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Re: re:We need publications, tapes magazines on this subject

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Thank you so much for the information posted. sorry did'nt get back to u

before, my son was very ill, now well, thank God.

The fibroid Group I hope will operate in the South Leytonstone Health

project. I have plans to develop this group to offer support, information,

further research, raise local and national awareness.

I intend to network with existing groups to build a wider network in this

area. God knows this is a serious matter for women and their families, its a

real pity so little has been achieved so far. However, now is the time to

make a difference. Please keep in touch with any information u may have.

Thank you

Grace

>

>Reply-To: uterinefibroidsegroups

>To: " fibroid list " <uterinefibroidseGroups>

>Subject: re:We need publications, tapes magazines on this

>subject

>Date: Sun, 28 May 2000 23:51:59 +0100

>

>Grace,

>

>Best wishes to you in organising a fibroids information group. Will it be

>within a larger women's health group (for example a Well Woman Centre)?

>There are already some small projects which you could be involved in or

>have contact with (if you aren't already):

>

>Fibroid News: Brigid York, 27 Old Gloucester St. London WC1N 3XX

>http://fly.to/fibroidnews

>There is a book list at the Fibroid News website. There is also a contacts

>page, though some of the information is out of date. For example, the

>headquarters of the Society for Minimally Invasive Therapy has moved to

>Germany.

>

>http://www.smartgroups.com A UK-based membership e-mail list - Please

>participate! The group is very small, but has the potential to be a good

>resource for information on medical practitioners.

>

>The Fibroid Support Group meets on the first Tuesday of each month at

>The Youth Action Scheme

>676a High Road

>Tottenham

>London N17 OA

>advice line tel. 0 ##/ mobile 07930 184693

>Shirley of the FSG is busy and pressed, but if you manage to get her on the

>phone, she's warm and helpful. Shirley is very into herbal treatments,

>not so

>informative about more technical options. I can't vouch that the meetings

>are still on first Tuesdays, but they were as of Feb.2000.

>

>Women's Health and Reproductive Rights Information Centre

>52 Featherstone Street

>London EC1Y 8RT

>tel 0 ##

>

>## London numbers changed last month, so these codes are out of date, but

>I'm sure you can get the current numbers.

>

>Unfortunately, I don't know of any resources and support for women with

>fibroids anywhere in Britain or Ireland except for London.

>

>Here are some books I was able to get from my local library. They do not

>cover Uterine Artery Embolisation. Ms Simkin's book is of course biased,

>but I think she has an impoprtant case about the need for better

>information/informed consent.

>Dr Brewer. Endometriosis and Fibroids. London: Vermillion (Random

>House), 1996

>Felicity Smart & Stuart . Fibroids. London: Thorsons*, 1993

> Simkin. The Case Against Hysterectomy. London: Pandora*, 1996

>(*imprints of Harper-)

>

>

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