Re: Jack

January 3, 2010

I'm just curious, Jack, with no ill intentions, why did you join this group? Yes, this group is about kids with constipation but it was started as a support group for parents whose children have had adverse reactions to Miralax and we are not here to support the use of Miralax.

This board originated as a board for those who have had, or their children have had, significant adverse reactions to, or adverse events after starting Miralax, Movicol, or Glycolax. A few examples would include the onset of tremors, tics, changes in personality, etc.

Surely Jack, there is a group out there that would be a better support system for you and your beliefs.

Deanna

To: miralax Sent: Sun, January 3, 2010 8:42:21 AMSubject: RE: Re: New to the group

Like I said:

"You'll hear several of the regulars here cry out against my opinion. They always do."

They put words in my mouth and explain the thoughts in my head.

I would say I am more against being "anti-miralax" than I am pro Miralax.

If I could feed my kid berries and roots to resolve his chronic constipation, I would be scratching the roots out of the frozen michigan dirt right now.

I'd be surprised if anyone using Miralax wasn't looking for an alternative. As parents we strive to remove even the potential of an unnecessary threat from our children's environment.

But based on my son's experience, the constipation is a real threat. Miralax is only a potential threat for us.

I don't agree with the logic:

A. my kid had side effects from Miralax

B. other people have experienced similiar side effects

Conclusion: All kids must suffer side effects from miralax sooner or later. My kid can't be in the minority!

No part of this is meant to be offensive or encourage the use of Miralax.

It is obvious that my opnion differs greatly from that of some individuals in this group.

Being as egocentrical as I am, I feel it is important to provide counter-point to this forum which is anti-miralax.

Too many people who are new to Miralax get a very biased opinion from this group, without realizing that this forum is intended to be anti-miralax.

Happy New Year!

From: miralax@yahoogroups .com [mailto:miralax@ yahoogroups. com] On Behalf Of JennieSent: Saturday, January 02, 2010 11:01 PMTo: miralax@yahoogroups .comSubject: Re: Re: New to the group

I agree, constipation is the major issue here and the underlying reason needs to be found(my son does have hirschsprungs) . But Jack is wrong to come in this group and try to convince "everyone" to stay on miralax. (Bridgette, please realize this post is not targeted at you, just happen to read both in this post). This group is for those wanting to get off it and learning the dangers of. Infact knowing this group is specifically for those reasons, it is inconsederit of others Jack. He may just convince that one parent to keep there child on it who may have a serious reaction to it(I cant even mention them/possible reactions at this moment/to upsetting). Most of us here have all had there children on PEG, some for many years and some still trying to get them off(not always easy but sometimes the best things for our kids is the hardest sometimes exhausting choices).I also know that feeling Jack of trying to excuse why I kept my son on

it as long as I did, I felt really guilty and then one minute thought, O it is ok, cuz everyone says so and its working(worked less and less with time/required crazy dosing over time). As Jacks child, my child has had many many medical conditons as others here also have with there children. My son has been on so many meds and I have tiredly done everything I can to get him off them. Easy isnt always the best for your lil ones(wish it was). He has been able to get off all meds except 1(I pray this one well be gone also someday). I would never do this without doctors consent. So Jack we are not doctors but we strive to avoid them if able and this is just thru good research, better health/eating and learning from others etc. Sorry, but you are write in that some in this group well come against you, because it is just wrong to encourage PEG when a parent comes to this group to get there kids off it because they just sense it is bad stuff. When I

think of my son being in ICU due to heart issues because of PEG and now has an iliostomy that there is that slim chance the PEG may have made things worse(even with hd he never had one doctor suspect it until vaccines and the icing on the cake, PEG) and others in this group who's lil ones have suffered from so many PEG related issues, why in the world would you encourage it. You mentioned many many doctors have told you it is safe and you cant find things to say elsewise(this is false by the way) but the same doctor who told us it was safe also later after my son was out of ICU said, O it was from the PEG. Vaccines is another good example the majority swears there great, even our government says that, but my Lord the vaccines almost killed my son(you think miralax is controversal, bring up vaccines in groups or forums). Mineral oil(recent topic in this group) many doctors say it is safe, someone in this group even stated the older generation

used it regularly, BUT we was blessed and that one doctor(our sons neuro) said get him off it(reasons explained in other posts). My point is what about those few(I suspect the majority and they just dont connect the dots) who have serious reactions to PEG or the one you convince to use it does? And Jack, I do like you and my heart goes out to your precious child I know you love with all your heart! Even though this upset me some, Im there for you and the struggles your family goes thru. But please.....

From: bridgetteliedtke <bridgetteliedtke@ yahoo.com. au>Subject: Re: New to the groupTo: miralax@yahoogroups .comDate: Saturday, January 2, 2010, 6:47 PM

Hi Jack and Mummy of 2.5 yo DDI agree with Jack, constipation is the major issue here and the point that is being missed is actually the cause of the constipation, not necessarily the treatment involved in getting her clean.I think you should be seeking an opinion about causes, ie Hirschprungs Disease or Slow Transit Constipation (also known as Neural Intestinal Dysplasia).The use of Miralax may only be one method of treatment and may actually require much more assertive action.Cheers, BridgetteMother of a child born with Imperforate Anus Daily bowel washouts.>> I have to ask, does the Miralax work when used as prescribed?> > I have had fears about using Miralax, but it is the only effective treatment> for my son. > > Understanding the cause for the constipation is key.>

> Based on what I have read here, I wouldn't give it to my son if he had> "leaky gut". But since my son's problem is of a different nature, we have> found it to be extremely effective with no apparent side effects. My son has> Spina Bifida, which involves nerve damage affecting his bowel & bladder.> > My position is that being constantly constipated presents a much more real> threat to my son's health than the potential problems that a small> percentage of the population experience from Miralax.> > If you can find a natural solution that works, all the better.> > Find a different pediatrician. One that will work with you.> > My son sees lots and lots of doctors. I have spoken to over a dozen> doctors, as well as many more medical professionals about Miralax. None of> which feel that Miralax presents a risk to my child's health. I

have> researched looking for unbiased scientific data about the negative effects> of Miralax and have came up empty.> > It is my opinion that there is some amount of misinformation presented as> fact in this forum. I do not believe it is intentional or with ill intent.> Most of my fears about Miralax originated in this forum. > > Ask your GI to put you in touch with other parents that the GI works with.> It may help to find some local support, and speak to parents in the same> boat as you are.> > You'll hear several of the regulars here cry out against my opinion. They> always do. > > > Happy New Year!> > > > > > _____ > > From: miralax@yahoogroups .com [mailto:miralax@yahoogroups .com] On Behalf Of> mama2beachbabies> Sent: Saturday,

January 02, 2010 10:30 AM> To: miralax@yahoogroups .com> Subject: New to the group> > > > > hi there> I am new to this group my 2 1/2 yr old has had poop problems since she was> 11 months old when we moved out of state and she started to wean from> nursing. she really only poops about every 10 days or so and it isnt all the> much, we took her to a GI doctor after her ped put her on miralax everyday> which we werent confortable with, although it works. the GI ordered blood> work and wants us to keep our daughter on miralax minerial oil and a> benefiber wafer well i am not comfortable wirth this at all fist she wont> eat the wafer and second she wont take the mineral oil and third the miralax> scares me. So we havent done any thing different and my daughter continues> to not poop we do use the miralax every

ten days or so for 5 days but it> doesnt seem to help when we use it that way and now my kid is going on 11> days of no poop we tried the power pudding recipe it didnt work we give her> three whole prunes cut up every day that doesnt work i dont know what to do> and her ped wont see her anymore because we havnet followed his orders so> could someone anyone give us some help what to do? please> thank you> > > > > > No virus found in this incoming message.> Checked by AVG - www.avg.com> Version: 8..5.430 / Virus Database: 270.14.121/2589 - Release Date: 12/27/09> 09:18:00>

Internal Virus Database is out of date.Checked by AVG - www.avg.comVersion: 8.5.430 / Virus Database: 270.14.121/2589 - Release Date: 12/27/09 09:18:00

January 3, 2010

I joined this group because I wanted to learn more about Miralax and alternatives.

I stay because this group scared the hell out of me, and I have come to the conclusion that some of that fear was based on falsehoods presented here. Again, I don't think anyone here is trying to intentionally decieve or be malicious. I just disagree with some of what is presented here.

Let me be clear: I DO NOT DOUBT ANYONE'S STORIES OR EXPERIENCES.

I stay because an opposing voice can be helpful to the newcomer. I lost sleep over what I read here. I believe that the community here only represents a small percentage of the "miralax community" . I think newcomers should read that as well.

I stay because despite my unpopularity here, I am helping. When I post here, or email someone about this forum, I receive emails thanking me for my opposing view. Here are two examples:

"I want to thank you for your post about miralax. I can say this group has made me lose sleep and completely nuts. Miralax is pretty much the only thing that works and we can give my son. Ive been to many dr's with him, including s Hopkins, and all the top gastro dr. say its safe. I keep saying im not going to read those post, and yet i kept feeling compelled to do it."

"Thank you for taking the time to email me. I have also lost sleep over this Miralax issue. I don't know what to think at this point. I'm glad to hear that your child is still doing okay. That does make me feel better. I appreciate you taking the time to give me a little piece of mind. "

Respectfully

Jack

From: miralax [mailto:miralax ] On Behalf Of deanna gentrySent: Sunday, January 03, 2010 6:46 PMTo: miralax Subject: Re: Jack

I'm just curious, Jack, with no ill intentions, why did you join this group? Yes, this group is about kids with constipation but it was started as a support group for parents whose children have had adverse reactions to Miralax and we are not here to support the use of Miralax.

This board originated as a board for those who have had, or their children have had, significant adverse reactions to, or adverse events after starting Miralax, Movicol, or Glycolax. A few examples would include the onset of tremors, tics, changes in personality, etc.

Surely Jack, there is a group out there that would be a better support system for you and your beliefs.

Deanna

From: Jack Gershon <jackgershon (DOT) cc>To: miralax Sent: Sun, January 3, 2010 8:42:21 AMSubject: RE: Re: New to the group

Like I said:

"You'll hear several of the regulars here cry out against my opinion. They always do."

They put words in my mouth and explain the thoughts in my head.

I would say I am more against being "anti-miralax" than I am pro Miralax.

If I could feed my kid berries and roots to resolve his chronic constipation, I would be scratching the roots out of the frozen michigan dirt right now.

I'd be surprised if anyone using Miralax wasn't looking for an alternative. As parents we strive to remove even the potential of an unnecessary threat from our children's environment.

But based on my son's experience, the constipation is a real threat. Miralax is only a potential threat for us.

I don't agree with the logic:

A. my kid had side effects from Miralax

B. other people have experienced similiar side effects

Conclusion: All kids must suffer side effects from miralax sooner or later. My kid can't be in the minority!

No part of this is meant to be offensive or encourage the use of Miralax.

It is obvious that my opnion differs greatly from that of some individuals in this group.

Being as egocentrical as I am, I feel it is important to provide counter-point to this forum which is anti-miralax.

Too many people who are new to Miralax get a very biased opinion from this group, without realizing that this forum is intended to be anti-miralax.

Happy New Year!

From: miralax@yahoogroups .com [mailto:miralax@ yahoogroups. com] On Behalf Of JennieSent: Saturday, January 02, 2010 11:01 PMTo: miralax@yahoogroups .comSubject: Re: Re: New to the group

I agree, constipation is the major issue here and the underlying reason needs to be found(my son does have hirschsprungs) . But Jack is wrong to come in this group and try to convince "everyone" to stay on miralax. (Bridgette, please realize this post is not targeted at you, just happen to read both in this post). This group is for those wanting to get off it and learning the dangers of. Infact knowing this group is specifically for those reasons, it is inconsederit of others Jack. He may just convince that one parent to keep there child on it who may have a serious reaction to it(I cant even mention them/possible reactions at this moment/to upsetting). Most of us here have all had there children on PEG, some for many years and some still trying to get them off(not always easy but sometimes the best things for our kids is the hardest sometimes exhausting choices).I also know that feeling Jack of trying to excuse why I kept my son on it as long as I did, I felt really guilty and then one minute thought, O it is ok, cuz everyone says so and its working(worked less and less with time/required crazy dosing over time). As Jacks child, my child has had many many medical conditons as others here also have with there children. My son has been on so many meds and I have tiredly done everything I can to get him off them. Easy isnt always the best for your lil ones(wish it was). He has been able to get off all meds except 1(I pray this one well be gone also someday). I would never do this without doctors consent. So Jack we are not doctors but we strive to avoid them if able and this is just thru good research, better health/eating and learning from others etc. Sorry, but you are write in that some in this group well come against you, because it is just wrong to encourage PEG when a parent comes to this group to get there kids off it because they just sense it is bad stuff. When I think of my son being in ICU due to heart issues because of PEG and now has an iliostomy that there is that slim chance the PEG may have made things worse(even with hd he never had one doctor suspect it until vaccines and the icing on the cake, PEG) and others in this group who's lil ones have suffered from so many PEG related issues, why in the world would you encourage it. You mentioned many many doctors have told you it is safe and you cant find things to say elsewise(this is false by the way) but the same doctor who told us it was safe also later after my son was out of ICU said, O it was from the PEG. Vaccines is another good example the majority swears there great, even our government says that, but my Lord the vaccines almost killed my son(you think miralax is controversal, bring up vaccines in groups or forums). Mineral oil(recent topic in this group) many doctors say it is safe, someone in this group even stated the older generation used it regularly, BUT we was blessed and that one doctor(our sons neuro) said get him off it(reasons explained in other posts). My point is what about those few(I suspect the majority and they just dont connect the dots) who have serious reactions to PEG or the one you convince to use it does? And Jack, I do like you and my heart goes out to your precious child I know you love with all your heart! Even though this upset me some, Im there for you and the struggles your family goes thru. But please.....

From: bridgetteliedtke <bridgetteliedtke@ yahoo.com. au>Subject: Re: New to the groupTo: miralax@yahoogroups .comDate: Saturday, January 2, 2010, 6:47 PM

Hi Jack and Mummy of 2.5 yo DDI agree with Jack, constipation is the major issue here and the point that is being missed is actually the cause of the constipation, not necessarily the treatment involved in getting her clean.I think you should be seeking an opinion about causes, ie Hirschprungs Disease or Slow Transit Constipation (also known as Neural Intestinal Dysplasia).The use of Miralax may only be one method of treatment and may actually require much more assertive action.Cheers, BridgetteMother of a child born with Imperforate Anus Daily bowel washouts.>> I have to ask, does the Miralax work when used as prescribed?> > I have had fears about using Miralax, but it is the only effective treatment> for my son. > > Understanding the cause for the constipation is key.> > Based on what I have read here, I wouldn't give it to my son if he had> "leaky gut". But since my son's problem is of a different nature, we have> found it to be extremely effective with no apparent side effects. My son has> Spina Bifida, which involves nerve damage affecting his bowel & bladder.> > My position is that being constantly constipated presents a much more real> threat to my son's health than the potential problems that a small> percentage of the population experience from Miralax.> > If you can find a natural solution that works, all the better.> > Find a different pediatrician. One that will work with you.> > My son sees lots and lots of doctors. I have spoken to over a dozen> doctors, as well as many more medical professionals about Miralax. None of> which feel that Miralax presents a risk to my child's health. I have> researched looking for unbiased scientific data about the negative effects> of Miralax and have came up empty.> > It is my opinion that there is some amount of misinformation presented as> fact in this forum. I do not believe it is intentional or with ill intent.> Most of my fears about Miralax originated in this forum. > > Ask your GI to put you in touch with other parents that the GI works with.> It may help to find some local support, and speak to parents in the same> boat as you are.> > You'll hear several of the regulars here cry out against my opinion. They> always do. > > > Happy New Year!> > > > > > _____ > > From: miralax@yahoogroups .com [mailto:miralax@yahoogroups .com] On Behalf Of> mama2beachbabies> Sent: Saturday, January 02, 2010 10:30 AM> To: miralax@yahoogroups .com> Subject: New to the group> > > > > hi there> I am new to this group my 2 1/2 yr old has had poop problems since she was> 11 months old when we moved out of state and she started to wean from> nursing. she really only poops about every 10 days or so and it isnt all the> much, we took her to a GI doctor after her ped put her on miralax everyday> which we werent confortable with, although it works. the GI ordered blood> work and wants us to keep our daughter on miralax minerial oil and a> benefiber wafer well i am not comfortable wirth this at all fist she wont> eat the wafer and second she wont take the mineral oil and third the miralax> scares me. So we havent done any thing different and my daughter continues> to not poop we do use the miralax every ten days or so for 5 days but it> doesnt seem to help when we use it that way and now my kid is going on 11> days of no poop we tried the power pudding recipe it didnt work we give her> three whole prunes cut up every day that doesnt work i dont know what to do> and her ped wont see her anymore because we havnet followed his orders so> could someone anyone give us some help what to do? please> thank you> > > > > > No virus found in this incoming message.> Checked by AVG - www.avg.com> Version: 8..5.430 / Virus Database: 270.14.121/2589 - Release Date: 12/27/09> 09:18:00>

Internal Virus Database is out of date.Checked by AVG - www.avg.comVersion: 8.5.430 / Virus Database: 270.14.121/2589 - Release Date: 12/27/09 09:18:00

January 3, 2010

Ive lost sleep over what it(PEG) does to our lil ones, the fear is real and parents feel leary for a reason, trust intincts, that is what its for! Im horrified at what could have been dreadful results for my son(potassium drops so low/affected his heart/ICU), possibly could happen to someone elses child and this really upsets me(so I repeat it again and again). My gosh he was on this daily at home for a while and I didnt have any heart monitors for personal use(no one does) and to think this was most likely happening then. We was so blessed to have caught this at hospital(there for other reasons/not the heart) other wise we would have never known and the end results could have been tragic! This also explains the paleness my son would get and the lack of energy at home(dont confuse a calmer child with/could be a lack of energy child). I remember back befor this

happened being confused and flustrated because... should we use, no we shouldnt, should we, but it helps, but it doesnt. Im just so greatful for this group and the firm persistance and learning alternatives(was hard at times but soooo worth him not being on it anymore). Do you realise how many medications have FDA approval and have caused/triggered many medical conditions. Do you realise how many injuries/deaths it takes for them to just pull one, way to many! Do you realise how many medical conditions triggered from meds is never even connected to that drug, but it is? The side affects/dangers you see them announce on commercials is just the obvious ones and then you request the small print and the list is even longer. Do you realise how many people was told by all those doctors it was safe(sounds familiar) and so they take the meds(this includes the FDA pulled meds). Did you know that intestinal conditions is becoming an epedemic in our

country(many reason for this) but all these great scripted drugs arent slowing the epedemic down most likely fueling the problem. We have to take them at times when there is no other alternatives, but with miralax there is! Just not worth the risk of easy!

From: bridgetteliedtke <bridgetteliedtke@ yahoo.com. au>Subject: Re: New to the groupTo: miralax@yahoogroups ..comDate: Saturday, January 2, 2010, 6:47 PM

Hi Jack and Mummy of 2.5 yo DDI agree with Jack, constipation is the major issue here and the point that is being missed is actually the cause of the constipation, not necessarily the treatment involved in getting her clean.I think you should be seeking an opinion about causes, ie Hirschprungs Disease or Slow Transit Constipation (also known as Neural Intestinal Dysplasia).The use of Miralax may only be one method of treatment and may actually require much more assertive action.Cheers, BridgetteMother of a child born with Imperforate Anus Daily bowel washouts.>> I have to ask, does the Miralax work when used as prescribed?> > I have had fears about using Miralax, but it is the only effective treatment> for my son. > > Understanding the cause for the constipation is key.> > Based on what I have read here, I wouldn't give it to my son if he had> "leaky gut". But since my son's problem is of a different nature, we have> found it to be extremely effective with no apparent side effects. My son has> Spina Bifida, which involves nerve damage affecting his bowel & bladder.> > My position is that being constantly constipated presents a much more real> threat to my son's health than the potential problems that a small> percentage of the population experience from Miralax.> > If you can find a natural solution that works, all the better.> > Find a different pediatrician. One that will work with you.> > My son sees lots and lots of doctors. I have spoken to over a dozen> doctors, as well as many more medical professionals about Miralax. None of> which feel that Miralax presents a risk to my child's health. I have> researched looking for unbiased scientific data about the negative effects> of Miralax and have came up empty.> > It is my opinion that there is some amount of misinformation presented as> fact in this forum. I do not believe it is intentional or with ill intent.> Most of my fears about Miralax originated in this forum. > > Ask your GI to put you in touch with other parents that the GI works with.> It may help to find some local support, and speak to parents in the same> boat as you are.> > You'll hear several of the regulars here cry out against my opinion. They> always do. > > > Happy New Year!> > > > > > _____ > > From: miralax@yahoogroups .com [mailto:miralax@yahoogroups .com] On Behalf Of> mama2beachbabies> Sent: Saturday, January 02, 2010 10:30 AM> To: miralax@yahoogroups .com> Subject: New to the group> > > > > hi there> I am new to this group my 2 1/2 yr old has had poop problems since she was> 11 months old when we moved out of state and she started to wean from> nursing. she really only poops about every 10 days or so and it isnt all the> much, we took her to a GI doctor after her ped put her on miralax everyday> which we werent confortable with, although it works. the GI ordered blood> work and wants us to keep our daughter on miralax minerial oil and a> benefiber wafer well i am not comfortable wirth this at all fist she wont> eat the wafer and second she wont take the mineral oil and third the miralax> scares me. So we havent done any thing different and my daughter continues> to not poop we do use the miralax every ten days or so for 5 days but it> doesnt seem to help when we use it that way and now my kid is going on 11> days of no poop we tried the power pudding recipe it didnt work we give her> three whole prunes cut up every day that doesnt work i dont know what to do> and her ped wont see her anymore because we havnet followed his orders so> could someone anyone give us some help what to do? please> thank you> > > > > > No virus found in this incoming message.> Checked by AVG - www.avg.com> Version: 8..5.430 / Virus Database: 270.14.121/2589 - Release Date: 12/27/09> 09:18:00>

Internal Virus Database is out of date.Checked by AVG - www.avg.comVersion: 8..5.430 / Virus Database: 270.14.121/2589 - Release Date: 12/27/09 09:18:00

Internal Virus Database is out of date.Checked by AVG - www.avg.comVersion: 8.5.430 / Virus Database: 270.14.121/2589 - Release Date: 12/27/09 09:18:00

January 4, 2010

Hi Jack, Just want to throw out there that any chemical long term is not good for anybody. There is no way

for side effects to be avoided. You can assure other members but your not a doctor either so maybe your doing

them a disservice as much as you think the people this group are? My daughter has autism and hypotonia and miralax

regressed her much worse into both and she has not been able to recover what she lost. She's been off two years

now and I'm thankful that she no longer has urinary pain, oxalate problems, grains in the stools, uncontrollable bowel

movements, stomach pain and stomach bloating, but she does have other issues from this drug that may not reverse.

You say the group scared the hell out of you but is it wise to give people who join this group info. that you are only giving

out of your experience and no hard evidence?

Kathy

New to the group> > > > > hi there> I am new to this group my 2 1/2 yr old has had poop problems since she was> 11 months old when we moved out of state and she started to wean from> nursing. she really only poops about every 10 days or so and it isnt all the> much, we took her to a GI doctor after her ped put her on miralax everyday> which we werent confortable with, although it works. the GI ordered blood> work and wants us to keep our daughter on miralax minerial oil and a> benefiber wafer well i am not comfortable wirth this at all fist she wont> eat the wafer and second she wont take the mineral oil and third the miralax> scares me. So we havent done any thing different and my daughter continues> to not poop we do use the miralax every ten days or so for 5 days but it> doesnt seem to help when we use it that way and now my kid is going on 11> days of no poop we tried the power pudding recipe it didnt work we give her> three whole prunes cut up every day that doesnt work i dont know what to do> and her ped wont see her anymore because we havnet followed his orders so> could someone anyone give us some help what to do? please> thank you> > > > > > No virus found in this incoming message.> Checked by AVG - www.avg.com> Version: 8..5.430 / Virus Database: 270.14.121/2589 - Release Date: 12/27/09> 09:18:00>

Internal Virus Database is out of date.Checked by AVG - www.avg.comVersion: 8.5.430 / Virus Database: 270.14.121/2589 - Release Date: 12/27/09 09:18:00

January 4, 2010

I lost sleep over what I read here.

Losing sleep, Gee Jack, I wish that's all I lost...................

From: bridgetteliedtke <bridgetteliedtke@ yahoo.com. au>Subject: Re: New to the groupTo: miralax@yahoogroups .comDate: Saturday, January 2, 2010, 6:47 PM

Hi Jack and Mummy of 2.5 yo DDI agree with Jack, constipation is the major issue here and the point that is being missed is actually the cause of the constipation, not necessarily the treatment involved in getting her clean.I think you should be seeking an opinion about causes, ie Hirschprungs Disease or Slow Transit Constipation (also known as Neural Intestinal Dysplasia).The use of Miralax may only be one method of treatment and may actually require much more assertive action.Cheers, BridgetteMother of a child born with Imperforate Anus Daily bowel washouts.>> I have to ask, does the Miralax work when used as prescribed?> > I have had fears about using Miralax, but it is the only effective treatment> for my son. > > Understanding the cause for the constipation is key.>

> Based on what I have read here, I wouldn't give it to my son if he had> "leaky gut". But since my son's problem is of a different nature, we have> found it to be extremely effective with no apparent side effects. My son has> Spina Bifida, which involves nerve damage affecting his bowel & bladder.> > My position is that being constantly constipated presents a much more real> threat to my son's health than the potential problems that a small> percentage of the population experience from Miralax.> > If you can find a natural solution that works, all the better.> > Find a different pediatrician. One that will work with you.> > My son sees lots and lots of doctors. I have spoken to over a dozen> doctors, as well as many more medical professionals about Miralax. None of> which feel that Miralax presents a risk to my child's health. I

have> researched looking for unbiased scientific data about the negative effects> of Miralax and have came up empty.> > It is my opinion that there is some amount of misinformation presented as> fact in this forum. I do not believe it is intentional or with ill intent.> Most of my fears about Miralax originated in this forum. > > Ask your GI to put you in touch with other parents that the GI works with.> It may help to find some local support, and speak to parents in the same> boat as you are.> > You'll hear several of the regulars here cry out against my opinion. They> always do. > > > Happy New Year!> > > > > > _____ > > From: miralax@yahoogroups .com [mailto:miralax@yahoogroups .com] On Behalf Of> mama2beachbabies> Sent: Saturday,

January 02, 2010 10:30 AM> To: miralax@yahoogroups .com> Subject: New to the group> > > > > hi there> I am new to this group my 2 1/2 yr old has had poop problems since she was> 11 months old when we moved out of state and she started to wean from> nursing. she really only poops about every 10 days or so and it isnt all the> much, we took her to a GI doctor after her ped put her on miralax everyday> which we werent confortable with, although it works. the GI ordered blood> work and wants us to keep our daughter on miralax minerial oil and a> benefiber wafer well i am not comfortable wirth this at all fist she wont> eat the wafer and second she wont take the mineral oil and third the miralax> scares me. So we havent done any thing different and my daughter continues> to not poop we do use the miralax every

ten days or so for 5 days but it> doesnt seem to help when we use it that way and now my kid is going on 11> days of no poop we tried the power pudding recipe it didnt work we give her> three whole prunes cut up every day that doesnt work i dont know what to do> and her ped wont see her anymore because we havnet followed his orders so> could someone anyone give us some help what to do? please> thank you> > > > > > No virus found in this incoming message.> Checked by AVG - www.avg.com> Version: 8..5.430 / Virus Database: 270.14.121/2589 - Release Date: 12/27/09> 09:18:00>

Internal Virus Database is out of date.Checked by AVG - www.avg.comVersion: 8.5.430 / Virus Database: 270.14.121/2589 - Release Date: 12/27/09 09:18:00

January 4, 2010

Thanks Jack for the opposing views! I read the stories of parents letting their

children stay in pain and constipated and I feel sorry for the kids.

If Miralax works, give it to the poor kid. It is ok and good to find an

alternative cure, but do not let your children suffer from impactions and

encopresis because you refuse to give Miralax.

Way to Go Jack!

> >

> > I have to ask, does the Miralax work when used as prescribed?

> >

> > I have had fears about using Miralax, but it is the only effective treatment

> > for my son.

> >

> > Understanding the cause for the constipation is key.

> >

> > Based on what I have read here, I wouldn't give it to my son if he had

> > " leaky gut " . But since my son's problem is of a different nature, we have

> > found it to be extremely effective with no apparent side effects. My son has

> > Spina Bifida, which involves nerve damage affecting his bowel & bladder.

> >

> > My position is that being constantly constipated presents a much more real

> > threat to my son's health than the potential problems that a small

> > percentage of the population experience from Miralax.

> >

> > If you can find a natural solution that works, all the better.

> >

> > Find a different pediatrician. One that will work with you.

> >

> > My son sees lots and lots of doctors. I have spoken to over a dozen

> > doctors, as well as many more medical professionals about Miralax. None of

> > which feel that Miralax presents a risk to my child's health. I have

> > researched looking for unbiased scientific data about the negative effects

> > of Miralax and have came up empty.

> >

> > It is my opinion that there is some amount of misinformation presented as

> > fact in this forum. I do not believe it is intentional or with ill intent.

> > Most of my fears about Miralax originated in this forum.

> >

> > Ask your GI to put you in touch with other parents that the GI works with.

> > It may help to find some local support, and speak to parents in the same

> > boat as you are.

> >

> > You'll hear several of the regulars here cry out against my opinion. They

> > always do.

> >

> > Happy New Year!

> >

> > _____

> >

> > From: miralax@yahoogroups .com [mailto:miralax@yahoogroups .com] On Behalf

Of

> > mama2beachbabies

> > Sent: Saturday, January 02, 2010 10:30 AM

> > To: miralax@yahoogroups .com

> > Subject: New to the group

> >

> > hi there

> > I am new to this group my 2 1/2 yr old has had poop problems since she was

> > 11 months old when we moved out of state and she started to wean from

> > nursing. she really only poops about every 10 days or so and it isnt all the

> > much, we took her to a GI doctor after her ped put her on miralax everyday

> > which we werent confortable with, although it works. the GI ordered blood

> > work and wants us to keep our daughter on miralax minerial oil and a

> > benefiber wafer well i am not comfortable wirth this at all fist she wont

> > eat the wafer and second she wont take the mineral oil and third the miralax

> > scares me. So we havent done any thing different and my daughter continues

> > to not poop we do use the miralax every ten days or so for 5 days but it

> > doesnt seem to help when we use it that way and now my kid is going on 11

> > days of no poop we tried the power pudding recipe it didnt work we give her

> > three whole prunes cut up every day that doesnt work i dont know what to do

> > and her ped wont see her anymore because we havnet followed his orders so

> > could someone anyone give us some help what to do? please

> > thank you

> >

> > No virus found in this incoming message.

> > Checked by AVG - www.avg.com

> > Version: 8..5.430 / Virus Database: 270.14.121/2589 - Release Date: 12/27/09

> > 09:18:00

> >

>

> Internal Virus Database is out of date.

> Checked by AVG - www.avg.com

> Version: 8.5.430 / Virus Database: 270.14.121/2589 - Release Date: 12/27/09

09:18:00

>

> Internal Virus Database is out of date.

> Checked by AVG - www.avg.com

> Version: 8.5.430 / Virus Database: 270.14.121/2589 - Release Date: 12/27/09

09:18:00

>

January 4, 2010

Why would anyone go against their doctor's advice? Remember Jeanie, play nice.

> > >

> > > I have to ask, does the Miralax work when used as prescribed?

> > >

> > > I have had fears about using Miralax, but it is the only effective

treatment

> > > for my son.

> > >

> > > Understanding the cause for the constipation is key.

> > >

> > > Based on what I have read here, I wouldn't give it to my son if he had

> > > " leaky gut " . But since my son's problem is of a different nature, we have

> > > found it to be extremely effective with no apparent side effects. My son

has

> > > Spina Bifida, which involves nerve damage affecting his bowel & bladder.

> > >

> > > My position is that being constantly constipated presents a much more real

> > > threat to my son's health than the potential problems that a small

> > > percentage of the population experience from Miralax.

> > >

> > > If you can find a natural solution that works, all the better.

> > >

> > > Find a different pediatrician. One that will work with you.

> > >

> > > My son sees lots and lots of doctors. I have spoken to over a dozen

> > > doctors, as well as many more medical professionals about Miralax. None of

> > > which feel that Miralax presents a risk to my child's health. I have

> > > researched looking for unbiased scientific data about the negative effects

> > > of Miralax and have came up empty.

> > >

> > > It is my opinion that there is some amount of misinformation presented as

> > > fact in this forum. I do not believe it is intentional or with ill intent.

> > > Most of my fears about Miralax originated in this forum.

> > >

> > > Ask your GI to put you in touch with other parents that the GI works with.

> > > It may help to find some local support, and speak to parents in the same

> > > boat as you are.

> > >

> > > You'll hear several of the regulars here cry out against my opinion. They

> > > always do.

> > >

> > > Happy New Year!

> > >

> > > _____

> > >

> > > From: miralax@yahoogroups .com [mailto:miralax@ yahoogroups .com] On

Behalf Of

> > > mama2beachbabies

> > > Sent: Saturday, January 02, 2010 10:30 AM

> > > To: miralax@yahoogroups .com

> > > Subject: New to the group

> > >

> > > hi there

> > > I am new to this group my 2 1/2 yr old has had poop problems since she was

> > > 11 months old when we moved out of state and she started to wean from

> > > nursing. she really only poops about every 10 days or so and it isnt all

the

> > > much, we took her to a GI doctor after her ped put her on miralax everyday

> > > which we werent confortable with, although it works. the GI ordered blood

> > > work and wants us to keep our daughter on miralax minerial oil and a

> > > benefiber wafer well i am not comfortable wirth this at all fist she wont

> > > eat the wafer and second she wont take the mineral oil and third the

miralax

> > > scares me. So we havent done any thing different and my daughter continues

> > > to not poop we do use the miralax every ten days or so for 5 days but it

> > > doesnt seem to help when we use it that way and now my kid is going on 11

> > > days of no poop we tried the power pudding recipe it didnt work we give

her

> > > three whole prunes cut up every day that doesnt work i dont know what to

do

> > > and her ped wont see her anymore because we havnet followed his orders so

> > > could someone anyone give us some help what to do? please

> > > thank you

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - www.avg.com

> > > Version: 8..5.430 / Virus Database: 270.14.121/2589 - Release Date:

12/27/09

> > > 09:18:00

> > >

> >

> > Internal Virus Database is out of date.

> > Checked by AVG - www.avg.com

> > Version: 8.5.430 / Virus Database: 270.14.121/2589 - Release Date: 12/27/09

09:18:00

> >

> > Internal Virus Database is out of date.

> > Checked by AVG - www.avg.com

> > Version: 8.5.430 / Virus Database: 270.14.121/2589 - Release Date: 12/27/09

09:18:00

> >

>

January 6, 2010

I normally don't post, but I feel like I should this time. I am still trying to

figure out how to do it. Hope it comes through correctly.

My son was on laxative for 6 years since 8 months old, and he had sampled all

the laxatives on the market over the years. For the last three years he was on

laxative, we used Miralax. He is now 7.5, and FREE of all laxative and

medication, because I finally found the right nutritional supplements that

worked for him.

I never liked any medication, I don't even like taking Aspirin myself, so you

can imagine what it was like when I had to put my only baby on laxative, and was

told for the rest of his life. I used all kinds of food first, hired a nanny

just cooking for my son. I bought the best food possible, and took him to some

of the best doctors and nutritionists in the country, but it was not work. Each

time I poured the laxative into his water and watched him drinking it, I would

cry. I felt like I was poisoning him, yet I had no other choice, but it did

make me more determined to continue my search for something healthier and

better. So for the last six years, I researched nutritionals extensively and

tried many products, and some had help to reduce the laxative, but it wasn't

until a few months ago, when we tried this new product, it changed our life. It

got rid of the last bit of Miralax he was taking.

I think everyone here has a point and everyone is with the good intention of

trying to help these kids to be safe and healthy. Our body is so complex, and

each one is different. When someone takes something, the reaction can be so

different and it is difficult to say what actually caused what. As a parent

with special needs, we always try to find clues about why he was doing this and

that, and what the possible cause might be so that we can eliminate it and fix

the problem and he will all the better. It can drive us crazy. Many times our

own behavior and hormones can affect the kids in a very dramatic way, we need to

be very careful of our emotions and actions around the kids, and it CAN affect

their bowel movement and many other things.

I think this site should be a place for families to share their experiences

(good and bad), suggestions, and provide encouragement, so that new parents can

learn and research and find the best solution for their kids. As you all

probably remember how confusing and scaring it was when we first had to

encounter this problem. Just because something worked or did not work for you,

it does not mean it will have the same affect on others. None of us are

scientists here who specifically study the Miralax and know for sure the true

affects on our body (I wish so). Every medicine is being absorbed by our body

and I believe in that, even our skin absorbs many chemicals into our blood

stream every day. However, what kind of effects it has on us is hard to

measure. Today, there are so much chemicals in the things we use, we eat and

drink. Did you know there are over 60,000 chemicals introduced into our life

since WWII, and the number is still growing?

The United States is an over medicated society, the fourth leading cause of

death in this country is pharmaceutical drug related and under supervision. So,

if you can find natural and healthy ways to take care the problems and reduce

the amount of chemicals in your life that would be the best solution. However,

for many people, they simply have no choice, and that is when drug has its

place.

If a child has diabetes and all the diet did not work, he may need insulin

injection daily. We all know that is not good long term, but would you not

give him the insulin or only give him once in a while if he needs it daily?

There might be some diet or supplement that you haven't discovered could

possible help him to reduce or eliminate the insulin, but until you find it, you

must give your child the insulin he needs, because the alternative is a

dangerous.