Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 , Please get documentation from the manufacturer and the pharmacist. Seek an attorney. I seeked an attorney we were not on this long enough I realized the issues and got the facts from the pharmacuetical company and stopped using it. There are so many of you out there who have seen damage from this and someone needs to step up for our kids! Good luck. amy To: miralax Sent: Wed, February 17, 2010 11:40:10 AMSubject: All I can say is WOW! I just found this forum and I am in shock.My son who is almost 5 has been on PEG since he was 1.He has gone off a few times,but ends up very constpated again. His constipation started around 7 mo of age(probably sooner but it wasn't sever)He was put on Lactulose for a few months which didn't work so he was then put on the PEG.I have asked the peidiatrition many times if this drug is safe and always told it is todally safe.I also asked my BIL (he is a pharmasist) what he thought. He said it was safe but did say long term use wasn't recommended. I am someone who doen't like to use any medication unless neccecary and I feel the same for my children.I am now on my 3rd peidatrition because no Dr wants to find the cause of the constipation. They just want to treat the symptom.I feel so frusterated.My son has been on it so long that I would never had thought that the PEG may be causing many of his behavioral issues. My son has a slight stutter and lisp,had delayed speech,sees a behavioral specialist for his over sensative behavior,has meltdowns over very small things,He also has alot of sleep problrms but they started before he was on the PEG,Just noticed him licking his hands latley which I thought was weird and saw it on your list of symptoms. I don't think all of his behaviors are linked to the PEG,but I am now watching him closely.I would love to know howyou approched your Dr with this info?I am also wondering if anyone has found the reason for their childs constipation?I will be seeing our peidiatrition soon and taking him off the drug,but any suggestions on what to look for,for what may be causing his constipation. My sons diet and water intake are good,he is going to be tested for allergies soon.Did any of your children eventually outgrow their constipation?I have read about the other things some of you are using instead of PEG,but has anyone found the underlyimg cause of the constipation?Sorry for the long post and all the questions,but I am im shock.I didn't realize that the drug hadn't been tested on children or that it didn't have a reccomended dose for children.I phoned the pharmasy and he confirmed that info.He told me it was safe and all the peidiatritions use it. My son is on 12g which is almost the adult dose and I am pretty sure he is still constipated. His BM are thin and soft (ribbon shaped). Arggg...It's time I MAKE the drs listen!!!!!Thank you Sorry about the rant and rave. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Has your son had an x-ray or CT scan or colonoscopy or any diagnostic tests? I would say to take him to a surgeon to rule out any anatomical issues. Another woman on this board told me she finally had a biopsy done and the found her son had short segment hirschprungs. She had to insist on him being tested and diagnosed though as it is not very common. You can google it and get a ton of information about it. She said her son had surgery and has been fine ever since. It's worth looking into as I agree there has to be a cause to it. My son was diagnosed with PDD at age 2 1/2 and has had issues with constipation since a few weeks old. We used to put prune juice in his bottle to help him go. And recently had blood in his stool for the second time. We are trying to increase fruit intake and make smoothies. And might try the plum smart juice or possibly fruiteze I heard about on this board. He tends to like carbs and cheese which only makes it worse. Subject: Re: All I can say is WOW!To: miralax Date: Wednesday, February 17, 2010, 9:22 AM , Please get documentation from the manufacturer and the pharmacist. Seek an attorney. I seeked an attorney we were not on this long enough I realized the issues and got the facts from the pharmacuetical company and stopped using it. There are so many of you out there who have seen damage from this and someone needs to step up for our kids! Good luck. amy From: well3boys <well3boysyahoo (DOT) ca>To: miralax@yahoogroups .comSent: Wed, February 17, 2010 11:40:10 AMSubject: All I can say is WOW! I just found this forum and I am in shock.My son who is almost 5 has been on PEG since he was 1.He has gone off a few times,but ends up very constpated again. His constipation started around 7 mo of age(probably sooner but it wasn't sever)He was put on Lactulose for a few months which didn't work so he was then put on the PEG.I have asked the peidiatrition many times if this drug is safe and always told it is todally safe.I also asked my BIL (he is a pharmasist) what he thought. He said it was safe but did say long term use wasn't recommended. I am someone who doen't like to use any medication unless neccecary and I feel the same for my children.I am now on my 3rd peidatrition because no Dr wants to find the cause of the constipation. They just want to treat the symptom.I feel so frusterated.My son has been on it so long that I would never had thought that the PEG may be causing many of his behavioral issues. My son has a slight stutter and lisp,had delayed speech,sees a behavioral specialist for his over sensative behavior,has meltdowns over very small things,He also has alot of sleep problrms but they started before he was on the PEG,Just noticed him licking his hands latley which I thought was weird and saw it on your list of symptoms. I don't think all of his behaviors are linked to the PEG,but I am now watching him closely.I would love to know howyou approched your Dr with this info?I am also wondering if anyone has found the reason for their childs constipation?I will be seeing our peidiatrition soon and taking him off the drug,but any suggestions on what to look for,for what may be causing his constipation. My sons diet and water intake are good,he is going to be tested for allergies soon.Did any of your children eventually outgrow their constipation?I have read about the other things some of you are using instead of PEG,but has anyone found the underlyimg cause of the constipation?Sorry for the long post and all the questions,but I am im shock.I didn't realize that the drug hadn't been tested on children or that it didn't have a reccomended dose for children.I phoned the pharmasy and he confirmed that info.He told me it was safe and all the peidiatritions use it. My son is on 12g which is almost the adult dose and I am pretty sure he is still constipated. His BM are thin and soft (ribbon shaped). Arggg...It's time I MAKE the drs listen!!!!!Thank you Sorry about the rant and rave. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 My son has had a few x-rays and some blood work.His last 2 x-rays were last May or June and showed he was constipated while on the PEG.Our peid didn't want to do anything more so we have moved on to a new piediatrition. I have learned alot about HD and have mentioned it many times to the Drs but because my son had normal BM until 7 mo they are ruling it out. Eventhough I know of alot of late diagnosis. I'm not sure what PPD is.I hope to find answers and thank you for your advice.It keeps me strong.I know something isn't right but I have to be persistant with the Drs. Thank You > > > > Subject: Re: All I can say is WOW! > To: miralax > Date: Wednesday, February 17, 2010, 9:22 AM > > >  > > > > > > , > Please get documentation from the manufacturer and the pharmacist. Seek an attorney. I seeked an attorney we were not on this long enough I realized the issues and got the facts from the pharmacuetical company and stopped using it. There are so many of you out there who have seen damage from this and someone needs to step up for our kids!  Good luck. > amy > > > > > > From: well3boys <well3boysyahoo (DOT) ca> > To: miralax@yahoogroups .com > Sent: Wed, February 17, 2010 11:40:10 AM > Subject: All I can say is WOW! > >  > > I just found this forum and I am in shock.My son who is almost 5 has been on PEG since he was 1.He has gone off a few times,but ends up very constpated again. His constipation started around 7 mo of age(probably sooner but it wasn't sever)He was put on Lactulose for a few months which didn't work so he was then put on the PEG.I have asked the peidiatrition many times if this drug is safe and always told it is todally safe.I also asked my BIL (he is a pharmasist) what he thought. He said it was safe but did say long term use wasn't recommended. I am someone who doen't like to use any medication unless neccecary and I feel the same for my children.I am now on my 3rd peidatrition because no Dr wants to find the cause of the constipation. They just want to treat the symptom.I feel so frusterated. > My son has been on it so long that I would never had thought that the PEG may be causing many of his behavioral issues. My son has a slight stutter and lisp,had delayed speech,sees a behavioral specialist for his over sensative behavior,has meltdowns over very small things,He also has alot of sleep problrms but they started before he was on the PEG,Just noticed him licking his hands latley which I thought was weird and saw it on your list of symptoms. > I don't think all of his behaviors are linked to the PEG,but I am now watching him closely. > I would love to know howyou approched your Dr with this info? > I am also wondering if anyone has found the reason for their childs constipation? > I will be seeing our peidiatrition soon and taking him off the drug,but any suggestions on what to look for,for what may be causing his constipation. My sons diet and water intake are good,he is going to be tested for allergies soon. > Did any of your children eventually outgrow their constipation? > I have read about the other things some of you are using instead of PEG,but has anyone found the underlyimg cause of the constipation? > Sorry for the long post and all the questions,but I am im shock. > I didn't realize that the drug hadn't been tested on children or that it didn't have a reccomended dose for children.I phoned the pharmasy and he confirmed that info.He told me it was safe and all the peidiatritions use it. My son is on 12g which is almost the adult dose and I am pretty sure he is still constipated. His BM are thin and soft (ribbon shaped). Arggg...It's time I MAKE the drs listen!!!!! > > Thank you > Sorry about the rant and rave. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 He tends to like carbs and cheese which only makes it worse. This is usually because of yeast overgrowth. Was your child on antiobiotics? Great book, the yeast connection. Probiotics can help. From: Amy Hollis <amy_m_hollis@ yahoo.com>Subject: Re: All I can say is WOW!To: miralax@yahoogroups .comDate: Wednesday, February 17, 2010, 9:22 AM , Please get documentation from the manufacturer and the pharmacist. Seek an attorney. I seeked an attorney we were not on this long enough I realized the issues and got the facts from the pharmacuetical company and stopped using it. There are so many of you out there who have seen damage from this and someone needs to step up for our kids! Good luck. amy From: well3boys <well3boysyahoo (DOT) ca>To: miralax@yahoogroups .comSent: Wed, February 17, 2010 11:40:10 AMSubject: All I can say is WOW! I just found this forum and I am in shock.My son who is almost 5 has been on PEG since he was 1.He has gone off a few times,but ends up very constpated again. His constipation started around 7 mo of age(probably sooner but it wasn't sever)He was put on Lactulose for a few months which didn't work so he was then put on the PEG.I have asked the peidiatrition many times if this drug is safe and always told it is todally safe.I also asked my BIL (he is a pharmasist) what he thought. He said it was safe but did say long term use wasn't recommended. I am someone who doen't like to use any medication unless neccecary and I feel the same for my children.I am now on my 3rd peidatrition because no Dr wants to find the cause of the constipation. They just want to treat the symptom.I feel so frusterated.My son has been on it so long that I would never had thought that the PEG may be causing many of his behavioral issues. My son has a slight stutter and lisp,had delayed speech,sees a behavioral specialist for his over sensative behavior,has meltdowns over very small things,He also has alot of sleep problrms but they started before he was on the PEG,Just noticed him licking his hands latley which I thought was weird and saw it on your list of symptoms. I don't think all of his behaviors are linked to the PEG,but I am now watching him closely.I would love to know howyou approched your Dr with this info?I am also wondering if anyone has found the reason for their childs constipation?I will be seeing our peidiatrition soon and taking him off the drug,but any suggestions on what to look for,for what may be causing his constipation. My sons diet and water intake are good,he is going to be tested for allergies soon.Did any of your children eventually outgrow their constipation?I have read about the other things some of you are using instead of PEG,but has anyone found the underlyimg cause of the constipation?Sorry for the long post and all the questions,but I am im shock.I didn't realize that the drug hadn't been tested on children or that it didn't have a reccomended dose for children.I phoned the pharmasy and he confirmed that info.He told me it was safe and all the peidiatritions use it. My son is on 12g which is almost the adult dose and I am pretty sure he is still constipated. His BM are thin and soft (ribbon shaped). Arggg...It's time I MAKE the drs listen!!!!!Thank you Sorry about the rant and rave. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 My daughter really likes the plum smart.To: miralax Sent: Thu, February 18, 2010 9:01:26 AMSubject: Re: All I can say is WOW! Has your son had an x-ray or CT scan or colonoscopy or any diagnostic tests? I would say to take him to a surgeon to rule out any anatomical issues. Another woman on this board told me she finally had a biopsy done and the found her son had short segment hirschprungs. She had to insist on him being tested and diagnosed though as it is not very common. You can google it and get a ton of information about it. She said her son had surgery and has been fine ever since. It's worth looking into as I agree there has to be a cause to it. My son was diagnosed with PDD at age 2 1/2 and has had issues with constipation since a few weeks old. We used to put prune juice in his bottle to help him go. And recently had blood in his stool for the second time. We are trying to increase fruit intake and make smoothies. And might try the plum smart juice or possibly fruiteze I heard about on this board. He tends to like carbs and cheese which only makes it worse. From: Amy Hollis <amy_m_hollis@ yahoo.com>Subject: Re: All I can say is WOW!To: miralax@yahoogroups .comDate: Wednesday, February 17, 2010, 9:22 AM , Please get documentation from the manufacturer and the pharmacist. Seek an attorney. I seeked an attorney we were not on this long enough I realized the issues and got the facts from the pharmacuetical company and stopped using it. There are so many of you out there who have seen damage from this and someone needs to step up for our kids! Good luck. amy From: well3boys <well3boysyahoo (DOT) ca>To: miralax@yahoogroups .comSent: Wed, February 17, 2010 11:40:10 AMSubject: All I can say is WOW! I just found this forum and I am in shock.My son who is almost 5 has been on PEG since he was 1.He has gone off a few times,but ends up very constpated again. His constipation started around 7 mo of age(probably sooner but it wasn't sever)He was put on Lactulose for a few months which didn't work so he was then put on the PEG.I have asked the peidiatrition many times if this drug is safe and always told it is todally safe.I also asked my BIL (he is a pharmasist) what he thought. He said it was safe but did say long term use wasn't recommended. I am someone who doen't like to use any medication unless neccecary and I feel the same for my children.I am now on my 3rd peidatrition because no Dr wants to find the cause of the constipation. They just want to treat the symptom.I feel so frusterated.My son has been on it so long that I would never had thought that the PEG may be causing many of his behavioral issues. My son has a slight stutter and lisp,had delayed speech,sees a behavioral specialist for his over sensative behavior,has meltdowns over very small things,He also has alot of sleep problrms but they started before he was on the PEG,Just noticed him licking his hands latley which I thought was weird and saw it on your list of symptoms. I don't think all of his behaviors are linked to the PEG,but I am now watching him closely.I would love to know howyou approched your Dr with this info?I am also wondering if anyone has found the reason for their childs constipation?I will be seeing our peidiatrition soon and taking him off the drug,but any suggestions on what to look for,for what may be causing his constipation. My sons diet and water intake are good,he is going to be tested for allergies soon.Did any of your children eventually outgrow their constipation?I have read about the other things some of you are using instead of PEG,but has anyone found the underlyimg cause of the constipation?Sorry for the long post and all the questions,but I am im shock.I didn't realize that the drug hadn't been tested on children or that it didn't have a reccomended dose for children.I phoned the pharmasy and he confirmed that info.He told me it was safe and all the peidiatritions use it. My son is on 12g which is almost the adult dose and I am pretty sure he is still constipated. His BM are thin and soft (ribbon shaped). Arggg...It's time I MAKE the drs listen!!!!!Thank you Sorry about the rant and rave. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 I have never heard of Plum Smart.What is it? And where do you get it? Thank you > > > >From: Amy Hollis <amy_m_hollis@ yahoo.com> > >Subject: Re: All I can say is WOW! > >To: miralax@yahoogroups .com > >Date: Wednesday, February 17, 2010, 9:22 AM > > > > > > > >, > >Please get documentation from the manufacturer and the pharmacist. Seek an attorney. I seeked an attorney we were not on this long enough I realized the issues and got the facts from the pharmacuetical company and stopped using it. There are so many of you out there who have seen damage from this and someone needs to step up for our kids! Good luck. > >amy > > > > > > > > > ________________________________ > From: well3boys <well3boysyahoo (DOT) ca> > >To: miralax@yahoogroups .com > >Sent: Wed, February 17, 2010 11:40:10 AM > >Subject: All I can say is WOW! > > > > > >I just found this forum and I am in shock.My son who is almost 5 has been on PEG since he was 1.He has gone off a few times,but ends up very constpated again. His constipation started around 7 mo of age(probably sooner but it wasn't sever)He was put on Lactulose for a few months which didn't work so he was then put on the PEG.I have asked the peidiatrition many times if this drug is safe and always told it is todally safe.I also asked my BIL (he is a pharmasist) what he thought. He said it was safe but did say long term use wasn't recommended. I am someone who doen't like to use any medication unless neccecary and I feel the same for my children.I am now on my 3rd peidatrition because no Dr wants to find the cause of the constipation. They just want to treat the symptom.I feel so frusterated. > >My son has been on it so long that I would never had thought that the PEG may be causing many of his behavioral issues. My son has a slight stutter and > > lisp,had delayed speech,sees a behavioral specialist for his over sensative behavior,has meltdowns over very small things,He also has alot of sleep problrms but they started before he was on the PEG,Just noticed him licking his hands latley which I thought was weird and saw it on your list of symptoms. > >I don't think all of his behaviors are linked to the PEG,but I am now watching him closely. > >I would love to know howyou approched your Dr with this info? > >I am also wondering if anyone has found the reason for their childs constipation? > >I will be seeing our peidiatrition soon and taking him off the drug,but any suggestions on what to look for,for what may be causing his constipation. My sons diet and water intake are good,he is going to be tested for allergies soon. > >Did any of your children eventually outgrow their constipation? > >I have read about the other things some of you are using instead of PEG,but has anyone found the underlyimg > > cause of the constipation? > >Sorry for the long post and all the questions,but I am im shock. > >I didn't realize that the drug hadn't been tested on children or that it didn't have a reccomended dose for children.I phoned the pharmasy and he confirmed that info.He told me it was safe and all the peidiatritions use it. My son is on 12g which is almost the adult dose and I am pretty sure he is still constipated. His BM are thin and soft (ribbon shaped). Arggg...It's time I MAKE the drs listen!!!!! > > > >Thank you > >Sorry about the rant and rave. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Any grocery store in the juice aisle. SunSweet Plum Juice made by the co. that makes prune juice & tastes much, much better. Yvette A. All I can say is WOW!> >> > > >I just found this forum and I am in shock.My son who is almost 5 has been on PEG since he was 1.He has gone off a few times,but ends up very constpated again. His constipation started around 7 mo of age(probably sooner but it wasn't sever)He was put on Lactulose for a few months which didn't work so he was then put on the PEG.I have asked the peidiatrition many times if this drug is safe and always told it is todally safe.I also asked my BIL (he is a pharmasist) what he thought. He said it was safe but did say long term use wasn't recommended. I am someone who doen't like to use any medication unless neccecary and I feel the same for my children.I am now on my 3rd peidatrition because no Dr wants to find the cause of the constipation. They just want to treat the symptom.I feel so frusterated.> >My son has been on it so long that I would never had thought that the PEG may be causing many of his behavioral issues. My son has a slight stutter and> > lisp,had delayed speech,sees a behavioral specialist for his over sensative behavior,has meltdowns over very small things,He also has alot of sleep problrms but they started before he was on the PEG,Just noticed him licking his hands latley which I thought was weird and saw it on your list of symptoms. > >I don't think all of his behaviors are linked to the PEG,but I am now watching him closely.> >I would love to know howyou approched your Dr with this info?> >I am also wondering if anyone has found the reason for their childs constipation?> >I will be seeing our peidiatrition soon and taking him off the drug,but any suggestions on what to look for,for what may be causing his constipation. My sons diet and water intake are good,he is going to be tested for allergies soon.> >Did any of your children eventually outgrow their constipation?> >I have read about the other things some of you are using instead of PEG,but has anyone found the underlyimg> > cause of the constipation?> >Sorry for the long post and all the questions,but I am im shock.> >I didn't realize that the drug hadn't been tested on children or that it didn't have a reccomended dose for children.I phoned the pharmasy and he confirmed that info.He told me it was safe and all the peidiatritions use it. My son is on 12g which is almost the adult dose and I am pretty sure he is still constipated. His BM are thin and soft (ribbon shaped). Arggg...It's time I MAKE the drs listen!!!!!> >> >Thank you > >Sorry about the rant and rave.> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 It is plum juice. It has the same amount of fiber as prune juice but taste a lot better. It is made by sunsweet. That is the brand I buy the most.FaithTo: miralax Sent: Fri, February 19, 2010 8:17:15 AMSubject: Re: All I can say is WOW! I have never heard of Plum Smart.What is it? And where do you get it? Thank you > > > >From: Amy Hollis <amy_m_hollis@ yahoo.com> > >Subject: Re: All I can say is WOW! > >To: miralax@yahoogroups .com > >Date: Wednesday, February 17, 2010, 9:22 AM > > > > > > > >, > >Please get documentation from the manufacturer and the pharmacist. Seek an attorney. I seeked an attorney we were not on this long enough I realized the issues and got the facts from the pharmacuetical company and stopped using it. There are so many of you out there who have seen damage from this and someone needs to step up for our kids! Good luck. > >amy > > > > > > > > > ____________ _________ _________ __ > From: well3boys <well3boysyahoo (DOT) ca> > >To: miralax@yahoogroups .com > >Sent: Wed, February 17, 2010 11:40:10 AM > >Subject: All I can say is WOW! > > > > > >I just found this forum and I am in shock.My son who is almost 5 has been on PEG since he was 1.He has gone off a few times,but ends up very constpated again. His constipation started around 7 mo of age(probably sooner but it wasn't sever)He was put on Lactulose for a few months which didn't work so he was then put on the PEG.I have asked the peidiatrition many times if this drug is safe and always told it is todally safe.I also asked my BIL (he is a pharmasist) what he thought. He said it was safe but did say long term use wasn't recommended. I am someone who doen't like to use any medication unless neccecary and I feel the same for my children.I am now on my 3rd peidatrition because no Dr wants to find the cause of the constipation. They just want to treat the symptom.I feel so frusterated. > >My son has been on it so long that I would never had thought that the PEG may be causing many of his behavioral issues. My son has a slight stutter and > > lisp,had delayed speech,sees a behavioral specialist for his over sensative behavior,has meltdowns over very small things,He also has alot of sleep problrms but they started before he was on the PEG,Just noticed him licking his hands latley which I thought was weird and saw it on your list of symptoms. > >I don't think all of his behaviors are linked to the PEG,but I am now watching him closely. > >I would love to know howyou approched your Dr with this info? > >I am also wondering if anyone has found the reason for their childs constipation? > >I will be seeing our peidiatrition soon and taking him off the drug,but any suggestions on what to look for,for what may be causing his constipation. My sons diet and water intake are good,he is going to be tested for allergies soon. > >Did any of your children eventually outgrow their constipation? > >I have read about the other things some of you are using instead of PEG,but has anyone found the underlyimg > > cause of the constipation? > >Sorry for the long post and all the questions,but I am im shock. > >I didn't realize that the drug hadn't been tested on children or that it didn't have a reccomended dose for children.I phoned the pharmasy and he confirmed that info.He told me it was safe and all the peidiatritions use it. My son is on 12g which is almost the adult dose and I am pretty sure he is still constipated. His BM are thin and soft (ribbon shaped). Arggg...It's time I MAKE the drs listen!!!!! > > > >Thank you > >Sorry about the rant and rave. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.