Need proven ACM cases & permissions

[Guest guest]

Hi everyone.

As some of you may remember, my daughter had decompression surgery

January 1999 with Dr Frim. Most of her symptoms,which started during

infancy (she's 6 years of age next week), disappeared after her surgery.

She's still doing remarkably well with the exception of her bladder and

bowel control problems, which we are trying to follow-up on.

We were denied out-of-country surgery costs by OHIP (Ontario Health

Insurance Plan) because Posterior Fossa Decompression surgery is a

medical procedure which is insured here in Ontario (i.e., they know how

to do that here). However, 3 pediatric NSGs didn't agree with the Chiari

Malformation I diagnosis obtained by Drs Milhorat and Frim because

Katerina showed no tonsillar herniation. However, Milhorat and Frim

noticed lack of CSF flow and other anomalies. The NSGs here also had no

idea what the problem was and offered nothing to help her. We are

appealing the decision.

I would dearly love to get e-mails from those of you who've had

posterior fossa decompression surgery for ACM who had tonsillar

herniation of LESS than 5mm. If you could briefly describe your pre-op

symptoms, your diagnosis and any success post-op, I would be very

grateful. We are appealing in writing and must submit all relevant

documentation to back our case.

Thanks very much.

Eurico

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