Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 I suppose then it might get even harder to find a doc? LOL- yeah let them have the illness for a day or a week. Actually when I was in nursing school- we sort of did that- we had to wear ear plugs one day, very horrid glasses another day, bind an arm one day, stuff like that- we had to stay in a WC another day- and try to attend all classes that way. At work if a patient complained about how we trransfered someone- we had to be transferred ourself by our peers... - In , Judith Voter <lovemykj2002@y...> wrote: > You go girl!!!! Maybe it time we turned the tables on these dang dr.s/ Thanks for the response. > Judith Ann > > dreamer_plus <dreamer_plus@w...> wrote: > > OK good idea, to be my doc you have to have the illness so you can feel how I feel? GREAT IDEA. might make some of them better docs? > > > - In , Judith Voter <lovemykj2002@y...> wrote: > > Hey Dreamer, > > I know what you mean. I read what these gals write and I am so new at this that I don't know what they are referring to. Especially the drugs. GOt to read more. Stiffness and numbness are my major problems right now. Waiting for blood tests results and xrays. I can see the road ahead. So glad these gals are here. THey are so helpful. You know, I just thought if we could find a rheumi dr. that has RA, FMS and Lupis we might get treated a little better. what do you thing? > > Judith Ann > > > > dreamer_plus <dreamer_plus@w...> wrote: > > This is bad- I am a nurse, but- this all is above me. I did nursing home work, HOspice and ALzheimers mostly and skilled care, lots of MS and strokes- and I am well versed in mental illnesses- but this RA and Lupus stuff goes right over my head. These meds are new to me- mobility issues are not new- but- most of my patients did not having - um- changing mobility. I mean gosh one day my feet are flaring, another day it is knees, another day toes, another day fingers, another day elbows- LOL, it is a challenge to figure out each day how to adapt. I began writing holding my pen one way but a week later it was a different part of my thumbs flaring than the week before- even tho it was still my thumbs. LOL- SOme days the kids will help pull me up from sitting and some days- depending on whats flaring I tell them NO! do not let me hold on, it will hurt more. > > I have been humbled, LOL- cuz I got used to knowing what I was talking about and knowing terms, but right now, I am still so unknowledgeable about this. Thank you guys for helping me learn! Now if I could keep the rest of the families crisises at bay long enough for anything to sink in, LOL. > > > > > > > > > > - In , " Tawny " <tawnyokc@s...> wrote: > > > I was also diagnosed with Lupus and RA. I was asking Janie the other > > > day about it. She was saying the doctor took her off the Humira, > > > because of the Lupus diagnose. That scared me because I'm on Humira, > > > and suppose to have Lupus. So, I am going to talk to my doc on my > > > next visit. I am not good with medical terms at all. > > > You have really had so much going on in your family, I'm so sorry > > > dear. I will keep you, and your family in my prayers, tawny > > > > > > > > > > > > > > > > > > > > > > > > > > > > The docs where I live are not at all aggressive in ordering tests > > > for people. M frind lost an eye to cancer, she has MS and for 4 > > > years the docs blamed her vision complaints on MS. FINALLY she got > > > an ultrasound on her eye and they found very advanced eye cancer. > > > (she is in early 30s) - they had to remove her eye. My son was > > > exposed to meds that can cause spina bifida during my pregnncy with > > > him- my husband also is documented Agent Orange exposed- heavy > > > exposure- which also can cause spina bifida, - he was 2 months > > > preemie, and his labor was especially long with him in fetal distress- > > > BUT even when he could not toilet train, even with an in home > > > behavior modification PHD coming to our house daily- even with him > > > not being able to lern to ride a bike, even with him toe walking- > > > and having a hemangioma (classic signs of spina bifida) we could not > > > get any of the local pediatricians to check him out. (we wound up > > > referring ourself to SHriners and THEY found brain damage and seizure > > > disorders) > > > > I cannot even tell you how many times I was in clinic, docs office > > > and ER with RA symptoms, and what would they say? You are bipolar, > > > are you upset? DId you hit something? Did you fall? Did you jump > > > from somewhere and hurt yourself, causing this? > > > > A friend of mines child died when our ER refused to examine their > > > child, he had a twisted bowel that ruptured upon discharge from ER. > > > My husband had a motorcycle accident, ambulance too him in from the > > > scene. Local hospital discharged him, I called an ambulance that > > > took him to a VA hospital and they kept him a MONTH. > > > > > > > > Now I am wondering- gosh- do I even have RA? Everything I read > > > tells me this is correct- BUT------ gosh- there are not that many > > > rheumys around- and already I travel with my osn 6 hours round trip > > > to take HIM to a teaching hospital- and I travel 3 hours each way to > > > take my bipolar daughter to a teaching hospital, and I travel 90 mins > > > each way for my husband VA healthcare----am I going to have to also > > > go to the city for MY healthcare? Is anyone else having a hard time > > > getting treatment? Tests? I guess I assumed RA was pretty much > > > concrete, cut and dried for dx and treatment. AM I wrong? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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