Guest guest Posted November 5, 1999 Report Share Posted November 5, 1999 Tom Gloyn wrote: > > > > Re: One in 15:000? > > : > Did you ever get a CHARGE registry set up in Canada? You were around > Hamilton, St. ph's Hospital this summer? If not, the CBDRA got funding > for a long overdue deafblind registry for Canada, so maybe this could be > extended to CHARGE? Or would a hospital need to be responsible for the > collection of data? > ANN Ann, In the registration forms for the CDBRA there was a CHARGE check box if that was why your child was Deafblind. There may be some informal statistics in that research. Jeanie Colp Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.