Re: Not sure what is next!

[Guest guest]

Hi Rhonda. Sorry to hear about your Mom's illness and welcome to the

group. My husband has cirrhosis and I've noticed since his drinking stopped

back in mid June, he's done much better and seems to have some

improvement. Hospice is usually called in when the medical Dr's say there

is nothing else they can do. The hospice people will usually come in, care

for the patient, but they take no preventative measures. Their main

objective is to make the patient comfortable in any end stage disease.

Sorry I can't be of anymore help, but that's the extent of my knowledge

with Hospice. How long your Mom really has depends a lot on how much

damage is done to the liver, and her MELD score, and her getting so sick

after resuming her drinking will bring these symptoms on that you've

listed. It's also normal for them to appear to get better after stopping

drinking.

Sandy

> Hello to all,

> My name is Rhonda, My mom was diagnosed in 1999 with cirrhosis.

> she quit drinking for 8yrs started back. Now lives with me 4 weeks ago she

> quit eating and was vomiting nasty brown and blood, urine dark and blood,

> ankles swollen, can not walk. She refused dr attention. Hospice came in and

> said she was in the end stages. She has not had a sip of alcohol in 4days.

> swelling went down in ankles she perked up for a couple of days. I thought

> she would be fine. Just not eating but a few ounces a day. Urine still

> brown. Does any one know what I can except in the days to come? are we at

> the end? I have put off making her arrangements. I don't know if she will

> get better. All hospice did was look at her and get her records from yrs

> ago. That is all I have to go on.

>

> Love and Prayers

> Rhonda

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

Thank You.  I have no info on her Meld score she has not seen a Dr in over

3yrs. Her choice.

So I really have no idea what the damage is. I am just going by what hospice

said when they came in.She had been drinking heavy for the last 3yrs. I do know

the Dr told her in 99 if she drink again it would kill her

I don't know if we have a week or 5yrs. Just trying to keep her happy and

comfortable.

________________________________

To: livercirrhosissupport

Sent: Monday, December 5, 2011 4:49 PM

Subject: Re: Not sure what is next!

 

Hi Rhonda. Sorry to hear about your Mom's illness and welcome to the

group. My husband has cirrhosis and I've noticed since his drinking stopped

back in mid June, he's done much better and seems to have some

improvement. Hospice is usually called in when the medical Dr's say there

is nothing else they can do. The hospice people will usually come in, care

for the patient, but they take no preventative measures. Their main

objective is to make the patient comfortable in any end stage disease.

Sorry I can't be of anymore help, but that's the extent of my knowledge

with Hospice. How long your Mom really has depends a lot on how much

damage is done to the liver, and her MELD score, and her getting so sick

after resuming her drinking will bring these symptoms on that you've

listed. It's also normal for them to appear to get better after stopping

drinking.

Sandy

> Hello to all,

> My name is Rhonda, My mom was diagnosed in 1999 with cirrhosis.

> she quit drinking for 8yrs started back. Now lives with me 4 weeks ago she

> quit eating and was vomiting nasty brown and blood, urine dark and blood,

> ankles swollen, can not walk. She refused dr attention. Hospice came in and

> said she was in the end stages. She has not had a sip of alcohol in 4days.

> swelling went down in ankles she perked up for a couple of days. I thought

> she would be fine. Just not eating but a few ounces a day. Urine still

> brown. Does any one know what I can except in the days to come? are we at

> the end? I have put off making her arrangements. I don't know if she will

> get better. All hospice did was look at her and get her records from yrs

> ago. That is all I have to go on.

>

> Love and Prayers

> Rhonda

>

>

>

> ------------------------------------

>

> Group Email: livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

Rhonda,

Who got hospice involved in your Mom's care? Normally they make you

sign papers that state what their intentions are. Sadly enough, there is

no way to know how long anyone can survive with Cirrhosis.

> Thank You. I have no info on her Meld score she has not seen a Dr in over

> 3yrs. Her choice.

> So I really have no idea what the damage is. I am just going by what

> hospice said when they came in.She had been drinking heavy for the last

> 3yrs. I do know the Dr told her in 99 if she drink again it would kill her

>

> I don't know if we have a week or 5yrs. Just trying to keep her happy and

> comfortable.

>

>

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Monday, December 5, 2011 4:49 PM

> Subject: Re: Not sure what is next!

>

>

>

> Hi Rhonda. Sorry to hear about your Mom's illness and welcome to the

> group. My husband has cirrhosis and I've noticed since his drinking stopped

> back in mid June, he's done much better and seems to have some

> improvement. Hospice is usually called in when the medical Dr's say there

> is nothing else they can do. The hospice people will usually come in, care

> for the patient, but they take no preventative measures. Their main

> objective is to make the patient comfortable in any end stage disease.

>

> Sorry I can't be of anymore help, but that's the extent of my knowledge

> with Hospice. How long your Mom really has depends a lot on how much

> damage is done to the liver, and her MELD score, and her getting so sick

> after resuming her drinking will bring these symptoms on that you've

> listed. It's also normal for them to appear to get better after stopping

> drinking.

>

> Sandy

>

>

>

> > Hello to all,

> > My name is Rhonda, My mom was diagnosed in 1999 with cirrhosis.

> > she quit drinking for 8yrs started back. Now lives with me 4 weeks ago

> she

> > quit eating and was vomiting nasty brown and blood, urine dark and blood,

> > ankles swollen, can not walk. She refused dr attention. Hospice came in

> and

> > said she was in the end stages. She has not had a sip of alcohol in

> 4days.

> > swelling went down in ankles she perked up for a couple of days. I

> thought

> > she would be fine. Just not eating but a few ounces a day. Urine still

> > brown. Does any one know what I can except in the days to come? are we at

> > the end? I have put off making her arrangements. I don't know if she will

> > get better. All hospice did was look at her and get her records from yrs

> > ago. That is all I have to go on.

> >

> > Love and Prayers

> > Rhonda

> >

> >

> >

> > ------------------------------------

> >

> > Group Email: livercirrhosissupport

> > web address:

> > http://groups.yahoo.com/group/livercirrhosissupport/

> >

[Guest guest]

rhonda,

i have esld from alcohol was diagnosed in 2008 i have not had a drank since.my

dr's told me it would be like putting gas on a fire.my meld go from 16 to 11 and

then a 20 it changes all the time it keeps me confused.i really sorry to hear

about your mom.but it sounds like she for some reason put the gas on the

fire.but i also thought the dr would have to place her with hospice.it sounds

like since she didn't follow dr's advise thats where they think she should

be.and that is not right for them to just give up without doing lab work to see

what is going on.good luck.

bev,tx

________________________________

To: livercirrhosissupport

Sent: Tuesday, December 6, 2011 9:42 AM

Subject: Re: Not sure what is next!

 

Rhonda,

Who got hospice involved in your Mom's care? Normally they make you

sign papers that state what their intentions are. Sadly enough, there is

no way to know how long anyone can survive with Cirrhosis.

> Thank You. I have no info on her Meld score she has not seen a Dr in over

> 3yrs. Her choice.

> So I really have no idea what the damage is. I am just going by what

> hospice said when they came in.She had been drinking heavy for the last

> 3yrs. I do know the Dr told her in 99 if she drink again it would kill her

>

> I don't know if we have a week or 5yrs. Just trying to keep her happy and

> comfortable.

>

>

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Monday, December 5, 2011 4:49 PM

> Subject: Re: Not sure what is next!

>

>

>

> Hi Rhonda. Sorry to hear about your Mom's illness and welcome to the

> group. My husband has cirrhosis and I've noticed since his drinking stopped

> back in mid June, he's done much better and seems to have some

> improvement. Hospice is usually called in when the medical Dr's say there

> is nothing else they can do. The hospice people will usually come in, care

> for the patient, but they take no preventative measures. Their main

> objective is to make the patient comfortable in any end stage disease.

>

> Sorry I can't be of anymore help, but that's the extent of my knowledge

> with Hospice. How long your Mom really has depends a lot on how much

> damage is done to the liver, and her MELD score, and her getting so sick

> after resuming her drinking will bring these symptoms on that you've

> listed. It's also normal for them to appear to get better after stopping

> drinking.

>

> Sandy

>

>

>

> > Hello to all,

> > My name is Rhonda, My mom was diagnosed in 1999 with cirrhosis.

> > she quit drinking for 8yrs started back. Now lives with me 4 weeks ago

> she

> > quit eating and was vomiting nasty brown and blood, urine dark and blood,

> > ankles swollen, can not walk. She refused dr attention. Hospice came in

> and

> > said she was in the end stages. She has not had a sip of alcohol in

> 4days.

> > swelling went down in ankles she perked up for a couple of days. I

> thought

> > she would be fine. Just not eating but a few ounces a day. Urine still

> > brown. Does any one know what I can except in the days to come? are we at

> > the end? I have put off making her arrangements. I don't know if she will

> > get better. All hospice did was look at her and get her records from yrs

> > ago. That is all I have to go on.

> >

> > Love and Prayers

> > Rhonda

> >

> >

> >

> > ------------------------------------

> >

> > Group Email: livercirrhosissupport

> > web address:

> > http://groups.yahoo.com/group/livercirrhosissupport/

> >

[Guest guest]

Oh Rhonda - what a position to be in!!  I am certainly not a Dr.; but,

everything that you have described does not bode well for her.

An old aunt of my husband's was at the ripe old age of 97 recently.  Well, she

decided that she'd had enough and refused to eat.  Everyone thought it would be

quick, so arrangements were made.  When you count in all the relations that she

had, it was bound to take awhile to get some here.  Fortunately, she did pass

and they carried on with the service.

My parents have been firm believers in arranging there own end time.  Thus,

when I realized in Sept that I am going terminal, my first goal was to make

arrangements.  However, at the moment, I just don't have the money.  However,

my son will have several thousands from my life insurance, so I doubt it's going

to be hard for him to have a very cheap service.  He knows very well what I

want, plus there is the will, living will and power of attorney.  I'm not a

showing person living, so I certainly don't want anything flashy.

You see, my husband passed away on Christmas Eve last year and certainly did not

leave me an easy job.  As usual, he left it up to me and that meant dealing

with his nasty kids and the sisters.  They make dysfunction look like a picnic

in the park.  Anyway, we had been separated for the previous 6 months, so I

gave his kids permission to plan a service.  What a huge mistake that was!!! 

Then, try settling an estate, even if it isn't enough to hire lawyers etc.  He

left no will.  So, I learned from that and have already signed everything that

I own over to my son and just need to go to the lawyer, who has fixed up my

attempt at a will etc.  She is the same lawyer that I had to get for the

husbands none-estate.  So she knows that if his children thought there was

anything to get from me, they might do it just for spite.

I hope that everything works out and isn't complicated.

________________________________

 

Hello to all,

My name is Rhonda, My mom was diagnosed in 1999 with cirrhosis.

she quit drinking for 8yrs started back. Now lives with me 4 weeks ago she quit

eating and was vomiting nasty brown and blood, urine dark and blood, ankles

swollen, can not walk. She refused dr attention. Hospice came in and said she

was in the end stages. She has not had a sip of alcohol in 4days. swelling went

down in ankles she perked up for a couple of days. I thought she would be fine.

Just not eating but a few ounces a day. Urine still brown. Does any one know

what I can except in the days to come? are we at the end? I have put off making

her arrangements. I don't know if she will get better. All hospice did was look

at her and get her records from yrs ago. That is all I have to go on.

Love and Prayers

Rhonda

[Guest guest]

I know what you are saying. I am so confused and everything in my life is on

hold. She seems to be doing better except her urine is still brown and she is

having alot of back pain.

she knows what she has done to herself. I am the one  who  called hospice, I

was trying to get a Dr here at my house and pay out of pocket, she refused to go

to the Dr and when I called EMS here she refused to go then. Hospice came out

and talked with her, I do know they sent for her records in Florida. so I am

hoping that will tell me something.

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Wednesday, December 7, 2011 1:24 AM

Subject: Re: Not sure what is next!

 

rhonda,

i have esld from alcohol was diagnosed in 2008 i have not had a drank since.my

dr's told me it would be like putting gas on a fire.my meld go from 16 to 11 and

then a 20 it changes all the time it keeps me confused.i really sorry to hear

about your mom.but it sounds like she for some reason put the gas on the

fire.but i also thought the dr would have to place her with hospice.it sounds

like since she didn't follow dr's advise thats where they think she should

be.and that is not right for them to just give up without doing lab work to see

what is going on.good luck.

bev,tx

________________________________

To: livercirrhosissupport

Sent: Tuesday, December 6, 2011 9:42 AM

Subject: Re: Not sure what is next!

 

Rhonda,

Who got hospice involved in your Mom's care? Normally they make you

sign papers that state what their intentions are. Sadly enough, there is

no way to know how long anyone can survive with Cirrhosis.

> Thank You. I have no info on her Meld score she has not seen a Dr in over

> 3yrs. Her choice.

> So I really have no idea what the damage is. I am just going by what

> hospice said when they came in.She had been drinking heavy for the last

> 3yrs. I do know the Dr told her in 99 if she drink again it would kill her

>

> I don't know if we have a week or 5yrs. Just trying to keep her happy and

> comfortable.

>

>

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Monday, December 5, 2011 4:49 PM

> Subject: Re: Not sure what is next!

>

>

>

> Hi Rhonda. Sorry to hear about your Mom's illness and welcome to the

> group. My husband has cirrhosis and I've noticed since his drinking stopped

> back in mid June, he's done much better and seems to have some

> improvement. Hospice is usually called in when the medical Dr's say there

> is nothing else they can do. The hospice people will usually come in, care

> for the patient, but they take no preventative measures. Their main

> objective is to make the patient comfortable in any end stage disease.

>

> Sorry I can't be of anymore help, but that's the extent of my knowledge

> with Hospice. How long your Mom really has depends a lot on how much

> damage is done to the liver, and her MELD score, and her getting so sick

> after resuming her drinking will bring these symptoms on that you've

> listed. It's also normal for them to appear to get better after stopping

> drinking.

>

> Sandy

>

>

>

> > Hello to all,

> > My name is Rhonda, My mom was diagnosed in 1999 with cirrhosis.

> > she quit drinking for 8yrs started back. Now lives with me 4 weeks ago

> she

> > quit eating and was vomiting nasty brown and blood, urine dark and blood,

> > ankles swollen, can not walk. She refused dr attention. Hospice came in

> and

> > said she was in the end stages. She has not had a sip of alcohol in

> 4days.

> > swelling went down in ankles she perked up for a couple of days. I

> thought

> > she would be fine. Just not eating but a few ounces a day. Urine still

> > brown. Does any one know what I can except in the days to come? are we at

> > the end? I have put off making her arrangements. I don't know if she will

> > get better. All hospice did was look at her and get her records from yrs

> > ago. That is all I have to go on.

> >

> > Love and Prayers

> > Rhonda

> >

> >

> >

> > ------------------------------------

> >

> > Group Email: livercirrhosissupport

> > web address:

> > http://groups.yahoo.com/group/livercirrhosissupport/

> >

[Guest guest]

Gloria, I am sorry about your husband.

Mom pulled through in 99 they did not think she would make it through the night

then. She is 67 now and I just don't know how to help her, she does not want any

help from a Dr.

and you are right I need to go ahead and make arrangements

Love & Prayers

Rhonda

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Wednesday, December 7, 2011 2:52 AM

Subject: Re: Not sure what is next!

 

Oh Rhonda - what a position to be in!!  I am certainly not a Dr.; but,

everything that you have described does not bode well for her.

An old aunt of my husband's was at the ripe old age of 97 recently.  Well, she

decided that she'd had enough and refused to eat.  Everyone thought it would be

quick, so arrangements were made.  When you count in all the relations that she

had, it was bound to take awhile to get some here.  Fortunately, she did pass

and they carried on with the service.

My parents have been firm believers in arranging there own end time.  Thus,

when I realized in Sept that I am going terminal, my first goal was to make

arrangements.  However, at the moment, I just don't have the money.  However,

my son will have several thousands from my life insurance, so I doubt it's going

to be hard for him to have a very cheap service.  He knows very well what I

want, plus there is the will, living will and power of attorney.  I'm not a

showing person living, so I certainly don't want anything flashy.

You see, my husband passed away on Christmas Eve last year and certainly did not

leave me an easy job.  As usual, he left it up to me and that meant dealing

with his nasty kids and the sisters.  They make dysfunction look like a picnic

in the park.  Anyway, we had been separated for the previous 6 months, so I

gave his kids permission to plan a service.  What a huge mistake that was!!! 

Then, try settling an estate, even if it isn't enough to hire lawyers etc.  He

left no will.  So, I learned from that and have already signed everything that

I own over to my son and just need to go to the lawyer, who has fixed up my

attempt at a will etc.  She is the same lawyer that I had to get for the

husbands none-estate.  So she knows that if his children thought there was

anything to get from me, they might do it just for spite.

I hope that everything works out and isn't complicated.

________________________________

 

Hello to all,

My name is Rhonda, My mom was diagnosed in 1999 with cirrhosis.

she quit drinking for 8yrs started back. Now lives with me 4 weeks ago she quit

eating and was vomiting nasty brown and blood, urine dark and blood, ankles

swollen, can not walk. She refused dr attention. Hospice came in and said she

was in the end stages. She has not had a sip of alcohol in 4days. swelling went

down in ankles she perked up for a couple of days. I thought she would be fine.

Just not eating but a few ounces a day. Urine still brown. Does any one know

what I can except in the days to come? are we at the end? I have put off making

her arrangements. I don't know if she will get better. All hospice did was look

at her and get her records from yrs ago. That is all I have to go on.

Love and Prayers

Rhonda

[Guest guest]

Rhonda

You mentioned that mom did manage to quit drinking for a few years?  Being

diagnosed of such high amount of  cirrhosius, should scare the beegeezus out of

anyone.  But, I also understand addiction and especially to alcohol.  Mom had

to have known that reverting back to drinking, would hasten her journey to

death.   What she may not understand and it seems that she doesn't want to

understand anymore, is that dying of liver disease can be really painful.  I

wonder if she just wants to go soon??  Unfortunately, alcohol is a teaser as

well.  Even the very worst cases, can just live on and on.  Is it possible to

put her into hospice care?

Hang in - Gloria

________________________________

 

I know what you are saying. I am so confused and everything in my life is on

hold. She seems to be doing better except her urine is still brown and she is

having alot of back pain.

she knows what she has done to herself. I am the one  who  called hospice, I

was trying to get a Dr here at my house and pay out of pocket, she refused to go

to the Dr and when I called EMS here she refused to go then. Hospice came out

and talked with her, I do know they sent for her records in Florida. so I am

hoping that will tell me something.

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Wednesday, December 7, 2011 1:24 AM

Subject: Re: Not sure what is next!

 

rhonda,

i have esld from alcohol was diagnosed in 2008 i have not had a drank since.my

dr's told me it would be like putting gas on a fire.my meld go from 16 to 11 and

then a 20 it changes all the time it keeps me confused.i really sorry to hear

about your mom.but it sounds like she for some reason put the gas on the

fire.but i also thought the dr would have to place her with hospice.it sounds

like since she didn't follow dr's advise thats where they think she should

be.and that is not right for them to just give up without doing lab work to see

what is going on.good luck.

bev,tx

________________________________

To: livercirrhosissupport

Sent: Tuesday, December 6, 2011 9:42 AM

Subject: Re: Not sure what is next!

 

Rhonda,

Who got hospice involved in your Mom's care? Normally they make you

sign papers that state what their intentions are. Sadly enough, there is

no way to know how long anyone can survive with Cirrhosis.

> Thank You. I have no info on her Meld score she has not seen a Dr in over

> 3yrs. Her choice.

> So I really have no idea what the damage is. I am just going by what

> hospice said when they came in.She had been drinking heavy for the last

> 3yrs. I do know the Dr told her in 99 if she drink again it would kill her

>

> I don't know if we have a week or 5yrs. Just trying to keep her happy and

> comfortable.

>

>

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Monday, December 5, 2011 4:49 PM

> Subject: Re: Not sure what is next!

>

>

>

> Hi Rhonda. Sorry to hear about your Mom's illness and welcome to the

> group. My husband has cirrhosis and I've noticed since his drinking stopped

> back in mid June, he's done much better and seems to have some

> improvement. Hospice is usually called in when the medical Dr's say there

> is nothing else they can do. The hospice people will usually come in, care

> for the patient, but they take no preventative measures. Their main

> objective is to make the patient comfortable in any end stage disease.

>

> Sorry I can't be of anymore help, but that's the extent of my knowledge

> with Hospice. How long your Mom really has depends a lot on how much

> damage is done to the liver, and her MELD score, and her getting so sick

> after resuming her drinking will bring these symptoms on that you've

> listed. It's also normal for them to appear to get better after stopping

> drinking.

>

> Sandy

>

>

>

> > Hello to all,

> > My name is Rhonda, My mom was diagnosed in 1999 with cirrhosis.

> > she quit drinking for 8yrs started back. Now lives with me 4 weeks ago

> she

> > quit eating and was vomiting nasty brown and blood, urine dark and blood,

> > ankles swollen, can not walk. She refused dr attention. Hospice came in

> and

> > said she was in the end stages. She has not had a sip of alcohol in

> 4days.

> > swelling went down in ankles she perked up for a couple of days. I

> thought

> > she would be fine. Just not eating but a few ounces a day. Urine still

> > brown. Does any one know what I can except in the days to come? are we at

> > the end? I have put off making her arrangements. I don't know if she will

> > get better. All hospice did was look at her and get her records from yrs

> > ago. That is all I have to go on.

> >

> > Love and Prayers

> > Rhonda

> >

> >

> >

> > ------------------------------------

> >

> > Group Email: livercirrhosissupport

> > web address:

> > http://groups.yahoo.com/group/livercirrhosissupport/

> >