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Re: Horrible way to die????

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I don't know if this is comforting, but it is something my father eluded to in

the months before his passing.  He kept bringing up the good times, the good

memories, trying to help us focus on that while the disease gripped him.  I was

constantly flooding him with pictures of all of us (past and present) and we

would always talk about " remember this " and " remember that " >  I tell you what,

even after I saw the progression of his disease and was there whenever he took

his last breath, whenever my mind starts to think about those times - something

that he said about " remember the time you put that fishing hook through my shirt

while casting out? " starts to move in and soften the blow.  Whenever my mind

flips to the bad memories, it always leads off on a tangent to those

conversations and I get a little teary smile.

Coming at it from that sense, being a child of someone who succumbed to the

disease, my father would have kicked us out of the room for having his

grandchildren come in and say goodbye before his passing.  We wouldn't have had

it any different.  We are his family.  We love him.  We are going through

this with him but in a different position.

I know there is nothing more in the world a parent wants then to provide for

their kids and grandkids, and to shelter them from the bad things that can

happen.  I understand that, but let me tell you from the other side of the

fence - I would not have done anything differently. Whether or not he would have

wanted me there from the time he was diagnosed until the time he passed, I would

be there - why? He was my dad. He loved me more than anything else, and I loved

him just as much.  

If he was sick or feeling down, I was there.  I was certainly glad to be there,

doing what I could for him, because I know he wouldn't have chosen this for

anyone or himself.  If he wasn't feeling there, I sure wasn't going to let him

be down or I would listen.  Was it a bad experience? Definitely.  Would I do

the same things over again? Yes.  He's my father.  I know he was scared, sick,

and worried about us more than himself, and the last thing he needed was to

worry about us.  I think that's natural as a parent though because I would feel

the same for my daughter.  I am glad I was there for him until the bitter end

because I know how tiring, scarey, and flat out devastating it can be.  He was

worried about being a burden.  He wasn't.  Not all, the biggest burden would

have been staying away.

 

I don't know if this is comforting, but I hope it is even just a little.  My

father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver

Cancer.

Sincerely,

E. Bassett

>________________________________

>

>To: livercirrhosissupport

>Sent: Saturday, February 18, 2012 1:12 PM

>Subject: Horrible way to die????

>

>

> 

>I hope I don't upset anyone with this topic. I think it is on most of our

minds.

>I have read the messages and files and websites.

>Originally somewhere, that this was not a terrible way to die.

>After all my searching I now think it is slow torture and agony for the

diseased person and hurts your family horribly. I have 22 Grandkids and seeing

me slowly die and be in pain is not a way I want to be remembered.

>I don't know what choices I have..but my future won't be something I look

forward too.

>

>Carole

>

>

>

>

>

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Thank you very much for sharing these things.  In my case, I am the patient and

unbelievably, both of my parents are still living.  I am the eldest of 5 and

the only girl.  Thank heavens those brothers made up for the lack of girls;

because, they all had girls and I had the only boy.  Sadly, my baby brother

died a year ago in January of colon cancer.  It sure rocked my world and I

don't know how my mother stayed so strong.

So there are 2 things that I know are there; but, have no control over.  That

is the fact, that my parents may have to see me out of here.  Then, my one and

only child - Shon.  Although I wanted to be here if my son ever got off his

butt, found a really wonderful girl and perhaps they produced a grandchild. 

Ahh  all pipe dreams. 

My Dad has beginning stages of Alzheimer disease.  I believe that my mother has

it as well.  However, with my memory loss and brain fog, I find that I can

remember things away back and don't know why; but, can't remember what I ate

today.  So,as long as the 3 of us can share those memories and not get upset

because we all remember them differently.  I'm sad though, that the plan to

watch out for my parents when they needed, won't be possible now.  One of my

brothers that isn't too far away, will be able to look after their needs, no

matter what they are.

I only knew about my baby brother, for 18 days when he passed away.  However,

he was insisting and my Mom agreed, that we didn't need to see him like it was,

at the end.  Today, I'm still not sure if that was the right thing or not.  I

was at least respecting his wishes.  But, if I had young children or

grandchildren, there is no way that I would want them to see me at the end. 

Children need to keep their innocence for as long as possible.  My son was 10

before I took him to his few funeral. 

You have exactly the memories that I would like to leave behind for my son. 

The only other thing that I wish he could understand, is my spiritual faith. 

That is what has kept me going for the past 3 yrs.  I'm not the least afraid of

dying - I'm just afraid of the pain.

Gloria

________________________________

 

I don't know if this is comforting, but it is something my father eluded to in

the months before his passing.  He kept bringing up the good times, the good

memories, trying to help us focus on that while the disease gripped him.  I was

constantly flooding him with pictures of all of us (past and present) and we

would always talk about " remember this " and " remember that " >  I tell you what,

even after I saw the progression of his disease and was there whenever he took

his last breath, whenever my mind starts to think about those times - something

that he said about " remember the time you put that fishing hook through my shirt

while casting out? " starts to move in and soften the blow.  Whenever my mind

flips to the bad memories, it always leads off on a tangent to those

conversations and I get a little teary smile.

Coming at it from that sense, being a child of someone who succumbed to the

disease, my father would have kicked us out of the room for having his

grandchildren come in and say goodbye before his passing.  We wouldn't have had

it any different.  We are his family.  We love him.  We are going through

this with him but in a different position.

I know there is nothing more in the world a parent wants then to provide for

their kids and grandkids, and to shelter them from the bad things that can

happen.  I understand that, but let me tell you from the other side of the

fence - I would not have done anything differently. Whether or not he would have

wanted me there from the time he was diagnosed until the time he passed, I would

be there - why? He was my dad. He loved me more than anything else, and I loved

him just as much.  

If he was sick or feeling down, I was there.  I was certainly glad to be there,

doing what I could for him, because I know he wouldn't have chosen this for

anyone or himself.  If he wasn't feeling there, I sure wasn't going to let him

be down or I would listen.  Was it a bad experience? Definitely.  Would I do

the same things over again? Yes.  He's my father.  I know he was scared, sick,

and worried about us more than himself, and the last thing he needed was to

worry about us.  I think that's natural as a parent though because I would feel

the same for my daughter.  I am glad I was there for him until the bitter end

because I know how tiring, scarey, and flat out devastating it can be.  He was

worried about being a burden.  He wasn't.  Not all, the biggest burden would

have been staying away.

 

I don't know if this is comforting, but I hope it is even just a little.  My

father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver

Cancer.

Sincerely,

E. Bassett

>________________________________

>

>To: livercirrhosissupport

>Sent: Saturday, February 18, 2012 1:12 PM

>Subject: Horrible way to die????

>

>

> 

>I hope I don't upset anyone with this topic. I think it is on most of our

minds.

>I have read the messages and files and websites.

>Originally somewhere, that this was not a terrible way to die.

>After all my searching I now think it is slow torture and agony for the

diseased person and hurts your family horribly. I have 22 Grandkids and seeing

me slowly die and be in pain is not a way I want to be remembered.

>I don't know what choices I have..but my future won't be something I look

forward too.

>

>Carole

>

>

>

>

>

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Share on other sites

...We can hear your pain and your love for your Dad.  You brought tears

to my eyes and I thank you for sharing this with us. 

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Saturday, February 18, 2012 1:47 PM

Subject: Re: Horrible way to die????

 

I don't know if this is comforting, but it is something my father eluded to in

the months before his passing.  He kept bringing up the good times, the good

memories, trying to help us focus on that while the disease gripped him.  I was

constantly flooding him with pictures of all of us (past and present) and we

would always talk about " remember this " and " remember that " >  I tell you what,

even after I saw the progression of his disease and was there whenever he took

his last breath, whenever my mind starts to think about those times - something

that he said about " remember the time you put that fishing hook through my shirt

while casting out? " starts to move in and soften the blow.  Whenever my mind

flips to the bad memories, it always leads off on a tangent to those

conversations and I get a little teary smile.

Coming at it from that sense, being a child of someone who succumbed to the

disease, my father would have kicked us out of the room for having his

grandchildren come in and say goodbye before his passing.  We wouldn't have had

it any different.  We are his family.  We love him.  We are going through

this with him but in a different position.

I know there is nothing more in the world a parent wants then to provide for

their kids and grandkids, and to shelter them from the bad things that can

happen.  I understand that, but let me tell you from the other side of the

fence - I would not have done anything differently. Whether or not he would have

wanted me there from the time he was diagnosed until the time he passed, I would

be there - why? He was my dad. He loved me more than anything else, and I loved

him just as much.  

If he was sick or feeling down, I was there.  I was certainly glad to be there,

doing what I could for him, because I know he wouldn't have chosen this for

anyone or himself.  If he wasn't feeling there, I sure wasn't going to let him

be down or I would listen.  Was it a bad experience? Definitely.  Would I do

the same things over again? Yes.  He's my father.  I know he was scared, sick,

and worried about us more than himself, and the last thing he needed was to

worry about us.  I think that's natural as a parent though because I would feel

the same for my daughter.  I am glad I was there for him until the bitter end

because I know how tiring, scarey, and flat out devastating it can be.  He was

worried about being a burden.  He wasn't.  Not all, the biggest burden would

have been staying away.

 

I don't know if this is comforting, but I hope it is even just a little.  My

father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver

Cancer.

Sincerely,

E. Bassett

>________________________________

>

>To: livercirrhosissupport

>Sent: Saturday, February 18, 2012 1:12 PM

>Subject: Horrible way to die????

>

>

> 

>I hope I don't upset anyone with this topic. I think it is on most of our

minds.

>I have read the messages and files and websites.

>Originally somewhere, that this was not a terrible way to die.

>After all my searching I now think it is slow torture and agony for the

diseased person and hurts your family horribly. I have 22 Grandkids and seeing

me slowly die and be in pain is not a way I want to be remembered.

>I don't know what choices I have..but my future won't be something I look

forward too.

>

>Carole

>

>

>

>

>

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Share on other sites

it was so touching and the kind of love I dream of.

But 3 of my adult children got angry when I said no that I come first now.

The 4th one just pretends its ok and the last one has moved in to help me.

They will not care when I'm gone..it is grandbabies who adore me.

- AMS MOONLIGHT wrote:

=============

...We can hear your pain and your love for your Dad.  You brought tears

to my eyes and I thank you for sharing this with us. 

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Saturday, February 18, 2012 1:47 PM

Subject: Re: Horrible way to die????

 

I don't know if this is comforting, but it is something my father eluded to in

the months before his passing.  He kept bringing up the good times, the good

memories, trying to help us focus on that while the disease gripped him.  I was

constantly flooding him with pictures of all of us (past and present) and we

would always talk about " remember this " and " remember that " >  I tell you what,

even after I saw the progression of his disease and was there whenever he took

his last breath, whenever my mind starts to think about those times - something

that he said about " remember the time you put that fishing hook through my shirt

while casting out? " starts to move in and soften the blow.  Whenever my mind

flips to the bad memories, it always leads off on a tangent to those

conversations and I get a little teary smile.

Coming at it from that sense, being a child of someone who succumbed to the

disease, my father would have kicked us out of the room for having his

grandchildren come in and say goodbye before his passing.  We wouldn't have had

it any different.  We are his family.  We love him.  We are going through

this with him but in a different position.

I know there is nothing more in the world a parent wants then to provide for

their kids and grandkids, and to shelter them from the bad things that can

happen.  I understand that, but let me tell you from the other side of the

fence - I would not have done anything differently. Whether or not he would have

wanted me there from the time he was diagnosed until the time he passed, I would

be there - why? He was my dad. He loved me more than anything else, and I loved

him just as much.  

If he was sick or feeling down, I was there.  I was certainly glad to be there,

doing what I could for him, because I know he wouldn't have chosen this for

anyone or himself.  If he wasn't feeling there, I sure wasn't going to let him

be down or I would listen.  Was it a bad experience? Definitely.  Would I do

the same things over again? Yes.  He's my father.  I know he was scared, sick,

and worried about us more than himself, and the last thing he needed was to

worry about us.  I think that's natural as a parent though because I would feel

the same for my daughter.  I am glad I was there for him until the bitter end

because I know how tiring, scarey, and flat out devastating it can be.  He was

worried about being a burden.  He wasn't.  Not all, the biggest burden would

have been staying away.

 

I don't know if this is comforting, but I hope it is even just a little.  My

father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver

Cancer.

Sincerely,

E. Bassett

>________________________________

>

>To: livercirrhosissupport

>Sent: Saturday, February 18, 2012 1:12 PM

>Subject: Horrible way to die????

>

>

> 

>I hope I don't upset anyone with this topic. I think it is on most of our

minds.

>I have read the messages and files and websites.

>Originally somewhere, that this was not a terrible way to die.

>After all my searching I now think it is slow torture and agony for the

diseased person and hurts your family horribly. I have 22 Grandkids and seeing

me slowly die and be in pain is not a way I want to be remembered.

>I don't know what choices I have..but my future won't be something I look

forward too.

>

>Carole

>

>

>

>

>

Link to comment
Share on other sites

,

Reading your post made me a little happy. I helped my sister in law die from

stage 4 breast cancer a little over a year ago. I slept in the hospital with

her, I bathed her, talked to her, helped feed her, adjusted her machines and did

any and everything else I could. I was away from my kids and husband all the

time. I moved 8 hours from my family to help her. I never think of the

sacrifices (as others call them). I simply remember how close it brought us, how

it made her a little happier knowing someone cared enough. I would do every bit

of it again. The thought of burden never entered my mind. It was love,

everlasting and enduring and sympathetic and true. I am so glad to know there

are people in the world like you. People who see all the this caregiving the way

you do, as an act of love and kindness. It sparks a little hope for humanity.

Kim

>

> I don't know if this is comforting, but it is something my father eluded to in

the months before his passing.  He kept bringing up the good times, the good

memories, trying to help us focus on that while the disease gripped him.  I was

constantly flooding him with pictures of all of us (past and present) and we

would always talk about " remember this " and " remember that " >  I tell you what,

even after I saw the progression of his disease and was there whenever he took

his last breath, whenever my mind starts to think about those times - something

that he said about " remember the time you put that fishing hook through my shirt

while casting out? " starts to move in and soften the blow.  Whenever my mind

flips to the bad memories, it always leads off on a tangent to those

conversations and I get a little teary smile.

>

> Coming at it from that sense, being a child of someone who succumbed to the

disease, my father would have kicked us out of the room for having his

grandchildren come in and say goodbye before his passing.  We wouldn't have had

it any different.  We are his family.  We love him.  We are going through

this with him but in a different position.

>

> I know there is nothing more in the world a parent wants then to provide for

their kids and grandkids, and to shelter them from the bad things that can

happen.  I understand that, but let me tell you from the other side of the

fence - I would not have done anything differently. Whether or not he would have

wanted me there from the time he was diagnosed until the time he passed, I would

be there - why? He was my dad. He loved me more than anything else, and I loved

him just as much.  

>

>

> If he was sick or feeling down, I was there.  I was certainly glad to be

there, doing what I could for him, because I know he wouldn't have chosen this

for anyone or himself.  If he wasn't feeling there, I sure wasn't going to let

him be down or I would listen.  Was it a bad experience? Definitely.  Would I

do the same things over again? Yes.  He's my father.  I know he was scared,

sick, and worried about us more than himself, and the last thing he needed was

to worry about us.  I think that's natural as a parent though because I would

feel the same for my daughter.  I am glad I was there for him until the bitter

end because I know how tiring, scarey, and flat out devastating it can be.  He

was worried about being a burden.  He wasn't.  Not all, the biggest burden

would have been staying away.

>

>  

> I don't know if this is comforting, but I hope it is even just a little.  My

father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver

Cancer.

>

> Sincerely,

> E. Bassett

>

>

> >________________________________

> >

> >To: livercirrhosissupport

> >Sent: Saturday, February 18, 2012 1:12 PM

> >Subject: Horrible way to die????

> >

> >

> > 

> >I hope I don't upset anyone with this topic. I think it is on most of our

minds.

> >I have read the messages and files and websites.

> >Originally somewhere, that this was not a terrible way to die.

> >After all my searching I now think it is slow torture and agony for the

diseased person and hurts your family horribly. I have 22 Grandkids and seeing

me slowly die and be in pain is not a way I want to be remembered.

> >I don't know what choices I have..but my future won't be something I look

forward too.

> >

> >Carole

> >

> >

> >

> >

> >

>

>

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Share on other sites

Now, I do it for my husband. I am glad to be able to do it. I hope it shows him,

how much I love him, how wonderful our life together has been, how I will

preserve him in our kids memories in he best possible way. I hope it shows him

he means the world to me.

I think your post gave me a little reminder of that, because it does get

difficult at times. Now that there's no one to help with the kids.

Kim

> >

> > I don't know if this is comforting, but it is something my father eluded to

in the months before his passing.  He kept bringing up the good times, the good

memories, trying to help us focus on that while the disease gripped him.  I was

constantly flooding him with pictures of all of us (past and present) and we

would always talk about " remember this " and " remember that " >  I tell you what,

even after I saw the progression of his disease and was there whenever he took

his last breath, whenever my mind starts to think about those times - something

that he said about " remember the time you put that fishing hook through my shirt

while casting out? " starts to move in and soften the blow.  Whenever my mind

flips to the bad memories, it always leads off on a tangent to those

conversations and I get a little teary smile.

> >

> > Coming at it from that sense, being a child of someone who succumbed to the

disease, my father would have kicked us out of the room for having his

grandchildren come in and say goodbye before his passing.  We wouldn't have had

it any different.  We are his family.  We love him.  We are going through

this with him but in a different position.

> >

> > I know there is nothing more in the world a parent wants then to provide for

their kids and grandkids, and to shelter them from the bad things that can

happen.  I understand that, but let me tell you from the other side of the

fence - I would not have done anything differently. Whether or not he would have

wanted me there from the time he was diagnosed until the time he passed, I would

be there - why? He was my dad. He loved me more than anything else, and I loved

him just as much.  

> >

> >

> > If he was sick or feeling down, I was there.  I was certainly glad to be

there, doing what I could for him, because I know he wouldn't have chosen this

for anyone or himself.  If he wasn't feeling there, I sure wasn't going to let

him be down or I would listen.  Was it a bad experience? Definitely.  Would I

do the same things over again? Yes.  He's my father.  I know he was scared,

sick, and worried about us more than himself, and the last thing he needed was

to worry about us.  I think that's natural as a parent though because I would

feel the same for my daughter.  I am glad I was there for him until the bitter

end because I know how tiring, scarey, and flat out devastating it can be.  He

was worried about being a burden.  He wasn't.  Not all, the biggest burden

would have been staying away.

> >

> >  

> > I don't know if this is comforting, but I hope it is even just a little. 

My father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver

Cancer.

> >

> > Sincerely,

> > E. Bassett

> >

> >

> > >________________________________

> > > From: carolear1951 <Carole_ar@>

> > >To: livercirrhosissupport

> > >Sent: Saturday, February 18, 2012 1:12 PM

> > >Subject: Horrible way to die????

> > >

> > >

> > > 

> > >I hope I don't upset anyone with this topic. I think it is on most of our

minds.

> > >I have read the messages and files and websites.

> > >Originally somewhere, that this was not a terrible way to die.

> > >After all my searching I now think it is slow torture and agony for the

diseased person and hurts your family horribly. I have 22 Grandkids and seeing

me slowly die and be in pain is not a way I want to be remembered.

> > >I don't know what choices I have..but my future won't be something I look

forward too.

> > >

> > >Carole

> > >

> > >

> > >

> > >

> > >

> >

> >

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Ok Kim

Your story has definitely brought tears to my eyes!!  Not only because your

sis-in-law had to die from that horrible cancer; but, that you so willingly gave

of yourself. 

Stupidly, I really thought that illness should pull a family together, not push

it apart further.  To this very day, I have no understanding why my step-son,

his wife, the step-daughter and one of his sistersused that period to gang up on

me.  I mean, I don't know what I did to them to deserve it.

However, out of every sad story - there are a lot of very caring people that we

just didn't know were there.  Even my neighbors where I live.  I'm on this

cul-de-sac in an RV park.  I know that every day, 1 of them is watching out for

me.  In fact it can be funny!!  One morning, I let the cat out and went back

to bed.  Well, I couldn't hear him, when he wanted in again.  So the neighbor

just across got worried and went to my next door neighbors to see if I was OK. 

Like I said - some days it's just hard to be lazy, when your neighbors are

watching out for you.  This morning, Colleen, who's on my right, let my cat in

and slammed the door.  It's the only way the blinking think will stay closed. 

All of them are doing this out of kindness, not being snoopy neighbors.  Yet,

some of the people I've known for over 2 decades, can't even bring themselves to

call.  Sad, sad world.

________________________________

 

,

Reading your post made me a little happy. I helped my sister in law die from

stage 4 breast cancer a little over a year ago. I slept in the hospital with

her, I bathed her, talked to her, helped feed her, adjusted her machines and did

any and everything else I could. I was away from my kids and husband all the

time. I moved 8 hours from my family to help her. I never think of the

sacrifices (as others call them). I simply remember how close it brought us, how

it made her a little happier knowing someone cared enough. I would do every bit

of it again. The thought of burden never entered my mind. It was love,

everlasting and enduring and sympathetic and true. I am so glad to know there

are people in the world like you. People who see all the this caregiving the way

you do, as an act of love and kindness. It sparks a little hope for humanity.

Kim

>

> I don't know if this is comforting, but it is something my father eluded to in

the months before his passing.  He kept bringing up the good times, the good

memories, trying to help us focus on that while the disease gripped him.  I

was constantly flooding him with pictures of all of us (past and present) and we

would always talk about " remember this " and " remember that " >  I tell you

what, even after I saw the progression of his disease and was there whenever he

took his last breath, whenever my mind starts to think about those times -

something that he said about " remember the time you put that fishing hook

through my shirt while casting out? " starts to move in and soften the blow. 

Whenever my mind flips to the bad memories, it always leads off on a tangent to

those conversations and I get a little teary smile.

>

> Coming at it from that sense, being a child of someone who succumbed to the

disease, my father would have kicked us out of the room for having his

grandchildren come in and say goodbye before his passing.  We wouldn't have

had it any different.  We are his family.  We love him.  We are going

through this with him but in a different position.

>

> I know there is nothing more in the world a parent wants then to provide for

their kids and grandkids, and to shelter them from the bad things that can

happen.  I understand that, but let me tell you from the other side of the

fence - I would not have done anything differently. Whether or not he would have

wanted me there from the time he was diagnosed until the time he passed, I would

be there - why? He was my dad. He loved me more than anything else, and I loved

him just as much.  

>

>

> If he was sick or feeling down, I was there.  I was certainly glad to be

there, doing what I could for him, because I know he wouldn't have chosen this

for anyone or himself.  If he wasn't feeling there, I sure wasn't going to

let him be down or I would listen.  Was it a bad experience? Definitely. 

Would I do the same things over again? Yes.  He's my father.  I know he

was scared, sick, and worried about us more than himself, and the last thing he

needed was to worry about us.  I think that's natural as a parent though

because I would feel the same for my daughter.  I am glad I was there for him

until the bitter end because I know how tiring, scarey, and flat out devastating

it can be.  He was worried about being a burden.  He wasn't.  Not all,

the biggest burden would have been staying away.

>

>  

> I don't know if this is comforting, but I hope it is even just a little. 

My father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver

Cancer.

>

> Sincerely,

> E. Bassett

>

>

> >________________________________

> >

> >To: livercirrhosissupport

> >Sent: Saturday, February 18, 2012 1:12 PM

> >Subject: Horrible way to die????

> >

> >

> > 

> >I hope I don't upset anyone with this topic. I think it is on most of our

minds.

> >I have read the messages and files and websites.

> >Originally somewhere, that this was not a terrible way to die.

> >After all my searching I now think it is slow torture and agony for the

diseased person and hurts your family horribly. I have 22 Grandkids and seeing

me slowly die and be in pain is not a way I want to be remembered.

> >I don't know what choices I have..but my future won't be something I look

forward too.

> >

> >Carole

> >

> >

> >

> >

> >

>

>

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Share on other sites

Kim

Your children are still quite young aren't they??  That is away sad that they

will be losing their Dad before they are half grown.  There is no way that I

could possibly understand that, because both of my parents are still living and

with each other.  Almost 62 yrs!!  But, I did see the pain my son was feeling

when his step-dad and the only dad he ever had (in recollection).  However, my

son is near 33 yrs old, so it's far far from the same.

________________________________

 

Now, I do it for my husband. I am glad to be able to do it. I hope it shows him,

how much I love him, how wonderful our life together has been, how I will

preserve him in our kids memories in he best possible way. I hope it shows him

he means the world to me.

I think your post gave me a little reminder of that, because it does get

difficult at times. Now that there's no one to help with the kids.

Kim

> >

> > I don't know if this is comforting, but it is something my father eluded to

in the months before his passing.  He kept bringing up the good times, the

good memories, trying to help us focus on that while the disease gripped

him.  I was constantly flooding him with pictures of all of us (past and

present) and we would always talk about " remember this " and " remember that " > 

I tell you what, even after I saw the progression of his disease and was there

whenever he took his last breath, whenever my mind starts to think about those

times - something that he said about " remember the time you put that fishing

hook through my shirt while casting out? " starts to move in and soften the

blow.  Whenever my mind flips to the bad memories, it always leads off on a

tangent to those conversations and I get a little teary smile.

> >

> > Coming at it from that sense, being a child of someone who succumbed to the

disease, my father would have kicked us out of the room for having his

grandchildren come in and say goodbye before his passing.  We wouldn't have

had it any different.  We are his family.  We love him.  We are going

through this with him but in a different position.

> >

> > I know there is nothing more in the world a parent wants then to provide for

their kids and grandkids, and to shelter them from the bad things that can

happen.  I understand that, but let me tell you from the other side of the

fence - I would not have done anything differently. Whether or not he would have

wanted me there from the time he was diagnosed until the time he passed, I would

be there - why? He was my dad. He loved me more than anything else, and I loved

him just as much.  

> >

> >

> > If he was sick or feeling down, I was there.  I was certainly glad to be

there, doing what I could for him, because I know he wouldn't have chosen this

for anyone or himself.  If he wasn't feeling there, I sure wasn't going to

let him be down or I would listen.  Was it a bad experience? Definitely. 

Would I do the same things over again? Yes.  He's my father.  I know he

was scared, sick, and worried about us more than himself, and the last thing he

needed was to worry about us.  I think that's natural as a parent though

because I would feel the same for my daughter.  I am glad I was there for him

until the bitter end because I know how tiring, scarey, and flat out devastating

it can be.  He was worried about being a burden.  He wasn't.  Not all,

the biggest burden would have been staying away.

> >

> >  

> > I don't know if this is comforting, but I hope it is even just a little. 

My father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver

Cancer.

> >

> > Sincerely,

> > E. Bassett

> >

> >

> > >________________________________

> > > From: carolear1951 <Carole_ar@>

> > >To: livercirrhosissupport

> > >Sent: Saturday, February 18, 2012 1:12 PM

> > >Subject: Horrible way to die????

> > >

> > >

> > > 

> > >I hope I don't upset anyone with this topic. I think it is on most of our

minds.

> > >I have read the messages and files and websites.

> > >Originally somewhere, that this was not a terrible way to die.

> > >After all my searching I now think it is slow torture and agony for the

diseased person and hurts your family horribly. I have 22 Grandkids and seeing

me slowly die and be in pain is not a way I want to be remembered.

> > >I don't know what choices I have..but my future won't be something I look

forward too.

> > >

> > >Carole

> > >

> > >

> > >

> > >

> > >

> >

> >

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Share on other sites

Yes they are very young. I have 3 wonderful babies. is 14, 15 in July.

Jake is 6, Kaidee use 5 (in 1 week)!

> > >

> > > I don't know if this is comforting, but it is something my father eluded

to in the months before his passing.  He kept bringing up the good times, the

good memories, trying to help us focus on that while the disease gripped

him.  I was constantly flooding him with pictures of all of us (past and

present) and we would always talk about " remember this " and " remember that " > 

I tell you what, even after I saw the progression of his disease and was there

whenever he took his last breath, whenever my mind starts to think about those

times - something that he said about " remember the time you put that fishing

hook through my shirt while casting out? " starts to move in and soften the

blow.  Whenever my mind flips to the bad memories, it always leads off on a

tangent to those conversations and I get a little teary smile.

> > >

> > > Coming at it from that sense, being a child of someone who succumbed to

the disease, my father would have kicked us out of the room for having his

grandchildren come in and say goodbye before his passing.  We wouldn't have

had it any different.  We are his family.  We love him.  We are going

through this with him but in a different position.

> > >

> > > I know there is nothing more in the world a parent wants then to provide

for their kids and grandkids, and to shelter them from the bad things that can

happen.  I understand that, but let me tell you from the other side of the

fence - I would not have done anything differently. Whether or not he would have

wanted me there from the time he was diagnosed until the time he passed, I would

be there - why? He was my dad. He loved me more than anything else, and I loved

him just as much.  

> > >

> > >

> > > If he was sick or feeling down, I was there.  I was certainly glad to

be there, doing what I could for him, because I know he wouldn't have chosen

this for anyone or himself.  If he wasn't feeling there, I sure wasn't going

to let him be down or I would listen.  Was it a bad experience?

Definitely.  Would I do the same things over again? Yes.  He's my

father.  I know he was scared, sick, and worried about us more than himself,

and the last thing he needed was to worry about us.  I think that's natural

as a parent though because I would feel the same for my daughter.  I am glad

I was there for him until the bitter end because I know how tiring, scarey, and

flat out devastating it can be.  He was worried about being a burden.  He

wasn't.  Not all, the biggest burden would have been staying away.

> > >

> > >  

> > > I don't know if this is comforting, but I hope it is even just a

little.  My father passed May 5, 2011, about 2.5 months after diagnosis of

ELSD and Liver Cancer.

> > >

> > > Sincerely,

> > > E. Bassett

> > >

> > >

> > > >________________________________

> > > > From: carolear1951 <Carole_ar@>

> > > >To: livercirrhosissupport

> > > >Sent: Saturday, February 18, 2012 1:12 PM

> > > >Subject: Horrible way to die????

> > > >

> > > >

> > > > 

> > > >I hope I don't upset anyone with this topic. I think it is on most of

our minds.

> > > >I have read the messages and files and websites.

> > > >Originally somewhere, that this was not a terrible way to die.

> > > >After all my searching I now think it is slow torture and agony for the

diseased person and hurts your family horribly. I have 22 Grandkids and seeing

me slowly die and be in pain is not a way I want to be remembered.

> > > >I don't know what choices I have..but my future won't be something I

look forward too.

> > > >

> > > >Carole

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> > >

Link to comment
Share on other sites

Yes they are very young. I have 3 wonderful babies. is 14, 15 in July.

Jake is 6, Kaidee use 5 (in 1 week)!

> > >

> > > I don't know if this is comforting, but it is something my father eluded

to in the months before his passing.  He kept bringing up the good times, the

good memories, trying to help us focus on that while the disease gripped

him.  I was constantly flooding him with pictures of all of us (past and

present) and we would always talk about " remember this " and " remember that " > 

I tell you what, even after I saw the progression of his disease and was there

whenever he took his last breath, whenever my mind starts to think about those

times - something that he said about " remember the time you put that fishing

hook through my shirt while casting out? " starts to move in and soften the

blow.  Whenever my mind flips to the bad memories, it always leads off on a

tangent to those conversations and I get a little teary smile.

> > >

> > > Coming at it from that sense, being a child of someone who succumbed to

the disease, my father would have kicked us out of the room for having his

grandchildren come in and say goodbye before his passing.  We wouldn't have

had it any different.  We are his family.  We love him.  We are going

through this with him but in a different position.

> > >

> > > I know there is nothing more in the world a parent wants then to provide

for their kids and grandkids, and to shelter them from the bad things that can

happen.  I understand that, but let me tell you from the other side of the

fence - I would not have done anything differently. Whether or not he would have

wanted me there from the time he was diagnosed until the time he passed, I would

be there - why? He was my dad. He loved me more than anything else, and I loved

him just as much.  

> > >

> > >

> > > If he was sick or feeling down, I was there.  I was certainly glad to

be there, doing what I could for him, because I know he wouldn't have chosen

this for anyone or himself.  If he wasn't feeling there, I sure wasn't going

to let him be down or I would listen.  Was it a bad experience?

Definitely.  Would I do the same things over again? Yes.  He's my

father.  I know he was scared, sick, and worried about us more than himself,

and the last thing he needed was to worry about us.  I think that's natural

as a parent though because I would feel the same for my daughter.  I am glad

I was there for him until the bitter end because I know how tiring, scarey, and

flat out devastating it can be.  He was worried about being a burden.  He

wasn't.  Not all, the biggest burden would have been staying away.

> > >

> > >  

> > > I don't know if this is comforting, but I hope it is even just a

little.  My father passed May 5, 2011, about 2.5 months after diagnosis of

ELSD and Liver Cancer.

> > >

> > > Sincerely,

> > > E. Bassett

> > >

> > >

> > > >________________________________

> > > > From: carolear1951 <Carole_ar@>

> > > >To: livercirrhosissupport

> > > >Sent: Saturday, February 18, 2012 1:12 PM

> > > >Subject: Horrible way to die????

> > > >

> > > >

> > > > 

> > > >I hope I don't upset anyone with this topic. I think it is on most of

our minds.

> > > >I have read the messages and files and websites.

> > > >Originally somewhere, that this was not a terrible way to die.

> > > >After all my searching I now think it is slow torture and agony for the

diseased person and hurts your family horribly. I have 22 Grandkids and seeing

me slowly die and be in pain is not a way I want to be remembered.

> > > >I don't know what choices I have..but my future won't be something I

look forward too.

> > > >

> > > >Carole

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> > >

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Share on other sites

Kim,

I cannot say anything other than *hug*.  I know there's nothing I can say that

will instantly fix or change anything - but I wish I could hug you and your

kids. 

Spend as much time you can as a family (I know that be hard right now). I might

make a suggestion and ask your husband if he's able to write each child a letter

about the things that made them the happiest, memorable things, how much he

loves each one.  I mean, if he's able to.  My dad told me a few days before he

passed that he wished he had done that for us or at least the grandkids.  He

had also had wanted to take a video but it got a little tough. 

I have one of those bedtime stories that you record your voice to play as the

pages turn.  My sister in law gave it to my daughter for her first birthday. 

My mom and my dad both took turns reading the pages while they were recording

for my daughter (who is just now 2).  My dad ended the story telling her how

much he loved her and I am so glad we have that.  I have a bunch of guilt still

about living in Houston and my family living in Tulsa and how my daughter who

was only just over a year old whenever he passed not getting to spend a lot of

time with him whenever he was well. I am so glad she has that.  I can't listen

to it just yet, but I am glad she has that so she has a little piece of him in

addition to pictures of them being together.

Again *hugs*. You're a very strong and encouraging woman. 

 

Sincerely,

E. Bassett

>________________________________

>

>To: livercirrhosissupport

>Sent: Monday, February 20, 2012 11:40 PM

>Subject: Re: Horrible way to die????

>

>

> 

>

>Yes they are very young. I have 3 wonderful babies. is 14, 15 in July.

Jake is 6, Kaidee use 5 (in 1 week)!

>

>

>> > >

>> > > I don't know if this is comforting, but it is something my father eluded

to in the months before his passing.  He kept bringing up the good

times, the good memories, trying to help us focus on that while the disease

gripped him.  I was constantly flooding him with pictures of all of us

(past and present) and we would always talk about " remember this " and " remember

that " >  I tell you what, even after I saw the progression of his disease

and was there whenever he took his last breath, whenever my mind starts to think

about those times - something that he said about " remember the time you put that

fishing hook through my shirt while casting out? " starts to move in and soften

the blow.  Whenever my mind flips to the bad memories, it always leads

off on a tangent to those conversations and I get a little teary smile.

>> > >

>> > > Coming at it from that sense, being a child of someone who succumbed to

the disease, my father would have kicked us out of the room for having his

grandchildren come in and say goodbye before his passing.  We wouldn't

have had it any different.  We are his family.  We love

him.  We are going through this with him but in a different position.

>> > >

>> > > I know there is nothing more in the world a parent wants then to provide

for their kids and grandkids, and to shelter them from the bad things that can

happen.  I understand that, but let me tell you from the other side of

the fence - I would not have done anything differently. Whether or not he would

have wanted me there from the time he was diagnosed until the time he passed, I

would be there - why? He was my dad. He loved me more than anything else, and I

loved him just as much.  

>> > >

>> > >

>> > > If he was sick or feeling down, I was there.  I was certainly

glad to be there, doing what I could for him, because I know he wouldn't have

chosen this for anyone or himself.  If he wasn't feeling there, I sure

wasn't going to let him be down or I would listen.  Was it a bad

experience? Definitely.  Would I do the same things over again?

Yes.  He's my father.  I know he was scared, sick, and worried

about us more than himself, and the last thing he needed was to worry about

us.  I think that's natural as a parent though because I would feel the

same for my daughter.  I am glad I was there for him until the bitter

end because I know how tiring, scarey, and flat out devastating it can

be.  He was worried about being a burden.  He wasn't. 

Not all, the biggest burden would have been staying away.

>> > >

>> > >  

>> > > I don't know if this is comforting, but I hope it is even just a

little.  My father passed May 5, 2011, about 2.5 months after diagnosis

of ELSD and Liver Cancer.

>> > >

>> > > Sincerely,

>> > > E. Bassett

>> > >

>> > >

>> > > >________________________________

>> > > > From: carolear1951 <Carole_ar@>

>> > > >To: livercirrhosissupport

>> > > >Sent: Saturday, February 18, 2012 1:12 PM

>> > > >Subject: Horrible way to die????

>> > > >

>> > > >

>> > > > 

>> > > >I hope I don't upset anyone with this topic. I think it is on most of

our minds.

>> > > >I have read the messages and files and websites.

>> > > >Originally somewhere, that this was not a terrible way to die.

>> > > >After all my searching I now think it is slow torture and agony for the

diseased person and hurts your family horribly. I have 22 Grandkids and seeing

me slowly die and be in pain is not a way I want to be remembered.

>> > > >I don't know what choices I have..but my future won't be something I

look forward too.

>> > > >

>> > > >Carole

>> > > >

>> > > >

>> > > >

>> > > >

>> > > >

>> > >

>> > >

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Share on other sites

Kim

Please don't try to hit me, but there is a phrase I've heard for many many

years.  God never gives you anything that you can't handle!!  I know how trite

it sounds coming from someone else.  Many times in the past 3 yrs particularly,

I would look up and ask " are you sure you have the right person " or maybe " you

must have had me confused with someone who is strong " . 

Fortunately, and it's all my Creator's doing, I'm enjoying my good health right

now.  I've had to say to some friends, I'm the healthiest looking terminal

cancer patient, you will probably ever see.  My spiritual faith keeps me away

from negative places or people.  So, I'm definitely being cared for.

________________________________

 

Kim,

I cannot say anything other than *hug*.  I know there's nothing I can say that

will instantly fix or change anything - but I wish I could hug you and your

kids. 

Spend as much time you can as a family (I know that be hard right now). I might

make a suggestion and ask your husband if he's able to write each child a letter

about the things that made them the happiest, memorable things, how much he

loves each one.  I mean, if he's able to.  My dad told me a few days before he

passed that he wished he had done that for us or at least the grandkids.  He

had also had wanted to take a video but it got a little tough. 

I have one of those bedtime stories that you record your voice to play as the

pages turn.  My sister in law gave it to my daughter for her first birthday. 

My mom and my dad both took turns reading the pages while they were recording

for my daughter (who is just now 2).  My dad ended the story telling her how

much he loved her and I am so glad we have that.  I have a bunch of guilt still

about living in Houston and my family living in Tulsa and how my daughter who

was only just over a year old whenever he passed not getting to spend a lot of

time with him whenever he was well. I am so glad she has that.  I can't listen

to it just yet, but I am glad she has that so she has a little piece of him in

addition to pictures of them being together.

Again *hugs*. You're a very strong and encouraging woman. 

 

Sincerely,

E. Bassett

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Share on other sites

I like this ..I lean on God for everything he really has helped me through this

Annie

> To: livercirrhosissupport

> From: gadamscan@...

> Date: Tue, 21 Feb 2012 19:36:38 -0800

> Subject: Re: Horrible way to die????

>

> Kim

>

> Please don't try to hit me, but there is a phrase I've heard for many many

years. God never gives you anything that you can't handle!! I know how trite

it sounds coming from someone else. Many times in the past 3 yrs particularly,

I would look up and ask " are you sure you have the right person " or maybe " you

must have had me confused with someone who is strong " .

>

>

> Fortunately, and it's all my Creator's doing, I'm enjoying my good health

right now. I've had to say to some friends, I'm the healthiest looking terminal

cancer patient, you will probably ever see. My spiritual faith keeps me away

from negative places or people. So, I'm definitely being cared for.

>

>

>

> ________________________________

>

>

>

>

> Kim,

>

> I cannot say anything other than *hug*. I know there's nothing I can say that

will instantly fix or change anything - but I wish I could hug you and your

kids.

>

> Spend as much time you can as a family (I know that be hard right now). I

might make a suggestion and ask your husband if he's able to write each child a

letter about the things that made them the happiest, memorable things, how much

he loves each one. I mean, if he's able to. My dad told me a few days before

he passed that he wished he had done that for us or at least the grandkids. He

had also had wanted to take a video but it got a little tough.

>

> I have one of those bedtime stories that you record your voice to play as the

pages turn. My sister in law gave it to my daughter for her first birthday. My

mom and my dad both took turns reading the pages while they were recording for

my daughter (who is just now 2). My dad ended the story telling her how much he

loved her and I am so glad we have that. I have a bunch of guilt still about

living in Houston and my family living in Tulsa and how my daughter who was only

just over a year old whenever he passed not getting to spend a lot of time with

him whenever he was well. I am so glad she has that. I can't listen to it just

yet, but I am glad she has that so she has a little piece of him in addition to

pictures of them being together.

>

> Again *hugs*. You're a very strong and encouraging woman.

>

>

> Sincerely,

> E. Bassett

>

>

>

>

Link to comment
Share on other sites

Gloria,

I would NEVER...you are just too dang far! LOL, just kidding.

I appreciate the sentiment in your words and i thank you for the kindness.

>

> Kim

>

> Please don't try to hit me, but there is a phrase I've heard for many many

years.  God never gives you anything that you can't handle!!  I know how trite

it sounds coming from someone else.  Many times in the past 3 yrs particularly,

I would look up and ask " are you sure you have the right person " or maybe " you

must have had me confused with someone who is strong " . 

>

>

> Fortunately, and it's all my Creator's doing, I'm enjoying my good health

right now.  I've had to say to some friends, I'm the healthiest looking

terminal cancer patient, you will probably ever see.  My spiritual faith keeps

me away from negative places or people.  So, I'm definitely being cared for.

>

>

>

> ________________________________

>

>

>

>  

> Kim,

>

> I cannot say anything other than *hug*.  I know there's nothing I can say

that will instantly fix or change anything - but I wish I could hug you and your

kids. 

>

> Spend as much time you can as a family (I know that be hard right now). I

might make a suggestion and ask your husband if he's able to write each child a

letter about the things that made them the happiest, memorable things, how much

he loves each one.  I mean, if he's able to.  My dad told me a few days before

he passed that he wished he had done that for us or at least the grandkids.  He

had also had wanted to take a video but it got a little tough. 

>

> I have one of those bedtime stories that you record your voice to play as the

pages turn.  My sister in law gave it to my daughter for her first birthday. 

My mom and my dad both took turns reading the pages while they were recording

for my daughter (who is just now 2).  My dad ended the story telling her how

much he loved her and I am so glad we have that.  I have a bunch of guilt still

about living in Houston and my family living in Tulsa and how my daughter who

was only just over a year old whenever he passed not getting to spend a lot of

time with him whenever he was well. I am so glad she has that.  I can't listen

to it just yet, but I am glad she has that so she has a little piece of him in

addition to pictures of them being together.

>

> Again *hugs*. You're a very strong and encouraging woman. 

>

>  

> Sincerely,

> E. Bassett

>

>

>

>

Link to comment
Share on other sites

that is so true .i know he has a plan for for me i have to just keep my faith

there is a reason .he had the plan to get me sober so i can try to get thru my

dease of cirrhosis.

bev

________________________________

To: liver cirrhosis support <livercirrhosissupport >

Sent: Tuesday, February 21, 2012 7:40 PM

Subject: RE: Horrible way to die????

 

I like this ..I lean on God for everything he really has helped me through this

Annie

> To: livercirrhosissupport

> From: gadamscan@...

> Date: Tue, 21 Feb 2012 19:36:38 -0800

> Subject: Re: Horrible way to die????

>

> Kim

>

> Please don't try to hit me, but there is a phrase I've heard for many many

years. God never gives you anything that you can't handle!! I know how trite

it sounds coming from someone else. Many times in the past 3 yrs particularly,

I would look up and ask " are you sure you have the right person " or maybe " you

must have had me confused with someone who is strong " .

>

>

> Fortunately, and it's all my Creator's doing, I'm enjoying my good health

right now. I've had to say to some friends, I'm the healthiest looking terminal

cancer patient, you will probably ever see. My spiritual faith keeps me away

from negative places or people. So, I'm definitely being cared for.

>

>

>

> ________________________________

>

>

>

>

> Kim,

>

> I cannot say anything other than *hug*. I know there's nothing I can say that

will instantly fix or change anything - but I wish I could hug you and your

kids.

>

> Spend as much time you can as a family (I know that be hard right now). I

might make a suggestion and ask your husband if he's able to write each child a

letter about the things that made them the happiest, memorable things, how much

he loves each one. I mean, if he's able to. My dad told me a few days before

he passed that he wished he had done that for us or at least the grandkids. He

had also had wanted to take a video but it got a little tough.

>

> I have one of those bedtime stories that you record your voice to play as the

pages turn. My sister in law gave it to my daughter for her first birthday. My

mom and my dad both took turns reading the pages while they were recording for

my daughter (who is just now 2). My dad ended the story telling her how much he

loved her and I am so glad we have that. I have a bunch of guilt still about

living in Houston and my family living in Tulsa and how my daughter who was only

just over a year old whenever he passed not getting to spend a lot of time with

him whenever he was well. I am so glad she has that. I can't listen to it just

yet, but I am glad she has that so she has a little piece of him in addition to

pictures of them being together.

>

> Again *hugs*. You're a very strong and encouraging woman.

>

>

> Sincerely,

> E. Bassett

>

>

>

>

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Share on other sites

Bev

Mine is a spiritual Creator; but no matter, it's  a Higher Power.  I started

hanging on my Creator right after I began the trial for the Hep C drugs that are

now on the market in the States; but  not in Canada yet.  Makes me sooo

angry.  There are people out there that are suffering very bad with liver

damage.  But, these crackpots still need to feel important and have it mired in

red tape.  Actually, they are hoping that the feds will anti up some of the

debt with the new drugs.

Today and since 2009, I do not have Hep C!!  However, the cirrhosis left an

extra package - liver cancer. I did have a resection but less than 18 months

later, the tumors are back.  Now, something happened before I learned about the

cancer this 2nd time.  I had forgotten that I'm absolutely batty with Yanni

music.  I was led to it again and I downloaded anything I could find.  Playing

it, I get to a real serene and comfortable place..When I  felt the awe, I went

back even just 3 yrs and looked at all that happened, in my life.

Then I knew without a shadow of doubt, that my life has been directed.  Even if

it was negative.  By 2004 (1st treatment) I was getting the meout of my way. 

Even now, you would think that I could reasonably count on dying from my sick

liver; but, whose to say the Creator has something else.  Don't know and don't

ask!!!

________________________________

 

that is so true .i know he has a plan for for me i have to just keep my faith

there is a reason .he had the plan to get me sober so i can try to get thru my

dease of cirrhosis.

bev

________________________________

 

I like this ..I lean on God for everything he really has helped me through this

Annie

> To: livercirrhosissupport

> From: gadamscan@...

> Date: Tue, 21 Feb 2012 19:36:38 -0800

> Subject: Re: Horrible way to die????

>

> Kim

>

> Please don't try to hit me, but there is a phrase I've heard for many many

years. God never gives you anything that you can't handle!! I know how trite

it sounds coming from someone else. Many times in the past 3 yrs particularly,

I would look up and ask " are you sure you have the right person " or maybe " you

must have had me confused with someone who is strong " .

>

>

> Fortunately, and it's all my Creator's doing, I'm enjoying my good health

right now. I've had to say to some friends, I'm the healthiest looking terminal

cancer patient, you will probably ever see. My spiritual faith keeps me away

from negative places or people. So, I'm definitely being cared for.

>

>

>

> ________________________________

>

>

>

>

> Kim,

>

> I cannot say anything other than *hug*. I know there's nothing I can say that

will instantly fix or change anything - but I wish I could hug you and your

kids.

>

> Spend as much time you can as a family (I know that be hard right now). I

might make a suggestion and ask your husband if he's able to write each child a

letter about the things that made them the happiest, memorable things, how much

he loves each one. I mean, if he's able to. My dad told me a few days before

he passed that he wished he had done that for us or at least the grandkids. He

had also had wanted to take a video but it got a little tough.

>

> I have one of those bedtime stories that you record your voice to play as the

pages turn. My sister in law gave it to my daughter for her first birthday. My

mom and my dad both took turns reading the pages while they were recording for

my daughter (who is just now 2). My dad ended the story telling her how much he

loved her and I am so glad we have that. I have a bunch of guilt still about

living in Houston and my family living in Tulsa and how my daughter who was only

just over a year old whenever he passed not getting to spend a lot of time with

him whenever he was well. I am so glad she has that. I can't listen to it just

yet, but I am glad she has that so she has a little piece of him in addition to

pictures of them being together.

>

> Again *hugs*. You're a very strong and encouraging woman.

>

>

> Sincerely,

> E. Bassett

>

>

>

>

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Share on other sites

Guest guest

Carole, I agree with you. I don't want to die of the liver problems.

Not that I mind dying, just not the undignified way the liver causes.

I am hoping to die of a silent heart attack in the middle of the

night. However, ironically, I still take as good care of my heart as

I can, and after much treatment is in very good working order. As for

choices, the only one I really see is how I will handle whatever

comes. I hope I can do it with dignity, did I just say that? You

see, I told our pastor's husband that I hope to die laughing, and he

said that knowing me, he is sure I will if I am conscious. But,

regardless of how our body dies, our spirit is a separate thing and

that is the dying I am more concerned about. Maybe where you read

that it wasn't a terrible way to die is one of the places where they

were discussing hepatic encephalopathy, and then the patient can slip

into a coma. They know nothing, so no torture for them. But as you

said there are still the grandchildren, etc. I don't remember how

long you have been aware of your condition, but with time, we can

adjust to it, not totally of course, but somewhat. It is certainly

shocking when we first find out. Jan

> I hope I don't upset anyone with this topic.  I think it is on most of our

minds.

> I have read the messages and files and websites.

> Originally somewhere, that this was not a terrible way to die.

> After all my searching I now think it is slow torture and agony for the

diseased person and hurts your family horribly.  I have 22 Grandkids and seeing

me slowly die and be in pain is not a way I want to be remembered.

> I don't know what choices I have..but my future won't  be something I look

forward too.

>

> Carole

>

>

>

> ------------------------------------

>

> Group Email:    livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

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Guest guest

I think there is a part of that phrase, maybe not in the original, but

certainly is there, that we don't usually say. God is there to help

us handle what we need to handle. That is why we can handle whatever

he gives us. There is another one similar, can't say it word for

word, but something about God refining us to purest gold. I must have

had a lot of impurities in me, and I am sure he isn't done yet. I

have asked a similar question, why do I need to learn to handle so

much, and why do I need so much refining. But have learned to accept

it, and eventually realize it was for my own good. Handling makes us

stronger, we don't have to be strong to start with. Jan

> Kim

>

> Please don't try to hit me, but there is a phrase I've heard for many many

years.  God never gives you anything that you can't handle!!  I know how trite

it sounds coming from someone else.  Many times in the past 3 yrs particularly,

I would look up and ask " are you sure you have the right person " or maybe " you

must have had me confused with someone who is strong " .

>

>

> Fortunately, and it's all my Creator's doing, I'm enjoying my good health

right now.  I've had to say to some friends, I'm the healthiest looking terminal

cancer patient, you will probably ever see.  My spiritual faith keeps me away

from negative places or people.  So, I'm definitely being cared for.

>

>

>

> ________________________________

>

>

>

>

> Kim,

>

> I cannot say anything other than *hug*.  I know there's nothing I can say that

will instantly fix or change anything - but I wish I could hug you and your

kids.

>

> Spend as much time you can as a family (I know that be hard right now). I

might make a suggestion and ask your husband if he's able to write each child a

letter about the things that made them the happiest, memorable things, how much

he loves each one.  I mean, if he's able to.  My dad told me a few days before

he passed that he wished he had done that for us or at least the grandkids.  He

had also had wanted to take a video but it got a little tough.

>

> I have one of those bedtime stories that you record your voice to play as the

pages turn.  My sister in law gave it to my daughter for her first birthday.  My

mom and my dad both took turns reading the pages while they were recording for

my daughter (who is just now 2).  My dad ended the story telling her how much he

loved her and I am so glad we have that.  I have a bunch of guilt still about

living in Houston and my family living in Tulsa and how my daughter who was only

just over a year old whenever he passed not getting to spend a lot of time with

him whenever he was well. I am so glad she has that.  I can't listen to it just

yet, but I am glad she has that so she has a little piece of him in addition to

pictures of them being together.

>

> Again *hugs*. You're a very strong and encouraging woman.

>

>

> Sincerely,

> E. Bassett

>

>

>

>

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Share on other sites

Guest guest

I worry that I will still be talking when my time is up!!  I've talked too much

since I was a baby, so I can only believe it might be the same at the end.  In

fact, any time I am put under, I'm still talking when flash, I'm unaware.  The

last time was when I was getting an endoscopy.  It was extremely weird because

I had no idea I would go under.  I didn't see the Gastro that was doing the

scope until a couple of hours later.  Yup, that is exactly the way that I want

to go, give me a shot and I'm gone.

Just recently, I've been in contact with a friend that was just diagnosed with

lung cancer.  In one of his emails, he said he always knew that he would go due

to drugs; but, never imagined it would be the ones in a hospital.

________________________________

 

Carole, I agree with you. I don't want to die of the liver problems.

Not that I mind dying, just not the undignified way the liver causes.

I am hoping to die of a silent heart attack in the middle of the

night. However, ironically, I still take as good care of my heart as

I can, and after much treatment is in very good working order. As for

choices, the only one I really see is how I will handle whatever

comes. I hope I can do it with dignity, did I just say that? You

see, I told our pastor's husband that I hope to die laughing, and he

said that knowing me, he is sure I will if I am conscious. But,

regardless of how our body dies, our spirit is a separate thing and

that is the dying I am more concerned about. Maybe where you read

that it wasn't a terrible way to die is one of the places where they

were discussing hepatic encephalopathy, and then the patient can slip

into a coma. They know nothing, so no torture for them. But as you

said there are still the grandchildren, etc. I don't remember how

long you have been aware of your condition, but with time, we can

adjust to it, not totally of course, but somewhat. It is certainly

shocking when we first find out. Jan

> I hope I don't upset anyone with this topic.  I think it is on most of our

minds.

> I have read the messages and files and websites.

> Originally somewhere, that this was not a terrible way to die.

> After all my searching I now think it is slow torture and agony for the

diseased person and hurts your family horribly.  I have 22 Grandkids and seeing

me slowly die and be in pain is not a way I want to be remembered.

> I don't know what choices I have..but my future won't  be something I look

forward too.

>

> Carole

>

>

>

> ------------------------------------

>

> Group Email:    livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

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Share on other sites

Guest guest

Hi Jan

I think God is just taking all the rough spots off of us.  When we get to

heaven all the shine of gold will come through.  Won't it be nice to be free of

all pain and sickness?

Z

________________________________

To: livercirrhosissupport

Sent: Friday, March 2, 2012 10:50:32 PM

Subject: Re: Horrible way to die????

 

I think there is a part of that phrase, maybe not in the original, but

certainly is there, that we don't usually say. God is there to help

us handle what we need to handle. That is why we can handle whatever

he gives us. There is another one similar, can't say it word for

word, but something about God refining us to purest gold. I must have

had a lot of impurities in me, and I am sure he isn't done yet. I

have asked a similar question, why do I need to learn to handle so

much, and why do I need so much refining. But have learned to accept

it, and eventually realize it was for my own good. Handling makes us

stronger, we don't have to be strong to start with. Jan

> Kim

>

> Please don't try to hit me, but there is a phrase I've heard for many many

years.  God never gives you anything that you can't handle!!  I know how trite

it sounds coming from someone else.  Many times in the past 3 yrs particularly,

I would look up and ask " are you sure you have the right person " or maybe " you

must have had me confused with someone who is strong " .

>

>

> Fortunately, and it's all my Creator's doing, I'm enjoying my good health

right now.  I've had to say to some friends, I'm the healthiest looking

terminal cancer patient, you will probably ever see.  My spiritual faith keeps

me away from negative places or people.  So, I'm definitely being cared for.

>

>

>

> ________________________________

>

>

>

>

> Kim,

>

> I cannot say anything other than *hug*.  I know there's nothing I can say

that will instantly fix or change anything - but I wish I could hug you and your

kids.

>

> Spend as much time you can as a family (I know that be hard right now). I

might make a suggestion and ask your husband if he's able to write each child a

letter about the things that made them the happiest, memorable things, how much

he loves each one.  I mean, if he's able to.  My dad told me a few days before

he passed that he wished he had done that for us or at least the grandkids.  He

had also had wanted to take a video but it got a little tough.

>

> I have one of those bedtime stories that you record your voice to play as the

pages turn.  My sister in law gave it to my daughter for her first birthday. 

My mom and my dad both took turns reading the pages while they were recording

for my daughter (who is just now 2).  My dad ended the story telling her how

much he loved her and I am so glad we have that.  I have a bunch of guilt still

about living in Houston and my family living in Tulsa and how my daughter who

was only just over a year old whenever he passed not getting to spend a lot of

time with him whenever he was well. I am so glad she has that.  I can't listen

to it just yet, but I am glad she has that so she has a little piece of him in

addition to pictures of them being together.

>

> Again *hugs*. You're a very strong and encouraging woman.

>

>

> Sincerely,

> E. Bassett

>

>

>

>

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Share on other sites

Guest guest

, yes it will be wonderful in heaven. But, I really didn't think

I had quite so many rough spots. lol well, live and learn Jan

> Hi Jan

>

> I think God is just taking all the rough spots off of us.  When we get to

heaven all the shine of gold will come through.  Won't it be nice to be free of

all pain and sickness?

>

> Z

>

>

>

> ________________________________

>  

> To: livercirrhosissupport

> Sent: Friday, March 2, 2012 10:50:32 PM

> Subject: Re: Horrible way to die????

>

>

>

> I think there is a part of that phrase, maybe not in the original, but

> certainly is there, that we don't usually say.  God is there to help

> us handle what we need to handle.  That is why we can handle whatever

> he gives us.  There is another one similar, can't say it word for

> word, but something about God refining us to purest gold.  I must have

> had a lot of impurities in me, and I am sure he isn't done yet.  I

> have asked a similar question, why do I need to learn to handle so

> much, and why do I need so much refining.  But have learned to accept

> it, and eventually realize it was for my own good.  Handling makes us

> stronger, we don't have to be strong to start with.  Jan

>

>

>> Kim

>>

>> Please don't try to hit me, but there is a phrase I've heard for many many

years.  God never gives you anything that you can't handle!!  I know how trite

it sounds coming from someone else.  Many times in the past 3 yrs particularly,

I would look up and ask " are you sure you have the right person " or maybe " you

must have had me confused with someone who is strong " .

>>

>>

>> Fortunately, and it's all my Creator's doing, I'm enjoying my good health

right now.  I've had to say to some friends, I'm the healthiest looking terminal

cancer patient, you will probably ever see.  My spiritual faith keeps me away

from negative places or people.  So, I'm definitely being cared for.

>>

>>

>>

>> ________________________________

>>

>>

>>

>>

>> Kim,

>>

>> I cannot say anything other than *hug*.  I know there's nothing I can say

that will instantly fix or change anything - but I wish I could hug you and your

kids.

>>

>> Spend as much time you can as a family (I know that be hard right now). I

might make a suggestion and ask your husband if he's able to write each child a

letter about the things that made them the happiest, memorable things, how much

he loves each one.  I mean, if he's able to.  My dad told me a few days before

he passed that he wished he had done that for us or at least the grandkids.  He

had also had wanted to take a video but it got a little tough.

>>

>> I have one of those bedtime stories that you record your voice to play as the

pages turn.  My sister in law gave it to my daughter for her first birthday.  My

mom and my dad both took turns reading the pages while they were recording for

my daughter (who is just now 2).  My dad ended the story telling her how much he

loved her and I am so glad we have that.  I have a bunch of guilt still about

living in Houston and my family living in Tulsa and how my daughter who was only

just over a year old whenever he passed not getting to spend a lot of time with

him whenever he was well. I am so glad she has that.  I can't listen to it just

yet, but I am glad she has that so she has a little piece of him in addition to

pictures of them being together.

>>

>> Again *hugs*. You're a very strong and encouraging woman.

>>

>>

>> Sincerely,

>> E. Bassett

>>

>>

>>

>>

Link to comment
Share on other sites

Guest guest

And don't forget Footprints in the Sand and one set of prints only is because

Jesus carried him. I forgot about that!

---- Jan Holman wrote:

=============

, yes it will be wonderful in heaven. But, I really didn't think

I had quite so many rough spots. lol well, live and learn Jan

> Hi Jan

>

> I think God is just taking all the rough spots off of us.  When we get to

heaven all the shine of gold will come through.  Won't it be nice to be free of

all pain and sickness?

>

> Z

>

>

>

> ________________________________

>  

> To: livercirrhosissupport

> Sent: Friday, March 2, 2012 10:50:32 PM

> Subject: Re: Horrible way to die????

>

>

>

> I think there is a part of that phrase, maybe not in the original, but

> certainly is there, that we don't usually say.  God is there to help

> us handle what we need to handle.  That is why we can handle whatever

> he gives us.  There is another one similar, can't say it word for

> word, but something about God refining us to purest gold.  I must have

> had a lot of impurities in me, and I am sure he isn't done yet.  I

> have asked a similar question, why do I need to learn to handle so

> much, and why do I need so much refining.  But have learned to accept

> it, and eventually realize it was for my own good.  Handling makes us

> stronger, we don't have to be strong to start with.  Jan

>

>

>> Kim

>>

>> Please don't try to hit me, but there is a phrase I've heard for many many

years.  God never gives you anything that you can't handle!!  I know how trite

it sounds coming from someone else.  Many times in the past 3 yrs particularly,

I would look up and ask " are you sure you have the right person " or maybe " you

must have had me confused with someone who is strong " .

>>

>>

>> Fortunately, and it's all my Creator's doing, I'm enjoying my good health

right now.  I've had to say to some friends, I'm the healthiest looking

terminal cancer patient, you will probably ever see.  My spiritual faith keeps

me away from negative places or people.  So, I'm definitely being cared for.

>>

>>

>>

>> ________________________________

>>

>>

>>

>>

>> Kim,

>>

>> I cannot say anything other than *hug*.  I know there's nothing I can say

that will instantly fix or change anything - but I wish I could hug you and your

kids.

>>

>> Spend as much time you can as a family (I know that be hard right now). I

might make a suggestion and ask your husband if he's able to write each child a

letter about the things that made them the happiest, memorable things, how much

he loves each one.  I mean, if he's able to.  My dad told me a few days before

he passed that he wished he had done that for us or at least the grandkids.  He

had also had wanted to take a video but it got a little tough.

>>

>> I have one of those bedtime stories that you record your voice to play as the

pages turn.  My sister in law gave it to my daughter for her first birthday. 

My mom and my dad both took turns reading the pages while they were recording

for my daughter (who is just now 2).  My dad ended the story telling her how

much he loved her and I am so glad we have that.  I have a bunch of guilt still

about living in Houston and my family living in Tulsa and how my daughter who

was only just over a year old whenever he passed not getting to spend a lot of

time with him whenever he was well. I am so glad she has that.  I can't listen

to it just yet, but I am glad she has that so she has a little piece of him in

addition to pictures of them being together.

>>

>> Again *hugs*. You're a very strong and encouraging woman.

>>

>>

>> Sincerely,

>> E. Bassett

>>

>>

>>

>>

Link to comment
Share on other sites

Guest guest

LOL!!!

________________________________

To: livercirrhosissupport

Sent: Monday, March 5, 2012 10:28:40 PM

Subject: Re: Horrible way to die????

 

, yes it will be wonderful in heaven. But, I really didn't think

I had quite so many rough spots. lol well, live and learn Jan

> Hi Jan

>

> I think God is just taking all the rough spots off of us.  When we get to

heaven all the shine of gold will come through.  Won't it be nice to be free of

all pain and sickness?

>

> Z

>

>

>

> ________________________________

>  

> To: livercirrhosissupport

> Sent: Friday, March 2, 2012 10:50:32 PM

> Subject: Re: Horrible way to die????

>

>

>

> I think there is a part of that phrase, maybe not in the original, but

> certainly is there, that we don't usually say.  God is there to help

> us handle what we need to handle.  That is why we can handle whatever

> he gives us.  There is another one similar, can't say it word for

> word, but something about God refining us to purest gold.  I must have

> had a lot of impurities in me, and I am sure he isn't done yet.  I

> have asked a similar question, why do I need to learn to handle so

> much, and why do I need so much refining.  But have learned to accept

> it, and eventually realize it was for my own good.  Handling makes us

> stronger, we don't have to be strong to start with.  Jan

>

>

>> Kim

>>

>> Please don't try to hit me, but there is a phrase I've heard for many many

years.  God never gives you anything that you can't handle!!  I know how trite

it sounds coming from someone else.  Many times in the past 3 yrs particularly,

I would look up and ask " are you sure you have the right person " or maybe " you

must have had me confused with someone who is strong " .

>>

>>

>> Fortunately, and it's all my Creator's doing, I'm enjoying my good health

right now.  I've had to say to some friends, I'm the healthiest looking

terminal cancer patient, you will probably ever see.  My spiritual faith keeps

me away from negative places or people.  So, I'm definitely being cared for.

>>

>>

>>

>> ________________________________

>>

>>

>>

>>

>> Kim,

>>

>> I cannot say anything other than *hug*.  I know there's nothing I can say

that will instantly fix or change anything - but I wish I could hug you and your

kids.

>>

>> Spend as much time you can as a family (I know that be hard right now). I

might make a suggestion and ask your husband if he's able to write each child a

letter about the things that made them the happiest, memorable things, how much

he loves each one.  I mean, if he's able to.  My dad told me a few days before

he passed that he wished he had done that for us or at least the grandkids.  He

had also had wanted to take a video but it got a little tough.

>>

>> I have one of those bedtime stories that you record your voice to play as the

pages turn.  My sister in law gave it to my daughter for her first birthday. 

My mom and my dad both took turns reading the pages while they were recording

for my daughter (who is just now 2).  My dad ended the story telling her how

much he loved her and I am so glad we have that.  I have a bunch of guilt still

about living in Houston and my family living in Tulsa and how my daughter who

was only just over a year old whenever he passed not getting to spend a lot of

time with him whenever he was well. I am so glad she has that.  I can't listen

to it just yet, but I am glad she has that so she has a little piece of him in

addition to pictures of them being together.

>>

>> Again *hugs*. You're a very strong and encouraging woman.

>>

>>

>> Sincerely,

>> E. Bassett

>>

>>

>>

>>

Link to comment
Share on other sites

Guest guest

AMEN

 

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Tuesday, March 6, 2012 12:56 PM

Subject: Re: Horrible way to die????

 

LOL!!!

________________________________

To: livercirrhosissupport

Sent: Monday, March 5, 2012 10:28:40 PM

Subject: Re: Horrible way to die????

 

, yes it will be wonderful in heaven. But, I really didn't think

I had quite so many rough spots. lol well, live and learn Jan

> Hi Jan

>

> I think God is just taking all the rough spots off of us.  When we get to

heaven all the shine of gold will come through.  Won't it be nice to be free of

all pain and sickness?

>

> Z

>

>

>

> ________________________________

>  

> To: livercirrhosissupport

> Sent: Friday, March 2, 2012 10:50:32 PM

> Subject: Re: Horrible way to die????

>

>

>

> I think there is a part of that phrase, maybe not in the original, but

> certainly is there, that we don't usually say.  God is there to help

> us handle what we need to handle.  That is why we can handle whatever

> he gives us.  There is another one similar, can't say it word for

> word, but something about God refining us to purest gold.  I must have

> had a lot of impurities in me, and I am sure he isn't done yet.  I

> have asked a similar question, why do I need to learn to handle so

> much, and why do I need so much refining.  But have learned to accept

> it, and eventually realize it was for my own good.  Handling makes us

> stronger, we don't have to be strong to start with.  Jan

>

>

>> Kim

>>

>> Please don't try to hit me, but there is a phrase I've heard for many many

years.  God never gives you anything that you can't handle!!  I know how trite

it sounds coming from someone else.  Many times in the past 3 yrs particularly,

I would look up and ask " are you sure you have the right person " or maybe " you

must have had me confused with someone who is strong " .

>>

>>

>> Fortunately, and it's all my Creator's doing, I'm enjoying my good health

right now.  I've had to say to some friends, I'm the healthiest looking

terminal cancer patient, you will probably ever see.  My spiritual faith keeps

me away from negative places or people.  So, I'm definitely being cared for.

>>

>>

>>

>> ________________________________

>>

>>

>>

>>

>> Kim,

>>

>> I cannot say anything other than *hug*.  I know there's nothing I can say

that will instantly fix or change anything - but I wish I could hug you and your

kids.

>>

>> Spend as much time you can as a family (I know that be hard right now). I

might make a suggestion and ask your husband if he's able to write each child a

letter about the things that made them the happiest, memorable things, how much

he loves each one.  I mean, if he's able to.  My dad told me a few days before

he passed that he wished he had done that for us or at least the grandkids.  He

had also had wanted to take a video but it got a little tough.

>>

>> I have one of those bedtime stories that you record your voice to play as the

pages turn.  My sister in law gave it to my daughter for her first birthday. 

My mom and my dad both took turns reading the pages while they were recording

for my daughter (who is just now 2).  My dad ended the story telling her how

much he loved her and I am so glad we have that.  I have a bunch of guilt still

about living in Houston and my family living in Tulsa and how my daughter who

was only just over a year old whenever he passed not getting to spend a lot of

time with him whenever he was well. I am so glad she has that.  I can't listen

to it just yet, but I am glad she has that so she has a little piece of him in

addition to pictures of them being together.

>>

>> Again *hugs*. You're a very strong and encouraging woman.

>>

>>

>> Sincerely,

>> E. Bassett

>>

>>

>>

>>

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