Guest guest Posted February 26, 1997 Report Share Posted February 26, 1997 Hi ! Marlee has Lipo and tethered cord, so her spine was closed but she still has a form of SB. At her last neuro appointment her ventricles were enlarged and we are watching her head growth. Our nrsgn told us that to shunt a kid with Lipo and/or tc would be rare...but not unheard of. He had enlarged ventricles during the pregnancy? When was his tc diagnosed and How? Good Luck! Mom to Marlee 16 mos. Lipomyelomeningocele, TSC AFO's, and the longest eyelashes I have ever seen! Also Mom to Macy 4 (fatty filum)..the future's first female president and 9 a good student, cheerleader and the best helper in the world! : 0 ) Quote Link to comment Share on other sites More sharing options...
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