Re: bacteria repsonsible for complications

[Guest guest]

I do understand how the medication works and the implications of fluid and

electrolyte imbalances, etc.

The thing is adding 2+2 togher and always coming to PEG is completely

misleading. There are many medications including diuretics, osmotic laxatives,

fleet and many many more that can alter electrolytes and fluids in the

body.Quite frankly many more children and adults have suffered serious

complications from the use of Fleet phosphate enemas than from miralax and it

has a far worse track record for electrolyte problems than miralax.

The answer is not to throw out all these meds. It is to more carefully monitor

hydration and electrolyte levels in these patients.

Particularly when they have pre existing conditions, eg renal failure and many

others, that make them more vulnerable to these imbalances.

If water and electrolytes are being lost due to any medication it is not rocket

science that they then need to be replaced intravenously.

Posting multiple links and selectively quoting in an attempt to 'blind them with

science' is not really helping your cause.

You have a bunch of people here that don't like miralax, but there's a bunch

more who would rather not use it if they don't absolutely have to and would like

information on alternatives and ways to get off whatever medication they are

using, or at least move to one less strong.

Constantly posting links that you infer say one thing, when in fact, taken in

context don't say anything of the sort, and making assumptive leaps regarding

causative associations, doesn't add credibility to your arguments.

You are preaching to the converted for the most part but clearly there are

others who would really prefer the facts, rather than selected 'facts' clouded

by emotion.

You assume they are on a 'different side', when the reality is that everyone is

starting from the idea that they don't want to give their children medication at

all. For some of us though, the end sometimes justifies the means at the time.

The them and us approach that seems to characterise this group is one that is

not doing it any favours if you really want serious discussion and scientific

knowledge regarding miralax to be recognised, as opposed to emotive

scaremongering.

I know that you and others have had bad experiences with miralax, but there are

probably thousands more whose children have had similar serious events with

fleet. Their usual reaction is not to say 'ban Fleet for everyone'. It is to say

that Fleet doesn't suit my child so we won't be using it again or to warn

against using it in children that have specific other conditions.

Rosemary

New Zealand

Mum to and 15, NID,

Appendicostomy/Malone/ACE, Hypertonic

sphincter, Sphincterotomy, Botox Feb 2008, Dyspraxia,

Growth issues. July 2008 Started Interferential Therapy, October 2008….we have

Poop! No more flushes since.

Nov 2008, Scoliosis, pectus excavatum.

> >

> > Doesn't this quote put up red flags to anyone about the fact that this

gentlemen is saying that if there was bad bacteria in the gut mcosal, that

complications can happen? They know more than we're being told. Jack, this

article is the one you shot down, saying they all had underlying conditions. But

according to the rapid responses, this gentlemen had this to say.........

..........

> >  

> > I find it difficult to believe that intestinal secretion was the cause of

the complications or deaths unless these patients had the unappreciated presence

of gut mucosal ischaemia or bacterial infection such as C difficle.

> > http://www.bmj. com/cgi/eletters /326/7385/ 382#29665

> >  

> >  

> > Therefore it's the bacteria in the gut that changes everything.  Also, he

says he finds it difficult to believe that intestinal secretion was the

cause....... .....He doen't know for a fact. None of them know, this is why we

were all involved in this " we don't know " study, so they could find out. Using

our children!!!!

> > Jeanie 

> >

>