update

[Guest guest]

Debbie,

Good luck with the remainder of your pregnancy, and I'm sure you will

have a healthy, very happy baby! I'm sorry to hear of your recent troubles,

and I will be sure to pray for you!

Love,

------------------------------------------------------------------------

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[Guest guest]

> Glad to hear you found yourself a new doctor who will listen to

you!! That is What REALLY matters these days.

I agree. My last doctor was great, but she always seemed so busy

that I felt like I was bothering her with my little health problems.

This new guy really took time and tried to get to know me, and that

meant SO MUCH!!!

Strider

[Guest guest]

I felt that way at first with my Nuerologist, until after about our 3rd meetings...now we are use to each other..Must be hard being that type of doctor...I mean even harder than your regular doctor.

Visit my websitehttp://www.mylivingwithms.bravehost.com/And Sign My Petitionwww.petitiononline.com/mc7620gt

Re: update

> Glad to hear you found yourself a new doctor who will listen to you!! That is What REALLY matters these days.I agree. My last doctor was great, but she always seemed so busy that I felt like I was bothering her with my little health problems. This new guy really took time and tried to get to know me, and that meant SO MUCH!!! Strider

[Guest guest]

Hi,

I didn't know an eye doctor could examine the myelin on the optic

nerves. If this is the case, I will make an appt. today. Does

anyone have any experience with this? Do they just look at your eyes

with an instrument, or is it an invasive process at all. Maybe that

would give me some answers while I am pregnant.

Thanks for the help!

Geri

> Dear Ones,

>

> Awhile back I posted about some of my symptoms that haven't been

> diagnosed but which I thought sounded very consistent with MS.

Since

> then, I've been to the doctor and talked to him about it. Also

since

> then, I've quit consuming aspartame.

>

> I have a new doctor, since we just moved here, and I really like

> him. He's a young guy, just a few years older than me (our

daughters

> go to the elementary school together-this is a very small town),

and

> he's the first male doctor I've had since I was a kid. I told him

my

> symptoms (headaches, numbness and tingling, difficulty

concentrating,

> dizziness, clumsiness, some others) and he took me very seriously.

I

> also told him that I had done a lot of research on this combination

> of symptoms, and he encouraged me in that. We talked about

> aspartame, and he was glad I've gone off it, and I said I wanted to

> wait and see if it would help in the long term before I get any

tests

> done. Going off aspartame has helped a great deal, especially with

> the headaches and cognitive problems, and the numbness and tingling

> and dizziness has decreased but not gone away. He took seriously

my

> concerns about possible MS as well.

>

> We left it at staying off aspartame, and he suggested I go to the

eye

> doctor and have the eye doctor examine the myelin on my optic

nerves

> (I think that's what he said- does that sound right?). I suppose

> I'll do that when I can, but my insurance doesn't cover the eye

> doctor, so it'll have to go on a long list of things I plan to do

> when I can afford it. That tells me he's willing to consider the

> possibility of MS or something else that might also be serious, and

> not just think I'm a raving hypochondriac (which, frankly, I do

tend

> to be). It makes a world of difference to have your doctor take

you

> seriously, as everyone on this list is fully aware!

>

> Thanks for being here.

>

> Strider

[Guest guest]

I am glad you found a doctor who takes you seriously! I hope you

find some answers soon.

Margot

> Dear Ones,

>

> Awhile back I posted about some of my symptoms that haven't been

> diagnosed but which I thought sounded very consistent with MS.

Since

> then, I've been to the doctor and talked to him about it. Also

since

> then, I've quit consuming aspartame.

>

> I have a new doctor, since we just moved here, and I really like

> him. He's a young guy, just a few years older than me (our

daughters

> go to the elementary school together-this is a very small town),

and

> he's the first male doctor I've had since I was a kid. I told him

my

> symptoms (headaches, numbness and tingling, difficulty

concentrating,

> dizziness, clumsiness, some others) and he took me very seriously.

I

> also told him that I had done a lot of research on this combination

> of symptoms, and he encouraged me in that. We talked about

> aspartame, and he was glad I've gone off it, and I said I wanted to

> wait and see if it would help in the long term before I get any

tests

> done. Going off aspartame has helped a great deal, especially with

> the headaches and cognitive problems, and the numbness and tingling

> and dizziness has decreased but not gone away. He took seriously

my

> concerns about possible MS as well.

>

> We left it at staying off aspartame, and he suggested I go to the

eye

> doctor and have the eye doctor examine the myelin on my optic

nerves

> (I think that's what he said- does that sound right?). I suppose

> I'll do that when I can, but my insurance doesn't cover the eye

> doctor, so it'll have to go on a long list of things I plan to do

> when I can afford it. That tells me he's willing to consider the

> possibility of MS or something else that might also be serious, and

> not just think I'm a raving hypochondriac (which, frankly, I do

tend

> to be). It makes a world of difference to have your doctor take

you

> seriously, as everyone on this list is fully aware!

>

> Thanks for being here.

>

> Strider

[Guest guest]

Geri,

The eye doc looks into your eyes with a strong light, it is not invasive.

Regards,

Tom

Re: update

Hi,I didn't know an eye doctor could examine the myelin on the optic nerves. If this is the case, I will make an appt. today. Does anyone have any experience with this? Do they just look at your eyes with an instrument, or is it an invasive process at all. Maybe that would give me some answers while I am pregnant.Thanks for the help!Geri> Dear Ones,> > Awhile back I posted about some of my symptoms that haven't been > diagnosed but which I thought sounded very consistent with MS. Since > then, I've been to the doctor and talked to him about it. Also since > then, I've quit consuming aspartame.> > I have a new doctor, since we just moved here, and I really like > him. He's a young guy, just a few years older than me (our daughters > go to the elementary school together-this is a very small town), and > he's the first male doctor I've had since I was a kid. I told him my > symptoms (headaches, numbness and tingling, difficulty concentrating, > dizziness, clumsiness, some others) and he took me very seriously. I > also told him that I had done a lot of research on this combination > of symptoms, and he encouraged me in that. We talked about > aspartame, and he was glad I've gone off it, and I said I wanted to > wait and see if it would help in the long term before I get any tests > done. Going off aspartame has helped a great deal, especially with > the headaches and cognitive problems, and the numbness and tingling > and dizziness has decreased but not gone away. He took seriously my > concerns about possible MS as well.> > We left it at staying off aspartame, and he suggested I go to the eye > doctor and have the eye doctor examine the myelin on my optic nerves > (I think that's what he said- does that sound right?). I suppose > I'll do that when I can, but my insurance doesn't cover the eye > doctor, so it'll have to go on a long list of things I plan to do > when I can afford it. That tells me he's willing to consider the > possibility of MS or something else that might also be serious, and > not just think I'm a raving hypochondriac (which, frankly, I do tend > to be). It makes a world of difference to have your doctor take you > seriously, as everyone on this list is fully aware!> > Thanks for being here.> > Strider

[Guest guest]

Hi Martha,

You might also want to look into www.lowdosenaltrexone.org

It will not interfere with the Ribif.

Regards,

Tom

Update

Here is a copy of the note I sent to my prayer team today:

Hey lovers of light,

I just wanted to update you and make a plea that you might find time to continue to lift Tommy and I up in your prayers. We are so blessed to have your prayer support. ~ 5:16~

Yesterday we had a significant visit with our Neurologist. He has again confirmed the original diagnosis of primary progressive multiple sclerosis.

Having had some progression from this condition already; (numbness in the right knee/lower leg/bottom of foot plus some recent right hand involvement) we feel it important to try to intervene and modify this progression.

The interferon's have not been proven to benefit this primary progressive form of MS. Yet... there is a chance that they could significantly alter the disease course. The risks aren't especially great from using the medications. The biggest being flu-like symptoms during the first 24 hours after injections. These symptoms should lesson over time. The most serious risks are: liver enzyme elevations, depression, blood abnormalities and potential neutralizing antibody production. The drug therapy would be discontinued if these big side effects occurred.

Our Dr is a believer that everyone with a MS diagnosis should be getting treatment with immunomodulating interferon. Although the decision was up to Tommy and I. We have prayed and researched and finally decided to do the therapy.

So as soon as the drug company gets everything in order I will begin rebif.

This will be an injection 3 times weekly.

I will update you with prayer needs when we get ready to begin the medication.

Knowing that God is ultimately in control is our source of strength and our joy. Knowing that He has a plan in this and that He has chosen a new path for us is exciting. We want to be in the center of His will and produce much fruit.

Aren't we blessed to be able to approach the throne of grace with boldness and assurance of His loving attention!!

Thank you for the prayer support. Praise Him for the answers!!

Martha

[Guest guest]

Hi Angie this has been a very quite board today. I hope things work out well for you.

Bill

Update

Hi Everyone,I'm sorry I haven't been posting much but I have had a lot going on. On top of my MS diagnosis this year, I was diagnosed with thyroid cancer a little over a week ago.Right now my surgery is scheduled for the 24th. I see thedoctor on Friday to go over all the details. Please keep me in your thoughts!Angie

[Guest guest]

hi Angie....will be thinking of you on 24th hope op.succesful and everything

ok....

take care

CHRIS UK XX

Update

Hi Everyone,

I'm sorry I haven't been posting much but I have had a lot going on.

On top of my MS diagnosis this year, I was diagnosed with thyroid

cancer a little over a week ago.

Right now my surgery is scheduled for the 24th. I see the

doctor on Friday to go over all the details. Please keep me in your

thoughts!

Angie

[Guest guest]

Dear Diane,

You will be in my prayers completely and I will wrap my special loving

light around you as you enter into this. My heart goes out to you,

completely!!!!!

Love and Light, and Blessed Be,

Steph, aka Lady_rider_hd

>

> Hi everyone

>

> Sorry I haven't been on in a while. I've been sick and having

> problems. I went in to see my PCP a couple of weeks ago because I

> have had headaches since the first of November and they seemed to be

> getting worse. He sent me in for a Cat Scan. His office then called

> me and they had scheduled me to see a specialist. I saw the

> specialist who informed me that the reason for my constant headaches

> is because the Cat Scan showed that I have a tumor that is pressing on

> my optic nerve. They have surgery scheduled for Friday. I'm

> confident that all will go well with the surgery. I'm still having a

> lot of pain with my neuropathy and also with my knee. I have found

> that if I wear a knee brace during the day that the pain in my knee is

> better. Will talk to everyone after I recuperate from surgery.

>

> Hugs

> Diane - Minnesota

>

[Guest guest]

Diane, I will keep you in my thoughts and prayers. Please let us know how you

are doing soon as you can.

Jena

~:~Jena~:~

My Home Page

My E-mail

Update

Hi everyone

Sorry I haven't been on in a while. I've been sick and having

problems. I went in to see my PCP a couple of weeks ago because I

have had headaches since the first of November and they seemed to be

getting worse. He sent me in for a Cat Scan. His office then called

me and they had scheduled me to see a specialist. I saw the

specialist who informed me that the reason for my constant headaches

is because the Cat Scan showed that I have a tumor that is pressing on

my optic nerve. They have surgery scheduled for Friday. I'm

confident that all will go well with the surgery. I'm still having a

lot of pain with my neuropathy and also with my knee. I have found

that if I wear a knee brace during the day that the pain in my knee is

better. Will talk to everyone after I recuperate from surgery.

Hugs

Diane - Minnesota

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PM

[Guest guest]

As you all know I have been n/c w/ nada for what will be 5 years

this spring! But I still talk to my dad. My relationship with my dad

has been rocky over the past years for obvious reasons. It is hard

to talk to him while he is still so much in the fog. And I am sure

it is hard for him to talk to me while she is pulling him and

pressuring him. I know she knows but i think he has tried to keep it

somewhat secret like only calling me from his work cell while at

work and only using the email that is hard wired to his work office

computer.

So this summer we had a pretty hard conversation at that point he

stopped calling me. I continued to call him but out of FOG. I felt

like if I did not call my mom would pressure my dad to take us to

court again for our kids and I did not want that. So I just kept

calling. My dad was pretty cold to me and I was not very open to

him. It felt very forced.

Then my dad started to open up more to his parents which is a good

thing b/c for a long time he was n/c w/ them. I kept my distance and

I even told you guys I was going to back off especially about nada

in conversations w/ my dad. (which I still am practicing BTW)

So in one conversation w/ my dad we both could feel how artificial

it felt. it was after thanksgiving and nada was trying to harass me

all the time! I was fed up, so was he. I openly told my dad I felt

like the conversation was forced I felt like I had to call him or

else he would take me to court and it did not even feel like he

wanted to talk to me. He told me he would not take me to court any

more, ever again and gave me the spoken freedom to stop calling if I

did not want to talk to him. I told him that I did love him and I do

want to talk. Just to hear that come from his mouth made me feel

like talking to him. It no longer felt like I was chained to him.

Because the first conversation we had after being n/c for 2 years he

told me he took me to court to get us to talk so I always felt that

over my head. Once he spoke these words to me he spoke freedom to

me. I am not free to have a relationship with him or not.

But the relationship is making progress so I chose to have a

relationship with him. If it was nada she would not give me that

freedom. She would want me chained. But my dad was able to release

me and let me go if he knew I was hurting. Since then he has called

me for the first time in about 6 months this weekend! We had a good

light talk about nothing really but that is a good thing.

What is even more funny is I called his work cell phone the week

before and a woman answered " Helllooow " I was surprised I said

nothing " Helllllooooooow " I said " sorry wrong number " and hung up. I

called the land line at his work and they said he was not working

that day. So I am guessing that woman was the voice of my nada. I

never told my dad I called. Apparently my nada must not have said

anything to my dad about it or else he would have mentioned it to

me. God it has been so long since I heard he voice I would have

never recognized it.

But in the end all is right with the world, as well as it can be. I

am happy my dad and I were able to speak freely, and still speak

love. This says alot. With nada I could never do this and live;-) So

that is my update. Very positive. Love Lizzy

[Guest guest]

Lizzy,

It is so nice to hear that after all your hard work it is paying off

in how you are handling your relationship with your dad. Good for

you!

Sylvia

>

> As you all know I have been n/c w/ nada for what will be 5 years

> this spring! But I still talk to my dad. My relationship with my

dad

> has been rocky over the past years for obvious reasons. It is

hard

> to talk to him while he is still so much in the fog. And I am sure

> it is hard for him to talk to me while she is pulling him and

> pressuring him. I know she knows but i think he has tried to keep

it

> somewhat secret like only calling me from his work cell while at

> work and only using the email that is hard wired to his work

office

> computer.

>

> So this summer we had a pretty hard conversation at that point he

> stopped calling me. I continued to call him but out of FOG. I felt

> like if I did not call my mom would pressure my dad to take us to

> court again for our kids and I did not want that. So I just kept

> calling. My dad was pretty cold to me and I was not very open to

> him. It felt very forced.

>

> Then my dad started to open up more to his parents which is a good

> thing b/c for a long time he was n/c w/ them. I kept my distance

and

> I even told you guys I was going to back off especially about nada

> in conversations w/ my dad. (which I still am practicing BTW)

>

> So in one conversation w/ my dad we both could feel how artificial

> it felt. it was after thanksgiving and nada was trying to harass

me

> all the time! I was fed up, so was he. I openly told my dad I felt

> like the conversation was forced I felt like I had to call him or

> else he would take me to court and it did not even feel like he

> wanted to talk to me. He told me he would not take me to court any

> more, ever again and gave me the spoken freedom to stop calling if

I

> did not want to talk to him. I told him that I did love him and I

do

> want to talk. Just to hear that come from his mouth made me feel

> like talking to him. It no longer felt like I was chained to him.

> Because the first conversation we had after being n/c for 2 years

he

> told me he took me to court to get us to talk so I always felt

that

> over my head. Once he spoke these words to me he spoke freedom to

> me. I am not free to have a relationship with him or not.

>

> But the relationship is making progress so I chose to have a

> relationship with him. If it was nada she would not give me that

> freedom. She would want me chained. But my dad was able to release

> me and let me go if he knew I was hurting. Since then he has

called

> me for the first time in about 6 months this weekend! We had a

good

> light talk about nothing really but that is a good thing.

>

> What is even more funny is I called his work cell phone the week

> before and a woman answered " Helllooow " I was surprised I said

> nothing " Helllllooooooow " I said " sorry wrong number " and hung up.

I

> called the land line at his work and they said he was not working

> that day. So I am guessing that woman was the voice of my nada. I

> never told my dad I called. Apparently my nada must not have said

> anything to my dad about it or else he would have mentioned it to

> me. God it has been so long since I heard he voice I would have

> never recognized it.

>

> But in the end all is right with the world, as well as it can be.

I

> am happy my dad and I were able to speak freely, and still speak

> love. This says alot. With nada I could never do this and live;-)

So

> that is my update. Very positive. Love Lizzy

>

[Guest guest]

Diane - you need some sleep!!! I hope you can get some tonight!

Gayla

http://chronicpain-byladyfrog.com

Re: Update

In a message dated 3/20/2007 8:59:53 A.M. Eastern Daylight Time,

redhatladydiva@ yahoo.com writes:

Hope everyone is doing ok with their pain.

Sorry for any typing mistakes, but I've been up for over 24 hrs.

Hugs

Diane-Minnesota

keeping your family in my prayers Diane .. make sure U take of U also

Rose

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