Re: Re: lactulose experience

[Guest guest]

Hi Bonnie:  My husband had problems with high ammonia also before his

transplant 2 years ago.  The local hospital didn't seem to know what to do but

when I insisted he be transported to the transplant center the drs there knew

immediately that his ammonia level needed to come down.  He was unable to

swallow so they gave him lactulose enemas every two hours.  I stayed and roomed

in with him and since I knew him better than anyone I was the one who was able

to let them know when there was improvement.  We all worked together like a

well oiled machine.  He had his transplant at Hershey Medical Center in

Hershey, PA.  Hope this info helps.  Jackie E.

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Tuesday, June 19, 2012 7:39 AM

Subject: Re: lactulose experience

 

My husband takes lactlose 4 tablespoons 4 times a day 4 days a week and 3

tablespoons 3 times a day to help with high ammonia levels.  3 times a week due

to dialysis. Even this much he still gets high ammonia levels.

He was in the hospital 3 times less than 2 weeks for ammonia levels. It took 12

hrs before the ammonia levels started to drop and he knew what was going on.

Does anyone else care for anyone with ammonia levels getting high and do you

keep them at home or go to the hospital. All the Drs can do is give him

lactulose but I worry about him going into a coma if I kept him home. levels

have been  140, 206 ,225

Sincerely,

 

Bonnie Randklev

McCormick Realty

2673 Steamship Drive

Bullhead City, Az 86429

Office: 1-

Fax:

Cell:

http://www.northforkatlaughlinranch.com/

[Guest guest]

Way to go, tough guy!  Just chug that stuff right down!  I used to do the same

thing with my husband's; measure it out in one of those medical cups.  I

totally understood the flexibility of the dosage since he is an insulin

dependent diabetic and I have to adjust his insulin all the time.  With taking

care of him I could have a diploma on my wall!  I'm so glad you're on

xifaxin.  It worked wonders for my husband too.  He's a walking, talking

miracle--2 years post liver transplant May 26th.  I even wrote a book about our

experience.  If you'd like an autographed copy you can contact me on my

personal e-mail at jckellermann@...  God bless and have a good day. 

With Love, Jackie E.

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Tuesday, June 19, 2012 4:11 PM

Subject: Re: lactulose experience

 

I take 30 mL, 4 times a day. I use a small medical measuring cup (sort of like a

smaller shot glass) and thow it down like a couple of shots of whiskey. I used

to hate it, then got to the point where i knew i needed it and not whine, and

now I just take it and don't really think about it. It saves my life, so no

complaints from me!

I've been taking it for 2--2.5 years along with Xifaxin, and never have those

episodes of shaking, loss of focus and memory, and confusion. It wasn't until I

added the Xifaxin that I started to feel normal again.

Lactulose serves as a laxative that attacks and removes E. Coli, abyproduct of

protein intake, from your intestines. E. Coli stays in your system and creates

ammonia, which in turn causes these episodes of confusion and mental fuzziness.

occasionally i have to use an OTC laxative to keep the intestines clear.

Good luck and God bless

Kip

kip via iPad

[Guest guest]

I WAS HOSPITALIZED IN APRIL FOR OTHER PROBLEMS BUT THEY BUT ON MY RECORD THAT MY

AMONIA LEVEL WAS HIGH CAUSE FOR MY HOSP. STAY AND MY INSURANCE DENIED THE CLAIM

BECAUSE THEY SAID HIGH AMONIA LEVELS ARE NORMAL FOR LIVER PATIENTS.SO I GEUSS

THEY ARE NOT GOING TO DO ANYTHING IN THE FUTURE FOR MY HUGH AMONIA.GO FIGURE.

 

BEV,  TX

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Tuesday, June 19, 2012 9:12 AM

Subject: Re: Re: lactulose experience

 

Hi Bonnie:  My husband had problems with high ammonia also before his

transplant 2 years ago.  The local hospital didn't seem to know what to do but

when I insisted he be transported to the transplant center the drs there knew

immediately that his ammonia level needed to come down.  He was unable to

swallow so they gave him lactulose enemas every two hours.  I stayed and roomed

in with him and since I knew him better than anyone I was the one who was able

to let them know when there was improvement.  We all worked together like a

well oiled machine.  He had his transplant at Hershey Medical Center in

Hershey, PA.  Hope this info helps.  Jackie E.

________________________________

From: Bonnie Randklev <mailto:bonnierandklev%40yahoo.com>

To: " mailto:livercirrhosissupport%40yahoogroups.com "

<mailto:livercirrhosissupport%40yahoogroups.com>

Sent: Tuesday, June 19, 2012 7:39 AM

Subject: Re: lactulose experience

 

My husband takes lactlose 4 tablespoons 4 times a day 4 days a week and 3

tablespoons 3 times a day to help with high ammonia levels.  3 times a week due

to dialysis. Even this much he still gets high ammonia levels.

He was in the hospital 3 times less than 2 weeks for ammonia levels. It took 12

hrs before the ammonia levels started to drop and he knew what was going on.

Does anyone else care for anyone with ammonia levels getting high and do you

keep them at home or go to the hospital. All the Drs can do is give him

lactulose but I worry about him going into a coma if I kept him home. levels

have been  140, 206 ,225

Sincerely,

 

Bonnie Randklev

McCormick Realty

2673 Steamship Drive

Bullhead City, Az 86429

Office: 1-

Fax:

Cell:

http://www.northforkatlaughlinranch.com/

[Guest guest]

It really doesn't matter if a person has liver disease or not, if they start

talking in gibberish

they should go to the hospital. This condition can be caused by a whole bunch of

things, none of them very good. There can be a difference in hyperammonemia

(elevated ammonia in the blood stream) and portal systemic encephalopathy.

(PSE)  PSE can happen with normal ammonia readings and a patient can have sky

high ammonia, and not show any symptoms of PSE.   This link is for a test that

can show if a patient has impairment. I do not recommend anyone take this to

thier doctor and wave it at them, (they will not take you seriously)

It's not for diagnosing the condition, but it can be a useful tool to see if the

lactulose is doing it's job.

http://f1.grp.yahoofs.com/v1/IATmT_qFobDsQ7k4fWtKRcnANQJVzQb4ZCwbcVfD0y4lY5fLJW9\

JH3xoD2uxe0TCiId19W5UF6AYCAFnXHug/PSE_en.pdf

Actual elevted ammonia in the blood is not good, regardless, and the medical

staff will treat it. ( excess Ammonia can damage the already sick liver

further).  

Oriented x3 means that a person can say where they are, what time,day and date

it is, and who they are.  With my loved one, usually a bladder infection

triggered severe episodes of PSE, and we would take her to the ER. Eventually we

got to where we would just call 911.   If there is an underlying trigger, that

must be investigated before any improvement can be expected.  Not every

hepatologist recommends lowering protien, (mine does not) so t is best to

discuss it with the liver doctor.  I stopped eating meat as a staple, and now

have small amounts of it because I always have problems when I do eat it.  Now

my curly hair has gone completely straight.  Has anyone else ever experienced

this? Love, Bobby

 

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Tuesday, June 19, 2012 8:39 AM

Subject: Re: lactulose experience

 

My husband takes lactlose 4 tablespoons 4 times a day 4 days a week and 3

tablespoons 3 times a day to help with high ammonia levels.  3 times a week due

to dialysis. Even this much he still gets high ammonia levels.

He was in the hospital 3 times less than 2 weeks for ammonia levels. It took 12

hrs before the ammonia levels started to drop and he knew what was going on.

Does anyone else care for anyone with ammonia levels getting high and do you

keep them at home or go to the hospital. All the Drs can do is give him

lactulose but I worry about him going into a coma if I kept him home. levels

have been  140, 206 ,225

Sincerely,

 

Bonnie Randklev

McCormick Realty

2673 Steamship Drive

Bullhead City, Az 86429

Office: 1-

Fax:

Cell:

http://www.northforkatlaughlinranch.com/

[Guest guest]

Bev

Are you close to the Mexico border??  I'd say just pop over and graba couple of

bottles and I'll bet they are a whole lot cheaper than even here in Canada.  If

all else fails, I can send you down some.  It's definitely an OTC here.  I

just got a bottle today and it's $14.50.

Gloria

________________________________

 

I WAS HOSPITALIZED IN APRIL FOR OTHER PROBLEMS BUT THEY BUT ON MY RECORD THAT MY

AMONIA LEVEL WAS HIGH CAUSE FOR MY HOSP. STAY AND MY INSURANCE DENIED THE CLAIM

BECAUSE THEY SAID HIGH AMONIA LEVELS ARE NORMAL FOR LIVER PATIENTS.SO I GEUSS

THEY ARE NOT GOING TO DO ANYTHING IN THE FUTURE FOR MY HUGH AMONIA.GO FIGURE.

 

BEV,  TX

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Tuesday, June 19, 2012 9:12 AM

Subject: Re: Re: lactulose experience

 

Hi Bonnie:  My husband had problems with high ammonia also before his

transplant 2 years ago.  The local hospital didn't seem to know what to do but

when I insisted he be transported to the transplant center the drs there knew

immediately that his ammonia level needed to come down.  He was unable to

swallow so they gave him lactulose enemas every two hours.  I stayed and roomed

in with him and since I knew him better than anyone I was the one who was able

to let them know when there was improvement.  We all worked together like a

well oiled machine.  He had his transplant at Hershey Medical Center in

Hershey, PA.  Hope this info helps.  Jackie E.

________________________________

From: Bonnie Randklev <mailto:bonnierandklev%40yahoo.com>

To: " mailto:livercirrhosissupport%40yahoogroups.com "

<mailto:livercirrhosissupport%40yahoogroups.com>

Sent: Tuesday, June 19, 2012 7:39 AM

Subject: Re: lactulose experience

 

My husband takes lactlose 4 tablespoons 4 times a day 4 days a week and 3

tablespoons 3 times a day to help with high ammonia levels.  3 times a week due

to dialysis. Even this much he still gets high ammonia levels.

He was in the hospital 3 times less than 2 weeks for ammonia levels. It took 12

hrs before the ammonia levels started to drop and he knew what was going on.

Does anyone else care for anyone with ammonia levels getting high and do you

keep them at home or go to the hospital. All the Drs can do is give him

lactulose but I worry about him going into a coma if I kept him home. levels

have been  140, 206 ,225

Sincerely,

 

Bonnie Randklev

McCormick Realty

2673 Steamship Drive

Bullhead City, Az 86429

Office: 1-

Fax:

Cell:

http://www.northforkatlaughlinranch.com/