Guest guest Posted September 4, 2011 Report Share Posted September 4, 2011 At the same time that I welcome you to our group, I have to say I wish you didn't qualify to be here. But, since you do, you have found the best group possible to help you. However, there are some questions nobody can answer for you, such as how long for anything related to cirrhosis. I was told 13 years ago that I had 2 to 3 years to live, by a doctor, but the wrong doctor. When I got to the liver transplant specialists they said they had no idea how long I would have. Since then I have also been dealing with other medical problems which you would think would advance the cirrhosis, but don't seem to have done so. The best thing I can think of to say to you is to enjoy the good times as long as you can. One thing we do know, with rare exceptions, is that without a transplant, cirrhosis is a terminal illness if you don't die of something else first. I pray I have a heart attack in the middle of the night and never know that it happened, not right away of course but after things get to the point where I really can't enjoy my life. And, believe me, their can be enjoyment and all the other good emotions even when you have cirrhosis. It is my belief that the more enjoyment the longer the bad things are put off. Laughter can be healing. Glad you found us. Looking forward to getting to know you and your husband better. Jan > In 2009 my dear husband was diagnosed with cirrhosis of the liver. He > is/was not a drinker. His gall bladder had turned to infected mush and he > was acutely ill and had to have surgery, and that is when they found > cirrhosis. He has been doing pretty well in the two years since surgery. > Now he is slowing down a bit, not much appetite, a little weight loss. He > is using milk thistle along with his vitamins and other meds. I need to > know how long this plateau will last. Opinions? Suggestions? > He is 82, and was very healthy. > Thank you, > Jackie son > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2011 Report Share Posted September 5, 2011 welcome jacqueline,i am truely sorry about your dear husband,all of us here know exactly what you are going thru, you have found the right place for info, and support, stay strong, and post often. much love barby > > In 2009 my dear husband was diagnosed with cirrhosis of the liver. He is/was not a drinker. His gall bladder had turned to infected mush and he was acutely ill and had to have surgery, and that is when they found cirrhosis. He has been doing pretty well in the two years since surgery. Now he is slowing down a bit, not much appetite, a little weight loss. He is using milk thistle along with his vitamins and other meds. I need to know how long this plateau will last. Opinions? Suggestions? > He is 82, and was very healthy. > Thank you, > Jackie son > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2011 Report Share Posted September 5, 2011 Thank you for the welcome. Gloria, I am not so new that I cannot give you a big cyber hug. I had hep A in 1950, and met my sweetie in 1956 on labor day, and we have been in love for 55 years today. I have wondered if it is possible that I carried hepatitis and gave it to Fred, and that is why he has cirrhosis. I asked the docs and they said no. He cannot remember ever being ill. Why does he have cirrhosis? He has been (for 3 days) having pain in the middle of his upper belly. I have a book with a diagram of referred pain, and I can't tell if this pain is referred from his liver or his small intestine. He has used an old RX for darvocet, which eliminated the pain, having used one caplet each day for two days. I know this drug is not good for people with liver problems, but it is what we have, and it has helped. I would like to have some comment on this... sincerely, son new member: In 2009 my dear husband was diagnosed with cirrhosis of the liver. He is/was not a drinker. His gall bladder had turned to infected mush and he was acutely ill and had to have surgery, and that is when they found cirrhosis. He has been doing pretty well in the two years since surgery. Now he is slowing down a bit, not much appetite, a little weight loss. He is using milk thistle along with his vitamins and other meds. I need to know how long this plateau will last. Opinions? Suggestions? He is 82, and was very healthy. Thank you, Jackie son Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2011 Report Share Posted September 5, 2011 WOW!! He's 82 and just slowing down a bit?? To me that is absolutely remarkable. Think it was about at 82, that my own father began to have a smaller appetite. Then, each week I think he gets shorter and he never was a tall man. But, it has nothing to do with liver, bladder or any of his organs. Well, maybe his head!! LOL He has developed a couple of spots on the head that are not melanoma, but carcinoma. Seems it's a heredity disease, so my family (except myself) all have to have there colons checked and now this hereditary carcinoma. My baby brother died in Jan at the age of 51, from colon cancer and that too is supposed to be hereditary.  ________________________________  In 2009 my dear husband was diagnosed with cirrhosis of the liver. He is/was not a drinker. His gall bladder had turned to infected mush and he was acutely ill and had to have surgery, and that is when they found cirrhosis. He has been doing pretty well in the two years since surgery. Now he is slowing down a bit, not much appetite, a little weight loss. He is using milk thistle along with his vitamins and other meds. I need to know how long this plateau will last. Opinions? Suggestions? He is 82, and was very healthy. Thank you, Jackie son Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2011 Report Share Posted September 5, 2011 This darvocet expired in 2000 but as a retired nurse I know meds can last a long time. The VA is probably still using WW2 drugs. Anyhow, thinking it may be intestinal, he will take milk of mag tonite and also have some yogurt. We looked at colon health and it has the bifidobacterium that yogurt has, apparently. Anyone using it? Jackie new member: In 2009 my dear husband was diagnosed with cirrhosis of the liver. He is/was not a drinker. His gall bladder had turned to infected mush and he was acutely ill and had to have surgery, and that is when they found cirrhosis. He has been doing pretty well in the two years since surgery. Now he is slowing down a bit, not much appetite, a little weight loss. He is using milk thistle along with his vitamins and other meds. I need to know how long this plateau will last. Opinions? Suggestions? He is 82, and was very healthy. Thank you, Jackie son Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2011 Report Share Posted September 5, 2011 I honestly don't know what darvocet is; but, I am assuming it's a pain killer. As far as I'm concerned, at ANY age, any medication taken in it's given dosage, will not have any harmful affects. However, what is old? Medications can lose their potency! Actually, it takes a lot and a long time for any of these meds that " might " harm the liver, to do so. ________________________________  Thank you for the welcome. Gloria, I am not so new that I cannot give you a big cyber hug. I had hep A in 1950, and met my sweetie in 1956 on labor day, and we have been in love for 55 years today. I have wondered if it is possible that I carried hepatitis and gave it to Fred, and that is why he has cirrhosis. I asked the docs and they said no. He cannot remember ever being ill. Why does he have cirrhosis? He has been (for 3 days) having pain in the middle of his upper belly. I have a book with a diagram of referred pain, and I can't tell if this pain is referred from his liver or his small intestine. He has used an old RX for darvocet, which eliminated the pain, having used one caplet each day for two days. I know this drug is not good for people with liver problems, but it is what we have, and it has helped. I would like to have some comment on this... sincerely, son new member: In 2009 my dear husband was diagnosed with cirrhosis of the liver. He is/was not a drinker. His gall bladder had turned to infected mush and he was acutely ill and had to have surgery, and that is when they found cirrhosis. He has been doing pretty well in the two years since surgery. Now he is slowing down a bit, not much appetite, a little weight loss. He is using milk thistle along with his vitamins and other meds. I need to know how long this plateau will last. Opinions? Suggestions? He is 82, and was very healthy. Thank you, Jackie son Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2011 Report Share Posted September 6, 2011 I believe darvocet is now off the market beccause of heart related complications. You might want to check before taking SUE To: " livercirrhosissupport " <livercirrhosissupport > Sent: Monday, September 5, 2011 4:56 PM Subject: Re: new member:  I honestly don't know what darvocet is; but, I am assuming it's a pain killer. As far as I'm concerned, at ANY age, any medication taken in it's given dosage, will not have any harmful affects. However, what is old? Medications can lose their potency! Actually, it takes a lot and a long time for any of these meds that " might " harm the liver, to do so. ________________________________  Thank you for the welcome. Gloria, I am not so new that I cannot give you a big cyber hug. I had hep A in 1950, and met my sweetie in 1956 on labor day, and we have been in love for 55 years today. I have wondered if it is possible that I carried hepatitis and gave it to Fred, and that is why he has cirrhosis. I asked the docs and they said no. He cannot remember ever being ill. Why does he have cirrhosis? He has been (for 3 days) having pain in the middle of his upper belly. I have a book with a diagram of referred pain, and I can't tell if this pain is referred from his liver or his small intestine. He has used an old RX for darvocet, which eliminated the pain, having used one caplet each day for two days. I know this drug is not good for people with liver problems, but it is what we have, and it has helped. I would like to have some comment on this... sincerely, son new member: In 2009 my dear husband was diagnosed with cirrhosis of the liver. He is/was not a drinker. His gall bladder had turned to infected mush and he was acutely ill and had to have surgery, and that is when they found cirrhosis. He has been doing pretty well in the two years since surgery. Now he is slowing down a bit, not much appetite, a little weight loss. He is using milk thistle along with his vitamins and other meds. I need to know how long this plateau will last. Opinions? Suggestions? He is 82, and was very healthy. Thank you, Jackie son Quote Link to comment Share on other sites More sharing options...
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