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Hi there,

My syrinx is going up my neck too... saw my neurologist Monday and asked him what would happen if the bugger decided to expand further, he was not worried, said it would affect my tongue... now he may be a bit reticent, but I think he'd have told me if it was going to kill me anytime soon.

Please get a second or third opinion, it doesn't sound quite right!

Luella

___________=_ADZZXXH

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Has your doctor ever discussed a shunt for your SM? I don't know much

about shunts......there are people here who have personal experience

with them that maybe could speak to you about them. It just seems to

me that if you were facing death, anything would be worth a try!

But seriously, I would find a new nsg for a second opinion, at least.

Rick's SM is also in his neck, I believe, and extends to T4.

Wendi

<7n5dh7$bcn-egroups> wrote:

original article:/group/chiari/?start=20686

> <02c601bed3b3$19f5d2e0$7222480-@cindy> wrote:

> maybe, i said it wrong where ever you want to call it it, it is in my

> neck

> >

> >

> >

>

>

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