Update

[Guest guest]

Today I had what I thought was a meet and greet with the local Gastro.  Just the

fact that I was given an appointment so quickly was a surprise.  Basically, I

think that he just wanted to see me for himself, because of my decision. 

Now he's seen a great deal of my family.  Told me a funny story about my Dad.  I

guess Dad must have been feeling a bit frisky, when he was in recently.  Wanted

the Dr. to punch him in the stomach.  LOL  Yup, sounds like my Dad.  He's 86 yrs

old and beginning to feel more like he's 66 with these iron infusions. 

Actually, day before yesterday, I was in the hospital to sit with a very sick

friend and found out that my Dad was getting his infusion.  So, I went to

daycare and the room that he was in.  Seeing him sitting in a big chair, made

him seem even smaller than he is.  I used to be the shortest in the family; but,

now I can kiss the top of his head.  As I said to the nurses when I was on my

way out, it's hard to imagine that he used to rule us strictly.  Now he's so

little that even I could carry him.  Then, as he was chattering away, I caught

one phrase and that was acknowledging that it was my birthday.  He surprises me

with those ones.

By the way, it took until 25 yrs ago to figure out where my chattering actually

comes from.  Sure isn't my Mother.  But, that little guy that hardly said a word

when we were young - you can't keep him down.  Promised my Mom that if she went

first, I would gladly go to see Dad every single day and let him chatter at me. 

LOL

Anyway - the Gastro suggested that I have that scope to find out if I have any

esophagus varisies.  Don't really know why he thought of that; but, it's fine

with me.  Especially when he told me what could happen.

So just an update.

Gloria

[Guest guest]

gloria, we so often take family for granted,you just keep loving and cherish

every minute you have with him.because we sure can't go back.

 

god bless

bev

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Thursday, November 10, 2011 9:01 PM

Subject: Update

 

Today I had what I thought was a meet and greet with the local Gastro.  Just

the fact that I was given an appointment so quickly was a surprise.  Basically,

I think that he just wanted to see me for himself, because of my decision. 

Now he's seen a great deal of my family.  Told me a funny story about my Dad. 

I guess Dad must have been feeling a bit frisky, when he was in recently. 

Wanted the Dr. to punch him in the stomach.  LOL  Yup, sounds like my Dad. 

He's 86 yrs old and beginning to feel more like he's 66 with these iron

infusions.  Actually, day before yesterday, I was in the hospital to sit with a

very sick friend and found out that my Dad was getting his infusion.  So, I

went to daycare and the room that he was in.  Seeing him sitting in a big

chair, made him seem even smaller than he is.  I used to be the shortest in the

family; but, now I can kiss the top of his head.  As I said to the nurses when

I was on my way out, it's hard to imagine that he used to rule us strictly. 

Now he's so little that even I could carry him.  Then, as he was chattering

away, I caught one phrase and that was acknowledging that it was my birthday. 

He surprises me with those ones.

By the way, it took until 25 yrs ago to figure out where my chattering actually

comes from.  Sure isn't my Mother.  But, that little guy that hardly said a

word when we were young - you can't keep him down.  Promised my Mom that if she

went first, I would gladly go to see Dad every single day and let him chatter at

me.  LOL

Anyway - the Gastro suggested that I have that scope to find out if I have any

esophagus varisies.  Don't really know why he thought of that; but, it's fine

with me.  Especially when he told me what could happen.

So just an update.

Gloria

[Guest guest]

penny please enjoy your trip, i am a Chicagoan, you are gonna enjoy your trip

you and your friends. i have hepc, it scare the hell out of me, something i

think i am going nuts. you are bless to have friends many of us just dont have

the closeness because of the illiness.

thank you so much for the encouragement. thomas

>

> I'm getting close to being done with the Peginterferon and Ribavirin treatment

for the Hepatitis C. I have 14 weeks to go. As I've told you all before, I was

undetectable after only 6 days on treatment. The lab has been doing the viral

load test that only goes down to 50, though, so they weren't totally sure that I

was completely undetectable. My post transplant coordinator has been trying to

get my local lab to do a different test that can tell if there is any virus left

in the blood or not, but they were always too confused and didn't understand

that it was a different test. They finally took the test last Monday, and I got

the results today. There isn't any Hep C virus detectable in my blood at all.

Yay! Hopefully, it will stay that way when I stop treatment, and especially six

months after I stop. The farther out from treatment being undetectable, the

better chance there is that it won't come back.

>

> I still get the shot of Aranesp every week to keep my red blood cell counts

up, and since they lowered my dose of Ribavirin, my counts have gradually gone

up enough so I'm not as tired or out of breath. They are starting to fall a bit

again, but we'll see how they are next week. At least I haven't had to get

anymore blood transfusions, and I should be able to get through the last few

weeks I have left without another one. In 14 weeks when I'm done, I will still

have to take the Ribavirin for a while since I'm on such a low dose, and I will

have to continue to get the shots of Aranesp until I stop taking the pills, but

I'll be done with the Peginterferon injections. The injections I don't mind

since they have never given me any trouble, except when the needles were hard to

get through the skin there for a while. Actually, every time I give myself the

shot, it makes me feel better, healthier, stronger.

>

> My new liver is doing great, thank goodness. It's been 1 year and 7-1/2

months since my transplant. I'm amazed every time I see my AST and ALT in the

normal range in the 20's, which it has been for a while now, but it just amazes

me when I see it since mine were always so high for years before my transplant.

>

> I hope everyone is doing well.

>

> Penny

>

[Guest guest]

gloria that is great news about the trip.i am sure you will have a great time.if

we believe in dreams and have faith all things are possible.

 

bev

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Wednesday, November 30, 2011 8:59 PM

Subject: Update

 

Hi Everyone - just wanted to update you on my liver!!  LOL  It is actually

like it's got a life of it's own, isn't it??  I'm coming up to a decade of

being involved with my mine.

Something strange happened today.  You know that I had decided to bring all my

medical care back to where I live.  I'm sure those 12 hr return trips are going

to be impossible.  Also, I had chosen not to go on with any procedures for the

cancer, because I need a quality of life now, not a quantity.  Well, I got a

message from the city hospital that they want to talk to me about an MRI.  Now,

I specifically heard the surgeon say that there was no point in having an MRI. 

I believe that was because we all know what the return of the cancer so quick

means. 

So, I called over to the BCHep Clinic and asked the clinician to please find out

what is going on.  Now, I'm sure that I told him weeks ago about my decision;

but, he seemed surprised today.  Anyway, I also asked that he put a note under

the Gastro's nose, that I would like to talk to him as well.

But - here's happy news.  I've probably said numerous times that I love Yanni

music and would give just about anything to go to a concert before my end.  His

music alone keeps me peaceful and serene.  Well, he begins a North America tour

in 2012.  So far, all the cities he will be in, are in the east.  I believe

Chicago is just about the closest.  So, dreaming all the way, I looked up how

much it would cost to fly to Chicago and back.  Wow, a lot cheaper than I would

have thought.  Then, I looked up the cost for tickets in the really really good

seats.  Again, a whole lot less than most artists charge.

Finally, I told my internet friend that lives in Chicago and suddenly this whole

idea has taken on a life.  I will stay with her and her husband of course. 

Now another internet friend wants to come up from Oklahoma.  Then one of them

can drive; but, it's a 7 hr trip.  Finally, one more, that I think lives in

Maine.  This is getting more exciting just about each hour.

What it means to me - I absolutely have to stay well until that happens. 

Honestly, I believe that if we have something to dream about, likely we can hold

off the bad crap.  We are going to see!!!!

Gloria

[Guest guest]

AMEN!!  That's what my book is about.  It's called The Mustard Seed and it's

all about my husband's liver transplant.  It's dedicated to the people in this

group.  You can find it by going to www.authorhouse.com  Look for " The Mustard

Seed " by Jackie Ellermann.  As always, keeping you all in prayer and hoping

you're having a good day today.  Jackie E

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Thursday, December 1, 2011 9:37 AM

Subject: Re: Update

 

gloria that is great news about the trip.i am sure you will have a great time.if

we believe in dreams and have faith all things are possible.

 

bev

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Wednesday, November 30, 2011 8:59 PM

Subject: Update

 

Hi Everyone - just wanted to update you on my liver!!  LOL  It is actually

like it's got a life of it's own, isn't it??  I'm coming up to a decade of

being involved with my mine.

Something strange happened today.  You know that I had decided to bring all my

medical care back to where I live.  I'm sure those 12 hr return trips are going

to be impossible.  Also, I had chosen not to go on with any procedures for the

cancer, because I need a quality of life now, not a quantity.  Well, I got a

message from the city hospital that they want to talk to me about an MRI.  Now,

I specifically heard the surgeon say that there was no point in having an MRI. 

I believe that was because we all know what the return of the cancer so quick

means. 

So, I called over to the BCHep Clinic and asked the clinician to please find out

what is going on.  Now, I'm sure that I told him weeks ago about my decision;

but, he seemed surprised today.  Anyway, I also asked that he put a note under

the Gastro's nose, that I would like to talk to him as well.

But - here's happy news.  I've probably said numerous times that I love Yanni

music and would give just about anything to go to a concert before my end.  His

music alone keeps me peaceful and serene.  Well, he begins a North America tour

in 2012.  So far, all the cities he will be in, are in the east.  I believe

Chicago is just about the closest.  So, dreaming all the way, I looked up how

much it would cost to fly to Chicago and back.  Wow, a lot cheaper than I would

have thought.  Then, I looked up the cost for tickets in the really really good

seats.  Again, a whole lot less than most artists charge.

Finally, I told my internet friend that lives in Chicago and suddenly this whole

idea has taken on a life.  I will stay with her and her husband of course. 

Now another internet friend wants to come up from Oklahoma.  Then one of them

can drive; but, it's a 7 hr trip.  Finally, one more, that I think lives in

Maine.  This is getting more exciting just about each hour.

What it means to me - I absolutely have to stay well until that happens. 

Honestly, I believe that if we have something to dream about, likely we can hold

off the bad crap.  We are going to see!!!!

Gloria

[Guest guest]

Gloria, so excited about your trip.  I do hope you will have a wonderful time

with your internet friends, and who knows, maybe even meet Yanni.  I love that

music too.  So soothing to the soul.  You know, I was thinking, maybe the

" Dream Come True " foundation could be of some help financially with your trip. 

Just a thought.  Keep us posted.  So excited for you!  Jackie E

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Wednesday, November 30, 2011 11:59 PM

Subject: Update

 

Hi Everyone - just wanted to update you on my liver!!  LOL  It is actually

like it's got a life of it's own, isn't it??  I'm coming up to a decade of

being involved with my mine.

Something strange happened today.  You know that I had decided to bring all my

medical care back to where I live.  I'm sure those 12 hr return trips are going

to be impossible.  Also, I had chosen not to go on with any procedures for the

cancer, because I need a quality of life now, not a quantity.  Well, I got a

message from the city hospital that they want to talk to me about an MRI.  Now,

I specifically heard the surgeon say that there was no point in having an MRI. 

I believe that was because we all know what the return of the cancer so quick

means. 

So, I called over to the BCHep Clinic and asked the clinician to please find out

what is going on.  Now, I'm sure that I told him weeks ago about my decision;

but, he seemed surprised today.  Anyway, I also asked that he put a note under

the Gastro's nose, that I would like to talk to him as well.

But - here's happy news.  I've probably said numerous times that I love Yanni

music and would give just about anything to go to a concert before my end.  His

music alone keeps me peaceful and serene.  Well, he begins a North America tour

in 2012.  So far, all the cities he will be in, are in the east.  I believe

Chicago is just about the closest.  So, dreaming all the way, I looked up how

much it would cost to fly to Chicago and back.  Wow, a lot cheaper than I would

have thought.  Then, I looked up the cost for tickets in the really really good

seats.  Again, a whole lot less than most artists charge.

Finally, I told my internet friend that lives in Chicago and suddenly this whole

idea has taken on a life.  I will stay with her and her husband of course. 

Now another internet friend wants to come up from Oklahoma.  Then one of them

can drive; but, it's a 7 hr trip.  Finally, one more, that I think lives in

Maine.  This is getting more exciting just about each hour.

What it means to me - I absolutely have to stay well until that happens. 

Honestly, I believe that if we have something to dream about, likely we can hold

off the bad crap.  We are going to see!!!!

Gloria

[Guest guest]

Jackie

It would be almost impossible for me to ever think about " Dream Come True " ; but,

my mother would kill me before it's my time.  I am going to get there and I've

left it with my Creator with the assurance that it will happen.

However, it's still 6 months away!!

________________________________

 

Gloria, so excited about your trip.  I do hope you will have a wonderful time

with your internet friends, and who knows, maybe even meet Yanni.  I love that

music too.  So soothing to the soul.  You know, I was thinking, maybe the

" Dream Come True " foundation could be of some help financially with your trip. 

Just a thought.  Keep us posted.  So excited for you!  Jackie E

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Wednesday, November 30, 2011 11:59 PM

Subject: Update

 

Hi Everyone - just wanted to update you on my liver!!  LOL  It is actually

like it's got a life of it's own, isn't it??  I'm coming up to a decade of

being involved with my mine.

Something strange happened today.  You know that I had decided to bring all my

medical care back to where I live.  I'm sure those 12 hr return trips are going

to be impossible.  Also, I had chosen not to go on with any procedures for the

cancer, because I need a quality of life now, not a quantity.  Well, I got a

message from the city hospital that they want to talk to me about an MRI.  Now,

I specifically heard the surgeon say that there was no point in having an MRI. 

I believe that was because we all know what the return of the cancer so quick

means. 

So, I called over to the BCHep Clinic and asked the clinician to please find out

what is going on.  Now, I'm sure that I told him weeks ago about my decision;

but, he seemed surprised today.  Anyway, I also asked that he put a note under

the Gastro's nose, that I would like to talk to him as well.

But - here's happy news.  I've probably said numerous times that I love Yanni

music and would give just about anything to go to a concert before my end.  His

music alone keeps me peaceful and serene.  Well, he begins a North America tour

in 2012.  So far, all the cities he will be in, are in the east.  I believe

Chicago is just about the closest.  So, dreaming all the way, I looked up how

much it would cost to fly to Chicago and back.  Wow, a lot cheaper than I would

have thought.  Then, I looked up the cost for tickets in the really really good

seats.  Again, a whole lot less than most artists charge.

Finally, I told my internet friend that lives in Chicago and suddenly this whole

idea has taken on a life.  I will stay with her and her husband of course. 

Now another internet friend wants to come up from Oklahoma.  Then one of them

can drive; but, it's a 7 hr trip.  Finally, one more, that I think lives in

Maine.  This is getting more exciting just about each hour.

What it means to me - I absolutely have to stay well until that happens. 

Honestly, I believe that if we have something to dream about, likely we can hold

off the bad crap.  We are going to see!!!!

Gloria

[Guest guest]

I love Yanni. What a wonderful event to look forward to!!

.

 

Gloria, so excited about your trip.  I do hope you will have a wonderful time

with your internet friends, and who knows, maybe even meet Yanni.  I love that

music too.  So soothing to the soul.  You know, I was thinking, maybe the

" Dream Come True " foundation could be of some help financially with your trip. 

Just a thought.  Keep us posted.  So excited for you!  Jackie E

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Wednesday, November 30, 2011 11:59 PM

Subject: Update

 

Hi Everyone - just wanted to update you on my liver!!  LOL  It is actually

like it's got a life of it's own, isn't it??  I'm coming up to a decade of

being involved with my mine.

Something strange happened today.  You know that I had decided to bring all my

medical care back to where I live.  I'm sure those 12 hr return trips are going

to be impossible.  Also, I had chosen not to go on with any procedures for the

cancer, because I need a quality of life now, not a quantity.  Well, I got a

message from the city hospital that they want to talk to me about an MRI.  Now,

I specifically heard the surgeon say that there was no point in having an MRI. 

I believe that was because we all know what the return of the cancer so quick

means. 

So, I called over to the BCHep Clinic and asked the clinician to please find out

what is going on.  Now, I'm sure that I told him weeks ago about my decision;

but, he seemed surprised today.  Anyway, I also asked that he put a note under

the Gastro's nose, that I would like to talk to him as well.

But - here's happy news.  I've probably said numerous times that I love Yanni

music and would give just about anything to go to a concert before my end.  His

music alone keeps me peaceful and serene.  Well, he begins a North America tour

in 2012.  So far, all the cities he will be in, are in the east.  I believe

Chicago is just about the closest.  So, dreaming all the way, I looked up how

much it would cost to fly to Chicago and back.  Wow, a lot cheaper than I would

have thought.  Then, I looked up the cost for tickets in the really really good

seats.  Again, a whole lot less than most artists charge.

Finally, I told my internet friend that lives in Chicago and suddenly this whole

idea has taken on a life.  I will stay with her and her husband of course. 

Now another internet friend wants to come up from Oklahoma.  Then one of them

can drive; but, it's a 7 hr trip.  Finally, one more, that I think lives in

Maine.  This is getting more exciting just about each hour.

What it means to me - I absolutely have to stay well until that happens. 

Honestly, I believe that if we have something to dream about, likely we can hold

off the bad crap.  We are going to see!!!!

Gloria