Guest guest Posted February 18, 2012 Report Share Posted February 18, 2012 I don't know if this is comforting, but it is something my father eluded to in the months before his passing. He kept bringing up the good times, the good memories, trying to help us focus on that while the disease gripped him. I was constantly flooding him with pictures of all of us (past and present) and we would always talk about " remember this " and " remember that " > I tell you what, even after I saw the progression of his disease and was there whenever he took his last breath, whenever my mind starts to think about those times - something that he said about " remember the time you put that fishing hook through my shirt while casting out? " starts to move in and soften the blow. Whenever my mind flips to the bad memories, it always leads off on a tangent to those conversations and I get a little teary smile. Coming at it from that sense, being a child of someone who succumbed to the disease, my father would have kicked us out of the room for having his grandchildren come in and say goodbye before his passing. We wouldn't have had it any different. We are his family. We love him. We are going through this with him but in a different position. I know there is nothing more in the world a parent wants then to provide for their kids and grandkids, and to shelter them from the bad things that can happen. I understand that, but let me tell you from the other side of the fence - I would not have done anything differently. Whether or not he would have wanted me there from the time he was diagnosed until the time he passed, I would be there - why? He was my dad. He loved me more than anything else, and I loved him just as much.  If he was sick or feeling down, I was there. I was certainly glad to be there, doing what I could for him, because I know he wouldn't have chosen this for anyone or himself. If he wasn't feeling there, I sure wasn't going to let him be down or I would listen. Was it a bad experience? Definitely. Would I do the same things over again? Yes. He's my father. I know he was scared, sick, and worried about us more than himself, and the last thing he needed was to worry about us. I think that's natural as a parent though because I would feel the same for my daughter. I am glad I was there for him until the bitter end because I know how tiring, scarey, and flat out devastating it can be. He was worried about being a burden. He wasn't. Not all, the biggest burden would have been staying away.  I don't know if this is comforting, but I hope it is even just a little. My father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver Cancer. Sincerely, E. Bassett >________________________________ > >To: livercirrhosissupport >Sent: Saturday, February 18, 2012 1:12 PM >Subject: Horrible way to die???? > > > >I hope I don't upset anyone with this topic. I think it is on most of our minds. >I have read the messages and files and websites. >Originally somewhere, that this was not a terrible way to die. >After all my searching I now think it is slow torture and agony for the diseased person and hurts your family horribly. I have 22 Grandkids and seeing me slowly die and be in pain is not a way I want to be remembered. >I don't know what choices I have..but my future won't be something I look forward too. > >Carole > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2012 Report Share Posted February 18, 2012 Thank you very much for sharing these things. In my case, I am the patient and unbelievably, both of my parents are still living. I am the eldest of 5 and the only girl. Thank heavens those brothers made up for the lack of girls; because, they all had girls and I had the only boy. Sadly, my baby brother died a year ago in January of colon cancer. It sure rocked my world and I don't know how my mother stayed so strong. So there are 2 things that I know are there; but, have no control over. That is the fact, that my parents may have to see me out of here. Then, my one and only child - Shon. Although I wanted to be here if my son ever got off his butt, found a really wonderful girl and perhaps they produced a grandchild. Ahh all pipe dreams. My Dad has beginning stages of Alzheimer disease. I believe that my mother has it as well. However, with my memory loss and brain fog, I find that I can remember things away back and don't know why; but, can't remember what I ate today. So,as long as the 3 of us can share those memories and not get upset because we all remember them differently. I'm sad though, that the plan to watch out for my parents when they needed, won't be possible now. One of my brothers that isn't too far away, will be able to look after their needs, no matter what they are. I only knew about my baby brother, for 18 days when he passed away. However, he was insisting and my Mom agreed, that we didn't need to see him like it was, at the end. Today, I'm still not sure if that was the right thing or not. I was at least respecting his wishes. But, if I had young children or grandchildren, there is no way that I would want them to see me at the end. Children need to keep their innocence for as long as possible. My son was 10 before I took him to his few funeral. You have exactly the memories that I would like to leave behind for my son. The only other thing that I wish he could understand, is my spiritual faith. That is what has kept me going for the past 3 yrs. I'm not the least afraid of dying - I'm just afraid of the pain. Gloria ________________________________  I don't know if this is comforting, but it is something my father eluded to in the months before his passing. He kept bringing up the good times, the good memories, trying to help us focus on that while the disease gripped him. I was constantly flooding him with pictures of all of us (past and present) and we would always talk about " remember this " and " remember that " > I tell you what, even after I saw the progression of his disease and was there whenever he took his last breath, whenever my mind starts to think about those times - something that he said about " remember the time you put that fishing hook through my shirt while casting out? " starts to move in and soften the blow. Whenever my mind flips to the bad memories, it always leads off on a tangent to those conversations and I get a little teary smile. Coming at it from that sense, being a child of someone who succumbed to the disease, my father would have kicked us out of the room for having his grandchildren come in and say goodbye before his passing. We wouldn't have had it any different. We are his family. We love him. We are going through this with him but in a different position. I know there is nothing more in the world a parent wants then to provide for their kids and grandkids, and to shelter them from the bad things that can happen. I understand that, but let me tell you from the other side of the fence - I would not have done anything differently. Whether or not he would have wanted me there from the time he was diagnosed until the time he passed, I would be there - why? He was my dad. He loved me more than anything else, and I loved him just as much.  If he was sick or feeling down, I was there. I was certainly glad to be there, doing what I could for him, because I know he wouldn't have chosen this for anyone or himself. If he wasn't feeling there, I sure wasn't going to let him be down or I would listen. Was it a bad experience? Definitely. Would I do the same things over again? Yes. He's my father. I know he was scared, sick, and worried about us more than himself, and the last thing he needed was to worry about us. I think that's natural as a parent though because I would feel the same for my daughter. I am glad I was there for him until the bitter end because I know how tiring, scarey, and flat out devastating it can be. He was worried about being a burden. He wasn't. Not all, the biggest burden would have been staying away.  I don't know if this is comforting, but I hope it is even just a little. My father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver Cancer. Sincerely, E. Bassett >________________________________ > >To: livercirrhosissupport >Sent: Saturday, February 18, 2012 1:12 PM >Subject: Horrible way to die???? > > > >I hope I don't upset anyone with this topic. I think it is on most of our minds. >I have read the messages and files and websites. >Originally somewhere, that this was not a terrible way to die. >After all my searching I now think it is slow torture and agony for the diseased person and hurts your family horribly. I have 22 Grandkids and seeing me slowly die and be in pain is not a way I want to be remembered. >I don't know what choices I have..but my future won't be something I look forward too. > >Carole > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2012 Report Share Posted February 20, 2012 ...We can hear your pain and your love for your Dad. You brought tears to my eyes and I thank you for sharing this with us. ________________________________ To: " livercirrhosissupport " <livercirrhosissupport > Sent: Saturday, February 18, 2012 1:47 PM Subject: Re: Horrible way to die????  I don't know if this is comforting, but it is something my father eluded to in the months before his passing. He kept bringing up the good times, the good memories, trying to help us focus on that while the disease gripped him. I was constantly flooding him with pictures of all of us (past and present) and we would always talk about " remember this " and " remember that " > I tell you what, even after I saw the progression of his disease and was there whenever he took his last breath, whenever my mind starts to think about those times - something that he said about " remember the time you put that fishing hook through my shirt while casting out? " starts to move in and soften the blow. Whenever my mind flips to the bad memories, it always leads off on a tangent to those conversations and I get a little teary smile. Coming at it from that sense, being a child of someone who succumbed to the disease, my father would have kicked us out of the room for having his grandchildren come in and say goodbye before his passing. We wouldn't have had it any different. We are his family. We love him. We are going through this with him but in a different position. I know there is nothing more in the world a parent wants then to provide for their kids and grandkids, and to shelter them from the bad things that can happen. I understand that, but let me tell you from the other side of the fence - I would not have done anything differently. Whether or not he would have wanted me there from the time he was diagnosed until the time he passed, I would be there - why? He was my dad. He loved me more than anything else, and I loved him just as much.  If he was sick or feeling down, I was there. I was certainly glad to be there, doing what I could for him, because I know he wouldn't have chosen this for anyone or himself. If he wasn't feeling there, I sure wasn't going to let him be down or I would listen. Was it a bad experience? Definitely. Would I do the same things over again? Yes. He's my father. I know he was scared, sick, and worried about us more than himself, and the last thing he needed was to worry about us. I think that's natural as a parent though because I would feel the same for my daughter. I am glad I was there for him until the bitter end because I know how tiring, scarey, and flat out devastating it can be. He was worried about being a burden. He wasn't. Not all, the biggest burden would have been staying away.  I don't know if this is comforting, but I hope it is even just a little. My father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver Cancer. Sincerely, E. Bassett >________________________________ > >To: livercirrhosissupport >Sent: Saturday, February 18, 2012 1:12 PM >Subject: Horrible way to die???? > > > >I hope I don't upset anyone with this topic. I think it is on most of our minds. >I have read the messages and files and websites. >Originally somewhere, that this was not a terrible way to die. >After all my searching I now think it is slow torture and agony for the diseased person and hurts your family horribly. I have 22 Grandkids and seeing me slowly die and be in pain is not a way I want to be remembered. >I don't know what choices I have..but my future won't be something I look forward too. > >Carole > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2012 Report Share Posted February 20, 2012 it was so touching and the kind of love I dream of. But 3 of my adult children got angry when I said no that I come first now. The 4th one just pretends its ok and the last one has moved in to help me. They will not care when I'm gone..it is grandbabies who adore me. - AMS MOONLIGHT wrote: ============= ...We can hear your pain and your love for your Dad. You brought tears to my eyes and I thank you for sharing this with us. ________________________________ To: " livercirrhosissupport " <livercirrhosissupport > Sent: Saturday, February 18, 2012 1:47 PM Subject: Re: Horrible way to die????  I don't know if this is comforting, but it is something my father eluded to in the months before his passing. He kept bringing up the good times, the good memories, trying to help us focus on that while the disease gripped him. I was constantly flooding him with pictures of all of us (past and present) and we would always talk about " remember this " and " remember that " > I tell you what, even after I saw the progression of his disease and was there whenever he took his last breath, whenever my mind starts to think about those times - something that he said about " remember the time you put that fishing hook through my shirt while casting out? " starts to move in and soften the blow. Whenever my mind flips to the bad memories, it always leads off on a tangent to those conversations and I get a little teary smile. Coming at it from that sense, being a child of someone who succumbed to the disease, my father would have kicked us out of the room for having his grandchildren come in and say goodbye before his passing. We wouldn't have had it any different. We are his family. We love him. We are going through this with him but in a different position. I know there is nothing more in the world a parent wants then to provide for their kids and grandkids, and to shelter them from the bad things that can happen. I understand that, but let me tell you from the other side of the fence - I would not have done anything differently. Whether or not he would have wanted me there from the time he was diagnosed until the time he passed, I would be there - why? He was my dad. He loved me more than anything else, and I loved him just as much.  If he was sick or feeling down, I was there. I was certainly glad to be there, doing what I could for him, because I know he wouldn't have chosen this for anyone or himself. If he wasn't feeling there, I sure wasn't going to let him be down or I would listen. Was it a bad experience? Definitely. Would I do the same things over again? Yes. He's my father. I know he was scared, sick, and worried about us more than himself, and the last thing he needed was to worry about us. I think that's natural as a parent though because I would feel the same for my daughter. I am glad I was there for him until the bitter end because I know how tiring, scarey, and flat out devastating it can be. He was worried about being a burden. He wasn't. Not all, the biggest burden would have been staying away.  I don't know if this is comforting, but I hope it is even just a little. My father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver Cancer. Sincerely, E. Bassett >________________________________ > >To: livercirrhosissupport >Sent: Saturday, February 18, 2012 1:12 PM >Subject: Horrible way to die???? > > > >I hope I don't upset anyone with this topic. I think it is on most of our minds. >I have read the messages and files and websites. >Originally somewhere, that this was not a terrible way to die. >After all my searching I now think it is slow torture and agony for the diseased person and hurts your family horribly. I have 22 Grandkids and seeing me slowly die and be in pain is not a way I want to be remembered. >I don't know what choices I have..but my future won't be something I look forward too. > >Carole > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2012 Report Share Posted February 20, 2012 , Reading your post made me a little happy. I helped my sister in law die from stage 4 breast cancer a little over a year ago. I slept in the hospital with her, I bathed her, talked to her, helped feed her, adjusted her machines and did any and everything else I could. I was away from my kids and husband all the time. I moved 8 hours from my family to help her. I never think of the sacrifices (as others call them). I simply remember how close it brought us, how it made her a little happier knowing someone cared enough. I would do every bit of it again. The thought of burden never entered my mind. It was love, everlasting and enduring and sympathetic and true. I am so glad to know there are people in the world like you. People who see all the this caregiving the way you do, as an act of love and kindness. It sparks a little hope for humanity. Kim > > I don't know if this is comforting, but it is something my father eluded to in the months before his passing. He kept bringing up the good times, the good memories, trying to help us focus on that while the disease gripped him. I was constantly flooding him with pictures of all of us (past and present) and we would always talk about " remember this " and " remember that " > I tell you what, even after I saw the progression of his disease and was there whenever he took his last breath, whenever my mind starts to think about those times - something that he said about " remember the time you put that fishing hook through my shirt while casting out? " starts to move in and soften the blow. Whenever my mind flips to the bad memories, it always leads off on a tangent to those conversations and I get a little teary smile. > > Coming at it from that sense, being a child of someone who succumbed to the disease, my father would have kicked us out of the room for having his grandchildren come in and say goodbye before his passing. We wouldn't have had it any different. We are his family. We love him. We are going through this with him but in a different position. > > I know there is nothing more in the world a parent wants then to provide for their kids and grandkids, and to shelter them from the bad things that can happen. I understand that, but let me tell you from the other side of the fence - I would not have done anything differently. Whether or not he would have wanted me there from the time he was diagnosed until the time he passed, I would be there - why? He was my dad. He loved me more than anything else, and I loved him just as much.  > > > If he was sick or feeling down, I was there. I was certainly glad to be there, doing what I could for him, because I know he wouldn't have chosen this for anyone or himself. If he wasn't feeling there, I sure wasn't going to let him be down or I would listen. Was it a bad experience? Definitely. Would I do the same things over again? Yes. He's my father. I know he was scared, sick, and worried about us more than himself, and the last thing he needed was to worry about us. I think that's natural as a parent though because I would feel the same for my daughter. I am glad I was there for him until the bitter end because I know how tiring, scarey, and flat out devastating it can be. He was worried about being a burden. He wasn't. Not all, the biggest burden would have been staying away. > >  > I don't know if this is comforting, but I hope it is even just a little. My father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver Cancer. > > Sincerely, > E. Bassett > > > >________________________________ > > > >To: livercirrhosissupport > >Sent: Saturday, February 18, 2012 1:12 PM > >Subject: Horrible way to die???? > > > > > > > >I hope I don't upset anyone with this topic. I think it is on most of our minds. > >I have read the messages and files and websites. > >Originally somewhere, that this was not a terrible way to die. > >After all my searching I now think it is slow torture and agony for the diseased person and hurts your family horribly. I have 22 Grandkids and seeing me slowly die and be in pain is not a way I want to be remembered. > >I don't know what choices I have..but my future won't be something I look forward too. > > > >Carole > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2012 Report Share Posted February 20, 2012 Now, I do it for my husband. I am glad to be able to do it. I hope it shows him, how much I love him, how wonderful our life together has been, how I will preserve him in our kids memories in he best possible way. I hope it shows him he means the world to me. I think your post gave me a little reminder of that, because it does get difficult at times. Now that there's no one to help with the kids. Kim > > > > I don't know if this is comforting, but it is something my father eluded to in the months before his passing. He kept bringing up the good times, the good memories, trying to help us focus on that while the disease gripped him. I was constantly flooding him with pictures of all of us (past and present) and we would always talk about " remember this " and " remember that " > I tell you what, even after I saw the progression of his disease and was there whenever he took his last breath, whenever my mind starts to think about those times - something that he said about " remember the time you put that fishing hook through my shirt while casting out? " starts to move in and soften the blow. Whenever my mind flips to the bad memories, it always leads off on a tangent to those conversations and I get a little teary smile. > > > > Coming at it from that sense, being a child of someone who succumbed to the disease, my father would have kicked us out of the room for having his grandchildren come in and say goodbye before his passing. We wouldn't have had it any different. We are his family. We love him. We are going through this with him but in a different position. > > > > I know there is nothing more in the world a parent wants then to provide for their kids and grandkids, and to shelter them from the bad things that can happen. I understand that, but let me tell you from the other side of the fence - I would not have done anything differently. Whether or not he would have wanted me there from the time he was diagnosed until the time he passed, I would be there - why? He was my dad. He loved me more than anything else, and I loved him just as much.  > > > > > > If he was sick or feeling down, I was there. I was certainly glad to be there, doing what I could for him, because I know he wouldn't have chosen this for anyone or himself. If he wasn't feeling there, I sure wasn't going to let him be down or I would listen. Was it a bad experience? Definitely. Would I do the same things over again? Yes. He's my father. I know he was scared, sick, and worried about us more than himself, and the last thing he needed was to worry about us. I think that's natural as a parent though because I would feel the same for my daughter. I am glad I was there for him until the bitter end because I know how tiring, scarey, and flat out devastating it can be. He was worried about being a burden. He wasn't. Not all, the biggest burden would have been staying away. > > > >  > > I don't know if this is comforting, but I hope it is even just a little. My father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver Cancer. > > > > Sincerely, > > E. Bassett > > > > > > >________________________________ > > > From: carolear1951 <Carole_ar@> > > >To: livercirrhosissupport > > >Sent: Saturday, February 18, 2012 1:12 PM > > >Subject: Horrible way to die???? > > > > > > > > > > > >I hope I don't upset anyone with this topic. I think it is on most of our minds. > > >I have read the messages and files and websites. > > >Originally somewhere, that this was not a terrible way to die. > > >After all my searching I now think it is slow torture and agony for the diseased person and hurts your family horribly. I have 22 Grandkids and seeing me slowly die and be in pain is not a way I want to be remembered. > > >I don't know what choices I have..but my future won't be something I look forward too. > > > > > >Carole > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2012 Report Share Posted February 20, 2012 Ok Kim Your story has definitely brought tears to my eyes!! Not only because your sis-in-law had to die from that horrible cancer; but, that you so willingly gave of yourself. Stupidly, I really thought that illness should pull a family together, not push it apart further. To this very day, I have no understanding why my step-son, his wife, the step-daughter and one of his sistersused that period to gang up on me. I mean, I don't know what I did to them to deserve it. However, out of every sad story - there are a lot of very caring people that we just didn't know were there. Even my neighbors where I live. I'm on this cul-de-sac in an RV park. I know that every day, 1 of them is watching out for me. In fact it can be funny!! One morning, I let the cat out and went back to bed. Well, I couldn't hear him, when he wanted in again. So the neighbor just across got worried and went to my next door neighbors to see if I was OK. Like I said - some days it's just hard to be lazy, when your neighbors are watching out for you. This morning, Colleen, who's on my right, let my cat in and slammed the door. It's the only way the blinking think will stay closed. All of them are doing this out of kindness, not being snoopy neighbors. Yet, some of the people I've known for over 2 decades, can't even bring themselves to call. Sad, sad world. ________________________________  , Reading your post made me a little happy. I helped my sister in law die from stage 4 breast cancer a little over a year ago. I slept in the hospital with her, I bathed her, talked to her, helped feed her, adjusted her machines and did any and everything else I could. I was away from my kids and husband all the time. I moved 8 hours from my family to help her. I never think of the sacrifices (as others call them). I simply remember how close it brought us, how it made her a little happier knowing someone cared enough. I would do every bit of it again. The thought of burden never entered my mind. It was love, everlasting and enduring and sympathetic and true. I am so glad to know there are people in the world like you. People who see all the this caregiving the way you do, as an act of love and kindness. It sparks a little hope for humanity. Kim > > I don't know if this is comforting, but it is something my father eluded to in the months before his passing. He kept bringing up the good times, the good memories, trying to help us focus on that while the disease gripped him. I was constantly flooding him with pictures of all of us (past and present) and we would always talk about " remember this " and " remember that " > I tell you what, even after I saw the progression of his disease and was there whenever he took his last breath, whenever my mind starts to think about those times - something that he said about " remember the time you put that fishing hook through my shirt while casting out? " starts to move in and soften the blow. Whenever my mind flips to the bad memories, it always leads off on a tangent to those conversations and I get a little teary smile. > > Coming at it from that sense, being a child of someone who succumbed to the disease, my father would have kicked us out of the room for having his grandchildren come in and say goodbye before his passing. We wouldn't have had it any different. We are his family. We love him. We are going through this with him but in a different position. > > I know there is nothing more in the world a parent wants then to provide for their kids and grandkids, and to shelter them from the bad things that can happen. I understand that, but let me tell you from the other side of the fence - I would not have done anything differently. Whether or not he would have wanted me there from the time he was diagnosed until the time he passed, I would be there - why? He was my dad. He loved me more than anything else, and I loved him just as much.  > > > If he was sick or feeling down, I was there. I was certainly glad to be there, doing what I could for him, because I know he wouldn't have chosen this for anyone or himself. If he wasn't feeling there, I sure wasn't going to let him be down or I would listen. Was it a bad experience? Definitely. Would I do the same things over again? Yes. He's my father. I know he was scared, sick, and worried about us more than himself, and the last thing he needed was to worry about us. I think that's natural as a parent though because I would feel the same for my daughter. I am glad I was there for him until the bitter end because I know how tiring, scarey, and flat out devastating it can be. He was worried about being a burden. He wasn't. Not all, the biggest burden would have been staying away. > >  > I don't know if this is comforting, but I hope it is even just a little. My father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver Cancer. > > Sincerely, > E. Bassett > > > >________________________________ > > > >To: livercirrhosissupport > >Sent: Saturday, February 18, 2012 1:12 PM > >Subject: Horrible way to die???? > > > > > > > >I hope I don't upset anyone with this topic. I think it is on most of our minds. > >I have read the messages and files and websites. > >Originally somewhere, that this was not a terrible way to die. > >After all my searching I now think it is slow torture and agony for the diseased person and hurts your family horribly. I have 22 Grandkids and seeing me slowly die and be in pain is not a way I want to be remembered. > >I don't know what choices I have..but my future won't be something I look forward too. > > > >Carole > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2012 Report Share Posted February 20, 2012 Kim Your children are still quite young aren't they?? That is away sad that they will be losing their Dad before they are half grown. There is no way that I could possibly understand that, because both of my parents are still living and with each other. Almost 62 yrs!! But, I did see the pain my son was feeling when his step-dad and the only dad he ever had (in recollection). However, my son is near 33 yrs old, so it's far far from the same. ________________________________  Now, I do it for my husband. I am glad to be able to do it. I hope it shows him, how much I love him, how wonderful our life together has been, how I will preserve him in our kids memories in he best possible way. I hope it shows him he means the world to me. I think your post gave me a little reminder of that, because it does get difficult at times. Now that there's no one to help with the kids. Kim > > > > I don't know if this is comforting, but it is something my father eluded to in the months before his passing. He kept bringing up the good times, the good memories, trying to help us focus on that while the disease gripped him. I was constantly flooding him with pictures of all of us (past and present) and we would always talk about " remember this " and " remember that " > I tell you what, even after I saw the progression of his disease and was there whenever he took his last breath, whenever my mind starts to think about those times - something that he said about " remember the time you put that fishing hook through my shirt while casting out? " starts to move in and soften the blow. Whenever my mind flips to the bad memories, it always leads off on a tangent to those conversations and I get a little teary smile. > > > > Coming at it from that sense, being a child of someone who succumbed to the disease, my father would have kicked us out of the room for having his grandchildren come in and say goodbye before his passing. We wouldn't have had it any different. We are his family. We love him. We are going through this with him but in a different position. > > > > I know there is nothing more in the world a parent wants then to provide for their kids and grandkids, and to shelter them from the bad things that can happen. I understand that, but let me tell you from the other side of the fence - I would not have done anything differently. Whether or not he would have wanted me there from the time he was diagnosed until the time he passed, I would be there - why? He was my dad. He loved me more than anything else, and I loved him just as much.  > > > > > > If he was sick or feeling down, I was there. I was certainly glad to be there, doing what I could for him, because I know he wouldn't have chosen this for anyone or himself. If he wasn't feeling there, I sure wasn't going to let him be down or I would listen. Was it a bad experience? Definitely. Would I do the same things over again? Yes. He's my father. I know he was scared, sick, and worried about us more than himself, and the last thing he needed was to worry about us. I think that's natural as a parent though because I would feel the same for my daughter. I am glad I was there for him until the bitter end because I know how tiring, scarey, and flat out devastating it can be. He was worried about being a burden. He wasn't. Not all, the biggest burden would have been staying away. > > > >  > > I don't know if this is comforting, but I hope it is even just a little. My father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver Cancer. > > > > Sincerely, > > E. Bassett > > > > > > >________________________________ > > > From: carolear1951 <Carole_ar@> > > >To: livercirrhosissupport > > >Sent: Saturday, February 18, 2012 1:12 PM > > >Subject: Horrible way to die???? > > > > > > > > > > > >I hope I don't upset anyone with this topic. I think it is on most of our minds. > > >I have read the messages and files and websites. > > >Originally somewhere, that this was not a terrible way to die. > > >After all my searching I now think it is slow torture and agony for the diseased person and hurts your family horribly. I have 22 Grandkids and seeing me slowly die and be in pain is not a way I want to be remembered. > > >I don't know what choices I have..but my future won't be something I look forward too. > > > > > >Carole > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2012 Report Share Posted February 20, 2012 Yes they are very young. I have 3 wonderful babies. is 14, 15 in July. Jake is 6, Kaidee use 5 (in 1 week)! > > > > > > I don't know if this is comforting, but it is something my father eluded to in the months before his passing. He kept bringing up the good times, the good memories, trying to help us focus on that while the disease gripped him. I was constantly flooding him with pictures of all of us (past and present) and we would always talk about " remember this " and " remember that " > I tell you what, even after I saw the progression of his disease and was there whenever he took his last breath, whenever my mind starts to think about those times - something that he said about " remember the time you put that fishing hook through my shirt while casting out? " starts to move in and soften the blow. Whenever my mind flips to the bad memories, it always leads off on a tangent to those conversations and I get a little teary smile. > > > > > > Coming at it from that sense, being a child of someone who succumbed to the disease, my father would have kicked us out of the room for having his grandchildren come in and say goodbye before his passing. We wouldn't have had it any different. We are his family. We love him. We are going through this with him but in a different position. > > > > > > I know there is nothing more in the world a parent wants then to provide for their kids and grandkids, and to shelter them from the bad things that can happen. I understand that, but let me tell you from the other side of the fence - I would not have done anything differently. Whether or not he would have wanted me there from the time he was diagnosed until the time he passed, I would be there - why? He was my dad. He loved me more than anything else, and I loved him just as much.  > > > > > > > > > If he was sick or feeling down, I was there. I was certainly glad to be there, doing what I could for him, because I know he wouldn't have chosen this for anyone or himself. If he wasn't feeling there, I sure wasn't going to let him be down or I would listen. Was it a bad experience? Definitely. Would I do the same things over again? Yes. He's my father. I know he was scared, sick, and worried about us more than himself, and the last thing he needed was to worry about us. I think that's natural as a parent though because I would feel the same for my daughter. I am glad I was there for him until the bitter end because I know how tiring, scarey, and flat out devastating it can be. He was worried about being a burden. He wasn't. Not all, the biggest burden would have been staying away. > > > > > >  > > > I don't know if this is comforting, but I hope it is even just a little. My father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver Cancer. > > > > > > Sincerely, > > > E. Bassett > > > > > > > > > >________________________________ > > > > From: carolear1951 <Carole_ar@> > > > >To: livercirrhosissupport > > > >Sent: Saturday, February 18, 2012 1:12 PM > > > >Subject: Horrible way to die???? > > > > > > > > > > > > > > > >I hope I don't upset anyone with this topic. I think it is on most of our minds. > > > >I have read the messages and files and websites. > > > >Originally somewhere, that this was not a terrible way to die. > > > >After all my searching I now think it is slow torture and agony for the diseased person and hurts your family horribly. I have 22 Grandkids and seeing me slowly die and be in pain is not a way I want to be remembered. > > > >I don't know what choices I have..but my future won't be something I look forward too. > > > > > > > >Carole > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2012 Report Share Posted February 20, 2012 Yes they are very young. I have 3 wonderful babies. is 14, 15 in July. Jake is 6, Kaidee use 5 (in 1 week)! > > > > > > I don't know if this is comforting, but it is something my father eluded to in the months before his passing. He kept bringing up the good times, the good memories, trying to help us focus on that while the disease gripped him. I was constantly flooding him with pictures of all of us (past and present) and we would always talk about " remember this " and " remember that " > I tell you what, even after I saw the progression of his disease and was there whenever he took his last breath, whenever my mind starts to think about those times - something that he said about " remember the time you put that fishing hook through my shirt while casting out? " starts to move in and soften the blow. Whenever my mind flips to the bad memories, it always leads off on a tangent to those conversations and I get a little teary smile. > > > > > > Coming at it from that sense, being a child of someone who succumbed to the disease, my father would have kicked us out of the room for having his grandchildren come in and say goodbye before his passing. We wouldn't have had it any different. We are his family. We love him. We are going through this with him but in a different position. > > > > > > I know there is nothing more in the world a parent wants then to provide for their kids and grandkids, and to shelter them from the bad things that can happen. I understand that, but let me tell you from the other side of the fence - I would not have done anything differently. Whether or not he would have wanted me there from the time he was diagnosed until the time he passed, I would be there - why? He was my dad. He loved me more than anything else, and I loved him just as much.  > > > > > > > > > If he was sick or feeling down, I was there. I was certainly glad to be there, doing what I could for him, because I know he wouldn't have chosen this for anyone or himself. If he wasn't feeling there, I sure wasn't going to let him be down or I would listen. Was it a bad experience? Definitely. Would I do the same things over again? Yes. He's my father. I know he was scared, sick, and worried about us more than himself, and the last thing he needed was to worry about us. I think that's natural as a parent though because I would feel the same for my daughter. I am glad I was there for him until the bitter end because I know how tiring, scarey, and flat out devastating it can be. He was worried about being a burden. He wasn't. Not all, the biggest burden would have been staying away. > > > > > >  > > > I don't know if this is comforting, but I hope it is even just a little. My father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver Cancer. > > > > > > Sincerely, > > > E. Bassett > > > > > > > > > >________________________________ > > > > From: carolear1951 <Carole_ar@> > > > >To: livercirrhosissupport > > > >Sent: Saturday, February 18, 2012 1:12 PM > > > >Subject: Horrible way to die???? > > > > > > > > > > > > > > > >I hope I don't upset anyone with this topic. I think it is on most of our minds. > > > >I have read the messages and files and websites. > > > >Originally somewhere, that this was not a terrible way to die. > > > >After all my searching I now think it is slow torture and agony for the diseased person and hurts your family horribly. I have 22 Grandkids and seeing me slowly die and be in pain is not a way I want to be remembered. > > > >I don't know what choices I have..but my future won't be something I look forward too. > > > > > > > >Carole > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2012 Report Share Posted February 21, 2012 Kim, I cannot say anything other than *hug*. I know there's nothing I can say that will instantly fix or change anything - but I wish I could hug you and your kids. Spend as much time you can as a family (I know that be hard right now). I might make a suggestion and ask your husband if he's able to write each child a letter about the things that made them the happiest, memorable things, how much he loves each one. I mean, if he's able to. My dad told me a few days before he passed that he wished he had done that for us or at least the grandkids. He had also had wanted to take a video but it got a little tough. I have one of those bedtime stories that you record your voice to play as the pages turn. My sister in law gave it to my daughter for her first birthday. My mom and my dad both took turns reading the pages while they were recording for my daughter (who is just now 2). My dad ended the story telling her how much he loved her and I am so glad we have that. I have a bunch of guilt still about living in Houston and my family living in Tulsa and how my daughter who was only just over a year old whenever he passed not getting to spend a lot of time with him whenever he was well. I am so glad she has that. I can't listen to it just yet, but I am glad she has that so she has a little piece of him in addition to pictures of them being together. Again *hugs*. You're a very strong and encouraging woman.  Sincerely, E. Bassett >________________________________ > >To: livercirrhosissupport >Sent: Monday, February 20, 2012 11:40 PM >Subject: Re: Horrible way to die???? > > > > >Yes they are very young. I have 3 wonderful babies. is 14, 15 in July. Jake is 6, Kaidee use 5 (in 1 week)! > > >> > > >> > > I don't know if this is comforting, but it is something my father eluded to in the months before his passing. He kept bringing up the good times, the good memories, trying to help us focus on that while the disease gripped him. I was constantly flooding him with pictures of all of us (past and present) and we would always talk about " remember this " and " remember that " > I tell you what, even after I saw the progression of his disease and was there whenever he took his last breath, whenever my mind starts to think about those times - something that he said about " remember the time you put that fishing hook through my shirt while casting out? " starts to move in and soften the blow. Whenever my mind flips to the bad memories, it always leads off on a tangent to those conversations and I get a little teary smile. >> > > >> > > Coming at it from that sense, being a child of someone who succumbed to the disease, my father would have kicked us out of the room for having his grandchildren come in and say goodbye before his passing. We wouldn't have had it any different. We are his family. We love him. We are going through this with him but in a different position. >> > > >> > > I know there is nothing more in the world a parent wants then to provide for their kids and grandkids, and to shelter them from the bad things that can happen. I understand that, but let me tell you from the other side of the fence - I would not have done anything differently. Whether or not he would have wanted me there from the time he was diagnosed until the time he passed, I would be there - why? He was my dad. He loved me more than anything else, and I loved him just as much.  >> > > >> > > >> > > If he was sick or feeling down, I was there. I was certainly glad to be there, doing what I could for him, because I know he wouldn't have chosen this for anyone or himself. If he wasn't feeling there, I sure wasn't going to let him be down or I would listen. Was it a bad experience? Definitely. Would I do the same things over again? Yes. He's my father. I know he was scared, sick, and worried about us more than himself, and the last thing he needed was to worry about us. I think that's natural as a parent though because I would feel the same for my daughter. I am glad I was there for him until the bitter end because I know how tiring, scarey, and flat out devastating it can be. He was worried about being a burden. He wasn't. Not all, the biggest burden would have been staying away. >> > > >> > >  >> > > I don't know if this is comforting, but I hope it is even just a little. My father passed May 5, 2011, about 2.5 months after diagnosis of ELSD and Liver Cancer. >> > > >> > > Sincerely, >> > > E. Bassett >> > > >> > > >> > > >________________________________ >> > > > From: carolear1951 <Carole_ar@> >> > > >To: livercirrhosissupport >> > > >Sent: Saturday, February 18, 2012 1:12 PM >> > > >Subject: Horrible way to die???? >> > > > >> > > > >> > > > >> > > >I hope I don't upset anyone with this topic. I think it is on most of our minds. >> > > >I have read the messages and files and websites. >> > > >Originally somewhere, that this was not a terrible way to die. >> > > >After all my searching I now think it is slow torture and agony for the diseased person and hurts your family horribly. I have 22 Grandkids and seeing me slowly die and be in pain is not a way I want to be remembered. >> > > >I don't know what choices I have..but my future won't be something I look forward too. >> > > > >> > > >Carole >> > > > >> > > > >> > > > >> > > > >> > > > >> > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2012 Report Share Posted February 21, 2012 Kim Please don't try to hit me, but there is a phrase I've heard for many many years. God never gives you anything that you can't handle!! I know how trite it sounds coming from someone else. Many times in the past 3 yrs particularly, I would look up and ask " are you sure you have the right person " or maybe " you must have had me confused with someone who is strong " . Fortunately, and it's all my Creator's doing, I'm enjoying my good health right now. I've had to say to some friends, I'm the healthiest looking terminal cancer patient, you will probably ever see. My spiritual faith keeps me away from negative places or people. So, I'm definitely being cared for. ________________________________  Kim, I cannot say anything other than *hug*. I know there's nothing I can say that will instantly fix or change anything - but I wish I could hug you and your kids. Spend as much time you can as a family (I know that be hard right now). I might make a suggestion and ask your husband if he's able to write each child a letter about the things that made them the happiest, memorable things, how much he loves each one. I mean, if he's able to. My dad told me a few days before he passed that he wished he had done that for us or at least the grandkids. He had also had wanted to take a video but it got a little tough. I have one of those bedtime stories that you record your voice to play as the pages turn. My sister in law gave it to my daughter for her first birthday. My mom and my dad both took turns reading the pages while they were recording for my daughter (who is just now 2). My dad ended the story telling her how much he loved her and I am so glad we have that. I have a bunch of guilt still about living in Houston and my family living in Tulsa and how my daughter who was only just over a year old whenever he passed not getting to spend a lot of time with him whenever he was well. I am so glad she has that. I can't listen to it just yet, but I am glad she has that so she has a little piece of him in addition to pictures of them being together. Again *hugs*. You're a very strong and encouraging woman.  Sincerely, E. Bassett Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2012 Report Share Posted February 21, 2012 I like this ..I lean on God for everything he really has helped me through this Annie > To: livercirrhosissupport > From: gadamscan@... > Date: Tue, 21 Feb 2012 19:36:38 -0800 > Subject: Re: Horrible way to die???? > > Kim > > Please don't try to hit me, but there is a phrase I've heard for many many years. God never gives you anything that you can't handle!! I know how trite it sounds coming from someone else. Many times in the past 3 yrs particularly, I would look up and ask " are you sure you have the right person " or maybe " you must have had me confused with someone who is strong " . > > > Fortunately, and it's all my Creator's doing, I'm enjoying my good health right now. I've had to say to some friends, I'm the healthiest looking terminal cancer patient, you will probably ever see. My spiritual faith keeps me away from negative places or people. So, I'm definitely being cared for. > > > > ________________________________ > > > > > Kim, > > I cannot say anything other than *hug*. I know there's nothing I can say that will instantly fix or change anything - but I wish I could hug you and your kids. > > Spend as much time you can as a family (I know that be hard right now). I might make a suggestion and ask your husband if he's able to write each child a letter about the things that made them the happiest, memorable things, how much he loves each one. I mean, if he's able to. My dad told me a few days before he passed that he wished he had done that for us or at least the grandkids. He had also had wanted to take a video but it got a little tough. > > I have one of those bedtime stories that you record your voice to play as the pages turn. My sister in law gave it to my daughter for her first birthday. My mom and my dad both took turns reading the pages while they were recording for my daughter (who is just now 2). My dad ended the story telling her how much he loved her and I am so glad we have that. I have a bunch of guilt still about living in Houston and my family living in Tulsa and how my daughter who was only just over a year old whenever he passed not getting to spend a lot of time with him whenever he was well. I am so glad she has that. I can't listen to it just yet, but I am glad she has that so she has a little piece of him in addition to pictures of them being together. > > Again *hugs*. You're a very strong and encouraging woman. > > > Sincerely, > E. Bassett > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2012 Report Share Posted February 22, 2012 Gloria, I would NEVER...you are just too dang far! LOL, just kidding. I appreciate the sentiment in your words and i thank you for the kindness. > > Kim > > Please don't try to hit me, but there is a phrase I've heard for many many years. God never gives you anything that you can't handle!! I know how trite it sounds coming from someone else. Many times in the past 3 yrs particularly, I would look up and ask " are you sure you have the right person " or maybe " you must have had me confused with someone who is strong " . > > > Fortunately, and it's all my Creator's doing, I'm enjoying my good health right now. I've had to say to some friends, I'm the healthiest looking terminal cancer patient, you will probably ever see. My spiritual faith keeps me away from negative places or people. So, I'm definitely being cared for. > > > > ________________________________ > > > >  > Kim, > > I cannot say anything other than *hug*. I know there's nothing I can say that will instantly fix or change anything - but I wish I could hug you and your kids. > > Spend as much time you can as a family (I know that be hard right now). I might make a suggestion and ask your husband if he's able to write each child a letter about the things that made them the happiest, memorable things, how much he loves each one. I mean, if he's able to. My dad told me a few days before he passed that he wished he had done that for us or at least the grandkids. He had also had wanted to take a video but it got a little tough. > > I have one of those bedtime stories that you record your voice to play as the pages turn. My sister in law gave it to my daughter for her first birthday. My mom and my dad both took turns reading the pages while they were recording for my daughter (who is just now 2). My dad ended the story telling her how much he loved her and I am so glad we have that. I have a bunch of guilt still about living in Houston and my family living in Tulsa and how my daughter who was only just over a year old whenever he passed not getting to spend a lot of time with him whenever he was well. I am so glad she has that. I can't listen to it just yet, but I am glad she has that so she has a little piece of him in addition to pictures of them being together. > > Again *hugs*. You're a very strong and encouraging woman. > >  > Sincerely, > E. Bassett > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2012 Report Share Posted February 22, 2012 that is so true .i know he has a plan for for me i have to just keep my faith there is a reason .he had the plan to get me sober so i can try to get thru my dease of cirrhosis. bev ________________________________ To: liver cirrhosis support <livercirrhosissupport > Sent: Tuesday, February 21, 2012 7:40 PM Subject: RE: Horrible way to die???? Â I like this ..I lean on God for everything he really has helped me through this Annie > To: livercirrhosissupport > From: gadamscan@... > Date: Tue, 21 Feb 2012 19:36:38 -0800 > Subject: Re: Horrible way to die???? > > Kim > > Please don't try to hit me, but there is a phrase I've heard for many many years. God never gives you anything that you can't handle!! I know how trite it sounds coming from someone else. Many times in the past 3 yrs particularly, I would look up and ask " are you sure you have the right person " or maybe " you must have had me confused with someone who is strong " . > > > Fortunately, and it's all my Creator's doing, I'm enjoying my good health right now. I've had to say to some friends, I'm the healthiest looking terminal cancer patient, you will probably ever see. My spiritual faith keeps me away from negative places or people. So, I'm definitely being cared for. > > > > ________________________________ > > > > > Kim, > > I cannot say anything other than *hug*. I know there's nothing I can say that will instantly fix or change anything - but I wish I could hug you and your kids. > > Spend as much time you can as a family (I know that be hard right now). I might make a suggestion and ask your husband if he's able to write each child a letter about the things that made them the happiest, memorable things, how much he loves each one. I mean, if he's able to. My dad told me a few days before he passed that he wished he had done that for us or at least the grandkids. He had also had wanted to take a video but it got a little tough. > > I have one of those bedtime stories that you record your voice to play as the pages turn. My sister in law gave it to my daughter for her first birthday. My mom and my dad both took turns reading the pages while they were recording for my daughter (who is just now 2). My dad ended the story telling her how much he loved her and I am so glad we have that. I have a bunch of guilt still about living in Houston and my family living in Tulsa and how my daughter who was only just over a year old whenever he passed not getting to spend a lot of time with him whenever he was well. I am so glad she has that. I can't listen to it just yet, but I am glad she has that so she has a little piece of him in addition to pictures of them being together. > > Again *hugs*. You're a very strong and encouraging woman. > > > Sincerely, > E. Bassett > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2012 Report Share Posted February 26, 2012 Bev Mine is a spiritual Creator; but no matter, it's a Higher Power. I started hanging on my Creator right after I began the trial for the Hep C drugs that are now on the market in the States; but not in Canada yet. Makes me sooo angry. There are people out there that are suffering very bad with liver damage. But, these crackpots still need to feel important and have it mired in red tape. Actually, they are hoping that the feds will anti up some of the debt with the new drugs. Today and since 2009, I do not have Hep C!! However, the cirrhosis left an extra package - liver cancer. I did have a resection but less than 18 months later, the tumors are back. Now, something happened before I learned about the cancer this 2nd time. I had forgotten that I'm absolutely batty with Yanni music. I was led to it again and I downloaded anything I could find. Playing it, I get to a real serene and comfortable place..When I felt the awe, I went back even just 3 yrs and looked at all that happened, in my life. Then I knew without a shadow of doubt, that my life has been directed. Even if it was negative. By 2004 (1st treatment) I was getting the meout of my way. Even now, you would think that I could reasonably count on dying from my sick liver; but, whose to say the Creator has something else. Don't know and don't ask!!! ________________________________  that is so true .i know he has a plan for for me i have to just keep my faith there is a reason .he had the plan to get me sober so i can try to get thru my dease of cirrhosis. bev ________________________________  I like this ..I lean on God for everything he really has helped me through this Annie > To: livercirrhosissupport > From: gadamscan@... > Date: Tue, 21 Feb 2012 19:36:38 -0800 > Subject: Re: Horrible way to die???? > > Kim > > Please don't try to hit me, but there is a phrase I've heard for many many years. God never gives you anything that you can't handle!! I know how trite it sounds coming from someone else. Many times in the past 3 yrs particularly, I would look up and ask " are you sure you have the right person " or maybe " you must have had me confused with someone who is strong " . > > > Fortunately, and it's all my Creator's doing, I'm enjoying my good health right now. I've had to say to some friends, I'm the healthiest looking terminal cancer patient, you will probably ever see. My spiritual faith keeps me away from negative places or people. So, I'm definitely being cared for. > > > > ________________________________ > > > > > Kim, > > I cannot say anything other than *hug*. I know there's nothing I can say that will instantly fix or change anything - but I wish I could hug you and your kids. > > Spend as much time you can as a family (I know that be hard right now). I might make a suggestion and ask your husband if he's able to write each child a letter about the things that made them the happiest, memorable things, how much he loves each one. I mean, if he's able to. My dad told me a few days before he passed that he wished he had done that for us or at least the grandkids. He had also had wanted to take a video but it got a little tough. > > I have one of those bedtime stories that you record your voice to play as the pages turn. My sister in law gave it to my daughter for her first birthday. My mom and my dad both took turns reading the pages while they were recording for my daughter (who is just now 2). My dad ended the story telling her how much he loved her and I am so glad we have that. I have a bunch of guilt still about living in Houston and my family living in Tulsa and how my daughter who was only just over a year old whenever he passed not getting to spend a lot of time with him whenever he was well. I am so glad she has that. I can't listen to it just yet, but I am glad she has that so she has a little piece of him in addition to pictures of them being together. > > Again *hugs*. You're a very strong and encouraging woman. > > > Sincerely, > E. Bassett > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2012 Report Share Posted March 2, 2012 Carole, I agree with you. I don't want to die of the liver problems. Not that I mind dying, just not the undignified way the liver causes. I am hoping to die of a silent heart attack in the middle of the night. However, ironically, I still take as good care of my heart as I can, and after much treatment is in very good working order. As for choices, the only one I really see is how I will handle whatever comes. I hope I can do it with dignity, did I just say that? You see, I told our pastor's husband that I hope to die laughing, and he said that knowing me, he is sure I will if I am conscious. But, regardless of how our body dies, our spirit is a separate thing and that is the dying I am more concerned about. Maybe where you read that it wasn't a terrible way to die is one of the places where they were discussing hepatic encephalopathy, and then the patient can slip into a coma. They know nothing, so no torture for them. But as you said there are still the grandchildren, etc. I don't remember how long you have been aware of your condition, but with time, we can adjust to it, not totally of course, but somewhat. It is certainly shocking when we first find out. Jan > I hope I don't upset anyone with this topic. I think it is on most of our minds. > I have read the messages and files and websites. > Originally somewhere, that this was not a terrible way to die. > After all my searching I now think it is slow torture and agony for the diseased person and hurts your family horribly. I have 22 Grandkids and seeing me slowly die and be in pain is not a way I want to be remembered. > I don't know what choices I have..but my future won't be something I look forward too. > > Carole > > > > ------------------------------------ > > Group Email: livercirrhosissupport > web address: > http://groups.yahoo.com/group/livercirrhosissupport/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2012 Report Share Posted March 2, 2012 I think there is a part of that phrase, maybe not in the original, but certainly is there, that we don't usually say. God is there to help us handle what we need to handle. That is why we can handle whatever he gives us. There is another one similar, can't say it word for word, but something about God refining us to purest gold. I must have had a lot of impurities in me, and I am sure he isn't done yet. I have asked a similar question, why do I need to learn to handle so much, and why do I need so much refining. But have learned to accept it, and eventually realize it was for my own good. Handling makes us stronger, we don't have to be strong to start with. Jan > Kim > > Please don't try to hit me, but there is a phrase I've heard for many many years. God never gives you anything that you can't handle!! I know how trite it sounds coming from someone else. Many times in the past 3 yrs particularly, I would look up and ask " are you sure you have the right person " or maybe " you must have had me confused with someone who is strong " . > > > Fortunately, and it's all my Creator's doing, I'm enjoying my good health right now. I've had to say to some friends, I'm the healthiest looking terminal cancer patient, you will probably ever see. My spiritual faith keeps me away from negative places or people. So, I'm definitely being cared for. > > > > ________________________________ > > > > > Kim, > > I cannot say anything other than *hug*. I know there's nothing I can say that will instantly fix or change anything - but I wish I could hug you and your kids. > > Spend as much time you can as a family (I know that be hard right now). I might make a suggestion and ask your husband if he's able to write each child a letter about the things that made them the happiest, memorable things, how much he loves each one. I mean, if he's able to. My dad told me a few days before he passed that he wished he had done that for us or at least the grandkids. He had also had wanted to take a video but it got a little tough. > > I have one of those bedtime stories that you record your voice to play as the pages turn. My sister in law gave it to my daughter for her first birthday. My mom and my dad both took turns reading the pages while they were recording for my daughter (who is just now 2). My dad ended the story telling her how much he loved her and I am so glad we have that. I have a bunch of guilt still about living in Houston and my family living in Tulsa and how my daughter who was only just over a year old whenever he passed not getting to spend a lot of time with him whenever he was well. I am so glad she has that. I can't listen to it just yet, but I am glad she has that so she has a little piece of him in addition to pictures of them being together. > > Again *hugs*. You're a very strong and encouraging woman. > > > Sincerely, > E. Bassett > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2012 Report Share Posted March 2, 2012 I worry that I will still be talking when my time is up!! I've talked too much since I was a baby, so I can only believe it might be the same at the end. In fact, any time I am put under, I'm still talking when flash, I'm unaware. The last time was when I was getting an endoscopy. It was extremely weird because I had no idea I would go under. I didn't see the Gastro that was doing the scope until a couple of hours later. Yup, that is exactly the way that I want to go, give me a shot and I'm gone. Just recently, I've been in contact with a friend that was just diagnosed with lung cancer. In one of his emails, he said he always knew that he would go due to drugs; but, never imagined it would be the ones in a hospital. ________________________________  Carole, I agree with you. I don't want to die of the liver problems. Not that I mind dying, just not the undignified way the liver causes. I am hoping to die of a silent heart attack in the middle of the night. However, ironically, I still take as good care of my heart as I can, and after much treatment is in very good working order. As for choices, the only one I really see is how I will handle whatever comes. I hope I can do it with dignity, did I just say that? You see, I told our pastor's husband that I hope to die laughing, and he said that knowing me, he is sure I will if I am conscious. But, regardless of how our body dies, our spirit is a separate thing and that is the dying I am more concerned about. Maybe where you read that it wasn't a terrible way to die is one of the places where they were discussing hepatic encephalopathy, and then the patient can slip into a coma. They know nothing, so no torture for them. But as you said there are still the grandchildren, etc. I don't remember how long you have been aware of your condition, but with time, we can adjust to it, not totally of course, but somewhat. It is certainly shocking when we first find out. Jan > I hope I don't upset anyone with this topic.  I think it is on most of our minds. > I have read the messages and files and websites. > Originally somewhere, that this was not a terrible way to die. > After all my searching I now think it is slow torture and agony for the diseased person and hurts your family horribly.  I have 22 Grandkids and seeing me slowly die and be in pain is not a way I want to be remembered. > I don't know what choices I have..but my future won't  be something I look forward too. > > Carole > > > > ------------------------------------ > > Group Email:   livercirrhosissupport > web address: > http://groups.yahoo.com/group/livercirrhosissupport/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2012 Report Share Posted March 3, 2012 Hi Jan I think God is just taking all the rough spots off of us.  When we get to heaven all the shine of gold will come through.  Won't it be nice to be free of all pain and sickness? Z ________________________________ To: livercirrhosissupport Sent: Friday, March 2, 2012 10:50:32 PM Subject: Re: Horrible way to die????  I think there is a part of that phrase, maybe not in the original, but certainly is there, that we don't usually say. God is there to help us handle what we need to handle. That is why we can handle whatever he gives us. There is another one similar, can't say it word for word, but something about God refining us to purest gold. I must have had a lot of impurities in me, and I am sure he isn't done yet. I have asked a similar question, why do I need to learn to handle so much, and why do I need so much refining. But have learned to accept it, and eventually realize it was for my own good. Handling makes us stronger, we don't have to be strong to start with. Jan > Kim > > Please don't try to hit me, but there is a phrase I've heard for many many years. God never gives you anything that you can't handle!! I know how trite it sounds coming from someone else. Many times in the past 3 yrs particularly, I would look up and ask " are you sure you have the right person " or maybe " you must have had me confused with someone who is strong " . > > > Fortunately, and it's all my Creator's doing, I'm enjoying my good health right now. I've had to say to some friends, I'm the healthiest looking terminal cancer patient, you will probably ever see. My spiritual faith keeps me away from negative places or people. So, I'm definitely being cared for. > > > > ________________________________ > > > > > Kim, > > I cannot say anything other than *hug*. I know there's nothing I can say that will instantly fix or change anything - but I wish I could hug you and your kids. > > Spend as much time you can as a family (I know that be hard right now). I might make a suggestion and ask your husband if he's able to write each child a letter about the things that made them the happiest, memorable things, how much he loves each one. I mean, if he's able to. My dad told me a few days before he passed that he wished he had done that for us or at least the grandkids. He had also had wanted to take a video but it got a little tough. > > I have one of those bedtime stories that you record your voice to play as the pages turn. My sister in law gave it to my daughter for her first birthday. My mom and my dad both took turns reading the pages while they were recording for my daughter (who is just now 2). My dad ended the story telling her how much he loved her and I am so glad we have that. I have a bunch of guilt still about living in Houston and my family living in Tulsa and how my daughter who was only just over a year old whenever he passed not getting to spend a lot of time with him whenever he was well. I am so glad she has that. I can't listen to it just yet, but I am glad she has that so she has a little piece of him in addition to pictures of them being together. > > Again *hugs*. You're a very strong and encouraging woman. > > > Sincerely, > E. Bassett > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2012 Report Share Posted March 5, 2012 , yes it will be wonderful in heaven. But, I really didn't think I had quite so many rough spots. lol well, live and learn Jan > Hi Jan > > I think God is just taking all the rough spots off of us. When we get to heaven all the shine of gold will come through. Won't it be nice to be free of all pain and sickness? > > Z > > > > ________________________________ > > To: livercirrhosissupport > Sent: Friday, March 2, 2012 10:50:32 PM > Subject: Re: Horrible way to die???? > > > > I think there is a part of that phrase, maybe not in the original, but > certainly is there, that we don't usually say. God is there to help > us handle what we need to handle. That is why we can handle whatever > he gives us. There is another one similar, can't say it word for > word, but something about God refining us to purest gold. I must have > had a lot of impurities in me, and I am sure he isn't done yet. I > have asked a similar question, why do I need to learn to handle so > much, and why do I need so much refining. But have learned to accept > it, and eventually realize it was for my own good. Handling makes us > stronger, we don't have to be strong to start with. Jan > > >> Kim >> >> Please don't try to hit me, but there is a phrase I've heard for many many years. God never gives you anything that you can't handle!! I know how trite it sounds coming from someone else. Many times in the past 3 yrs particularly, I would look up and ask " are you sure you have the right person " or maybe " you must have had me confused with someone who is strong " . >> >> >> Fortunately, and it's all my Creator's doing, I'm enjoying my good health right now. I've had to say to some friends, I'm the healthiest looking terminal cancer patient, you will probably ever see. My spiritual faith keeps me away from negative places or people. So, I'm definitely being cared for. >> >> >> >> ________________________________ >> >> >> >> >> Kim, >> >> I cannot say anything other than *hug*. I know there's nothing I can say that will instantly fix or change anything - but I wish I could hug you and your kids. >> >> Spend as much time you can as a family (I know that be hard right now). I might make a suggestion and ask your husband if he's able to write each child a letter about the things that made them the happiest, memorable things, how much he loves each one. I mean, if he's able to. My dad told me a few days before he passed that he wished he had done that for us or at least the grandkids. He had also had wanted to take a video but it got a little tough. >> >> I have one of those bedtime stories that you record your voice to play as the pages turn. My sister in law gave it to my daughter for her first birthday. My mom and my dad both took turns reading the pages while they were recording for my daughter (who is just now 2). My dad ended the story telling her how much he loved her and I am so glad we have that. I have a bunch of guilt still about living in Houston and my family living in Tulsa and how my daughter who was only just over a year old whenever he passed not getting to spend a lot of time with him whenever he was well. I am so glad she has that. I can't listen to it just yet, but I am glad she has that so she has a little piece of him in addition to pictures of them being together. >> >> Again *hugs*. You're a very strong and encouraging woman. >> >> >> Sincerely, >> E. Bassett >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2012 Report Share Posted March 5, 2012 And don't forget Footprints in the Sand and one set of prints only is because Jesus carried him. I forgot about that! ---- Jan Holman wrote: ============= , yes it will be wonderful in heaven. But, I really didn't think I had quite so many rough spots. lol well, live and learn Jan > Hi Jan > > I think God is just taking all the rough spots off of us.  When we get to heaven all the shine of gold will come through.  Won't it be nice to be free of all pain and sickness? > > Z > > > > ________________________________ >  > To: livercirrhosissupport > Sent: Friday, March 2, 2012 10:50:32 PM > Subject: Re: Horrible way to die???? > > > > I think there is a part of that phrase, maybe not in the original, but > certainly is there, that we don't usually say.  God is there to help > us handle what we need to handle.  That is why we can handle whatever > he gives us.  There is another one similar, can't say it word for > word, but something about God refining us to purest gold.  I must have > had a lot of impurities in me, and I am sure he isn't done yet.  I > have asked a similar question, why do I need to learn to handle so > much, and why do I need so much refining.  But have learned to accept > it, and eventually realize it was for my own good.  Handling makes us > stronger, we don't have to be strong to start with.  Jan > > >> Kim >> >> Please don't try to hit me, but there is a phrase I've heard for many many years. God never gives you anything that you can't handle!! I know how trite it sounds coming from someone else. Many times in the past 3 yrs particularly, I would look up and ask " are you sure you have the right person " or maybe " you must have had me confused with someone who is strong " . >> >> >> Fortunately, and it's all my Creator's doing, I'm enjoying my good health right now. I've had to say to some friends, I'm the healthiest looking terminal cancer patient, you will probably ever see. My spiritual faith keeps me away from negative places or people. So, I'm definitely being cared for. >> >> >> >> ________________________________ >> >> >> >> >> Kim, >> >> I cannot say anything other than *hug*. I know there's nothing I can say that will instantly fix or change anything - but I wish I could hug you and your kids. >> >> Spend as much time you can as a family (I know that be hard right now). I might make a suggestion and ask your husband if he's able to write each child a letter about the things that made them the happiest, memorable things, how much he loves each one. I mean, if he's able to. My dad told me a few days before he passed that he wished he had done that for us or at least the grandkids. He had also had wanted to take a video but it got a little tough. >> >> I have one of those bedtime stories that you record your voice to play as the pages turn. My sister in law gave it to my daughter for her first birthday. My mom and my dad both took turns reading the pages while they were recording for my daughter (who is just now 2). My dad ended the story telling her how much he loved her and I am so glad we have that. I have a bunch of guilt still about living in Houston and my family living in Tulsa and how my daughter who was only just over a year old whenever he passed not getting to spend a lot of time with him whenever he was well. I am so glad she has that. I can't listen to it just yet, but I am glad she has that so she has a little piece of him in addition to pictures of them being together. >> >> Again *hugs*. You're a very strong and encouraging woman. >> >> >> Sincerely, >> E. Bassett >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2012 Report Share Posted March 6, 2012 LOL!!! ________________________________ To: livercirrhosissupport Sent: Monday, March 5, 2012 10:28:40 PM Subject: Re: Horrible way to die????  , yes it will be wonderful in heaven. But, I really didn't think I had quite so many rough spots. lol well, live and learn Jan > Hi Jan > > I think God is just taking all the rough spots off of us.  When we get to heaven all the shine of gold will come through.  Won't it be nice to be free of all pain and sickness? > > Z > > > > ________________________________ >  > To: livercirrhosissupport > Sent: Friday, March 2, 2012 10:50:32 PM > Subject: Re: Horrible way to die???? > > > > I think there is a part of that phrase, maybe not in the original, but > certainly is there, that we don't usually say.  God is there to help > us handle what we need to handle.  That is why we can handle whatever > he gives us.  There is another one similar, can't say it word for > word, but something about God refining us to purest gold.  I must have > had a lot of impurities in me, and I am sure he isn't done yet.  I > have asked a similar question, why do I need to learn to handle so > much, and why do I need so much refining.  But have learned to accept > it, and eventually realize it was for my own good.  Handling makes us > stronger, we don't have to be strong to start with.  Jan > > >> Kim >> >> Please don't try to hit me, but there is a phrase I've heard for many many years. God never gives you anything that you can't handle!! I know how trite it sounds coming from someone else. Many times in the past 3 yrs particularly, I would look up and ask " are you sure you have the right person " or maybe " you must have had me confused with someone who is strong " . >> >> >> Fortunately, and it's all my Creator's doing, I'm enjoying my good health right now. I've had to say to some friends, I'm the healthiest looking terminal cancer patient, you will probably ever see. My spiritual faith keeps me away from negative places or people. So, I'm definitely being cared for. >> >> >> >> ________________________________ >> >> >> >> >> Kim, >> >> I cannot say anything other than *hug*. I know there's nothing I can say that will instantly fix or change anything - but I wish I could hug you and your kids. >> >> Spend as much time you can as a family (I know that be hard right now). I might make a suggestion and ask your husband if he's able to write each child a letter about the things that made them the happiest, memorable things, how much he loves each one. I mean, if he's able to. My dad told me a few days before he passed that he wished he had done that for us or at least the grandkids. He had also had wanted to take a video but it got a little tough. >> >> I have one of those bedtime stories that you record your voice to play as the pages turn. My sister in law gave it to my daughter for her first birthday. My mom and my dad both took turns reading the pages while they were recording for my daughter (who is just now 2). My dad ended the story telling her how much he loved her and I am so glad we have that. I have a bunch of guilt still about living in Houston and my family living in Tulsa and how my daughter who was only just over a year old whenever he passed not getting to spend a lot of time with him whenever he was well. I am so glad she has that. I can't listen to it just yet, but I am glad she has that so she has a little piece of him in addition to pictures of them being together. >> >> Again *hugs*. You're a very strong and encouraging woman. >> >> >> Sincerely, >> E. Bassett >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2012 Report Share Posted March 6, 2012 AMEN  To: " livercirrhosissupport " <livercirrhosissupport > Sent: Tuesday, March 6, 2012 12:56 PM Subject: Re: Horrible way to die????  LOL!!! ________________________________ To: livercirrhosissupport Sent: Monday, March 5, 2012 10:28:40 PM Subject: Re: Horrible way to die????  , yes it will be wonderful in heaven. But, I really didn't think I had quite so many rough spots. lol well, live and learn Jan > Hi Jan > > I think God is just taking all the rough spots off of us.  When we get to heaven all the shine of gold will come through.  Won't it be nice to be free of all pain and sickness? > > Z > > > > ________________________________ >  > To: livercirrhosissupport > Sent: Friday, March 2, 2012 10:50:32 PM > Subject: Re: Horrible way to die???? > > > > I think there is a part of that phrase, maybe not in the original, but > certainly is there, that we don't usually say.  God is there to help > us handle what we need to handle.  That is why we can handle whatever > he gives us.  There is another one similar, can't say it word for > word, but something about God refining us to purest gold.  I must have > had a lot of impurities in me, and I am sure he isn't done yet.  I > have asked a similar question, why do I need to learn to handle so > much, and why do I need so much refining.  But have learned to accept > it, and eventually realize it was for my own good.  Handling makes us > stronger, we don't have to be strong to start with.  Jan > > >> Kim >> >> Please don't try to hit me, but there is a phrase I've heard for many many years. God never gives you anything that you can't handle!! I know how trite it sounds coming from someone else. Many times in the past 3 yrs particularly, I would look up and ask " are you sure you have the right person " or maybe " you must have had me confused with someone who is strong " . >> >> >> Fortunately, and it's all my Creator's doing, I'm enjoying my good health right now. I've had to say to some friends, I'm the healthiest looking terminal cancer patient, you will probably ever see. My spiritual faith keeps me away from negative places or people. So, I'm definitely being cared for. >> >> >> >> ________________________________ >> >> >> >> >> Kim, >> >> I cannot say anything other than *hug*. I know there's nothing I can say that will instantly fix or change anything - but I wish I could hug you and your kids. >> >> Spend as much time you can as a family (I know that be hard right now). I might make a suggestion and ask your husband if he's able to write each child a letter about the things that made them the happiest, memorable things, how much he loves each one. I mean, if he's able to. My dad told me a few days before he passed that he wished he had done that for us or at least the grandkids. He had also had wanted to take a video but it got a little tough. >> >> I have one of those bedtime stories that you record your voice to play as the pages turn. My sister in law gave it to my daughter for her first birthday. My mom and my dad both took turns reading the pages while they were recording for my daughter (who is just now 2). My dad ended the story telling her how much he loved her and I am so glad we have that. I have a bunch of guilt still about living in Houston and my family living in Tulsa and how my daughter who was only just over a year old whenever he passed not getting to spend a lot of time with him whenever he was well. I am so glad she has that. I can't listen to it just yet, but I am glad she has that so she has a little piece of him in addition to pictures of them being together. >> >> Again *hugs*. You're a very strong and encouraging woman. >> >> >> Sincerely, >> E. Bassett >> >> >> >> Quote Link to comment Share on other sites More sharing options...
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