Re: Digest Number 819

[Guest guest]

Have they looked at Dursban? Fungicide organophosphate, causes rash, liver

problems, respiratory problems - but have they also looked at possible

fungus? A combination of the two would be devastating.

Mal

> From: Barbara Wilkie <wilworks@...>

> Subject: FWD - MEDICAL EMERGENCY - Suspected Pesticide Poisoning

>

> Forwarding ... -- barb

> ++++

>

> We have checked with the hospital and this is real. Mr. Roper is in

> ICU and in real trouble. Please contact the physician below. -

> Safe2Use

>

>

> ----- Original Message -----

> From: <mailto:nip@...>nip@...

> <mailto:ncap@...>ncap@...

> Sent: Saturday, March 24, 2001 9:22 PMSubject: Medical emergency

>

> Getting desperate. Roper, a 48 year old self employed, rice

> seed vendor from , Colusa County, California is in critical

> condition at UC Medical Center in Sacramento, California in

> hepatic coma from hepatic failure of unknown etiology. Hx: Healthy,

> athletic, no previous medical problems. Two weeks ago he presented

> to his local hospital with " flu-like " symptoms of malaise, arthragia,

> headache, difficulty breathing associated with a generalized body

> rash. He was transported to UC Medical Center in Sacramento

> and intubated and placed on a ventilator on his first day of

> admission there. The etiology of his illness is a mystery. He

> continued to deteriorate.He is exposed to pesticides daily through

> his occupation. Biopsies, labs, toxicology, exploratory lappy

> inconclusive. Suspicion is being directed toward a possible one time

> toxic level exposure to a pesticide or fungicide poisoning that could

> cause these symptoms and basically destroy his liver. What

> pesticides or fungicides could be suspect given these symptoms,

> especially the generalized erythema (Not palmer or plantar but his

> whole body)? Any suggestions or information would be greatly

> appreciated. Please contact UC Medical Center, Medical ICU or

> Dr. Balatback, infectious diseases through his answering

> service (530) 458-4250 Thank you

> March 2001

[Guest guest]

Okay friends, I've just changed to the digest format because I'm getting

swamped and looking for solutions. My responses won't be as timely or as

frequent, so if you want to get my attention in something short of an

evolutionary time frame you'll need to e-mail me directly at

kit.keyes@... I will continue to read the digests and pitch in but

I'm going to be off line for the next 10 days and the thought of thousands

of e-mails intimidated me more than 20 reps of squats to failure or

Poliquin's chin-up program.

My best wishes for your success over the next 10 days and into the future!

To infinity and beyond! (Okay, Betsy likes " Toy Story " ) :=)

Stay strong! a little progress each day! Kit

[Guest guest]

Okay friends, I've just changed to the digest format because I'm getting

swamped and looking for solutions. My responses won't be as timely or as

frequent, so if you want to get my attention in something short of an

evolutionary time frame you'll need to e-mail me directly at

kit.keyes@... I will continue to read the digests and pitch in but

I'm going to be off line for the next 10 days and the thought of thousands

of e-mails intimidated me more than 20 reps of squats to failure or

Poliquin's chin-up program.

My best wishes for your success over the next 10 days and into the future!

To infinity and beyond! (Okay, Betsy likes " Toy Story " ) :=)

Stay strong! a little progress each day! Kit

[Guest guest]

Ady, Protein powder really helps. Also if you put a can of beans in with

your brown rice as it is cooking, the combination I would count as a carb,

yet it will complement each other to provide some complete protein. Lentils

and Brown rice work similarly. As to goals, they are great. I'd consider

goals on fat loss, strength gain, cardio range goal at your high point (or

distance in a certain time). Sometimes discrete measurable goals are

helpful in driving you to your overall goals.

Lana, You should feel good! You are going in the right direction. I just

didn't want you later to have the result go the other way and get

discouraged. Focus on the measurements, how much stronger you are, how much

better shape and every four weeks or so get a caliper test from an

experienced hand. All the best!

Jill, I don't count fat grams, but you would count Udo's to see that you

get your target amount and count it in your total calories. Some people say

not to, but in my opinion it only makes sense to. In many respects, there

are no free foods. Get your protein, get your Udo's and scale back on carbs

as necessary.

[Guest guest]

We'll miss you for the next 10 days Kit! Whatever shall we do??

<g> Have a successful 10 days, and stay strong yourself.

Jen B.

> I'm going to be off line for the next 10 days and the thought of

thousands

> of e-mails intimidated me more than 20 reps of squats to failure or

> Poliquin's chin-up program.

>

> My best wishes for your success over the next 10 days and into the

future!

> To infinity and beyond! (Okay, Betsy likes " Toy Story " ) :=)

> Stay strong! a little progress each day! Kit

[Guest guest]

We'll miss you for the next 10 days Kit! Whatever shall we do??

<g> Have a successful 10 days, and stay strong yourself.

Jen B.

> I'm going to be off line for the next 10 days and the thought of

thousands

> of e-mails intimidated me more than 20 reps of squats to failure or

> Poliquin's chin-up program.

>

> My best wishes for your success over the next 10 days and into the

future!

> To infinity and beyond! (Okay, Betsy likes " Toy Story " ) :=)

> Stay strong! a little progress each day! Kit

[Guest guest]

Kit,

Have a great 10 days off! I'm leaving, also, but only for 3 days.....trying to enjoy the tail end of our Spring Break. Only 7 weeks of school left when we go back! (not that I'm counting....) :-)

Sara

My best wishes for your success over the next 10 days and into the future!To infinity and beyond! (Okay, Betsy likes " Toy Story " ) :=)Stay strong! a little progress each day! Kit

[Guest guest]

In a message dated 3/29/01 4:42:16 PM Eastern Standard Time,

kit.keyes@... writes:

<< I will continue to read the digests and pitch in but

I'm going to be off line for the next 10 days and the thought of thousands

of e-mails intimidated me more than 20 reps of squats to failure or

Poliquin's chin-up program.

>>

Oh no, I'm going to go into " kit " withdrawal! *LOL*

[Guest guest]

Kit,

I gave up on e-mails a while ago and just go to the

website. That makes it a lot easier.

As you can see if you don't re-type the subject in your response, we

can't follow your thread. With the online messages, you don't have

to do this.

Cash

> Okay friends, I've just changed to the digest format because I'm

getting

> swamped and looking for solutions. My responses won't be as timely

or as

> frequent, so if you want to get my attention in something short of

an

> evolutionary time frame you'll need to e-mail me directly at

> kit.keyes@L... I will continue to read the digests and pitch in

but

> I'm going to be off line for the next 10 days and the thought of

thousands

> of e-mails intimidated me more than 20 reps of squats to failure or

> Poliquin's chin-up program.

>

> My best wishes for your success over the next 10 days and into the

future!

> To infinity and beyond! (Okay, Betsy likes " Toy Story " ) :=)

> Stay strong! a little progress each day! Kit

[Guest guest]

'dwarfism ' wrote:

====

- Looking to unsubscribe? Don't e-mail the list! Just send a blank e-mail to

dwarfism-unsubscribe

- ------------------------------------------------------------------------

-

- There are 5 messages in this issue.

-

- Topics in this digest:

-

- 1. Easter:

- From: LittleMagicMan@...

- 2. MINITROTTERS WANTS TO HELP

- From: jerrystephens <jerrybs@...>

- 3. Re: Dwarf competes in Boston Marat ...'

> Take a look to the attachment.

[Guest guest]

andy, hi I do not think you should leave our group because everyone is

entitled to their own opinions anyone who does not like our comments or

advice should go somewhere else as a matter of fact I do not think meds are

the way to go my daughter has had many gains ,and is improving just with

therapy an schooling. I am sure people do not care that much about that

comment ,but I feel whatever works for each child go for it. This is u.s.a.

not afganastain whatever!!!!!!!!!!!!!!please stay and comment

[Guest guest]

I agree Dannilyn, my daughter has done wonders with an aide teacher and

extra help at school, there is no way i am putting her on meds..........but

for other kids, it maybe necessary, i'm not in that situation, where i know

there are many who are, you do what you have to do,what you think is right

by you and your child!!!! They are all different. Cheryl from Aussie

Re: Digest Number 819

andy, hi I do not think you should leave our group because everyone is

entitled to their own opinions anyone who does not like our comments or

advice should go somewhere else as a matter of fact I do not think meds are

the way to go my daughter has had many gains ,and is improving just with

therapy an schooling. I am sure people do not care that much about that

comment ,but I feel whatever works for each child go for it. This is u.s.a.

not afganastain whatever!!!!!!!!!!!!!!please stay and comment

[Guest guest]

I think Lani wrote in about not having a lift at time of explant; I

think has my pix on the group site somewhere. I know they are

also at the expantation site too with my story.I DID NOT have a lift or

anything after my explant . The pix were taken 2 or 3 weeks after the

surgery; Now I am 13 months & I still look about the same. I know I

promised taking some pix of my scars now; but I am having a hard time

finding someone to take the pix!!! LOL As for sending your original pix

JUSTINE, What I did was go to Office Max (or any copy store) ; I went on

a weekday morning when not too many people were there & asked for

assistance from a " female employee " to do color copies of my pix. They

were very helpful & it was not embarrassing. Then I mailed them to Jeena

at explantation. You can also use these places to SCAN you pix to a disc

also. Not very expensive. ****As for the sports bra after surgery...HA!

It seems like my p/s did things so different from what I've read; NO I

am not criticizing any of your p/s when I say this---I had my drains in

for 5 days; was told just to wear a regular bra but with no underwires

after they took out my drains. I am so surprised I still good to be

honest. But then again, alot of other factors have to be considered; I

never had children or a big weight gain. Yes I may look good, but I

would NEVER recommend the p/s that explanted me because of his bedside

manners. My dog responds to my questions better than my p/s did. I've

said it once & I'll say it again: If I had to do it all over again I

would have chosen a different p/s. There are MANY good choices on our

groups.The ONLY good thing I will say of him was that he DID agree to

get these things out of me the very next day. But because he did not

answer my post-op questions, it cost me an additional 8 months of pain &

frustration trying to figure out WHAT doctor to go to & finding the

" mystery pain " in my underarm.

[Guest guest]

I had to wear the ACE wrap until my first postop appt, but was allowed to wear a regular bra if I wanted to. I could do an underwire, but Dr. Huang preferred I didn't so it didn't irritate the fresh scars, and drains. It was no biggee----like wearing a strapless bra, with a reg bra for added support. e ----- Original Message ----- From: shihtzusrock@... Sent: Monday, June 03, 2002 3:36 PM Subject: Re: Digest Number 819 I think Lani wrote in about not having a lift at time of explant; Ithink has my pix on the group site somewhere. I know they arealso at the expantation site too with my story.I DID NOT have a lift oranything after my explant . The pix were taken 2 or 3 weeks after thesurgery; Now I am 13 months & I still look about the same. I know Ipromised taking some pix of my scars now; but I am having a hard timefinding someone to take the pix!!! LOL As for sending your original pixJUSTINE, What I did was go to Office Max (or any copy store) ; I went ona weekday morning when not too many people were there & asked forassistance from a "female employee" to do color copies of my pix. Theywere very helpful & it was not embarrassing. Then I mailed them to Jeenaat explantation. You can also use these places to SCAN you pix to a discalso. Not very expensive. ****As for the sports bra after surgery...HA!It seems like my p/s did things so different from what I've read; NO Iam not criticizing any of your p/s when I say this---I had my drains infor 5 days; was told just to wear a regular bra but with no underwiresafter they took out my drains. I am so surprised I still good to behonest. But then again, alot of other factors have to be considered; Inever had children or a big weight gain. Yes I may look good, but Iwould NEVER recommend the p/s that explanted me because of his bedsidemanners. My dog responds to my questions better than my p/s did. I'vesaid it once & I'll say it again: If I had to do it all over again Iwould have chosen a different p/s. There are MANY good choices on ourgroups.The ONLY good thing I will say of him was that he DID agree toget these things out of me the very next day. But because he did notanswer my post-op questions, it cost me an additional 8 months of pain & frustration trying to figure out WHAT doctor to go to & finding the"mystery pain" in my underarm.

[Guest guest]

In a message dated 7/15/2002 9:08:50 PM Central Daylight Time,

writes:

> Message: 15

> Date: Mon, 15 Jul 2002 14:39:34 -0700 (PDT)

> From: Carrol Showalter <ColoradoCarrol@...>

> Subject: Re: Dr. Atkins diet/Jordan

>

>

> Dear ,

> I'm trying to catch up on e-mail after being away from my computer for a

> few days, and am reading with much interest the different posts about your

> precious Jordan. It sounds like you are really going through terrible

> ordeal. The medications alone are a challenge, but much more discouraging

> when they don't help.

>

> My husband was in Portland this past week and had dinner with a man and his

> wife there. The wife had epilepsy, but has not had a seizure in 20 years.

> She says that the way she controls her seizures is to eat small protein

> meals six to eight times during the day. By doing this, she has totally

> eliminated medications. She said that if she doesn't eat these protein

> " mini-meals, " she suddenly goes limp, and she can tell that a seizure will

> occur unless she remedies the problem immediately.

>

> I am relaying this information in the hopes of encouraging you. Dr.

> Atkins' high protein diet may be a benefit to your daughter -- I certainly

> hope so! Please keep us posted and let us know how Jordan does on this

> diet.

>

> Best wishes,

> Carrol

>

>

Carrol,

Thank You so much for the encouraging information about the Atkins diet. I've

often thought that Jordan's seizures could be related in some way to a

metabolic dysfunction. We have diabetes and reactive hypoglycemia in my

family and she's always seemed to have such a strong " need " (or so she

thinks) for sugar and starches. Yesterday was our first official day on the

diet and it went OK, except for she was asking for " waffus " (waffles) all

day. We went to the health food store and bought some things she could have.

I made her some Atkins Waffles this morning and believe it or not they are

actually edible! She seemed very pleased. The only thing is last night she

had the worst night yet for seizures. She was having them every hour and then

starting having them every 30minutes. We gave her Diastat to try to break the

cycle, but it didn't even work. She still had one an hr. later.

The things that were different yesterday was #1 the diet #2 removal of B6 per

Dr's opinion and #3 we increased the Lamictal from 2mg in a.m. and 4 mg in

p.m. to 4mg and 4mg. in a.m. and p.m. Dr. still says he doesn't think any of

her s/s are related to the Lamictal b/c the dose is too low to be affecting

her. (I'm not sure how he really knows that, however.) I have a hard time

believing the diet could cause that effect on the first day. (She's not even

in ketosis yet) So I'm left with thinking maybe the B6? How strange is that?

I got a B complex supplement yesterday as she will need to have supplements

while on the diet. So, I gave her that this morning, we'll see how she does

today. Anyone else have any bad experiences when first starting a ketogenic

diet?

Also, Zoe you mentioned epilepsy confused with cardiac arrhythmia's. During

her long term EEG they did monitor with a single cardiac lead. I'm thinking

they would have been able to see something if it were abnormal. I'll start

checking her pulse when she's having them to see if I can hear/feel any

irregularity. I also thought about checking her blood sugar during a sz.

They're so brief however I'd hate to have her wake up and see me sticking

her. I don't think she'd understand what was going on...

(Jordan's Mom)

[Guest guest]

Does anyone have any tips on what food to give meds in on the keto diet?

We've always used applesauce but since she can't have that anymore I'm having

a time getting her meds down using an " approved " food. I'm trying to join the

keto group but I had problems with my password yesterday and couldn't log in.

I appreciate any tips.

(Jordan's Mom)

[Guest guest]

Dear ,

My experience has been that doctors have completely negated the value of

nutritional intervention relative to seizures. Not only is there viable

evidence suggesting the role that nutritional deficiencies play in seizures,

there is also evidence that many anti-seizure drugs deplete necessary brain

nutrients. I think your instinct that the B-6 plays a role is worth pursuing.

Another thought would be to investigate P-5-P, which is what B-6 becomes when

the body processes it properly. Even passive exposure to insecticides could

have impacted Jordan's ability to utilize B-6. I doubt your neurologist will

tell you this, however. . .

You sound like a very perceptive and wise Mom. Keep up the good work and hang

in there!

Best wishes,

Carrol

jennpep25@... wrote: In a message dated 7/15/2002 9:08:50 PM Central

Daylight Time,

writes:

> Message: 15

> Date: Mon, 15 Jul 2002 14:39:34 -0700 (PDT)

> From: Carrol Showalter <ColoradoCarrol@...>

> Subject: Re: Dr. Atkins diet/Jordan

>

>

> Dear ,

> I'm trying to catch up on e-mail after being away from my computer for a

> few days, and am reading with much interest the different posts about your

> precious Jordan. It sounds like you are really going through terrible

> ordeal. The medications alone are a challenge, but much more discouraging

> when they don't help.

>

> My husband was in Portland this past week and had dinner with a man and his

> wife there. The wife had epilepsy, but has not had a seizure in 20 years.

> She says that the way she controls her seizures is to eat small protein

> meals six to eight times during the day. By doing this, she has totally

> eliminated medications. She said that if she doesn't eat these protein

> " mini-meals, " she suddenly goes limp, and she can tell that a seizure will

> occur unless she remedies the problem immediately.

>

> I am relaying this information in the hopes of encouraging you. Dr.

> Atkins' high protein diet may be a benefit to your daughter -- I certainly

> hope so! Please keep us posted and let us know how Jordan does on this

> diet.

>

> Best wishes,

> Carrol

>

>

Carrol,

Thank You so much for the encouraging information about the Atkins diet. I've

often thought that Jordan's seizures could be related in some way to a

metabolic dysfunction. We have diabetes and reactive hypoglycemia in my

family and she's always seemed to have such a strong " need " (or so she

thinks) for sugar and starches. Yesterday was our first official day on the

diet and it went OK, except for she was asking for " waffus " (waffles) all

day. We went to the health food store and bought some things she could have.

I made her some Atkins Waffles this morning and believe it or not they are

actually edible! She seemed very pleased. The only thing is last night she

had the worst night yet for seizures. She was having them every hour and then

starting having them every 30minutes. We gave her Diastat to try to break the

cycle, but it didn't even work. She still had one an hr. later.

The things that were different yesterday was #1 the diet #2 removal of B6 per

Dr's opinion and #3 we increased the Lamictal from 2mg in a.m. and 4 mg in

p.m. to 4mg and 4mg. in a.m. and p.m. Dr. still says he doesn't think any of

her s/s are related to the Lamictal b/c the dose is too low to be affecting

her. (I'm not sure how he really knows that, however.) I have a hard time

believing the diet could cause that effect on the first day. (She's not even

in ketosis yet) So I'm left with thinking maybe the B6? How strange is that?

I got a B complex supplement yesterday as she will need to have supplements

while on the diet. So, I gave her that this morning, we'll see how she does

today. Anyone else have any bad experiences when first starting a ketogenic

diet?

Also, Zoe you mentioned epilepsy confused with cardiac arrhythmia's. During

her long term EEG they did monitor with a single cardiac lead. I'm thinking

they would have been able to see something if it were abnormal. I'll start

checking her pulse when she's having them to see if I can hear/feel any

irregularity. I also thought about checking her blood sugar during a sz.

They're so brief however I'd hate to have her wake up and see me sticking

her. I don't think she'd understand what was going on...

(Jordan's Mom)

[Guest guest]

--we used whipped cream sweetened with vanilla and stevia. It

works well. She can have applesauce, you just have to figure it in on the

meal planner. Jane (Leo's mom, 3 months on keto diet.) Keep trying to join

keto list. They will help you a lot.

Re: [ ] Digest Number 819

Does anyone have any tips on what food to give meds in on the keto diet?

We've always used applesauce but since she can't have that anymore I'm

having

a time getting her meds down using an " approved " food. I'm trying to join

the

keto group but I had problems with my password yesterday and couldn't log

in.

I appreciate any tips.

(Jordan's Mom)

[Guest guest]

> --we used whipped cream sweetened with vanilla and

stevia. It

> works well. She can have applesauce, you just have to figure it in

on the

> meal planner. Jane (Leo's mom, 3 months on keto diet.) Keep trying

to join

> keto list. They will help you a lot.

> -----Original Message-----

>

Jane,

I was finally able to join the keto group today, although I haven't

had time to read much yet. Thanks for the tip with the whipped cream.

I'll try it tonight. We may just need to go back to the applesauce if

it's OK. Maybe she's being so difficult b/c it's a change. You know

how toddlers can be when their routine is disrupted. :-)

(Jordan's Mom)

[Guest guest]

-- we used to always give meds with applesauce aswell, and I

dreaded the switch. We started, pre-diet, with ice cream. Then moved to

sweetened, frozen, whipped cream, then to plain whipped cream, which he is

now fine with. It did take some doing, but he finally made the transition.

Applesauce is fine -- its just that the applesauce becomes one of the few

allowed fruits -- taking the place of something else. Leo loves fruit so

much, and it is so scarce on the diet, that I wanted to give him his fruits

straight-up, if you know what I mean. Still, you can start with the

applesauce and keep trying other things. My dietician told me that

" applesauce was forbidden. " Of course, when I learned how to use the meal

planner, I saw how ridiculous that was. It just has to be calculated in

like everything else. Sorry to go on for so long. Some of the things our

dietician told us were just plain nuts!

Good luck. I think you'll find the keto list immensely helpful. I couldn't

have done without it. Jane

Now that he finally takes pills (practiced for a long time with tic tacs,

also pre-diet) its a lot easier.

iginal Message-----

From:

sentto-145753-6098-1026865334-janepraeger=compuserve.com@...

o.com

[mailto:sentto-145753-6098-1026865334-janepraeger=compuserve.com@...

ups.]On Behalf Of jennpep25

Sent: Tuesday, July 16, 2002 8:22 PM

Subject: [ ] Re: Digest Number 819

> --we used whipped cream sweetened with vanilla and

stevia. It

> works well. She can have applesauce, you just have to figure it in

on the

> meal planner. Jane (Leo's mom, 3 months on keto diet.) Keep trying

to join

> keto list. They will help you a lot.

> -----Original Message-----

>

Jane,

I was finally able to join the keto group today, although I haven't

had time to read much yet. Thanks for the tip with the whipped cream.

I'll try it tonight. We may just need to go back to the applesauce if

it's OK. Maybe she's being so difficult b/c it's a change. You know

how toddlers can be when their routine is disrupted. :-)

(Jordan's Mom)

[Guest guest]

Check out http://www.sweetscentsoap.com/soapsupplies.htm . They have

uniphen which is same as phenonip.

[Guest guest]

In a message dated 7/3/2004 2:31:25 AM Pacific Standard Time,

writes:

Currently all I am taking is tylenol and

that is like eating candy.

I do hope you are not taking more tylenol than allowed on the package. It is

not flushed from your system and can cause liver problems if over dosed for a

long period of time.

Tylenol does nothing for any pain I have, and I have given up taking it

except when it is included in a medication as a buffer.

Hope all goes well for you with your appointment.

K

[Guest guest]

Hi

Was anyone diagnosed with osteolysis and what did you do about it? Did anyone take fosomax and what were the results?

K.T.

[Guest guest]

Yes I had osteolysis. The result was the cup came

completely away from the bone.

The only thing that was done about it was to take the old

hip out, clean up the mess, grind a bigger hole and put a

bigger cup in. Oh, and put a screw to hold it in to help

ensure it is attached somewhere to good bone.

I have some osteolysis on the stem too, but they left that

because the stem was firmly in place. I'm hoping that is

the right decision.

Aussie Margaret

Re: Digest Number 819

> Hi

> Was anyone diagnosed with osteolysis and what did you do

about it? Did

> anyone take fosomax and what were the results?

> K.T.

>

[Guest guest]

Was the osteolysis before or after replacement surgery?

Lynn

> Yes I had osteolysis. The result was the cup came

> completely away from the bone.

>

> The only thing that was done about it was to take the old

> hip out, clean up the mess, grind a bigger hole and put a

> bigger cup in. Oh, and put a screw to hold it in to help

> ensure it is attached somewhere to good bone.

>

> I have some osteolysis on the stem too, but they left that

> because the stem was firmly in place. I'm hoping that is

> the right decision.

>

> Aussie Margaret

>

> Re: Digest Number 819

>

>

> > Hi

> > Was anyone diagnosed with osteolysis and what did you do

> about it? Did

> > anyone take fosomax and what were the results?

> > K.T.

> >