> > > > effects

> > > > and what it feels like. I was just wondering since I have had a

> > > > headache

> > > for a

> > > > week now and I never get headaches and I have been investigating

> things

> > > about

> > > > Chiari and whether or not I may have it. I know headaches are a

> symptom

> > > and

> > > > was wondering if it was connected.

> > > >

> > > > Thanks.

> > > > Kelli

> > > >

> > > >

> > > >

[Guest guest]

> A Neurosurgeon, preferrably one that is knowledgable about Chiari would be

> your best Option to see if you are sucspecting that you may have this.

>

> See my eariler Post that I made today about dealing (treating) this kind

of

> Headache.

>

> Me

> Nebraska, USA

> mymocha@...

>

> my syptoms follow this kind of headache what kind of doctor does the

> diagnosis for it? How is this headache treated cause nothing seems to

work

> for me.

>

>

>

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[Guest guest]

MRI's are your best bet when it comes to diagnosing Chiari.......but a CT

Scan can techincally do it.

If you have steel Rods in your Back, like I think you do if I remember

right, you can still have an MRI of your Brain and Cervical Spine to check

for this.

Me

Nebraska, USA

mymocha@...

> If you can't have an MRI for the Chiari will it show on a CT?

[Guest guest]

> They seem, atleast for me, to be positional, so the thing that

relieves them

> for me is changing positions......except there are times, very few,

where

> they are just a constant thing and nothing relieves it. Other then

that I am

> not sure if anything would help...........but then again, I have

not gone

> the Pain Medication route, so if that is an Option for you, there

may be

> something there that can help, I just don't know myself.

>

> Me

> Nebraska, USA

> mymocha@c...

>

> . Like how is every one who

> > gets these treating them? The only thing I can do is lay flat. My

pain med

> > does nothing for these things.Maybe I need something different

for them.

> > What are the rest of you taking for them?

My sons headaches always started from his neck first then run up to

the back of his head, at this point he could no longer move talk or

have someone talk to him.Decompression surgey helped 9 months post

op his headaches returned only up front and back of neck along with

vomiting.

The only thing that helps is pain meds and lying in a dark quiet room.

Surgery help for awhile not sure if it is scar tissue build up or

what that has caused them to come back and DR are not sure neither.

Best of luck, Connie

>

>

> ---

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