Re: New To The Group

[Guest guest]

Welcome to the group ! If you have any specific questions regarding

Dr. Levin you can email me anytime: mgodwithusaaol (DOT) I had my reversal

exactly one week ago. My tubal ligation was done in 95 Pomeroy method. I hope

to ttc (try to conceive) and get a +++sign on a hpt (home pregnancy test)

soon! Congradulations on finding your true love. Sounds really exciting! I am

so thankful that I chose Dr. Levin. He is so great! He will surprise you with

quick responses and alot of honesty and hope! Check his stats. You will be

very happy with his experience and education. I am also more impressed with

his methods of reversal. Good luck to you. Hope to hear updates on what you

decide. I know that Dr. Levin would do everything possible to fit you in. God

bless,

Ingrid

Me 30

dh (darling husband) 39

dd (darling daughter) 13

ds 10

ds 6

TL tubal ligation 95

TR tubal reversal Jan. 7, 2002

[Guest guest]

Welcome ! This is a great group of women! And is full of support and

information! Just ask us anything and somebody will be sure to respond!

I'm an almost 35 year old woman who has so far had my consultation with Dr.

Levin on Jan. 8th and have not yet set a date for my TR(reversal). My

husband and I together (collectively) have 6 kids, but we really want one of

our own! Lucky number 7!

If there is anything you would like to talk about, just give me a shout!

email: cindytay@...

in Michigan

New to the Group

> Hi, just call me from OKC. I am glad I found this group.

> It is so excited to be able to talk to other women about this.

>

>

>

>

[Guest guest]

> Hi, just call me from OKC. I am glad I found this group.

> It is so excited to be able to talk to other women about this.

Hi ! My name is to and I am also from Oklahoma!

You may not be familiar with my location though, a little town called

Heavener, about 45 miles from Sallisaw if that helps any. Im new to

the group to, maybe we can help each other out here. I hear they

have a buddy system to that gets you a discount on your surgery, it

makes it around $5500 i think. if you want, get back to me. Im

excited that someone that lives this close to me is going through the

same thing.

michelle_r_harwell@...

[Guest guest]

Welcome to the group Mel and I am glad that you found the group. I hope to

talk to you soon. I have 3 girls ages 13, 11 and 7 and I am scheduled to have

my TR on my birthday Jun 3 and I can't wait. I will talk to you later.

Krissy

eleanor_1969 wrote: Hi.My name is Melaney;i'm 32,married to

Joe(a truck driver)who is

36yrs.I have 3 beautiful children(2girls,one boy). is 13,Jordy

is 11(on 01/21/02), and Garth is 9.Joe and I have been married a

little over 6 years.We just got our info packet from the Dr.We are

very excited, but no date has been set yet.I don't have a buddy for

the day yet,either.It really is nice to finally make some friends and

talk to others who are like me.Having my tubes tied was the biggest

mistake of my life.I'm so pleasedI've found this place and this

doctor!!!!Nice to meet all of you and hope to hear from you soon!!!Mel

[Guest guest]

sorry no advice just wanted to say welcome and keep on kicking lol

Carolyn Borchardt wrote:

Hi all, I am new to all of this, but I must say that doing "Get Ripped" for the first time this AM.. It is for me. I am a 47 yr old grandma that trains in Karate and I just want to pump it up a bit. Any advice for me?As Deb has said: "Fitness is a journey and it begins with the first step.""This isn't about weight loss, it's about enlightenment" -

[Guest guest]

hi monica i am looking forward to geting to know you i will help you eny way i

can lets have fun helping each other donnieKY

Subject: New To The Group

To: hugs-n-pain

Date: Saturday, May 16, 2009, 2:28 AM

Aloha,

I am from The Big Island of Hawaii. I have severe neck, back, shoulder

pain. Thyroid disease, type 2 diabetes, and a form of lupus.

 

I am currently seeing a neurologist to find out what is causing all this pain. I

have NEVER been in this much. He has been kind enough to RX Vicodin 10/325 3

times  a day. But I do know the longer I take it the less effective it can

become.

 

I REALLY need you folks for support and information. I am worried this may turn

into a chronic pain problem and in the long run what can be used to treat the

pain? Any help, ideas, meds that will work long term for chronic pain etc....

Also in finding a pain management Dr. that understands, and is willing to treat

the apin long term.

 

How do I find such a Dr?

 

Thanks a ton! in Hawaii

[Guest guest]

Donnie and Everyone Else,

Thank you for the welcome to the group. I will try and help anyone if I can. I

am always a good listener.. I may not always have the answer though. Hope

everyone has a VERY low pain weekend and a relaxing, enjoyable one too.

Hugs and Love to all from Hawaii,

Subject: New To The Group

To: hugs-n-pain

Date: Saturday, May 16, 2009, 2:28 AM

Aloha,

I am from The Big Island of Hawaii. I have severe neck, back, shoulder

pain. Thyroid disease, type 2 diabetes, and a form of lupus.

 

I am currently seeing a neurologist to find out what is causing all this pain. I

have NEVER been in this much. He has been kind enough to RX Vicodin 10/325 3

times  a day. But I do know the longer I take it the less effective it can

become.

 

I REALLY need you folks for support and information. I am worried this may turn

into a chronic pain problem and in the long run what can be used to treat the

pain? Any help, ideas, meds that will work long term for chronic pain etc....

Also in finding a pain management Dr. that understands, and is willing to treat

the apin long term.

 

How do I find such a Dr?

 

Thanks a ton! in Hawaii

[Guest guest]

hi monica nice to have you in the group what kind of pain do you have i hope you

have a low pain weekend to donnieKY

From: aloha.monica <aloha.monica@ yahoo.com>

Subject: New To The Group

To: hugs-n-pain@ yahoogroups. com

Date: Saturday, May 16, 2009, 2:28 AM

Aloha,

I am from The Big Island of Hawaii. I have severe neck, back, shoulder

pain. Thyroid disease, type 2 diabetes, and a form of lupus.

 

I am currently seeing a neurologist to find out what is causing all this pain. I

have NEVER been in this much. He has been kind enough to RX Vicodin 10/325 3

times  a day. But I do know the longer I take it the less effective it can

become.

 

I REALLY need you folks for support and information. I am worried this may turn

into a chronic pain problem and in the long run what can be used to treat the

pain? Any help, ideas, meds that will work long term for chronic pain etc....

Also in finding a pain management Dr. that understands, and is willing to treat

the apin long term.

 

How do I find such a Dr?

 

Thanks a ton! in Hawaii

[Guest guest]

Donnie,

I have a severe burning pain all around my neck, shoulders and back. Some days

worse than others and I have a hard time moving my neck without pain. My

neurologist has been kind enough to RX Vicodin 10-325 3 times a day. I'm just

VERY concerned about building up a tolerance then it won't help the pain.What do

you folks do to avoid his problem?

Hugs,

From: aloha.monica <aloha.monica@ yahoo.com>

Subject: New To The Group

To: hugs-n-pain@ yahoogroups. com

Date: Saturday, May 16, 2009, 2:28 AM

Aloha,

I am from The Big Island of Hawaii. I have severe neck, back, shoulder

pain. Thyroid disease, type 2 diabetes, and a form of lupus.

 

I am currently seeing a neurologist to find out what is causing all this pain. I

have NEVER been in this much. He has been kind enough to RX Vicodin 10/325 3

times  a day. But I do know the longer I take it the less effective it can

become.

 

I REALLY need you folks for support and information. I am worried this may turn

into a chronic pain problem and in the long run what can be used to treat the

pain? Any help, ideas, meds that will work long term for chronic pain etc....

Also in finding a pain management Dr. that understands, and is willing to treat

the apin long term.

 

How do I find such a Dr?

 

Thanks a ton! in Hawaii

[Guest guest]

hi monica we all build up tolerancewe tuff it out or get the doc to give us

stronger pain aids the docs dont like giveing us stronger pain pills because we

will build up to big of a tolaerance i just bairly get by everday i am takeing

oxyconten 80,s twice dayly and i cannot do much my pain pills are to weak but i

get by and that is all that matters monica i hope the doc finds out what is rong

with you you mite have rsd berning pain is one of the semtoms of rsd is your

nick sencetuf to the tuch and is your nick red what is it like liveing on a

iland donnieKY 

From: aloha.monica <aloha.monica@ yahoo.com>

Subject: New To The Group

To: hugs-n-pain@ yahoogroups. com

Date: Saturday, May 16, 2009, 2:28 AM

Aloha,

I am from The Big Island of Hawaii. I have severe neck, back, shoulder

pain. Thyroid disease, type 2 diabetes, and a form of lupus.

 

I am currently seeing a neurologist to find out what is causing all this pain. I

have NEVER been in this much. He has been kind enough to RX Vicodin 10/325 3

times  a day. But I do know the longer I take it the less effective it can

become.

 

I REALLY need you folks for support and information. I am worried this may turn

into a chronic pain problem and in the long run what can be used to treat the

pain? Any help, ideas, meds that will work long term for chronic pain etc....

Also in finding a pain management Dr. that understands, and is willing to treat

the apin long term.

 

How do I find such a Dr?

 

Thanks a ton! in Hawaii

[Guest guest]

hi monica we all build up tolerancewe tuff it out or get the doc to give us

stronger pain aids the docs dont like giveing us stronger pain pills because we

will build up to big of a tolaerance i just bairly get by everday i am takeing

oxyconten 80,s twice dayly and i cannot do much my pain pills are to weak but i

get by and that is all that matters monica i hope the doc finds out what is rong

with you you mite have rsd berning pain is one of the semtoms of rsd is your

nick sencetuf to the tuch and is your nick red what is it like liveing on a

iland donnieKY 

From: aloha.monica <aloha.monica@ yahoo.com>

Subject: New To The Group

To: hugs-n-pain@ yahoogroups. com

Date: Saturday, May 16, 2009, 2:28 AM

Aloha,

I am from The Big Island of Hawaii. I have severe neck, back, shoulder

pain. Thyroid disease, type 2 diabetes, and a form of lupus.

 

I am currently seeing a neurologist to find out what is causing all this pain. I

have NEVER been in this much. He has been kind enough to RX Vicodin 10/325 3

times  a day. But I do know the longer I take it the less effective it can

become.

 

I REALLY need you folks for support and information. I am worried this may turn

into a chronic pain problem and in the long run what can be used to treat the

pain? Any help, ideas, meds that will work long term for chronic pain etc....

Also in finding a pain management Dr. that understands, and is willing to treat

the apin long term.

 

How do I find such a Dr?

 

Thanks a ton! in Hawaii

[Guest guest]

Hi ,

was reading the blogs and Im fairly new to this whole thing.  I saw that you

said you dont tolerate the winter well due to your type of lupus.  I was just

wondering if you could ellaborate on that.  I am trying to get a diagnosis and

since getting ill, I can not handle the heat or humidity.  i also now have been

having a hard time with the cold.  I too have a hard time just being in the

frozen food isle.  Starting to think there isnt a place on earth that I would be

able to tolerate.  Hope you are feeling okay!

Thanks for help,

Sharleen

________________________________

To: Hugs-N-Pain

Sent: Sunday, May 17, 2009 3:06:44 PM

Subject: RE: New To The Group

Aloha, !! I don't tolerate winter well either and suffer from

cryoglobulenemia and Reynaud's... among other things, but those are the two

that are subject to changes in temperature. I have problems just being in

the frozen food aisle in the supermarket! !

Wish I could join you. I DO live on an island: Long Island! Very close to

NY City so honking horns is something we are just used to. You may have

heard that the definition of a " New York Minute " is the time it takes for

the light to turn green and the guy behind you to honk his horn.LOL

Just the thought of Hawaii is relaxing me :-)

Dorothy

_____

From: Hugs-N-Pain@ yahoogroups. com [mailto:Hugs-N-Pain@ yahoogroups. com] On

Behalf Of aloha.monica

Sent: Saturday, May 16, 2009 5:47 PM

To: Hugs-N-Pain@ yahoogroups. com

Subject: Re: New To The Group

Donnie,

The skin is normal in color. Living on a Island you either love it or some

people do get cabin fever. Hawaii is warm all year round and is a beautiful

place. Each Island has it's own flavor so to speak. I moved here mainly for

health reasons. Also Hawaii has very low crime and the people are very

friendly. For examle honking your car horn is considered very rude here.I

cannot tolerate winter time due to the form of lupus I have.

Dang! I don't know what I will do for pain when my body develops tolerance.

Hopefully I will get a DX and there will be a medication to treat it that

doesn't have a tolerance. Sorry you are in so much pain Donnie. It helps to

know we are not alone.

Hugs,

_,_._,___

[Guest guest]

Sharleen,

I have what is called Sjogren's Syndrome. Or since I have all the symtoms but my

blood work is negative it's then called Sicca Complex or Sicca Disease. Sicca

means dry. Sjogrens is sister/cousin to lupus.

 

It causes VERY dry eyes, mouth, skin, nasal passages, etc. It causes internal

dryness as well. And many more things.

 

The problem with auto-immune illnesses are a person can have all the signs but

still test negative. It's frustrating.

 

That is why winter time is so hard for me. I need to live where there is plenty

of moisture. SS also causes MAJOR fatigue.

 

And now I have this ongoing burning pain in my neck, shoulders, and back. I sure

do hope my neurologist gets to the bottom of what the problem is.

 

All I can suggest is you see the BEST Drs. you can find to help you. Keep a

daily dairy of what you feel. A good Dr. would run several bloog tests to rule

in or out illnesses. BUT remember you can still test negative and have all the

signs of something.

 

Today was a HIGH pain day for me. Strange yesterday was much better.

 

I wish you well in finding what the problem is.

 

Hugs,

Subject: Re: New To The Group

To: Hugs-N-Pain

Date: Sunday, May 17, 2009, 3:14 PM

Hi ,

was reading the blogs and Im fairly new to this whole thing.  I saw that you

said you dont tolerate the winter well due to your type of lupus.  I was just

wondering if you could ellaborate on that.  I am trying to get a diagnosis and

since getting ill, I can not handle the heat or humidity.  i also now have been

having a hard time with the cold.  I too have a hard time just being in the

frozen food isle.  Starting to think there isnt a place on earth that I would be

able to tolerate.  Hope you are feeling okay!

Thanks for help,

Sharleen

________________________________

To: Hugs-N-Pain

Sent: Sunday, May 17, 2009 3:06:44 PM

Subject: RE: New To The Group

Aloha, !! I don't tolerate winter well either and suffer from

cryoglobulenemia and Reynaud's... among other things, but those are the two

that are subject to changes in temperature. I have problems just being in

the frozen food aisle in the supermarket! !

Wish I could join you. I DO live on an island: Long Island! Very close to

NY City so honking horns is something we are just used to. You may have

heard that the definition of a " New York Minute " is the time it takes for

the light to turn green and the guy behind you to honk his horn.LOL

Just the thought of Hawaii is relaxing me :-)

Dorothy

_____

From: Hugs-N-Pain@ yahoogroups. com [mailto:Hugs-N-Pain@ yahoogroups. com] On

Behalf Of aloha.monica

Sent: Saturday, May 16, 2009 5:47 PM

To: Hugs-N-Pain@ yahoogroups. com

Subject: Re: New To The Group

Donnie,

The skin is normal in color. Living on a Island you either love it or some

people do get cabin fever. Hawaii is warm all year round and is a beautiful

place. Each Island has it's own flavor so to speak. I moved here mainly for

health reasons. Also Hawaii has very low crime and the people are very

friendly. For examle honking your car horn is considered very rude here.I

cannot tolerate winter time due to the form of lupus I have.

Dang! I don't know what I will do for pain when my body develops tolerance.

Hopefully I will get a DX and there will be a medication to treat it that

doesn't have a tolerance. Sorry you are in so much pain Donnie. It helps to

know we are not alone.

Hugs,

_,_._,___

[Guest guest]

Sharleen,

I live On The Big Island with the 2 active volcanos. WOW! 2 years and still no

DX!! HMMM. If it were me I would keep changing Drs. until I got to the problem.

This is EXACTLY what worries me too. I am going to have an radiograph of my

neck. I am praying it shows what the problem is. Well I feel for you. It would

be driving me crazy NOT knowing what is wrong for 2 yrs. My fingers don't bother

me. Yet anyways. I'll keep you in my thoughts. If I can be of any more help just

let me know.

 

Hugs,

...

From: Sharleen Rupp <sharleenrupp@ yahoo.com>

Subject: Re: New To The Group

To: Hugs-N-Pain@ yahoogroups. com

Date: Sunday, May 17, 2009, 3:14 PM

Hi ,

was reading the blogs and Im fairly new to this whole thing.  I saw that you

said you dont tolerate the winter well due to your type of lupus.  I was just

wondering if you could ellaborate on that.  I am trying to get a diagnosis and

since getting ill, I can not handle the heat or humidity.  i also now have been

having a hard time with the cold.  I too have a hard time just being in the

frozen food isle.  Starting to think there isnt a place on earth that I would be

able to tolerate.  Hope you are feeling okay!

Thanks for help,

Sharleen

____________ _________ _________ __

From: Dorothy <dorvoptonline (DOT) net>

To: Hugs-N-Pain@ yahoogroups. com

Sent: Sunday, May 17, 2009 3:06:44 PM

Subject: RE: New To The Group

Aloha, !! I don't tolerate winter well either and suffer from

cryoglobulenemia and Reynaud's... among other things, but those are the two

that are subject to changes in temperature. I have problems just being in

the frozen food aisle in the supermarket! !

Wish I could join you. I DO live on an island: Long Island! Very close to

NY City so honking horns is something we are just used to. You may have

heard that the definition of a " New York Minute " is the time it takes for

the light to turn green and the guy behind you to honk his horn.LOL

Just the thought of Hawaii is relaxing me :-)

Dorothy

_____

From: Hugs-N-Pain@ yahoogroups. com [mailto:Hugs- N-Pain@ yahoogroups. com] On

Behalf Of aloha.monica

Sent: Saturday, May 16, 2009 5:47 PM

To: Hugs-N-Pain@ yahoogroups. com

Subject: Re: New To The Group

Donnie,

The skin is normal in color. Living on a Island you either love it or some

people do get cabin fever. Hawaii is warm all year round and is a beautiful

place. Each Island has it's own flavor so to speak. I moved here mainly for

health reasons. Also Hawaii has very low crime and the people are very

friendly. For examle honking your car horn is considered very rude here.I

cannot tolerate winter time due to the form of lupus I have.

Dang! I don't know what I will do for pain when my body develops tolerance.

Hopefully I will get a DX and there will be a medication to treat it that

doesn't have a tolerance. Sorry you are in so much pain Donnie. It helps to

know we are not alone.

Hugs,

_,_._,___

[Guest guest]

hi sharleen nice to mete you my name is donnie i am a painer to i have been a

painer for 8 years sorry to here you are like monica donot know way you are

herting what state do you live in donnieKY

From: Sharleen Rupp <sharleenrupp@ yahoo.com>

Subject: Re: New To The Group

To: Hugs-N-Pain@ yahoogroups. com

Date: Sunday, May 17, 2009, 3:14 PM

Hi ,

was reading the blogs and Im fairly new to this whole thing.  I saw that you

said you dont tolerate the winter well due to your type of lupus.  I was just

wondering if you could ellaborate on that.  I am trying to get a diagnosis and

since getting ill, I can not handle the heat or humidity.  i also now have been

having a hard time with the cold.  I too have a hard time just being in the

frozen food isle.  Starting to think there isnt a place on earth that I would be

able to tolerate.  Hope you are feeling okay!

Thanks for help,

Sharleen

____________ _________ _________ __

From: Dorothy <dorvoptonline (DOT) net>

To: Hugs-N-Pain@ yahoogroups. com

Sent: Sunday, May 17, 2009 3:06:44 PM

Subject: RE: New To The Group

Aloha, !! I don't tolerate winter well either and suffer from

cryoglobulenemia and Reynaud's... among other things, but those are the two

that are subject to changes in temperature. I have problems just being in

the frozen food aisle in the supermarket! !

Wish I could join you. I DO live on an island: Long Island! Very close to

NY City so honking horns is something we are just used to. You may have

heard that the definition of a " New York Minute " is the time it takes for

the light to turn green and the guy behind you to honk his horn.LOL

Just the thought of Hawaii is relaxing me :-)

Dorothy

_____

From: Hugs-N-Pain@ yahoogroups. com [mailto:Hugs- N-Pain@ yahoogroups. com] On

Behalf Of aloha.monica

Sent: Saturday, May 16, 2009 5:47 PM

To: Hugs-N-Pain@ yahoogroups. com

Subject: Re: New To The Group

Donnie,

The skin is normal in color. Living on a Island you either love it or some

people do get cabin fever. Hawaii is warm all year round and is a beautiful

place. Each Island has it's own flavor so to speak. I moved here mainly for

health reasons. Also Hawaii has very low crime and the people are very

friendly. For examle honking your car horn is considered very rude here.I

cannot tolerate winter time due to the form of lupus I have.

Dang! I don't know what I will do for pain when my body develops tolerance.

Hopefully I will get a DX and there will be a medication to treat it that

doesn't have a tolerance. Sorry you are in so much pain Donnie. It helps to

know we are not alone.

Hugs,

_,_._,___

[Guest guest]

hi monica you could have rsd it is a berning pain and your skin dose not have to

tern colars punch in rsd on your computer and it will tell you all about it and

sharleen you could have it to 85 persent of the people that have it are wemon i

had it for about 3 years befor i knew i had it i was just like you and sharleen

i seen somenny docs trying to find out what was rong with me i even had 1 or 2

sergerys i didnot need trying to find out why i was herting all the time after i

had my first knee sergery i got rsd and started herting werse and herting all

the time so i had 2 more sergerys trying to find out why i was herting all the

time the docs knew what i had and didnot tell me because thay didnot know how to

treat me so i had another sergery i didnot need trying to find out why i was

herting rsd just happens sometimes usely after a sergery but sometimes it just

happens for no reson donnieKY

From: Sharleen Rupp <sharleenrupp@ yahoo.com>

Subject: Re: New To The Group

To: Hugs-N-Pain@ yahoogroups. com

Date: Sunday, May 17, 2009, 3:14 PM

Hi ,

was reading the blogs and Im fairly new to this whole thing.  I saw that you

said you dont tolerate the winter well due to your type of lupus.  I was just

wondering if you could ellaborate on that.  I am trying to get a diagnosis and

since getting ill, I can not handle the heat or humidity.  i also now have been

having a hard time with the cold.  I too have a hard time just being in the

frozen food isle.  Starting to think there isnt a place on earth that I would be

able to tolerate.  Hope you are feeling okay!

Thanks for help,

Sharleen

____________ _________ _________ __

From: Dorothy <dorvoptonline (DOT) net>

To: Hugs-N-Pain@ yahoogroups. com

Sent: Sunday, May 17, 2009 3:06:44 PM

Subject: RE: New To The Group

Aloha, !! I don't tolerate winter well either and suffer from

cryoglobulenemia and Reynaud's... among other things, but those are the two

that are subject to changes in temperature. I have problems just being in

the frozen food aisle in the supermarket! !

Wish I could join you. I DO live on an island: Long Island! Very close to

NY City so honking horns is something we are just used to. You may have

heard that the definition of a " New York Minute " is the time it takes for

the light to turn green and the guy behind you to honk his horn.LOL

Just the thought of Hawaii is relaxing me :-)

Dorothy

_____

From: Hugs-N-Pain@ yahoogroups. com [mailto:Hugs- N-Pain@ yahoogroups. com] On

Behalf Of aloha.monica

Sent: Saturday, May 16, 2009 5:47 PM

To: Hugs-N-Pain@ yahoogroups. com

Subject: Re: New To The Group

Donnie,

The skin is normal in color. Living on a Island you either love it or some

people do get cabin fever. Hawaii is warm all year round and is a beautiful

place. Each Island has it's own flavor so to speak. I moved here mainly for

health reasons. Also Hawaii has very low crime and the people are very

friendly. For examle honking your car horn is considered very rude here.I

cannot tolerate winter time due to the form of lupus I have.

Dang! I don't know what I will do for pain when my body develops tolerance.

Hopefully I will get a DX and there will be a medication to treat it that

doesn't have a tolerance. Sorry you are in so much pain Donnie. It helps to

know we are not alone.

Hugs,

_,_._,___

[Guest guest]

hi lotacats i am at that bridge now my tolerance has risen i should have asked

the doc 3 months ago about it but i didnot i tuffed it out alot of days my 2

oxyconten 80,s just barly get me throuw the day i stay on the couch i hert tobad

to do enything i have got off the couch 1 time in allmost 2 weeks i go to see

the doc tuesday i am going to ask hem to let me take another oxyconten aday or

give me somethiung for brakethrouw pain i was geting 60 percaset 10 325 amonth

to the last scrit he gave me i gave it back the next month and told hem i didnot

need them thay didnot mix good with my oxyconten i am going to tell hem i cannot

handle the break throuw pain or put me on something other than oxyconten we have

not shanged my meds for over a year i hope he is in a good mood docs are funny

when it comes to your meds thay donot like to increase them but i have been a

good boy for over ayear what do you thank donnieKY

Subject: Re: New To The Group

To: Hugs-N-Pain

Date: Sunday, May 17, 2009, 6:38 PM

There's always " drug holidays " to drop the tolerance.  I got away with that with

the T3's for 10 years.   Then the pain got worse and we went with MsContin...so

far tolerance is not an issue..but it may someday.  Dunno.  Cross that bridge

when I come to it.

http://en.wikipedia .org/wiki/ Drug_holidayIt's something you and your doctor

would work out.  You would not want to drop your meds without your doc reducing

them so you don't have any withdrawal.  Some will use a drug that does not build

tolerance for a time while the tolerance drops...then you start over again.The

pain comes back...so you

[Guest guest]

hi lotacats i am at that bridge now my tolerance has risen i should have asked

the doc 3 months ago about it but i didnot i tuffed it out alot of days my 2

oxyconten 80,s just barly get me throuw the day i stay on the couch i hert tobad

to do enything i have got off the couch 1 time in allmost 2 weeks i go to see

the doc tuesday i am going to ask hem to let me take another oxyconten aday or

give me somethiung for brakethrouw pain i was geting 60 percaset 10 325 amonth

to the last scrit he gave me i gave it back the next month and told hem i didnot

need them thay didnot mix good with my oxyconten i am going to tell hem i cannot

handle the break throuw pain or put me on something other than oxyconten we have

not shanged my meds for over a year i hope he is in a good mood docs are funny

when it comes to your meds thay donot like to increase them but i have been a

good boy for over ayear what do you thank donnieKY

From: aloha.monica <aloha.monica@ yahoo.com>

Subject: New To The Group

To: hugs-n-pain@ yahoogroups. com

Date: Saturday, May 16, 2009, 2:28 AM

Aloha,

I am from The Big Island of Hawaii. I have severe neck, back, shoulder

pain. Thyroid disease, type 2 diabetes, and a form of lupus.

 

I am currently seeing a neurologist to find out what is causing all this pain. I

have NEVER been in this much. He has been kind enough to RX Vicodin 10/325 3

times  a day. But I do know the longer I take it the less effective it can

become.

 

I REALLY need you folks for support and information. I am worried this may turn

into a chronic pain problem and in the long run what can be used to treat the

pain? Any help, ideas, meds that will work long term for chronic pain etc....

Also in finding a pain management Dr. that understands, and is willing to treat

the apin long term.

 

How do I find such a Dr?

 

Thanks a ton! in Hawaii

[Guest guest]

That is EXACTLY how I told my neurologist I feel. I said " I feel like a walking

blow torch " .! For some odd reason the pain has really localized to my neck area.

I sure hope it's NOT RSD. I will ask at my next appt. But I would think he would

of mentioned RSD by now. Who knows. At any rate I know how " The blow torch

feeling is " .

Hugs,

From: Sharleen Rupp <sharleenrupp@ yahoo.com>

Subject: Re: New To The Group

To: Hugs-N-Pain@ yahoogroups. com

Date: Sunday, May 17, 2009, 3:14 PM

Hi ,

was reading the blogs and Im fairly new to this whole thing.  I saw that you

said you dont tolerate the winter well due to your type of lupus.  I was just

wondering if you could ellaborate on that.  I am trying to get a diagnosis and

since getting ill, I can not handle the heat or humidity.  i also now have been

having a hard time with the cold.  I too have a hard time just being in the

frozen food isle.  Starting to think there isnt a place on earth that I would be

able to tolerate.  Hope you are feeling okay!

Thanks for help,

Sharleen

____________ _________ _________ __

From: Dorothy <dorvoptonline (DOT) net>

To: Hugs-N-Pain@ yahoogroups. com

Sent: Sunday, May 17, 2009 3:06:44 PM

Subject: RE: New To The Group

Aloha, !! I don't tolerate winter well either and suffer from

cryoglobulenemia and Reynaud's... among other things, but those are the two

that are subject to changes in temperature. I have problems just being in

the frozen food aisle in the supermarket! !

Wish I could join you. I DO live on an island: Long Island! Very close to

NY City so honking horns is something we are just used to. You may have

heard that the definition of a " New York Minute " is the time it takes for

the light to turn green and the guy behind you to honk his horn.LOL

Just the thought of Hawaii is relaxing me :-)

Dorothy

_____

From: Hugs-N-Pain@ yahoogroups. com [mailto:Hugs- N-Pain@ yahoogroups. com] On

Behalf Of aloha.monica

Sent: Saturday, May 16, 2009 5:47 PM

To: Hugs-N-Pain@ yahoogroups. com

Subject: Re: New To The Group

Donnie,

The skin is normal in color. Living on a Island you either love it or some

people do get cabin fever. Hawaii is warm all year round and is a beautiful

place. Each Island has it's own flavor so to speak. I moved here mainly for

health reasons. Also Hawaii has very low crime and the people are very

friendly. For examle honking your car horn is considered very rude here.I

cannot tolerate winter time due to the form of lupus I have.

Dang! I don't know what I will do for pain when my body develops tolerance.

Hopefully I will get a DX and there will be a medication to treat it that

doesn't have a tolerance. Sorry you are in so much pain Donnie. It helps to

know we are not alone.

Hugs,

_,_._,___

[Guest guest]

I have RSD, so far JUST in my right leg from the mid-thigh down…..it is

incredibly painful….RDS doesn’t ALWAYS spread to other body parts, though it

CAN.

RSD is also now sometimes called CRPD, Complex Regional Pain Disorder……

Marta Towne-

www.shadowridgeranch.info

www.myspace.com/martatownejones

www.myspace.com/myshadowridge

From: Hugs-N-Pain [mailto:Hugs-N-Pain ] On

Behalf Of aloha.monica

Sent: Monday, May 18, 2009 1:53 PM

To: Hugs-N-Pain

Subject: Re: New To The Group

That is EXACTLY how I told my neurologist I feel. I said " I feel like a

walking blow torch " .! For some odd reason the pain has really localized to

my neck area. I sure hope it's NOT RSD. I will ask at my next appt. But I

would think he would of mentioned RSD by now. Who knows. At any rate I know

how " The blow torch feeling is " .

Hugs,

From: Sharleen Rupp <sharleenrupp@ yahoo.com>

Subject: Re: New To The Group

To: Hugs-N-Pain@ yahoogroups. com

Date: Sunday, May 17, 2009, 3:14 PM

Hi ,

was reading the blogs and Im fairly new to this whole thing. I saw that you

said you dont tolerate the winter well due to your type of lupus. I was

just wondering if you could ellaborate on that. I am trying to get a

diagnosis and since getting ill, I can not handle the heat or humidity. i

also now have been having a hard time with the cold. I too have a hard time

just being in the frozen food isle. Starting to think there isnt a place on

earth that I would be able to tolerate. Hope you are feeling okay!

Thanks for help,

Sharleen

____________ _________ _________ __

From: Dorothy <dorvoptonline (DOT) net>

To: Hugs-N-Pain@ yahoogroups. com

Sent: Sunday, May 17, 2009 3:06:44 PM

Subject: RE: New To The Group

Aloha, !! I don't tolerate winter well either and suffer from

cryoglobulenemia and Reynaud's... among other things, but those are the two

that are subject to changes in temperature. I have problems just being in

the frozen food aisle in the supermarket! !

Wish I could join you. I DO live on an island: Long Island! Very close to

NY City so honking horns is something we are just used to. You may have

heard that the definition of a " New York Minute " is the time it takes for

the light to turn green and the guy behind you to honk his horn.LOL

Just the thought of Hawaii is relaxing me :-)

Dorothy

_____

From: Hugs-N-Pain@ yahoogroups. com [mailto:Hugs- N-Pain@ yahoogroups. com]

On

Behalf Of aloha.monica

Sent: Saturday, May 16, 2009 5:47 PM

To: Hugs-N-Pain@ yahoogroups. com

Subject: Re: New To The Group

Donnie,

The skin is normal in color. Living on a Island you either love it or some

people do get cabin fever. Hawaii is warm all year round and is a beautiful

place. Each Island has it's own flavor so to speak. I moved here mainly for

health reasons. Also Hawaii has very low crime and the people are very

friendly. For examle honking your car horn is considered very rude here.I

cannot tolerate winter time due to the form of lupus I have.

Dang! I don't know what I will do for pain when my body develops tolerance.

Hopefully I will get a DX and there will be a medication to treat it that

doesn't have a tolerance. Sorry you are in so much pain Donnie. It helps to

know we are not alone.

Hugs,

_,_._,___

[Guest guest]

Aloha ,

Nice to meet you! WOW! 7 Kids. I don't think I could keep up with everything

having chronic pain and a large family. Cute name for a animal.

 

It's just me and my husband. Our child is a VERY spolied chocolate lab named

Winston. I'm a animal lover too.

 

 

 

From: Sharleen Rupp <sharleenrupp@ yahoo.com>

Subject: Re: New To The Group

To: Hugs-N-Pain@ yahoogroups. com

Date: Sunday, May 17, 2009, 3:14 PM

Hi ,

was reading the blogs and Im fairly new to this whole thing.  I saw that you

said you dont tolerate the winter well due to your type of lupus.  I was

just wondering if you could ellaborate on that.  I am trying to get a

diagnosis and since getting ill, I can not handle the heat or humidity.  i

also now have been having a hard time with the cold.  I too have a hard time

just being in the frozen food isle.  Starting to think there isnt a place on

earth that I would be able to tolerate.  Hope you are feeling okay!

Thanks for help,

Sharleen

____________ _________ _________ __

From: Dorothy <dorvoptonline (DOT) net>

To: Hugs-N-Pain@ yahoogroups. com

Sent: Sunday, May 17, 2009 3:06:44 PM

Subject: RE: New To The Group

Aloha, !! I don't tolerate winter well either and suffer from

cryoglobulenemia and Reynaud's... among other things, but those are the two

that are subject to changes in temperature. I have problems just being in

the frozen food aisle in the supermarket! !

Wish I could join you. I DO live on an island: Long Island! Very close to

NY City so honking horns is something we are just used to. You may have

heard that the definition of a " New York Minute " is the time it takes for

the light to turn green and the guy behind you to honk his horn.LOL

Just the thought of Hawaii is relaxing me :-)

Dorothy

_____

From: Hugs-N-Pain@ yahoogroups. com [mailto:Hugs- N-Pain@ yahoogroups. com]

On

Behalf Of aloha.monica

Sent: Saturday, May 16, 2009 5:47 PM

To: Hugs-N-Pain@ yahoogroups. com

Subject: Re: New To The Group

Donnie,

The skin is normal in color. Living on a Island you either love it or some

people do get cabin fever. Hawaii is warm all year round and is a beautiful

place. Each Island has it's own flavor so to speak. I moved here mainly for

health reasons. Also Hawaii has very low crime and the people are very

friendly. For examle honking your car horn is considered very rude here.I

cannot tolerate winter time due to the form of lupus I have.

Dang! I don't know what I will do for pain when my body develops tolerance.

Hopefully I will get a DX and there will be a medication to treat it that

doesn't have a tolerance. Sorry you are in so much pain Donnie. It helps to

know we are not alone.

Hugs,

_,_._,___

[Guest guest]

I heard that about s Hopkins.  Its just hard figuring it all out.  Ive

tried to give my docs a chance but I think enough is enough.  Have you gone to

many different docs?  cause when I did change the neuro I first had, the other

seemed to have that attitude, like oh great heres a crazy girl going from one

doc to another.  Maybe its my own comfortability but I dont know how to go

about.  Im also a single mom, with a daughter who has things going on that I

need to take to all different therapies, so its been hard to figure out how to

go to somewhere so far.  Have some family around but not too many that would be

able to help.  But I guess one has to do what they have to do, so Ill look into

it.  should be able to find someone that could watch them.

dont mean to be a pest, but do you know what the alcohol thing could mean? 

thank you for your suggestions and hope you get your answers as well!  are

there any good hospitals in Hawaii for you to go to?

Best wishes,

Sharleen

________________________________

To: Hugs-N-Pain

Sent: Monday, May 18, 2009 8:37:03 PM

Subject: Re: New To The Group

Sharleen,

Don't know where all you have gone to find out what is wrong. But s Hopkinks

is in Baltimore and is rated very highly. I would say if they can't find the

problem no one could.

 

The problem you are having with alcohol is s SURE sign of what is wrong.

 

Like I said Sharleen keep a very detailed diary. You just need to get to the

right source and you will have your answer/answers.

 

Good Luck and Hugs,

From: Sharleen Rupp <sharleenrupp@ yahoo.com>

Subject: Re: New To The Group

To: Hugs-N-Pain@ yahoogroups. com

Date: Sunday, May 17, 2009, 3:14 PM

Hi ,

was reading the blogs and Im fairly new to this whole thing.  I saw that you

said you dont tolerate the winter well due to your type of lupus.  I was

just wondering if you could ellaborate on that.  I am trying to get a

diagnosis and since getting ill, I can not handle the heat or humidity.  i

also now have been having a hard time with the cold.  I too have a hard time

just being in the frozen food isle.  Starting to think there isnt a place on

earth that I would be able to tolerate.  Hope you are feeling okay!

Thanks for help,

Sharleen

____________ _________ _________ __

From: Dorothy <dorvoptonline (DOT) net>

To: Hugs-N-Pain@ yahoogroups. com

Sent: Sunday, May 17, 2009 3:06:44 PM

Subject: RE: New To The Group

Aloha, !! I don't tolerate winter well either and suffer from

cryoglobulenemia and Reynaud's... among other things, but those are the two

that are subject to changes in temperature. I have problems just being in

the frozen food aisle in the supermarket! !

Wish I could join you. I DO live on an island: Long Island! Very close to

NY City so honking horns is something we are just used to. You may have

heard that the definition of a " New York Minute " is the time it takes for

the light to turn green and the guy behind you to honk his horn.LOL

Just the thought of Hawaii is relaxing me :-)

Dorothy

_____

From: Hugs-N-Pain@ yahoogroups. com [mailto:Hugs- N-Pain@ yahoogroups. com]

On

Behalf Of aloha.monica

Sent: Saturday, May 16, 2009 5:47 PM

To: Hugs-N-Pain@ yahoogroups. com

Subject: Re: New To The Group

Donnie,

The skin is normal in color. Living on a Island you either love it or some

people do get cabin fever. Hawaii is warm all year round and is a beautiful

place. Each Island has it's own flavor so to speak. I moved here mainly for

health reasons. Also Hawaii has very low crime and the people are very

friendly. For examle honking your car horn is considered very rude here.I

cannot tolerate winter time due to the form of lupus I have.

Dang! I don't know what I will do for pain when my body develops tolerance.

Hopefully I will get a DX and there will be a medication to treat it that

doesn't have a tolerance. Sorry you are in so much pain Donnie. It helps to

know we are not alone.

Hugs,

_,_._,___

[Guest guest]

Sharleen,

Your reaction to alcohol could be a good/huge clue for a knowlegable Dr. Some

illnesses make you intolerant to it.

 

The current neurologist I see has been a Dr. for the Olmypics, Ironman, many,

many things. Plus he is a Clinical Prof. at the Univ. here.

 

I have always had much luck with teaching Drs. and schools. How about New

Jersey? There has to be a teaching school/univ. Try to find one and be seen

there.

 

Sorry you have so much to deal with all at once, plus taking care of your

family. I wish you much luck in finding your Dx.

 

Hugs,

From: Sharleen Rupp <sharleenrupp@ yahoo.com>

Subject: Re: New To The Group

To: Hugs-N-Pain@ yahoogroups. com

Date: Sunday, May 17, 2009, 3:14 PM

Hi ,

was reading the blogs and Im fairly new to this whole thing.  I saw that you

said you dont tolerate the winter well due to your type of lupus.  I was

just wondering if you could ellaborate on that.  I am trying to get a

diagnosis and since getting ill, I can not handle the heat or humidity.  i

also now have been having a hard time with the cold.  I too have a hard time

just being in the frozen food isle.  Starting to think there isnt a place on

earth that I would be able to tolerate.  Hope you are feeling okay!

Thanks for help,

Sharleen

____________ _________ _________ __

From: Dorothy <dorvoptonline (DOT) net>

To: Hugs-N-Pain@ yahoogroups. com

Sent: Sunday, May 17, 2009 3:06:44 PM

Subject: RE: New To The Group

Aloha, !! I don't tolerate winter well either and suffer from

cryoglobulenemia and Reynaud's... among other things, but those are the two

that are subject to changes in temperature. I have problems just being in

the frozen food aisle in the supermarket! !

Wish I could join you. I DO live on an island: Long Island! Very close to

NY City so honking horns is something we are just used to. You may have

heard that the definition of a " New York Minute " is the time it takes for

the light to turn green and the guy behind you to honk his horn.LOL

Just the thought of Hawaii is relaxing me :-)

Dorothy

_____

From: Hugs-N-Pain@ yahoogroups. com [mailto:Hugs- N-Pain@ yahoogroups. com]

On

Behalf Of aloha.monica

Sent: Saturday, May 16, 2009 5:47 PM

To: Hugs-N-Pain@ yahoogroups. com

Subject: Re: New To The Group

Donnie,

The skin is normal in color. Living on a Island you either love it or some

people do get cabin fever. Hawaii is warm all year round and is a beautiful

place. Each Island has it's own flavor so to speak. I moved here mainly for

health reasons. Also Hawaii has very low crime and the people are very

friendly. For examle honking your car horn is considered very rude here.I

cannot tolerate winter time due to the form of lupus I have.

Dang! I don't know what I will do for pain when my body develops tolerance.

Hopefully I will get a DX and there will be a medication to treat it that

doesn't have a tolerance. Sorry you are in so much pain Donnie. It helps to

know we are not alone.

Hugs,

_,_._,___

[Guest guest]

a type of pain medication.

take care jackie

New To The Group

To: hugs-n-pain@ yahoogroups. com

Date: Saturday, May 16, 2009, 2:28 AM

Aloha,

I am from The Big Island of Hawaii. I have severe neck, back, shoulder

pain. Thyroid disease, type 2 diabetes, and a form of lupus.

I am currently seeing a neurologist to find out what is causing all this pain.

I have NEVER been in this much. He has been kind enough to RX Vicodin 10/325 3

times a day. But I do know the longer I take it the less effective it can

become.

I REALLY need you folks for support and information. I am worried this may

turn into a chronic pain problem and in the long run what can be used to treat

the pain? Any help, ideas, meds that will work long term for chronic pain

etc.... Also in finding a pain management Dr. that understands, and is willing

to treat the apin long term.

How do I find such a Dr?

Thanks a ton! in Hawaii